Divorce, Grief Stories, Grieving Voices Guest, Grieving Voices Podcast, Podcast |
Kristjana Hillberg | A Mother’s Heartache & Sacrifice
SHOW NOTES SUMMARY:
As a parent, if you had to choose between your child’s best interest or what you personally wanted, you would likely choose what’s best for your child. However, what if that decision meant your child wouldn’t be with you full-time?
Kristjana was faced with a gut-wrenching decision that hung over her head for weeks on end until a moment of clarity struck her like a lightning bolt. But, it came with a whole lot of heartache and guilt. Not to mention one that made a lot of eyebrows go up and whispers swirl around her.
There is no manual for motherhood. And, there’s definitely no manual for divorce with shared custody. On top of that, there’s no manual for being a military spouse either.
There are often many layers to the decisions we must make in our lives that others know little about. However, that doesn’t stop the advice from coming.
Listen and learn from Kristjana’s story. We talk about making difficult decisions via your own guidance system, outward validation, boundaries, tips for communicating with children about tough issues, giving/taking advice, and there’s even a bit about being an empath towards the end of the episode.
I really enjoyed this conversation. I hope you enjoy it, too! And, if you do like what you hear, please offer your support by sharing it with someone you know who would love it, leave a review, or rate it! I’d so appreciate it! 💛
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Victoria Volk 00:00
Thank you for tuning in to this episode of grieving voices. Today, my guest is Christiana hillberg. She is a content creator, avid connector and freelance mentor. She has 10 plus years of experience in the client experience industry and is driven to help all women that she comes in contact with, unlock their potential and succeed. As a mentor Christina’s focus is to empower women to start a side hustle or leave their nine to five job completely to become their own boss hallelujah. She has worked with various clients and industries from entertainment to e commerce as well as experts in the areas of pediatric sleep and play therapy. Her work is included on brand strategies marketing campaigns, and has been a core team member on a few founding behavioral and physical physical health teams. kristiana resides in the Black Hills of South Dakota with her family and she’s a military spouse and enjoys thrifting eating scones at the local bakery and prides herself in being an aerialist in the circus. How fun. She’s also the podcaster of the podcast, your freelance friend, the red door. Welcome. Thank you for being here. We are neighbors. I’m in North Dakota, you’re in South Dakota, so much fun.
Kristjana Hillberg 01:15
I love it.
Victoria Volk 01:17
We do have running water people we do water.
Kristjana Hillberg 01:20
Yeah,
Victoria Volk 01:22
we were just talking about this before I started to record. We I live in a really, really, really, really, really small town, like 60 people. And we do have dirt roads, and so many people from across the country and even the world that I’ve talked with, like why I can’t believe you have dirt roads. And I was just sharing with Christiana too is you know, it’s really something to be grateful for. In this moment of when I step out my door, just like you, we step out our doors, and we actually hear nature. I’m sitting outside this morning, and just like it might be small, it might be in the sticks, it might be difficult to have access to things, but I have access to nature anytime I want. Right?
Kristjana Hillberg 02:07
Yes, 100%
Victoria Volk 02:08
Yeah, so thank you for being here. And I’m very thrilled to be having the conversation with you today, because you were speaking about something that has not been talked about yet on the podcast. And something that I’m sure a lot of, well, as you’ve shared briefly before we started to record that a lot of people have an opinion about. So we are going to be talking about the fact that you Well, you know what, I’ll let you share. So what brings you to grieving voices?
Kristjana Hillberg 02:35
Okay, yes, and so glad to be here and share the story. Because I think that, you know, when you’re co parenting, you already have to navigate, like such a different plan and structure. And with my situation. It was like a whole new level of learning how to co parent. So I was previously married, we ended up getting a divorce, we had a two and a half year old little one. And we started 5050 co parenting. And a few years later, I met and fell in love with my now spouse, and he was in the military still is in the military. And he was stationed across the state, which I mean, I guess Lucky for us, it was still in the same state just five hours away. And for the first year of our marriage, I stayed apart from him still living in the same town as my ex and my daughter, still, you know, co parenting 5050 doing all the things. And my husband lived across the state and we would just commute back and forth. And we had two homes, two sets of utilities. And if you’ve ever done that, you totally know what that’s like to just have to budget for that. So I think that there was just already that layer of, of stress and being a new, a newlywed, you know, couple and having to commute and live apart. And after the first year, we found out that I was pregnant. And obviously the question came up, you know, are you going to relocate and go live with your spouse? Or are you going to stay here? And so this was something that was just on my mind for months and just weighed on my mind. And I think there was just so many questions like, What do I do? What is the best choice? What is the best option for me for him for a new baby for my child who was four or five at the time, and this just ate at me and ate at me and anybody that I would tell because this is just like a common, a common thing that would come up in conversation. Right, because I was living apart from my spouse, I was now pregnant. And I was also co parenting. So it was something that was discussed a lot, or just naturally brought up like, Oh, where’s your husband, and oh, you’re pregnant, like, wow, you live apart, whoa, like, you know, so it just always came up. And so there was this added stress of everyone feeling the need to let me know, their opinions and thoughts about what I should do and what the best option was, or maybe how I would feel, depending on what option I chose. And so I remember going to her Christmas program, her kindergarten Christmas program, and I naturally did everything alone, because my spouse was out here, he couldn’t make it back for a lot of the activities. And I was sitting in the back row alone. And I looked up, and this is making me emotional, I haven’t really talked about this in a while. And her dad was there with his new wife. And both of their families were there, like huge families with brothers and sisters, and cousins and grandparents, like everyone was there. And it just hit me and I immediately knew that I couldn’t take her. I couldn’t take her with me. And not just because I didn’t think that she belonged with me because I’m her mother. But because I truly believe that just because I am the mom doesn’t necessarily mean that I’m like the better parent or the more suited parents. I mean, both of us love her unconditionally, and, and take care of her 100% but I think it was, it was a peaceful feeling. But it was also heart wrenching. And I think that so many, so many questions still fall out after that choice, like, what will this do in the long run? How will this affect her in the long run? Will she think that I abandon her? Will she think you know, that I chose Kurt over her? And if so, I mean, how will that affect, you know, like the choices she makes so there was a lot of just heartache and I think the heartache would have come no matter what choice I made, like whether I would have chose to stay in the same town and you know, have this new baby away from my partner or, or you know, whether I would have done what I did and came out here. So I think that it was just a very emotional thing that I really wasn’t sure I had no idea how I would feel I had no idea how others would feel others as in her or what that was going to look like for co parenting because you know, I wouldn’t have her 5050 anymore, it was going to look differently. But I made this choice and we’ve been here now for three years and I drive back every other weekend and she’s with us you know on rotating holidays and in the summer and it’s still it’s still hard like there’s nothing that has been easy or better. It’s just a whole new set of challenges and life that’s it
Victoria Volk 08:34
and that’s a lot I can’t like how they that moment where you realize that you couldn’t take our width it’s it’s this moment of I mean really describe that to two people what that sacrifice feels like because I think that as mothers we do sacrifice a lot of ourselves but for our children I think it’s there’s a different connection a mother to child that other people who don’t have that or even our counterpart the other parent can’t understand right can you speak to that a little bit what that that knowing of what that sacrifice Wow, really what did that feel like?
Kristjana Hillberg 09:31
Wow, you know, like I had mentioned I mean, I think once that I like in that moment. Of course this had been weighing on me weighing on my mind my shoulders I remember being almost like physically ill for several months and not even just because I was pregnant, but because of this, this choice that needed to be made. And so I remember sitting there and having that feeling come over me and like I said it was Peace and knowing that her staying, she was still going to be very much loved and taken care of. But it was so scary. And also so I think, I felt guilty, I felt guilty for thinking that it was an option to leave. And I think that sense. I mean, it’s been three years since since this choice was made. But I think since then, I’ve just read different things or experienced different things where I’m like, it almost it’s, it’s been a comfort a little bit. So like even reading untamed by Glenda Doyle, she talks about how oftentimes mothers become like martyrs, once they have kids, like it’s like, oh, now I’m a mom. And now I like that is my job is to like Mother, you and you are like the center of my world. So I totally understand that. And I now have three children. And I, I do get that. But I also think that I have also tried to live my life where my children are a huge part of my world, but they’re just, they’re an extension of me. They’re not, they don’t define me. They don’t define all that I am. And so I think that it’s been as hard as it’s been. And as, you know, the guilt that came with it, the questioning, I also think that this was the choice that that I needed to make. And I think that even just like reading that book, or hearing from other other people that Yeah, they may not have had the same experience. But I thought, you know, kind of the same, like even thinking about military spouses, sometimes like, the active duty spouse will get deployed for a year or two years, and that spouses is left home with the children. And so I think, kind of like, in our case, I’m lucky to our I still get to see her all the time very frequently. And luckily enough with FaceTime and zoom, I mean, we can FaceTime really whenever we feel like it or hop on the call. And it’s not that I feel like I’m necessarily missing out, I think I’ve really had to try and put my feelings aside and just think about how can I best support her in this because it must be really hard to live with a parent, you know, who parents this way, and then also a parent who parents a completely different way, and manage having the the commute like five hours, if she’s going to come she has to sit in a car for five hours. And then when she goes back another five hours, so it’s been very, I’ve had to really focus on how can I, you know, support her through this validate her feelings and not make it about me? And I think that was, that’s bad, you know, eye opening as well. I think that sometimes I think that I’m selfless. And then you’re you know, you’re put in these situations and, you know, it’s like, Oh, poor me, or this is so hard for me. And I’m like, oh, but it has to be doubly hard, you know, for her. Like she already has divorced parents, it’s probably even extra to now have to think about the distance that’s between us. So I think that that was really humbling throughout this entire entire journey.
Victoria Volk 13:38
As I’m listening to you, I’m like, well, it’s a lot of emotional intelligence, right there. Did you always have that? Or has that been part of your growth through this experience? Like what? Because the way you talk about it now it’s, it is like this piece of knowing that you made the right decision. And you you continue to do make you continue to make the right decision, but also this really strong, empathetic, empathetic compassion, to really put yourself in her shoes. And I think really, that’s what is oftentimes missed when it comes to children, because children is seen as resilient. And that drives me nuts. It really does. Because children don’t choose to be resilient. They’re put in the position to have to be resilient. Yes. Wow. Yeah. I’m curious how that evolved for you. Like, was that just something that’s innate in you? Or do you feel like that’s something that is, have you had previous experiences, I guess I’m going to get to have you had previous experiences in your childhood that have shaped how you came to this decision and how you’ve continued to navigate it.
Kristjana Hillberg 15:00
Yeah, that is a really great question. And and No, I don’t think that it was just natural for me. Because I think that and I mean, maybe other women who are, who are mothers can relate as, as a mother, I naturally feel like, my children should be with me like, I’m the mom, I’m organized, I’m dependable, I have their schedules memorized, like, I’m, I’m versatile, I can multitask. Whereas not saying that my spouse isn’t like a phenomenal dad, but it’s just a totally different, like, he’s way more like laid back. And like, Oh, I didn’t realize that all of these things went into, you know, getting everybody ready in the morning. Like, it’s just such a different aspect. So when I was thinking about this, I’m like, Oh, my gosh, you know, yes, her dad is is a wonderful dad, and he has a spouse, now a partner that can help him, but will they take care of her as good as me, but then I almost had it, then there was like, another voice in my head that was like, she will be taken care of like, it’s okay. So I think that it was like this, almost, you know, two voices in my head, where it was, of course, those questions came up, or, you know, I would have done that differently. But I think that that’s just natural, whether you are divorced, or whether or not whether or not you live in the same house with your partner, like, I think it’s very natural to probably have those questions like, Oh, I could have, you know, done that a little bit better. I wouldn’t have done that. Exactly. You know, the way you did, but I also think that growing up, I mean, my parents got divorced when I was 14, but it wasn’t really a surprise to me, they didn’t really have a great relationship. I remember wondering if they would get divorced, growing up, just like having that question. I believe I’ve been asked my mom that a few different times. And then, you know, my dad made a choice, you know, when I think I was, you know, a freshman or a sophomore, and they decided to split. And it was almost more of like, refreshing that it wasn’t like a elephant in the room anymore. It was just like, oh, okay, that’s finally happened. That’s great. And I think that kind of like, what you touched on is that people say that all the time is, oh, they’re your resilience, you know, you’ll be fine. And I think that that is so normalized, like, you’ll be fine. I mean, we even say it like, consistently like, Oh, it’s fine. It’s okay, like, I’m okay, I’ll be fine. But I don’t think that we validate our children’s feelings enough. I mean, and I’m still working on that, and not telling them how they feel like, oh, you’ll you’ll be okay. Which obviously, I think, looking at big picture, like, yes, she will learn how to deal with it or cope with it. And ultimately, you know, quote, unquote, should be fine. But I still think that it’s so important to validate that she’s upset right now or sad right now or has questions about it and, you know, struggles with want not wanting to drive across the state, which I totally understand, or now that she has, you know, two siblings here and a sibling there. It’s hard for her. And I think that just me showing up and saying, like, wow, yeah, that sounds really hard. Like, I’m here to listen, instead of being like, well, you’ll be fine. It’s fine. Like everybody does this, or everybody has siblings, like it’s a part of life. I think that instead of brushing it off, it’s just so important. And I think that I wish that I would have had that. And I think that, you know, all of us as adults now can look back on our childhood and be like, oh, wow, okay, like this is maybe why my parents acted the way they did, or this is how I wish I would have been talked to or looked at. And I think that that’s all we can do now as parents and adults is to change that and try to do better for them so that they can eventually do better than us. And that’s really just All I’m trying to do. And each day is, is still learning and learning how to navigate it. Especially as she gets older and has different questions and different frustrations and struggles. It’s so different and each child is so different with how you parent them and how you show up for them and so it’s it’s truly never ending I remember reading this blog and I felt very drawn to it because the writer was also an aerialist, and so I was like, Oh, you know, I wonder what she has to say about being an acrobat mom. And she said kind of the same thing that I could relate to is actually as a performer, there’s always an end that you’re working towards. So there’s like always a performance, right? So like an eight months, you are you are practicing, you’re working really hard for this performance. And then you have the performance that went great. And like, that’s it like you feel accomplished. But with motherhood, there’s never like an end date or like a big performance that you’re waiting for. And then like, Yay, you’ve reached it, like there’s always and then like, even after you have your baby, like, okay, pregnancy was hard, or even pregnancy was easy, and then boom, baby comes. And then it’s just like something else. Like, now your boobs are swelling, and you have to worry about like, all of these things, your body and now other kids. And so I’m just like, you know, this parenting journey is just never ending. It’s always growing and always figuring out like, truly what’s best for you and not, not allowing other ideas and thoughts of what you should be doing to, you know, hold space in your mind. And your thoughts.
Victoria Volk 21:10
Oh, so much to unpack there. And there’s so many layers, there’s so many layers to your situation, because like you said, there’s so many relationships involved, and it’s your children and their relationship to their sister and their individual relationships and the grief that they maybe have when they have to say goodbye and all of these things, and like you said, as she grows older, and as they grow older, and I’m in the trenches of the teen years right now. Oh, it doesn’t get easier. I wish I could say it does, but it just doesn’t it we I really feel like and maybe you can attest to this too. Like I’ve been growing up with my kids. Oh yeah. You know, and I you know, in the personal development world, people will say things like, you know, don’t have children for your personal growth journey, but I think that’s a natural I think that’s what naturally happens. I don’t think you can bypass that because children are mirrors.
Kristjana Hillberg 22:08
Oh my gosh, yeah,
Victoria Volk 22:10
Whatever issues you have in your life personally, like deep down in your soul, like they will emerge through your dad’s none so I’m curious you mentioned some things that you I’m curious if there’s certain resources and things that you’ve come across other than the book you mentioned by Glenn and Doyle but have there been things that have definitely helped you navigate all of these pieces of your story.
Kristjana Hillberg 22:38
Yeah, you know, the first little while when I was still like making my decision I would Google all the time and just try and find anybody who had done this or had experienced like the same things oh my gosh, I was I just kind of went down a rabbit hole of like trying to find blogs or different writings or experiences and I truly wasn’t able to find a ton with like my exact experience. But I also think that that was really great reminder is to follow your intuition your gut and actually like turn inward instead of googling all the time, right? Which I think can just be like a natural thing anymore is that we’d like Google you know, what’s this? And so it was just a really great really great reflection to be like okay, you’ve been searching outward for so long and allowing other people’s opinions and ideas to you know, just kind of fill your mind let’s just sit back and like think for a little bit just like and really marinate on what feels good to you what’s going to be best for you know, you incur new baby for Lily for everybody that’s involved. And I think that that was where more of the peace came because I think that when I was searching for outward validation and I truly was like, I was seeking for somebody to be like, oh Chris, it’ll be so you know, this is how you’ll feel it will go well and I was I truly was seeking for that. And I mean, it never came and I said, Okay, well how can I create the situation that I want I’m also a huge advocate for nothing is ever permanent so I mean, I was very upfront with my partner as well and I just said okay, this is what I feel like is the best going forward but nothing is ever permanent. So if this really has like a huge impact on her and we can see that it’s like affecting her. I you know, I would like to leave it open that I could potentially move back or that we could revisit the situation and see what else what other options We have because I think sometimes we get so stuck in this, like tunnel vision of these are our options A or B. And that is it when really there’s like 20 other doors surrounding us that we haven’t even opened yet. And so I think that just being in communication with everybody and really having our child at the forefront of Okay, like what’s best for her what’s going to work out, let’s really listen, let’s listen to her teachers, if it’s affecting her at school, if it’s affecting her, you know, personal life, or whatever it is, then we can revisit this. But ultimately, when we look back, I mean, all of her teachers would almost be like, wow, like, she is very settled and very, like, happy. And I’m just adjusting really, really well. It has never been like an issue ever. And I think that that was also comforting to know that she really like she could thrive. And as comforting as it was, it was also a little bit of, I think that I had to take the weight off of, you know, your kids will only thrive like with you as their mother. They’re when I’m like, really she knows I’m she knows I’m in our corner, she knows that I will always be there for her no matter what. But I don’t need to be there with her 24 seven for her to be a thriving young woman. I mean, she, she has friends and a wonderful stepmother and family. And so I think that it was almost like it hurt a little bit because I was like, oh, like, she she doesn’t need me in the sense of like they’re with her 24 seven, if that makes sense.
Victoria Volk 26:48
No, it does.
Kristjana Hillberg 26:50
It kind of hurts a little bit, because you would like to think like, I’m the mom, they need me. She’s gonna be so sad. Not saying that she doesn’t miss me. But it’s just, it was definitely different than what I had like envisioned or created in your mind, which I think we all know that is when we let our mind just kind of take over. It always goes to like the worst scenario like this is going to happen, it’s going to be awful. And really reality was not that at all.
Victoria Volk 27:21
Well, and I think too, like, I think when this is where I think our childhoods greatly impact us in ways in our adulthood influence our parenting in ways that we really don’t understand or comprehend or really even connect the dots and think about because you know, when we because as mothers, and I can speak for this for myself, but when my youngest went off to kindergarten, I had this midlife unraveling because I wrapped so much of myself in my identity into being a stay at home and work at home mom. So when that was gone when I realized that, that that attachment like oh, well, they don’t need me as much, they’re becoming more independent, which is really what I want to deep down because I had to grow up very independent, I had to be resourceful and, you know, depend on my own wits and really raised myself and a lot of ways and so I think that that has greatly influenced me, especially now after I’ve kind of worked through and done a lot of inner work. But when we look at our children, like they complete us, it can be very smothering to our children and stifle their growth. Because we’re all we’re, we’re latching on to something that we feel is slipping away. But that is really a projection and a reflection of us and what’s going on in us. So I think it takes a lot of introspection, and to really look at the situation for what it is and what is best for them with your feelings and your emotion and your ego set aside and that’s really hard for people to do.
Kristjana Hillberg 29:04
Yeah, another part of Glenn’s book talked about that, that part that you just brought up was showing your children that you are following your dreams and like living your passion and, and really doing like showing them that that you’re still living your life because then it like allows them to feel like wow, like I can live my life whereas I think that I mean when you watch somebody, your mother or your father that’s holding back then I think that that could potentially affect you later like oh, it’s scary out there. Or, you know, my dad has always stayed in this place and has never really ventured out like Is it scary out there. Maybe I just won’t do that. Um, and kind of the same thing. So I really like to make sure that my kids are seeing that I’m still doing all of these things that bring passion and light and love into my life and to share those things with them. So that eventually, when they decide to leave, or whatever, they decide that they will feel like, Oh, I watched my mom do it, like, I can do it too, or whatever it is, whether it’s, I mean, she watched me go through a divorce. And then she watched me find love, and she watched me, you know, perform, and she’s watched me travel. And she’s also watched me grow a business. And so I think that all of those things will hopefully inspire her, that there’s no limit to what she can or can’t do. And so I i love that you brought that up is that sometimes when you feel like that’s what defines you, it can be scary when you don’t have that anymore. And so I think, I’m not gonna say Luckily, because it’s not luck that, you know, we’re in the situation that we’re in. But I think that I was able to learn that from such an early age, like some such an early age for my kids being so young that now with my younger two, it’s just so different, like, the dynamic is so different, where I don’t, I don’t ever think that will ever reach that point where like, they’re graduating, and then I am like freaking out, because I have no idea how I’m going to like what I’m going to do, I’ll probably be like, Oh my god, I’m so happy for you by us, you know, we’ll be here doing this. And this, like, I think it’s very just like a liberating feeling to feel like, you know, these humans that we’re raising our, their own person, like, we’re just there to guide them and support them and validate their feelings and talk to them about all the things and let them know that questions are okay. But then other than that, I’m like, they pretty much will figure it out, you know, for themselves, what feels the best to them. And I think as long as we keep that at the forefront, like, how does this work for you? How does it feel for you? Like, what can we do to support you, I think that that’s totally setting them up for success rather than us dictating all the things all the time,
Victoria Volk 32:24
right, and being honest, right? Like being really, totally honest. Because you could have, I mean, as another transition happens, as your kids get older, and maybe things change, and the situation has to change, it’s like being completely on. And I think that’s where a lot of people miss, miss the mark. And that just being honest with your kids, I don’t know what this is going to look like, I don’t know how this is going to turn out. But I want you to know that anything that you concerns or anything that you can talk about it and you can, you know, it’s just giving the child a voice, letting them know that they’re being that they’re heard, and that their concerns are heard and that they they won’t be disregarded you might not make and letting them know ahead of time, like I might not make the choice that you want me to make. But I’ll make the choice with your heart as in consideration. You’ll take your thoughts into consideration. I think I love that. Yeah, when you involve them in the decision. Obviously, you can’t let them make the decision for you. But yeah, I just feel like I don’t know, I just felt like a new dimension
Kristjana Hillberg 33:29
No, it really truly was perfect because I heard this reference once or maybe not a reference. I don’t know. It’s like a little story about teaching your children how to trust their feelings. And it was saying, okay, pretend that you’re in the backseat of your, you know, you’re driving with your mom, you’re in the backseat. And a really scary accident happens where like you run through a red light, you’re spinning around, it’s you know, you’re very scary, the car stops and your mother looks back at you and says, everything’s okay, like we’re fine. And immediately you feel this disconnect because your body is telling you that that was a very scary situation and something bad could have potentially happened, where same scenario, the car stops, your mom looks back at you and says, Oh my gosh, that was so scary. How do you feel like can you feel your heart beating fast like, and kind of walks you through that, and then says, but now we’re safe. Let’s take a few breaths and just kind of like, walks you through the whole situation. It teaches you that you can trust what you felt that that experience was scary. But you are safe. And it’s okay to take a deep breath, cry, whatever you need to do. And I think that teaching your kids from such a young age that like to trust how they’re feeling, and then to also teach them that they don’t always have to be happy. Like we don’t always have to feel good and happy and excited. Like, we can Feel mad and sad and worried and those are all completely natural feelings and then teaching them also like okay this is what I do when I’m really sad or when I feel anxious you know what what makes you feel happier when you’re you know feeling sad or when you’re away and I think just like providing tools given you know, age appropriate or whatever tools that they can use that that they know now that they don’t always have to show up and act like everything’s happy and and good.
Victoria Volk 35:35
Be an example of how to how an adult regulates emotions. I had a flashback something when you were telling that story because I had a kind of a situation and my kids were a little bit younger and we were driving and I saw the rain clouds and we’re just going to get on Interstate and I saw the rain clouds and I thought oh boy I hope it doesn’t downpour at all sure enough, it’s like a new in my gut like this isn’t going to be good. And get like 10 miles down the road. It just starts downpouring like so bad. My wipers can’t keep up I’m blinded by the rain. I can’t Oh, yeah. And I see this 18 wheelers in front of me and and I just started pulling to the side. And I I just followed his lights. And I didn’t even know I saw him starting to pull over but I know it was he over far enough. I didn’t know. I just followed behind his lights. And I didn’t know like am I far enough to the side? Am I almost in the ditch? Like, should I go in the ditch? And you know, because my fear was I’m going to get rear ended because someone’s not going to see me. Oh my god was that terrifying? Like in my daughter like she like tears panicked, like, and I was panic. Oh my gosh, and my heart rates just raising, rising, just thinking about it. Because it was truly scary for all of us. You know, and I I’m one I can’t hide it like it is what it is. But it’s been Yeah, emotionally honest. Like, oh my gosh, that was really scary. Like, how were you feeling like, oh, like we’re okay, though. We are okay, you know? Yeah, yeah. So yeah, I was like, exact situation, just a different scenario. But yeah, it was I was gonna say anger is valid to write like, anger is totally valid emotion. I think sometimes to like, anger is an unacceptable emotion and a lot of homes like you can’t express anger. And so that gets so stuck in stifled in our bodies. And, and I’ve seen it in myself, to be honest, I had a lot of anger and resentment. And I say we say in grief recovery and grief recovery specialists, we say in grief recovery, that resentment is a poison that you take hoping someone else dies. And that’s really what long held anger becomes, is just really it’s poison in your body. But I think it’s very important that as parents, we allow our children to be angry, and to express that, but as adults, we need to emulate what that looks like. Like Yeah, and I give myself timeouts, I tell my kids, you know, I need a timeout right now. Mm, space, because I’m also a umap certified coach. And with umap it’s we learn how what our values are and how you’re wired and things like that. And it’s been really eye opening for me to just talking about values and thinking about how that when our values are violated or dishonored. That’s how much grief that creates for us. And I think if we can understand what each other especially in a home, family unit, what each person values, it can create a lot more harmony within a family.
Kristjana Hillberg 38:40
That’s great. I’ve never heard of that. That’s great.
Victoria Volk 38:44
I just got to thinking about that as I was listening to your talk to let’s to kind of circle back to the beginning because I think it’s like I said I really wanted I’m excited to talk to you about this because I think there’s a lot of like you said there was a lot of things said to you that were hurtful. And I want this to be an also an educational piece for people give people a different perspective of loss and grief in a different way. And so what are some of the hurtful and, and really harmful things that people said?
Kristjana Hillberg 39:22
Yeah, I like oh, gosh, I’ve tried to like nod. But I mean, I think that a lot of people just would revert back to like, Oh my gosh, like how could you like how could you leave her? And I think that that was a very resounding like a pretty common, a common phrase whether it was those exact words or you know a phrase that that meant that. I mean even my attorney when we were like revisiting the stipulation because we now needed to put in like, it was isn’t going to be 5050. And we had to look at different dates and, and all of that she was also kind of like cold like, Oh, you know, you’re kind of just like getting yourself in this situation, you know, and like a judge is not ever going to look at your situation and think like, Oh, she should be with her mom. Like, he’s gonna be like, well, she, like that was her choice. And so then, of course, all of those feelings of a little bit of anger, like, Well, okay, yeah, that’s a choice. And I’m marrying a man who’s active duty, but also like, he’s sacrificing his life to also serve the country. So I think that it’s like, a little bit different than just being like, hey, like we’re choosing to move to Vegas by like, it was totally not that but also like, made to seem that way. Which of course, hurt me because I was physically and emotionally sick. And so it’s not like it was a an easy decision. It’s not like it was taken lightly. And so when people would make their comments, it felt like all of my feelings and worry and ache was just not taken into account, if that makes sense.
Victoria Volk 41:17
Yeah. And you’ll hear something that I think that here’s a phrase that I tell myself when I’m encountered with a situation that I don’t understand, or seems confusing to me, or this is what I say to myself. I don’t know what I don’t know. And I think if people ask themselves that, before speaking, I don’t know what I don’t know. Would they really say half the crap? They say? Yeah, right. Not, but you know what I mean, like, we don’t know what we don’t know. So there’s, it’s almost like, when you take out one letter of a word, it changes the entire word, exactly. It’s the same thing with situations like you take out one little piece or you add in, like you, like just your story itself, there’s so many layers to it, if you understand one part of it, you’re not understanding the whole picture, you’re not getting the whole picture. Right. And so I can, I can just feel, I can put myself in your shoes and just feel that need to like justify,
Kristjana Hillberg 42:23
yes, justify. And that’s what I that’s what it felt like I was doing all of the time, is just justifying anything and everything, like, why I was doing it, how it was going to be beneficial. And then it was just, it felt so heavy, it felt so heavy to carry, but like I had said earlier is that once you stop looking for that outside validation and stop looking for other people to somehow make it you feel better, because it goes back to what you just said, Nobody knows the situation like you. So any type of advice that they’re going to give you is not really going to be in alignment, ultimately, with your situation, because they only see such a small, little tiny piece, that that really, you’re the only person who is is going to know how it feels to you. So I think that once I really decided, Okay, I’m not going to talk to anybody anymore, including my mother, including like my partner’s mother, including anybody that had any attachment to me or this situation. I just stopped, I stopped asking. And I just almost at that point, it became like, avoidance of the subject altogether. But it wasn’t avoidance because I didn’t necessarily want to talk about it, it was avoidance because I just decided I didn’t want to hear what other people had to say about it. So instead, I would just keep it like very brief and very short. And whatever it was that I ended up saying, you know, I can’t even remember because it was several years ago, but I just remembered choosing to just not let it bother me anymore. I was like, I’m the only one that’s dealing with all of these emotions, feelings and thoughts already, like I don’t want to allow other people’s voices in my head. So I think that that was a huge, a huge benefit.
Victoria Volk 44:30
And I think that advice can be applied to grief overall, in general, just overall in general and actually to like with umap I’ve learned when with values, people give advice based on their values, what they value. So for example, if I value freedom, I might tell you or even let’s say you value there’s a better example let’s say you value adventure, and the person that is asking you for advice doesn’t In value adventure, the person giving me advice might say, Oh, yeah, like, just sell your all your life savings and, and take a trip around the world, you know, as the other person might be they might if they actually did that, like, you know what I mean? Do you value? Yeah, if you value freedom, you’re gonna give advice based on that value of freedom, like, oh, leave your husband, then, you know?
Kristjana Hillberg 45:30
Yeah, oh my gosh, that’s so true. And like you said, it can be like that, just that information can be used for like all areas of our life. Like when we’re giving advice, or when we’re speaking, to say, I don’t know what I don’t know, also, what are my values? And how am I showing up in this conversation? Maybe I should just validate what they’re saying. And say, like, I’m here, I’m here to listen to you, whatever it is, because really, what’s your most of us want anyways, it’s just somebody to listen, that’s it. Like, I hardly ever go into a conversation and want them to like, work out my problems. For me, I usually show up and just want to talk about it. And usually by me talking, I either feel heard, and a weight is lifted, or I like solve my own problem by speaking it out loud, right? It’s like one of those one, one of those. And so I’m just like, you know, if we all just showed up more, and I’m not saying that I’m perfect at that. And by any means, I always feel like I should solve someone’s problems. But usually people don’t want that anyway. So just learning how to show up. And just, that’s all you have to say, like I’m here. Whatever you need.
Victoria Volk 46:44
And I think that’s a knee jerk reaction for so many people. And that was me, too. For a long time. Just I want to solve it. I want to fix it. Oh, yeah, you want to fix it for you. I want you happy, you know, that I want you to happy? Yeah, you should, you should be happy because your sadness and your anger and your grief and makes me uncomfortable. You know, so let’s fix you. You’re the problem!
Kristjana Hillberg 47:07
Oh, I even noticed too. Like, my mom is very emotional. She cries. Usually when we talk. And I remember for a while, I’d be like, Oh my gosh, stop crying. And I had listened to a podcast or talk talking about that is usually when we dismiss other people’s emotions, because it makes us uncomfortable. And we like that is not okay. And so anymore, ever since because I didn’t know what I didn’t know. Right? And so now I show up. And if she feels like crying, I’m just like, I love you. I’m here for you. And I just allow myself to sit in the uncomfortableness and anymore like, it’s not really uncomfortable. You know? Like it’s not. It just is what it is. And I think that a lot of the time we and that can be with anything, right? With race, with marriage with having kids with sex with porn with anything we’re like, that’s super uncomfortable, don’t want to talk about it. Can you not share those things with me? Like, I don’t feel comfortable? like can you please stop talking about that when really like, it’s not our job to like, you know, shield what they’re talking about, like we’re just there. And if we can’t hold space for it, that’s a different thing. Like Listen, I’m not in the headspace, but like, I can give you five minutes or like, let me hug you. Like I think that just communicating, being open, being honest, being willing to be uncomfortable. Those are all huge things that all of us I think could work on at all times. Like it never ends. It’s like an always always evolving and growing and learning. Always.
Victoria Volk 48:43
absolutely. And you said what you all said there the through line to all of that is boundaries. You kind of didn’t mention the word boundaries but I think when we don’t even know what boundaries look like or don’t even have our own we don’t have them with other people and I’m reading a book right now about empaths and healing for empaths and it’s been really like it’s like oh my gosh, this book is like this is my life like this is this has been my life because I’m I’m like an energy sponge for people you know, I take it all in and I’m really starting to understand my childhood more so because I am so empathic and I think if we can understand that too, with our children, because you know, to be told you’re a crybaby or like even your what made me think of it was your example of your mom, if she is a highly sensitive person and cries easily, and you’re always told, quit crying, quit crying, like don’t show your anger like don’t show your emotions, your body, you will process those emotions with your body. And actually in an example of that in the book is actually talking about Fibromyalgia because Fibromyalgia has no, there’s like never any pinpoint reason for fibromyalgia like there’s never like this is what causes it like they there’s so much. But what it really is, is this stuck energy, it really is just stuck energy, look at any symptoms, physical symptoms that you have. And if you’ve gone to doctor after doctor and there’s just no known cause like there’s no reason for it like nothing no, there wasn’t any trauma or anything, look at your energy of your physical body and ask yourself am I really highly sensitive person? Do I really get physically drained? when I’m around a lot of people or talked about like holidays to like, it’s like the holidays were made to have to like torture an empath? It’s like, yes. Yes, that’s true.
Kristjana Hillberg 50:47
Yeah, really fascinating.
Victoria Volk 50:53
This book is like written for me. And so really. Yeah, so I think but circling back, and how that what that has to do with your share, is just understanding that we are all built differently. And that if someone seems to be highly emotional, it could just be that that’s how they’re built. That’s how God made them. That’s, you know, you’re an empathic, highly sensitive person and maybe give a little grace. Like you said, I’d love you, Mom, I’m here for you. You know?
Kristjana Hillberg 51:29
Yeah, I love that I love all of that reflection. Beautiful, and boundaries. 100%. I’m like, Girl, we could just talk for seven more hours. But I think that I mean, I, I keep like, branching off, like, here’s the story. And then here’s these little branches off. But to just circle back really quick, I think that once I put those boundaries in place, it changed everything. It changed my energy. It changed how I reacted, it changed my thought process. And it really was, it was just way easier to navigate. Because yes, of course, this hasn’t been like, Oh, I made the choice. And now I’m super happy. Absolutely not. It has still been a range of emotions of frustration and anger and sadness and grief, right? Like you just moving through all of it. But it doesn’t mean that it’s bad. It just is what it is. And as long as I have boundaries around it all like, it’s, it’s like a protection, like it protects me and my energy. And if I could give any advice to somebody who’s going through any type of grief, because I think it’s so it’s such a relatable topic, like we’ve all gone through it, we’ve all experienced in some capacity and all differently, which is the beautiful part about it is that we can all have such different experiences, but be connected through that that same emotion and feeling is really I mean have give yourself grace and boundaries and look inward, instead of looking outward for comfort, which I think sometimes is an easy, I mean, I’ve I definitely looked outward, through maybe drinking a bottle of wine to try and not think about it, or, you know, just other behaviors that weren’t truly self care. They were more, you know, harmful. And I think it’s hard sometimes when you’re in the middle of it, because you do not want to feel sometimes you just want to not have to feel what you’re going through. And so you try to mask it with anything that could look like anything. But I think that once you just start to show up more for yourself and not for others, but really look inward. I think that’s what will be like the saving grace of it all and just be able to protect you.
Victoria Volk 54:11
Was there a certain book on boundaries or about boundaries that you found really helpful to you or any resource that you could share?
Kristjana Hillberg 54:18
You know, I was in therapy for a while, several years ago, and she actually recommended the book boundaries, which I had, I’m like, I’m looking at it. I did not read it. It’s there. And I should, but I really think that a lot of it was self exploration for me because I grew up with no boundaries. And my mother doesn’t have boundaries. I didn’t even know what boundaries were like. I honestly thought it was like a service to be available to everyone at all times for anything. Like I really thought that it that’s like what you did as a human and so Up until, I mean a few years ago, so all of this was culminating at the same time, like my divorce, being a single mother and then learning how to co parent and then also getting remarried and like figuring out life. It all centered around not having boundaries and like not even knowing where to start. And so I think that once I just started experimenting, like what that looked like, for me, like being like, oh, that doesn’t feel good when like somebody shows up at my house, unannounced, oh, I can make a boundary around that, like, Hey, if you’re gonna stop by Can you just like, give me a call, click like, Oh, that’s a boundary, or, I don’t really like it when we have guests that stay longer than three days. Okay, so like, that’s a boundary that I have. And I know I’m giving like, weird crazy examples. But those were just things that I had to experiment, experiment with experience myself, before I even knew. And now like, I would say, I’m pretty solid in the boundary department, like I am pretty in tune with myself and like, what feels good to me that I feel extremely comfortable expressing that whereas if I were to look back at my early 20s, like, shit show, like, I felt like my brain was a tornado. And I had no idea why and oh, it’s because I wasn’t I wasn’t valuing like my time and energy and space. And so once I found these new found, you know, boundaries and limitations, and like, certain things, it was a game changer, game changer.
