Ep 61 | Rachel Engstrom

Rachel Engstrom | Life as a Cancer Wife, Widow, & Never a Mother-to-Be

SHOW NOTES SUMMARY:

Eight years following the death of her husband from acute lymphoblastic leukemia, Rachel reminisces on the love she lost and also the pain and lessons that came from his death as well.

Rachel found purpose through her pain in writing about her experience, which later became her book, and also through cancer advocacy.

In this episode, she shares the story of her husband’s diagnosis and death two years later, as well as how she found her way to feeling better.

On top of the loss of her spouse, she would later have to come to terms with the fact that she will never have biological children and, also experienced a health setback herself, later being diagnosed with a disease of the colon.

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Victoria Volk  00:00
Thank you for tuning in to grieving voices. This is your host Victoria Volk, and today I have Rachel Engstrom with me, she is has a masters of social work. She is a certified health education specialist and has written a groundbreaking memoir self help book on her experience as a young cancer wife than widow with the increasing number of young women and men becoming widows or widowers due to not only cancer and serious illnesses, but also now COVID-19. This resource is needed more than ever, Rachel shares her journey in a raw and honest way while providing step by step resources to help you navigate your own journey. Never before has there been a combination of the personal grit of the healthcare journey, along with steps and how to navigate treatment diagnosis, the ins and outs of hospital life, employment, finances, insurance, self care, grief and loss, and much more. You can find wife, widow now what how I navigated the cancer world and how you can too, on Amazon, which will be linked in the show notes. Thank you so much, Rachel, for being here.

Rachel Engstrom  01:12
Thank you for having me.

Victoria Volk  01:14
So let’s talk about the birth of your book. And really how this probably what started out as a passion project was which was your life unfolding? How? Where does your Where does your story begin?

Rachel Engstrom  01:29
I am about to be 39. And I moved here I’m in the Minneapolis St. Paul area I moved here in 2000. So almost 21 years ago, to go to the University of Minnesota. And in myself, I moved here not knowing one person, no family, anyone was here that I knew. And in my sophomore year, first semester, I went to a birthday party. And a friend of mine it was she was having a party for her boyfriend and his friend from work came. So this tall guy who’s six, two, who’s, you know, almost seven years older than me showed up. And I just thought that he was really cute and nice and you know inquired about him to the friends the next day. And he did the same about me. And we dated for three years. And then when I graduated from college, three months after that, I got my first job right away. And then I got married at 22. And he was about to be 28. And then so he worked nights the whole time we were together. So that was pretty cool. I mean, I missed him a lot. But that was pretty cool. And that I was able to become my own independent adult person within my 20s and still have that relationship and that consistency in my life of being with him. And then when I was 28, and he was about to be arxys. I was 28 and he was 35. He just really didn’t feel well one day and went to the doctors that turned in to go to the hospital for blood transfusions turned into go to this clinic. They didn’t tell us it was a cancer clinic that he was mis diagnosed with something and then the next day had a bone marrow biopsy and two days later, he’s diagnosed with acute lymphoblastic leukemia. So at age 28, I’m already grappling with a few months before that learning that I have endometriosis cyst, whatnot that had ruptured on my reproductive organs. I’m grieving that I might not be able to have children, things like that. And then this couples with that, and I have to very, very quickly learn how to navigate the serious illness, world insurance, disability, all these things, which is why you list that all of that, along with having this cancer life become my norm. So I’m working eight hours running back home to let the dog out, then running the hospital for a few hours then running back home, you know, petting the animals trying to pay attention to them for 20 minutes before I you know, pass out, rinse and repeat the next day. So that was quite a lot. So that was my life. I did have a lot of support from my parents who are in a different state. They came and lived with us for 18 out of the 27 months that my husband was sick and he got a lot better and then relapsed, unfortunately, a year and a half after his initial diagnosis. So we had to hospitalized him after he relapsed on the day of our eighth wedding anniversary. And what was interesting is going back a year when he in so he got sick in January of 2011. He had a fever and had to be hospitalized in August of 2011. And one of the nurses said, Oh my gosh, you guys are still together. I can’t believe you’re together. This is amazing. And I was like what are you talking about? And she told me that during cancer and serious illnesses, that in her experience of 25 plus years she’d seen 70% of more people come back that needed medical care that their significant others left them, or the marriages didn’t work her out or things like that. And that just totally blew my mind because we had we knew very quickly on that this is scary, you know, of course we’re hoping he’s not going to die, but that we’re in this together we can’t afford to fight or you know, disagree that much or those types of things because this is such a serious thing. So in January of 2013, he had a bone marrow biopsy or excuse me, he had a bone marrow transplant. days after I had a surgery for endometriosis. And he had had a lot of chemo and radiation to prepare his body, when you have a bone marrow transplant, they have to wipe out your entire immune system. Like you’re a newborn baby to take these stem cells from umbilical cords, that was his donor. And just the chemo, the radiation, all those side effects ultimately ripped up and shredded his kidneys, his bladder, lungs, things like that. So he was in the ICU once, you know, it was preparing for him to die miraculously, within a two week turnaround, he was out of the ICU out of the hospital in a rehab, was learning to walk again, do all those kinds of things. And then he went for an appointment and things kind of went downhill. And then on April 17, I was told, I got a call early in the morning, and he said I can’t breathe, I can’t breathe. And he had been on regular like oxygen. But they needed to put them on high flow oxygen. He just he wasn’t breathing well through the night. And then they called me and said he needed to be integrated. And he got on the phone and he said I love you to each other three times. And then when I got to the hospital, he was kind of freaking out. And I asked them to give them a high dose of pain medicine. So it would just knock them out. And then once he was comfortable, I was sitting in this chair and I had three doctors come and tell me I’m sorry. And they said we’ll decide within 48 hours, you know, when’s the appropriate time basically to take them off life support. And two days later, when we’re going to do this is my 31st birthday. And two days after that, so then they said okay, well wait another 48 hours, but I just knew within that he was gone. It wasn’t even him anymore. You know, he’s just seeing him slip away. And what was amazing is what carried me through significantly was my my faith, my faith in God and all of those things. But I just had so much peace and so much grace within it, I was just very numb to all of it. And I believe that, you know, the biggest factor was my faith for feeling that way. But what I learned later learned later, when I was trying to be in learn more and being young widow groups and things like that. What I was seeing that I didn’t quite realize is I had I was given so much grace and that I was able to be with him as he was dying. So many people have their significant others die at war, or you know, a freak accident at work or those types of things, I was actually able to be with him. So on the 21st I signed the papers and everything. He was so amazing. He did extra bone marrow biopsies and spinal taps and things like that, for research at the University of Minnesota. So I signed the papers that morning for him to donate his body to the University of Minnesota, which is what he wanted to do. And then called our Mr. It’s Sunday’s of using church then we had to wait for him to come and then had the few family members that were there say bye. And that I had made a heaven playlist the night before because I knew that he was going to die the next day. And I had them unplug him, we cleaned up his face a little bit. And then I played a playlist and help my husband, my life. My best friend, everything that I knew is I waited for his heart to stop. So I was two days after I turned 31. And then I walked out of the room and I was Rachel 2.0 I was a widow. So I just I had to restart. And I had to reboot my life literally like a computer. Because I had been thinking I was going to have you know, little feet running around the house that are half me half him, I’m going to have someone help me pay for this house. We’re going to go on trips, we’re going to do all of these things. So I had to figure out how to navigate all of it. The cancer part was hard enough, but this was navigating all of it. And especially with being a 28 year old cancer wife is hard. But being a 31 year old widow is insanely hard because you don’t know anyone else in your circle of people going through that. So ultimately that led me to the idea of writing a book so my book wife widow now what is chronological order of my caringbridge Medical posts that got emailed out to everybody my Facebook post. And so it’s my narrative between all these real time posts. So when I’m figuring Insurance I walk you through bam bam bam This is how you do it this is diagnosis treatment work when people want to help these are tangible ways to tell them they can help getting counseling for yourself getting counseling for the patient ways to adapt to your house you know I had no idea I’d be 28 and be needing to get you know, a shower chair and all these things and so basically my book is a love story but the tips and the tricks of how I navigated all the illness part and then how I navigated all the widow part the anniversaries, the holidays, all those first all those feelings, and it’s very gritty in that I don’t it’s beautiful, but I don’t sugarcoat anything you know when I one day I may be like, oh Today’s a great day and the next day I’m like again so grueling. So it’s really unique and that this is the first of its kind memoir self help how to merge the narrative and the realness of the journey with the medical aspect of how you do both so I put all that together and it was very much a labor of love and a lot of PTSD but I’m really proud to have it out there’s there’s nothing like this to help people navigate it.

Victoria Volk  11:13
it’s a lot yeah thank you. So how many years ago was this now?

Rachel Engstrom  11:16
April 21st will be eight years

Victoria Volk  11:19
what is life been like since

Rachel Engstrom  11:22
so it was really hard. It was really hard at first just for fun just for kicks I took classes to get a certification and grief counseling because I wanted to know about grief the process all of those things learning about you know ambiguous loss of suicide and you know all the different kinds of grief what people go through my bachelor’s degree is in anthropology so just culturally, it was fascinating because I was part of this culture I knew nothing about it’s like literally being dropped out of an airplane into a foreign country you don’t speak the language you don’t know anybody you don’t know where you are you have to start over it was it was really really difficult working three part time jobs to try to pay for house like I said, I thought I’d have someone helped me with lost a lot of friends not because people didn’t care but I think they didn’t know how to adequately help and kind of like you have you know, when you have a job, you have your work family of friends there and then you leave and then you’re like, Oh, you know, I don’t really talk to them that much anymore. The really hard part is about going through something that’s catastrophic is your friendships, your relationships have been flow and change that way as well. I purposely with a lot of intent, stepped away from the cancer world, the illness world, all of that for years, because it was just too close too hard. You know, there were movies that came out like I remember like a fault in our stars, a couple different ones where people were like Rachel do not watch those do not even don’t even touch it. Those things are really difficult. My brother who’s 14 years older than Wayne told me in the very beginning when he came right before Grayson got sick or excuse me when he got sick, you know, you you can choose to be better or better. And I wasn’t always better. I have a chapter called bitter Betty. But within that I had I had to I didn’t have anyone else that I was responsible for besides my pets, besides me, so I had to know that Like it or not, I had to reboot This was my new life. And within that I chose to surround myself with positive people. I had a couple of very long term friendships that ended up not appropriately supporting me and being very judgmental and toxic that I had to cut out of my life. Just a lot of growing pains of being this new person this new role this not definitely not asked for a role. So navigating all that was really tough navigating just having enough money to afford the house and everything that was just insanely tiring I worked for a year and a half I worked three part time jobs to with autistic children, one with the lady with multiple sclerosis, running all across the Twin Cities and be like five or 600 miles a week navigating all of that I forgot to say six months after my husband died, I had had so much pain I could barely walk so I had a hysterectomy so then I gave up the ability to have kids which was another huge loss. But then you know later on victoriously I’m in target walking past like the tampon aisle and just like so excited. You know, it’s the little wins. But three months after he died I actually went to Alaska for almost three weeks by myself took a cruise was always like, you know, I’ve seen the Titanic. Tell me which well I well you know that they’re safe these days. I will never go on one. But I also didn’t think that I would be a widow at 31 either. So I gave myself space and time to see nature all these places you can only get to by boat plane Things like that. So it was a lot of a lot of trial and error. Over the years, I had met my husband when I was 19. So dating again in my 30s wasn’t sane, I got her, I got my heart broken, I was naive, I was stupid. I didn’t make the smartest choices sometimes. But I was I was just believing the whole time that God had a plan and like footprints, I wasn’t going to be dropped, you know, the second set of footprints in the sand. And that’s ultimately what carried me through and then also finding out surrounding myself not only with appropriate people, but you know, funny TV shows uplifting music, things like that, because there are a lot of really sad things out there. I didn’t always Excel taking care of myself. So those are some learning points. You know, when your spouse dies, you don’t want to sit around and eat salads, you want to eat cake, you want to eat pizza, you want to eat things that necessarily don’t fill you up with endorphins that make you more sluggish. But you do what you need to do. So in time, things got a lot better. And I don’t really speak about love life or anything except in my book. That’s my one disclaimer, you have to you have to read it because it’s at the end of the book, that’s kind of my happy ending. But what’s truly incredible to me is where I am in my life now. I’m, I have Besides, it’s hard to articulate this sometimes without feeling like offending people. But it’s true, like losing your parent, losing your sibling losing your grandparent, those things are so hard, they’re so hard. But the only thing I could equate with losing a spouse to would be how I can’t imagine losing a child. But losing a spouse is definitely not planned, especially as young as you know, I was 31 he was 37 so it’s very, very tricky to find adequate support and those types of things because when people say oh, my mom died or my my whoever died I I understand you don’t understand you really don’t understand it’s a different kind of grief. It’s more complicated. It’s the person that was in your house every day. You know, even a year after he died, I would look at the door and expect him to walk through it. All those types of things. So what’s incredible to me is that I went from being the saddest of the sad not able to get out of bed. You know, my reproductive organs are have been taken out of me my my hope of being, you know, a mom and all these different things and my husband’s gone and whatnot, that I went from there to writing a book, despite how painful it was writing a book and now speaking about the positive things I focused on the positive things you can focus on. It will be over by the time this is aired, but right now in the state of Minnesota, I am running for a woman of the year trying to raise $60,000 for blood cancer. leukemia Lymphoma Society did so much for me I did two half marathons walking them I’m not a runner, two half marathons walking that my dad won the year after he was diagnosed and one the year after he died, so in 2012 and 2014 and within that I found friends for life people that backed me people that supported me. And if I can get $50,000 I can get a grant and his name. And you know, I’m just I’m pumped to help people because as great as advancements are, every three minutes someone’s diagnosed with blood cancer every nine minutes someone dies from blood cancer, one in five people are going to get cancer in their lifetime. 80 It’s the number one childhood blood cancers, typically acute lymphoblastic leukemia, which is the type of leukemia my husband had, which usually children get or elderly people get 80% of childhood cancer survivors of this have catastrophic, like chronic health conditions, whether it be so my husband a year after he was diagnosed, he’s 36 looks great, you know, full head of hair, he’s super healthy. You know, no one knows he has cancer if you saw him, the steroids that he took for the first part of his treatment had rotted his hips to the point where there was a crack and it was the hip bone was falling out of the socket. So I have another friend that his son, or excuse me his that I met while my husband was actively dying. This person I met because he was he was so nice. It was a friend through a friend and he gave me money to stay in the hotel across the street because his wife had died five months before that, when his twins were three, and then three years ago when the twins were nine. I’m one of them got diagnosed with the kind of blood cancer. So this little he’s lost his wife. Now one of his two sons has cancer and he’s getting the little boy got really, really sick, his name’s Jake, he’s an insane warrior. Now he’s fine, his treatments are done, but he’s had to wear leg braces, because his legs are just his bones are you know, so there’s so much that’s amazing like the Leukemia Lymphoma Society has cutting edge research which actually informs other forms of cancer, their treatments and things are helping all forms of cancer. So it’s not just blood cancer and trying to get funds for. But the side effects are awful. We can acutely treat them when they’re happening and get you into remission, but the side effects are not quite there. So I feel really privileged and proud to be able to do this in honor of my late husband because he did these extra bone marrow biopsies donated his body to the University of Minnesota, he wanted to help people. So in a way I’m really proud to be able to have him live on through my story live on in this way. And this usually does not make me cry, but I’m just really excited. He would just be pumped to know that I’ve turned my life into advocacy in his honor. So that’s where I’m at today.