Victoria Volk 56:37
Yeah, I actually read the book boundaries. And I highly recommend there are several books out there, but yeah, and you know, boundaries when we have them, it makes people without boundaries really uncomfortable. real easily guilted. Like, you just supposed to feel bad because your example of don’t show up my door on my door unannounced. And that’s, that’s I don’t like surprises, you know, so it’s like, well, then then you feel like, well, you’re not a welcoming person. Right? You know, yes, like, but I am just not in that way.
Kristjana Hillberg 57:14
Like I feel welcoming, come over, I want to, like I want you to come over, I just want to know that you’re coming over and then I can, like, get in that space. But I heard once that once you set boundaries, the people who break them the most are going to be the most pissed off, right? Because they’re the ones who are breaking your boundaries the most. And so I think that just like you said, it makes people uncomfortable. But it is, it will make you uncomfortable at first I think like you’ll be like, Oh, this feels bad. Like I feel bad about this. But the more you do it, the more comfortable it becomes and then the easier it is to express like anymore like I don’t, I don’t even like second guess like Oh, am I gonna like make this person feel a certain way. I’m just like, Oh, this is how I feel. You know, like would love to see you just call me in advance or Oh, you know you want to come stay that’s really great. You can stay for like two days. We live in like 1000 square foot house with three kids and a cat like there’s no room for extra bodies like love you so much. But please don’t come over. I don’t know we’ll meet you somewhere. So I think it’s just once you get used to setting those boundaries, I think that it becomes you know, easier.
Victoria Volk 58:24
It’s like a muscle you flex. Here’s the one thing too I want to say about boundaries when it comes to children and so often is and I’m guilty of this. You know, when your children are young especially it’s like oh, give grandpa grandma hug or, you know, give uncle whatever hug you know, we tell our kids to consent. Yeah, put them in your you know, go and get people you know,
Kristjana Hillberg 58:49
like hug this person that’s super uncomfortable. You only see them twice a year do it anyways, it will make them happy. It will make you again, yes, yes, sir.
Victoria Volk 58:57
Can I you know, give me a hug. It’s like,
Kristjana Hillberg 58:59
it will make me sad if you don’t.
Victoria Volk 59:04
Yeah, it’s like, like, you know, your personal space isn’t even is isn’t even addressed or respected. Or, you know, maybe I don’t want to hug them. Or maybe I don’t feel like that maybe that’s not how I express myself. Again, it’s like letting the child develop and grow into who they are. not who you want them to be or, or like you said to make other people feel comfortable. And those are the early messages we start receiving about boundaries.. What you want doesn’t matter.
Kristjana Hillberg 59:34
Oh, yeah exactly. Oh, yeah. right from the get go. 100%. And I mean, like we’ve said a few times in this podcast already as I don’t know what I don’t know. And it never used to, like irritate me or bug me and I’ve seen it now that it was brought to my attention that like, Oh, this is something that’s just like perpetuated in society like, oh, here’s, you know, 90 year old grandma you never see her revisiting You know a nursing home that you’ve never been to I you should give her a hug it’ll make her feel so sad if you don’t like we’re teaching them that their actions like what they do, it’s important to only care about how you’re going to make other people feel. And so just like you said, it’s setting them up almost for like, a really bad situations for later on in life like for, you know, if they’re dating somebody who wants to cross boundaries, then they remember this, this over arching theme that was taught that was taught to them all growing up that even if it makes you uncomfortable, you just do it because it makes that person happy. And so oh my gosh, like, now I look at my even like two year old and like if his grandpa’s like, oh, you’re not coming up to the cabin with us, it’s gonna make me so sad. I’m like, oh, doesn’t matter. He doesn’t want to do it. It’s okay, if you make Papa sad, like, how do you feel about it? Like it’s very, like intentionally teaching them to honor how they feel instead of how they’re going to make, you know, somebody else feel.
Victoria Volk 1:01:05
well, and again, it comes it circles back to the early lesson of how we look to others to validate us. And so we grow up that way, we’re going to look to others to make us happy to make us feel better. And really, that’s an inside job, huh? Yeah. So what throughout this whole experience, what is giving you the most joy?
Kristjana Hillberg 1:01:29
I think, I mean, being able to be with your partner is, is great, it was super hard for us emotionally to live apart. So us being together has been has been wonderful. And I mean, even through like deployments and stuff, it’s still nice to know, like we have, we’ve built a home. But that’s also like the the flexibility of it, as well as that, like, if he’s going to be gone for two months, then I can now travel like across the state and to maybe be with her a little bit more. So I think just the, what is that there’s just like having a support of a partner who truly does get it and who’s truly there to like, support you help you through it all, he never has told me once like, you know, this is how it’s affected me or anything like that. Like, it’s always about, like, I know that this has been hard for you, you know, how can we make this better, like, it’s, it’s been extremely comforting to have a partner who’s very supportive of it all. And really, I think that it’s opened my eyes to like who I am, you know, parts of my personality that I had to work on or that were, like, shown to me through this whole thing is that, you know, you can look at life and situations differently, it doesn’t need to be like, because it’s a societal norm, like you have to fit into this box like, or this is how you will feel if you do this, like I think that it’s taught me that I can do hard things. And that most of the time our brains just make up this like awful shit that will happen. And ultimately, that’s not really what ends up happening. So I think that it’s just, you know, the remembrance that and I know, we talked about this earlier, because I said we say all the time, like I’m fine, I’m okay, like I’m fine, I’ll get through it. And so I’m not trying to make light of that because I am fine ultimately. But I also want to to reiterate that this isn’t just like a, the journey where I feel like one way about it all the time, it’s still very much so like a journey of feeling all of the things of feeling sad, and like allowing myself to feel sad about it or, and to not live in that sadness, but to just be like, I’m having a really sad day today. Like, I really wish that she was here with us, I really wish that I was there. And then maybe you know, if I experience happiness, you know, the next day, like, that’s great, or if I experienced like longing or yearning for, you know, just to like, see her I mean, that’s what’s nice about FaceTime, too. So I think that just allowing myself to feel all of it. And to realize that like that’s just a part of life as well. Like you’re not ever just going to be like super happy all the time that this is just like making the best out of the situation and being willing to pivot if we need to. And yeah, having a support of supportive partner, I think has made things a lot. A lot easier.
Victoria Volk 1:04:42
Having the hope that it’s not permanent.
Kristjana Hillberg 1:04:45
Yeah, exactly.
Victoria Volk 1:04:46
Just the whole thrive together. Yeah, I think it’s amazing too. I just want to bring I just want to highlight the fact that there are two sets of parents raising this child Who are all co parenting, who are looking at the best interest of her. And it may not be perfect, but just the fact that you can speak so highly of the stepmom and you speak so highly of her father, and I’m sure vice versa. It just says a lot about everyone involved. And so I just want to celebrate you. And what you and your family and everyone involved has created this loving environment with this goal of just helping her thrive. And so I think that is going to leave such a lasting impact on her. And so give yourself a pat on the back for that.
Kristjana Hillberg 1:05:43
Yeah, yeah. And I think that as long as we continue to have that goal of just all of us, all of us there to support, validate, help her through whatever it is, and just be on the same page. I think ultimately, like you said, I mean, we’re, we’re setting her up for success. And that, in that sense, so yeah, it’s definitely been a journey 100% filled with all of the emotions and feelings. But we’re blessed we were we really are blessed to have such a great relationship and partnership, when it comes to raising her.
Victoria Volk 1:06:24
I think I just think it’s amazing. I really do.
Kristjana Hillberg 1:06:28
Thank you.
Victoria Volk 1:06:29
Is there anything else that you would like to share?
Kristjana Hillberg 1:06:32
I don’t think so. I’m like, gosh, I talked for over an hour. Sometimes I like jump off and I’m just like, no, this and this and this and this. But hopefully, hopefully somebody out there that’s listening can feel comforted or understood or
Kristjana Hillberg 1:06:49
heard or I don’t know,
Kristjana Hillberg 1:06:53
I think that that’s one reason. I mean, I like sharing this story is that I know we’re talking about not seeking outward, you know, a validation, but I think that I even just wanted to hear of somebody else that had had to go through something like this, and I couldn’t find it like I just I searched and searched for. I mean, oh my gosh, everywhere it seemed, and I just couldn’t find it. And so I feel like even just by sharing this story of even if it’s just as simple as like the CO parenting aspect. I mean, I think it just it brings comfort that like, Okay, I’m not the only one going through this, my feelings are validated, okay, it’s totally natural to have all of the feelings like I don’t need to feel settled all the time. Like I can feel upset or worried or scared at any point of this journey, even 10 years in, or however like I just, I think by sharing our stories is where we truly can connect with people. And I always just hope that somebody on the other end, can feel heard and seen and even just like a little bit of peace in their heart. So yeah.
Victoria Volk 1:08:06
I actually think it’s important to validate people’s feelings, I think in the context of validating the decisions we make. That’s where the, that’s where we can hurt ourselves. Because if we are looking to others to validate our decisions, that’s where we aren’t trusting ourselves. Yeah, we’re not if we can’t fully trust ourselves. And that’s kind of a scary place to be right. That’s totally, you’re never really confident in the choices you make. So I just wanted to make that distinction that, yes, validate. Look for validation of your feelings. But at the same time, the differences is if you’re trying to validate your choices and decisions that you’re making, right, like you said, trust your intuition and go with your gut. Like, that’s what really matters, because people will always give their values based advice, right? Yeah. So thank you so much for sharing your story. It’s like a tapestry, so many different colors and layers. And I just think it’s a beautiful thing that you’ve created in despite the all the unknowns that you gotta navigate. So thank you again, and where can people reach you if they like to connect with you?
Kristjana Hillberg 1:09:25
Yeah, I feel like I’m most present either on the podcast, which is the red door, or on my Instagram, which is just my name. christianna underscore hillberg. And I would love to connect, love, love, love it. I always love having people on the podcast, you want to share their story, or if you want to just connect on Instagram, I’m all about it.
Victoria Volk 1:09:44
Perfect. And I will put the links to the show notes as well as any resources that were mentioned. And remember, when you unleash your heart, you unleash your life. Much love.
Grieving Voices Podcast, Takeaways and Reflections |
Takeaways & Reflections | Struggle to Strength
SHOW NOTES SUMMARY:
Through the challenges and struggles of life, we often find our strength and learn what we’re capable of as we search for meaning in our pain.
This episode shares two stories of the tenacity it took to dig deep, while also acknowledging the need for help and support and seeking it for themselves.
Rachel battled with her husband for two years as he fought hard to beat his cancer, only to lose his fight to ALL (acute lymphoblastic leukemia) in the end.
Eric battled the struggle of guilt after finding his daughter after she took her own life when she was 15.
Two very different stories but similar in how the human spirit is capable of finding strength through struggle.
It is my hope that Rachel and Eric’s stories, although very different experiences, help you to see yourself through their struggle. And that you, too, feel hopeful that you can find your strength on the other side of the struggle.
RESOURCES:
Today, I’m going to be talking about Episode 61 with Rachel Engstrom, Life as a Cancer Wife, Widow and Never a Mother-to-Be, and how she shares the story of her husband’s diagnosis and death two years later, as well as how she found her way to feeling better. And Episode 62 with Eric Hodgdon, Opening the Door to a Parent’s Worst Nightmare, and how he went from struggle to strength. He describes a defining moment that set him on a path of empowering and leading himself through his devastating and life-shattering loss.
Human Spirit is Stronger than Anything that Can Happen to It
When I’m hearing the stories of Grievers who come on my podcast, I try to put myself in their shoes and through their story, feel what might have been like to go through that experience. And what struck me about Rachel’s story is the time that from diagnosis until her husband passed away and still holding on to hope that entire time that he would go into remission, and he would be healthy again. But we never really know when our time is up, or when we’ll receive a diagnosis that could drag on for years and years. I know people who are on dialysis, or who have been on dialysis for many years for their kidneys. And it takes a toll on people’s mindset. This is where the human spirit is remarkable in adapting to our circumstances. Whether you’re a child who’s being abused, or an adult who’s going through a terminal illness, the human spirit learns to adapt. And I think we find our resourcefulness in times of struggle and challenge. And that’s just what Rachel and her husband did. They found their resourcefulness and had support come in to help them. Her parents had lived with them for quite some time during that period. And I just imagine that had they had kids at that time, that would have been even more helpful. And I think we get so scared to ask for help and support. In those times, we think we can do it all, or we should be doing it all, especially as mothers and nurtures, we think we should be doing it all. And I personally had many challenging times asking for help and support of others. I’m only learning now in my later years that support is really where it’s at. Whether it’s in grief, in our grief or in our businesses, just bringing on support in and help which I did this year which has been incredible. So I think that is probably one of the lessons that I’ve learned in my grief recovery and talking with other gravers and hearing their stories. It’s in the support that you find your own strength in a lot of ways because when you are able to take a break, when you are able to just step back for a moment that can help to recharge your own battery and tackle the next day. And that’s a huge takeaway in Rachel’s episode, and in many episodes. I wanted to highlight that it’s important to ask for support, and whatever that looks like for you.
Be Compassionate to Others
I love this one line to where a friend of hers had told her you can choose to be bitter or better. And that was kind of a turning point for her. She didn’t want to be bitter anymore, she wanted to be better. And after her husband’s passing, she started to pick up the pieces. And really wanted to find some meaning in her experience and it ended up writing the book: Wife, Widow, How I Navigated the Cancer World and How You Can Too. And I’ve talked to many Grievers who, through their stories, through their experiences, you want to find meaning for what you’ve gone through, you want to make something of it. And that’s been really a common thread. And also, among all of the guests that I’ve had, whether that’s helping others, or in a quiet way, it doesn’t have to be writing a book or it doesn’t have to be becoming a grief recovery specialist. It can just be a more compassionate friend, or spouse or what have you. Because I do believe that the more challenging experiences of our lives have makes us more compassionate people towards others. And after a year in of this podcast and listening to people’s stories, the other tip I would give to as the quickest turnaround to feeling better is to helping others. And that was really a turning point for me personally as well. And that’s been Rachel’s work as well. She’s really been an advocate for acute lymphoblastic leukemia and, and really just cancer in general she’s really tried to raise awareness and money as well. So there are many people doing amazing things in this world because of the challenges they’ve experienced. And Rachel is one of them.
Heal Yourself First
There is another aspect of Rachel story I want to share in that what if someone with whom you are in a relationship with is diagnosed with a terminal illness, and you are, let’s say the significant other but it’s been a less than loving relationship. You’re probably going to experience a lot of conflicting feelings about that. There’s a part of you that feels like you should help that person, you should be there for them till death do you part, you would want the same for yourself, you would want that person to help you if it were you or support you if it was you that was diagnosed with a terminal illness. But truly, if it’s a less than loving relationship, I can see where during Rachel’s episode she had mentioned that one of the nurses had told her that 70% of marriages or couples separate during cancer. And that struck me but in all honesty, it doesn’t surprise me because I think there are a lot of less than loving relationships out there. I think there are many people who get into relationship who haven’t healed their own wounds. And so you have two people that come together with their wounds, not healed emotional wounds. The other person can be someone who’s either going to help you evolve and grow and challenge you to do that and maybe in hopefully you do that together. Or you can be like the child that picks the scab and you can do that for each other where it’s just kind of a toxic thing. It’s like you don’t know how to be with someone else.
As long as you have this wounded inner child in you. And we’re all walking wounded inner children, as adults, until we recognize that our past and the behaviors that we resort to as adults, and the problems we see in our lives, that are usually repetitive. We find ourselves in the same bad relationships or you find yourself with the same cycle of money issues time after time, or you find yourself abusing different substances, different stage of life. These are the things that are still there, when you get into relationship with someone, marry someone, unless you can recognize and have that awareness of what your issues are, and you work through them either together as a couple, to grow through it. Or you work on that beforehand, which I highly recommend. I would recommend to anybody who is thinking about getting married, to go through grief recovery. You know, they have these pre-marriage classes and things. But I think that the most significant thing that you can do for your future and your future life with someone is to work on your own crap. And that’s what grief recovery offers. It’s a gift to you. But you have to be willing to do the work, of course, and many people are not. And it’s just where you’re at at the time where you look for someone else to heal those wounds for you, you looked for someone else to give you the love that you should be giving yourself. And I could go on a tangent right now, but I’m not, I just wanted to highlight how can it be that in a terminal diagnosis, couples can just shatter. And I believe that’s why it’s the straw that breaks the camel’s back.
Be Your Best Advocate
There is such a level of intimacy and struggle for the person that is both the supporter and the caregiver, but also the person who is the one that is diagnosed. It’s reckoning, it’s an awakening. I’ve never been diagnosed with cancer, but I imagine it is a great awakener. And it’s grief, it is grief. Imagine the grief that it causes someone to just have learned while you have six months to live. It is capable of knocking the wind out of the sails and sinking the heart of even the strongest person you know. And I do think that how you’ve handled challenges in your life before that experience or before that diagnosis is a precursor to how you handle the harder stuff that comes your way. And maybe thinking about how you’ve done that in the past, how have you handled challenging parts of your life in the past. And do you want to be emotionally prepared? and I don’t even know that anything can really prepare you to be honest, I don’t think anything can. Nothing can for this life altering diagnosis, these changes, or these big losses that we experienced, like I’ll talk about next with Eric story, nothing can prepare you for that. But I do feel there are tools out there that can help to support you in discerning what it is you need and helping you to become your best advocate for yourself. And we will learn those things by digging deep into ourselves. And also I want to say that, the worst thing is always what happened to you because no matter what, you will always experience it at 100%. There are no half Grievers out there. So just keep that in mind. So please check out Rachel’s Episode 61: Life as a Cancer Wife, Widow and Never a Mother-to-Be because there’s so much more to her story than I even covered here today. But I do like to keep these takeaways episodes kind of brief, there is definitely more to his story. So I hope you take a listen.
Every Parent’s Worst Nightmare is Losing a Child
Now I’d like to share my takeaways from Episode 62 with Eric Hodgdon, Opening the Door to a Parent’s Worst Nightmare. In 2014, his 15 year-old daughter, Zoi, had taken her own life. And as he shared the story of how he learned about how that was done, I listened so intently. And I could visualize the story, I could visualize the moment as he was telling me, and it literally broke my heart. I have a 16 year-old, a 14 year-old, and a 12 year-old, and just even thinking about it makes my eyes welled up. I cannot imagine. That is why I titled his episode, which I struggled with, on what to title it, but it really came to me, that would be any parent’s worst nightmare. It would just be your worst nightmare. Doesn’t matter how it happened, but just stepping into your child’s bedroom, expecting them to be in their bed, asleep, or falling asleep. And just the unimaginable instead is what you find. It truly hurts my heart. So it was a difficult episode for me to listen back when I had to edit it. But it’s so important for me that I personally edit my episodes because well one, it’s usually a few months from editing. I’m usually a few months out in editing from when we initially record. And so I feel like I need to hear it again in order to freshen up on the story and avoid it to be able to articulate what it is that I felt when I first heard it. And to hear it a second time because I hear every Grievers story a second time when I go to edit. I walk away from editing, just amazed with the tenacity of the human spirit. We can endure so much more than I believe we give ourselves credit for. But in the moment, and the moment of that deep despair and sorrow. It’s really hard to see three? five? ten? years into the future, maybe even tomorrow. And this is why I’m loving in doing this podcast so much, that the people who come on this podcast brings hope to other Grievers. But here’s the thing, if you were listening to this podcast, that is you too. That is you because you can take so much more than I think you give yourself credit for. There comes a time where you can only take so much. And I think that’s when most people seek out help and support. And I’ll come back to the first part of this episode where I talked about support and help and how important it is. But for Eric, and for many gravers, it does take having this moment within ourselves, I meant for more than this. My life is more than this, more than this sorrow, more than this anger and more than this pain.
I want my life to be fruitful and thrive. I want to thrive and I want to make something out of this crap that I’ve been handed. I do think there are many of us that come to that place too. And unfortunately, there are many who stay in that place of sorrow and pain. And feel like this is just how it is. This is just what life is going to be. This is my new normal, they say now but it doesn’t have to be. You have so much power of choice. You don’t even probably realize it because grief does make us feel like we don’t have a choice. But we do. You do, you do have a choice. And that’s what Eric talks a lot about in his episode. There was a defining moment where you felt like he heard Zoi’s voice. He did. He said he heard Zoi’s voice. And she was in so many words, I’m just paraphrasing, but just like “snap out of it, Dad, snap out of it.”. And when we are so deep in it, it’s really hard for us to do that. Sometimes it’s a prayer that you just say out loud. And something happens within you, something turns within you, something flips.
We Thrive by Supporting Each Other
And that’s really when my life kind of flipped, when I finally surrendered. And I started to pray. To be honest, I hadn’t stepped in a church and many, many years. And it happens differently for everybody. It doesn’t happen for everybody, of course, because there are many Grievers out there who are still feeling hopeless. Again, that’s the premise of this whole podcast is to bring hope to people. I think it’s fitting that he titled his book, A Sherpa named Zoi. And it’s because of what he has learned about himself through her, and through that experience. And not to mention what he also learned about Zoi herself through stories that people shared with him after her passing. So we have an impact on people and we often just never realize it. And that was one of the things Eric and I talked about. And it’s so unfortunate that we don’t feel like we can share with other people while we’re alive and well, how much that person means to us, or how much impact they have in our lives, or they have had on our lives. And just feeling this gratitude and expressing it for what they bring to our lives and what they mean to us and being grateful for the connection itself, because we are beings that thrive on connection. And again, it comes back to the support and feeling supported. And there’s so many people who I know, that walk throughout their lives and don’t feel supported. And I can offer my support in a thousand different ways. But as a person, they don’t feel it within themselves. That’s a really unfortunate space to be in. And I think a lot of it comes down to trust. We also have to trust that we are supported. It has to come within us first before we can feel it from other people. And that’s what so many things, obviously, love, connection. If we’re feeling disconnected from ourselves, which often happens in grief, how can we then feel connected with others?
Continue Living for a Reason, Find Something to Live For
Feeling really begins when we start with self exploration, when it comes to grief. And I want to share a quote that Eric had shared during the podcast episode. And he said, “just because your loved one lost their life doesn’t mean your life is lost, too.” And I thought that was such a beautiful, poignant thing. And it’s true. And that’s easy for me to say that it’s true, because I haven’t lived that experience. So don’t take it from me take it from Eric, who’s lived it. He’s lived that experience. And many guests on this podcast have lived through terrible experiences. And if they would have settled for the fact that their life was lost too, their gifts that they could have given the world wouldn’t be out there. So let that settle in a minute. And just think about what your hopes and dreams were before grief, before the loss that you’ve endured. What were they before? They’re still there, there’s still life left to live. And I hope that Eric’s story gives you hope that it’s still possible to move forward. I hope Rachel story gives you hope that it’s still possible to create a life that you love, even if it’s the love you lost, even if it’s your child, Eric has become an amazing mentor and leader in helping others really find their own strength through their struggle.

P.S. I encourage you to check out Eric’s website, you can find it at erichodgdon.com. And I think just looking at his website, you’ll feel that he really made something out of this tragic, terrible loss that he’s experienced. And there are so many tips too that he walks through on our podcast episode. He talked about the pressure that teens feel today and shared tips around that, as well as being a parent of a teen. It really was a great, great conversation. So I hope you check it out. And I do hope, again, that you find hope in through their stories. Like Eric said, gratitude played a huge role in what he was experiencing when he was deep in his sorrow. And he had to constantly remind himself that gratitude of what is in my life right now. And so that is the question for you today, what is in your life right now that you can just feel so grateful for? of what is today in your life. And it was thanks to him that he shared about the Five Minute Journal, and I’ve now been using it for three months. I love it, I absolutely love it. It’s become part of my morning regimen. And I highly recommend it. And I do link to that in the show notes of Episode 62 of his episode, and I will link to it here as well. So and as well as to the episodes, both 61 and 62. You’ll also find in the show notes, and I, again, encourage you to listen to those.
P.S. I just want to share about an energy quiz that I’ve launched a little while back. And if you haven’t gone to my website, theunleashedheart.com, you can find a link for that either on the top banner, or it should pop up at some point. And it takes less than 90 seconds, it has 10 questions and at the end you’ll discover your energy type, and what to do with it, and how to nurture your energy type, what drains it, all of that stuff. I think it’s a very informative quiz, and the results are very informative. And I think it would be beneficial and helpful especially for Grievers who often feel their energy being drained. You’ll have a PDF that you can resource that you can use to figure out what nurtures and what drains your energy, what your energy type is. And I just am really proud of what I created with that. And so I would love for you to enjoy it as well. And it’s free. You’re not going to get any further emails from me. For my newsletter or anything like that, it’s you’re just getting the guide. And if you wish to join my newsletter, which is bi-weekly, every other Wednesday, which is filled with content not shared anywhere else. There is a link in the show notes to that, if you would like to join that. I would love to have you in my sacred space I call it it’s where I share things I don’t share elsewhere. So I’d be happy to have you. Until next time, take care and remember, when you unleash your heart you unleash your life. Much love
Grieving Voices Podcast, Podcast, Takeaways and Reflections |
Takeaways & Reflections | Evolving with Grief
SHOW NOTES SUMMARY:
Grief can either suck the life right out of you or, it can build you into the most compassionate heart for others who will look to you to lean on for support in their grief.
They say grief shared is grief diminished, but many people find sharing their grief difficult. Some turn to writing as a way to express and soothe the soul like I had and like my guest, Faith shared, in episode 59. Or, they turn to others in support groups or friendships, only to be let down or disappointed, as my guest Sherrie was and talked about in episode 58.
There is one question I encourage you to ask yourself; one that I challenge you to ask yourself. If you have listened to episode 59, then you may already know what it is. If you haven’t, then listen to this week’s episode because I mention it again.
Also, this episode is dedicated to the founder of The Grief Recovery Method®, John James, who passed away on 8/10/2021, only three short months following his cancer diagnosis. GRM changed my life and, I will forever be grateful to James for creating this beautiful gift out of his own grief. What a gift to humankind he was and will continue to be to the many hurting hearts who feel led to doing the deep, inner-work through GRM. His legacy will endure; I do not doubt that. Love + Light, John. 💛
RESOURCES:
Today is the takeaways and reflections episode where I’ll be talking about Episode 58 with Sherrie Dunlevy, and Episode 59 with Faith Wilcox. Sherrie had lost her infant son 29 days after his birth, and also her beloved pet. And so she talks about each of those losses and the impact they had on her as well as her experience of going through grief recovery and how that changed her life. And Faith talks about the loss of her 13 year old daughter. She was diagnosed at the age of 13 and died 365 days later in her mother’s arms of cancer. And the curious thing about that is she didn’t know she had one year to live when she was diagnosed. But I think it’s an important question to ask ourselves, what would I do? If I knew I had one year to live?
People are Often Consumed with Their Own Grief
Starting with Sherrie’s episode, she brought up a very important topic that I want to bring up in this takeaway’s episode and she talked about her this desire that she had when she lost her son. She thought that time that followed, she was really struggling with why she felt abandoned, why people weren’t there for her that she thought would have been or should be. And she said she came up with a few reasons why this happened. One was it hit too close to home, that if it happened to them, thinking about that makes them sad, it’s just too sad for them. Another reason why she came up with why people abandoned her was they never had to deal with a situation like that before. And they just didn’t know what to say. Also, people really want to say something, but don’t know what to say, or afraid to say the wrong thing. And they want to help and they want to do something, but they just don’t know what to do. And so it’s easier to do or say nothing than the wrong thing. And one thing I would like to add to that is that, I think also too, people are often consumed with their own grief, consumed with what’s going on in their own lives. Maybe not even grief at the time, but just the just all. Especially women or head of households, you wear all the hats. For me personally, I can just say I have days where it’s just feel so scatterbrained, it’s hard to focus, my attention is pulled in many different directions and, and so trying to hold the capacity for compassion and empathy and trying to hold that space for somebody else. In a really trying difficult emotionally challenging time. I’m struggling in my own mind, I’m probably not the best suited person to sit with you during those days. But also I think it comes down to communication. If I am feeling that way if I am because here’s the thing, too, in that situation that would cause me grief is like a really want to be there for you, but I just can’t right now “this is what’s going on, this is how I’m feeling, this is what I’m experiencing”. You know, and I might feel like it’s nothing in comparison to what you’re feeling. You know, the person that just you know is going through a loss but all the same. How do you do to be there for somebody who you really want to be there for? and yet, just you don’t have the capacity to do it. And
How Can I Help?
I think it’s where we tend to complicate things, we overcomplicate things, and sometimes we think that we just need to do these big grandiose gestures, or these big expressions of our love and care. But sometimes it can just be as simple, “I don’t have the brain capacity today. I hope I do tomorrow. But in case I don’t, know that I’m sending you love, know that I’m sending you a hug“. Maybe you put that in a card, and you mail a card to that person? Or maybe you send them a fruit basket? It can be something small, a small gesture. Maybe if they have a pet, maybe it’s like, “Okay, I know, I need to disconnect a bit. I need to, like reboot my brain.” But maybe you don’t have a pet. Right? And so maybe that person that had a loss, has a pet. “Hey, can I walk your dog, it’d be good for me, it’d be good for your dog, and it would help you out.” Right? So I think sometimes we have to think outside the box, and maybe a little bit creatively about how we can be of service to other people when we really, really want to, but no, we’re just not there yet in full capacity, but still want to do a little something. And if you are feeling in full capacity, you know, mentally, emotionally, physically, all of those things where you can be there for other people, then it’s like, by all means balls to the wall, I mean, put all your effort and energy into that, because you wouldn’t be surprised how life-giving that can be for somebody else, and for you as the giver of your time and energy. And it doesn’t even have to be a financial expense to do anything special. I just encourage you to think about maybe what you would like, I think that’s also where we tend to overcomplicate things. It’s like, “what would I appreciate today? what would I really like? what would lift my spirits? Or what would be helpful to me today?” .And then do that thing for that person, or somebody else who is going through a challenging time, who don’t have to be grieving something. Just maybe it’s a challenging time, right? And, you know, all of this desire for Sherrie to find why people abandoned her is kind of what led to her writing her book, “How can I help?” your go-to guide for helping loved ones through life’s difficulties, and it is on Amazon. And I did link to her book in the show notes of her episode. So I do highly encourage you to check it out, and to listen to that episode in its entirety.
There’s a Clarity That Can Come From Grief
And I’m going to go through a few more things that Sherrie and I talked about. Next, I’d like to share just how contrast really shows us what we do want. And therefore, it’s a knowing of what we don’t want. And we had talked about during our episode about this post traumatic growth. And I had heard this term before, but I think it’s true in that when you go through something traumatic, or you have a really difficult, challenging experience, loss of a loved one or just natural disaster. Things like that we realize, what we don’t want, like, “this isn’t working for me, that’s not working”. How do you know we start to think about what we do want. And so there’s a clarity that can come from grief. It is a clarifier that brings us to our awareness, all that probably isn’t working in our lives, things that we would desire to change. Even if we don’t know how or what that looks like. You can feel it in your body. Your body responds to what isn’t working, if we just kind of tune in. We just take a moment to tune in to what our bodies are telling us because our bodies are always speaking to us, especially in grief. Especially with that post traumatic growth journey that all gravers go through
There is No Timeline to Grieve
And because there’s no timeline to grieve, I think that experience or how long that experience takes is very different for everybody. I think it also relies on how open we are to learning something new, to see in our lives and other people from a different perspective. I think one of the beautiful things about grief is it brings us more compassion, we become more compassionate people, I believe. And so it’s really leaning into that compassion for ourselves first. Because it’s really hard to give others compassion, when we don’t have it for ourselves. It comes back to that old thing. You can’t pour from an empty cup, right? I think that is one of the lessons that Sherrie had received in her grief, and what made her seek out grief recovery, help in the grief recovery method, and I just loved how she shared her experience in that, she said it has the most amazing tool, and it was the best gift that she had ever given herself. And I would wholeheartedly agree for myself personally. Grief recovery has been the gift that keeps on giving. I certified in March of 2019, in Austin, Texas, and I was just telling someone about it the other day. And I was telling this friend, there are pivotal moments in our lives. Times where we can think back and, and think well, that conversation or that bumping into that person or, being in the right place at the right time, or that choice I made or that decision. We can pick out these moments in our lives that are very pivotal to us, that really changed the trajectory of the rest of our lives, where we understand and are aware that had I not done that thing, my life would not be where it is today. A happenstance conversation, and I’ve had so many of those instances, just the perfect conversation at the perfect time, or hearing something exactly when I needed to hear it, or stumbling upon a resource or something that would inevitably change my life. And that was grief recovery, to be honest, which opened the doors and led to many other things such as Reiki and end of life doula and the clients that I’ve been working with in Reiki and what I’m learning starting to learn now to further my Reiki and deeper my practice there with crystals and sound healing.
We evolve with our grief, we are always evolving with our grief. It’s just truly sad to me, I feel sadness when I see people, especially online, often in the grief community, that feel like their life is destined to be how it is today. I was that person who thought my life was going to be how it was, and I was going to feel how I was going to feel for the rest of my life. You can’t see the label from inside the jar. Right? I mean, that’s another quote. But it’s so true, it’s really hard to see a path forward when you’ve tried something and it didn’t work or you’ve tried that thing and it didn’t work or or you constantly feel like you’re judged, criticized or analyzed. And that’s what grief recovery is absolutely different. The approach is different in its individual, because you’re an individual like it is individualized to you, because your grief is unique to you. I could go on and on on a tangent on that but grief shows us what needs to be healed, grief is a clarifier it and it will force you to evolve.
Grief is Like a Sinkhole
I think eventually, unless you are unwilling to surrender to what it has in store for you, the gift that it could give you and I can just see the eyes rolling because when you are deep in grief, you do not want to hear how there’s gifts in grief, you don’t want to hear that there is purpose to your suffering, like you just don’t want to hear that stuff. I didn’t want to hear that stuff. But eventually, there comes a point where you just get sick and tired of being sick and tired. And like my friend Sherrie said in her episode, and honestly, we had recorded that many months back. And I had never forgotten this phrase that she said, but when you lay you decay, and if that’s not true of so many other aspects of our lives, whether let’s say you have a cancer diagnosis. Of course, there are days where absolutely all you can do is lay. But if you just laid, right, if you just laid and you’d never got up and you never had a reason to get up, or you never tried to get up, you never even tried or, granted, there’s all kinds of scenarios and situations. This is a very blanket statement, but that statement lay or decay. It’s like our bodies are meant to move. And, I don’t I’m not even sure who said it. But a body in motion, stays in motion like the laws of physics or something. I’m not sure. I think you get the idea, though, of where I’m getting to, but we must stay in motion. And that’s true with grief too, or you do get stuck. It’s like you’re in a sinkhole. Grief is like a sinkhole, it’ll swallow you whole. If you let it ,grief will force you out of your comfort zone and bring change whether you like it or not. The more you fight these changes that grief will bring in, the more resistant you are to these changes, the more your suffering will persist. And that was no different in my grave.
Grief Recovery is About Addressing the Pain
I had many days where I cried more tears than I thought I could ever possibly cry. When you’re crying from sadness, it’s much different than when you’re crying from pain. Just like Sherrie had mentioned in her episode. She said you will someday at some point cry so much that you’ve cried enough from the pain. And I agree, I think there comes a point where you just run out of tears and crying from the sadness is much different. And I think it’s once you actually process that pain, and you work through that pain, what left is the sadness. That doesn’t go away. You know, grief recovery isn’t about getting over or putting behind you the person that passed away or the relationship that is less than loving, grief recovery is about addressing the pain. Any sadness you feel isn’t just going to go away, there’s still going to be that empty seat at the table. And just this week, as I’m recording this, on Tuesday, the founder of grief recovery passed away from cancer after three months of senses diagnosis. And for me personally, it’s a very sad loss. It’s a sad loss for all of us grief recovery specialists, I believe, because he founded something that is incredible, that has changed and impacted all of our lives. And I am in awe of the legacy that he has created and his left. And I feel deeply honored to be able to carry on his work and his creation of the grief recovery method in the work that I do with my clients. Again, it’s the gift that keeps on giving. And it was an incredible gift that he has given me. And so I dedicate this episode to John James, who created the grief recovery method out of his own pain in his own sorrow. And if you are interested in learning more about his story, I encourage you to pick up the book the grief recovery handbook. It is linked in the show notes. And if you don’t see the show notes, or don’t go to the show notes, you can also find the grief recovery handbook on Amazon. And I highly recommend it.
Voice Out Your Feelings
Moving on to Episode 59 with Faith Wilcox, she shared her story of her 13 year old daughter being diagnosed with cancer and actually passing away in her arms 365 days following her diagnosis. And this was over 20 years ago, she just recently published a book, which is also linked in the show notes for Episode 59. It’s called “Hope as a Bright Star”. And it was developed from her writings that she wrote at the bedside of her daughter, and what she had learned throughout that whole process of sitting with her daughter in that year, in and out of the hospital, chemo radiation treatments and also navigating being a parent to her daughter’s sister as well. And the dynamics of how you function as a family when you have such a sick child and you’re in and out of the hospital. And I can’t imagine what that’s like, I cannot even imagine. I resonated with what Faith had shared about how writing was such a pivotal healing tool for her. Because I too, have been writing since I was in my teens and I journaled, I wrote poetry. I found much comfort in expressing myself in that way. And I think for a lot of introverts or empathic people, we find that it is much easier for us to process our feelings. We often do internally, but it’s a great exercise in expression, to give your feelings a voice in some way. And so for me, it was always writing. And that was the case also for Faith. And she gives some tips for other parents at the bedside of a loved one, going through the same situation that she experienced.