Victoria Volk  21:06
How about you tells us a little bit about him.

Rachel Engstrom  21:09
Oh, he was funny. So his name is Grayson and he was just like, gosh, golly, nice to the point where he’d say like, I’d hand them something and you’d say appreciate it. Maybe like what is so nice. He had he would ask the nurses like can I trouble you to get me something and they would like fall over laughing like it’s our job of course we’re going to help you. He loves New Order in the Pet Shop Boys and techno music and going with his best friend oh and for craft beers and discovering breweries and different things and from his best friend that I spent a lot of time with after that I was friends with anyway but spent a lot of time with after Grayson’s death he’s like he would just have any rolled his eyes when he told me he’s like he would just talk about you all the time. It was just all the time and you know, we really were the best of friends and we had what I call Space Age marriage where we rarely ever fought granted we didn’t really see each other Monday through Friday because he was working. But you know, when we did have arguments, it was over piddly stupid stuff and I was in my 20s having those growing pains and whatnot and as he works nights you know we didn’t have a dishwasher in our little apartment and I would want him to wash his dishes but he couldn’t wash them at night when he got home late at night because the kitchen was by the bedroom and it would have woken me up and then he was a serial procrastinator so he would be so tired he’d get up late you know work and then he’d get up at like one 130 then have to work at three so I just passively aggressively would stack those dishes on a cookie sheet because they were his but um he was just a joy he was a lot of fun everybody loved him the nurses told me they fought over him you know who that they had everybody’s index cards and patients in the room who had who when they would fight over who got to take care of him and you know I would bring blankets and a lamp and you know different things to make the hospital room like a little home and they would say oh lovebirds are in their apartment and you know things like that so we just made the most of it and despite him being sick we actually were given the gift of time you know that we hadn’t had our entire time together Monday through Sunday being able to spend time together and we’d have sleepovers and I’d be on my little hospital cot on the floor and he’s you know two feet above me and we’re holding hands you know watching movies and stuff like that but he was just a really good guy and I know that you know with from what I’ve learned, you know, different marriages, different things, different relationships. You don’t always get to have that nice story and closure where there’s a death You know, you’re left with you know, what was or I wish I would have said or I wish you know, I did have what it could have shut us but not in big ways. Not in big ways. You know, I felt guilty for a couple years because while he was sick, he would always want me to come snuggle with him on the couch and I’d be across the room on the other couch just insanely tired, exhausted on the couch and not wanting to move he’d be like come snuggle and I’m like a little while last thing I want to do I’m so tired. So I feel bad because I’m like he wanted that and I could have done that. But besides that I really don’t have any regrets. And you know, I asked him a couple days before he died. He was awake for a couple minutes just his eyes were barely open but you know, I knew it and we had a health care directive and everything but do you trust me? Do you understand what’s going on? Do you understand what’s going to have to happen and you know, he shook his head yes. And ultimately I was just prematurely obviously in my head I know that I’m you know, devastated. My world’s been thrown a grenade but While I was while my mom and I are waiting in the snow for my dad to pick us up, after I’ve left the body of my husband upstairs at the hospital, I just have these immense feelings of relief, because he’s not in this diabolical pain. He’s not going through horrific things anymore. That wasn’t really him anymore. Anyway, you know, it was just what was the it was unfortunately, like, you know, you change sounds like a really awful example. But you know, you when you get new carpet in your house, and you can go look at samples and there are those remnants, you know, he was remnants of who he was, that’s what was left the last few days he had given it his all he had fought so hard. I had confirmed with the doctors many times, especially the day he died, you know, there’s really nothing else they can do. And within that, I had the peace of knowing in the grand scheme of things. It didn’t make sense why he had to die. But biologically, his body just gave out. And, you know, God loved them. He did the he did the most that he could, and the love that I had for him and that he had for me, ultimately helped set me on the path of who I am today.

Victoria Volk  26:12
Was hospice care, never talked about?

Rachel Engstrom  26:16
No, because he was, um, so it wasn’t a necessary thing to have because he was in the hospital. So he left our house on January 21. He died on April 21. So it literally 90 days, because it took 60 days for his stem cell transplant to take for the bone marrow transplant, and things like that. He was like in the cancer ward. So he had that high level of oncology care specific for what he was going through. So I mean, I was assuming I was pricing like walkers and stuff like that, you know, I was thinking because he’d been to rehab and things like that I was thinking that he was going to come home and I had someone asked me a couple weeks ago, on a different show, like Did you really think that he was going to be fine and get better? And I was? I said, Yeah. And she said Why? And I was because he we were so young. You know, when you’re 31 and you’re 37 you assume you know you are unbreakable, unbeatable. You feel like you’re a superpower, you have the whole rest of your life in front of you. So I really did not I, when you’re the caregiver, or the spouse, or the main person caring for someone you don’t, at least in my opinion, you don’t get the luxury of believing that your person is going to be anything but fine, because you’re the cheerleader, you’re the you know, manager, the captain, the rah rah, we can do this of the ship. So I really until they told me I’m sorry, on the 17th I really thought that he would make it. And then at that point, because he was in the ICU, that was the adequate care he needed to take care of him.

Victoria Volk  27:55
I had Dr. Chris Kerr is the author of death is but a dream. It’s all about end of life experiences. And he has done extensive research on the subject. And he’s part of that docu series on Netflix called surviving death. And Episode Five. And you might find that episode interesting just because he talks a lot about the medicalization of dying. Hmm. So that’s why I was kind of curious on the hospice aspect of that. Sure. So what what are some of the things that I know you kind of spoke to like the some friendships fell away, which naturally, often happens with grief? But what are some of the things that were helpful to you, that people shared with you or said, and some of the hurtful things too?

Rachel Engstrom  28:46
Oh, yes. Well, I know how you feel is really hard. I had a lady that she was she was very sweet, very well intended. And she was a lady in her 60s, from church that helped do a fundraiser different things for me, but she would come and she, you know, I never let her in my house because I know she never really, she would stand on my porch and come and check on me and different things like that. And she kept telling me like, Oh, I know how it feels. I know what it is, you know, I’ve been there, done that. And she told me how she lost her mom. And she was saying she was a widow. And I’d be like, Oh my gosh, I’m so sorry, to the after like four or five of these visits. It turned out like she was like, Oh no, I’m married. It’s just my husband volunteers at church so much. I feel like a widow and I was like, Oh, just like I just wanted to slam the door on her face. I think the toughest thing. I had someone really close to me in my life. Tell me after about six months, just just decide to be happy. Just like pick a day decide to be happy. I think it’s really tough when people don’t realize that grief doesn’t have a start and end date. It’s on your own timeline, especially with me Every buddy’s grief journey is different. The circumstance of death is often very different. You know, you could put 10 people in a room and they all have different ways someone died. Mine, you know, being able to be there with him, like I said, For me made it a lot easier. And what was interesting is his, his pa is working, I think of it. What the acronym is, physician’s assistant, who was was like junior doctor. She was the one that after he was unplugged, and everything, you know, I lay down next to him and covered, she covered us up and I’m, you know, I laid there and we did an hour for his heart to stop. She said, Give me your phone. I said, Why? And she said, Let me take a picture. And I said, No. And she said, Yeah, you’re gonna want this. And she was right, because I wanted to look at these horrific pictures of what he looked like to really get and formulate, that’s not him. He had to go. But yeah, it’s, it was just really interesting to know and see what it was for me, versus what it was for other people. Being part of those widow widow groups online, different things like that. You know, it’s, it just sounds. I’m having a hard time articulating this because it just sounds very odd. But like, there was a woman in the group that her husband, apparently she was like, barely five feet tall. Her husband came home from Afghanistan. And one day, her 10 year old son found him hanging in the garage. And because she was so short, and he was already like five, three at like 10 G. They were trying to get him down. So she had her 10 year old son cut down dad. And it’s just there was someone else that it was her husband she knew he was really sad, but he she was like sitting on the front porch. And she’d been out there maybe like 510 minutes and her husband came out and said, Hey, come, you know, I’m going to take a nap come lay down with me on the bed, she found out. After laying down with him for like 20 minutes, she thought he was taking a nap underneath, like the pillow or something like that he had taken a whole bottle of pills. This is another soldier that came home. So he had died. And she had no warning and she knew nothing. So listening to those things, it made me feel better in people’s grief. And that sounds awful. But it’s like you compare your situations and those things that I just felt so extremely grateful to have been with him. And I mean, I had no words for these people. These are the most catastrophic, tragic, horrible things to happen. And when people are trying to tell you, you know, you need to be happier, you need to move on or you need to do this. There are a lot of people are really well intentioned, but they and they want to help and they don’t know how to help. And that’s what I’m trying to do with this book. Whether it’s you or your family, or a friend or a friend of a friend or whatever, I have ways to talk to people ways to help people ways just to be more sensitive, because grief is such a taboo thing that so many people don’t know how to talk about, I think the most helpful thing people did is just listen, be willing to listen. A few weeks after he died, I created a healing blog, which was like maybe 1/3 of the people that I had on Facebook where I would just kind of bleed on paper and write how I was feeling and be open and honest and I have all these posts as well in the book as they’re happening in real time. For me, it was just really helpful to feel like I was getting it out getting it out to the world I wasn’t holding on to it and just having people respond you know I’m here any time or you know, those types of things I initially thought of calling this book a few years ago and I thought of it how social media saved my life because it really is I mean even you know pre COVID we’re all very isolated we’re all very stuck to our phones and all of these different things but if you can feel that support those types of things, that was really helpful and it was really an eye write about this as well it was really hard for me to ask for help. You have a lot of pride and you know it’s really tough but you’re if you’re the spouse, you’re the you’re the caretaker you’re the team captain when your persons ill and you’re taking care of it and you are glad to be giving updates and asking for help because you know you can only do so much later when it’s you. I felt like a hamster that had lost my wheel but I was still running because I was so used to taking care of him and needed to know all these different things. So when it came to taking care of myself, it was a lot harder to ask for help and I ended up posting in this blog a few times like Will someone text me or call me or you know, someone came in took me for a walk? Yes, like a dog. Like she was like I left my dog inside and she was like Rachel, let’s go for a walk. You know, put on your shoes Come on. So I think the biggest thing I had to learn the hard way is just asking for help and knowing that it’s okay not to be able to do it all yourself. That’s the thing about being a caregiver is you, a lot of people show their needs. I say, I think I was about 5050, I would go to a concert every now and then or a friend would come for a cup of coffee to the hospital or whatever. But it’s really tough to realize, this is me now, nobody else is going to be able to do it. You know, you got to suck it up, you have to do it. And within doing that, ask for help. And like today, present day, I have alarms on my phone that I have set to check in with different people that are going through some tough things. So I don’t forget, in my busy life, checking in with them, like I had people check in with me. So those are, I would say the biggest takeaways and things that were said that were helpful and that were not.

Victoria Volk  35:43
I like that last tip. So what is one tip that you would give? Well, I think there’s a lot of tips actually rolled into that too, for other people hurting and going through something similar. What was the best piece of advice that someone? Well, you said your was your brother, like, right? Was your brother then told you to be better or better?

Rachel Engstrom  36:06
Mm hmm.That was a really good one. Um, what was really helpful to me is I had an aunt Tell me, like when I was like six months out, so I would have this countdown, count up, I guess you could say, so each month after his death, like the the day, to the you know, every month after he died, so it’s like may 21, June 21, I got more empowered and excited as the months would go by, because I would be just excited that I’m making it I’m surviving. And my aunt said something like, I was just like, Oh, you know, I wish I could speed this up to do that so hard. And she said, this is so fresh, you have to give yourself time. And I think people don’t realize. So I’m eight years out. And on his death anniversary, I used to have like, my sisters get together or I’d go to a friend’s house, like people that actually knew him, I would spend time, you know, go do something fun. This year. I’m just working. It’s been eight years. It’s, it’s I’m very displaced from him in that within writing about it so many times. But I’ve worked really hard to get here. Of course, he’s dear to my heart. The reason I’m doing all of these things, but I have successfully moved on. Of course, it’s taken a ton of work to get here. But I think that just knowing that, you know doing things on your own timeline, doing what works for you, is the best thing. Sir. I remember watching friends, and Everybody Loves Raymond and Frasier and things like that, and just belly laughing and being like, I can have joy, like really, really realizing these things about yourself, creating these new traditions creating these new things. That’s not, you know, the easiest thing to do, but, but doing that is great, because when you are six months, one year, two years, that’s still really fresh. And I think that having my aunt say that to me, let me know, every, every bit of laughter I had every like those were gems to put in my little bag of I’m making it I’m being successful, those things that it does take it’s like a staircase that takes and you don’t know where the top is, it’s going into the clouds. So I think that hearing that little bit of wisdom helped me rephrase my urgency because you just want to get it over with you want to feel better, you want to zoom into this place. And that’s not really a tangible thing.

Victoria Volk  38:41
I want to bring circle kind of circle back to like all these the different losses that you had mentioned earlier, and like the groups and stuff, and I think it’s easy for people on the outside to make assumptions to that. It was a you know, it’s a loving relationship, right? That Yeah, whomever you lost was a loving relationship, but I just want to feel the need to bring up that sometimes that’s not the case. And so especially if you’re someone that is going to say something like, let’s see, for example, they’re in a better place now. Yeah. I mean, just some of the things that people say it’s like, well, you know, you don’t even know, we don’t know what the intricacies of the relationships are like, right? We don’t know, behind closed doors, what how the relationship really truly was, we know people for the for what they show us, right? And so I just, I don’t know, I felt the need to bring that up that sometimes you can lose a spouse but it might not have been a loving relationship. They might be relieved, because they were being abused. Right. You know, so I just wanted to bring that to attention. I just felt like I had to I don’t know why. Yeah, no, it’s very true. So I mean, it sounds Like, grief has taught you a lot as it does for all of us. Even me, 30 years out 30 plus years out of my own losses, what gives you the most joy, though today?

Rachel Engstrom  40:16
That’s a loaded question. Well, my faith, my faith and knowing that I went through the toughest thing possible. And not that I want more, I’m hoping that, you know, like Sam about to be 39 I’m hoping that the bad stuff happened when I was younger, knock on wood on my fake wood dust here. But that, not that I want bad things to happen, but I’m like, Here I am, hear me roar. I’ve been through the worst thing ever. And since I’ve been through that, I know that I can get other through other things as well, you know, I had, I was eating like ice cream before bed, like, almost every night for a couple weeks, like a couple years ago. And I was sweating at night. And I didn’t know the correlation between like your sugar levels, and you know, then you cover up with covers that, that if you have that before you go to bed, it will make you sweat. And sweating at night is one of the signs of leukemia. So, you know, I’m panicking, like, oh, we’re going through cancer, and I’m going to the doctor, because it’s all these things that you know, from being there. And just knowing that you need to take everything, as it is, as the day, things totally changed. God says, you know, if you make plans, you laughs that those plans, you really can’t pre plan too far ahead. I think that that brings me a lot of joy of living in the moment, being there for what’s going on. You know, I’m a planner, but being able to step back and, you know, check myself on that. Five and a half years ago, I started a job but a new place that launched a new life for me. And two weeks after I started, I had dental surgery took antibiotics that ripped up my GI tract, and I had that I was diagnosed with IBS and a colon disease. Awful as that was because I was very sick for a couple years. I’ve become an amazing chef and Baker. I was good before. So that makes me really happy. Sometimes it’s really annoying because I have to make everything from scratch. But I really enjoy baking I really enjoyed cooking here in Minnesota was 80 of other day it’s been raining, but you know, I’m trying to get out and hike and do those things. And physically, I can’t do as much as I could with digestive things. And I still have endometriosis because I still kept one ovary. But you know, getting out, being outside, walking my dog, the same dog that she’s 10 she just turned 10 that’s been with me I talked about in my book since we got her as a rescue puppy. At four months old, my when my husband was first sick, all these little regular normal parts of life just make me really happy. And knowing that, you know, whatever happens, however, you know, I will gladly take IBS, Nicole and disease because I’ve seen the cancer world I’ve been in the hospital, I’ve seen it all. Being able to I feel like I just have this wealth of knowledge and experience of I’ve seen the worst, I’ve had the worst thing happen and knowing that whatever may come is as much as I hate the cliche, like it couldn’t be worse, it really could. And what brings me joy is to know that the experience that I have can truly connect me with people to tell them I am so sorry, it doesn’t make it easier, doesn’t make it prettier, doesn’t make it more fair, what you’re going through, it’s so tough. And I really I’ve been there. And you know, within this book, I just want to get it into millions of hands. Because when you’re in it, you really do you feel alone, you really do feel isolated. And you know, I’m just really proud of this book, by the grace of God to be able to give people some tips and tools on how to navigate it. And you can see, you know, I have this amazing love of my life and my life went Oh, and then it took a while but it went back up and now I’m I’m just excited to help advocate and tell people, I went through it, I’m okay. And you’ll be okay too.

Victoria Volk  44:21
Is that what you would like to scream to the world?

Rachel Engstrom  44:25
 Yes.

Victoria Volk  44:26
That was what that’s you know, really the premise of my podcast and why I wanted to start it too is that the education piece that bring this topic to the forefront and talk about grief, like we talked about the weather make it just an open conversation that we feel we can have with each other and without criticism and analysis and judgment. And in that there’s hope and that’s why stories, you know, like yours and other guests that I have on my podcast. That’s the whole point is to show that there is hope Is there anything else you would like to share?

Rachel Engstrom  45:03
I don’t think so. I feel like I’ve put a lot. There’s a lot on the table for people to think about. There’s a lot on your buffet.

Victoria Volk  45:12
I think just their story people. That’s I mean, that’s how people see themselves is through other people’s stories. And, you know, we all agree that 100% there is no half Grievers. And it doesn’t matter what your losses it’s, it is hurtful to you, regardless of what it is and what caused it. And it doesn’t need to be a big t trauma loss to deeply impact you. And can we do can actually, can we speak to the whole because this isn’t the whole point of you being on but I do feel it’s a topic that actually as a topic has that has not been covered on my podcast, but knowing that you will not be a mother, how have you navigated that?

Rachel Engstrom  46:02
Yeah, um, so I actually looked into adoptions and different things like that. And it was just, I mean, it’s, I feel like it sounds stupid, but the expense of it was something that I couldn’t, I couldn’t afford. And I’m, you know, I’m an aunt, I have four nieces, one of them just turned 15 other day, they’re seven, almost 17 1511 and 11. And I actually was a professional nanny raising babies and things like that. You know, I see Gerber commercials, all that kind of stuff, it’s tough, I had to take some time off social media because I’d seen people with their happy couples and babies and things like that when I was grieving so I think abstaining from those things, it’s smart, because we all compare, you can’t not compare. I do still to this day, sometimes grieve it a little bit. But I also know that the amount of time and energy that I’m putting into advocacy to help other people I wouldn’t have that time if I had a child so this is my baby. Trying to help other people is is my baby so I’m okay with that.

Victoria Volk  47:13
And that’s a beautiful reminder too that the fastest way to help ourselves heal is to put that put our energy to others to feel better probably the quickest turnaround you’ll ever get to feeling better is to focus on others

Rachel Engstrom  47:31
yeah yeah

Victoria Volk  47:33
yeah. Thank you for sharing that.

Rachel Engstrom  47:36
Thank you

Victoria Volk  47:37
Sorry, I put you on the spot it just is something.

Rachel Engstrom  47:36
No no no it’s okay.

Victoria Volk  47:42
And I know I can imagine that people have said all kinds of things, well you can always adapt

Rachel Engstrom  47:49
you can adopt and it’s like I don’t think people realize it’s like minimum like $40,000 Yeah. And you know, I have several hundreds of dollars a month in student loans and you know, all these things it’s just it’s not easy and it’s very I mean the mental health aspect it’s very complicated as well with an adopted child and all of these things and I’ve already been through some really hard things so

Victoria Volk  48:15
Yeah, and I think to like people might assume if you don’t have kids if you’re of a certain age and you don’t have kids we can make these assumptions of well either you can’t or and if you choose not to whatever you know there’s there’s plenty of people out there that choose not to oh my gosh.

Rachel Engstrom  48:41
yeah, I’ve met a couple friends that don’t and it’s just it’s a choice.

Victoria Volk  48:45
and it almost seems more offensive to other people you know that you choose not to but yeah we project Don’t we? We project do Yeah, yes, we’re projecting society. But I hope that through just talking and having these conversations that we can just bring some compassion to and know and leave the assumptions at the door, right? Yeah. Thank you so much for sharing anything else you would like to share?

Rachel Engstrom  49:15
know so you can find wife widow now what? Victoria will have the links, but you can find it on Amazon and it’s in paperback you can actually write in the budget sheet finances all these different things. Or if you get the ebook version, you can actually click on the hyperlinks they will take you to all the different websites to navigate what you need to and then you can find me why footer well, Rachel, wife widow now on Facebook and Instagram and you can ask me questions, anything you want, I’m open.

Victoria Volk  49:43
Alright, and I will put those links in the show notes and you know, the organization that you are currently raising money for that will be over probably by the time this airs, but I will still put the link for that. If you want.

Rachel Engstrom  49:57
Yeah, you can still donate. I’m very Very needed.

Victoria Volk  50:01
All right. Well thank you so much for sharing your story

Rachel Engstrom  50:03
Thank you, thank you.

Victoria Volk  50:005
And remember, when you unleash your heart, you unleash your life. Much love.

Ep 59 | Faith Wilcox

Faith Wilcox | One Year to Live; Forever Without My Daughter

SHOW NOTES SUMMARY:

On a day like many others, Faith had taken her daughter, Elizabeth, to a doctor’s appointment to investigate Elizabeth’s knee pain.

What was thought to be an innocent visit to the doctor, who suspected the issue was nothing serious, quickly turned the family’s life upside down. After an X-ray and further testing, they learned Elizabeth had Stage IV osteosarcoma, a rare bone cancer.

They didn’t know it at the time, but Elizabeth had one year to live. The last three weeks of her life were on Hospice care. Faith would spend the next 10-12 years of her life grappling with the sorrow of losing her daughter before she felt like the grief had loosened its grip on her life.

The writing she had done while at Elizabeth’s bedside would later become a memoir. It’s about the story of a courageous and compassionate young woman and a grieving mother and family. Faith shares insights into things she learned at her daughter’s bedside, the many stays in the hospital, tips to understanding and absorbing the medical jargon, and all that came after.

What would you do if you knew you had one year to live?

RESOURCES:

CONNECT:

Victoria Volk  00:00
Thank you for tuning in to another episode of grieving voices if you’ve been here before And if this is your first time Welcome. Thank you for being here. And Today my guest is faith Wilcox, and her 13 year old daughter Elizabeth was diagnosed with a rare bone cancer that took her life. faith journey from grief and despair to moments of comfort and peace taught her life affirming lessons, which she shares today through her writing. face. Faith is the author of Hope is a bright star, a mother’s memoir of love, loss and learning to live again, which will be published in June 2021. Faith is also the author of facing into the wind, a mother’s healing after the loss of her child, a book of poetry. A longtime resident of Massachusetts faith leads a journal writing program at Mass General Hospital for Children for patients and their families designed to give participants the opportunity to express themselves, alleviate stress, celebrate victories, and honor their grief. And today, I honor your grief by having you as a guest. So thank you for being here.

Faith Wilcox  01:10
Thank you very much for this opportunity.

Victoria Volk  01:13
So let’s start share the story of Elizabeth with us.

Faith Wilcox  01:18
Of course, Elizabeth was a very happy, outgoing, often Silly child. And she was a star swimmer and the soccer player. And the summer of her seventh grade year, she started complaining of pains in her knees, and, and one knee and after a short period of time, we went to see the doctor, the first doctor did not think there was anything unusual going on. And then a few weeks later, we went to see a a orthopedic doctor who took an X ray. And then our world started tumbling in on us. I wish saved a call very soon thereafter. And we went into Mass General Hospital. And I didn’t know that we were going to see an orthopedic oncologist. But when we entered the room, that was quite a big shock for me. But Elizabeth fortunately, didn’t see the placard on the door that said oncologist, but we could see when we were in the room that we were in a very different kind of setting, because many people had prostheses or some apparent problem. So after three days of diagnoses and a small surgery, we found out that Elizabeth had osteo sarcoma, which is a very rare type of bone cancer, and it’s a very aggressive type of bone cancer as well, because bone cells are growing in adolescence quite rapidly. So it’s a terrible time to get the disease. Listen to this had nine months of chemotherapy and radiation treatments. It was a very, very rugged ordeal. She did extraordinarily well through the whole process. Of course, she did well in her spirits. But of course there were times that were so very hard, just very hard for her to lift her head off the pillow. But she always had an engaging smile. And that lifted my mood and lifted the mood of people under those around her who loved her. She had a great outpouring of support and love, which helps sustain us during these really difficult days. Despite all of the work that was done to help save her, Elizabeth cancer just kept on progressing. And she died in my arms one year after she was diagnosed. One thing that I really love to remember about Elizabeth is that about halfway through her treatments. When we were in the hospital, she would get in her wheelchair, wheeled herself down the hallway, go into rooms and speak with children who had no the arrived on the hospital floor. She would explain procedures to them in a way that they could understand. She took away a lot of their fear. She didn’t have very much energy at this point. And for her to share her meager energy really to help others was quite extraordinary. And parents would come up to me and say, we had so much fear walking into here but seeing Elizabeth and hearing her explain what’s going on has really helped alleviate a lot of our anxiety. We’re really so very appreciative. And this is part of what Elizabeth was she was only 13. But really she started to blossom into a young woman in this process and her compassion for others really grew. And that’s something that’s one thing that I’ve learned through her is that understanding how much compassion can help people in their times of need.

Victoria Volk  05:03
That’s beautiful. I think a lot about my own daughter, she’s 14 now. And she’s walking sunshine. very compassionate and thoughtful of others as well. And so my heart goes out to yours. Thank you, Elizabeth. And I do have a medical ish kind of background. And I am curious. Because actually, there’s someone in my community too, and I’m not sure if it was the exact same cancer, but I know it was a rare bone cancer, but they’re their child’s was in the hip. Was in the hip?

Faith Wilcox  05:40
Yes, It can do that.

Victoria Volk  05:44
I’m curious. When it was, when she was diagnosed, had it already spread so much that that mutation wasn’t even an option.

Faith Wilcox  05:56
They discussed amputation. But what happened is that Elizabeth, when she was diagnosed was already at stage four cancer. We didn’t. I didn’t know that for a little while the doctors would tell us information. Step by step, I think so that we weren’t totally overwhelmed. I mean, we were overwhelmed, but that I know, they wanted us to keep holding on to hope and there was a chance that she could survive it. But it had already spread like to her to her femur and into her hips and into her sternum.

Victoria Volk  06:42
After her while you’re going through this, I know from your information that you shared with me that you do have you have another daughter and so was she, like, how? How did you navigate that as a family that whole year?