What would you want to do if you only have one year left to live?
And I just thought when I was listening back and editing, I just thought to myself, like, had she known she had one year to live? Would she have made different choices? What would she have wanted to experience? I mean, what a good question to ask yourself to get some fire under your butt. You know, if you had one year to live, you were told today, you have one year to live? What would you want that year to look like? I don’t know about you. But I feel very overwhelmed by that question, to be honest. Because I feel like there’s so much more that I have to offer people and want to do in my life. I think grief in that question is a clarifier. I have a pretty long bucket list. I don’t know about you, but I do have a bucket list. And I seem to be adding to it year after year. But it is a daunting feeling isn’t it? To think if you were given only one year. Probably many of the things that you might have on your bucket list aren’t things that you would probably prioritize.
Maybe it’s putting your feet in the ocean or feeling the beach, sand in between your toes for the first time or swimming with dolphins. I’m reminded of a story of Jeffie which is shared by Elisabeth Kubler Ross and her book “The Wheel of Life” , a memoir for living and dying. But she shares the story of this little boy named Jeffie who is dying of cancer and was sick much of his young childhood and the last thing he wanted to do was more cancer treatment, more chemo and radiation and he just wanted to go home. And so his family took him home, and when they got home, the one thing he wanted to do was to ride his bike. And I’ll actually share this, you’ll hear the story of Jeffie brought up in a future episode, I had the privilege of having a conversation with Ken Ross, who is Elisabeth Kubler Ross’s son. And I brought up that story because I was moved to tears when I read it. But Elizabeth’s life is just one of many stories. She was actively doing her work, but it’s like the amount of work, the amount of accomplishments that she had in that time, is just, I’m in awe. So anyway, I was made to think of that story of Jeffie. When I thought of that question, what would you want to do if you had one year left to live and turns out with Jeffie, he knew intuitively, that he had but a few hours at most. In fact, he wanted to go home so he could die at home. That story was just though a beautiful example of just this little child, young child taking ownership of the kind of death he wanted to have. And I just think, imagine if we had that kind of authority, and took that authority to have that kind of conviction when we’re alive, right? not when we’re on our way out. And so again, it just comes back to that whole question. And my biggest takeaway from Faith’s episode is, how would I want my next year to be if I knew I had one year to live? And so that’s, that’s the question I want to leave you with today to truly ponder on, and think about, and what do you want your next year to be? Like? If you are grieving right now, what do you want your next year to be like.

P.S. In case you don’t know if it is something that you want to move forward working through your grief, I offer grief recovery, both online and in person, and both one on one and in a group. So if that’s something that is of interest to you, I encourage you to please reach out to me at Victoria at https://theunleashedheart.com or you can head to the show notes. And there will be some links to my social media there and you can send me a message. I highly encourage you to do that. If you have any questions or reservations about moving forward in your grief, because you got one life to live? And how about we make the most of it. Right? Thank you so much for listening to today’s episode, which as I mentioned, I’m dedicating to John James, the founder of the grief recovery method, and the grief recovery Institute. A program that has very much so changed my life and has been the gift to me that has kept on giving. If you would like to learn more about this amazing program, I encourage you again to reach out to me check out the show notes. And remember, when you unleash your heart, you unleash your life. Much love. If you liked this episode, please share it because Sharing is caring. And until next time, give and share compassion by being hurt with yours. And if you’re hurting know that what you’re feeling is normal and natural. Much love my friend.
Child Loss, Grief Stories, Grieving Voices Guest, Grieving Voices Podcast, Podcast, Suicide |
Eric Hodgdon | Opening the Door To a Parent’s Worst Nightmare
SHOW SUMMARY:
It was a great day; nothing seemed off with his daughter Zoi. They enjoyed a meal together; she headed to her room while he went downstairs to do some computer work.
Sometime later, before heading to bed, he went to say goodnight to his beloved daughter, Zoi. The music she loved blaring from her stereo; he opened the door only to see an empty bed.
What he discovered next changed his life forever – changed him forever.
No parent should ever have to experience the death of a child. And, it feels like one of the cruelest experiences a heart could ever possibly endure.
Listen to Eric’s story of how he went from struggle to strength. He describes a defining moment that set him on a path of empowering and leading himself through his devastating and life-shattering loss.
RESOURCES:
CONNECT:
Victoria Volk 00:00
Thank you for tuning in to grieving voices. Today my guest is Eric hodgdon. He is a best selling Amazon author TEDx speaker and coach after losing his 15 year old daughter Zoe to suicide in early 2014. He fought for his family and Zoe’s friends to find their pathway to better days, he found a way to get back up and walk his grief journey. Now he is sharing the lessons he learned so that no one else has to walk alone on their journey. Eric has trained 1000s of people who want to go from struggle to strength in the face of their worst setbacks. Thank you so much for being here.
Eric Hodgdon 00:38
Thank you so much, Victoria. I’m deeply honored to be here with you.
Victoria Volk 00:42
And this is a very important topic, we’re talking about suicide, and teens. And before we started to record I shared that I had looked up some stats for my own state of North Dakota, I would like to open with that. And then kind of, if you want to piggyback off of that in what it’s like where you live. So in the state of North Dakota, one person every 60 hours dies by suicide. Wow. In my State, it is the first leading cause of death for ages 10 to 24. In my State, and the North Dakota teen suicide rate is three times higher than the national average. Wow, North Dakota has the second highest rate and suicide from 2000 to 2018. And we’re just behind New Hampshire, New Hampshire is number one. And where do you live? Eric?
Eric Hodgdon 01:43
I live now in Tampa, Florida. But I grew up in New England. I grew up in Maine, very close to New Hampshire, of course. And while those numbers are staggering and shocking, in some cases, it doesn’t surprise me with how the struggle is being dealt with in folks lives, especially teens.
Victoria Volk 02:11
And in rural more rural areas, or major areas that aren’t as progressive or cities that aren’t as progressive and maybe states that aren’t as progressive when it comes to mental health.
Eric Hodgdon 02:23
Correct. And where are the resources for them? Where are the resources to help them figure out that there are options out there that don’t include taking their life as that only option to remove the pain that they’re in, or the struggle that they’re dealing with that they don’t believe is the there’s a way out of and so finding and getting access to the resources that help them is missing? I think a lot of cases and I don’t think that that’s why you and I are here, I think you and I are here to provide a different optic on on those resources and where to find them and how to get them and how to how to show that there are there are setbacks in life that we will always face. But there are tools to help you to get from that struggle to the strength that you need to make it to the next and sometimes the next hour.
Victoria Volk 03:22
So share, if you wouldn’t mind share the start of your grieving story.
Eric Hodgdon 03:29
Thank you. So seven years ago, I was fighting for custody of my 15 year old daughter Zoey. It was a reluctant decision that I made to follow that process but it was to protect and to ultimately care for Zoe’s well being at a very formative ages and and so Zoey was trying to handle things as best possible. She’d been hospitalized four times in adolescent units. And each time I did see a progression in her strength. I saw her capacity to help others and to be available to them when they were struggling and ultimately, in the beginning of 2014. Zoey went quiet. And one Saturday I picked her up and I brought her back to my house she was able to come home and stays with me on weekends. Which were awesome honestly, because we would go to a mug and muffin restaurant in our town for breakfast maybe or we would go to the beach and we would collect rocks in the middle of winter and just freeze our hands or sometimes though it would be up in her room, playing music listening to her music or playing the ukulele and but I brought her back to my house for this one particular weekend and she was upstairs Burning some Jasmine incense and applying this really cool henna tattoo on her hand. And I went up and asked her if she wanted to hang out with some friends. And she told me that she didn’t have any and I, I pushed back a little bit on that with her and she, I said, Well, do you want to make something to eat instead and just hang out? She said, Yeah, let’s do that. So afterwards we’re cleaning up and she’s told me that she was tired and she wanted to go to bed and say, I love you pumpkins. And she said, I love you too dead. I went back to my computer to do some work. And a little while later, I went upstairs to say goodnight to Zoe and eyes opened her bedroom door. I could hear her stereo playing Jonathan Ashanti’s music very low. She had a string of Christmas lights that were lit around the perimeter of her room. But she wasn’t in her bed. out of the corner of my eye, and in a dim light, I could see that. So he was standing in her closet and I was so sure she was going to jump out and scare me. I said Zoey, what are you doing? But she didn’t answer me. Because she wasn’t standing in her closet. I called 911. And what I thought was going to be a nother hospitalization. After we got home from the ER that night, turned into awake Five days later, we’re over 900 people came to honor my family and Zoey. And I think when I experienced that loss, I wasn’t sure that I was going to survive it. I remember driving home from the hospital that night with my sister in utter disbelief, and they had my hand gripped on the seat belt. And I told her I don’t think I’m gonna, I don’t know anything, I’m gonna survive this. And she looked at me and just said, I’ve got your back. I don’t know what to do. But you’re, you know what, we’ll find a way to make it happen. And so obviously getting through that next week until we laid Zoey to rest was challenging. Just a ton of emotions. But I think something incredible happened in that week is that all of her friends started to come over to the house and they were staying at the house with me. And Zoey was there in energy, it was really a strange feeling. Her physical body wasn’t with us, but her energy was there and and that really helped. I think a lot of us understand what survival was going to mean for us, especially May. And so in the weeks and months after we lost Zoey, I found myself sitting in my couch in my living room, everybody had gone back to their lives. Because typically a couple weeks after you lose somebody, you feel like you’re kind of at a crossroads. What do I do with this because everybody has gone back to their lives and you’re left to walk this new path that you didn’t choose to be on. It feels very lonely, it feels like you have no direction, or no energy to even get in a bed some days or you’re going through boxes of tissues. And you don’t want to be but you What’s the other what’s the other choice. And so I feel like now, having the resources for kids having the resources for adults is going to be so important because I think there are resources out there right now are focused on survival being the end game. It’s a handoff point. And I believe that there are other ways to encourage others to empower folks to lead themselves first, so that they can get back up. And and not only survive, but as you would say Victoria to thrive after their loss. And I think it’s so very important. It’s much needed.
Victoria Volk 09:10
My eyes welled up, I’m my heart. I’m a parent, I have a my son’s gonna be 16, my 14 year old and a 12 year old and I cannot imagine the it’s like your heart is ripped out I imagine.
Eric Hodgdon 09:31
It is. It is and if I can share something really personal with you is that I remember being at the wake and I was not upset during the week because I was ultimately convinced that Zoey and I were going to be able to communicate like you and I were going to communicate. I was just waiting for that message that that voice and it didn’t come and I figured that I would use what everybody else told Me would heal all my wounds Time, time would heal my wounds. That didn’t work. You know, how’s that working for me? I’d be asking myself, how’s that going right now. And it probably it wasn’t until about 18 months later that I was in such a state of self sabotage for beating myself up is probably a better way of putting it. Where I was just, I was stuck in a pattern. And I did hear Zoe’s voice one day, and it scared me in a very unique way, I was in a pattern where I would get off the commuter rail train in my town, it’s a two mile drive to my house. And inevitably, by mile one, I would start to cry. And that’s when I would start the little beat up process the self beat up process and I’m so sorry Zoey, I should have been a better dad for you, you should be here. And it was a pattern. And when I pulled into my driveway, I pulled myself together and went in the house for the night. And then the next day of do the same thing and over and over again, but it built up to one day where I left work and the second I left work that’s when the the self sabotage started. The the the head chatter, if you will, and I just let it go when it cascade and by the time I got off the train and got in my car, second, I shut the door, I was sobbing, I was crying so hard, that my windows fogged up. And now I was screaming at myself. Not giving myself any permission to figure out what was going on. But rather expending energy, valuable energy, healing energy on beating myself up and I, I screamed in my car. I’m so sorry, Zoey. And it was as if she was sitting in the seat next to me, Victoria. And I heard her say, Dad cut it out. Geez, I’m okay. I froze. And I didn’t make another sound until I pulled into my driveway. And I sat there for what felt like probably an hour and probably 10 minutes, but so was right. What am I doing? She’s okay. I did everything I possibly could for her while she was here. I did the best that I could with what I had. And that wasn’t serving anybody, her friends, my family, even myself in terms of healing, if I was yelling at myself, and putting myself down and beating myself up over something that I didn’t have any control over. But what I did have control over Victoria. And I think I’m going on here. What I did have control over was how I approached getting back up and surviving this because the alternative was just more of that self sabotage?
Victoria Volk 13:07
Can you speak to that? What actually what was the so that sounds like it was a defining moment in your healing?
Eric Hodgdon 13:14
Absolutely. Yeah, you know, as interesting. As the month started to tick by, I don’t know about you. But I remember every Saturday night at a certain time, I would watch the clock. And I would watch the clock at the time that they called 911 would watch the clock, it was like I was going through it every week at the same time. But once I had this defining moment in the car, I started to look at things a little differently. That so he would be really upset with me if I was wasting all of the good memories from her life by not living mine. And I could still honor her and carry on at the same time, because it’s okay to do that. And I released anything internally that was telling me otherwise. And I’ve never been more grateful for so we’re talking to me that day. With that message now I’m sure it was in my head. But nonetheless, I feel like it was a very powerful message that I needed to hear at that moment. And so I started to look at Okay, now I have to accept that I did everything that I could. I have to forgive not only Zoey for taking her life, but myself. Especially then I think it was the moment that I started to really focus on the gratitude of what is in my life now that I found some opening if you will, on my path, some light started to start. The path started to be illuminated with some hope that way. A minute, there is something beyond this, this yuckiness of survival. That is just not going to get me anywhere. But there’s a light that I can actually start to work walk towards. And I know eventually I’ll get to it. So does that. Does that help?
Victoria Volk 15:18
No, thank you for sharing. And I would ask you, well, first just tell us about Zoe, who she was,
Eric Hodgdon 15:25
you guys, your audience can see this, I just got a big smile on my face when you said that this, Zoey isn’t Oh, I feel like she’s an old soul. She was always so eclectic in her thinking in her activities. In her humor, even in with her music that she wrote, and she would sing for us on her ukulele. It was just, she just had this way about her that was all about connection. And after in the days and weeks after, so he died, I started to receive many handwritten letters from her hospital friends, and each one of them told me that it was Zoey that helped them when they first went to the hospital, because she just knew that it was their first time. And she would go up to them and she would hug them. And she’d be like, Hey, guys, I’m Zoey. Look, there’s nothing to be afraid of. I know it’s scary. But there’s nothing to be afraid of, it’s going to be okay. And when the staff isn’t looking, we can draw on the walls. And I did wasn’t too happy about the drawing on the walls. And I didn’t know all this was going on Victoria. And so Zoe’s energy, her, her desire to help other people, even when she was struggling, I couldn’t be more proud of her. I couldn’t be more proud of the person that she was and the energy that she brought, and that’s still to this day with her friends talk to me about how much she helped them to get through that time in their life, because no one else was coming to help them. The staff was doing their jobs, the doctors were doing their jobs. But these kids were there to support each other shoulder to shoulder because they knew that this is how they were going to get through those days. Sometimes those minutes of being in these adolescent units. And I’ve never seen a more creative set of kids a more create immense intelligence with the kids that were in these units. And she would always introduce me to her friends or the staff or the doctors, she was, this is my dad, hey, Zoe’s Dad, you know, and, and so I was so grateful for that. And I am just so ultimately proud of the person that she, I still say is, because I feel like her energy is always going to be with me, I, her body might not be here, but Zoey will always live on in my heart. And I’m just so grateful for that. Because I don’t know about you, I was always afraid that eventually I was going to forget about her, or that the love would stop. And it does. And in fact, I love Zoey more than I did the day that she was born. And I’m so so grateful for that. Is that been your experience as well?
Victoria Volk 18:13
Yeah. And actually, I just want to highlight something that you just said and that I think if we’re it’s when we’re able to actually think of the person the loved one and not get pulled into and sucked into the the, the traumatic memory or the horrible memory, the sadness, that’s when we really honor our loved ones, and remembering them as they would want us to remember them. Absolutely. And how we would want to be remembered if it was us, someone was grieving. And I think people fear like you just alluded to I think people fear that with healing comes this. I’m gonna forget or I’m going to, it’s by not feeling sad and tormented by this loss. It’s somehow dishonouring my loved one and the total opposite is true. And, and the seat at the table is never is always going to be empty that sadness will always be there but it’s not going to it there it is possible like you have said it is possible to think of that person with joy and love and carry on in your life. In their in, in their memory that is honoring. Absolutely. How have you been doing that?
Eric Hodgdon 19:32
I found a tremendous energy and direction about two years after Zoey died. I knew I wanted to talk about Zoe and I didn’t want it to be in a place of, you know, of of. I’m just always going to be sad about this. I wanted it to be a place of sharing who Zoey is and was as a person and I was invited to attend a leadership event in Dallas, Texas. And I was introduced to one of my mentors, his name is Bo. He said, He’s a former football player of all things. And Bo invited us to come out to California and write our story. And I’ll never forget that experience. Because the day one of this storytelling event, Beau asked us specifically and explicitly to write about a pivotal moment and mind our lives. And he said, Did you typically this pivotal moment is anywhere from eight years old to 14, and so I got stuck there. And something really happened between eight and 14. Yeah, a lot of stuff happened, I was a kid and kids are always awkward and all that. And so I wrote about a very benign situation where I told on a girl that I had a crush on because she smashed my devil dog at lunch, and she got a detention. I’m like, that’s not my story. But I was so upset with myself because I was trying to find a way to make that story work. And the challenge was, is that that was the story, I was telling myself that I needed to kind of stop that I that I didn’t know how to talk about Zoe, so I’m not going to. And that was really showing up that weekend in a very powerful way. And the knock on the head came from one of the story coaches at this event. And I went up to him afterwards. I said, Man, I don’t know I’m just not feeling it. He’s like, Well, what do you got? I said, Well, I, a girl I had a crush on I crushed her, she crushed my devil dog at lunch. And I told her, he’s like, what else he got. I said, Well, my daughter took her life two years ago. And he’s like, dude, that’s your story. And I just gave me permission to talk about it. And I felt so open to the point where I went back to my hotel room. And for the next four hours, I wrote, I just bled on the page for the next four hours, which I still have the notebook about the moment that I walked into the ER that night, and my experience of living for the last for the previous two years. And I felt this tremendous weight come off of my shoulders. One because I wanted to share Zoey in a way of who she was, and how she impacted my life, how she impacted all of our for her friend’s life, how she impacted my family in such a very positive way. And the biggest lesson that she ever taught me was that life is going to knock you down you’ve got to get back up again. As I saw her do that time and time and time again and I understand that ultimately the weight of her what she was feeling was too much. But in the the odd thing is is that in Greek, the name Zooey means life and so knowing that when we get knocked down in life we have to fight to get back up every time I that’s the story that I wanted to tell. And so honoring Zoe became about telling not only my experience of losing Zoe but working through that battle within yourself to honor your lost loved one and yourself at the same time because ultimately that’s okay. And and you can find some energy and some direction you can find some you can leave that nasty survival mode behind you because is it really serving you right now? Yes, at the beginning, it’s necessary and I think Victoria You and I were talking about at the beginning how important that is to survive first, but survival should be temporary. You can let yourself remain in survival mode like most people do, or you can let it sink in that just because you lost your loved one that your life is not lost, too.
Victoria Volk 24:05
That’s a quotable right there. Let’s hit the rewind a little bit. Okay, who was the Eric before Zoey?
Eric Hodgdon 24:14
Before Zoey was born or before? So we took him for it
Victoria Volk 24:18
before this experience? Like, what was what what do you feel like the trajectory of your life was Did you have a certain passion or something that really lit you up? And was the reason you got up every day? Like,
Eric Hodgdon 24:32
yeah, I’m a career IT guy. I was in it from a very early age. It was all self taught. And it spoke to me when I was 22 years old. And it was a career that I could just continually move up in. But what I was finding was that I was I was continuous. I was in a job of service. It was helping people to get their computers to get back up to a certain point where they could use them and so So that fulfilled me. And I liked that line of work. It gave me a sense of accomplishment if there was a massive, complex problem that needed to be solved, and finding a solution to it, and storing that in my memory banks and how I could use that moving forward and other situations that came up. And I think everybody experiences that too. It’s those big lessons in life that you actually store and you can pull from and they just, that’s where your strength comes on, you know, and so 25 years and it and it was, you know, Zoey and I, I was divorced in about 2005, so about 15 years into my career. And I would have my girls every weekend and every week, throughout the week, and it was a fantastic opportunity for us to bond and connect. And we used to do a lot of things, we would go to concerts, we would go to the beach, we did the beach a lot up in New England, that’s just a thing to do. Up there. And we would take day trips, sometimes we would come down to New Orleans and visit some friends who lived down there. And I just valued that time with them. And there were some weekends that that Zoey and her sister those two were like peas in a pod. And they would just spend all weekend upstairs in their room with the pile of arts and crafts, supplies, just making stuff and sometimes those don’t, that’s really good, you know, and, of course, every parent says that about their kids artwork, I have saved every scrap of paper that they drew on. I have saved every every a trinket that they made for me or craft that they wanted to give to me. In fact, behind me this painting, Zoey painted this for me for Christmas, the month one month before she died. And and I absolutely loved this because it she’s at peace in this image. And I know it’s her, even though it’s supposed to be a Buddha and and so I’m so grateful that I have this gift. And I think of everything that they did everything that they drew every experience that we have as a gift. And so when I started to focus more on the gifts that I was getting along this path of being a single dad with them, I was I was starting to recognize the value of what it means to be a parent. And I started to think that’s where a shift started to take place in me I wanted to do more how to do something that was bigger than myself. And so I had actually a few years before so he died, I started to look at other ways of earning a revenue that was not earning income that wasn’t based on a nine to five job. And so I tried my hand at some network marketing I tried to get I got into some personal development because I just found such great depth in that and, and what made me tick, how I could help others. And when Zoey died, I felt like I had a good set of tools to work with. Even though I had to access them through all the fog. It took a while to really get a good handle on what I had at my fingertips at this point. And I and and yet at the same time, I still had some defaults, I still had some of that baggage that I was pulling into this situation that was not helping me. And I think that just there’s been so many gifts since so he has died that have just shown up on the path only because I’ve continued to walk and let those things come to me and be open to them coming into my life. And have you had a similar experience retort to that.
Victoria Volk 29:04
Absolutely.
Eric Hodgdon 29:06
Can you give me an example of that?
Victoria Volk 29:08
Well, if it wasn’t for me actually working through my own grief, I wouldn’t be a Reiki Master I would not be a grief recovery method specialist I would not have this podcast I would not everything that I’ve done since clearing out my baggage has been as a result of taking ownership of my baggage and doing something with it. Like not working through it and getting rid of it.
Eric Hodgdon 29:41
Yeah. And that’s not something that happens overnight right? I mean that takes time. And and where did you start to feel like you are gaining some traction with that process.
Victoria Volk 29:52
Well and as we kind of talked earlier, my personal development started in 2014 And my youngest was starting kindergarten. And I was closing, I was really contemplating at that time closing a business I’d had, that was really my creative outlet, I was a photographer, and I built that business from scratch, and not having an online social network not having people to tell me what to do, you know, there wasn’t, I wasn’t even in a Facebook group, you know, till well into my business. And so it was really grassroots, have a have an experience in entrepreneurship. And that taught me a lot. And all of that all of that prepared me to really dig as far as I was, I had never gone before in my grave, right? Yeah. And so my question for you is, given that you had done some personal development work, and you know, what we learn, and we tend to give off what we? Yes, I think is, okay, so like, if you’ve done, I look at myself, before person, like digging into personal development, wanting to learn about myself, I think of myself as the pre personal development parent. Yes. And then I look at myself after and I’m like, Whoa, there is a stark contrast. Yes. Because, again, like you said, we resort to the defaults, what we know and what we’ve been taught in childhood, and for what the work that I do, particularly around grief. And because I didn’t deal particularly well, at least I thought I was that’s the thing, we think we are ready for dealing with it, we think we’re I’m fine, you know, sure, yeah, I got this. But yet all of these behaviors are showing up on a on a daily basis, or we are just angry people were just angry, or our kids show bring out in us what is not resolved within us. Right? And that’s what was happening a lot. Hmm. You know, when I look in hindsight, and so that’s what I’m kind of curious about for you, and as a parent that you were before, versus how these experiences have shaped you as a parent now.
Eric Hodgdon 32:21
Wow, that’s such a powerful question. And a great one. One, because I’m going I’m thinking back to how I dealt with difficult situations and challenges as a husband, as a father, early on. There’s I think there’s two ways the personal development has taught me that I could look at it one of two ways I could look at it that that’s just the way it’s going to be, take it or leave it? or How can I get better at talking to my children? How can I get better at talking to my spouse? How can I get better talking to my family, friends, and connecting deeply with others, who we may not know what they’re struggling with? But how can we make those deeper connections with those around us that we love, because that’s typically what suffers first, when we’re struggling. And I don’t know if we can afford to do that, in this day and age with those statistics that you were sharing with me at the beginning of the podcast, Victoria. We, I think as a human race, not as an American, not as any other country, or a citizen of a country in this world. But as a human, I believe we have to get better at connecting with others on a deep level, showing them that it’s not just about sending a text to say, hey, Call me if you need anything, it’s showing up at their door. Or it’s sending them a text and asking them how are you doing? It’s doing some outreach to the people that are closest to you. Teenagers are a good, a good point. I just heard this the other day for one of my mentors, his name is Scott man. And Scott was saying he was you know, if you ask your child or a teenager, how their day was they’re gonna blow you off. They’re not going to talk to you much. But if you ask this one question, what annoys you today? Oh, man, the floodgates open up and just ask that question of your team who annoys you today or what annoys you today? And they will give you the goods? They’re going to answer you in a narrative format because we are story animals. We’ve been communicating with story long before we could actually speak language. And so that is one of the biggest ways that you can make deep connections these days is story. And going back to when I went to that story workshop out in California for the first time, I saw the power of that and how that connects people who might be struggling with their own grief that you and I would not be talking if I didn’t share my story. And likewise, you wouldn’t be talking with me if you didn’t share your story. And so it is healing. Our brains are wired for story. And it has been scientifically proven. That story helps our brains heal. And so I use that opportunity to, to heal at any time I can. Somebody just kept my door and it’s somebody that’s staying here with me for two days. Hold on one second. Sure. Thank you. Sorry about that. That’s okay. I didn’t realize I locked my front door. So I’ve got some family friends here. It’s interesting. One of my guests Her name is Cory. And Cory. I wrote a book a couple of years ago called a Sherpa named Zoe. And corys. Dad is at the epicenter of this book. Before I got to my story of Zoey losing Zoey, I wrote about my experience of of being a friend to Corey, his brother, Cory, his brother and I have been friends for 42 years. And we were 19 at the time, and she lost her dad, my friend lost his dad. And it was such a powerful experience to, to know what to do with that. And even speaking to what you and I were talking about in terms of how you connect with others, especially after a loss. I was just talking with Cory before this podcast, and she just said, she said, you know, you did something different than other people didn’t do and I don’t know, you know, I just had the, she said, You showed up and you were there with us. Even if you were just hanging out with us, you were there. And she said, that meant more to my family and me then then you could imagine. And so I think that’s where we can continue to make deep connections is to show up for those that we love and care for, and be there for them. I don’t know about you. I did not want to hand my grief off to somebody else. What I wanted to do was to have somebody just be an empathetic witness and hear and actually listen to I don’t want them to solve the problem because they can’t walk that path for me. But no, I don’t think people are going to dump their grief on you. I think they just want to be heard.
Victoria Volk 37:24
Absolutely in grief recovery. Call it a heart with yours. Yes, perfect. Oh, that’s perfect. But some people aren’t that person. Right? That person. Yeah. And I think that’s important to mention in that. And I think too, we this is my belief in that we we can we are able and this is why healing ourselves is so important. And working on ourselves is so important. Because the deeper that we allow ourselves to go with our own grief and our own challenges and, and whatnot. Is that’s the depth we are able to go with others and for others, I believe.
Eric Hodgdon 38:00
Yes. Absolutely.
Victoria Volk 38:03
Yeah. What were some of the unhelpful or hurtful things? Did you hear any of those types of comments?
Eric Hodgdon 38:12
I always laugh at this because I think that personal development helped me get to a place where I didn’t let it get me angry or frustrated. There were some folks that didn’t show up that I expected to show up for Zoey and for our family, some close relatives, even some family friends that I was just okay, I don’t understand why this is happening. But that’s not for me to understand right now. I remember about four years ago, I was visiting Zoe’s resting place when one summer afternoon and I always went over there I went over there once or twice a week just to say hi sometimes I would take a little Bluetooth speaker and just set it down and play some of the music that she used to like to listen to and so it just felt I felt closer to her there. And I was I just showed up at the at the at the cemetery and got to her resting place and there was a woman that was walking by and she said so sorry for your loss to thank you so much. And you know who is this? I said it unfortunate it’s my daughter. And she said Oh What happened? Do you mind me asking? I said unfortunately she took her life. And without skipping a beat. She said, Ah, you’re young, you can have more kids. And I didn’t get angry with it. Right? I my eyes kind of like and you know what I imagined Victoria, imagine that Zoe was standing in front of me looking at me like you just looked at me like did she didn’t say that. Right? And so I couldn’t get mad at it. That the personal development and the growth of understanding that people are where they are and I can’t expect them to be in that same place. allowed me to kind of release it and be like, that’s where she is. That’s how she deals with loss in her life, and so no judgment, that’s just where she’s at. And so I wasn’t in a place where I was going to take offense to that. In fact, I said, You know, I need to remember that so that I have conversations later on, I can share that. So I think that there are times when things are not done or not said, that can feel make you feel a bit lonely. In all of this, there are, you know, when somebody says you aren’t, you know, you just need to get over it. Again, that’s their level of healing in any setback that they’ve had in life, their baggage, their defaults. And so it’s typically not about you, when they’re when somebody is saying something to you like that. And so if you can let that thought or that statement, or the words that are you read, or are said to you, literally and figuratively pass through you and go out the other end. You are better off. Because Yeah,
Victoria Volk 41:11
yeah, I was just gonna say, I think as Grievers you almost need to have selective hearing.
Eric Hodgdon 41:17
Yeah, I think so. I mean, is it going to help you in any decision that you’re making on the grief journey? Is it hurting you? Or is it helping you heal?
Victoria Volk 41:27
And here’s what I was gonna add to that, too. I think that’s reason why that’s like reason 385 million to, you know, work on yourself, because someone who hasn’t really allowed themselves to process what they’re feeling. They really could take that in and it could just downward spiral them that day. You of course, that’s that’s why things like that are very hurtful and hard. They can actually be harmful. For people. They can I think, especially with teens, can we speak to that a little?
Eric Hodgdon 42:02
Yes, absolutely. I can’t tell you how many times I had conversations with always friends were a thought turned into a problem that they had the one thought and and so I remember, it was about a month or so after Zoey died. And I’m standing in my kitchen with one of her very good friends. His name was Jerry. And Jerry was just somber that day, he was the weight of the situation was really settling in for him. And he was missing. So he’s like, so he’s gone? What am I going to do? I just I was taking a lesson that I learned from my therapist, because I asked my therapist, the same thing. When I was going through my divorce, what am I going to do, and she was very explicit. And I shared the same thing with Jerry and I said, Jerry, you’re going to get up in the morning, and you’re going to put your feet on the floor, you’re going to get dressed, you’re going to get breakfast, you’re going to go to school, you’re going to come home, have dinner, and you’re going to practice the guitar for hours like you have since you were four years old. And after that, you’re going to go to bed and just do the same thing over and over again, until that becomes the norm, despite how you’re feeling. That’s how you keep going. That’s what you’re gonna do. And so it’s giving those resources it’s reminding the kids, the teens, anybody who’s struggling, that there are resources out there, whether it be people, parents, others, teachers, others in your community, even good friends that have walked this path before and can meet you where you are on your path and help you walk with you on it. Give you some solid advice make you laugh when you didn’t think you were going to be laughing again. And I used to share a story about Zoey with some of her friends. I got a call one evening from one of Zoe’s friends I’ll call her Cammy kameez mom called me and it was probably 1130 at night and like they recognize the number but I answered the phone anyway because those calls on the Saturday night 1130 are always good right? And so kameez mom is like hey, this is kameez mom, just want to let you know that. We think Cammy is going to end her life tonight. We just want to let you know like wait, she’s going to or she did like what’s going on here? And she said No, we’ve just we tried everything. We don’t know what else to do. I just want to let you know because I was kind of throwing our hands up like we just don’t know what to do. I was pissed like that. No, this I said Look, I can tell you right now as long as your daughter’s breathing, you’re fighting for her. And you please put me on the phone right now. And she’s I don’t know if she’ll want to talk to I please if you need to throw the phone in the room. I’ll scream it out. I don’t care, but get her on the phone. And so I got candy on the phone. She was embarrassed, because her mom called me and I said, Look, kid, this is me. I’m Zoe’s Dad, you know this. I’m okay. You can tell me anything. I’m not your mom and dad. What’s going on? She said, I just don’t care anymore. I just don’t care anymore. And I asked her to tell me more about that. I wanted to ask her some thoughtful, open ended questions that weren’t yes or no, I wanted to find out what she was struggling with in the moment. And so I may have had to ask her a few times What’s going on? Like, what? I just don’t care anymore? Like, I just don’t, I feel like I’m a burden. So that Oh, okay, we’re getting somewhere. And I shared with her, I said, you know, there are people in this world that probably could be a burden, you’re not one of them. You know what, you know, you’re 18 years old. And you’re not a burden. we all struggle. We all have moments when it feels like nobody cares. When it’s too hard to go on. We feel like there is just no other way. And so we just settle on some really dark thoughts, and it’s that scary. Said, but Sweetie, you can find something that is that lights you up. And and makes you excited and motivated. She said, I just don’t feel like I want to do anything else, you know? And I’m like, I feel like I’ve done everything I can do in my lifetime. She’s 18. I said, Well, what did you like to do when you’re growing up? Well, I said you’d like to take pictures now sometimes. Did you like to draw a little bit said, What about animals? And oh my gosh, I love animals just go to the zoo. Like, sure I heard the turn. And so so keep going with that. Tell me more like what do you? What would it be like for you to do something with animals, and she just started talking? I would be fantastic. You know what I want to always do, I always wanted to be a vet tech. Okay, so Kimmy, here’s what we’re gonna do. Tomorrow morning, we’re going to get back on the call and get back on a call. And we’re going to go through the phonebook or we’re going to go online. And we’re going to look for that tech positions and how you start that process. And she was so excited. It’s that’s where we have to get really deliberate and intentional about connecting with kids. Because they need to be heard. They need you to know they they need you to know that. Even though they may feel like you’re not going to get them I understand where they are, that through open ended questions, they’ll tell you exactly where they are. And Cammy ultimately didn’t go for a vet tech position. But it was enough to pull her back from the edge to give her a different optic on that there were options out there for her. If that makes sense.
Victoria Volk 48:04
Do you think for especially older teens, maybe 16 1718, I’ve often wondered this just in the last couple of years. If it’s just this pressure of making something in your life doing something with your life, pressure to please our parents, you know, please the parents are pleased the community are pleased. Because I what I see often not well, not often, but I see a trend and especially with teens that are high achievers. Hmm. I don’t know the statistics of the suicide rate of high achiever. teens, right, but sometimes it’s just the pressure, right? It’s too much.
Eric Hodgdon 48:48
Yes.
Victoria Volk 48:50
What have you found? I don’t I don’t know, do you work specifically with teens now,
Eric Hodgdon 48:55
I work more with folks who are on the other end of a loss. Okay, and so I, what I will always do, and will always have my door open to I give my phone number out all the time. And I’ve talked to a lot of parents who have struggling teens. And I say here’s my number give this to your kid and tell them to call me but I don’t leave with that I always follow up and check in how are how you know, how’s your child doing? How’s your kid doing? And I here’s the thing that I think is is is going to be important. And I’m seeing this now, especially now I’m hyper focused on it, seeing how my my boss talks to his three boys and connects not talks to but connects with his three sons and how he asks them questions. And because all of them are in high pressure situations, teens, you know at 18 you’ve had 18 years on this planet and at that age, I think that there is a pressure to become something bigger. Now that could be an external pressure that’s coming in. But a lot of times, it’s an internal pressure that you’re feeling. And that can be overwhelming. And I guess the best piece of advice I would give there is that it’s giving yourself permission to figure things out on a pace that works for you. If you try to figure out your life, for somebody else, you’re just adding fuel to the fire of that pressure. But give yourself permission to fail, give yourself failure is not a bad thing. Failure is a learning opportunity. You know, failure, you fail at john Maxwell say you fail forward. Oh, my gosh, I wish I would have had that advice A long time ago. And so being able to give someone permission to learn and grow and adapt, I think that helps with the pressure. And I know that some people aren’t necessarily they’re not only kids, but even some parents and adults, they, they may have had that same pressure when they were growing up. And so they’re just kind of bringing that that forward into their family as well. And so, but but giving yourself permission to figure things out, and permission to fail, permission to learn, and giving yourself the runway that you need. I you know, I think that when we place ourselves in a box, that’s where I think this anger and frustration really comes out. Because if we step outside of that box, it’s almost it’s almost like we’re conditioned to that something’s going to happen. You know, we’re either going to be shunned or shamed or cast out of the group or whatever it might be. And that’s very old. That’s, that’s why are deep within us as well. But it’s okay to give yourself that permission, that box can be as big as you want it to be. There’s no limit to that box, and doesn’t even have to be a box. How about removing those borders and just saying, I’m going to figure it out on my own pace at my own time. And, and I think that that can even help some adults as well. When they’re talking about grief in kids, if they’re talking about grief, kids, if they’re talking about situations that they feel like there’s no out from there in that box, they cannot see a way out of that situation. And there’s never just one solution to getting out of that pain, or that struggle, or that situation, there’s always a multitude. And sometimes you need others to kind of help you figure out what those other options are. And that’s okay to get it’s not a weakness. It is absolutely it’s actually a strength. When you think about it, if you’re struggling, you’re on the precipice of figuring out something very important for your life. And if you look at anybody out there in the world who has faced a deep struggle, and they’ve come out of the other side, we’re wired for that. And so there’s there’s make those options available and connect deeply with those around you. And you’ll find that you’ll be able to have those options that you didn’t think you had previously.