Faith Wilcox  06:58
It was extraordinary, extraordinarily difficult. On top of all this, I actually separated from my husband then and went to live with my sister we were our marriage was quite fragile anyway. And I found that he was really not able to help us and provide the support that we needed through this very, very difficult time. So I was in the home with my sister and her husband and her children. So that was very supportive for my older daughter, Olivia. And Olivia and Elizabeth were best friends. They were only 18 months apart in age. Academically, they’re only one year apart. So they went on a school bus together, they played and had recess at similar times. I had lunch at similar time. So they were by each other’s side all the time. And it was absolutely devastating for Olivia to see Elizabeth grow weaker and weaker and thinner and thinner. And she did the best that she could, but it was so hard for her to because she was only 15 at the time. And she had started a new high school which was much bigger than her middle school. And I remember one day she came home and she looked really upset and she said Mom, kids are complaining that their hamburgers, overcooked mean, don’t they understand that there’s so many more things to worry about in life. And Alex, you know, really had been thrown in the deep end. And I did my best to support her. And fortunately my sister Susie did a tremendous amount as well to help support her. She was violets best bedside when she could be. But it was lisabeth spent a tremendous amount of time in the hospital as I did with overnights and again, it was supportive my sister, and I have one other sister as well. And family members that really helped Alyssa Olivia during this time. And it was very hard for me. I felt very torn. I felt that I wasn’t being as present for Olivia as I could be. But it was so critical that I was present for Elizabeth in the hospital. So I I had to make some very, very hard decisions.

Victoria Volk  09:17
I can’t imagine that’s a lot of loss and change for a child for you. I mean, that’s a lot at one time. How many years ago was this?

Faith Wilcox  09:32
Now, this was 20 years ago which and sometimes it does seem like that much time has gone by and other times I can just close my eyes and see Elizabeth and it doesn’t feel at all It feels like maybe a few years have gone by not not two decades.

Victoria Volk  09:49
I can resonate with that. I think a lot of Grievers can, it’s you know, it’s yesterday was 34 years my dad passed and you know, it was a different This year for me, it was just, I’ve gone through an end of life. doula training recently and Oh, just conversations I’m having on the podcast about end of life or about just stories like yours like it this year felt a little different for me. And, and they always do, right. I mean, whether it’s five years 15 or 25. It’s, we evolve with our with our grief.

Faith Wilcox  10:27
We certainly do. And there are times that I’m still surprised, there’ll be something, I’ll see a friend of my daughter’s or I very, in a very loving way got a card from one of her friends who had recently had a baby, but it it, I was thrilled for her. But I also felt so much lost because Elizabeth would have now been 33, and probably would have been at the point of being married and being a mother. And so that’s just reminds me about how much laughs there is when, when a child dies.

Victoria Volk  11:06
What were the ways that others I know you mentioned your sister, and how she supported you, and we’re there for you. And what were there surprising things that came out of this experience that you learned about grief and about yourself?

Faith Wilcox  11:24
I learned that, well, grief can surprise you. There are times that can be so much harsher. And there are times that you can start to feel a little bit better. And I learned some ways to find comfort and peace. And for me those ways were walking in the woods, with my dog or with my new husband, walking by the seashore. Spending time in nature I find extremely soothing. I also do a tremendous amount of writing. And I found that if I can express myself through my writing, even things that I never really wanted to say out loud, the process of putting them down on paper opened up my mind and in many ways sort of released my anxieties that I had. And I could also write about my hopes and my dreams. But it was a bit certainly was a process. And now I know that grief will stay with me. But it is no longer disabling. I can live my life. Now I remember Elizabeth with great joy and great love. And I can go out and I can give to others in the ways that I do in my in my daily life. So I found that grief changes you. It makes you more compassionate. And it makes you more aware of the world and others who are in need.

Victoria Volk  12:52
I agree. I think when you experience the depth of sorrow, and your loss is your loss, the most important loss is your loss. Right? That’s I don’t care what the loss is. It’s always going to be painful for the person that experiences it. And so that can be our greatest teacher or it can be our greatest debilitate her. And I know there’s no there is no timeline degree if there isn’t an I speak about this a lot when it comes to grief recovery. Time heals all wounds, you know, that phrase that everybody knows, is a myth. And but I’m curious in the time that it’s been since that that loss and that you all the change that happened? How long did it take you to pick up the pieces where you really truly felt? Like, no, I really am okay, this time, like I really do. I got this now.

Faith Wilcox  13:56
It took a long time, I would say more than 10 years. It’s hard to say exactly. But I would say probably somewhere between the 12th. And maybe the 13th year, I started to be able to interact with more confidence with people. It wasn’t that my confidence was lagging. It’s just that sometimes people would bring up Elizabeth or they’d bring up something and I would feel I would either feel hurt or I would feel like I was about to cry. And I didn’t want to do that and so many different situations, especially if someone didn’t know Elizabeth and didn’t know her life. So it really took me quite a while until I build up ways as I said that I knew that I could find some comfort and peace. I also had a lot of therapy along the way. And the therapy helped me tremendously. And I learned you know, I wasn’t alone in my grief and I learned that of other people. who had lost children or lost a loved one, and spoke with them. And I sometimes would speak with other people more as a, actually I was more as a listener, and they were speaking to me of their grief of losing their child. And I realized at that point that I’d come a long way because I could listen to them, empathize with them, and not have the same pangs that I did earlier. So it definitely took me more than a decade

Victoria Volk  15:31
In grief recovery too and I have to say this, because for anybody listening, it’s never too soon. And it’s never too late to address our grief. And I walked a woman through a loss she had only three months ago. And so when I think about my grief, 30 plus years out, and it was only like two years ago, that I really addressed mine, I’m thinking, gosh, over 30 years, or 30 years of my life. Hmm. I feel like if only, if only, and there was things that I tried in between and you know, but nothing worked for me, like grief recovery did. So had I said to you, within a year or two years, this will work for you. Do you think you would have been ready at one to two years? Or do you think you would have been open to that?

Faith Wilcox  16:30
I don’t think I would have had the confidence to say that, that some something’s going to work, something’s going to make me better. I always held on to some hope. But it was. Yes, if someone had come to me one to two years out, I would have said, you know, thank you for trying, but I don’t think it’s going to work with me.

Victoria Volk  16:52
So let’s unpack that a little bit. Because I really think that this will be helpful, not only for me to learn how to speak about grief recovery, but also for listeners, because I can’t imagine that pain of losing a child. First of all, I can’t I don’t even know what that’s like, and I’m not going to pretend like I know what that’s like, Is it because you feel like the depth of your pain, like just nothing can possibly just pull me out of this? Do you think that’s what it is?

Faith Wilcox  17:22
That’s a good way of saying the depth of my pain, it felt that. Like, a few limbs were taken off of me. It’s amazing to know, but there’s no word for a woman who’s lost a child or for a parent who’s lost a child. We have widow and we have widower, but it’s almost as though there’s no way to sum things up into one word. And really, our children are, are braided into us, we can’t pulling that out. It’s like pulling two sides of a braid at the same time. It’s very, very, very hard to do. So I think I was living my pain and literally having a lot of physical pain at the same time, too. I understand now that that how much pain I was in emotional pain and physical pain can go hand in hand. I didn’t understand it at the time. But I think that’s primarily why I couldn’t I couldn’t don’t think I could have managed early on.

Victoria Volk  18:32
No, that’s fair enough. I mean, I’m, it’s like the suffering is overwhelming. And as I’ve been talking about recently about suffering, it’s I had an interview not that long ago, and I was talking about suffering and what I shared was your suffering anyway. What if you can suffer and put one foot in front of the other? And I feel like that’s maybe the best message I can give others right now who feel like they’re in this. Like, they’re just white knuckling hope and feel like just nothing. Nothing can take any of that pain away.

Faith Wilcox  19:27
They do like that concept that you’re in pain anyway. So why not? Why not try? Why not put one foot try to put one foot in front of the other? In a way you could say you don’t have anything to lose. Because you If anything, even if you got a whisper of relief, it would be a big help.

Victoria Volk  19:48
Right? Yeah, I wish I would have known you back then.

Faith Wilcox  19:56
Yeah, that would have been special too.

Victoria Volk  19:59
You know grief recovery has been around for over 40 years. Can you believe that? I can’t believe that like it’s, but it’s only recently in the last I suppose, six, seven years maybe that it’s kind of online and it’s gaining gaining more traction. Because before that was pretty much just word of mouth. But I just think of all the Grievers out there who, like you, just just not that you didn’t have hope, because you did, and your daughter taught you that right to never lose hope. And if we don’t have hope, what do we have? So I hope and move your feet. Right?

Faith Wilcox  20:42
That’s a good, that’s a good visualization for me.

Victoria Volk  20:49
So share with us, if you will about the writing, because you’re writing just for your own therapeutic. Write for just for yourself, and then it kind of then evolved into a book or?

Faith Wilcox  21:03
Yes, that’s exactly what happened. I started writing by my daughter’s bedside. She you know, you spend a tremendous amount of time in the hospital, and some time my daughter would be sleeping, or sometime it would be nighttime. Or sometimes our days and nights were so confused, I would write by day I write by night. And I felt that it helped me enormously express things that I kept bottled up inside, there are some things I just didn’t want to say aloud. But I could express them in writing. And I really found that I could write about many of my fears, I could write about my anxieties, I could write about how I was feeling or coping, I could write about how Elizabeth was feeling or coping, I could write about the positive things that came out the friendships that we had the family that supported us tremendously, the medical community, which was enormously strong and supportive, and very, very knowledgeable. And what happened over time, is I also wrote about the process that we’re going through, because there’s so many medical terms, there’s so much information that you don’t understand at the time. And even if you can write it down, just write down the name of the illness or write down the name of the procedures, then you can go back at a different time and say to your doctor, Okay, I understand that this is about to happen. But I don’t really understand why or I don’t really understand what this procedure entails. So just writing it down can help you kind of organize in your thoughts, rather than just be this flood of information. Your your brain can’t sort out that much information that quickly. It’s just impossible, especially in medicine, which is can be sort of like a foreign language. So it helped me ultimately it helped me process what Elizabeth went through, and understand it better. And in time, I would be able to remember through my writings, the good days, the good moments, and it helped me to remember them as I went back and I read them again. And as I started rereading my journals, I said to myself, there is a story here, there is a story of a loving, and brave young person who contributed so much to the world. And there’s a story of a mother standing by her child and doing the best that she can, given the circumstances that she’s in. And there is a story of grieving, and there’s a story of healing. And I thought, if I put my, if I put a memoir together, I hope that one day it’ll help people who are in this process of grieving and give them hope for healing.

Victoria Volk  24:03
About that, and I will actually put the information in the show notes for the book. So let me ask you this, because I recently, as I mentioned, just went through an end of life. doula training, which is a person who sits with someone guides them in hospice care, like helps is kind of the advocate and the bridge between the hospice care team and the patient and the family. And so was hospice. Never a topic of conversation. That’s me being curious again.

Faith Wilcox  24:38
Hospice was a topic of conversation. And my daughter resisted it for a little while we had she had finished her treatments. We very sadly knew what was ahead of us. And Elizabeth at maybe three weeks before she died, said sort of whispered to me that She was ready for hospice care. So hospice workers would come to our house about two times a week. And they would make sure that her pain medications were adequate. And they’d talk to her and make sure she’s comfortable. But it really was at the very end of her life, the very last day that hospice was enormously helpful. They would quietly come and go out of her room. And they just they’re calm presence was very, very helpful to us. And toward the end of their life, they gave her mom, they gave her oral morphine. Because her, her breathing was just slowing down enormously. So hospice was very helpful to us.

Victoria Volk  25:50
Did she ever speak have conversations with people that had passed before family members or anything? Again? This is me being curious.

Faith Wilcox  26:00
Do you mean did she connect with someone who had already died?

Victoria Volk  26:03
Yeah, like in her would talk about anything like she did.

Faith Wilcox  26:08
One day she said to me, Mommy, I saw George. And George was a friend who was our age who died in his early 50s. And George and his wife, were unable to have children and say, they didn’t literally adopt, but they almost adopted my two daughters, because they just adore them. And we had many, many happy days, having lunches together or going swimming together or hiking together with George and his wife. And when she said, Mommy, I saw George, I was floored. Really, really floored.

Victoria Volk  26:45
Was that your first ever experience with something like that?

Faith Wilcox  26:48
Yes, it was.

Victoria Volk  26:51
Did. I’m curious too. Did that bring you comfort?

Faith Wilcox  26:55
It did. It did. I thought. And George had a tremendous sense of humor. So I thought, well, if someone can, can bring her gently to the next place, who would be a wonderful person.

Victoria Volk  27:09
Just yesterday, March 31 episode came out on my podcast, and it was with Dr. Chris Kerr, who has been researching end of life experiences. And phenomenal episode, if you have not listened to it, it will. But it talks he talks a lot about the medicalization of end of life. And just in talking with him, and through the end of life, death doula training I had, it’s really changed my perspective on end of life and how it can be truly a beautiful, life affirming experience that can bring you much closer to your loved one than you thought was possible. Yeah, so I just wanted to share that episode with you if you haven’t listened. What would you like to screen to the world? In the past or recently in wish people knew about your grief?

Faith Wilcox  28:15
That grief goes on for a long time. And that there are days especially early on that people would get, I could tell uncomfortable being around me. And I would want to say to them, it depended if a how well I knew them. Just talk to me. Talk to me about Elizabeth. Talk to me about Olivia. Don’t pretend she didn’t exist. Don’t pretend that we just didn’t go through this huge ordeal. Because talking about Elizabeth would bring her back to me. And we could remember Yes, difficult times. We could also remember that happier times. Like let’s say when someone’s daughter was in third grade with my daughter and they used to play or have overnights remember her Don’t, don’t get so awkward around me that you can’t speak of her.

Victoria Volk  29:09
It’s almost like that indifference. And the silence is even more painful than saying the wrong thing. Made exactly you know. And like you said, Let this be a lesson to you listening. anyone listening. just acknowledge the person share a memory of them if you don’t know what to say, share your favorite memory of that person or what they brought to your life right when that have been just brought you so much peace just to know how she touched each person that you talk to right?

Faith Wilcox  29:46
Absolutely. Because then not only do you go back in time and remember much happier times, you know that your child is living on through memories and someone who she touched in her life. And that’s, that’s a blessing.

Victoria Volk  30:05
I want to share this too because this brought to light something I touched on before in different episodes, but I think it’s important to bring up again and that as a supporter of a griever or someone who like a acquaintance or a friend that you know, you meet on the street who you know, lost somebody close to them, like a child, in your case, follow the lead of the griever right? So if you’re sharing a story, reciprocate that if the person if the griever like yourself if you’re feeling like you know, it’s not like you got to look at body language to I think, you know, if you’re, if you’re kind of closed off and you’re not, like opening up or not really talkative Well, maybe it’s maybe it’s not, you know, because I think people get afraid then to upset you as a griever. He like they’re afraid to upset you. And so, but I think it’s just follow the lead of the graver. And I don’t know that any graver would be upset about a happy memory? You know, I don’t know.