Victoria Volk 53:11
Well, that’s a lot of advice and best tips and how, you know, that’s great. Thank you for sharing that. So what has your grief experience taught you?
Eric Hodgdon 53:23
It has taught me that there are so many things to be grateful for in this world. Zoey was in my life for 15 years. And I am so grateful that she was I got to be her dad. I’m grateful that I have the capacity to wake up in the morning and take another breath and see the sun or even the clouds doesn’t matter to me obviously. It’s it’s gratitude for the folks that I have in my gratitude to be able to share with you and your audience. I mean it’s there’s so many things that are are so beautiful in this world that I feel like gets us back to our nature and that’s been probably the biggest lesson for me is that I’ve I’ve gotten back to my nature, what matters most in life. And when you look around you and you say cheese, I’m really grateful I’ve had a rough day at work today, or Yeah, my kids were frustrating me and all that stuff. But you know, I’ve got a roof over my head. It’s the things that you that are invaluable. You know, I have eyesight or I have the capacity to breathe and the capacity to see some nature of that side or plan a trip or even during the pandemic, families coming together you know, board games selling out because what else you gonna do you know, I mean, just there’s so much that there is grateful that you can have gratitude for and it is really getting back to what matters most
Victoria Volk 54:55
is gratitude the foundation of the work that you do with the people you work with?
Eric Hodgdon 55:01
Ultimately, yes, I think that it certainly was an accelerant to my healing. Because I was just I was even though I every day, I was using a journal called the Five Minute Journal, I don’t know if you’ve heard of this journal or not. It’s straight, six months journal, and every day, it’s one page, where you write down three things that you’re grateful for, in the morning, an affirmation and three things you want to accomplish that day. And then at the end of the evening, you know, you write down, what’s your biggest takeaway from the day. And there were days when I would write the same three things down, grateful for life. I’m grateful for Zoey. And I’m grateful for the roof over my head. And sometimes I would introduce new things to be grateful for. But I think overall, it was focusing on that. That that kind of pulled me out of those doldrums of feeling like, this is going to be really hard. Yeah, it’s hard. But you know what, I’ve got a roof over my head. I got to be Zoe’s dad. I’m still Zoe’s dad. I’m connected with her friends. And Zoey, by the way, if I say, you know, Zoe, I mean, I, in my mind, Zoe is everything that encompasses Zoe, or my family, her friends, the energy, her, her voice, all of it. And so yeah, gratitude is at the heart of it, Victoria.
Victoria Volk 56:39
I have a curiosity question, please. So I hope you don’t mind me asking because I think it would be helpful for our listeners who may have found themselves in the same situation of losing a child.
Eric Hodgdon 56:54
Okay.
Victoria Volk 56:55
I’m curious if you have kept her room as it was.
Eric Hodgdon 57:00
Well, now that I’m down here in Tampa, I did for five years. I did for five years, I did not touch a thing, if anything I added to it. It was a few months after Zoey died, and I was invited to go down to her school. A few towns away. It was a therapeutic school that she was attending. And they wanted just to share with me two things, one that they were planting a tree and so he’s on are in their courtyard, and then to to present me with a shelf that Zoey had started to make. And that’s the shelf right there that the kids finished. And I brought that back to my house. And I placed the shelf up in her room and I set it up as if I think Zoey would set it up all over Chuck T’s were in one of the cubes. And all of her art supplies were another cube and some of her incense was on top and you know, some rocks, every time I took a trip, I would collect a rock and I would bring it home and put it up in her room and, but everything else in the room did I didn’t move it, I didn’t find the energy to move it. Because I was afraid. I felt like if I were to do anything in this room, that I would be cutting myself off from Zoey completely. And nothing could be further from the truth. And when I made the decision to sell that house, five years later, it took me two days and three boxes of tissues to go through that room. And she had clothes that other kids could wear that I donated to a goodwill, I can’t remember the name of the company. There were boxes of her drawings and notebooks with poems in it. I still have all those. Her ukulele is with her brother, her drum set I donated that to a kid who was eight years old in town who needed a drum set was time. And I didn’t want to do anything with her room until it was time and there’s no time frame on that. And so there’s some folks that might be with that same room at their house for one year, one month. 10 years longer. It’s okay. When it’s time, it’s going to be okay, you will find a way to make that make it happen. And so one of the biggest lesson I think afterwards when the room was done, and I was looking at this room was just a mattress on a bed frame. So he’s still with me. I never got rid of Zoe. I’m not leaving her behind if anything, she’s still with me. And so I took a ton of pictures And I have those pictures. And when I look at him today, they don’t bring me sadness, they actually bring me joy because I get to see a snapshot of who. So it was, it’s always going to be with me. And just like Zoe’s memory is always going to be positive. It’s just stuff at the end of the day, and the memories are always going to be with you. And so nobody can take that away from you. And so you’re not really letting them go. In the sense of forgetting them. You’re actually helping yourself heal. I think, when you do have those moments in your journey where you can actually move on, it’s just another step on the path.
Victoria Volk 1:00:42
Thank you for sharing that.
Eric Hodgdon 1:00:44
You’re welcome. Thank you for asking.
Victoria Volk 1:00:45
So what gives you the most joy and hope for your future?
Eric Hodgdon 1:00:50
that I can continue to share Zoey. You know, one of the I think one of the most profound events, I guess, if you want to call it that that happened was when I joined option B, many years ago, I was asked to be a moderator later on. But early on, when there was about 500 people in the group. Option B was started by Sheryl Sandberg, who’s the CEO of Facebook, and she lost her husband in early 2015. And she wrote a book called option B, it’s fantastic book, and I would recommend that to folks. But She subsequently started this community. And I joined in early April of 2017. And the next month, when Mother’s Day was approaching, it was the day before Mother’s Day and I wanted to make a post for the folks in the group. One because I was thinking about so his mom and how hard it must be for that. For that Mother’s Day that was coming up, especially for Zoey not being I know what it is on dad’s Father’s Day. But I just think about this. So I know that there was some mothers in this option B support group. And so I just did a video and I just said, Look, if you’re a mom, if you’re a mother figure, if you’re missing a mother figure, anybody in your life that reminds you of Mom, I know tomorrow’s going to be difficult for you. But if it’s okay, I’d like to offer a little suggestion for you. So that when you wake up in the morning, the tendency is to let the pain make you feel like you just want to stay in bed with the curtains drawn. But I would invite you to sit up in bed first, then put your feet on the floor, open up the shade, go get dressed, and go do something in honor of your mother figure that day. Even if you’re a mom. And you’re missing a spouse that doesn’t matter. Or wife, you’re missing a spouse doesn’t matter. Get up and do something that honors your loved one. And later that night. My my phone lit up with a message. And I looked at it briefly I was half asleep and it was it said Sheryl Sandberg on it. I’m like, there’s no way. So I opened up my phone and I looked and sure enough, that was Cheryl. And she basically said hey, look, I just wanna let you know, I just shared your video with all of my friends and family. And would it be okay with you if I shared this on an interview with Oprah next week? No, no. So I said no, please do. And thank you so much. And I was so touched by that. And so what that taught me was that it doesn’t matter who we are in life, we could have billions of dollars. We could be working as a car mechanic or in a corporate job, we could be a child, we could be a teen doesn’t matter who we are. We’re human, and we’re all wired pretty much the same way. And grief is going to hit us. No matter what we do. No matter how much money we have in the bank. No matter what gender or ethnicity we are, we’re human. And so we can always find ways to make a connection that changes someone’s life. And if we don’t step into the arena and do that, then I think we’re leaving a lot of value on the table for those that are around us family, friends or otherwise.
Victoria Volk 1:04:29
My kids roll their roll their eyes whenever I give him a quote. I think of that.
Eric Hodgdon 1:04:34
Thanks, Mom. Yeah. Is it again? Is it worse than a dad joke? I mean, because those are pretty bad too. Right?
Victoria Volk 1:04:46
Thank you for sharing that. Is there anything else you’d like to share?
Eric Hodgdon 1:04:51
No, I’ve just I’m deeply grateful for being able to share Zoey with you and your audience, Victoria. It means the world to me that That, that I can still say her name. And it brings me the same amount of joy, as it always has. And I just am so grateful for the opportunity to be here with you and us fantastic questions. And you really made me think about what has really made a difference. And I’m gonna walk away from this discussion, feeling like I’m full today. So thank you so much, it really means the world to me.
Victoria Volk 1:05:31
Thank you, likewise. And I think that the theme of this interview, conversation I prefer to call it is impact. Yes, we don’t often realize the impact that we have on other people. Right? And that is regardless of our age. Yes, regardless of our age. So if there are any teams listening, you might think you have no friends. And I would argue that that’s probably not true. But I would also add, I have no doubt in my mind. If you’re a team, if you’re anyone listening to this, you have an impact on people in their lives, you impact people. And your presence would be lost and missed.
Eric Hodgdon 1:06:26
100% so true.
Victoria Volk 1:06:29
Thank you so much for sharing, where can people find you if they like to connect with you?
Eric Hodgdon 1:06:35
Thank you, Victoria. People can find me online at erichodgdon.com. And they can also pick up my book. It’s called a Sherpa named Zoey. It’s available on Amazon. And I hope it helps in some way. And finally, I have a TEDx talk that I performed two years ago that is available and I can provide the link for your for your audience as well.
Victoria Volk 1:07:02
Perfect and I will provide the links in the show notes for everything mentioned. And remember, when you unleash your heart, you unleash your life. Much love.
Cancer, Chronic Illness, Grief Stories, Grieving Voices Guest, Grieving Voices Podcast, Podcast, Widowhood |
Rachel Engstrom | Life as a Cancer Wife, Widow, & Never a Mother-to-Be
SHOW NOTES SUMMARY:
Eight years following the death of her husband from acute lymphoblastic leukemia, Rachel reminisces on the love she lost and also the pain and lessons that came from his death as well.
Rachel found purpose through her pain in writing about her experience, which later became her book, and also through cancer advocacy.
In this episode, she shares the story of her husband’s diagnosis and death two years later, as well as how she found her way to feeling better.
On top of the loss of her spouse, she would later have to come to terms with the fact that she will never have biological children and, also experienced a health setback herself, later being diagnosed with a disease of the colon.
RESOURCES:
CONNECT:
Victoria Volk 00:00
Thank you for tuning in to grieving voices. This is your host Victoria Volk, and today I have Rachel Engstrom with me, she is has a masters of social work. She is a certified health education specialist and has written a groundbreaking memoir self help book on her experience as a young cancer wife than widow with the increasing number of young women and men becoming widows or widowers due to not only cancer and serious illnesses, but also now COVID-19. This resource is needed more than ever, Rachel shares her journey in a raw and honest way while providing step by step resources to help you navigate your own journey. Never before has there been a combination of the personal grit of the healthcare journey, along with steps and how to navigate treatment diagnosis, the ins and outs of hospital life, employment, finances, insurance, self care, grief and loss, and much more. You can find wife, widow now what how I navigated the cancer world and how you can too, on Amazon, which will be linked in the show notes. Thank you so much, Rachel, for being here.
Rachel Engstrom 01:12
Thank you for having me.
Victoria Volk 01:14
So let’s talk about the birth of your book. And really how this probably what started out as a passion project was which was your life unfolding? How? Where does your Where does your story begin?
Rachel Engstrom 01:29
I am about to be 39. And I moved here I’m in the Minneapolis St. Paul area I moved here in 2000. So almost 21 years ago, to go to the University of Minnesota. And in myself, I moved here not knowing one person, no family, anyone was here that I knew. And in my sophomore year, first semester, I went to a birthday party. And a friend of mine it was she was having a party for her boyfriend and his friend from work came. So this tall guy who’s six, two, who’s, you know, almost seven years older than me showed up. And I just thought that he was really cute and nice and you know inquired about him to the friends the next day. And he did the same about me. And we dated for three years. And then when I graduated from college, three months after that, I got my first job right away. And then I got married at 22. And he was about to be 28. And then so he worked nights the whole time we were together. So that was pretty cool. I mean, I missed him a lot. But that was pretty cool. And that I was able to become my own independent adult person within my 20s and still have that relationship and that consistency in my life of being with him. And then when I was 28, and he was about to be arxys. I was 28 and he was 35. He just really didn’t feel well one day and went to the doctors that turned in to go to the hospital for blood transfusions turned into go to this clinic. They didn’t tell us it was a cancer clinic that he was mis diagnosed with something and then the next day had a bone marrow biopsy and two days later, he’s diagnosed with acute lymphoblastic leukemia. So at age 28, I’m already grappling with a few months before that learning that I have endometriosis cyst, whatnot that had ruptured on my reproductive organs. I’m grieving that I might not be able to have children, things like that. And then this couples with that, and I have to very, very quickly learn how to navigate the serious illness, world insurance, disability, all these things, which is why you list that all of that, along with having this cancer life become my norm. So I’m working eight hours running back home to let the dog out, then running the hospital for a few hours then running back home, you know, petting the animals trying to pay attention to them for 20 minutes before I you know, pass out, rinse and repeat the next day. So that was quite a lot. So that was my life. I did have a lot of support from my parents who are in a different state. They came and lived with us for 18 out of the 27 months that my husband was sick and he got a lot better and then relapsed, unfortunately, a year and a half after his initial diagnosis. So we had to hospitalized him after he relapsed on the day of our eighth wedding anniversary. And what was interesting is going back a year when he in so he got sick in January of 2011. He had a fever and had to be hospitalized in August of 2011. And one of the nurses said, Oh my gosh, you guys are still together. I can’t believe you’re together. This is amazing. And I was like what are you talking about? And she told me that during cancer and serious illnesses, that in her experience of 25 plus years she’d seen 70% of more people come back that needed medical care that their significant others left them, or the marriages didn’t work her out or things like that. And that just totally blew my mind because we had we knew very quickly on that this is scary, you know, of course we’re hoping he’s not going to die, but that we’re in this together we can’t afford to fight or you know, disagree that much or those types of things because this is such a serious thing. So in January of 2013, he had a bone marrow biopsy or excuse me, he had a bone marrow transplant. days after I had a surgery for endometriosis. And he had had a lot of chemo and radiation to prepare his body, when you have a bone marrow transplant, they have to wipe out your entire immune system. Like you’re a newborn baby to take these stem cells from umbilical cords, that was his donor. And just the chemo, the radiation, all those side effects ultimately ripped up and shredded his kidneys, his bladder, lungs, things like that. So he was in the ICU once, you know, it was preparing for him to die miraculously, within a two week turnaround, he was out of the ICU out of the hospital in a rehab, was learning to walk again, do all those kinds of things. And then he went for an appointment and things kind of went downhill. And then on April 17, I was told, I got a call early in the morning, and he said I can’t breathe, I can’t breathe. And he had been on regular like oxygen. But they needed to put them on high flow oxygen. He just he wasn’t breathing well through the night. And then they called me and said he needed to be integrated. And he got on the phone and he said I love you to each other three times. And then when I got to the hospital, he was kind of freaking out. And I asked them to give them a high dose of pain medicine. So it would just knock them out. And then once he was comfortable, I was sitting in this chair and I had three doctors come and tell me I’m sorry. And they said we’ll decide within 48 hours, you know, when’s the appropriate time basically to take them off life support. And two days later, when we’re going to do this is my 31st birthday. And two days after that, so then they said okay, well wait another 48 hours, but I just knew within that he was gone. It wasn’t even him anymore. You know, he’s just seeing him slip away. And what was amazing is what carried me through significantly was my my faith, my faith in God and all of those things. But I just had so much peace and so much grace within it, I was just very numb to all of it. And I believe that, you know, the biggest factor was my faith for feeling that way. But what I learned later learned later, when I was trying to be in learn more and being young widow groups and things like that. What I was seeing that I didn’t quite realize is I had I was given so much grace and that I was able to be with him as he was dying. So many people have their significant others die at war, or you know, a freak accident at work or those types of things, I was actually able to be with him. So on the 21st I signed the papers and everything. He was so amazing. He did extra bone marrow biopsies and spinal taps and things like that, for research at the University of Minnesota. So I signed the papers that morning for him to donate his body to the University of Minnesota, which is what he wanted to do. And then called our Mr. It’s Sunday’s of using church then we had to wait for him to come and then had the few family members that were there say bye. And that I had made a heaven playlist the night before because I knew that he was going to die the next day. And I had them unplug him, we cleaned up his face a little bit. And then I played a playlist and help my husband, my life. My best friend, everything that I knew is I waited for his heart to stop. So I was two days after I turned 31. And then I walked out of the room and I was Rachel 2.0 I was a widow. So I just I had to restart. And I had to reboot my life literally like a computer. Because I had been thinking I was going to have you know, little feet running around the house that are half me half him, I’m going to have someone help me pay for this house. We’re going to go on trips, we’re going to do all of these things. So I had to figure out how to navigate all of it. The cancer part was hard enough, but this was navigating all of it. And especially with being a 28 year old cancer wife is hard. But being a 31 year old widow is insanely hard because you don’t know anyone else in your circle of people going through that. So ultimately that led me to the idea of writing a book so my book wife widow now what is chronological order of my caringbridge Medical posts that got emailed out to everybody my Facebook post. And so it’s my narrative between all these real time posts. So when I’m figuring Insurance I walk you through bam bam bam This is how you do it this is diagnosis treatment work when people want to help these are tangible ways to tell them they can help getting counseling for yourself getting counseling for the patient ways to adapt to your house you know I had no idea I’d be 28 and be needing to get you know, a shower chair and all these things and so basically my book is a love story but the tips and the tricks of how I navigated all the illness part and then how I navigated all the widow part the anniversaries, the holidays, all those first all those feelings, and it’s very gritty in that I don’t it’s beautiful, but I don’t sugarcoat anything you know when I one day I may be like, oh Today’s a great day and the next day I’m like again so grueling. So it’s really unique and that this is the first of its kind memoir self help how to merge the narrative and the realness of the journey with the medical aspect of how you do both so I put all that together and it was very much a labor of love and a lot of PTSD but I’m really proud to have it out there’s there’s nothing like this to help people navigate it.
Victoria Volk 11:13
it’s a lot yeah thank you. So how many years ago was this now?
Rachel Engstrom 11:16
April 21st will be eight years
Victoria Volk 11:19
what is life been like since
Rachel Engstrom 11:22
so it was really hard. It was really hard at first just for fun just for kicks I took classes to get a certification and grief counseling because I wanted to know about grief the process all of those things learning about you know ambiguous loss of suicide and you know all the different kinds of grief what people go through my bachelor’s degree is in anthropology so just culturally, it was fascinating because I was part of this culture I knew nothing about it’s like literally being dropped out of an airplane into a foreign country you don’t speak the language you don’t know anybody you don’t know where you are you have to start over it was it was really really difficult working three part time jobs to try to pay for house like I said, I thought I’d have someone helped me with lost a lot of friends not because people didn’t care but I think they didn’t know how to adequately help and kind of like you have you know, when you have a job, you have your work family of friends there and then you leave and then you’re like, Oh, you know, I don’t really talk to them that much anymore. The really hard part is about going through something that’s catastrophic is your friendships, your relationships have been flow and change that way as well. I purposely with a lot of intent, stepped away from the cancer world, the illness world, all of that for years, because it was just too close too hard. You know, there were movies that came out like I remember like a fault in our stars, a couple different ones where people were like Rachel do not watch those do not even don’t even touch it. Those things are really difficult. My brother who’s 14 years older than Wayne told me in the very beginning when he came right before Grayson got sick or excuse me when he got sick, you know, you you can choose to be better or better. And I wasn’t always better. I have a chapter called bitter Betty. But within that I had I had to I didn’t have anyone else that I was responsible for besides my pets, besides me, so I had to know that Like it or not, I had to reboot This was my new life. And within that I chose to surround myself with positive people. I had a couple of very long term friendships that ended up not appropriately supporting me and being very judgmental and toxic that I had to cut out of my life. Just a lot of growing pains of being this new person this new role this not definitely not asked for a role. So navigating all that was really tough navigating just having enough money to afford the house and everything that was just insanely tiring I worked for a year and a half I worked three part time jobs to with autistic children, one with the lady with multiple sclerosis, running all across the Twin Cities and be like five or 600 miles a week navigating all of that I forgot to say six months after my husband died, I had had so much pain I could barely walk so I had a hysterectomy so then I gave up the ability to have kids which was another huge loss. But then you know later on victoriously I’m in target walking past like the tampon aisle and just like so excited. You know, it’s the little wins. But three months after he died I actually went to Alaska for almost three weeks by myself took a cruise was always like, you know, I’ve seen the Titanic. Tell me which well I well you know that they’re safe these days. I will never go on one. But I also didn’t think that I would be a widow at 31 either. So I gave myself space and time to see nature all these places you can only get to by boat plane Things like that. So it was a lot of a lot of trial and error. Over the years, I had met my husband when I was 19. So dating again in my 30s wasn’t sane, I got her, I got my heart broken, I was naive, I was stupid. I didn’t make the smartest choices sometimes. But I was I was just believing the whole time that God had a plan and like footprints, I wasn’t going to be dropped, you know, the second set of footprints in the sand. And that’s ultimately what carried me through and then also finding out surrounding myself not only with appropriate people, but you know, funny TV shows uplifting music, things like that, because there are a lot of really sad things out there. I didn’t always Excel taking care of myself. So those are some learning points. You know, when your spouse dies, you don’t want to sit around and eat salads, you want to eat cake, you want to eat pizza, you want to eat things that necessarily don’t fill you up with endorphins that make you more sluggish. But you do what you need to do. So in time, things got a lot better. And I don’t really speak about love life or anything except in my book. That’s my one disclaimer, you have to you have to read it because it’s at the end of the book, that’s kind of my happy ending. But what’s truly incredible to me is where I am in my life now. I’m, I have Besides, it’s hard to articulate this sometimes without feeling like offending people. But it’s true, like losing your parent, losing your sibling losing your grandparent, those things are so hard, they’re so hard. But the only thing I could equate with losing a spouse to would be how I can’t imagine losing a child. But losing a spouse is definitely not planned, especially as young as you know, I was 31 he was 37 so it’s very, very tricky to find adequate support and those types of things because when people say oh, my mom died or my my whoever died I I understand you don’t understand you really don’t understand it’s a different kind of grief. It’s more complicated. It’s the person that was in your house every day. You know, even a year after he died, I would look at the door and expect him to walk through it. All those types of things. So what’s incredible to me is that I went from being the saddest of the sad not able to get out of bed. You know, my reproductive organs are have been taken out of me my my hope of being, you know, a mom and all these different things and my husband’s gone and whatnot, that I went from there to writing a book, despite how painful it was writing a book and now speaking about the positive things I focused on the positive things you can focus on. It will be over by the time this is aired, but right now in the state of Minnesota, I am running for a woman of the year trying to raise $60,000 for blood cancer. leukemia Lymphoma Society did so much for me I did two half marathons walking them I’m not a runner, two half marathons walking that my dad won the year after he was diagnosed and one the year after he died, so in 2012 and 2014 and within that I found friends for life people that backed me people that supported me. And if I can get $50,000 I can get a grant and his name. And you know, I’m just I’m pumped to help people because as great as advancements are, every three minutes someone’s diagnosed with blood cancer every nine minutes someone dies from blood cancer, one in five people are going to get cancer in their lifetime. 80 It’s the number one childhood blood cancers, typically acute lymphoblastic leukemia, which is the type of leukemia my husband had, which usually children get or elderly people get 80% of childhood cancer survivors of this have catastrophic, like chronic health conditions, whether it be so my husband a year after he was diagnosed, he’s 36 looks great, you know, full head of hair, he’s super healthy. You know, no one knows he has cancer if you saw him, the steroids that he took for the first part of his treatment had rotted his hips to the point where there was a crack and it was the hip bone was falling out of the socket. So I have another friend that his son, or excuse me his that I met while my husband was actively dying. This person I met because he was he was so nice. It was a friend through a friend and he gave me money to stay in the hotel across the street because his wife had died five months before that, when his twins were three, and then three years ago when the twins were nine. I’m one of them got diagnosed with the kind of blood cancer. So this little he’s lost his wife. Now one of his two sons has cancer and he’s getting the little boy got really, really sick, his name’s Jake, he’s an insane warrior. Now he’s fine, his treatments are done, but he’s had to wear leg braces, because his legs are just his bones are you know, so there’s so much that’s amazing like the Leukemia Lymphoma Society has cutting edge research which actually informs other forms of cancer, their treatments and things are helping all forms of cancer. So it’s not just blood cancer and trying to get funds for. But the side effects are awful. We can acutely treat them when they’re happening and get you into remission, but the side effects are not quite there. So I feel really privileged and proud to be able to do this in honor of my late husband because he did these extra bone marrow biopsies donated his body to the University of Minnesota, he wanted to help people. So in a way I’m really proud to be able to have him live on through my story live on in this way. And this usually does not make me cry, but I’m just really excited. He would just be pumped to know that I’ve turned my life into advocacy in his honor. So that’s where I’m at today.
Victoria Volk 21:06
How about you tells us a little bit about him.
Rachel Engstrom 21:09
Oh, he was funny. So his name is Grayson and he was just like, gosh, golly, nice to the point where he’d say like, I’d hand them something and you’d say appreciate it. Maybe like what is so nice. He had he would ask the nurses like can I trouble you to get me something and they would like fall over laughing like it’s our job of course we’re going to help you. He loves New Order in the Pet Shop Boys and techno music and going with his best friend oh and for craft beers and discovering breweries and different things and from his best friend that I spent a lot of time with after that I was friends with anyway but spent a lot of time with after Grayson’s death he’s like he would just have any rolled his eyes when he told me he’s like he would just talk about you all the time. It was just all the time and you know, we really were the best of friends and we had what I call Space Age marriage where we rarely ever fought granted we didn’t really see each other Monday through Friday because he was working. But you know, when we did have arguments, it was over piddly stupid stuff and I was in my 20s having those growing pains and whatnot and as he works nights you know we didn’t have a dishwasher in our little apartment and I would want him to wash his dishes but he couldn’t wash them at night when he got home late at night because the kitchen was by the bedroom and it would have woken me up and then he was a serial procrastinator so he would be so tired he’d get up late you know work and then he’d get up at like one 130 then have to work at three so I just passively aggressively would stack those dishes on a cookie sheet because they were his but um he was just a joy he was a lot of fun everybody loved him the nurses told me they fought over him you know who that they had everybody’s index cards and patients in the room who had who when they would fight over who got to take care of him and you know I would bring blankets and a lamp and you know different things to make the hospital room like a little home and they would say oh lovebirds are in their apartment and you know things like that so we just made the most of it and despite him being sick we actually were given the gift of time you know that we hadn’t had our entire time together Monday through Sunday being able to spend time together and we’d have sleepovers and I’d be on my little hospital cot on the floor and he’s you know two feet above me and we’re holding hands you know watching movies and stuff like that but he was just a really good guy and I know that you know with from what I’ve learned, you know, different marriages, different things, different relationships. You don’t always get to have that nice story and closure where there’s a death You know, you’re left with you know, what was or I wish I would have said or I wish you know, I did have what it could have shut us but not in big ways. Not in big ways. You know, I felt guilty for a couple years because while he was sick, he would always want me to come snuggle with him on the couch and I’d be across the room on the other couch just insanely tired, exhausted on the couch and not wanting to move he’d be like come snuggle and I’m like a little while last thing I want to do I’m so tired. So I feel bad because I’m like he wanted that and I could have done that. But besides that I really don’t have any regrets. And you know, I asked him a couple days before he died. He was awake for a couple minutes just his eyes were barely open but you know, I knew it and we had a health care directive and everything but do you trust me? Do you understand what’s going on? Do you understand what’s going to have to happen and you know, he shook his head yes. And ultimately I was just prematurely obviously in my head I know that I’m you know, devastated. My world’s been thrown a grenade but While I was while my mom and I are waiting in the snow for my dad to pick us up, after I’ve left the body of my husband upstairs at the hospital, I just have these immense feelings of relief, because he’s not in this diabolical pain. He’s not going through horrific things anymore. That wasn’t really him anymore. Anyway, you know, it was just what was the it was unfortunately, like, you know, you change sounds like a really awful example. But you know, you when you get new carpet in your house, and you can go look at samples and there are those remnants, you know, he was remnants of who he was, that’s what was left the last few days he had given it his all he had fought so hard. I had confirmed with the doctors many times, especially the day he died, you know, there’s really nothing else they can do. And within that, I had the peace of knowing in the grand scheme of things. It didn’t make sense why he had to die. But biologically, his body just gave out. And, you know, God loved them. He did the he did the most that he could, and the love that I had for him and that he had for me, ultimately helped set me on the path of who I am today.
Victoria Volk 26:12
Was hospice care, never talked about?
Rachel Engstrom 26:16
No, because he was, um, so it wasn’t a necessary thing to have because he was in the hospital. So he left our house on January 21. He died on April 21. So it literally 90 days, because it took 60 days for his stem cell transplant to take for the bone marrow transplant, and things like that. He was like in the cancer ward. So he had that high level of oncology care specific for what he was going through. So I mean, I was assuming I was pricing like walkers and stuff like that, you know, I was thinking because he’d been to rehab and things like that I was thinking that he was going to come home and I had someone asked me a couple weeks ago, on a different show, like Did you really think that he was going to be fine and get better? And I was? I said, Yeah. And she said Why? And I was because he we were so young. You know, when you’re 31 and you’re 37 you assume you know you are unbreakable, unbeatable. You feel like you’re a superpower, you have the whole rest of your life in front of you. So I really did not I, when you’re the caregiver, or the spouse, or the main person caring for someone you don’t, at least in my opinion, you don’t get the luxury of believing that your person is going to be anything but fine, because you’re the cheerleader, you’re the you know, manager, the captain, the rah rah, we can do this of the ship. So I really until they told me I’m sorry, on the 17th I really thought that he would make it. And then at that point, because he was in the ICU, that was the adequate care he needed to take care of him.
Victoria Volk 27:55
I had Dr. Chris Kerr is the author of death is but a dream. It’s all about end of life experiences. And he has done extensive research on the subject. And he’s part of that docu series on Netflix called surviving death. And Episode Five. And you might find that episode interesting just because he talks a lot about the medicalization of dying. Hmm. So that’s why I was kind of curious on the hospice aspect of that. Sure. So what what are some of the things that I know you kind of spoke to like the some friendships fell away, which naturally, often happens with grief? But what are some of the things that were helpful to you, that people shared with you or said, and some of the hurtful things too?
Rachel Engstrom 28:46
Oh, yes. Well, I know how you feel is really hard. I had a lady that she was she was very sweet, very well intended. And she was a lady in her 60s, from church that helped do a fundraiser different things for me, but she would come and she, you know, I never let her in my house because I know she never really, she would stand on my porch and come and check on me and different things like that. And she kept telling me like, Oh, I know how it feels. I know what it is, you know, I’ve been there, done that. And she told me how she lost her mom. And she was saying she was a widow. And I’d be like, Oh my gosh, I’m so sorry, to the after like four or five of these visits. It turned out like she was like, Oh no, I’m married. It’s just my husband volunteers at church so much. I feel like a widow and I was like, Oh, just like I just wanted to slam the door on her face. I think the toughest thing. I had someone really close to me in my life. Tell me after about six months, just just decide to be happy. Just like pick a day decide to be happy. I think it’s really tough when people don’t realize that grief doesn’t have a start and end date. It’s on your own timeline, especially with me Every buddy’s grief journey is different. The circumstance of death is often very different. You know, you could put 10 people in a room and they all have different ways someone died. Mine, you know, being able to be there with him, like I said, For me made it a lot easier. And what was interesting is his, his pa is working, I think of it. What the acronym is, physician’s assistant, who was was like junior doctor. She was the one that after he was unplugged, and everything, you know, I lay down next to him and covered, she covered us up and I’m, you know, I laid there and we did an hour for his heart to stop. She said, Give me your phone. I said, Why? And she said, Let me take a picture. And I said, No. And she said, Yeah, you’re gonna want this. And she was right, because I wanted to look at these horrific pictures of what he looked like to really get and formulate, that’s not him. He had to go. But yeah, it’s, it was just really interesting to know and see what it was for me, versus what it was for other people. Being part of those widow widow groups online, different things like that. You know, it’s, it just sounds. I’m having a hard time articulating this because it just sounds very odd. But like, there was a woman in the group that her husband, apparently she was like, barely five feet tall. Her husband came home from Afghanistan. And one day, her 10 year old son found him hanging in the garage. And because she was so short, and he was already like five, three at like 10 G. They were trying to get him down. So she had her 10 year old son cut down dad. And it’s just there was someone else that it was her husband she knew he was really sad, but he she was like sitting on the front porch. And she’d been out there maybe like 510 minutes and her husband came out and said, Hey, come, you know, I’m going to take a nap come lay down with me on the bed, she found out. After laying down with him for like 20 minutes, she thought he was taking a nap underneath, like the pillow or something like that he had taken a whole bottle of pills. This is another soldier that came home. So he had died. And she had no warning and she knew nothing. So listening to those things, it made me feel better in people’s grief. And that sounds awful. But it’s like you compare your situations and those things that I just felt so extremely grateful to have been with him. And I mean, I had no words for these people. These are the most catastrophic, tragic, horrible things to happen. And when people are trying to tell you, you know, you need to be happier, you need to move on or you need to do this. There are a lot of people are really well intentioned, but they and they want to help and they don’t know how to help. And that’s what I’m trying to do with this book. Whether it’s you or your family, or a friend or a friend of a friend or whatever, I have ways to talk to people ways to help people ways just to be more sensitive, because grief is such a taboo thing that so many people don’t know how to talk about, I think the most helpful thing people did is just listen, be willing to listen. A few weeks after he died, I created a healing blog, which was like maybe 1/3 of the people that I had on Facebook where I would just kind of bleed on paper and write how I was feeling and be open and honest and I have all these posts as well in the book as they’re happening in real time. For me, it was just really helpful to feel like I was getting it out getting it out to the world I wasn’t holding on to it and just having people respond you know I’m here any time or you know, those types of things I initially thought of calling this book a few years ago and I thought of it how social media saved my life because it really is I mean even you know pre COVID we’re all very isolated we’re all very stuck to our phones and all of these different things but if you can feel that support those types of things, that was really helpful and it was really an eye write about this as well it was really hard for me to ask for help. You have a lot of pride and you know it’s really tough but you’re if you’re the spouse, you’re the you’re the caretaker you’re the team captain when your persons ill and you’re taking care of it and you are glad to be giving updates and asking for help because you know you can only do so much later when it’s you. I felt like a hamster that had lost my wheel but I was still running because I was so used to taking care of him and needed to know all these different things. So when it came to taking care of myself, it was a lot harder to ask for help and I ended up posting in this blog a few times like Will someone text me or call me or you know, someone came in took me for a walk? Yes, like a dog. Like she was like I left my dog inside and she was like Rachel, let’s go for a walk. You know, put on your shoes Come on. So I think the biggest thing I had to learn the hard way is just asking for help and knowing that it’s okay not to be able to do it all yourself. That’s the thing about being a caregiver is you, a lot of people show their needs. I say, I think I was about 5050, I would go to a concert every now and then or a friend would come for a cup of coffee to the hospital or whatever. But it’s really tough to realize, this is me now, nobody else is going to be able to do it. You know, you got to suck it up, you have to do it. And within doing that, ask for help. And like today, present day, I have alarms on my phone that I have set to check in with different people that are going through some tough things. So I don’t forget, in my busy life, checking in with them, like I had people check in with me. So those are, I would say the biggest takeaways and things that were said that were helpful and that were not.
Victoria Volk 35:43
I like that last tip. So what is one tip that you would give? Well, I think there’s a lot of tips actually rolled into that too, for other people hurting and going through something similar. What was the best piece of advice that someone? Well, you said your was your brother, like, right? Was your brother then told you to be better or better?
Rachel Engstrom 36:06
Mm hmm.That was a really good one. Um, what was really helpful to me is I had an aunt Tell me, like when I was like six months out, so I would have this countdown, count up, I guess you could say, so each month after his death, like the the day, to the you know, every month after he died, so it’s like may 21, June 21, I got more empowered and excited as the months would go by, because I would be just excited that I’m making it I’m surviving. And my aunt said something like, I was just like, Oh, you know, I wish I could speed this up to do that so hard. And she said, this is so fresh, you have to give yourself time. And I think people don’t realize. So I’m eight years out. And on his death anniversary, I used to have like, my sisters get together or I’d go to a friend’s house, like people that actually knew him, I would spend time, you know, go do something fun. This year. I’m just working. It’s been eight years. It’s, it’s I’m very displaced from him in that within writing about it so many times. But I’ve worked really hard to get here. Of course, he’s dear to my heart. The reason I’m doing all of these things, but I have successfully moved on. Of course, it’s taken a ton of work to get here. But I think that just knowing that, you know doing things on your own timeline, doing what works for you, is the best thing. Sir. I remember watching friends, and Everybody Loves Raymond and Frasier and things like that, and just belly laughing and being like, I can have joy, like really, really realizing these things about yourself, creating these new traditions creating these new things. That’s not, you know, the easiest thing to do, but, but doing that is great, because when you are six months, one year, two years, that’s still really fresh. And I think that having my aunt say that to me, let me know, every, every bit of laughter I had every like those were gems to put in my little bag of I’m making it I’m being successful, those things that it does take it’s like a staircase that takes and you don’t know where the top is, it’s going into the clouds. So I think that hearing that little bit of wisdom helped me rephrase my urgency because you just want to get it over with you want to feel better, you want to zoom into this place. And that’s not really a tangible thing.
Victoria Volk 38:41
I want to bring circle kind of circle back to like all these the different losses that you had mentioned earlier, and like the groups and stuff, and I think it’s easy for people on the outside to make assumptions to that. It was a you know, it’s a loving relationship, right? That Yeah, whomever you lost was a loving relationship, but I just want to feel the need to bring up that sometimes that’s not the case. And so especially if you’re someone that is going to say something like, let’s see, for example, they’re in a better place now. Yeah. I mean, just some of the things that people say it’s like, well, you know, you don’t even know, we don’t know what the intricacies of the relationships are like, right? We don’t know, behind closed doors, what how the relationship really truly was, we know people for the for what they show us, right? And so I just, I don’t know, I felt the need to bring that up that sometimes you can lose a spouse but it might not have been a loving relationship. They might be relieved, because they were being abused. Right. You know, so I just wanted to bring that to attention. I just felt like I had to I don’t know why. Yeah, no, it’s very true. So I mean, it sounds Like, grief has taught you a lot as it does for all of us. Even me, 30 years out 30 plus years out of my own losses, what gives you the most joy, though today?
Rachel Engstrom 40:16
That’s a loaded question. Well, my faith, my faith and knowing that I went through the toughest thing possible. And not that I want more, I’m hoping that, you know, like Sam about to be 39 I’m hoping that the bad stuff happened when I was younger, knock on wood on my fake wood dust here. But that, not that I want bad things to happen, but I’m like, Here I am, hear me roar. I’ve been through the worst thing ever. And since I’ve been through that, I know that I can get other through other things as well, you know, I had, I was eating like ice cream before bed, like, almost every night for a couple weeks, like a couple years ago. And I was sweating at night. And I didn’t know the correlation between like your sugar levels, and you know, then you cover up with covers that, that if you have that before you go to bed, it will make you sweat. And sweating at night is one of the signs of leukemia. So, you know, I’m panicking, like, oh, we’re going through cancer, and I’m going to the doctor, because it’s all these things that you know, from being there. And just knowing that you need to take everything, as it is, as the day, things totally changed. God says, you know, if you make plans, you laughs that those plans, you really can’t pre plan too far ahead. I think that that brings me a lot of joy of living in the moment, being there for what’s going on. You know, I’m a planner, but being able to step back and, you know, check myself on that. Five and a half years ago, I started a job but a new place that launched a new life for me. And two weeks after I started, I had dental surgery took antibiotics that ripped up my GI tract, and I had that I was diagnosed with IBS and a colon disease. Awful as that was because I was very sick for a couple years. I’ve become an amazing chef and Baker. I was good before. So that makes me really happy. Sometimes it’s really annoying because I have to make everything from scratch. But I really enjoy baking I really enjoyed cooking here in Minnesota was 80 of other day it’s been raining, but you know, I’m trying to get out and hike and do those things. And physically, I can’t do as much as I could with digestive things. And I still have endometriosis because I still kept one ovary. But you know, getting out, being outside, walking my dog, the same dog that she’s 10 she just turned 10 that’s been with me I talked about in my book since we got her as a rescue puppy. At four months old, my when my husband was first sick, all these little regular normal parts of life just make me really happy. And knowing that, you know, whatever happens, however, you know, I will gladly take IBS, Nicole and disease because I’ve seen the cancer world I’ve been in the hospital, I’ve seen it all. Being able to I feel like I just have this wealth of knowledge and experience of I’ve seen the worst, I’ve had the worst thing happen and knowing that whatever may come is as much as I hate the cliche, like it couldn’t be worse, it really could. And what brings me joy is to know that the experience that I have can truly connect me with people to tell them I am so sorry, it doesn’t make it easier, doesn’t make it prettier, doesn’t make it more fair, what you’re going through, it’s so tough. And I really I’ve been there. And you know, within this book, I just want to get it into millions of hands. Because when you’re in it, you really do you feel alone, you really do feel isolated. And you know, I’m just really proud of this book, by the grace of God to be able to give people some tips and tools on how to navigate it. And you can see, you know, I have this amazing love of my life and my life went Oh, and then it took a while but it went back up and now I’m I’m just excited to help advocate and tell people, I went through it, I’m okay. And you’ll be okay too.
Victoria Volk 44:21
Is that what you would like to scream to the world?
Rachel Engstrom 44:25
Yes.
Victoria Volk 44:26
That was what that’s you know, really the premise of my podcast and why I wanted to start it too is that the education piece that bring this topic to the forefront and talk about grief, like we talked about the weather make it just an open conversation that we feel we can have with each other and without criticism and analysis and judgment. And in that there’s hope and that’s why stories, you know, like yours and other guests that I have on my podcast. That’s the whole point is to show that there is hope Is there anything else you would like to share?
Rachel Engstrom 45:03
I don’t think so. I feel like I’ve put a lot. There’s a lot on the table for people to think about. There’s a lot on your buffet.
Victoria Volk 45:12
I think just their story people. That’s I mean, that’s how people see themselves is through other people’s stories. And, you know, we all agree that 100% there is no half Grievers. And it doesn’t matter what your losses it’s, it is hurtful to you, regardless of what it is and what caused it. And it doesn’t need to be a big t trauma loss to deeply impact you. And can we do can actually, can we speak to the whole because this isn’t the whole point of you being on but I do feel it’s a topic that actually as a topic has that has not been covered on my podcast, but knowing that you will not be a mother, how have you navigated that?
Rachel Engstrom 46:02
Yeah, um, so I actually looked into adoptions and different things like that. And it was just, I mean, it’s, I feel like it sounds stupid, but the expense of it was something that I couldn’t, I couldn’t afford. And I’m, you know, I’m an aunt, I have four nieces, one of them just turned 15 other day, they’re seven, almost 17 1511 and 11. And I actually was a professional nanny raising babies and things like that. You know, I see Gerber commercials, all that kind of stuff, it’s tough, I had to take some time off social media because I’d seen people with their happy couples and babies and things like that when I was grieving so I think abstaining from those things, it’s smart, because we all compare, you can’t not compare. I do still to this day, sometimes grieve it a little bit. But I also know that the amount of time and energy that I’m putting into advocacy to help other people I wouldn’t have that time if I had a child so this is my baby. Trying to help other people is is my baby so I’m okay with that.
Victoria Volk 47:13
And that’s a beautiful reminder too that the fastest way to help ourselves heal is to put that put our energy to others to feel better probably the quickest turnaround you’ll ever get to feeling better is to focus on others
Rachel Engstrom 47:31
yeah yeah
Victoria Volk 47:33
yeah. Thank you for sharing that.
Rachel Engstrom 47:36
Thank you
Victoria Volk 47:37
Sorry, I put you on the spot it just is something.
Rachel Engstrom 47:36
No no no it’s okay.
Victoria Volk 47:42
And I know I can imagine that people have said all kinds of things, well you can always adapt
Rachel Engstrom 47:49
you can adopt and it’s like I don’t think people realize it’s like minimum like $40,000 Yeah. And you know, I have several hundreds of dollars a month in student loans and you know, all these things it’s just it’s not easy and it’s very I mean the mental health aspect it’s very complicated as well with an adopted child and all of these things and I’ve already been through some really hard things so
Victoria Volk 48:15
Yeah, and I think to like people might assume if you don’t have kids if you’re of a certain age and you don’t have kids we can make these assumptions of well either you can’t or and if you choose not to whatever you know there’s there’s plenty of people out there that choose not to oh my gosh.
Rachel Engstrom 48:41
yeah, I’ve met a couple friends that don’t and it’s just it’s a choice.
Victoria Volk 48:45
and it almost seems more offensive to other people you know that you choose not to but yeah we project Don’t we? We project do Yeah, yes, we’re projecting society. But I hope that through just talking and having these conversations that we can just bring some compassion to and know and leave the assumptions at the door, right? Yeah. Thank you so much for sharing anything else you would like to share?
Rachel Engstrom 49:15
know so you can find wife widow now what? Victoria will have the links, but you can find it on Amazon and it’s in paperback you can actually write in the budget sheet finances all these different things. Or if you get the ebook version, you can actually click on the hyperlinks they will take you to all the different websites to navigate what you need to and then you can find me why footer well, Rachel, wife widow now on Facebook and Instagram and you can ask me questions, anything you want, I’m open.
Victoria Volk 49:43
Alright, and I will put those links in the show notes and you know, the organization that you are currently raising money for that will be over probably by the time this airs, but I will still put the link for that. If you want.
Rachel Engstrom 49:57
Yeah, you can still donate. I’m very Very needed.
Victoria Volk 50:01
All right. Well thank you so much for sharing your story
Rachel Engstrom 50:03
Thank you, thank you.
Victoria Volk 50:005
And remember, when you unleash your heart, you unleash your life. Much love.
Cancer, Child Loss, Grief Stories, Grieving Voices Guest, Grieving Voices Podcast, Podcast |
Faith Wilcox | One Year to Live; Forever Without My Daughter
SHOW NOTES SUMMARY:
On a day like many others, Faith had taken her daughter, Elizabeth, to a doctor’s appointment to investigate Elizabeth’s knee pain.
What was thought to be an innocent visit to the doctor, who suspected the issue was nothing serious, quickly turned the family’s life upside down. After an X-ray and further testing, they learned Elizabeth had Stage IV osteosarcoma, a rare bone cancer.
They didn’t know it at the time, but Elizabeth had one year to live. The last three weeks of her life were on Hospice care. Faith would spend the next 10-12 years of her life grappling with the sorrow of losing her daughter before she felt like the grief had loosened its grip on her life.
The writing she had done while at Elizabeth’s bedside would later become a memoir. It’s about the story of a courageous and compassionate young woman and a grieving mother and family. Faith shares insights into things she learned at her daughter’s bedside, the many stays in the hospital, tips to understanding and absorbing the medical jargon, and all that came after.
What would you do if you knew you had one year to live?
RESOURCES:
CONNECT:
Victoria Volk 00:00
Thank you for tuning in to another episode of grieving voices if you’ve been here before And if this is your first time Welcome. Thank you for being here. And Today my guest is faith Wilcox, and her 13 year old daughter Elizabeth was diagnosed with a rare bone cancer that took her life. faith journey from grief and despair to moments of comfort and peace taught her life affirming lessons, which she shares today through her writing. face. Faith is the author of Hope is a bright star, a mother’s memoir of love, loss and learning to live again, which will be published in June 2021. Faith is also the author of facing into the wind, a mother’s healing after the loss of her child, a book of poetry. A longtime resident of Massachusetts faith leads a journal writing program at Mass General Hospital for Children for patients and their families designed to give participants the opportunity to express themselves, alleviate stress, celebrate victories, and honor their grief. And today, I honor your grief by having you as a guest. So thank you for being here.
Faith Wilcox 01:10
Thank you very much for this opportunity.
Victoria Volk 01:13
So let’s start share the story of Elizabeth with us.
Faith Wilcox 01:18
Of course, Elizabeth was a very happy, outgoing, often Silly child. And she was a star swimmer and the soccer player. And the summer of her seventh grade year, she started complaining of pains in her knees, and, and one knee and after a short period of time, we went to see the doctor, the first doctor did not think there was anything unusual going on. And then a few weeks later, we went to see a a orthopedic doctor who took an X ray. And then our world started tumbling in on us. I wish saved a call very soon thereafter. And we went into Mass General Hospital. And I didn’t know that we were going to see an orthopedic oncologist. But when we entered the room, that was quite a big shock for me. But Elizabeth fortunately, didn’t see the placard on the door that said oncologist, but we could see when we were in the room that we were in a very different kind of setting, because many people had prostheses or some apparent problem. So after three days of diagnoses and a small surgery, we found out that Elizabeth had osteo sarcoma, which is a very rare type of bone cancer, and it’s a very aggressive type of bone cancer as well, because bone cells are growing in adolescence quite rapidly. So it’s a terrible time to get the disease. Listen to this had nine months of chemotherapy and radiation treatments. It was a very, very rugged ordeal. She did extraordinarily well through the whole process. Of course, she did well in her spirits. But of course there were times that were so very hard, just very hard for her to lift her head off the pillow. But she always had an engaging smile. And that lifted my mood and lifted the mood of people under those around her who loved her. She had a great outpouring of support and love, which helps sustain us during these really difficult days. Despite all of the work that was done to help save her, Elizabeth cancer just kept on progressing. And she died in my arms one year after she was diagnosed. One thing that I really love to remember about Elizabeth is that about halfway through her treatments. When we were in the hospital, she would get in her wheelchair, wheeled herself down the hallway, go into rooms and speak with children who had no the arrived on the hospital floor. She would explain procedures to them in a way that they could understand. She took away a lot of their fear. She didn’t have very much energy at this point. And for her to share her meager energy really to help others was quite extraordinary. And parents would come up to me and say, we had so much fear walking into here but seeing Elizabeth and hearing her explain what’s going on has really helped alleviate a lot of our anxiety. We’re really so very appreciative. And this is part of what Elizabeth was she was only 13. But really she started to blossom into a young woman in this process and her compassion for others really grew. And that’s something that’s one thing that I’ve learned through her is that understanding how much compassion can help people in their times of need.
Victoria Volk 05:03
That’s beautiful. I think a lot about my own daughter, she’s 14 now. And she’s walking sunshine. very compassionate and thoughtful of others as well. And so my heart goes out to yours. Thank you, Elizabeth. And I do have a medical ish kind of background. And I am curious. Because actually, there’s someone in my community too, and I’m not sure if it was the exact same cancer, but I know it was a rare bone cancer, but they’re their child’s was in the hip. Was in the hip?
Faith Wilcox 05:40
Yes, It can do that.
Victoria Volk 05:44
I’m curious. When it was, when she was diagnosed, had it already spread so much that that mutation wasn’t even an option.
Faith Wilcox 05:56
They discussed amputation. But what happened is that Elizabeth, when she was diagnosed was already at stage four cancer. We didn’t. I didn’t know that for a little while the doctors would tell us information. Step by step, I think so that we weren’t totally overwhelmed. I mean, we were overwhelmed, but that I know, they wanted us to keep holding on to hope and there was a chance that she could survive it. But it had already spread like to her to her femur and into her hips and into her sternum.
Victoria Volk 06:42
After her while you’re going through this, I know from your information that you shared with me that you do have you have another daughter and so was she, like, how? How did you navigate that as a family that whole year?
Faith Wilcox 06:58
It was extraordinary, extraordinarily difficult. On top of all this, I actually separated from my husband then and went to live with my sister we were our marriage was quite fragile anyway. And I found that he was really not able to help us and provide the support that we needed through this very, very difficult time. So I was in the home with my sister and her husband and her children. So that was very supportive for my older daughter, Olivia. And Olivia and Elizabeth were best friends. They were only 18 months apart in age. Academically, they’re only one year apart. So they went on a school bus together, they played and had recess at similar times. I had lunch at similar time. So they were by each other’s side all the time. And it was absolutely devastating for Olivia to see Elizabeth grow weaker and weaker and thinner and thinner. And she did the best that she could, but it was so hard for her to because she was only 15 at the time. And she had started a new high school which was much bigger than her middle school. And I remember one day she came home and she looked really upset and she said Mom, kids are complaining that their hamburgers, overcooked mean, don’t they understand that there’s so many more things to worry about in life. And Alex, you know, really had been thrown in the deep end. And I did my best to support her. And fortunately my sister Susie did a tremendous amount as well to help support her. She was violets best bedside when she could be. But it was lisabeth spent a tremendous amount of time in the hospital as I did with overnights and again, it was supportive my sister, and I have one other sister as well. And family members that really helped Alyssa Olivia during this time. And it was very hard for me. I felt very torn. I felt that I wasn’t being as present for Olivia as I could be. But it was so critical that I was present for Elizabeth in the hospital. So I I had to make some very, very hard decisions.
Victoria Volk 09:17
I can’t imagine that’s a lot of loss and change for a child for you. I mean, that’s a lot at one time. How many years ago was this?
Faith Wilcox 09:32
Now, this was 20 years ago which and sometimes it does seem like that much time has gone by and other times I can just close my eyes and see Elizabeth and it doesn’t feel at all It feels like maybe a few years have gone by not not two decades.
Victoria Volk 09:49
I can resonate with that. I think a lot of Grievers can, it’s you know, it’s yesterday was 34 years my dad passed and you know, it was a different This year for me, it was just, I’ve gone through an end of life. doula training recently and Oh, just conversations I’m having on the podcast about end of life or about just stories like yours like it this year felt a little different for me. And, and they always do, right. I mean, whether it’s five years 15 or 25. It’s, we evolve with our with our grief.
Faith Wilcox 10:27
We certainly do. And there are times that I’m still surprised, there’ll be something, I’ll see a friend of my daughter’s or I very, in a very loving way got a card from one of her friends who had recently had a baby, but it it, I was thrilled for her. But I also felt so much lost because Elizabeth would have now been 33, and probably would have been at the point of being married and being a mother. And so that’s just reminds me about how much laughs there is when, when a child dies.
Victoria Volk 11:06
What were the ways that others I know you mentioned your sister, and how she supported you, and we’re there for you. And what were there surprising things that came out of this experience that you learned about grief and about yourself?
Faith Wilcox 11:24
I learned that, well, grief can surprise you. There are times that can be so much harsher. And there are times that you can start to feel a little bit better. And I learned some ways to find comfort and peace. And for me those ways were walking in the woods, with my dog or with my new husband, walking by the seashore. Spending time in nature I find extremely soothing. I also do a tremendous amount of writing. And I found that if I can express myself through my writing, even things that I never really wanted to say out loud, the process of putting them down on paper opened up my mind and in many ways sort of released my anxieties that I had. And I could also write about my hopes and my dreams. But it was a bit certainly was a process. And now I know that grief will stay with me. But it is no longer disabling. I can live my life. Now I remember Elizabeth with great joy and great love. And I can go out and I can give to others in the ways that I do in my in my daily life. So I found that grief changes you. It makes you more compassionate. And it makes you more aware of the world and others who are in need.
Victoria Volk 12:52
I agree. I think when you experience the depth of sorrow, and your loss is your loss, the most important loss is your loss. Right? That’s I don’t care what the loss is. It’s always going to be painful for the person that experiences it. And so that can be our greatest teacher or it can be our greatest debilitate her. And I know there’s no there is no timeline degree if there isn’t an I speak about this a lot when it comes to grief recovery. Time heals all wounds, you know, that phrase that everybody knows, is a myth. And but I’m curious in the time that it’s been since that that loss and that you all the change that happened? How long did it take you to pick up the pieces where you really truly felt? Like, no, I really am okay, this time, like I really do. I got this now.
Faith Wilcox 13:56
It took a long time, I would say more than 10 years. It’s hard to say exactly. But I would say probably somewhere between the 12th. And maybe the 13th year, I started to be able to interact with more confidence with people. It wasn’t that my confidence was lagging. It’s just that sometimes people would bring up Elizabeth or they’d bring up something and I would feel I would either feel hurt or I would feel like I was about to cry. And I didn’t want to do that and so many different situations, especially if someone didn’t know Elizabeth and didn’t know her life. So it really took me quite a while until I build up ways as I said that I knew that I could find some comfort and peace. I also had a lot of therapy along the way. And the therapy helped me tremendously. And I learned you know, I wasn’t alone in my grief and I learned that of other people. who had lost children or lost a loved one, and spoke with them. And I sometimes would speak with other people more as a, actually I was more as a listener, and they were speaking to me of their grief of losing their child. And I realized at that point that I’d come a long way because I could listen to them, empathize with them, and not have the same pangs that I did earlier. So it definitely took me more than a decade
Victoria Volk 15:31
In grief recovery too and I have to say this, because for anybody listening, it’s never too soon. And it’s never too late to address our grief. And I walked a woman through a loss she had only three months ago. And so when I think about my grief, 30 plus years out, and it was only like two years ago, that I really addressed mine, I’m thinking, gosh, over 30 years, or 30 years of my life. Hmm. I feel like if only, if only, and there was things that I tried in between and you know, but nothing worked for me, like grief recovery did. So had I said to you, within a year or two years, this will work for you. Do you think you would have been ready at one to two years? Or do you think you would have been open to that?
Faith Wilcox 16:30
I don’t think I would have had the confidence to say that, that some something’s going to work, something’s going to make me better. I always held on to some hope. But it was. Yes, if someone had come to me one to two years out, I would have said, you know, thank you for trying, but I don’t think it’s going to work with me.
Victoria Volk 16:52
So let’s unpack that a little bit. Because I really think that this will be helpful, not only for me to learn how to speak about grief recovery, but also for listeners, because I can’t imagine that pain of losing a child. First of all, I can’t I don’t even know what that’s like, and I’m not going to pretend like I know what that’s like, Is it because you feel like the depth of your pain, like just nothing can possibly just pull me out of this? Do you think that’s what it is?
Faith Wilcox 17:22
That’s a good way of saying the depth of my pain, it felt that. Like, a few limbs were taken off of me. It’s amazing to know, but there’s no word for a woman who’s lost a child or for a parent who’s lost a child. We have widow and we have widower, but it’s almost as though there’s no way to sum things up into one word. And really, our children are, are braided into us, we can’t pulling that out. It’s like pulling two sides of a braid at the same time. It’s very, very, very hard to do. So I think I was living my pain and literally having a lot of physical pain at the same time, too. I understand now that that how much pain I was in emotional pain and physical pain can go hand in hand. I didn’t understand it at the time. But I think that’s primarily why I couldn’t I couldn’t don’t think I could have managed early on.
Victoria Volk 18:32
No, that’s fair enough. I mean, I’m, it’s like the suffering is overwhelming. And as I’ve been talking about recently about suffering, it’s I had an interview not that long ago, and I was talking about suffering and what I shared was your suffering anyway. What if you can suffer and put one foot in front of the other? And I feel like that’s maybe the best message I can give others right now who feel like they’re in this. Like, they’re just white knuckling hope and feel like just nothing. Nothing can take any of that pain away.
Faith Wilcox 19:27
They do like that concept that you’re in pain anyway. So why not? Why not try? Why not put one foot try to put one foot in front of the other? In a way you could say you don’t have anything to lose. Because you If anything, even if you got a whisper of relief, it would be a big help.
Victoria Volk 19:48
Right? Yeah, I wish I would have known you back then.
Faith Wilcox 19:56
Yeah, that would have been special too.
Victoria Volk 19:59
You know grief recovery has been around for over 40 years. Can you believe that? I can’t believe that like it’s, but it’s only recently in the last I suppose, six, seven years maybe that it’s kind of online and it’s gaining gaining more traction. Because before that was pretty much just word of mouth. But I just think of all the Grievers out there who, like you, just just not that you didn’t have hope, because you did, and your daughter taught you that right to never lose hope. And if we don’t have hope, what do we have? So I hope and move your feet. Right?
Faith Wilcox 20:42
That’s a good, that’s a good visualization for me.
Victoria Volk 20:49
So share with us, if you will about the writing, because you’re writing just for your own therapeutic. Write for just for yourself, and then it kind of then evolved into a book or?
Faith Wilcox 21:03
Yes, that’s exactly what happened. I started writing by my daughter’s bedside. She you know, you spend a tremendous amount of time in the hospital, and some time my daughter would be sleeping, or sometime it would be nighttime. Or sometimes our days and nights were so confused, I would write by day I write by night. And I felt that it helped me enormously express things that I kept bottled up inside, there are some things I just didn’t want to say aloud. But I could express them in writing. And I really found that I could write about many of my fears, I could write about my anxieties, I could write about how I was feeling or coping, I could write about how Elizabeth was feeling or coping, I could write about the positive things that came out the friendships that we had the family that supported us tremendously, the medical community, which was enormously strong and supportive, and very, very knowledgeable. And what happened over time, is I also wrote about the process that we’re going through, because there’s so many medical terms, there’s so much information that you don’t understand at the time. And even if you can write it down, just write down the name of the illness or write down the name of the procedures, then you can go back at a different time and say to your doctor, Okay, I understand that this is about to happen. But I don’t really understand why or I don’t really understand what this procedure entails. So just writing it down can help you kind of organize in your thoughts, rather than just be this flood of information. Your your brain can’t sort out that much information that quickly. It’s just impossible, especially in medicine, which is can be sort of like a foreign language. So it helped me ultimately it helped me process what Elizabeth went through, and understand it better. And in time, I would be able to remember through my writings, the good days, the good moments, and it helped me to remember them as I went back and I read them again. And as I started rereading my journals, I said to myself, there is a story here, there is a story of a loving, and brave young person who contributed so much to the world. And there’s a story of a mother standing by her child and doing the best that she can, given the circumstances that she’s in. And there is a story of grieving, and there’s a story of healing. And I thought, if I put my, if I put a memoir together, I hope that one day it’ll help people who are in this process of grieving and give them hope for healing.
Victoria Volk 24:03
About that, and I will actually put the information in the show notes for the book. So let me ask you this, because I recently, as I mentioned, just went through an end of life. doula training, which is a person who sits with someone guides them in hospice care, like helps is kind of the advocate and the bridge between the hospice care team and the patient and the family. And so was hospice. Never a topic of conversation. That’s me being curious again.
Faith Wilcox 24:38
Hospice was a topic of conversation. And my daughter resisted it for a little while we had she had finished her treatments. We very sadly knew what was ahead of us. And Elizabeth at maybe three weeks before she died, said sort of whispered to me that She was ready for hospice care. So hospice workers would come to our house about two times a week. And they would make sure that her pain medications were adequate. And they’d talk to her and make sure she’s comfortable. But it really was at the very end of her life, the very last day that hospice was enormously helpful. They would quietly come and go out of her room. And they just they’re calm presence was very, very helpful to us. And toward the end of their life, they gave her mom, they gave her oral morphine. Because her, her breathing was just slowing down enormously. So hospice was very helpful to us.
Victoria Volk 25:50
Did she ever speak have conversations with people that had passed before family members or anything? Again? This is me being curious.
Faith Wilcox 26:00
Do you mean did she connect with someone who had already died?
Victoria Volk 26:03
Yeah, like in her would talk about anything like she did.
Faith Wilcox 26:08
One day she said to me, Mommy, I saw George. And George was a friend who was our age who died in his early 50s. And George and his wife, were unable to have children and say, they didn’t literally adopt, but they almost adopted my two daughters, because they just adore them. And we had many, many happy days, having lunches together or going swimming together or hiking together with George and his wife. And when she said, Mommy, I saw George, I was floored. Really, really floored.
Victoria Volk 26:45
Was that your first ever experience with something like that?
Faith Wilcox 26:48
Yes, it was.
Victoria Volk 26:51
Did. I’m curious too. Did that bring you comfort?
Faith Wilcox 26:55
It did. It did. I thought. And George had a tremendous sense of humor. So I thought, well, if someone can, can bring her gently to the next place, who would be a wonderful person.
Victoria Volk 27:09
Just yesterday, March 31 episode came out on my podcast, and it was with Dr. Chris Kerr, who has been researching end of life experiences. And phenomenal episode, if you have not listened to it, it will. But it talks he talks a lot about the medicalization of end of life. And just in talking with him, and through the end of life, death doula training I had, it’s really changed my perspective on end of life and how it can be truly a beautiful, life affirming experience that can bring you much closer to your loved one than you thought was possible. Yeah, so I just wanted to share that episode with you if you haven’t listened. What would you like to screen to the world? In the past or recently in wish people knew about your grief?
Faith Wilcox 28:15
That grief goes on for a long time. And that there are days especially early on that people would get, I could tell uncomfortable being around me. And I would want to say to them, it depended if a how well I knew them. Just talk to me. Talk to me about Elizabeth. Talk to me about Olivia. Don’t pretend she didn’t exist. Don’t pretend that we just didn’t go through this huge ordeal. Because talking about Elizabeth would bring her back to me. And we could remember Yes, difficult times. We could also remember that happier times. Like let’s say when someone’s daughter was in third grade with my daughter and they used to play or have overnights remember her Don’t, don’t get so awkward around me that you can’t speak of her.
Victoria Volk 29:09
It’s almost like that indifference. And the silence is even more painful than saying the wrong thing. Made exactly you know. And like you said, Let this be a lesson to you listening. anyone listening. just acknowledge the person share a memory of them if you don’t know what to say, share your favorite memory of that person or what they brought to your life right when that have been just brought you so much peace just to know how she touched each person that you talk to right?
Faith Wilcox 29:46
Absolutely. Because then not only do you go back in time and remember much happier times, you know that your child is living on through memories and someone who she touched in her life. And that’s, that’s a blessing.
Victoria Volk 30:05
I want to share this too because this brought to light something I touched on before in different episodes, but I think it’s important to bring up again and that as a supporter of a griever or someone who like a acquaintance or a friend that you know, you meet on the street who you know, lost somebody close to them, like a child, in your case, follow the lead of the griever right? So if you’re sharing a story, reciprocate that if the person if the griever like yourself if you’re feeling like you know, it’s not like you got to look at body language to I think, you know, if you’re, if you’re kind of closed off and you’re not, like opening up or not really talkative Well, maybe it’s maybe it’s not, you know, because I think people get afraid then to upset you as a griever. He like they’re afraid to upset you. And so, but I think it’s just follow the lead of the graver. And I don’t know that any graver would be upset about a happy memory? You know, I don’t know.
Faith Wilcox 31:14
No, I can’t imagine that. I think I think everyone would be happy to remember to remember something in their past. And as I say, remember how your child touch someone’s life,
Victoria Volk 31:24
Or to learn of a certain event or a certain thing that they said or a specific, like something specific that you wouldn’t know otherwise? You know? Yeah, I just think sometimes we just fear just keeps us so closed off to connecting with, with ourselves and with gravers that, you know, we meet or Grievers that we know or what have you. So what brings you the most joy these days?
Faith Wilcox 31:59
What brings me the most joy is being with family in my new marriage. I also have grandchildren, and they bring me a tremendous amount of joy. I love I love being with children. I love watching their silly antics. I love watching how they grow, and they learn and they’ve learned about life and see their bonds growing with their family and their friends. And how they sometimes start to step out into the world. And then come come back and and ask for advice. So I, my grandchildren bring me huge amount of happiness. And I also love to spend time with my daughter, Olivia, I love to walk in the woods, or walk by the sea. Just spend time in nature is very, very comforting and reassuring to me, I also love to garden, read and write.
Victoria Volk 32:59
That’s beautiful. Find What brings you joy, right? do more of that.
Faith Wilcox 33:04
Absolutely.
Victoria Volk 33:06
Is there anything else you would like to share?
Faith Wilcox 33:11
I think to be gentle with yourself. There are times that you could say to yourself, Oh, come on. Now I’ve got to be able to be ready to go out to dinner with friends. Or maybe I want to go to an event. Go watch a baseball game. Or sometimes you have an invitation and you think, okay, maybe now I’m ready. And then you hesitate and don’t go, it’s fine. Just be very gentle with yourself. If you’re not feeling up to accepting an invitation, it’s fine. Do what works well for you don’t push yourself into any situation that feels potentially uncomfortable. And your friends will understand. They will they might take them a little while to begin to understand but they will. And you can have good conversations with them about it. And through opening up the conversations they will they will begin to glean a little bit about what it’s like to suffer as I was suffering. And then once you feel a little more confident do that stepping out into the world. And no, no, ultimately it’s going to be okay is going to be very different than what you imagined. But life is good. And there are many ways that you can find joy in this world.
Victoria Volk 34:36
Yes, I believe that too. And you made a very good point in that you kind of coach people how to be with you. You know you kind of have to you might have to be the one as a graver to open up that dialogue in that conversation and to share what you need and to share how others can support you. I will add As a supporter of a graver, don’t stop asking, right? Don’t stop asking, Hey, do you want to go catch a movie? Just don’t stop asking. Even if it’s no 20 times. Maybe it’s the 21st time. You feel like you know what? Yeah, let’s go. But let’s just go Yeah, let’s just go I got this. Let’s go today, or go for a walk and you don’t have to talk. Right? Or you can just have someone walk with you.
Faith Wilcox 35:30
Yeah, absolutely. Just have someone be by your side.
Victoria Volk 35:35
Yeah, we overcomplicate stuff a lot.
Faith Wilcox 35:39
That’s true.
Victoria Volk 35:40
Yeah. Thank you so much for sharing your story. Is there anything else?
Faith Wilcox 35:47
No, I think I think I’ve shared what I was hoping to share. And I just, I thank you for this opportunity. And what people who are grieving to really hold on to hope is in time. And with counseling and with help, it will be okay.
Victoria Volk 36:03
Yes, with community we don’t, we don’t heal on an island by ourselves. And oftentimes, that’s what grief makes us feel like and that’s why my, the artwork for my podcast is me with a megaphone on an island, right? Because that’s how we feel when we’re deep in grief. It’s like, no one’s listening to me. And I feel alone and isolated. And that’s what we do. That’s what happens. Because, you know, we don’t know what we need, necessarily all the time. And other people are afraid to make us feel worse, or they do say the wrong thing. And that makes us feel worse, or you know, so it’s such a difficult thing to navigate. And that’s why I started this podcast to bring people on, who have been there, done that, and bring hope, because without it, what do we got, you know, so thank you for sharing your story.
Faith Wilcox 37:00
Of course. Thank you so much for this opportunity.
Victoria Volk 37:03
Where can people find you if they like to reach out to you?
Faith Wilcox 37:07
Sure, you can find me at faithwilcoxnarratives.com. I have a website there, I have a way to contact me or otherwise just simply at my email at faithwilcoxnarratives.com.
Victoria Volk 37:24
Alright, and I will put that information in the show notes. And remember, when you unleash your heart, you unleash your life. Much love.
Grief Stories, Grieving Voices Podcast, Takeaways and Reflections |
Takeaways & Reflections | Does Everything Happen for a Reason?
SHOW NOTES SUMMARY:
Does everything happen for a reason?
How much of our lives is left to chance, and how much of it is a reflection of our choices?
I explore these questions in this week’s episode and more. Larry and Michelle shared their stories of love and loss and, although their stories of grief are vastly different, there are a few things incredibly similar in their stories: The willingness to love and be loved.
Listen to this week’s episode and reflect on the choices you’ve made, the chances you’ve taken, and the beautiful gifts that you’ve gained as a result.
RESOURCES:
CONNECT:
Hi, there. Thank you for tuning in to grieving voices today. This is Episode 57, takeaways and reflections. And today I’m going to be talking about Episode 55 with Larry Indiviglia called Choice and Chance and, Episode 57 with Michel St. Jean Widows Don’t Sleep: Walking the Path of Cumulative Loss.
Making Choice to Take a Chance
As I was thinking about these two episodes, the one thought that came to my mind was, especially when talking about Larry’s episode is, his life by choice or is it by chance? And especially in grief, many people may say that everything happens for a reason. And as a griever, you don’t want to hear that. You don’t want to hear that there’s some reason why your loved one is no longer with you. That’s the last thing that you really want to hear. Have you ever thought about though how the moments that happen in your life, how they come to be? So much of what we experience is because we made a choice, because we chose something that had an impact and there’s cause and effect. So you make one choice, and this thing happens, you make another choice and this other thing happens. But like in Larry’s story, it really revolved around making the choice to take a chance. And for Larry it was taking a chance on love. But if you really think about it aren’t all of the losses we experience in our lives, due to making a choice to either commit to that person or move to that place or befriend that person, it all comes back to taking the chance, making the choice and taking the chance. And like I said, whether that be love or that be a friendship, or a move. We all make these choices. Larry shared how he took a chance on love and ended up having an eight month relationship with a woman who ultimately passed away of cancer. And he would do it all over again in a heartbeat. And I think for any Grievers out there, I’ll speak for myself, I would rather have had that experience of loving that person and being loved in return than never at all.
Freewill is Having the Ability to Choose
And especially as a parent, which is the greatest love I think anyone could ever possibly have the privilege of experiencing. I don’t know what it’s like to lose a child, but I do feel for myself. And I think any parent would say this, that you would rather have had that child in your life than I’ve never had them in your life at all. If they were to pass away, if you were to lose them. Love in all its forms is a great teacher for us. And that’s where I think a lot of people can use the phrase, “everything happens for a reason“, and I struggle with that. I struggle with that phrase because I don’t feel like there has to be a reason for us to to grow or evolve. But I do feel like we are presented with experiences that shaped and challenged us, and it’s what we decide to do in those moments. It’s what we choose to do in those moments. It’s essentially what freewill is, having the ability to choose. And we can choose to grow from those experiences, or we can choose to lay in decay, like one of my future guests shares in her episode coming up, when you lay, you decay. I’ve never forgotten it when she said it. And so Larry shares his love and loss.
There are No Stages of Grief
And, as does my other guest, Michelle St. Jane, in Episode 56, she took a chance to fall in love, she first took a chance to leave her family of origin to go all by herself, I believe, 16-17 years old. And to see the world, she wanted to see the world, she ended up falling in love, again, took a chance, ended up getting married and having children with him. And he ended up passing away, very suddenly, and unexpectedly. And there was one part of her episode that really stuck out to me something she said, “I hear your heartbeat”. When she’s talking about her husband, she said, “I hear your heartbeat but you’re already gone”. It’s in the hospital realizing that, although he’s there, physically, His heart is beating. But he’s already gone. He was brain dead, he had an aneurysm in his lungs. And she had to make the choice to take him off life support. And raise a nine- month-old, a five-year-old, and a six-year-old on her own. And I know many women end up in this position, many husbands, and many significant others end up in this position of you know, of loss and then are having to raise children or even just carry on without children. It’s like, there’s no manual for that. There’s no manual for grief. And she said, “grief helps us to know the direction we want to go in”. And I completely agree if we’re open to it, but we have to be open to it. We have to be open to what it’s telling us, to what our bodies are telling us as we’re going through this emotional roller coaster. I do want to highlight one thing she said and she mentioned during her episode, she mentioned about the stages of grief and I just want to reiterate that there are no stages of grief.