Faith Wilcox  31:14
No, I can’t imagine that. I think I think everyone would be happy to remember to remember something in their past. And as I say, remember how your child touch someone’s life,

Victoria Volk  31:24
Or to learn of a certain event or a certain thing that they said or a specific, like something specific that you wouldn’t know otherwise? You know? Yeah, I just think sometimes we just fear just keeps us so closed off to connecting with, with ourselves and with gravers that, you know, we meet or Grievers that we know or what have you. So what brings you the most joy these days?

Faith Wilcox  31:59
What brings me the most joy is being with family in my new marriage. I also have grandchildren, and they bring me a tremendous amount of joy. I love I love being with children. I love watching their silly antics. I love watching how they grow, and they learn and they’ve learned about life and see their bonds growing with their family and their friends. And how they sometimes start to step out into the world. And then come come back and and ask for advice. So I, my grandchildren bring me huge amount of happiness. And I also love to spend time with my daughter, Olivia, I love to walk in the woods, or walk by the sea. Just spend time in nature is very, very comforting and reassuring to me, I also love to garden, read and write.

Victoria Volk  32:59
That’s beautiful. Find What brings you joy, right? do more of that.

Faith Wilcox  33:04
Absolutely.

Victoria Volk  33:06
Is there anything else you would like to share?

Faith Wilcox  33:11
I think to be gentle with yourself. There are times that you could say to yourself, Oh, come on. Now I’ve got to be able to be ready to go out to dinner with friends. Or maybe I want to go to an event. Go watch a baseball game. Or sometimes you have an invitation and you think, okay, maybe now I’m ready. And then you hesitate and don’t go, it’s fine. Just be very gentle with yourself. If you’re not feeling up to accepting an invitation, it’s fine. Do what works well for you don’t push yourself into any situation that feels potentially uncomfortable. And your friends will understand. They will they might take them a little while to begin to understand but they will. And you can have good conversations with them about it. And through opening up the conversations they will they will begin to glean a little bit about what it’s like to suffer as I was suffering. And then once you feel a little more confident do that stepping out into the world. And no, no, ultimately it’s going to be okay is going to be very different than what you imagined. But life is good. And there are many ways that you can find joy in this world.

Victoria Volk  34:36
Yes, I believe that too. And you made a very good point in that you kind of coach people how to be with you. You know you kind of have to you might have to be the one as a graver to open up that dialogue in that conversation and to share what you need and to share how others can support you. I will add As a supporter of a graver, don’t stop asking, right? Don’t stop asking, Hey, do you want to go catch a movie? Just don’t stop asking. Even if it’s no 20 times. Maybe it’s the 21st time. You feel like you know what? Yeah, let’s go. But let’s just go Yeah, let’s just go I got this. Let’s go today, or go for a walk and you don’t have to talk. Right? Or you can just have someone walk with you.

Faith Wilcox  35:30
Yeah, absolutely. Just have someone be by your side.

Victoria Volk  35:35
Yeah, we overcomplicate stuff a lot.

Faith Wilcox  35:39
That’s true.

Victoria Volk  35:40
Yeah. Thank you so much for sharing your story. Is there anything else?

Faith Wilcox  35:47
No, I think I think I’ve shared what I was hoping to share. And I just, I thank you for this opportunity. And what people who are grieving to really hold on to hope is in time. And with counseling and with help, it will be okay.

Victoria Volk  36:03
Yes, with community we don’t, we don’t heal on an island by ourselves. And oftentimes, that’s what grief makes us feel like and that’s why my, the artwork for my podcast is me with a megaphone on an island, right? Because that’s how we feel when we’re deep in grief. It’s like, no one’s listening to me. And I feel alone and isolated. And that’s what we do. That’s what happens. Because, you know, we don’t know what we need, necessarily all the time. And other people are afraid to make us feel worse, or they do say the wrong thing. And that makes us feel worse, or you know, so it’s such a difficult thing to navigate. And that’s why I started this podcast to bring people on, who have been there, done that, and bring hope, because without it, what do we got, you know, so thank you for sharing your story.

Faith Wilcox  37:00
Of course. Thank you so much for this opportunity.

Victoria Volk  37:03
Where can people find you if they like to reach out to you?

Faith Wilcox  37:07
Sure, you can find me at faithwilcoxnarratives.com. I have a website there, I have a way to contact me or otherwise just simply at my email at faithwilcoxnarratives.com.

Victoria Volk  37:24
Alright, and I will put that information in the show notes. And remember, when you unleash your heart, you unleash your life. Much love.

 

Ep 58 | Sherrie Dunlevy

Sherrie Dunlevy | Infant Son Death & Pet Loss: A Story of Refusing to Lay & Decay

 

SHOW NOTES SUMMARY:

As a former news anchor, Sherrie Dunlevy delivered bad news on a daily basis.

However, it was the news of a personal matter that would shatter her heart. Sherrie knew she would be delivering her son who would be born with complications and quickly swept away for medical care immediately after being delivered via caesarian. She and her husband would then spend the next 29 days holding their son until he passed away.

The years that followed led her on a path of trying to understand why people abandon those who are grieving. And, set the wheels in motion of a journey that would lead her to write a book and doing everything she could for herself to not live the rest of her life as nothing more than a grieving mother.

Wanting more for her life, she’s found a way to live fully into who she was called to be, and even after the death of her beloved pet during the pandemic, learned the power of addressing and feeling the grief when it comes.

RESOURCES:


CONNECT WITH SHERRIE:

Victoria Volk  00:00
Thank you for tuning in to grieving voices. Today my guest is Sherry dunlavy. And she is the author of How can I help and founder of graduating grief and host of the graduating grief podcast. Thank you so much for being here.

Sherrie Dunlevy  00:18
Victoria, it’s my pleasure.

Victoria Volk  00:21
And today is a very special day as we are recording because what brings you to grieving voices is the loss of your son.

Sherrie Dunlevy  00:30
Yes, today would have been my son Brandon’s 22nd birthday.

Victoria Volk  00:35
So this is a very special full circle podcast moment.

Sherrie Dunlevy  00:40
Yes, absolutely. Kind of surreal.

Victoria Volk  00:44
I’ve had my own full circle moments lately to tomorrow is 34 years. My dad is gone.

Sherrie Dunlevy  00:52
Oh, my.

Victoria Volk  00:54
Yeah, yeah, no. Is it tomorrow? What is the date today?

Sherrie Dunlevy  00:56
29th

Victoria Volk  00:58
31st on wednesday, actually. So thank you for being here and sharing your story about Brandon. And so let’s start there.

Sherrie Dunlevy  01:10
Okay. Well, 22 years ago, my husband and I were headed to a hospital to give birth to our second son, Brandon. At 18 weeks into the pregnancy, when we went for our first ultrasound, we that’s when we realized that there were complications. So it was a very bitter sweet. No, it wasn’t a bittersweet day, it was a very scary day, because I knew that as long as he was inside of me, he was safe. But all bets were off beginning today. And I’m just really emotional today, I guess. Because I don’t want to have happy memories of this time, we knew there were complications, we knew they were going to whisk him away, I knew I was never going to get to hear him cry, I was never going to get to hold him, they whisked him away to another Children’s Hospital. I mean, I had nine, nine doctors, you know, in the delivery room with me, and I had to have a C section. And so, you know, I knew all this going into it. And so you know, you just all bets were off. And, and my son lived 29 days. So it was just very, I don’t have those happy memories that most moms have going into labor, I didn’t even get to hold my child that day, you know, I got to hold my child as he was dying. So I think that’s that’s what makes this birth, these birth days a little bit more different than if you’ve had someone and you’ve been able to love them longer than what we have, or you’ve had the experience of welcoming them into the world. So I don’t really have a lot of fond memories. So I don’t look back a lot. But these anniversary days, kind of you have you do look back, I glanced back. It’s too painful to stay back there. And there’s no reason to because it doesn’t serve any purpose other than extending suffering. You know, I live now in this moment. And so it’s just very challenging to process all of this. I mean, my son’s life and death has has had such an amazing impact on my life and transformation that has come from it has been absolutely amazing. But I really don’t give myself the time or the pause to look back except for these few days, one in March and one in April when he was born and when he died, that I allow myself to go there. That makes sense.

Victoria Volk  03:59
No, it absolutely does. And I think that’s an aspect of grief that even I have forgotten or maybe didn’t give much thought to, in that. You can have a loss that where you don’t have those fun memories at all. Right? And in a way that’s a lot of those fond memories are what kind of bring you peace or can bring you peace. Right? Right. So I’m warm, I’m holding you in a hug today. Thank you. And I know we talked just very briefly before we started recording that you plan to really take today to 10 your heart and give yourself the time and space to do so and it’s very important. And

Sherrie Dunlevy  04:55
It is but you know I mean like I was saying I’m gonna give myself some time. It’s some time, I have a feeling that subconsciously I over schedule myself on these days. And I just wonder if that’s a way to like say you don’t have to think about this if you don’t want to, or that you don’t have the time to think about this. I mean, like I did, I actually added to my schedule this morning, like, and then I’m thinking, what are you doing? And then I’m thinking you knew exactly, I know exactly what you’re doing. So that’s when I decided I really cannot add anything else, I really need some time, some space to just process this a little today and spend some time with it. Not a lot of time, not a lot of time to dwell, but just process the feelings that I’m feeling, you know, allow those to come, they’re legitimate.

Victoria Volk  05:52
And then let them pass. Right? Yeah, instead of stuffing them down with work or other means that we do and the body. The body knows, I was just talking with someone not that long ago, and even 20. Some years later, it’s like, around this time every year, yep. And all these years later, you know, you find yourself, you know, maybe getting rundown, or, you know, what shows up differently for everyone. But I think it’s a, it’s that to have that awareness, though. And to maybe even plan for it. Vance, there was one woman who shared how she had this, it’s like a daily book, just kind of really just to give a little hope and insight and about grief, but it was it can’t remember the title of it. But she said that’s in its 365 days, you know, a phrase or a saying every day, and she said that’s really, really helped her in her. She was a widow, right young children. But she said that was really helpful for her, but she found herself having to plan, you know, for that time of year. And so, what, especially when those in those early days, what were some of the things that kind of added to that grief, the fact that you didn’t have the any joyful memories and things like that. But any anything that people said, or comments or ways that people didn’t support you that you hope they would have.

Sherrie Dunlevy  07:39
Yeah, I mean, there were. I was a television news anchor at the time. So I not only went through this, but I went through this all publicly, right. And so it was it was very, it was very challenging. And it was it was very surprising. Because there were people who showed up for us in a way that was indescribable that really I did not know who they were they they knew who I was, but I did not know who they were. And so that was surprising to me, but was also surprising to me were people who were closest to us who were not there for us. And in fact, I had one instance where one of my closest friends, I thought she was gonna say to me, I’ve got a sitter for the kids. Hang on, I’m coming up. You know, I’ll be with you. We’ll get through this together. And instead, I just couldn’t believe my ears when she said I’m sorry, I can’t do this. And she we ended the conversation and and I didn’t hear back from her. And then one day, six years later, the phone rings and it’s her and she just kind of wanted to catch up. I’ve been thinking about you even on my mind. I was we first of all, like, that ship has sailed. We you know, I was kind of like, honestly my first reaction was like you’re kidding me, right? Like you are seriously kidding me. I was kind I was not rude. I probably was a lot more quiet than what I was. But then when I came off of that call, I really started to think what was this about? Like, why all of a sudden and you know, and so that started me on my journey of wondering why people would abandon you when you need them the most and maybe they don’t even see it as abandonment but that’s what it was. Maybe they just see it as they didn’t reach out you know, but it was and I came up with three scenarios. The first one was that maybe it hit too close to home. You know when you have children and you are giving birth to children and and you’re one of your dearest Friends looses one of theirs, you just automatically think about, oh my gosh, what if that happened to me, and it’s just so frightening that you can’t even think about it and like to even address my sadness makes it too sad for you. The second thing is that maybe you just have never, ever had to deal with this before you don’t know what to do or say, it’s never really been modeled, no one in your life significant has died, or that you know, has died. So you just truly don’t know. But I think the more common one truly is that people really want to do or say something, they’re just afraid it’s going to be the wrong thing. They’re going to screw it up somehow. And so better to be safe than sorry, better to just not say anything, then say the wrong thing better not to do anything, then do something that they think we’ll bring on more pain. That being said, that’s when I started, I don’t know why like this furious search for resources. Because I just kept thinking, there’s got to be something out there to help people with this, this is just crazy, right? And I started to Google it. And I would go on Amazon looking for it. And I would want every time I was going to go past the bookstore, I would go in and look for a book. And I felt this calling and literally like, I don’t know that I had this voice. But there was this knowing voice that said to me, if you’re you can look all you want. But until you write it, you’re not going to find it. Oh my gosh, I don’t write books. You know, like I don’t do this. But the thing I always tell people, the thing between the difference between a good idea and a calling is that the calling doesn’t stop. And it just kept calling me and calling me and calling me and I don’t know how to write a book, well, then, how can you find out how to write a book, you know? And so it just every time that I said yes, another door opened and another door open and another door open. So I really do feel like it was divinely guided. But needless to say, many years later, I wrote a book called How can I help your go to guide for helping loved ones through life’s difficulties. And it is that resource guide that helps all three of those people know what to do and say, to help those that they love and care about go through difficult chapters in life, whether it’s the loss of someone they love through death, whether it’s divorce, whether you’ve just been diagnosed with something that’s terminal or chronic, whether you’re had to quit your job to, you know, take care of a sick child or a ailing parent, whether you’ve lost a job, whatever the scenario of loss is, what can you do to help and support your friends during this time. And these aren’t just my suggestions. Now I realize oh, okay, that’s why you were on television and a reporter, you know how to interview people. And so I interviewed people who’ve gone through all these scenarios, because I found out that this isn’t just death, this is any difficult chapter in life. Some people are there for you, and some people just aren’t. And so I wrote this book, and I’m very proud of this book. And it’s a number one bestseller, and I love this book, and I love talking about this book. But this book is not I was hesitant to release the book because I didn’t want the book to feel like it was pointing the finger at people. I don’t want to point the finger at people. It’s not about that at all. It’s I know you love your friends, I know you want to support them. So I know you’re scared. Okay, so this isn’t about you. This is about them. So let’s let’s make that mind shift first, that mind that that change that mindset, and then let’s talk about what we can do that will really help them. Because that’s what I wanted to know, when I interviewed all these people, what was it that your friends and family did? That was helpful to you? That they gave you what you needed to get through this? And what were some of those unique things and what were some of the things that maybe weren’t so helpful because I didn’t want to say wrong. Because I want grieving and hurting people to realize that sometimes your friends will say things that say sound bizarre that that could be offensive. But I asked the hurting person to take some pause and extend some Grace is the intention of their friend to hurt them, or is the intention loving and it’s just awkward, right? Because we don’t know what to do and say and they’re just trying to pull a rabbit out of it. To make you feel better, right? Or they’re, they’re relying on a cliche to make you feel better. I mean, we all know that, you know, they’re not in a better place we, because we feel their best place would be with us, right? But I just really chose during that time not to get all weirded out over the awkwardness of what people say, because I just feel we’re awkward because we don’t talk about this enough. So that’s kind of why I do what I do so that I get the conversation started. And I say, Listen, this is why we’re awkward. So let’s start just stepping up and doing this stuff. And do it afraid. And, you know, extend grace to one another for heaven’s sakes.

Victoria Volk  15:45
Yeah, you speak my language. You know this because I’m, you know, as a grief recovery specialist, and I know that you’ve gone through grief recovery yourself. And my mission is the same. Let’s talk about grief. Like we talked about the weather. That’s, you know, the podcast was my calling. And that’s why I have people come on, like you to share what was helpful. What was unhealthy, you know, what was unhelpful? Same, same idea. So we speak the same language? Yes, for sure. Um, so let’s speak to that the grief recovery, if you don’t mind for a moment, in when you discovered that and how it helped to transform your grieving experience?

Sherrie Dunlevy  16:29
Well, you know, I came late to the party, about grief recovery method. Actually, it was in the process of writing this book. And I had something I had a coach that was coaching me in my business. And he is, uh, he asked me if I knew what a clairaudient was. And I said, No, I don’t. And he said, a clairaudient is someone who receives messages. And the last two times we’ve met, I’ve been receiving these messages. And if you’re open to it, I want to give you this message. And I said, Okay, and he said, I’m just being told that until you deal with your grief, and you know, none of this, none of the things that we’re working on now are going to work. And I said, Who did you talk to, because I hired him as a business coach, he had he, he knew I was writing a book, but I never told him what my book was about. And I didn’t in in, he just had no way of knowing, right? I thought he had a way of knowing, but I’m like, Alright, and so he said, You know, I have a friend who coaches this, and I would be happy to introduce you. And so she was a grief recovery method. I don’t know what you call yourself, coach, facilitator, whatever. And I met with her. And it’s so funny, because my grief was two pronged. My grief was, of course, not dealing with the grief of the loss of my son, Brandon. But my son, my surviving son, Trey, was graduating college and leaving, graduating high school and leaving for college. And so I was losing another son, technically, right? in a different way, of course, but I had just devoted my whole life to being his mom. And this was my mission now. And so it was just very, I was like, Oh, he’s right. I do need to deal with this. And once I found out about what the grief recovery method was, once I got the grief recovery method Handbook, once I went through the process of oh my gosh, this is like, these are the most amazing tools. And I think one of the things in the earliest chapters was, you know, if you had a heart problem, you would be going to the doctor to take care of this. Now what is so different about your grief? And truth be told, you know, when I had my first son, Trey, I had postpartum depression. And so when Brandon was born, and he was in my doctor, I’d already known that I had gone through postpartum depression, and he was critical. critically ill. Well, automatically the thought was, we want to get you back on the antidepressants. But the thing was, is that I was on them for 13 years. And I kept thinking, I know it’s down there. I could feel it. I could feel it in me, but I had I could not bring it up and bring it out. I had no way of doing that. And it was just weird. So I just, I just carried it with me. It was it was below the surface. At the time I was doing the grief Recovery method though I have come off my antidepressants. So it was just like perfect timing. Because I was able to get there, I was able to get it. And I was able to extract it. And I was able to look at it. And I was able to deal with it. And then I was able to release it. And it was the best gift I’ve ever given myself.

Victoria Volk  20:25
And it is the gift that keeps on giving.

Sherrie Dunlevy  20:29
Yes. And yeah, yes, because the tools are always there. The tools are always there.

Victoria Volk  20:35
And I want to touch on to something that I mentioned when I talk about grief recovery is that the sadness doesn’t go away. You know, your son still has not been with you. That doesn’t go away. No, it is, but it doesn’t have the impact of it. Right? is greatly lifted, maybe reduced. Maybe even the impact is lifted and removed.

Sherrie Dunlevy  21:03
The pain is pain.

Victoria Volk  21:05
Yes. The impact of the pain, like the crippling emotional pain.

Sherrie Dunlevy  21:11
Yes, yes, pain is lifted, you are able to like I said, You know, I don’t have you, it doesn’t like what I say when I started graduating grieve, it doesn’t mean that you’re never ever going to be sad again. And they’re like, I got this I’m good and never to be revisited again. It just means it no longer has its power over you. It doesn’t not have the power to cripple you and take you under and keep you under and hold you under any longer. You know how to get back to the surface. You know how to see the sunshine, you know how to bask in the sunshine, you can seek your joy again.

Victoria Volk  21:55
It is possible.

Sherrie Dunlevy  21:57
It is that’s what I want people to know it is possible, but you have to choose it.

Victoria Volk  22:06
What would you like to scream to the world. And wish people knew about your grief?

Sherrie Dunlevy  22:17
Well, here’s what I’d like to scream for the world. Every life no matter how long or short it is, can make an impact. And my son lived 29 days and here 22 years later, he’s still making an impact. So what I want to scream to the world is your life can make an impact too. And the longer you are imprisoned by your grief, the less impactful you can be, the less you can make your impact on this world.

Victoria Volk  22:57
I 100% agree. 100%.

Sherrie Dunlevy  23:01
That’s what I want to scream is that I had to realize that my son’s life and death was a chapter in my life. It wasn’t my life. It wasn’t what defines my life. It’s not the label, I’m going to give myself the rest of my life. I am Brandon’s mom. I am tres mom. I am Rob’s wife I am Cherie, I am an author. I wear many hats, right? Why do I want to hold on to grieving mom as the total definition of who I am. I don’t want to get you know, I’m I’m a believer. I don’t want to get to the end of my life. And God say Sherry, would you do with the 5060 years I gave you after Brandon died? And I said, Well, you took my son and I laid in the fetal position and cried the rest of my life. That’s like burying your talents. You know what I mean? Like, no, I gave you this life. Why didn’t you do anything with it? Right? At least help someone else that’s there that has gone through it. Right? So I, I don’t not that I necessarily felt responsible for other people and their loss. I don’t. I just feel that I’m supposed to be a light. My life is supposed to be a light shining on hope and healing. That’s just what I feel like my life is supposed to be.

Victoria Volk  24:33
I identify with that. That’s exactly how I feel that’s and I feel like often it is our experience that leads us to our passions and our work often. Not always, but often. I think it’s just an evolution of who we are. But you like you said it’s the impact, right no matter how long or short that experiences and even more What we think might be insignificant to someone else like, and I’m just going to bring this up, I know we’re not talking about this, but pet loss, right to is, for a child can be very significant and impactful. But to many adults, it’s like, it’s just a dog, you know. And that’s one of our first experiences often as children is how and how we learn how to process grief, or deal with grief, or, well, it’s no big deal, you know, get over it, get another dog, you know.

Sherrie Dunlevy  25:30
Yeah, it’s, I, yes, I agree with you, 100%, I lost my beloved dog in January, probably these next to the loss of my son, the worst loss I have ever gone through. Um, and I’m not, I’m not gonna say it’s ridiculous, it is very true, I was very connected to him. And we cannot shield our children or people from this happening, I think one of the most amazing things that my mom did, and that’s what we tried to do was we tried to shield our kids from this, and then they can’t handle it, and then they are adults that can’t handle it, and then we eat too much, or we drink too much, or we try to numb the pain in an unhealthy way. Because we have no idea, any healthy way of dealing with grief. But you know, it’s scary. And even to a child, a dead body is scary. And I remember even as a child, the thought of forever, you know, whether a life ending forever, or an everlasting life forever was scary, I couldn’t put my head around eternity, right. And so those concepts are and then you and then you have the scared of a dead body kind of thing. So one of the things that my mom that I thought was was wonderful, in hindsight, is I remember when I was like, five years old, and one of her friend’s mother died. And there was a viewing. And my mom took me to the funeral home. And so I witnessed my first dead person, my first funeral without being emotionally attached. And so it got the unknowns and the fears of the unknowns out of the way. And so then the next time when that was a family member, or a friend, well, that kind of fear wasn’t there, it was just the emotional, right? And so I didn’t have to deal with all that. And I think as parents, we just try to protect our children from so much. So I would really advise you know, any parent out there exposure children to death in a way that it there if you can, as early as you can, and unemotionally as possible, because then that just helps it make a norm make it a normal part of living. Is that make sense?

Victoria Volk  28:12
Exactly. Yes. Yes. Yes. I mean, it’s, it’s normalizing grief, when you when you have a conversation, when you bring it to the forefront of it being a part of life, you know, we grieve because we love, whether it’s a pet, baby relationship, whatever it is, right? loss of a dream, a passion, a career, right? A home, I could go on and on. There’s more than 40 plus types of losses. It’s not just about death, but it’s the death of loss of safety and security, so many things, so many things that childhood sets the stage for how we address and deal with those things, for sure. I’m glad the conversation went there. I thought it was very helpful, what you shared and I absolutely 100% it’s in line with grief recovery. Throughout your grief experience what has given you the most joy and hope for the future.

Sherrie Dunlevy  29:17
What has given me the most joy, stepping into who I’m supposed to be becoming a little less. I don’t want to say less fearful, you’re always fearful, becoming more courageous in living and living and living. I remember when my son was growing up, I’ve tried to keep him protected. Physically, I just you know, he would climb up to the top of a sliding board or, you know, climb up on a ladder and I lost one child, I can’t lose another you know, and I realized I was inhibiting his growth and probably putting some fears putting my My stuff on him, which probably wasn’t, wasn’t the right thing to do. I understand why I did it now. And so I try to talk to him about that stuff. You know, I just tried to be open and honest about it. And I really, the joy that I have is being able to just let people know that you can live a beautiful life, it’s possible. And I think just by the joy that I get from talking about this, so that people realize it’s possible. I want them to know what’s possible. And that’s what gives me the joy when someone says, Oh, I never thought of it that way. Oh, that’s gold. That’s gold. Because maybe there’s, there’s that breakthrough. Because I just think like, we all have these gifts, talents and abilities they’ve been given to us. And fear always holds us back. And if we can step into who we’re supposed to be, this world can be beautiful. And we’re all holding piece of ourselves back because it’s been hurt, or it’s been trampled on. Or it’s been, you know, something happened to us. And so we’re trying to protect that, and keep it from happening again. But we can’t, we can’t. And so we just have to learn how to move through it. But moving through, it can be a beautiful process. I didn’t realize this until a couple of months ago, I did not know that there was a term for this. But we always talk about, you know, the post traumatic stress that horrible things that happen in your life can cause you. But I think in my case, I’ve had post traumatic growth. And I’ve had, I’ve been able to see the beauty in life, and to see the goodness in life, and to be able to want to embrace that, and put my eye on that. So a lot of beauty came out of this. A lot of growth came out of this, a lot of transformation came out of this. So that’s the biggest joy I have.

Victoria Volk  32:10
About that I would like to talk a little bit more about that post traumatic stress, or post traumatic growth. Yeah, because I’ve heard that float around to on social media and stuff and and i think that also has comes with its own grief because we can lose relationships, based on our growth, we can have an awareness of, Okay, well, you know, you cannot come along, I’ll bring you with me. But if you’re not going to come along, and you know, you can lose relationships. Yeah. And that way you can have an awareness that you didn’t have before that can bring to light Wow, that’s kind of a toxic relationship that’s kind of a toxic person or that careers toxic or whatever, what have you, whatever it is, and there’s grief that comes with that maybe even where you live, you might realize what I really want is this, that this is where I’m at. And now there you have a lot of change.

Sherrie Dunlevy  33:11
Well, that happened to me with my career, I left a you know, very established well established career in broadcasting. And left it I was like, Oh my gosh, this, this is not good. For me. This is not a good career. For me. I was wondering why I was so miserable, tried to get I was able to compartmentalize the the day’s news and come home and still be mom still be alive, still be happy. But after my son died, that’s when Columbine happened. And then two years later, that’s when 911 happened. And it was like I could not compartmentalize anymore the worlds of grief and pain became mine My pain, you know, I could not differentiate between any of it and it just became too excruciating. To remain there. I tried it for a year and it didn’t work. And and I couldn’t get out of it. I counselor actually said you can leave you know you’re allowed to leave I had to have. But that’s the thing. I didn’t give myself that permission. I had to have a counselor and now I try to do the work myself so that I can give myself the permission to move ahead as I need to move ahead, to grow into who I was created to be. That’s what we’re born for. This is to grow into who were created to be.

Victoria Volk  34:35
I’ve often wondered that as I watched the news, you know everything going on and I try not to leave. My husband leaves in the morning it’s off turned off. Yeah, it’s on in the background, you know, in the mornings and stuff. And I’ve often wondered that though, about the people that that’s their career to report the bad news because it’s not all sunshine and rainbows in the news. It’s rarely a Rarely happy news. And so I’ve often wondered about that, like, if what kind of support news anchors have or if any, is that even a thing?