I actually have Ken Ross, Elisabeth Kubler Ross’ son, who will be on my podcast coming up. And we’re going to tackle this very topic of the stages of grief because it’s as mother’s work that was misinterpreted about the stages. So anyway, I just want to reiterate that there are no stages. Her work was about terminal illness and these phases that people go through when they’re diagnosed. And that’s not saying that people don’t have anger and they don’t have denial and all these things in grief. There’s just not this linear path of grief in the form of stages. Another common thing that Michelle brought up during her episode that many Grievers experiences around the same time every year, when that loss occurred, you have these same familiar feelings that come out of the woodwork. They can appear out of nowhere seemingly, and she said every year or three days in October, when her husband had gone into coma. Even 25 years later, she said she still had those same angry thoughts and feelings and it was pulled back to the past. Again, every year, she had a choice to be pulled back to that past again. And eventually she did find a way to not find herself in that position again. But again, it comes back to making a choice, she had to make a choice to look at another October in a different way, experience October in a different way. And it was through this cumulative healing, all these different things she was doing that helped her find her way out of that rut every year.
Every Loss is Cumulative
And so I really encourage you to listen to her episode on how she managed to find her way through all those October’s and where she’s at today, because I think it’s a really great illustration of a woman who has endured many different types of losses, which are cumulative, every loss, it’s cumulative, it stacks up on each other. And we have an opportunity to learn from these things. And it’s not to say that happened for a reason, so you could learn these lessons. It’s just life, it’s just life, it seems like such a simplified thing to say, like this just life, like there are so many people I’ve met and come across who will say that death is just a part of life. Well, that’s life, right? And some of the people say that, truth be told, haven’t experienced a lot of loss or trauma either. And so, we have to be careful, because words matter. The words matter that we say, especially to Grievers and around Grievers, and about grief.
I want to circle back to Larry’s story about love and loss because there are many people who, if presented with that same situation would have turned the other way, would have walked away. And how about the love of his life who took a chance to go on a dating website knowing full well that she had cancer and taking a chance in doing that. Knowing her worth as a human being despite what she was going through with her health, that love was the answer, love was something that could carry her through her days, love was the antidote to what she was going to experience. And I commend, first of all, the awareness of knowing your own worth as a human being, because we’re all worthy of love, right? Regardless of what we’re experiencing, who we are on the outside what we look like, we’re all worthy of love, even if we have stage four cancer. And so I think it’s incredible that she found somebody who was willing to walk beside her in that. And so I commended Larry in that episode, because it takes a lot of personal commitment to stick beside somebody through their good days and their bad days when essentially you really don’t know each other really well. Right? It’s not like they were married for 15-20 years, and then she developed cancer diagnosis. So I just found the story itself pretty incredible that he was willing to go extra mile with her in the love that he wanted to give her, and she to him. I think it’s a beautiful thing.
To Love and Be Loved in Return
And if people who are going through something like that can find the worth in themselves, to take a chance on themselves, and then find someone to take a chance on them. I think it’s an absolutely beautiful thing but it makes you really think about if you’re not someone who is opening your heart to love. Why is that? I mean, there’s fear and rejection. And certainly I’m sure many people or she had people rejecting her, when once they found out she had cancer, or maybe that was what she led the conversation with. And they were like, I’m gone. Or maybe she gave them an out. Maybe upon meeting or talking, she said, “Hey, I just want to let you know I have stage four cancer, totally understand if you don’t want to, you know, walk with me through this“. I’m thinking back. And I’m just curious how many times that happened. But if you’re going through cancer right now, if you’re experiencing a diagnosis now, and you don’t have love in your life, maybe let this story inspire you to take a chance on yourself, to allow somebody to take a chance on you, too. One of the things that Larry said was “you can’t unconditionally love, if you don’t love yourself first“. And I do think it probably takes an incredible sense of self love, for someone to have that love to give someone that you kind of learn to know, through cancer. So, I encourage you to listen to that episode if you need a little inspiration in the love department. And even if you don’t, it could be friendship, too. You don’t have to walk away from a friendship if someone gets diagnosed with cancer because you’re scared, or because you’re fearful, you don’t know what to say. Just be honest about those things. “I don’t know what to say, I’m afraid what’s going to come up for me if I sit with you through this?“, Because that’s natural, that’s normal. Does it take a special person to sit with someone through the most trying and challenging times?, Of course it does. Is it especially challenging too during cancer treatments and all of these things that someone is going through, plus the emotional roller coaster for them? It is, absolutely it is. How beautiful of an experience it can be and what you could miss out on. Larry said “the ability to choose his hope for the future“. That is the hope, the fact that you have the ability to choose. And I’ve said it several times in my latest posts on Instagram but grief makes you feel like you don’t have a choice. But we always do, we always do. Because even doing nothing is making a choice. The greatest thing you’ll ever learn is to love and be loved in return. And I think that was a great message from Larry’s episode. And I will end it there.

P.S. I want to share that I have a new energy quiz. You can learn your energy type. And if you go to my website, https://theunleashedheart.com, the link is in the show notes. You will find a link to the energy quiz under the Reiki tab. So if you go under services, and then Reiki and then you’ll see energy type, just click there and to get started to find your energy type. It takes less than two minutes and you get a handy dandy document to download that helps you up level your energy and find also what nurtures and leaks too.
If you are enjoying the podcast, please consider leaving a review or a five star rating. If you want to listen more inspiring grieving stories you can visit here. Or you can visit www.theunleashedheart.com for more information. If you have grieving stories that you wanted to share you can message me at [email protected] and you can also find me in Instagram and Facebook. If you liked this episode, please share it because sharing is caring. Until next time, when you unleash your heart, you unleash your life, much love.
Child Loss, Grief Stories, Grieving Voices Guest, Grieving Voices Podcast, Pet Loss |
Sherrie Dunlevy | Infant Son Death & Pet Loss: A Story of Refusing to Lay & Decay
SHOW NOTES SUMMARY:
As a former news anchor, Sherrie Dunlevy delivered bad news on a daily basis.
However, it was the news of a personal matter that would shatter her heart. Sherrie knew she would be delivering her son who would be born with complications and quickly swept away for medical care immediately after being delivered via caesarian. She and her husband would then spend the next 29 days holding their son until he passed away.
The years that followed led her on a path of trying to understand why people abandon those who are grieving. And, set the wheels in motion of a journey that would lead her to write a book and doing everything she could for herself to not live the rest of her life as nothing more than a grieving mother.
Wanting more for her life, she’s found a way to live fully into who she was called to be, and even after the death of her beloved pet during the pandemic, learned the power of addressing and feeling the grief when it comes.
RESOURCES:
CONNECT WITH SHERRIE:
Victoria Volk 00:00
Thank you for tuning in to grieving voices. Today my guest is Sherry dunlavy. And she is the author of How can I help and founder of graduating grief and host of the graduating grief podcast. Thank you so much for being here.
Sherrie Dunlevy 00:18
Victoria, it’s my pleasure.
Victoria Volk 00:21
And today is a very special day as we are recording because what brings you to grieving voices is the loss of your son.
Sherrie Dunlevy 00:30
Yes, today would have been my son Brandon’s 22nd birthday.
Victoria Volk 00:35
So this is a very special full circle podcast moment.
Sherrie Dunlevy 00:40
Yes, absolutely. Kind of surreal.
Victoria Volk 00:44
I’ve had my own full circle moments lately to tomorrow is 34 years. My dad is gone.
Sherrie Dunlevy 00:52
Oh, my.
Victoria Volk 00:54
Yeah, yeah, no. Is it tomorrow? What is the date today?
Sherrie Dunlevy 00:56
29th
Victoria Volk 00:58
31st on wednesday, actually. So thank you for being here and sharing your story about Brandon. And so let’s start there.
Sherrie Dunlevy 01:10
Okay. Well, 22 years ago, my husband and I were headed to a hospital to give birth to our second son, Brandon. At 18 weeks into the pregnancy, when we went for our first ultrasound, we that’s when we realized that there were complications. So it was a very bitter sweet. No, it wasn’t a bittersweet day, it was a very scary day, because I knew that as long as he was inside of me, he was safe. But all bets were off beginning today. And I’m just really emotional today, I guess. Because I don’t want to have happy memories of this time, we knew there were complications, we knew they were going to whisk him away, I knew I was never going to get to hear him cry, I was never going to get to hold him, they whisked him away to another Children’s Hospital. I mean, I had nine, nine doctors, you know, in the delivery room with me, and I had to have a C section. And so, you know, I knew all this going into it. And so you know, you just all bets were off. And, and my son lived 29 days. So it was just very, I don’t have those happy memories that most moms have going into labor, I didn’t even get to hold my child that day, you know, I got to hold my child as he was dying. So I think that’s that’s what makes this birth, these birth days a little bit more different than if you’ve had someone and you’ve been able to love them longer than what we have, or you’ve had the experience of welcoming them into the world. So I don’t really have a lot of fond memories. So I don’t look back a lot. But these anniversary days, kind of you have you do look back, I glanced back. It’s too painful to stay back there. And there’s no reason to because it doesn’t serve any purpose other than extending suffering. You know, I live now in this moment. And so it’s just very challenging to process all of this. I mean, my son’s life and death has has had such an amazing impact on my life and transformation that has come from it has been absolutely amazing. But I really don’t give myself the time or the pause to look back except for these few days, one in March and one in April when he was born and when he died, that I allow myself to go there. That makes sense.
Victoria Volk 03:59
No, it absolutely does. And I think that’s an aspect of grief that even I have forgotten or maybe didn’t give much thought to, in that. You can have a loss that where you don’t have those fun memories at all. Right? And in a way that’s a lot of those fond memories are what kind of bring you peace or can bring you peace. Right? Right. So I’m warm, I’m holding you in a hug today. Thank you. And I know we talked just very briefly before we started recording that you plan to really take today to 10 your heart and give yourself the time and space to do so and it’s very important. And
Sherrie Dunlevy 04:55
It is but you know I mean like I was saying I’m gonna give myself some time. It’s some time, I have a feeling that subconsciously I over schedule myself on these days. And I just wonder if that’s a way to like say you don’t have to think about this if you don’t want to, or that you don’t have the time to think about this. I mean, like I did, I actually added to my schedule this morning, like, and then I’m thinking, what are you doing? And then I’m thinking you knew exactly, I know exactly what you’re doing. So that’s when I decided I really cannot add anything else, I really need some time, some space to just process this a little today and spend some time with it. Not a lot of time, not a lot of time to dwell, but just process the feelings that I’m feeling, you know, allow those to come, they’re legitimate.
Victoria Volk 05:52
And then let them pass. Right? Yeah, instead of stuffing them down with work or other means that we do and the body. The body knows, I was just talking with someone not that long ago, and even 20. Some years later, it’s like, around this time every year, yep. And all these years later, you know, you find yourself, you know, maybe getting rundown, or, you know, what shows up differently for everyone. But I think it’s a, it’s that to have that awareness, though. And to maybe even plan for it. Vance, there was one woman who shared how she had this, it’s like a daily book, just kind of really just to give a little hope and insight and about grief, but it was it can’t remember the title of it. But she said that’s in its 365 days, you know, a phrase or a saying every day, and she said that’s really, really helped her in her. She was a widow, right young children. But she said that was really helpful for her, but she found herself having to plan, you know, for that time of year. And so, what, especially when those in those early days, what were some of the things that kind of added to that grief, the fact that you didn’t have the any joyful memories and things like that. But any anything that people said, or comments or ways that people didn’t support you that you hope they would have.
Sherrie Dunlevy 07:39
Yeah, I mean, there were. I was a television news anchor at the time. So I not only went through this, but I went through this all publicly, right. And so it was it was very, it was very challenging. And it was it was very surprising. Because there were people who showed up for us in a way that was indescribable that really I did not know who they were they they knew who I was, but I did not know who they were. And so that was surprising to me, but was also surprising to me were people who were closest to us who were not there for us. And in fact, I had one instance where one of my closest friends, I thought she was gonna say to me, I’ve got a sitter for the kids. Hang on, I’m coming up. You know, I’ll be with you. We’ll get through this together. And instead, I just couldn’t believe my ears when she said I’m sorry, I can’t do this. And she we ended the conversation and and I didn’t hear back from her. And then one day, six years later, the phone rings and it’s her and she just kind of wanted to catch up. I’ve been thinking about you even on my mind. I was we first of all, like, that ship has sailed. We you know, I was kind of like, honestly my first reaction was like you’re kidding me, right? Like you are seriously kidding me. I was kind I was not rude. I probably was a lot more quiet than what I was. But then when I came off of that call, I really started to think what was this about? Like, why all of a sudden and you know, and so that started me on my journey of wondering why people would abandon you when you need them the most and maybe they don’t even see it as abandonment but that’s what it was. Maybe they just see it as they didn’t reach out you know, but it was and I came up with three scenarios. The first one was that maybe it hit too close to home. You know when you have children and you are giving birth to children and and you’re one of your dearest Friends looses one of theirs, you just automatically think about, oh my gosh, what if that happened to me, and it’s just so frightening that you can’t even think about it and like to even address my sadness makes it too sad for you. The second thing is that maybe you just have never, ever had to deal with this before you don’t know what to do or say, it’s never really been modeled, no one in your life significant has died, or that you know, has died. So you just truly don’t know. But I think the more common one truly is that people really want to do or say something, they’re just afraid it’s going to be the wrong thing. They’re going to screw it up somehow. And so better to be safe than sorry, better to just not say anything, then say the wrong thing better not to do anything, then do something that they think we’ll bring on more pain. That being said, that’s when I started, I don’t know why like this furious search for resources. Because I just kept thinking, there’s got to be something out there to help people with this, this is just crazy, right? And I started to Google it. And I would go on Amazon looking for it. And I would want every time I was going to go past the bookstore, I would go in and look for a book. And I felt this calling and literally like, I don’t know that I had this voice. But there was this knowing voice that said to me, if you’re you can look all you want. But until you write it, you’re not going to find it. Oh my gosh, I don’t write books. You know, like I don’t do this. But the thing I always tell people, the thing between the difference between a good idea and a calling is that the calling doesn’t stop. And it just kept calling me and calling me and calling me and I don’t know how to write a book, well, then, how can you find out how to write a book, you know? And so it just every time that I said yes, another door opened and another door open and another door open. So I really do feel like it was divinely guided. But needless to say, many years later, I wrote a book called How can I help your go to guide for helping loved ones through life’s difficulties. And it is that resource guide that helps all three of those people know what to do and say, to help those that they love and care about go through difficult chapters in life, whether it’s the loss of someone they love through death, whether it’s divorce, whether you’ve just been diagnosed with something that’s terminal or chronic, whether you’re had to quit your job to, you know, take care of a sick child or a ailing parent, whether you’ve lost a job, whatever the scenario of loss is, what can you do to help and support your friends during this time. And these aren’t just my suggestions. Now I realize oh, okay, that’s why you were on television and a reporter, you know how to interview people. And so I interviewed people who’ve gone through all these scenarios, because I found out that this isn’t just death, this is any difficult chapter in life. Some people are there for you, and some people just aren’t. And so I wrote this book, and I’m very proud of this book. And it’s a number one bestseller, and I love this book, and I love talking about this book. But this book is not I was hesitant to release the book because I didn’t want the book to feel like it was pointing the finger at people. I don’t want to point the finger at people. It’s not about that at all. It’s I know you love your friends, I know you want to support them. So I know you’re scared. Okay, so this isn’t about you. This is about them. So let’s let’s make that mind shift first, that mind that that change that mindset, and then let’s talk about what we can do that will really help them. Because that’s what I wanted to know, when I interviewed all these people, what was it that your friends and family did? That was helpful to you? That they gave you what you needed to get through this? And what were some of those unique things and what were some of the things that maybe weren’t so helpful because I didn’t want to say wrong. Because I want grieving and hurting people to realize that sometimes your friends will say things that say sound bizarre that that could be offensive. But I asked the hurting person to take some pause and extend some Grace is the intention of their friend to hurt them, or is the intention loving and it’s just awkward, right? Because we don’t know what to do and say and they’re just trying to pull a rabbit out of it. To make you feel better, right? Or they’re, they’re relying on a cliche to make you feel better. I mean, we all know that, you know, they’re not in a better place we, because we feel their best place would be with us, right? But I just really chose during that time not to get all weirded out over the awkwardness of what people say, because I just feel we’re awkward because we don’t talk about this enough. So that’s kind of why I do what I do so that I get the conversation started. And I say, Listen, this is why we’re awkward. So let’s start just stepping up and doing this stuff. And do it afraid. And, you know, extend grace to one another for heaven’s sakes.
Victoria Volk 15:45
Yeah, you speak my language. You know this because I’m, you know, as a grief recovery specialist, and I know that you’ve gone through grief recovery yourself. And my mission is the same. Let’s talk about grief. Like we talked about the weather. That’s, you know, the podcast was my calling. And that’s why I have people come on, like you to share what was helpful. What was unhealthy, you know, what was unhelpful? Same, same idea. So we speak the same language? Yes, for sure. Um, so let’s speak to that the grief recovery, if you don’t mind for a moment, in when you discovered that and how it helped to transform your grieving experience?
Sherrie Dunlevy 16:29
Well, you know, I came late to the party, about grief recovery method. Actually, it was in the process of writing this book. And I had something I had a coach that was coaching me in my business. And he is, uh, he asked me if I knew what a clairaudient was. And I said, No, I don’t. And he said, a clairaudient is someone who receives messages. And the last two times we’ve met, I’ve been receiving these messages. And if you’re open to it, I want to give you this message. And I said, Okay, and he said, I’m just being told that until you deal with your grief, and you know, none of this, none of the things that we’re working on now are going to work. And I said, Who did you talk to, because I hired him as a business coach, he had he, he knew I was writing a book, but I never told him what my book was about. And I didn’t in in, he just had no way of knowing, right? I thought he had a way of knowing, but I’m like, Alright, and so he said, You know, I have a friend who coaches this, and I would be happy to introduce you. And so she was a grief recovery method. I don’t know what you call yourself, coach, facilitator, whatever. And I met with her. And it’s so funny, because my grief was two pronged. My grief was, of course, not dealing with the grief of the loss of my son, Brandon. But my son, my surviving son, Trey, was graduating college and leaving, graduating high school and leaving for college. And so I was losing another son, technically, right? in a different way, of course, but I had just devoted my whole life to being his mom. And this was my mission now. And so it was just very, I was like, Oh, he’s right. I do need to deal with this. And once I found out about what the grief recovery method was, once I got the grief recovery method Handbook, once I went through the process of oh my gosh, this is like, these are the most amazing tools. And I think one of the things in the earliest chapters was, you know, if you had a heart problem, you would be going to the doctor to take care of this. Now what is so different about your grief? And truth be told, you know, when I had my first son, Trey, I had postpartum depression. And so when Brandon was born, and he was in my doctor, I’d already known that I had gone through postpartum depression, and he was critical. critically ill. Well, automatically the thought was, we want to get you back on the antidepressants. But the thing was, is that I was on them for 13 years. And I kept thinking, I know it’s down there. I could feel it. I could feel it in me, but I had I could not bring it up and bring it out. I had no way of doing that. And it was just weird. So I just, I just carried it with me. It was it was below the surface. At the time I was doing the grief Recovery method though I have come off my antidepressants. So it was just like perfect timing. Because I was able to get there, I was able to get it. And I was able to extract it. And I was able to look at it. And I was able to deal with it. And then I was able to release it. And it was the best gift I’ve ever given myself.
Victoria Volk 20:25
And it is the gift that keeps on giving.
Sherrie Dunlevy 20:29
Yes. And yeah, yes, because the tools are always there. The tools are always there.
Victoria Volk 20:35
And I want to touch on to something that I mentioned when I talk about grief recovery is that the sadness doesn’t go away. You know, your son still has not been with you. That doesn’t go away. No, it is, but it doesn’t have the impact of it. Right? is greatly lifted, maybe reduced. Maybe even the impact is lifted and removed.
Sherrie Dunlevy 21:03
The pain is pain.
Victoria Volk 21:05
Yes. The impact of the pain, like the crippling emotional pain.
Sherrie Dunlevy 21:11
Yes, yes, pain is lifted, you are able to like I said, You know, I don’t have you, it doesn’t like what I say when I started graduating grieve, it doesn’t mean that you’re never ever going to be sad again. And they’re like, I got this I’m good and never to be revisited again. It just means it no longer has its power over you. It doesn’t not have the power to cripple you and take you under and keep you under and hold you under any longer. You know how to get back to the surface. You know how to see the sunshine, you know how to bask in the sunshine, you can seek your joy again.
Victoria Volk 21:55
It is possible.
Sherrie Dunlevy 21:57
It is that’s what I want people to know it is possible, but you have to choose it.
Victoria Volk 22:06
What would you like to scream to the world. And wish people knew about your grief?
Sherrie Dunlevy 22:17
Well, here’s what I’d like to scream for the world. Every life no matter how long or short it is, can make an impact. And my son lived 29 days and here 22 years later, he’s still making an impact. So what I want to scream to the world is your life can make an impact too. And the longer you are imprisoned by your grief, the less impactful you can be, the less you can make your impact on this world.
Victoria Volk 22:57
I 100% agree. 100%.
Sherrie Dunlevy 23:01
That’s what I want to scream is that I had to realize that my son’s life and death was a chapter in my life. It wasn’t my life. It wasn’t what defines my life. It’s not the label, I’m going to give myself the rest of my life. I am Brandon’s mom. I am tres mom. I am Rob’s wife I am Cherie, I am an author. I wear many hats, right? Why do I want to hold on to grieving mom as the total definition of who I am. I don’t want to get you know, I’m I’m a believer. I don’t want to get to the end of my life. And God say Sherry, would you do with the 5060 years I gave you after Brandon died? And I said, Well, you took my son and I laid in the fetal position and cried the rest of my life. That’s like burying your talents. You know what I mean? Like, no, I gave you this life. Why didn’t you do anything with it? Right? At least help someone else that’s there that has gone through it. Right? So I, I don’t not that I necessarily felt responsible for other people and their loss. I don’t. I just feel that I’m supposed to be a light. My life is supposed to be a light shining on hope and healing. That’s just what I feel like my life is supposed to be.
Victoria Volk 24:33
I identify with that. That’s exactly how I feel that’s and I feel like often it is our experience that leads us to our passions and our work often. Not always, but often. I think it’s just an evolution of who we are. But you like you said it’s the impact, right no matter how long or short that experiences and even more What we think might be insignificant to someone else like, and I’m just going to bring this up, I know we’re not talking about this, but pet loss, right to is, for a child can be very significant and impactful. But to many adults, it’s like, it’s just a dog, you know. And that’s one of our first experiences often as children is how and how we learn how to process grief, or deal with grief, or, well, it’s no big deal, you know, get over it, get another dog, you know.
Sherrie Dunlevy 25:30
Yeah, it’s, I, yes, I agree with you, 100%, I lost my beloved dog in January, probably these next to the loss of my son, the worst loss I have ever gone through. Um, and I’m not, I’m not gonna say it’s ridiculous, it is very true, I was very connected to him. And we cannot shield our children or people from this happening, I think one of the most amazing things that my mom did, and that’s what we tried to do was we tried to shield our kids from this, and then they can’t handle it, and then they are adults that can’t handle it, and then we eat too much, or we drink too much, or we try to numb the pain in an unhealthy way. Because we have no idea, any healthy way of dealing with grief. But you know, it’s scary. And even to a child, a dead body is scary. And I remember even as a child, the thought of forever, you know, whether a life ending forever, or an everlasting life forever was scary, I couldn’t put my head around eternity, right. And so those concepts are and then you and then you have the scared of a dead body kind of thing. So one of the things that my mom that I thought was was wonderful, in hindsight, is I remember when I was like, five years old, and one of her friend’s mother died. And there was a viewing. And my mom took me to the funeral home. And so I witnessed my first dead person, my first funeral without being emotionally attached. And so it got the unknowns and the fears of the unknowns out of the way. And so then the next time when that was a family member, or a friend, well, that kind of fear wasn’t there, it was just the emotional, right? And so I didn’t have to deal with all that. And I think as parents, we just try to protect our children from so much. So I would really advise you know, any parent out there exposure children to death in a way that it there if you can, as early as you can, and unemotionally as possible, because then that just helps it make a norm make it a normal part of living. Is that make sense?
Victoria Volk 28:12
Exactly. Yes. Yes. Yes. I mean, it’s, it’s normalizing grief, when you when you have a conversation, when you bring it to the forefront of it being a part of life, you know, we grieve because we love, whether it’s a pet, baby relationship, whatever it is, right? loss of a dream, a passion, a career, right? A home, I could go on and on. There’s more than 40 plus types of losses. It’s not just about death, but it’s the death of loss of safety and security, so many things, so many things that childhood sets the stage for how we address and deal with those things, for sure. I’m glad the conversation went there. I thought it was very helpful, what you shared and I absolutely 100% it’s in line with grief recovery. Throughout your grief experience what has given you the most joy and hope for the future.
Sherrie Dunlevy 29:17
What has given me the most joy, stepping into who I’m supposed to be becoming a little less. I don’t want to say less fearful, you’re always fearful, becoming more courageous in living and living and living. I remember when my son was growing up, I’ve tried to keep him protected. Physically, I just you know, he would climb up to the top of a sliding board or, you know, climb up on a ladder and I lost one child, I can’t lose another you know, and I realized I was inhibiting his growth and probably putting some fears putting my My stuff on him, which probably wasn’t, wasn’t the right thing to do. I understand why I did it now. And so I try to talk to him about that stuff. You know, I just tried to be open and honest about it. And I really, the joy that I have is being able to just let people know that you can live a beautiful life, it’s possible. And I think just by the joy that I get from talking about this, so that people realize it’s possible. I want them to know what’s possible. And that’s what gives me the joy when someone says, Oh, I never thought of it that way. Oh, that’s gold. That’s gold. Because maybe there’s, there’s that breakthrough. Because I just think like, we all have these gifts, talents and abilities they’ve been given to us. And fear always holds us back. And if we can step into who we’re supposed to be, this world can be beautiful. And we’re all holding piece of ourselves back because it’s been hurt, or it’s been trampled on. Or it’s been, you know, something happened to us. And so we’re trying to protect that, and keep it from happening again. But we can’t, we can’t. And so we just have to learn how to move through it. But moving through, it can be a beautiful process. I didn’t realize this until a couple of months ago, I did not know that there was a term for this. But we always talk about, you know, the post traumatic stress that horrible things that happen in your life can cause you. But I think in my case, I’ve had post traumatic growth. And I’ve had, I’ve been able to see the beauty in life, and to see the goodness in life, and to be able to want to embrace that, and put my eye on that. So a lot of beauty came out of this. A lot of growth came out of this, a lot of transformation came out of this. So that’s the biggest joy I have.
Victoria Volk 32:10
About that I would like to talk a little bit more about that post traumatic stress, or post traumatic growth. Yeah, because I’ve heard that float around to on social media and stuff and and i think that also has comes with its own grief because we can lose relationships, based on our growth, we can have an awareness of, Okay, well, you know, you cannot come along, I’ll bring you with me. But if you’re not going to come along, and you know, you can lose relationships. Yeah. And that way you can have an awareness that you didn’t have before that can bring to light Wow, that’s kind of a toxic relationship that’s kind of a toxic person or that careers toxic or whatever, what have you, whatever it is, and there’s grief that comes with that maybe even where you live, you might realize what I really want is this, that this is where I’m at. And now there you have a lot of change.
Sherrie Dunlevy 33:11
Well, that happened to me with my career, I left a you know, very established well established career in broadcasting. And left it I was like, Oh my gosh, this, this is not good. For me. This is not a good career. For me. I was wondering why I was so miserable, tried to get I was able to compartmentalize the the day’s news and come home and still be mom still be alive, still be happy. But after my son died, that’s when Columbine happened. And then two years later, that’s when 911 happened. And it was like I could not compartmentalize anymore the worlds of grief and pain became mine My pain, you know, I could not differentiate between any of it and it just became too excruciating. To remain there. I tried it for a year and it didn’t work. And and I couldn’t get out of it. I counselor actually said you can leave you know you’re allowed to leave I had to have. But that’s the thing. I didn’t give myself that permission. I had to have a counselor and now I try to do the work myself so that I can give myself the permission to move ahead as I need to move ahead, to grow into who I was created to be. That’s what we’re born for. This is to grow into who were created to be.
Victoria Volk 34:35
I’ve often wondered that as I watched the news, you know everything going on and I try not to leave. My husband leaves in the morning it’s off turned off. Yeah, it’s on in the background, you know, in the mornings and stuff. And I’ve often wondered that though, about the people that that’s their career to report the bad news because it’s not all sunshine and rainbows in the news. It’s rarely a Rarely happy news. And so I’ve often wondered about that, like, if what kind of support news anchors have or if any, is that even a thing?
Sherrie Dunlevy 35:10
Not when I was in it now, now and we’re the gatekeepers. So for eight hours I’m looking at I was a news producer, anchor and reporter. And so I, if I produce the news that day, I was taking in all the news from the network’s from the different states from the different countries, and then I would decide what I was pushing out to the audience, right? So for eight hours, I’m taking all of this in, so I’m taking in much more than I’m pushing out to you, right, I’m taking eight hours in and pushing out 30 minutes to you. And so, you know, 16 years of that, think about that, you know, I call myself a recovering news anchor. I I rarely watch the news, maybe I don’t even think it’s once a week. During the pandemic, I’ve maybe two times a month, enough to stay informed, right? You know what’s going on, I mean, believe me, you know what’s going on. And so I mean, if I need to find something out, I know where to find it. But to sit and be fed your 24 hour news cycles. 24 hour news stations, quite frankly, in my opinion, do more harm than good. They disrupt it was never meant to be taken in for 24 hours, it was meant to be convenient to catch the news, as was convenient for you. Okay, but now they’ve done all these tricks with the teasers to keep you staying tuned in for the advertising dollars and whatnot. And, and so they want to keep you there as long as they possibly can. And so how can you not if you feed yourself, this steady diet of all this negative news in the world is bad. And every child every every child is being as a target for abduction. And you know, just like you, how can you think that we have a beautiful world out there, right, you got to turn off the TV and you’ve got to get out and you’ve got to meet your neighbors and you’ve got to listen to the birds and you’ve got to feel the sunshine on your face. And you’ve got to feel the breeze. You’ve got to see the leaves and you’ve got to you know, get to know one another and see what real life is all about.
Victoria Volk 37:36
See feel see feel. Yeah, yeah, smell the goodness that is there. Yeah, absolutely. I love that. I love that the conversation went here, because I think that’s so important. With so much focus on mental health today. Yeah. Who is talking about the 24 hour news cycle? No, buddy. Yeah, on the news. Like maybe we are contributing to this mental health issue going on with our teenagers and you know, the constant phone access and all of this stuff. When you already have grief, which I would beg to differ that each and every one of us grieves something.
Sherrie Dunlevy 38:16
No, every single one of us going through this pandemic right now is grieving, whether you want to admit it or not. You’re grieving something.
Victoria Volk 38:24
Yes. Loss of health, loss of career identity, whatever it is for you. To me. Yes. Freedom. I mean, there’s so many connections hug. Yes, yes. We could go on and on. Right. So yeah. Is that? Is that serving you to watch this 24 hour news cycle? Absolutely not. Do you feel better after you’re watching it? No, probably not. So yeah, thank you for sharing all of that. I appreciate that. So what would say to someone who, like you had experienced a loss of in such a way that you didn’t have those experiences of joy in the meantime, did you do anything that was helpful for you? Immediately or during that time that you
Sherrie Dunlevy 39:13
that I can remember? Hmm. I, I allowed people to love me. And what I, anybody who showed up for me, even if it wasn’t an awkward way, I just accepted it is loving kindness. And I really tried to focus on the people. Just the gift of healing that other people were offering me in the ways that they could offer it, I guess is the best way to say it. I leaned on my family, you know it can pull a marriage a partner can strengthen it and it really strengthened my marriage. We my husband, and I just You know, like today, we just had the conversation. I said, How are you doing today? He says, I think I’m doing okay. And I said, he said, How are you? I said, I don’t think I’m doing so okay. And that’s just how it’s been through our marriage is that he’s strong when I need him to be strong, and I’m strong when he needs me to be strong. And so we honor that, and we talk about it. And we check in with each other. And so that’s what I say is just to, to be open and honest and vulnerable. And you know, I’m not fine is an okay answer. I’m not fine as an okay, answer. And I know this is off the subject, but I just want people to know that there’s nothing that you can say or do that’s going to make it all better for someone. So take the pressure off of yourself and just show up in love. Right? You can’t there’s no magic words. This is just something you have to get through. And so that’s I guess, you know, I focused on the good things in my life, I focused on where the love was I focused on my three year old son I focused on the people who were loving us through it was just trying to focus on the good that I that was still there in my life. And there is still good there in your life. You just have to look for it.
Victoria Volk 41:21
Look for it. Yeah, yeah. And I want to circle back to to the loss of your pet because that was very recent. Mm hmm. And there is a pet loss program. And that’s how important the grief recovery Institute feels pet loss is in our society to many people. How have you allowed yourself to kind of work through that and how have you been working through that loss?
Sherrie Dunlevy 41:49
It was a shock. It was something that was unexpected, and the feelings were coming up fast and furious, which was something that you know, it was different because my son I knew from 18 I had anticipatory grief with my son, right? I didn’t have it as batory grief. So this was just sudden, and he died in my arms and I was just shocked, you know, and the feelings came up. And I just thought they’re coming out. And I remember just sobbing and my husband and my son were sitting there and I said, I am totally committed to honoring this grief and this process. And I’m just gonna let you know that I’m honoring all parts of it. I am going to be vulnerable and when it comes I’m going to feel it and if that makes you uncomfortable or make someone else uncomfortable, that is a you problem that is not a me problem.
Victoria Volk 42:57
I love that
Sherrie Dunlevy 42:59
And I honored that and I stayed true to that and when I want to cry, I cry for my dog. And I literally just I felt release I mean I felt like this, I did it healthily. I use the tools I journaled I did all the thing you know what I mean? Like I did all the things that I needed to do to go through it I didn’t try any shortcuts. I kept saying I’m not fine, but I know I will be I’m not fine now. But I know I will be and just knowing that I will be allows gives myself the permission to get through it the way I need to. And that’s what I want people to know is that when it comes to grief, you think you’re you’re fooling Who are you fooling? You know, like who are you trying to pull the wool over their eyes, you’re not your body knows you’re hanging on to it. You know, it will come out it will come out as anger it will come out as frustration it will come out as addiction it won’t but it’s gonna come out. So why not do it? The way you do it in the most gentle say the right but do it in the way that’s most healthy for you. But that scares us every I remember telling people this when I before I did the grief recovery with my son. I’m afraid that if I ever attached to that, that grief that I will never be able to release it like once I start crying I’ll never be able to stop but that’s not true. It’s not true. You will some day at some point of some day cried enough, right? It doesn’t mean that you won’t ever cry again. But the crying will come to end.
Victoria Volk 45:07
Crying from the pain is is a very different kind than crying from the sadness.
Sherrie Dunlevy 45:14
Yeah. And there is a difference.
Victoria Volk 45:17
Yes, like crying so hard that you think your head is gonna explode like you can’t take it anymore type of Yeah, very ugly cry Yeah, yeah, remember my very ugly cry? Yeah worked on my relationship and grief recovery I was very ugly because that was like, many, many years of buried stuff.
Sherrie Dunlevy 45:36
Right.
Victoria Volk 45:39
I want to just touch on one thing, too. I’ve heard on social media recently I read something where someone said, you are entitled to your grief? And I’ve struggled with that I struggle with that, too. Yeah, I struggle with it. Because to say that to someone who is grieving. And you’re obviously you’re probably there, obviously, they’re looking at the account, they were aggrieved or to, you’re entitled to the grief? Well, you’re entitled to your feelings, yeah, knew you’re gonna have your grief. But to say it, I think and communicate it in that way. It like it just speaks to that attachment.
Sherrie Dunlevy 46:26
it’s gonna say attachment.
Victoria Volk 46:28
Yeah, yeah, it’s like this, like your Velcro to the grief.
Sherrie Dunlevy 46:32
Right to the wall, your label. And I have a real problem with that at that’s what I was finding. I think that support groups can be a beautiful thing. But at the same time, I also think support groups can make you believe that you that you are entitled to your grief.
Victoria Volk 46:58
Well in such a way that it’s this is how it is just going to be.
Sherrie Dunlevy 47:02
Yeah. And it’s and that is why I have graduated grief because I do not believe that. I, I I you know, like, that’s why I started graduating grief because I had been doing some other grief work. And I had been going into these grief groups, and it was breaking my heart that people were being told this that that, you know, just because that’s how someone else believes doesn’t mean, you know, I that would have horrified me. If I had gone into that believing that because I lost a child, I will never be happy again. Or that I will have to carry this dark cloud over my, you know, like, live with a perpetual dark cloud over my life forever. I don’t know, no, no, no, no. And, you know, you look back at remember when the widows used to wear black for a year, but then once the black was removed, right? There’s symbolism in that, that you carry it for a while, but then you read it, you release and you step into who you’re supposed to be. And that’s what I want people to realize, with the graduating grief that that I’ve started is that I want you have to do the work to step out of your pain. So that you can step into loving your life again. Now, that doesn’t mean that that’s going to be an overnight thing, right? Because you’re still going to have fears and you’re still going to have guilt. And you’re still going to feel you know, like all these feelings around that because I did too. But wouldn’t it be nice to be in a community where people are cheering from you for you, and people are encouraging you. And people are saying, you know, I’ll hold your hand and we’ll journey together. It’s what I always tell people journey together. We’re not trying to drive our car in a forward motion. By only looking at our rearview mirror, I want you to see your life ahead of you. Some woman told me the other day, the thought that I have to live the rest of my life. I’m counting the days How many days I have left to live without so and so. That’s a horrible way to live. That’s why would you choose that for yourself?
Victoria Volk 49:18
Because they don’t feel like they have a choice. And that’s what griefs makes us.
Sherrie Dunlevy 49:21
But you do!
Victoria Volk 49:22
I know you and I are the same train.