Sherrie Dunlevy  35:10
Not when I was in it now, now and we’re the gatekeepers. So for eight hours I’m looking at I was a news producer, anchor and reporter. And so I, if I produce the news that day, I was taking in all the news from the network’s from the different states from the different countries, and then I would decide what I was pushing out to the audience, right? So for eight hours, I’m taking all of this in, so I’m taking in much more than I’m pushing out to you, right, I’m taking eight hours in and pushing out 30 minutes to you. And so, you know, 16 years of that, think about that, you know, I call myself a recovering news anchor. I I rarely watch the news, maybe I don’t even think it’s once a week. During the pandemic, I’ve maybe two times a month, enough to stay informed, right? You know what’s going on, I mean, believe me, you know what’s going on. And so I mean, if I need to find something out, I know where to find it. But to sit and be fed your 24 hour news cycles. 24 hour news stations, quite frankly, in my opinion, do more harm than good. They disrupt it was never meant to be taken in for 24 hours, it was meant to be convenient to catch the news, as was convenient for you. Okay, but now they’ve done all these tricks with the teasers to keep you staying tuned in for the advertising dollars and whatnot. And, and so they want to keep you there as long as they possibly can. And so how can you not if you feed yourself, this steady diet of all this negative news in the world is bad. And every child every every child is being as a target for abduction. And you know, just like you, how can you think that we have a beautiful world out there, right, you got to turn off the TV and you’ve got to get out and you’ve got to meet your neighbors and you’ve got to listen to the birds and you’ve got to feel the sunshine on your face. And you’ve got to feel the breeze. You’ve got to see the leaves and you’ve got to you know, get to know one another and see what real life is all about.

Victoria Volk  37:36
See feel see feel. Yeah, yeah, smell the goodness that is there. Yeah, absolutely. I love that. I love that the conversation went here, because I think that’s so important. With so much focus on mental health today. Yeah. Who is talking about the 24 hour news cycle? No, buddy. Yeah, on the news. Like maybe we are contributing to this mental health issue going on with our teenagers and you know, the constant phone access and all of this stuff. When you already have grief, which I would beg to differ that each and every one of us grieves something.

Sherrie Dunlevy  38:16
No, every single one of us going through this pandemic right now is grieving, whether you want to admit it or not. You’re grieving something.

Victoria Volk  38:24
Yes. Loss of health, loss of career identity, whatever it is for you. To me. Yes. Freedom. I mean, there’s so many connections hug. Yes, yes. We could go on and on. Right. So yeah. Is that? Is that serving you to watch this 24 hour news cycle? Absolutely not. Do you feel better after you’re watching it? No, probably not. So yeah, thank you for sharing all of that. I appreciate that. So what would say to someone who, like you had experienced a loss of in such a way that you didn’t have those experiences of joy in the meantime, did you do anything that was helpful for you? Immediately or during that time that you

Sherrie Dunlevy  39:13
that I can remember? Hmm. I, I allowed people to love me. And what I, anybody who showed up for me, even if it wasn’t an awkward way, I just accepted it is loving kindness. And I really tried to focus on the people. Just the gift of healing that other people were offering me in the ways that they could offer it, I guess is the best way to say it. I leaned on my family, you know it can pull a marriage a partner can strengthen it and it really strengthened my marriage. We my husband, and I just You know, like today, we just had the conversation. I said, How are you doing today? He says, I think I’m doing okay. And I said, he said, How are you? I said, I don’t think I’m doing so okay. And that’s just how it’s been through our marriage is that he’s strong when I need him to be strong, and I’m strong when he needs me to be strong. And so we honor that, and we talk about it. And we check in with each other. And so that’s what I say is just to, to be open and honest and vulnerable. And you know, I’m not fine is an okay answer. I’m not fine as an okay, answer. And I know this is off the subject, but I just want people to know that there’s nothing that you can say or do that’s going to make it all better for someone. So take the pressure off of yourself and just show up in love. Right? You can’t there’s no magic words. This is just something you have to get through. And so that’s I guess, you know, I focused on the good things in my life, I focused on where the love was I focused on my three year old son I focused on the people who were loving us through it was just trying to focus on the good that I that was still there in my life. And there is still good there in your life. You just have to look for it.

Victoria Volk  41:21
Look for it. Yeah, yeah. And I want to circle back to to the loss of your pet because that was very recent. Mm hmm. And there is a pet loss program. And that’s how important the grief recovery Institute feels pet loss is in our society to many people. How have you allowed yourself to kind of work through that and how have you been working through that loss?

Sherrie Dunlevy  41:49
It was a shock. It was something that was unexpected, and the feelings were coming up fast and furious, which was something that you know, it was different because my son I knew from 18 I had anticipatory grief with my son, right? I didn’t have it as batory grief. So this was just sudden, and he died in my arms and I was just shocked, you know, and the feelings came up. And I just thought they’re coming out. And I remember just sobbing and my husband and my son were sitting there and I said, I am totally committed to honoring this grief and this process. And I’m just gonna let you know that I’m honoring all parts of it. I am going to be vulnerable and when it comes I’m going to feel it and if that makes you uncomfortable or make someone else uncomfortable, that is a you problem that is not a me problem.

Victoria Volk  42:57
I love that

Sherrie Dunlevy  42:59
And I honored that and I stayed true to that and when I want to cry, I cry for my dog. And I literally just I felt release I mean I felt like this, I did it healthily. I use the tools I journaled I did all the thing you know what I mean? Like I did all the things that I needed to do to go through it I didn’t try any shortcuts. I kept saying I’m not fine, but I know I will be I’m not fine now. But I know I will be and just knowing that I will be allows gives myself the permission to get through it the way I need to. And that’s what I want people to know is that when it comes to grief, you think you’re you’re fooling Who are you fooling? You know, like who are you trying to pull the wool over their eyes, you’re not your body knows you’re hanging on to it. You know, it will come out it will come out as anger it will come out as frustration it will come out as addiction it won’t but it’s gonna come out. So why not do it? The way you do it in the most gentle say the right but do it in the way that’s most healthy for you. But that scares us every I remember telling people this when I before I did the grief recovery with my son. I’m afraid that if I ever attached to that, that grief that I will never be able to release it like once I start crying I’ll never be able to stop but that’s not true. It’s not true. You will some day at some point of some day cried enough, right? It doesn’t mean that you won’t ever cry again. But the crying will come to end.

Victoria Volk  45:07
Crying from the pain is is a very different kind than crying from the sadness.

Sherrie Dunlevy  45:14
Yeah. And there is a difference.

Victoria Volk  45:17
Yes, like crying so hard that you think your head is gonna explode like you can’t take it anymore type of Yeah, very ugly cry Yeah, yeah, remember my very ugly cry? Yeah worked on my relationship and grief recovery I was very ugly because that was like, many, many years of buried stuff.

Sherrie Dunlevy  45:36
Right.

Victoria Volk  45:39
I want to just touch on one thing, too. I’ve heard on social media recently I read something where someone said, you are entitled to your grief? And I’ve struggled with that I struggle with that, too. Yeah, I struggle with it. Because to say that to someone who is grieving. And you’re obviously you’re probably there, obviously, they’re looking at the account, they were aggrieved or to, you’re entitled to the grief? Well, you’re entitled to your feelings, yeah, knew you’re gonna have your grief. But to say it, I think and communicate it in that way. It like it just speaks to that attachment.

Sherrie Dunlevy  46:26
it’s gonna say attachment.

Victoria Volk  46:28
Yeah, yeah, it’s like this, like your Velcro to the grief.

Sherrie Dunlevy  46:32
Right to the wall, your label. And I have a real problem with that at that’s what I was finding. I think that support groups can be a beautiful thing. But at the same time, I also think support groups can make you believe that you that you are entitled to your grief.

Victoria Volk  46:58
Well in such a way that it’s this is how it is just going to be.

Sherrie Dunlevy  47:02
Yeah. And it’s and that is why I have graduated grief because I do not believe that. I, I I you know, like, that’s why I started graduating grief because I had been doing some other grief work. And I had been going into these grief groups, and it was breaking my heart that people were being told this that that, you know, just because that’s how someone else believes doesn’t mean, you know, I that would have horrified me. If I had gone into that believing that because I lost a child, I will never be happy again. Or that I will have to carry this dark cloud over my, you know, like, live with a perpetual dark cloud over my life forever. I don’t know, no, no, no, no. And, you know, you look back at remember when the widows used to wear black for a year, but then once the black was removed, right? There’s symbolism in that, that you carry it for a while, but then you read it, you release and you step into who you’re supposed to be. And that’s what I want people to realize, with the graduating grief that that I’ve started is that I want you have to do the work to step out of your pain. So that you can step into loving your life again. Now, that doesn’t mean that that’s going to be an overnight thing, right? Because you’re still going to have fears and you’re still going to have guilt. And you’re still going to feel you know, like all these feelings around that because I did too. But wouldn’t it be nice to be in a community where people are cheering from you for you, and people are encouraging you. And people are saying, you know, I’ll hold your hand and we’ll journey together. It’s what I always tell people journey together. We’re not trying to drive our car in a forward motion. By only looking at our rearview mirror, I want you to see your life ahead of you. Some woman told me the other day, the thought that I have to live the rest of my life. I’m counting the days How many days I have left to live without so and so. That’s a horrible way to live. That’s why would you choose that for yourself?

Victoria Volk  49:18
Because they don’t feel like they have a choice. And that’s what griefs makes us.

Sherrie Dunlevy  49:21
But you do!

Victoria Volk  49:22
I know you and I are the same train.

Sherrie Dunlevy  49:28
Yes, you do have a choice.

Victoria Volk  49:30
Yes, you do. Yes. We’re so on the same train. And I want to bring back to what you said in the visual of wearing black for a year and yeah, you know, you have this veil. And it’s like, yeah, you can change the dress, change your different color, but if you still have the veil, you’re still not going to look in the mirror and see who you could be without that grief. I like to use the analogy or the comparison of a veil like grief is a veil over our faces. We don’t see other people The same way we don’t look at ourselves the same way. It blocks us from who we are. We forget who we are even in that grief and trauma and all those rocks that we accumulate.

Sherrie Dunlevy  50:14
And the physiological, you know. That’s why I was like, Why? Why don’t people know about this? You know, first of all? And secondly, why wouldn’t you immediately try to do something to feel better?

Victoria Volk  50:33
Right? I gotta, I gotta, I gotta point on that. And this is, this is my, my stick on this. So in grief or suffering, you suffer, you feel like you’re just suffering? Why not suffer? But move forward? In the process? Mm hmm. You’re suffering anyway. Right? The worst has already happened. You lost your loved one. There’s only one way but up. How can you get any? I mean, you could get lower, I guess, if you allow yourself to keep doing that.

Sherrie Dunlevy  51:10
Well, I have I have a saying for that. I say if you lay you decay.

Victoria Volk  51:14
oh, that’s perfect. That’s gonna be your quote card.

Sherrie Dunlevy  51:20
If you lay your decay, just like anything.

Victoria Volk  51:23
Exactly, you lay you decay.

Sherrie Dunlevy  51:26
So you’ve got to get back up. So that’s what graduating grief is is kind of like, it’s twofold. It’s like I was thinking about it. When I was in my support group. When I told my husband, I did not want to go back anymore. And he’s like, why they’re lovely people. And I said, because I don’t want to be sad every other Tuesday of the month. Like I don’t want to be in deep suffering and pain. I wanted to start feeling better. This was before I knew about grief recovery method, right? So I, so I thought, well, what was that I was ready to graduate to the next level. That’s so so that’s part of it. I was great. So what is the next level, all there is none. So that’s what I created, right? So that’s what my support community, that’s what my podcast is all about. But it’s also you think about the grief and you’re laying down in the fetal position and it’s dark, and it’s lonely. But then there’s this gradual, you sit up, and then you look around, and then you have to decide maybe kneel and then you put one foot up and then another foot up, and then you’re standing and then you can turn towards the light and start taking steps into the light. So it’s a gradual process from here to hope. Right? So it has a double meaning, but it’s possible but if you lay there you’ll decay. You got to get up. You got to get up.

Victoria Volk  52:52
I think two people are afraid. I mean many people are fearful of change. And so if we have this awareness of Oh, I guess I do have a choice. I guess though there is something that might help me Oh, well that can be uncomfortable too. And I think that’s it’s the fear of not knowing what it’s going to lead to or how it’s going to make you change or not make you change but change you in the process.

Sherrie Dunlevy  53:17
Yeah, yeah, I was I was the most it’s it’s the craziest thing how I’ve become a much more positive person since the death of my son than prior I was the most negative resistant to change if it’s not broke, why fix it? everything in my life, I did not want it to change. I wanted a comfort zone, right. And then when my son died, I’m realized that the comfort zone does not exist. Like it’s the biggest lie like it will change life will change whether you want it to or not. And my son’s death was proof of it. So now how do I want to operate? Right? It’s gonna change whether I want it to or not, and it and you’re not always going to like the change, but it’s still gonna change. Even if you say I’m devoting all your time Sherry to raising your other son now, well, guess what, you’re going to grow up and he’s going to leave. And so he’s changing, everything changes. So you can either change with it, or you can stay in a state of suffering. Because that’s what you’re going to do. The more you’re resistant to the change the more you are suffering you’re in a state of suffering.

Victoria Volk  54:28
What we resist persists. Yeah. Ah, so good. We’ve covered a lot. Time flies. Where is there it First of all, is there anything else you would like to share today?

Sherrie Dunlevy  54:48
Oh, my gosh. I think that I don’t know how there possibly is I’m sure there are I’m sure we could probably talk for another two hours. But I think that I think I just want people to realize, you know, you have to decide you have to decide what you want to do and you in, the longer you deny it, the more you will suffer. So why not just, you know, do the work, it’s going to be painful, it’s going to be so worth it. There’s a freedom that comes in a release that comes. That is absolutely amazing. So do it, you know, just do it.

Victoria Volk  55:23
And like you’ve touched on earlier, too, it’s like, when I started to really do the work on myself, that’s when opportunities opened up. And I was more, I was saying yes, to things I never found, I will say yes to right, speaking in front of people and just the podcast, like, I don’t know how I’ve never done it. Well, I’ll learn I’ll teach myself. You know, it’s like, what’s the worst that can happen? Right? Like,

Sherrie Dunlevy  55:50
I think that’s the philosophy that I have adopted, what’s the worst that can happen? It already has, so you know, and why not live?

Victoria Volk  55:57
Yeah. Exactly. And you find yourself putting yourself out there in ways that you never thought either because like, what’s the worst they can say? No. Right? You know, it’s not living a half life, like someone had shared with me a while back, and it’s kind of stuck with me. It’s like, do you want to live a half life? Or do you want to live a full life? Right? Where can people reach you?