Sherrie Dunlevy 49:28
Yes, you do have a choice.
Victoria Volk 49:30
Yes, you do. Yes. We’re so on the same train. And I want to bring back to what you said in the visual of wearing black for a year and yeah, you know, you have this veil. And it’s like, yeah, you can change the dress, change your different color, but if you still have the veil, you’re still not going to look in the mirror and see who you could be without that grief. I like to use the analogy or the comparison of a veil like grief is a veil over our faces. We don’t see other people The same way we don’t look at ourselves the same way. It blocks us from who we are. We forget who we are even in that grief and trauma and all those rocks that we accumulate.
Sherrie Dunlevy 50:14
And the physiological, you know. That’s why I was like, Why? Why don’t people know about this? You know, first of all? And secondly, why wouldn’t you immediately try to do something to feel better?
Victoria Volk 50:33
Right? I gotta, I gotta, I gotta point on that. And this is, this is my, my stick on this. So in grief or suffering, you suffer, you feel like you’re just suffering? Why not suffer? But move forward? In the process? Mm hmm. You’re suffering anyway. Right? The worst has already happened. You lost your loved one. There’s only one way but up. How can you get any? I mean, you could get lower, I guess, if you allow yourself to keep doing that.
Sherrie Dunlevy 51:10
Well, I have I have a saying for that. I say if you lay you decay.
Victoria Volk 51:14
oh, that’s perfect. That’s gonna be your quote card.
Sherrie Dunlevy 51:20
If you lay your decay, just like anything.
Victoria Volk 51:23
Exactly, you lay you decay.
Sherrie Dunlevy 51:26
So you’ve got to get back up. So that’s what graduating grief is is kind of like, it’s twofold. It’s like I was thinking about it. When I was in my support group. When I told my husband, I did not want to go back anymore. And he’s like, why they’re lovely people. And I said, because I don’t want to be sad every other Tuesday of the month. Like I don’t want to be in deep suffering and pain. I wanted to start feeling better. This was before I knew about grief recovery method, right? So I, so I thought, well, what was that I was ready to graduate to the next level. That’s so so that’s part of it. I was great. So what is the next level, all there is none. So that’s what I created, right? So that’s what my support community, that’s what my podcast is all about. But it’s also you think about the grief and you’re laying down in the fetal position and it’s dark, and it’s lonely. But then there’s this gradual, you sit up, and then you look around, and then you have to decide maybe kneel and then you put one foot up and then another foot up, and then you’re standing and then you can turn towards the light and start taking steps into the light. So it’s a gradual process from here to hope. Right? So it has a double meaning, but it’s possible but if you lay there you’ll decay. You got to get up. You got to get up.
Victoria Volk 52:52
I think two people are afraid. I mean many people are fearful of change. And so if we have this awareness of Oh, I guess I do have a choice. I guess though there is something that might help me Oh, well that can be uncomfortable too. And I think that’s it’s the fear of not knowing what it’s going to lead to or how it’s going to make you change or not make you change but change you in the process.
Sherrie Dunlevy 53:17
Yeah, yeah, I was I was the most it’s it’s the craziest thing how I’ve become a much more positive person since the death of my son than prior I was the most negative resistant to change if it’s not broke, why fix it? everything in my life, I did not want it to change. I wanted a comfort zone, right. And then when my son died, I’m realized that the comfort zone does not exist. Like it’s the biggest lie like it will change life will change whether you want it to or not. And my son’s death was proof of it. So now how do I want to operate? Right? It’s gonna change whether I want it to or not, and it and you’re not always going to like the change, but it’s still gonna change. Even if you say I’m devoting all your time Sherry to raising your other son now, well, guess what, you’re going to grow up and he’s going to leave. And so he’s changing, everything changes. So you can either change with it, or you can stay in a state of suffering. Because that’s what you’re going to do. The more you’re resistant to the change the more you are suffering you’re in a state of suffering.
Victoria Volk 54:28
What we resist persists. Yeah. Ah, so good. We’ve covered a lot. Time flies. Where is there it First of all, is there anything else you would like to share today?
Sherrie Dunlevy 54:48
Oh, my gosh. I think that I don’t know how there possibly is I’m sure there are I’m sure we could probably talk for another two hours. But I think that I think I just want people to realize, you know, you have to decide you have to decide what you want to do and you in, the longer you deny it, the more you will suffer. So why not just, you know, do the work, it’s going to be painful, it’s going to be so worth it. There’s a freedom that comes in a release that comes. That is absolutely amazing. So do it, you know, just do it.
Victoria Volk 55:23
And like you’ve touched on earlier, too, it’s like, when I started to really do the work on myself, that’s when opportunities opened up. And I was more, I was saying yes, to things I never found, I will say yes to right, speaking in front of people and just the podcast, like, I don’t know how I’ve never done it. Well, I’ll learn I’ll teach myself. You know, it’s like, what’s the worst that can happen? Right? Like,
Sherrie Dunlevy 55:50
I think that’s the philosophy that I have adopted, what’s the worst that can happen? It already has, so you know, and why not live?
Victoria Volk 55:57
Yeah. Exactly. And you find yourself putting yourself out there in ways that you never thought either because like, what’s the worst they can say? No. Right? You know, it’s not living a half life, like someone had shared with me a while back, and it’s kind of stuck with me. It’s like, do you want to live a half life? Or do you want to live a full life? Right? Where can people reach you?
Sherrie Dunlevy 56:28
Sherrydunlevy.com is probably the, you know, the most common way you can find information about my book. I also have a quiz at graduatinggrief.com just to see if you’re ready. You’re ready to graduate from your grief. And I started the graduating grief, podcast and group on Facebook. So join us there if you want to live encouraged after loss, right. So that’s we journey together and to create beautiful lives that we were created to live.
Victoria Volk 57:02
Amen to that. Yeah. Yes, love that mission. Thank you so much, Sherry, for being here. It’s been wonderful. And remember, when you unleash your heart, you unleash your life. Much love.
Grief Stories, Grieving Voices Guest, Grieving Voices Podcast |
Michelle St Jane | Widows Don’t Sleep: Walking the Path of Cumulative Loss
SHOW NOTES SUMMARY:
Michelle St Jane is no stranger to grief, like many guests who have shared their stories.
The traumatic experience of finding her grandfather deceased when she was 15 and the subsequent “Don’t talk, don’t tell” approach to grief laid the foundation for her in how she addressed her grief. She would later better understand the impact that her family of origin had on her life.
Michelle left her family of origin at age 17 to travel and later found herself in love, married, and with children. However, her life would be flipped upside down when, at the age of 27, she found herself a widow unexpectedly with a 9-month-old and 5 and 6-year-old in tow.
Years later, she would experience the loss of another love suddenly in a tragic accident. Additionally, she lost the opportunity to visit and say her goodbyes when a dear friend died during the Covid-19 pandemic.
Grief is cumulative, and it is cumulatively negative. Michelle shares how she’s managed to get where she is now, what helped her most along the way, and the ultimate gift grief and loss have given her.
RESOURCES:
CONNECT WITH MICHELLE:
Victoria Volk 00:02
Thank you for tuning in to another episode of grieving voices. Although if this is your first time, thank you for being here. Today, my guest is Dr. Michelle St. Jane. She is the host of the podcast Life and Leadership, a conscious journey for global leadership in reemerging leadership. Thank you for being here, Michelle.
Michelle St Jane 00:25
Oh, I so appreciate you, Victoria. And I’m really grateful for this topic. It’s so important.
Victoria Volk 00:30
Grief is my jam. I hate to say it like that. But it is it’s been my best friend for many, many years. And I thought, you know, I might as well make it my passion and work in this life. So thank you for gracing your presence to my listeners and for sharing your story today. And let’s start there, what brings you to grieving voices?
Michelle St Jane 00:53
Well, actually, I think I come from a place where I feel very guided. And Ellie visa once advised, whoever survives the test, whatever it may be, must tell the story, that’s his or her journey, her duty. And for me, life is a conscious journey. And I’ve had, I’ve had to survive more than once losing close loved ones, in different circumstances, you know, once was finding my grandfather did once was my husband died when I was 27. And once was a boyfriend who was killed in a road traffic exit, all in different decades, over 30 years. Just really tough things to endure. And through the grieving, there were these gifts that came about.
Victoria Volk 01:41
So let’s start at 15 when you found your grandfather, how did that impact you? And what was the aftermath of that? Like? Was there communication around what happened in it discussion?
Michelle St Jane 01:57
Well, my grandfather is my first close experience. When my grandmother had died, it was all hush hush and children weren’t included. Unlike other wisdom traditions, like for example, I was born in New Zealand. So the Maori have a tradition where everyone is involved, there are certain things that you do to respect your your deceased loved one and how you go through a process. But for me, this woke at that time. In the 70s. That did not happen. It was all just very hashtagged. We didn’t know we were not involved. It was there was no recognition of any impact on what might have happened. I wasn’t particularly close to my grandmother. But there was a huge sudden gap there. In contrast with my grandfather, who actually died probably about 10, or 12 years later, we were very close. He was my hero, my my protector. And I was very blessed with that. In the in the year leading up to his death, my mother and him had had a fight. And in a bed, they asked him for it, which is nothing unusual, but they had a quite a bad one. And I remember in the weeks leading up to his death, and particularly the last three days, I knew something was wrong. And I was very concerned that we’d had no contact. And I was, you know, absolutely belligerent, we need to go check on him, we need to go check on him. And eventually we went and checked on him and he had passed away. So again, I was 15 children weren’t really included in anything, there was all the family dramatics is there are some times and consequently, I actually it was his funeral, he was cremated, and I had such a traumatic reaction to to his service being held at the crematorium. And then hen going through to, you know, left the room on this, how they do, depending where you are. And I had such a very, very, very bad reaction, but there was no room to have any emotions, because there was the family drama and all sorts of going on. And my reaction was just considered bad behavior. You know, so I had all my angst and eventual anger, and then this trauma, and nobody was talking to each other, you know, you know, we just, you know, don’t talk, don’t tell. And I found that very upset, upsetting. So the learning I got from that was, my family could not be there for me. They had enough going on of their own, which is often the case. But I learned that sometimes when you’re in a situation like that, you either can be your own worst enemy, or your own best friend. I chose the latter being so young and there weren’t the services and support around anger certainly translated into a fury that fueled me to do many things I may not have done and Of course, it was years later, I have a lot of time to work on therapy, in trying to deconstruct some of those roadblocks that can come out of these situations.
Victoria Volk 05:09
I love how you said that, that you can be your own worst enemy or your own best friend. And you kind of learn, like you said, how to respond by the people who are around you like what, what is what’s appropriate, or what is acceptable, or, and like you said, you learn quickly, I can’t rely on my family to be there to support me in the way that I need. And so how did that impact you? When you found like, when you experienced when your husband passed?
Michelle St Jane 05:45
Well, with regards to my family, I ended up breaking away, which ended up being a much bigger guest because I could have been subsumed by that environment where people were doing the best that they could, which was not going to be very good for me. So the outcome of that one was, basically I had my passport and got on a plane when I was about 17, and started traveling. So I took what is commonly called today, the geographical transfer option. Just what I didn’t realize was, there you go, you take yourself. So as I said, many years later, I took the path down some therapy to help me deal with that. So with regards to my husband, he died when I was 27. And we were coming up on 10 years marriage. Oh, gosh, that is that that experience taught me that walking, the last mile is really important. And how you go about doing that give the support that you need to do this. Again, I was back in New Zealand around my family of origin. And my mother had actually lost my stepfather virtually virtually a year to the same month. So we were both widowed within a year of each other. So as you can imagine doing the best that she could, she had huge issues around grief and coping. And in the skills and how to do this, there were challenges. So the gift that I got from my husband passing unexpectedly was was he left me with today really is the present And therein lies the gift. So living in the now and today and appreciating those who are around us is really, really important. The other part of the experience, which I found so difficult and still do, to be very honest, was that and I’m going to quote Martha Whitmore. Hickman has been a huge inspiration. She has a book called healing after loss daily meditations for working through grief. And I didn’t get that book for many more couple of decades later, but she has a quote, nothing could stop you not the best day, not the quiet, not the ocean rocking. You went on with your dying. My husband had an aneurysm, how can his lungs and he ended up being brain dead, but he was a very fit person. So consequently, he was in a coma after coming off life support for over 36 hours. So this is what I mean by walking that last mile. Staying present in the now with the time that we had left. And also walking with my head held high. And my young children, I have three young children, nine months old, five and six years old, is really important. It’s it’s lifted blueprint for them that they may or may not never, ever use. But the hard thing for me as a young woman was, there was nothing that could stop him dying. He was branded. And I had all these mixed feelings around how long after he came off last life support that he remained with us. So I was also wrestling with, I just want you to be at peace. I just want to figure out how I get on with life now, but I don’t want you to go but you’re already gone. But I still hear your heart beating like very, very, very difficult. So that quote was by Martha Whitmore, Heckman, nothing could stop him he was going to go that didn’t matter if it was the best day, the quiet day. The ocean continuing to come and go he went on with his you know dying. And that was really, really a struggle for me. The other thing that happened was this was the month of October. And as I mentioned, I was in New Zealand at the time. And it was Halloween. So I remember going with my brother in law to get a black tie. He was a bad Piper and he was going to pipe at his funeral and we walked into a store and this young man came up The salesperson, and he was so delighted and he was really working on his salesman magic. And when my brother in law said he needed a black tie, he slipped into Halloween mode. So I’m sitting there like, I’m going through this awful transition of my, my husband being gone, the father of my children, my best friend, my lover and my whole life, and I’m gonna have to figure out how to go. And this young man is dancing with delight, because it’s Halloween and someone wants to reflect. So, you know, another quote from mother Whitmore Heckman that somehow we feel the earth should stop spinning and acknowledge our grief. And I’m standing in that store in this sort of no woman’s land pancake. Ah, I want to say something to you. But I don’t want to say something to you. Yeah. Not easy. Not easy. Yeah.
Victoria Volk 10:57
I got chills when you when you say shared that first quote, and the conflicting feelings that you must have felt. And so what were those days? I mean, express like this. It’s almost like you’re, you’re an alien in your own life. And you know, from how you described it, it’s like you You don’t even know how to be. So how did you manage with three young children? On top of it? How did you manage that?
Michelle St Jane 11:31
That is such an insightful question. Well, I thought, I’m a widow, so I’m going to go to a widows support group. They told me to go away, I was too young to be a widow. So I was again like society was handing me these lovely backhanded slacks off slide. Well, you guys had this experience, I don’t quite know what to do with myself. And, you know, you know, had to walk through talking with my children that funeral. And I had so many mixed feelings. So I did manage to go and see a psychiatrist. Like I was desperate for help. So I spoke to my husband’s doctor and said, I feel like I’m going crazy. So he says, I’ll book you in with the psychiatrists. So of course there were these feelings of Oh, do I need one of those? And what happens if I go there? Or my step for life or bla bla bla, what are the judgments gonna be? Well, the psychiatrist only saw me once we chatted about my husband and she said to me, you’re going to be okay. She said you have sat here and shared your favorite memories, your deepest grief and you have cried so many tears that you’ve not stopped smiling. He has left you with so much precious precious material, you’re going to be okay. And the other very valuable advice she gave me for my children because you know, a five year old and a six year old immediately look at you and go well what if you die? And how do you answer that tomorrow is not promised? So she said to me the psychiatrists in New Zealand she said to me, if you’re okay, your kids will be okay. So do what if you do take care of you being Okay, and then you can still be okay, you don’t have to do anything more than that. And you certainly don’t need to see me again. I didn’t resolve finding another group group for grief work but I got about the business of raising my family and figuring out how do you do life when you’ve lost such a key person who’s so central to your well being and your Yeah, your balance?
Victoria Volk 13:41
So following her advice, did you find that to be true?
Michelle St Jane 13:46
as best as you can? Let’s face it sometimes it will Well, it nobody comes with a handbook so kids will probably be in therapy. But I’ve always done the best that I can I come from the position of I can only lead by example. And there is one other diff I’d like to share with you were actually two one was I I decided to date many years later and I met this lovely chap and we had eight weeks together and he was killed on in a highway accident so you think by now i’d be feeling like oh my gosh, you know these this is scary these close close people in my life. But for me that that df that I again, I got to walk the last mile with his sons and be present for them when almost almost like Groundhog Day, his family all around work coping particularly well and there was a lot of drama. So for me, and I’ll quote Martha Whitmore, when again. So maybe the experience of loss not only helps us clarify what is important to us, but also helps us know where we are and the direction we want to go in. So I knew I had a moment in time I had only been around this man for eight weeks, in the previous week before he had introduced me to his sons by surprise, because I was not agreeable to that, as a parent myself, I did not want to be involved in someone’s family life, particularly with children, unless it was going to be a long term relationship. And eight weeks is way too early for that. And at the funeral, I found out that he was going to propose, but again, it was way too early for all of that. But he was so happy. And at the week, people kept saying, I don’t know what you did, but it’s the happiest thing I’ve ever seen him. And they thought it was down to me. So I also was carrying this sort of guilt because I had been cross at him for introducing me to his boys by surprise, and we’d spent the weekend together. A few days before he died, they were supposed to have been with their mother. So I had to wrestle with some feelings. But to go back to Martha Whitmore head men’s coat, it clarified what was important to me that I was asked by the family to stay for his funeral. So I just, I just decided to be the steadying presence so that I could be not part of the drama. And also in the direction that I wanted to go that I needed to step gracefully back out, because I was not going to be part of the circle. And then, and they didn’t need me to, they had plenty of family, but at least in the final goodbyes, I could make a contribution as a presence and pay my respects without being involved in all of the drama, which is not my oke anyway.
Victoria Volk 16:41
Well in the gift in that, too, is that they thought of you. It he thought of you. He obviously shared his feelings for you, with his family and loved ones and people that mattered. And so the gift for you too, was that, because what that I mean, I imagine that would have been a very different experience for you to have they’ve been like, Oh, you barely knew the guy, like, What do you want? What are you doing here? You know, and so it was very much a gift for you to that he gave you. Without you really realizing it at the time.
Michelle St Jane 17:11
I’d also add just a little addendum to that story. When I got back to the city where I lived, he had since the day we met, we lived in two cities that was there only 90 minutes apart. But you know, that was how it was at that early stage. He had written me a letter every day, on his way to work every morning, he would stop and mail me a letter. What I did not expect was to get back after the funeral. A few days later, and there had been a letter, you know, I had a couple of leaders that I came back to. So he got his final goodbyes, and in a beautiful way of reminding me how loved I was and how I had really contributed to his life. So it’s sometimes there are just surprises and gifts that come that you just you can’t see them coming, you know, and that was something that he did no, you know, I will forever be grateful. Because, you know, it triggered a lot of the past losses as well. And yeah, encouraged me to go back and do some counseling and work my way through it.
Victoria Volk 18:19
And I want to get to that, but I just want to share too how we don’t really understand often the impact that we have on others.
Michelle St Jane 18:32
Yeah, I would like to just share one last loss which has happened during the pandemic and quarantine last year. My best friend, her name is the toil. And she was very close to 100 years old and we’ve been friends for the last nigh on 20 years. And I had been overseas and when I got back I got back in time for the quarantine to kick in and I was unable to go and visit her because she had moved to an assisted living and assisted living complex and they had blocked that and I lost her without being able to connect with her before that happened. So again, if you don’t if you’ll forgive me, but Martha Wetmore Heckman always has the right words. She writes, it’s a bittersweet joy the way our last loves are forever and our hearts and minds, in fact, constant to our consciousness in a way they couldn’t be when they were alive because then we depended on the comings and goings, the highs and lows of being with us, the vagaries of presence and convenience. And again, that is another difficult I know people have lost people during pandemic and and you know, a lot of hardship. The President really is the gift. Therein lies the gift for people who are around us and there is a process of healing that comes after lost. Often we’re too busy with our lives to realize that this is so, so important too.
Victoria Volk 20:02
and with all of your losses. And I know I share this frequently on the podcast, but if it’s your first time hearing this, I, you know, I have to share it again and again. But grief is cumulative, and it’s cumulatively negative. And so all of these losses that you just shared, they stack on each other. And it’s like with every loss, you’re adding another rock to a backpack that you, you know, that we that we that you carry. And so what has healing looked like for you? And how has it changed over the years? I know you’ve you said the psychiatrists, and that was your first experience. And then you mentioned therapy again. But how has that changed over the years? And what does it look like now?
Michelle St Jane 20:44
Thank you for asking. Well, my first two losses were I tried to go join a widow group that didn’t go down too well, because I was way too young. And then I went to a psychiatrist and she said, you’re in the wrong place key proofing. And that gave me the confidence to just get about doing what I needed to do. And then over the years, I’ve done counseling and group work, I’ve found them very helpful. With my grandfather, there was a lot of rage with my losing my husband, again, there was anger and despair. And there are many stages of grief that you need to go through and can go back and repeat. Finally aren’t my husband after he’d been dead about 2025 years I kind of beat up on myself and was like, why is it every October that the three the three days where he went into a coma and we buried him? I literally would go into the doldrums. I couldn’t function I didn’t I couldn’t perform I couldn’t think clearly I felt like I had the flu yet so for like 2025 years, maybe close to 30 years this kept happening and a friend of mine turned around and said Oh get over it get over it, you know announced Why? So I went again into the helping services and found a cat therapists catatonic app therapy, I’m probably not got the right name. But I what I did was I got through her guidance, I got a large canvas and on the front of the canvas, I took lots of photos that I had photocopied, I photocopied lots of all the photos that I could find for my, for the people I’d lost. And on the front of the canvas, I did this beautiful memorial of, you know, the fun things, we’d done the heavy pictures. On the back of it. I aligned it in black lace, and I put all my angry thoughts and everything else. So when it hung on the wall, you could see for my children and family, you could see the good things that I remembered. But on the back, I put all those other theat feelings and that actually, for me that art therapy was enough to move me out of revisiting, like a catatonic event that three days that my husband had died in back in the mid 80s. And that was 25 years later. So my friend gave me a gift of sort of harsh, harsh shove, where I went and found somebody else. Fortunately, I was able to say thank you for your thoughts. I can understand that you feel that way. But I am having a physical, mental, emotional spiritual reaction every year or regardless of journaling and doing all the other things. out of bed alphabet therapy. I was introduced to Martha Whitmore Hitman’s book, daily meditations for working through grief. And the reason that’s been so instrumental is because it means rather than me holding it all together until that October event, it means every day I did a short reading. started my day ended my day, some part of my day, I read one of her meditations, I got a chance to check in, feel some feelings and move on. And I think what my therapist had rightly identified was I just held it together very rigidly until I got to that October and then I just fell over for three days. So of course, I wasn’t too crazy about doing that every day. But I did I did it for probably about 10 years. And then I gifted my book forward. So you know, I know it’s there. I know it’s a way that I can come back to if I have to endure another event like that. I will again look for the gifts and find the right support.
Victoria Volk 24:40
So much in that that you just shared. Thank you for sharing. I want to circle back to mentioned two things, the women’s support group and you being too young for the listeners out there. That’s hogwash, first of all, and shame on the women who said that to you that you were too young. I think that is one of the hurtful and harmful things that we don’t understand or even, like, really, we don’t know, what do we say sometimes, but like you said, it turned out to be a gift for you because it sent you on your path to something better that you need.
Michelle St Jane 25:16
And I might have been revisiting, revisiting with people who were stuck. Also, just to add to that funny story on the end of that was after my husband died, I went and bought a rinky dink old piano from a secondhand store. I play really badly. And because I’ve even told my grandfather’s piano, and attitude piano sounds perfect to me. And I didn’t know better at the time. So Michelle’s secret thoughts embarrassed here. And I another thing that I learned was some when you when you, when you lose a partner like that you don’t sleep. So I started playing this piano, my kids would go to bed, I couldn’t sleep. So I would start playing this piano. It was October and my favorite thing to do was to play Christmas music. And I reiterate, I play really badly. And on an attitude piano. Well, it turned out a couple of doors down on either side of my cottage, were two widows. So although this grief group had sent me on my way, these two women came and introduced themselves and said, Are you okay? And I said, Why? They say you’re playing the piano all night? And I’m like, why are you up? And they’re like, oh, we’re widows. widows don’t sleep. And I went, ah, is that what the problem is? And they’re looking at me? And they’re like, What do you mean? I’m like, my husband just died. And they’re like, oh, keep playing? You’ll get better. We hope the could you tune the piano? Sometimes you find your grief group, or they find you.
Victoria Volk 26:50
That’s a beautiful illustration of that. And did you become close with these women?
Michelle St Jane 26:57
Only for I was only there for about three or four months. And then I because that was my family of origin city, I actually moved back to his family, in another country with my young children, because I knew I wasn’t going to make it with the family dynamics and support that I had New Zealand. So I moved back to where my husband was from with the children, which was actually a very good decision, because we got back in time for Christmas. And Christmas was not going to be celebrated by me. But with such a huge extended family, you know, the kids could be enjoying normality. And I could I have extra support to cope with, you know, loss. Yeah.
Victoria Volk 27:35
And that is the big thing I want people to hear too. And this is that you looked for support.
Michelle St Jane 27:41
Basically, sometimes the long view is not what you need. What you need in this moment without a hostage to the past, or the future, is to experience it for itself alone. So I could not do that with my family. There was too much drama, too many secrets too many. They weren’t coping, my stepfather died only a year before my mother needed room to grieve and her support system.
Victoria Volk 28:05
And sometimes our best support system is not from our family.
Michelle St Jane 28:09
Yes.
Victoria Volk 28:10
And because because we all bring our own experiences and our own perceptions and our own stuff, right. And so if they’re not, oftentimes, in grief recovery, we talk about that person for you being a person that’s a heart with yours. And often they’re not someone that has any skin in our game, which is often family, right? So I do want to ask, if you don’t mind, was that family dynamic with your family dynamic? Was that ever repaired?
Michelle St Jane 28:41
No. And I have to accept the things I cannot change which has my family of origin, they’re doing the best they can with what they have. And it’s not the right place for me to be so I have done my best to to be a part but I’m actually better staying out of it, which could be what their gift was to me, you go rather than being a part of this dysfunction. So for me, I’ve done the best that I could at this stage. I’m very focused on generations that are coming behind me and continuing to upgrade my best self. Yeah.
Victoria Volk 29:20
I like how you said that upgrade your best self. And there’s, you know, I don’t know who said it, but there’s this quote that, you know, the, the five people that you surround yourself with is a reflection of kind of where you’re at in your life. That’s not exactly how it goes. But in order to rise above and let the cream rise to the top of who we are and what our potential is. We do need to surround ourselves with people who will lift us up, and that will support us.
Michelle St Jane 29:50
Absolutely. In fact, it’s interesting you should say that quote, because at the turn of the decade, that was the one I was focusing on Who am I surrounding myself with also My buzzword is you can go through it, you can grow through it. But for me at the end of it, I want to be glowing. Let me move from surviving to thriving.
Victoria Volk 30:10
Oh, I can’t believe you just said that. Because I’ve been saying that on my last few podcasts I have been. It is it’s about going from surviving to thriving, like, you don’t have to be stuck in this prison of the past. And that’s what it is. That’s what happens. Our past is our present, and it is our future until we address it. And so what would you say to people who feel like, I don’t need to go there, I don’t need to dig it up. I don’t need to address it that’s in the past. It’s done. It’s over with, what do you say to that?
Michelle St Jane 30:42
Each person knows what is right for them. And for me, I always respect that thoughts and feelings of visitors, I welcome them, I listen to what they have to say. And I get them to move on, rather than to keep me trapped in the dialogue of repetitive storytelling. So if you do not feel that you need extra support, then maybe you don’t. But if you find yourself saying the same stories over and over again, and every time people see you, you go back to regurgitating the same stories, I suggest you interrupt the stories and get some help.
Victoria Volk 31:20
Well, and that just brings me to my point and that we heal and community. We can’t heal alone. It’s really difficult. Some people might argue that, maybe you can. But you might have another loss. So you might think you’re okay, here’s the caveat of that you think you’re okay, you think you’re holding it together, you think you’re doing all right, until you have another loss. And everything comes back up to the surface again, and you realize, hmm, I’m not okay. But the thing is, is often grief manifests in our bodies and in our lives. And so I want to circle back to to that experience you are having every October, it’s this, the body knows the bodies, I was speaking to us, you had this, this emotional incompleteness that was stuck within your body. And so every October, it was your body, it’s this muscle memory, it’s this body memory. And until we address that, we exhibit behaviors and symptoms in our, like our bodies are talking to us. So if we think of ourselves like a tea kettle, we either implode or we explode, right? So either we resort to, you know, we might have multiple relationships in a short period of time, or gambling or shopping or stuff our feelings with food, or not eating, to have the sense of control in our lives when we feel out of control in our hearts. Or we might be losing our hair, or having like overall body aches and unexplained migraines and all these physical symptoms that we don’t pinpoint to the root, and get to the root and understand that grief. That’s how grief is impacting us. We don’t connect those dots. I didn’t. I didn’t for many years. And so, what were like the physical, how was grief manifesting in your life.
Michelle St Jane 33:19
As I shared with my husband, every, every October, I had three days where I couldn’t function. And, you know, this was when I was at the height of my career, it really became apparent to me, I couldn’t distract myself, I booked the time off, I’d get a spar I’d stay home and hide under the covers. I’d go see accounts, which is how I got to the art therapy. With my grandfather, I just field forward, I needed to get out of this family and go live my life and be the best example of who I could be. With my boyfriend who was killed in the highway accident. That was a little harder because I was blessed that a couple of my girlfriends had come up and gone through the funeral with me. So I wasn’t on my own. Because he did have an ex wife who decided to play the widows. So I was caught in this soap opera of drama. And her two little boys were constantly gravitating to me and I’m like I don’t want to be causing any harm here. That was a little harder. What was more, what also complicated things was the fact that his his accident on the highway, made it on the news. So consequently, the day he died, I was because I was visiting him when the day he died. I was asked to come to a family dinner with and the news was on and I turned around immediately to see the accident, the aftermath of the smashed car hearing. You know and then the family also wanted to go and do a viewing which I didn’t want to do and I ended up being sort of caught in the slipstream of having to go to a viewing and seeing him after he had died. That those two things caused another whole big trigger for me that I couldn’t deal with at that time. It wasn’t the right place. So again, I got counseling to help me work through some of that. But for a while, every time I went on that stretch of highway, I would get chills, I would start to shake for a long time. And in fact, I was in New Zealand for the last five years, and every time I went down that highway, so again, you don’t always know how these things are going to play out, or how long this might take. That’s why I really liked one of Hitman’s quotes about being your own best friend. Because, you know, it’s best if we’re not held hostage to the past, right? for the future. Yeah, yeah. With my friend, he toil who died last year. I mean, that’s on top of trying to deal with a pandemic, or quarantine, geographical transfer. Then I decided to change careers into podcasting. But I could hear her on my shoulders, saying, Oh, you are having so much fun girlfriend, go figure out how to do this, this is where you need to be. So I had those blessings. But I also needed to deal with, I hadn’t managed to see her before she died, not that I expected her to die. Respecting the rules of you know, her residence and things like that. carrying those guilts with me, do not, do not contribute to our future that she would like to celebrate me having.
Victoria Volk 36:38
So how do you celebrate her?
Michelle St Jane 36:41
I talk about her. This is why I gave that first quote. Not only do we have a duty to share the stories, but also to share what people bought to our lives. And I have grandchildren and I speak of their grandfather. And it’s so surprising that my youngest son, who was nine months old, when he died, has two young sons for around three and five. And he is exactly like his dad, he treasures his family, he values his children, his work doesn’t subsume him to the expense of his family. As far as as feasible and the work that he does, so and he looks exactly like his father, he sounds like it’s five or so. You just never know where the gifts are gonna turn up. Right? And you know, I try to share the stories with my grandchildren about their grandfather and things like that, too.
Victoria Volk 37:35
So when your kids were young, when this happened, I just want to ask this because I it just kind of came to my mind right now, when your children would bring up their father as they were growing up, you know, because I and I asked this because I actually heard this one time where a young child had lost her grandfather. And it was the mother’s father and she asked the child to not bring up the grandfather, because it made her sad when she did and I thought my heart just broke when I heard that because here’s this child that just wants to express her loss and share you know, just when’s grandpa coming back or you know, the the under she wants to understand and the mother is just shooting her down and again don’t take this as parents are doing bad and you’re badly or whatever it we do with what we do what we know. Right? And we don’t know what we don’t know. And so it is we’re doing the best that we can in any given situation. And that’s why I’m so passionate about the education piece of of grief so that people can break that cycle because she’s learning in that process. Don’t talk about talk about my your grief, don’t talk about your sadness because it makes mommy sad. So how did you navigate that aspect?
Michelle St Jane 39:06
My husband was such a huge force in our lives. He was huge. He only worked the hours that the children were in school. He was a very big piece. So, sharing the stories keeping it alive, having a having a chapel with their grandmother, his mother and his brothers was very important. And if the children border that well we talked about it I always every Christmas and every birthday I pulled out a birthday book that we had started when our oldest son was born so that came out and he was present and all of those were I did fail was I just couldn’t do Christmas I bought pulled out the Christmas book. But because he died very close to my birthday and Christmas. Those two celebrations got very damp down for me. I didn’t do well with those. Yeah, families with the don’t toy Don’t tell the secrets. As I said, my mother had been fighting with my grandfather. We were not to discuss that. It just built up and a lot of anger inside of me. Yeah, what I didn’t do well was birthdays and Christmases for me. What I did do well was we had birthday and Christmas box of photos. When my kids got much, much older, I did do a decopatch of lots of photos across the years that that involved him as well. So, once they all went 21, I just did a big canvass of photos that included their father. Yeah, my youngest son, he has said, I didn’t know my dad, so I don’t want to talk about him. So, I talked to my grandson, so I can respect that. But I’m not if my grandsons do something that reminds me of their grandfather. I’d be like, oh, let me tell you this story about when, and then I tell some funny stuff, because he was huge. But what I will tell you, which I don’t always navigate particularly well, but actually no, I dodge is even though my husband’s been heads past, well, over 30 years ago, there are still people who will come up to me and ask, how’s Bobby? You know, what’s he up to? And I actually dodged by saying, He’s resting very comfortably. Thank you. Because after 30 years of that, I’m just so over trying to explain that he died decades ago. That’s really tough. Yeah, yeah.
Victoria Volk 41:30
Wow, well, thank you for sharing all of that. What gives you the most joy nowadays?
Michelle St Jane 41:36
Well, I, I certainly took to heart when my husband died, that today is the present. And therein lies the gift. I work. I consciously Try not to take people for granted. And I also consciously address when I start isolating, because isolation for me is evidence of my disease. So, I have to be very aware of that. And of course, with the pandemic and the quarantines and things like that, I can go into cave mode and just you know, be a little philosopher in my own, okay. So, I have to work on things like that,
Victoria Volk 42:11
I can relate to that. Yeah, kind of get in your own head, then. And that’s when we kind of have the committee in her head, and we’re having conversations with the committee in our head instead of giving it out, you know, and whether that’s, you know, for some people, I’m a writer, so that’s how I channel a lot of that. But, you know, sometimes you just need a heart with yours. You know, someone that you can just unleash your heart to, I mean, and that encapsulates a lot like, that’s what grief has taught you. It’s probably also a piece of advice that you would give to right, like, just take a moment to reflect on today.
Michelle St Jane 42:54
Absolutely. I mean, with my grandfather, and my boyfriend suddenly gone with my husband, and my very, very wise, older friend. They’re not prompt tomorrows not promised.
Victoria Volk 43:10
So what is one tip that you would give a hurting heart today?
Michelle St Jane 43:15
I am a mother, she has a book called healing after loss, daily meditations for working through grief. That book has been worth its weight in gold, I did not realize that I was, you know, putting everything in a box for you know, 11 and a half plus months. So having that with other daily reading books was a huge help. That would be my number one tip. What I didn’t get right was there were very long periods where I just shut down and did everything that I had to do and didn’t address the grief. I like to sit it’s cumulative.
Victoria Volk 43:58
Is there anything else you would like to share?
Michelle St Jane 44:01
I would like to celebrate your presence in the world, this is such an important conversation. And it’s not easy to find people to have this with their books, but just having the chance to have community to speak into your listeners ears and share from the heart around this. This some extremely important topic, and I really appreciate you, thank you for your contribution in the world, Victoria.
Victoria Volk 44:29
Thank you for saying that. Yeah, it’s definitely been become really meaningful. Side passion for me for sure. Because we often don’t feel like we have an opportunity to share from a space that we where we won’t be judged criticized or analyzed, where our story won’t be judged, criticized, or analyzed. And so, it is my hope that through Stories like yours, and all the people that bless my podcast and our guests that people take away a sense of hope that you can go from surviving to thriving. I almost think that that needs to be one of my taglines because I’m passionate about that. It doesn’t have to take 30 years for you to wake up to what’s possible, really. It’s never too soon, and it’s never too late.
Michelle St Jane 45:31
Absolutely. And the gifts are in the learning. They’re not promised in the first 30 days, the first year or the first 30 years, they may come. And I think you’re around same music should be the song I played on the piano for many long nights called whispering hope.
Victoria Volk 45:47
I’m going to have to check out that song. Thank you. Yeah, thank you for your presence. Thank you for sharing your stories. Grief goes on, it’s like, and here’s another thing I want to, I would just want to have a little bit of back and forth about is that the sadness doesn’t go away, right? Like, you’re not never going to be sad, that that person isn’t in your life, that your husband isn’t in your life that the lover you had after him isn’t in your life that your friend, your grandfather, like that sadness that we experience and feel that never goes away. I don’t care how enlightened or woke, I mean, that’s kind of a buzzword now, or how much healing you’ve done. I feel like I’ve, I’ve come leaps and bounds from where I was in my 20s. But the seat is always empty. And that sadness is always there. But it’s recovery. From my aspect of it as a grief recovery specialist. Recovery isn’t about forgetting or condoning or letting go. Really, it’s actually got the tattoo on my wrist, let go and let God like, I just wanted to let it go and give it to God. And that wasn’t working, I got a tattoo and it’s like, that didn’t work. I didn’t take action, like there’s action, it’s pray and move your feet. It’s not just pray, it’s pray and move your feet. You know, I don’t care. You know, whatever your religious beliefs are, it doesn’t matter. It’s action. And that’s what helps us get out of that sorrow. That deep sorrow that’s preventing you from moving forward.
Michelle St Jane 47:45
Absolutely. You’ve got to make the path by walking. Nobody can tell you how it can be done. It’s an experience. And your words remind me that the desert doesn’t flow without the rain. So, you can go through it, grow through it. And quite frankly, study mean to glow. You know, get back into the joy of life, a life well lived is the perfect reward for you know, acknowledging those who’ve gone before and you’ve grown on their shoulders, but also, you don’t give up on life yourself.
Victoria Volk 48:14
Yeah, and like another guest had said she felt like she was living a half life. And that’s no, that’s not a life, right? So, thank you so much for sharing. I’ll give you the final word. Anything else you want to share?
Michelle St Jane 48:30
Change the things you can. And that’s yourself, not anyone else. Change things you can, make the path by walking.
Victoria Volk 48:39
I love that. And where can people find you if they’d like to connect with you?
Michelle St Jane 48:43
LinkedIn, Facebook, Instagram. Do you do show notes? Perhaps they can just be added into the show notes.
Victoria Volk 48:50
I do show notes. But where’s your favorite place to be? Where can people find you the most?
Michelle St Jane 48:55
The most would be LinkedIn. And that is under my name, Michelle St. Jean. And yep, this website wtih the podcasts on it. So, I’m looking forward to gifting you next.
Victoria Volk 49:06
Sounds awesome. And I will put all of the links in the show notes, including the reference to that book and anything else that she has shared for contacting her in the podcast as well. And I look forward to being on your podcast again. That podcast is Life and Leadership, a conscious journey. And so yeah, thank you for listening. And remember, when you unleash your heart, you unleash your life. Much love.
Grief Stories, Grieving Voices Guest, Grieving Voices Podcast |
Larry Indiviglia | Choice and Chance
SHOW NOTES SUMMARY:
Grief makes grievers feel like they don’t have choices. And, it can also be difficult to bring yourself to take a chance on something or someone. In this episode, I explore choice and chance with Larry.
Larry shares his stories of loss, focusing on a short-term love that touched his heart and life deeply, leaving a lasting impact. He shares the wisdom that came from that love experience with Gayle in his book, 126 Days, 11 Minutes: Our Love Story .
“I wrote this story as a tribute to Gayle’s extraordinary courage and embrace of life. I encourage all of the Gayles and Larrys out there who may be afraid to love to reconsider. Life is meant to be lived and loved in the now, not in the yesterdays or tomorrows.”
Also through this episode, he shares other lessons he’s taken from his other losses, which include a tragic car accident that killed his aunt and older sister, leaving him as the sole survivor when he was 21.
We all can feel hope for the future, knowing that every one of us has been given the gift of the ability to choose. After listening to today’s episode, reflect on the choices you’ve made that made the most impact. Perhaps there are even defining moments that changed the trajectory of your life, too?
RESOURCES/CONNECT:
Victoria Volk 00:00
Thank you for tuning in to grieving voices. Today my guest is Larry Indiviglia. He is a retired Naval Reserve Officer. He holds a master’s in corporate fitness administration and an MBA from the University of San Diego. Currently Larry is president of and sites for life Incorporated, a fitness professional presenter and author as well as a business and life coach for the Todd Durkin mastermind program. He also is the author of the book, 126 days, 11 minutes, our love story, to honor the life of Gail in their love they had for each other. And that’s what he is on to speak about today. Welcome, Larry.
Larry Indiviglia 00:44
Victoria, a pleasure to be here. And thanks for all the great things you’re doing with your programming. And I’m really excited to have a great conversation today and provide some value to your many listeners. So really looking forward to connecting you.
Victoria Volk 01:01
Thank you. So, let’s dive in. So yeah, what brings you to grieving voices.
Larry Indiviglia 01:10
Over a year ago, I met a woman, her name was Gail. She basically changed my life. And I had a relationship with her. And she transitioned four months after I met her, I know I’m throwing a lot of things out, but because of her, that’s why we’re here today. Because of her life, the powerful choices she she made and the relationship I had with her. It provided an inspiration to write about the four-month relationship I had with Gail to talk about the transition process. And it also to get me through the grieving process. The writing was kind of a catharsis, but mostly to be here today to honor a live that certainly richly deserved honoring and that really has helped me continue to move forward. And I’m still probably in a grieving period in a sense because it hasn’t even been a year yet. And that’s really what is the story behind the reason that I’m on here talking with you today.
Victoria Volk 02:17
So, tell us about Gale.
Larry Indiviglia 02:21
Gale, you know the the backstory to 126 days 11 minutes our love story is to actively aging seniors who meet online in their 60s. Yes, and their 60s. Okay, I was 64, Gail was 68, Gail had been married three times before Gail had been single. for over five and a half years I had been divorced and single for almost nine years. And maybe against all odds Victoria and for everyone listening, we were captivated by each other. And I say against a loss because she had stage four breast cancer and had been fighting it for four plus years. However, you know, we both Gail and I made the choice to live in the today. Not in the yesterday’s or the tomorrow’s and that’s how our relationship was was built. And in so doing, we discovered a lot about each other. Gail was a professional photographer for 33 years. She did nature she did animals she did. She did models, she did dance, she was an Argentine Tango dancer, she was a ballet dancer, she lived a very rich life, colorful life. She was very artistic. She’s also very mystic. she happened to be a Virgo Earth maiden. And she had a great connection with nature. Sometimes you will say art imitates life or life imitates art, she would always say nature is life. And she had a very strong connection to nature. But like many, you know, like Al Victoria is she was to it that she was diagnosed in October of 2015 with stage four breast cancer, you know whether it’s out of nowhere or whatever it is, but she got the diagnosis. And then that changed her life. She had to survive, she had to find out how to battle cancer. And she chose a lot of different ways to do that. She’s it’s traditional chemotherapy, she had a single message to me. She had radiation, a lot of treatments and then she also went into alternative methods to to keep her immune system very high. So perhaps the cancer wouldn’t spread. And so she was very active. She was a very soft, artistic, very intuitive woman. She was also steely, strong, she was determined, determined to beat her cancer, and continue to live she felt her earthly existence. was something she was not over with yet. Hale had a higher, not a nontraditional sense of who God was higher level of consciousness view. So, she felt life in the womb, life on Earth, and then a higher level of consciousness once you transition, but she wasn’t quite ready to leave Earth yet. And there was so many great things about Gail, the biggest thing, she made a very powerful choice to continue to love and live live, even with cancer, and that’s really the reason I met her. Sometimes you think about choice and chance in life, Victoria, is something by chance, was it a chance meeting online? Well, Gail and I both made the choice to go online to find love again. And and fortunately for me, I was able to connect with her. And even with some of her challenges, it didn’t matter. I was so captivated by her courage, her truth or honesty, that there was something more I had to discover about this woman and, and I did in the 126 days and 11 minutes that I knew her.
Victoria Volk 06:11
Sounds like a very fascinating woman. So, I gather that she taught you to live in the present and to love unconditionally no matter what. Is that a correct?
Larry Indiviglia 06:24
Unconditional love was was a is a word that comes up when you think about it. And Gail gave it a bigger context for me. So, we think of unconditional love, no judgments, no expectations, no conditions by which you love somebody. And Gail said to me, it was early on in the relationship, Victoria, that when I talked about it in the book, is, you know, Larry, you can’t unconditionally love somebody. If you don’t unconditionally love yourself. First powerful statement, and I do believe it. You know, through my life’s journey, I had done personal work, after my divorce, there’s a lot of things I spent time doing personal work, so that I could accept and respect myself as I was, you know, because sometimes a failed marriage, things don’t work out in life, you can really kind of beat yourself up about it. So I did some personal work, and I did accept myself and I did unconditionally love myself. And I do feel that was a big part of the reason I was really able to unconditionally love Gail as well. And one other thing too, in the unconditional love is I was diagnosed with stage one colorectal cancer. Ironically, the same month Gail was diagnosed in 2015. I did not fortunately have to go through what she went through. Not at all, I had one surgery. But the point is, I understood what a diagnosis means when you get that diagnosis, whatever stage and somebody tells you, you have cancer, okay, and then you so I had empathy enabled to relate to her on that level. But Gail was also truth. She always stood in her truth and her convictions, she never compromised those even all the way to the end to her transition. She felt if you compromised your truth of what you were about, you’re compromising your life. And that was always a bright light that she shed. You know, during her lifetime here on Earth, everything she touched everything she said, and everything she did, was about being truthful to herself and to other people. So that that was something truth, honesty, unconditional love was part of what she was about, and what our relationship was about.
Victoria Volk 08:51
One thing that sticks out to my mind and what you just share it as and thank you for sharing. First of all, the one thing that came to my mind was that first of all, we can’t give to others what we can’t give to ourselves, right? And also, it’s so important that we live in integrity with ourselves. And when we don’t live in integrity with ourselves, our beliefs, or our convictions or what we need or, you know, our desires in life. I think that I mean, that’s grief, we experienced grief as a result. And that trickles into every area of our life, or employment or relationships with our children or our spouse, other people, how we relate to others. How we show up in the world, really. So, it seems to me that I mean because I totally get and understand why you two would have been drawn to each other you to her because if you had done that personal development work, I think we kind of draw them to us, what we need in the right time.
Larry Indiviglia 10:00
Yeah, you do. You know, its interesting being being a life coach and business coach for fitness professionals for about 13 years now, Victoria, you hit on something very important. Maybe it gets back to choice. I had mentioned Gail made a powerful choice to seek love again, even though she had the cancer and a single mastectomy and things in her particular physical arena weren’t like they used to be she was an absolutely beautiful woman. Cancer had taken some of that off. I mean, she had been through a lot. But I think when it comes down to integrity is, you know, when you look at each year, and my coaching work, we’d like to theme a year, what’s your theme for the new year? Is it happiness? Or is it discipline, whatever it happens to be. And my theme, and my, maybe it’s in my subconscious. When I met Gail, it wasn’t conscious, I will say this, looking back on it. My theme for 2020 and I met Gail on January 2020. So, a little over a year ago, was do something significant. Okay, that can mean a lot of things that was giving me a wide berth, okay, do something significant in 2020. If somebody said, Larry, your significant do or action would be to meet somebody who’s battling stage four cancer, in this case, a woman to love her have a relationship with her, she would transition four months later, and then you would write a book about the experience, I would have said, I don’t think so. However, now I have time, I’ve had some time Victorian, and it didn’t dawn on me till about november of December, at the end of 2020. When I look back on my notes for what the year was about, and for all of us with COVID, it was a crazy year, I look back at my theme. And you know what? This was significant. Okay, and I didn’t do it consciously. You’re to your point, when you put something in, and it gets into your subconscious, you attract someone or some thing that that will, perhaps make that intention come true. The universe brings you together. And I believe that, and I believe gal on her side, said, I am a woman, I am not waiting, I have been battling this cancer. I am who I am, I can find somebody I can love again, I am not going to stop trying. I’m doing it. And she attracted somebody, it turned out to be her last stage of life, we did not know that. I don’t think she knew that. I think she felt she was still going to beat it. However, the universe brings you together. And it comes down to choice and intentional. And again, standing in your integrity to I think is all part of that.
Victoria Volk 13:13
Can you speak a little bit to because when you you talk about transitioning, and I think especially in our society that’s kind of has this death aversion? You don’t think about or talk about death as a transition, especially, well and more so with terminal illness, but can you speak to that a little bit more? Like what she wanted that to be? And what, you know, the tension that she put into that?
Larry Indiviglia 13:43
yes, I will. And there’s a couple of things. And it’s a very insightful question, Victoria, because I do think it is important to your listeners to all of us. It doesn’t have to be cancer, it could be another type of disease, or it could be you’re, you’re forced into a transition stage of your life for something that’s uncontrollable, but the fact is, you’re facing it. So, what does one do? Gail had more time to think about it. Once her cancer came back it metastasized to her brain. And advanced breast cancer can do that it goes to the bones, the lung, and a lot of times the brain in any case, um, she did not want to die in excruciating pain. I don’t think any of us do. Okay. And she was looking for a place once we had to take her back into the hospital, there was no more she could they could do for her. There was no more operations. There was no more chemo, there was no more radiation. Okay. So, then you have to decide where are you going to transition some people will use the word die. I mean, look, Gail use transition. So, she had to find a place that was going to work for her so she had a chemo port, where you would put in the chemo drugs in her chest, they open vein. And she wanted to be able to get palliative really pain medication. Okay, in the port. That’s not done everywhere. That’s not done in a home setting, by the way, it can be. But a lot of hospices situations at home, they don’t inject into that port, they’ll give you through the mouth or whatever. And with COVID, there was a lot of potential maybe limitations as to what the care would be in a residential home. Gail felt she would be better if possible to be in an inpatient hospice. I talked about it in the book, how that all came about, okay, and she was adamant that that’s what she needed. And fortunately, we were able to get her into a four bed hospice home, here in San Diego, run by sharp hospice homes Foundation, Parkview hospice outstanding place. And so she didn’t die and transition in physical pain. However, during the time, they gave her two weeks to live after the final diagnosis, Gail lived an additional 44 days in hospice. And she had to find peace before she felt she could transition to a higher level of consciousness and finding peace, mental peace, emotional peace, you could be physically cared for. And she was. And I remember I asked her one day, maybe it was day 12 or 13 of her stay. And I did visit her every day through through the COVID. Fortunately, I didn’t get sick. Um, and she and I said, Gail, you know, how can I help you find peace or provide you peace? And she says, Larry, Larry, you can’t, I have to do that on my own. And because the COVID spiritual counselors couldn’t come in, and she didn’t want to talk to him on the phone. So, she was trying to find her peace through those 44 days before she transitioned finally. And, and I believe that the care she was given, I did what I could do, and I share that in the book I share every day in the book during that transition period, Victoria 126 days, 11 minutes, 126 days, there was nine weeks of joy, and fun and frolic before her cancer came back then there’s 63 days where it wasn’t good, it was deeper. But during those days, I do share things I did bringing in music into her room, she had a garden view, things that she was still able to touch real life until she couldn’t see any more talk anymore because of the brain cancer. But it was a process for her. She had tears she did not want to transition yet she did. But at some point, she went through, and she found peace. Day 114 I shared in the book, very, very close friend of mine told me Larry, find your own peace about the situation first. So then when you go and visit gal, you will be peaceful, that will help her find her peace more readily. And that was an interesting comment. And it was a comment by a guy Colonel Hank Donegan, who had been a 30-year Marine, he saw a lot of a lot of depth over his career. And he said you have to find your own peace in the midst of adversity and chaos, or in this case, Gale dying. So those are some of the things I could speak to about transitioning and, and I do believe, if you’re not in gruesome, horrible physical pain, you might be able to process that on deeper levels.
Victoria Volk 18:59
Have you seen the Netflix docu series, surviving death?
Larry Indiviglia 19:05
No, I have not.
Victoria Volk 19:06
There is an episode, it’s a six-part series, but there is an episode on end-of-life experiences. And it’s based on the research of Dr. Chris Kerr from Buffalo hospice and I recently interviewed him on my podcast and he talked about these end of life experiences and he has a book called Death is but a dream which is coming out with another he’s coming out with that’s actually going to be out another docu series but by that name in April, but I’m I’m just curious if she ever spoke to you about any end of life experiences any visions or dreams that she was having of, you know, loved ones that maybe were coming to her?
Larry Indiviglia 19:57
A great question. She did not, her elderly mother was able to visit her. Although she couldn’t visit her too often because of COVID. Her younger brother was able to visit her. Not too often because of COVID. You know, there was some restrictions, but they did get a chance to, to visit her. She did have a younger brother who died tragically at age 15. And her dad had already passed away So, but she didn’t answer your question directly. She didn’t. She didn’t share with me any end of life and like, hey, I could picture this in my life. Now she did. She did talk to me, before hospice, about dreams she had, who were in the dreams, sometimes former lovers, she was dancing she had, she had contributed gave me poems which I share a few of them in the book. So, they was just processed when she was living. She was experiencing a lot of things. She also had a medical intuitive Victoria, who she would consult with about her care programs, and her overall well being and things. And she was also very, into astrology. And she had a mystical side to her. So, but in hospice to answer the question directly here, in context, she didn’t share that she was seeing something, although she talked to me, Hey, this is my get married again. for the fourth time to you, this is what I think it’ll look like and where it’ll be. She would ask me questions, but she hadn’t gone to the other side yet. And she wasn’t giving me any coming attractions. sounds horrible there. But you know what I’m saying about what she was saying. She She would being an Argentine Tango dancer, she often talked about a dream where she would be dancing with somebody but couldn’t see his face. It was a faceless dancer. And would that face with that? After her transition? Would that person, man become a face? I don’t know. But she would say that a lot of times.
Victoria Volk 22:23
I just, I was, it’s my own curiosity. Since I yeah,
Larry Indiviglia 22:27
Valid question. You know, and she could have been having those dreams? In fairness. What let’s just back up one, because I think it’s a great question. You know, Gail, I think it was about 12 days, she couldn’t talk because the cancer of the brain after a while you lose your ability to speak. And then her sight went. So, if she did, if she was dreaming, let’s say those last 10 days, she couldn’t tell me. She couldn’t tell me. So perhaps and I don’t know that I’ll have to read this book here and also educate myself a little bit, if that’s what happens sometimes with people is if she had that she couldn’t share it been taught.
Victoria Volk 23:10
Yeah, but actually, to your point, when you said about dreams prior. People can have dreams up to six months before and visions and things, so you know, everybody’s different. But it’s like, the way you described during you said the word metaphysical. And that’s really what came to my mind when you were first describing her as someone like that, who would probably be very open to the messages that would be coming to her. As she’s, as her body is slowly starting to depart, you know, so
Larry Indiviglia 23:43
yeah, she had her looked at in the process at some point, maybe after about a week, she was crying a lot because I think the reality was, she knew where she was, you know, this was her last stop here on earth. And that’s an overwhelm, you know, you have overwhelming feelings at times. And, and, you know, so she did shed tears in that process. Some days, more than others. I speak about him in the book and context. I felt what I shared in the book each day has a theme, the highlight, or the meaning of that day, which was most meaningful, that was most appropriate in context of what Gail was going through. So yeah.
Victoria Volk 24:41
Can you share a little bit too about the experience because it was during 2020 and was during COVID. What impact did that have on? I mean, you kind of spoke to it a little bit about her care and things but I mean, were you able to have a celebration of life?
Larry Indiviglia 25:01
Yeah, you know, it’s interesting January, I remember the weekend specifically I shared in the book, we went to a resort here in San Diego. And when we were having breakfast, this was, I think, like March 1, the very end of February. I’d met Gail in January. So, this was the end of February, I had known her for about eight weeks. And we noticed a couple, two different couples walking on the street with masks on. And Gail looked at me, she goes, what is this? What is this about? I said, oh, that virus having you heard this COVID virus, and supposedly, it spread, you know, through through coughing and sneezing and things. And I said, a mask could help prevent that. Because boy, we’re vibing I just, I haven’t really dialed into that, Larry. But I remember that there was March 1, of course, two and a half weeks later. So, two weeks later, we shut down, that’s when the whole country shut down. So, January and February, we lived as normal as we possibly could, you know, going out doing things and, and etc. And then when Gail got sick again, and the cancer started coming back, it took about 10 days before we realize the whole process and got her back into the hospital, then COVID was very restrictive, because of visitation, what you had to do to get in there. And that was in the regular hospital. And then also in hospice. I was I was actually lucky because if she was in a nursing home or something, whatever a larger facility, they were shut down, they weren’t letting anybody. So, I had to go through, take my temperature, disinfectant, the whole thing. And you know, and the interesting thing about it, the spiritual counselors were not able to be on site, it was only a four-bed hospice. When Gail was there, her joining roommates if I can say roommates, or fellow people who had transitioning per six weeks day, or 44 days day, there’s probably about 30 people who transitioned because, you know, everybody’s in different stage of at the end. And, but COVID, I had to just go to her room, I couldn’t go to the common area, I couldn’t talk any other family members. Um, so it was like you had to be present in the room. So COVID I’m not saying if COVID wasn’t there, I would have been out in the living room, not in Gail’s room trying to connect with her. But when I was there, Victoria, I was there, I had to be in her room other than using the restroom. That was it, that’s the only place you can be. So COVID um, there was limits on on visitation, there was limits on calling people coming down. And, you know, Gail started, she couldn’t hear. So, there was a lot of things in that room, where was just myself and Gail, and COVID. Her family members I mentioned earlier, couldn’t visit her as much because of some of the restrictions. And her mother was very older and, and you know, so it got to the point where COVID actually helped me be present with gal, and maybe to notice things and do things. And I submit perhaps I wouldn’t have done because I had to be there. I had to be present with her. And then Okay, she’s transitioning. So, what are the important things to do? So anyway, in the COVID picture, I think that also was the reason Gail chose to try to get into that inpatient hospice because she didn’t want to die at my place. And she didn’t want to die at her mother’s home. And that was the reason that I don’t want to say we ended up but that we chose and were able to get accepted to that hospice home. So COVID really had, you know, those types of impacts pro and con, I should say.
Victoria Volk 29:13
So, you have yet to have the celebration of life like you haven’t gotten to do that?
Larry Indiviglia 29:17
Celebration of life happened in November. So, she wanted a very small one. She gave me a list of only about a dozen people. And I honored that and her. She was cremated and her ashes were spread on a nature trail here in San Diego, and one of her professional colleagues who she knew through her photography business for many years. She wanted part of her ashes spread on a beach in Malibu Malibu where she did so many photo shoots. So, he did that. I gave him some of the assets, so he did that. And then we had celebration of life. And everybody got a pile of ashes. And here in San Diego, one of her favorite spots. So that was her wishes. We did it in november november 1. Actually, we did it on do de los Muertos, as it turns out, is that spiritual day of that the Mexican culture celebrates the people who’ve passed and already died, the souls who have risen, so to speak. So, we did do that. And it I waited a little bit longer because the COVID risen, and to get that, to get that that kind of completed, that was something that had to be done. So, I honored her wishes.
Victoria Volk 30:44
Well, and what a blessing that you became in her life. Because, you know, had you not taken and made that choice right to go online dating and had you not met her, you know, her mother wouldn’t have been able to help her and be there for her in a way that she probably would have wanted to. And way Gail would have wanted her to be because of her older age and COVID. And, you know.
Larry Indiviglia 31:12
Yeah, Victoria, you make a nice point here. There’s nothing heroic I did, what I did was, I had some empathy. And I learned more from Gail about life and love that I think she learned from me. But her life made a difference. And all of us want to be able to transition. I don’t know if I want to say on my own terms, but with some dignity and with some control. And I felt I was able to help her do that. Okay. And she was able to go on, at least to terms that she had control over. And, you know, she had told me stories. When I sat down with her, I had a great conversation on the phone with her, she was very honest. She said, Larry, here’s the deal, I have stage four cancer, I have a single mastectomy. If any of this stuff is gonna freak you out. I’m just telling you now. And I was so kept, I was so captivated by her honesty, I definitely wanted to meet her. So, we met the next night. You know, when I met her, she had told me, she said, you know, Larry, a couple dates I’ve been on, you know, some guys have gotten up and said, you know, this isn’t for me, and, you know, with $50 on the table, and I’ll see you. And that’s probably the extreme. But I, society now easier to get up and leave? Well, there’s not anything in this for me. I wasn’t looking for this, in this dating relationship. However, it’s riskier not to risk. Because the life experiences that you miss out on can be profound. And I did not miss this one, Victoria, because it’s like, what’s life about experiences that we have and want to have, some are controllable, some are not. Those experiences encourage us and sometimes make us grow. And because of that growth, we can then contribute more to others. So, I look at my relationship with Gail. It was a loving, profound experience, mentally, physically, emotionally and spiritually. It forced me to grow as a man in a lot of ways. And then now and it’s not just because of a book, but because of the experience and the growth I had, I was able to write something and realize that there were profound lessons here from this beautiful woman. And I believe so profound that I would like to share those with others, so that the gales and Larry’s out there, Victoria afraid to love because of somebody struggling. It doesn’t have to be cancer. It doesn’t have to be life and death. You may want to take that chance. Because you can experience Mutt a profound love experience that you would never have before I had somebody reach out to me. She was dating for three months. She came down with stage four lymphoma. Her boyfriend at the time visited her in the hospital. And she said you’re off the hook. You don’t have to go through me with this. Don’t you know we’ve only known each other three months? Well, he doubled down he asked her to merrier while she was enough, and they’re still married today. So, some of these things in life. If you go against the conventional societal norms, you may find something real special that you never would have experienced before.
Victoria Volk 35:04
I just got chill bumps because I absolutely agree. One single yes can change the trajectory of our entire lives. Right?
Larry Indiviglia 35:12
Yeah, you know, Victoria I, I don’t normally get too emotional on these things. But, you know, Gail’s life made a difference. And I saw the courage when I sat down with her that dinner. And you know, she had kind of like puffy eyes from some chemo. And it but she didn’t try to hide anything. You know, it was who she was. And, and, you know, I, you know, of course, you know, sometimes the male ego takes over, I sat down there at that dinner, and I shared in the book, I remember she looked at me, she goes, Oh, God, you’re so much more handsome than the pictures online. You know, it’s funny, but it was sincere. You know, I think it was, but but it was I was very, very, there was just, I was captivated. That’s the best word and really wanted to discover more about her. And, and, you know, the reason we’re sitting here today talking about her is is because the courage she showed and, and like I said, I think there’s a lot of gals out there that have to have second thoughts about putting themselves out there again, as difficult as it can be. It’s never too late to fall in love. And, you know, I believe that there’s somebody out there for all of us, right? That’s right.
Victoria Volk 36:35
I have the belief to that really challenging times, brings out the compassion within ourselves, but also helps us kind of disarm that as false. Basically, we don’t have to lie. Like you don’t have to. No one likes to be lied to first of all, but to just be honest, and tell the truth about how you’re feeling. I think that that becomes easier when you’re faced with something like Gail did, or, you know, like the terminal because she had had it and then it came back, correct? Like she thought it was gone.
Larry Indiviglia 37:10
Yeah, it was, they had it at big. They had her cancer at bay, you know, she had been through the real rough part of it, where she had to get the discectomy and it moved to her lungs. chemo, was able to get most of it out. But then it moved to her neck, and then she had to have neck surgery. And then after neck surgery, she had a good time without it, but then it moved her her brain initially. So, she had radiation for the brain. And that went into remission. So, she, you know, she was always trying to keep ahead of the game as it moved within her body. But at some point, they were able to arrest it. And also, to her credit, she was on a very strict nutrition plan, a totally clean, a very strong supplementation plan, exercise, plenty of sleep, Ph water. I mean, she did everything and research so many things. And she felt if she can get a holistic healer to work in conjunction a little bit closer with a traditional met what messed up Western medical physician that she thought she could beat it, but it was so hard to find there’s a lot of dead ends because of insurance and things. But yeah, yeah, absolutely.
Victoria Volk 38:29
So, you spoke a lot about shared different ways that you know what Gail taught you and what that experience taught you. But also, to that wasn’t your first grief experience. You mentioned divorce and had you had any grieving experiences prior to that?
Larry Indiviglia 38:48
I did. And you know, maybe one loss or the previous losses prepare you in life for the next now. I don’t want to be maudlin here or pessimistic or fatalistic where, hey, something traumatic happens. And that means it’s going to be a series of them throughout your life. If any of us haven’t experienced any loss through trauma, accident, death, cancer, whatever it is awesome. Okay. Many of us have though, okay. And I think most of us have on some level, specifically with cancer, too. You know, at a very young age, very young. I was driving a car I was 21 years old. In fact, it was the day after I graduated the Naval Academy. I was taking my older sister who was 28 at the time, I was 21. And my aunt, my father’s sister to the airport. We didn’t make it. They died. I didn’t. Okay, so at 21 years old, that’s that’s a big loss. Okay. And that one, you know, I had to do some personal work. ralphing there’s some things I had to process through the years about that. And, and get through that, so that you can move forward in your life, especially at 21. I was so young, but I did get through it. And that was 44 years ago, okay. And my faith, I happen to be Christian, I have faith that Okay, that was part of life’s plan. And that’s it, and you just have to be able to move forward. So, I found that that loss was a big one. And sadly, years later, not to put a list of losses here, my brother took his own life when he was 53 years old. And that was a big loss that was that was, that was a heavy burden, when when Joe took his own life, and each law I find, will give you the opportunity to respond and perhaps do something you would not have done. And you might not even think about it. It might give you the courage to move forward, do things in a different way, go to graduate school, get married, do some travel, do some philanthropy, whatever the case may be it it and my journey, it has provided me the array and because of the loss of the circumstances around it, to do something I would not have done would I have written 126 is 11 minutes as a fictional story. Probably not Victoria, probably not. Although somebody may read it. And it’s got elements of a novel in it, but everything in it is true. So, to your point, losses in life, do make you stronger, do give you an experience with the grief experience, and all of them are different. And I find that on my journey, responding and doing something that you perhaps would not have done can be a result. And I will say a positive result is it to honor a death situation can be or it could be giving back to a community that maybe you became aware of, because you came down with a disease or whatever it happens to be that you now want to get back to, but that’s some of my thoughts on that.
Victoria Volk 42:45
Did the loss of Gail bring up any unresolved feelings of grief that you may have needed to address?
Larry Indiviglia 42:55
It was different. I don’t know if it brought up any past wounds, so to speak. But I will say this, the losses you have and then I hadn’t lost a soul mate or a lover, etc before. So, it was a different kind of loss. Then maybe the human the human nature and us, at least for me, it’s like oh boy, you know, it’s not like death follows me. That’s not it. But if you do go to the to the place, and you say, well, she was such a marvelous woman, I would have really liked to spend more time with her. And now, I don’t have that opportunity anymore. So that sadness is there. It almost becomes and in talking about it now, it almost becomes a little surreal sometimes. Victoria, when I look back on it and say, did this really happen? You know, but it hasn’t really brought back to a great extent at all. Any, any past losses to any type of that’s causing any, any pain or anything like that.
Victoria Volk 44:12
I want to, I’m curious, because did anyone say anything to you that was hurtful? Regarding, you know, it was a four-months relationship?
Larry Indiviglia 44:26
yeah.
Victoria Volk 44:27
You know, because people can be insensitive and say things that was only four-months, imagine 40 years or you know, things like that, because that does happen.
Larry Indiviglia 44:37
Yeah.
Victoria Volk 44:38
Did anyone say anything to you? Just and I asked this because I think it’s important that people understand how these things impact people and like how words in cut like a knife.
Larry Indiviglia 44:50
Oh, yeah.
Victoria Volk 44:51
So, I’m curious if anyone said anything like that was hurtful or harmful in that way?
Larry Indiviglia 44:56
No, I did have a question. Would you have done it over again. Um, if you knew how it ended, I said, well, that’s really an unfair question because, you know, we lived into today I, I didn’t know how it was going to end. You know, did did I think I was going to outlive Gail? Probably, okay? But every case is different. We don’t know. You know, I mean, odds odds would say Gail was not going to live to 80 or 85. But, you know, one never knows. And I didn’t look at it that way. Nobody has ever said, you know, what, why did you write this book? Or, you know, you only knew her for four months. And, you know, because sometimes there’s so many beautiful stories out there Victorian, I know, you see them of people’s life journeys. And now that they’re grieving, loss of a child, loss of a husband, whatever it happens to be, you know, certainly I am not the only one. And, you know, the the people typically, who have left and transitioned, those are the people that are the inspiration, not necessarily me, there’s nothing heroic about this. Was this significant? Yeah, as I shared earlier, I think it was significant. But But I haven’t, I’ve been lucky, I’ve had the people who reached out to me, during the time, I was going through this were supportive. And people afterwards that, especially after I was working on the book, and released the book, were very supportive for them, for the most part, and I hadn’t experienced any. I had one comment, I think it might have been in in once the book came out, you know, I’ve lost three immediate family members, and why should I read your book or, you know, words to that effect, but that person’s grieving? You know, it’s like, I get it, you know, and, and it’s not, it’s certainly not a comparison game here. And boy, hopefully, but I could see some people who were in depth, you would probably know better than I know could react why. Yeah.
Victoria Volk 47:13
Yeah. And that’s one of the things we talked about in grief recovery is that there’s no hierarchy hierarchy of loss. I want to kind of circle back to that question, would you do it over again, because it’s really kind of a sad, sad thing to ask, if you really think about it, like, what is this? You know, you got to think about what that person’s feeling like inside to ask that because it’s like, you can ask that about anything. Like, you don’t know how long you’re going to be married to somebody. It’s like, I don’t even know the statistic currently. But you know, for a long time, it was 50% of marriage ends in divorce. Well, would you do it over again? I mean, how many people? Yeah, you know, it’s like, would you have children? If you knew one of them was going to die? Well, of course, you would still have that. You know what I mean? So, I think yeah, I think it’s a very sad question. Ask somebody. I’m sad for that person who asked you that, put it that way. Just to circle back to what you shared about the opportunities that we miss out on. That’s what I think back to I that person asking that questions.
Larry Indiviglia 48:24
I think connections in life, they’re not, none are random, I don’t believe in they’re just random. They’re all for a purpose, some last longer. Some lasts a very long time. Others don’t last as long. And but they’re all for a reason. They’re all for a purpose. And I think certainly, we all want to live to live a vibrant, long life, you know, with a high quality of life. That doesn’t always happen as we know; we don’t live in a perfect world. And certainly, all of us are imperfect. And sometimes we’re Dell tans that we never expected we would be down. But the period of time that I spent with Gail was the time that I was supposed to be and I firmly you know, believe that. What like I said it what I had hoped it would be longer than that. Certainly, yeah. But it was there for a reason and and I think we came into each other’s lives for a very powerful reason at the stage. I was in in the state shoot. Yeah.
Victoria Volk 49:40
So, throughout your experience and even the grief that came before it, what has given you the most joy What gives you the most joy and hope for the future?
Larry Indiviglia 49:54
Well, life is beautiful. And each day that we have is is certainly a gift and you hear that many circles, but it is. And to be able to have a continued choice on how we decide to live our life. That’s what’s really great. Because we could make that choice to meet to meet somebody, again online, we can make that choice to do philanthropic work, we can make a choice to shift careers, we can make a choice to, to retire, and not do anything if we chose to do that. The ability to choose is what I think, really, is really awesome in life. And the other thing is, is a very powerful lyric, it’s in the dedication page to the book, Gale used to sing to me from the song natureboy, which was sung by Nat King Cole, I think it was in the 50s, maybe early 60s. He didn’t write it, but Nat King Cole sung it, and the one lyric from natureboy was the greatest thing you’ll ever learn, is just to love and be loved, in return. And when you think about that, very simple lyric, but really powerful. And all of us have the ability to love. But we also have the ability to receive. And you know, you have to have both Victoria, right, and we have the ability to do both, we have the ability to give, and we have the ability to receive, and to those of us, I would say a lot of your listeners, I don’t know them are giving people, you’re a giving person. It’s easy to give gifts all the time, that’s super important. But we must pause and receive back because people want to give to us. So the ability in moving forward. And in the future. What I’m hopeful and joyful about is that very lyric right there. That’s the essence of life. Because I do lead, I do believe it leads to fulfillment. And it does make life a lot more joyful. When you experience both giving and receiving love. And I did that with Gail.
Victoria Volk 52:33
I love that. We do have two hands, right? One to give and one to receive.
Larry Indiviglia 52:38
We absolutely do.
Victoria Volk 52:40
I have to read this to you because I just I wrote this down prior to us recording. Oh, sure. It was just coincidental. So, I’m going to share it. Speak, think, and act from a place of love. This is a rule of life. There’s nothing you need to fear. I actually, I wrote, it will speak, think and act from a place of love. And then I added a rule that’s a rule for life. There’s nothing you need to fear.
Larry Indiviglia 53:08
Love could come in different forms, different at different junctures of your life when you expect it, or at least expect that. However, I’ll go back to choice. One of the lines I share on the very last last page of the book, actually, you know, each book I mentioned is titled all 126 days, and the last day is titled 11 minutes. There’s a reason for that. But in the lines to that last page, Gail says is life is life by choice or by chance. You think about it, the choices we do make, maybe they’re related, the choices you do make. give you a chance to experience something you would never have. I think Gail and I both did that we both made choices to love again. We both made choices to stay together. And that gave us a chance to experience something neither was would have had alone. Yeah, that that choice. And that chance when you think about life is an interesting relationship.
Victoria Volk 54:21
And I think that’s a perfect place to tie this up. Anything else you would like to share?
Larry Indiviglia 54:28
Um, if I could, you know, just tell people where to get the book, 126 days and 11 minutes, Our love story is available on amazon books in Kindle or paperback form. It’s a fast read. It’s gotten a lot of very nice five-star reviews. I’m very humbled by them all. So, the audio book will be available on Amazon’s audible channel.
Victoria Volk 54:53
And if people want to connect with you, where can they find you?
Larry Indiviglia 54:57
Yeah, email me directly. I’ll answer all of them. At [email protected] so that’s l i n d i v i g l I [email protected]. You could find me on LinkedIn at Larry Indiviglia. And you could find me on Facebook at Larry Indiviglia as well.
Victoria Volk 55:19
And I’ll put that information in the show notes.
Larry Indiviglia 55:22
Thank you, Victoria.
Victoria Volk 55:26
Thank you so much for being here. And for sharing your story and wisdom from your beloved Gail, and everything that you had to share.
Larry Indiviglia 55:36
Thank you, Victoria. Really enjoyed it. And I hope your listeners received something of value this morning. I think they did.
Victoria Volk 55:47
And remember, when you unleash your heart, you unleash your life. Much love