Sherrie Dunlevy  56:28
Sherrydunlevy.com is probably the, you know, the most common way you can find information about my book. I also have a quiz at graduatinggrief.com just to see if you’re ready. You’re ready to graduate from your grief. And I started the graduating grief, podcast and group on Facebook. So join us there if you want to live encouraged after loss, right. So that’s we journey together and to create beautiful lives that we were created to live.

Victoria Volk  57:02
Amen to that. Yeah. Yes, love that mission. Thank you so much, Sherry, for being here. It’s been wonderful. And remember, when you unleash your heart, you unleash your life. Much love.

Ep 56 | Dr. Michelle St. Jean

Michelle St Jane | Widows Don’t Sleep: Walking the Path of Cumulative Loss

 

SHOW NOTES SUMMARY:

Michelle St Jane is no stranger to grief, like many guests who have shared their stories.

The traumatic experience of finding her grandfather deceased when she was 15 and the subsequent “Don’t talk, don’t tell” approach to grief laid the foundation for her in how she addressed her grief. She would later better understand the impact that her family of origin had on her life.

Michelle left her family of origin at age 17 to travel and later found herself in love, married, and with children. However, her life would be flipped upside down when, at the age of 27, she found herself a widow unexpectedly with a 9-month-old and 5 and 6-year-old in tow.

Years later, she would experience the loss of another love suddenly in a tragic accident. Additionally, she lost the opportunity to visit and say her goodbyes when a dear friend died during the Covid-19 pandemic.

Grief is cumulative, and it is cumulatively negative. Michelle shares how she’s managed to get where she is now, what helped her most along the way, and the ultimate gift grief and loss have given her.

RESOURCES:


CONNECT WITH MICHELLE:

Victoria Volk  00:02
Thank you for tuning in to another episode of grieving voices. Although if this is your first time, thank you for being here. Today, my guest is Dr. Michelle St. Jane. She is the host of the podcast Life and Leadership, a conscious journey for global leadership in reemerging leadership. Thank you for being here, Michelle.

Michelle St Jane  00:25
Oh, I so appreciate you, Victoria. And I’m really grateful for this topic. It’s so important.

Victoria Volk  00:30
Grief is my jam. I hate to say it like that. But it is it’s been my best friend for many, many years. And I thought, you know, I might as well make it my passion and work in this life. So thank you for gracing your presence to my listeners and for sharing your story today. And let’s start there, what brings you to grieving voices?

Michelle St Jane  00:53
Well, actually, I think I come from a place where I feel very guided. And Ellie visa once advised, whoever survives the test, whatever it may be, must tell the story, that’s his or her journey, her duty. And for me, life is a conscious journey. And I’ve had, I’ve had to survive more than once losing close loved ones, in different circumstances, you know, once was finding my grandfather did once was my husband died when I was 27. And once was a boyfriend who was killed in a road traffic exit, all in different decades, over 30 years. Just really tough things to endure. And through the grieving, there were these gifts that came about.

Victoria Volk  01:41
So let’s start at 15 when you found your grandfather, how did that impact you? And what was the aftermath of that? Like? Was there communication around what happened in it discussion?

Michelle St Jane  01:57
Well, my grandfather is my first close experience. When my grandmother had died, it was all hush hush and children weren’t included. Unlike other wisdom traditions, like for example, I was born in New Zealand. So the Maori have a tradition where everyone is involved, there are certain things that you do to respect your your deceased loved one and how you go through a process. But for me, this woke at that time. In the 70s. That did not happen. It was all just very hashtagged. We didn’t know we were not involved. It was there was no recognition of any impact on what might have happened. I wasn’t particularly close to my grandmother. But there was a huge sudden gap there. In contrast with my grandfather, who actually died probably about 10, or 12 years later, we were very close. He was my hero, my my protector. And I was very blessed with that. In the in the year leading up to his death, my mother and him had had a fight. And in a bed, they asked him for it, which is nothing unusual, but they had a quite a bad one. And I remember in the weeks leading up to his death, and particularly the last three days, I knew something was wrong. And I was very concerned that we’d had no contact. And I was, you know, absolutely belligerent, we need to go check on him, we need to go check on him. And eventually we went and checked on him and he had passed away. So again, I was 15 children weren’t really included in anything, there was all the family dramatics is there are some times and consequently, I actually it was his funeral, he was cremated, and I had such a traumatic reaction to to his service being held at the crematorium. And then hen going through to, you know, left the room on this, how they do, depending where you are. And I had such a very, very, very bad reaction, but there was no room to have any emotions, because there was the family drama and all sorts of going on. And my reaction was just considered bad behavior. You know, so I had all my angst and eventual anger, and then this trauma, and nobody was talking to each other, you know, you know, we just, you know, don’t talk, don’t tell. And I found that very upset, upsetting. So the learning I got from that was, my family could not be there for me. They had enough going on of their own, which is often the case. But I learned that sometimes when you’re in a situation like that, you either can be your own worst enemy, or your own best friend. I chose the latter being so young and there weren’t the services and support around anger certainly translated into a fury that fueled me to do many things I may not have done and Of course, it was years later, I have a lot of time to work on therapy, in trying to deconstruct some of those roadblocks that can come out of these situations.

Victoria Volk  05:09
I love how you said that, that you can be your own worst enemy or your own best friend. And you kind of learn, like you said, how to respond by the people who are around you like what, what is what’s appropriate, or what is acceptable, or, and like you said, you learn quickly, I can’t rely on my family to be there to support me in the way that I need. And so how did that impact you? When you found like, when you experienced when your husband passed?

Michelle St Jane  05:45
Well, with regards to my family, I ended up breaking away, which ended up being a much bigger guest because I could have been subsumed by that environment where people were doing the best that they could, which was not going to be very good for me. So the outcome of that one was, basically I had my passport and got on a plane when I was about 17, and started traveling. So I took what is commonly called today, the geographical transfer option. Just what I didn’t realize was, there you go, you take yourself. So as I said, many years later, I took the path down some therapy to help me deal with that. So with regards to my husband, he died when I was 27. And we were coming up on 10 years marriage. Oh, gosh, that is that that experience taught me that walking, the last mile is really important. And how you go about doing that give the support that you need to do this. Again, I was back in New Zealand around my family of origin. And my mother had actually lost my stepfather virtually virtually a year to the same month. So we were both widowed within a year of each other. So as you can imagine doing the best that she could, she had huge issues around grief and coping. And in the skills and how to do this, there were challenges. So the gift that I got from my husband passing unexpectedly was was he left me with today really is the present And therein lies the gift. So living in the now and today and appreciating those who are around us is really, really important. The other part of the experience, which I found so difficult and still do, to be very honest, was that and I’m going to quote Martha Whitmore. Hickman has been a huge inspiration. She has a book called healing after loss daily meditations for working through grief. And I didn’t get that book for many more couple of decades later, but she has a quote, nothing could stop you not the best day, not the quiet, not the ocean rocking. You went on with your dying. My husband had an aneurysm, how can his lungs and he ended up being brain dead, but he was a very fit person. So consequently, he was in a coma after coming off life support for over 36 hours. So this is what I mean by walking that last mile. Staying present in the now with the time that we had left. And also walking with my head held high. And my young children, I have three young children, nine months old, five and six years old, is really important. It’s it’s lifted blueprint for them that they may or may not never, ever use. But the hard thing for me as a young woman was, there was nothing that could stop him dying. He was branded. And I had all these mixed feelings around how long after he came off last life support that he remained with us. So I was also wrestling with, I just want you to be at peace. I just want to figure out how I get on with life now, but I don’t want you to go but you’re already gone. But I still hear your heart beating like very, very, very difficult. So that quote was by Martha Whitmore, Heckman, nothing could stop him he was going to go that didn’t matter if it was the best day, the quiet day. The ocean continuing to come and go he went on with his you know dying. And that was really, really a struggle for me. The other thing that happened was this was the month of October. And as I mentioned, I was in New Zealand at the time. And it was Halloween. So I remember going with my brother in law to get a black tie. He was a bad Piper and he was going to pipe at his funeral and we walked into a store and this young man came up The salesperson, and he was so delighted and he was really working on his salesman magic. And when my brother in law said he needed a black tie, he slipped into Halloween mode. So I’m sitting there like, I’m going through this awful transition of my, my husband being gone, the father of my children, my best friend, my lover and my whole life, and I’m gonna have to figure out how to go. And this young man is dancing with delight, because it’s Halloween and someone wants to reflect. So, you know, another quote from mother Whitmore Heckman that somehow we feel the earth should stop spinning and acknowledge our grief. And I’m standing in that store in this sort of no woman’s land pancake. Ah, I want to say something to you. But I don’t want to say something to you. Yeah. Not easy. Not easy. Yeah.

Victoria Volk  10:57
I got chills when you when you say shared that first quote, and the conflicting feelings that you must have felt. And so what were those days? I mean, express like this. It’s almost like you’re, you’re an alien in your own life. And you know, from how you described it, it’s like you You don’t even know how to be. So how did you manage with three young children? On top of it? How did you manage that?

Michelle St Jane  11:31
That is such an insightful question. Well, I thought, I’m a widow, so I’m going to go to a widows support group. They told me to go away, I was too young to be a widow. So I was again like society was handing me these lovely backhanded slacks off slide. Well, you guys had this experience, I don’t quite know what to do with myself. And, you know, you know, had to walk through talking with my children that funeral. And I had so many mixed feelings. So I did manage to go and see a psychiatrist. Like I was desperate for help. So I spoke to my husband’s doctor and said, I feel like I’m going crazy. So he says, I’ll book you in with the psychiatrists. So of course there were these feelings of Oh, do I need one of those? And what happens if I go there? Or my step for life or bla bla bla, what are the judgments gonna be? Well, the psychiatrist only saw me once we chatted about my husband and she said to me, you’re going to be okay. She said you have sat here and shared your favorite memories, your deepest grief and you have cried so many tears that you’ve not stopped smiling. He has left you with so much precious precious material, you’re going to be okay. And the other very valuable advice she gave me for my children because you know, a five year old and a six year old immediately look at you and go well what if you die? And how do you answer that tomorrow is not promised? So she said to me the psychiatrists in New Zealand she said to me, if you’re okay, your kids will be okay. So do what if you do take care of you being Okay, and then you can still be okay, you don’t have to do anything more than that. And you certainly don’t need to see me again. I didn’t resolve finding another group group for grief work but I got about the business of raising my family and figuring out how do you do life when you’ve lost such a key person who’s so central to your well being and your Yeah, your balance?

Victoria Volk  13:41
So following her advice, did you find that to be true?

Michelle St Jane  13:46
as best as you can? Let’s face it sometimes it will Well, it nobody comes with a handbook so kids will probably be in therapy. But I’ve always done the best that I can I come from the position of I can only lead by example. And there is one other diff I’d like to share with you were actually two one was I I decided to date many years later and I met this lovely chap and we had eight weeks together and he was killed on in a highway accident so you think by now i’d be feeling like oh my gosh, you know these this is scary these close close people in my life. But for me that that df that I again, I got to walk the last mile with his sons and be present for them when almost almost like Groundhog Day, his family all around work coping particularly well and there was a lot of drama. So for me, and I’ll quote Martha Whitmore, when again. So maybe the experience of loss not only helps us clarify what is important to us, but also helps us know where we are and the direction we want to go in. So I knew I had a moment in time I had only been around this man for eight weeks, in the previous week before he had introduced me to his sons by surprise, because I was not agreeable to that, as a parent myself, I did not want to be involved in someone’s family life, particularly with children, unless it was going to be a long term relationship. And eight weeks is way too early for that. And at the funeral, I found out that he was going to propose, but again, it was way too early for all of that. But he was so happy. And at the week, people kept saying, I don’t know what you did, but it’s the happiest thing I’ve ever seen him. And they thought it was down to me. So I also was carrying this sort of guilt because I had been cross at him for introducing me to his boys by surprise, and we’d spent the weekend together. A few days before he died, they were supposed to have been with their mother. So I had to wrestle with some feelings. But to go back to Martha Whitmore head men’s coat, it clarified what was important to me that I was asked by the family to stay for his funeral. So I just, I just decided to be the steadying presence so that I could be not part of the drama. And also in the direction that I wanted to go that I needed to step gracefully back out, because I was not going to be part of the circle. And then, and they didn’t need me to, they had plenty of family, but at least in the final goodbyes, I could make a contribution as a presence and pay my respects without being involved in all of the drama, which is not my oke anyway.

Victoria Volk  16:41
Well in the gift in that, too, is that they thought of you. It he thought of you. He obviously shared his feelings for you, with his family and loved ones and people that mattered. And so the gift for you too, was that, because what that I mean, I imagine that would have been a very different experience for you to have they’ve been like, Oh, you barely knew the guy, like, What do you want? What are you doing here? You know, and so it was very much a gift for you to that he gave you. Without you really realizing it at the time.

Michelle St Jane  17:11
I’d also add just a little addendum to that story. When I got back to the city where I lived, he had since the day we met, we lived in two cities that was there only 90 minutes apart. But you know, that was how it was at that early stage. He had written me a letter every day, on his way to work every morning, he would stop and mail me a letter. What I did not expect was to get back after the funeral. A few days later, and there had been a letter, you know, I had a couple of leaders that I came back to. So he got his final goodbyes, and in a beautiful way of reminding me how loved I was and how I had really contributed to his life. So it’s sometimes there are just surprises and gifts that come that you just you can’t see them coming, you know, and that was something that he did no, you know, I will forever be grateful. Because, you know, it triggered a lot of the past losses as well. And yeah, encouraged me to go back and do some counseling and work my way through it.

Victoria Volk  18:19
And I want to get to that, but I just want to share too how we don’t really understand often the impact that we have on others.

Michelle St Jane  18:32
Yeah, I would like to just share one last loss which has happened during the pandemic and quarantine last year. My best friend, her name is the toil. And she was very close to 100 years old and we’ve been friends for the last nigh on 20 years. And I had been overseas and when I got back I got back in time for the quarantine to kick in and I was unable to go and visit her because she had moved to an assisted living and assisted living complex and they had blocked that and I lost her without being able to connect with her before that happened. So again, if you don’t if you’ll forgive me, but Martha Wetmore Heckman always has the right words. She writes, it’s a bittersweet joy the way our last loves are forever and our hearts and minds, in fact, constant to our consciousness in a way they couldn’t be when they were alive because then we depended on the comings and goings, the highs and lows of being with us, the vagaries of presence and convenience. And again, that is another difficult I know people have lost people during pandemic and and you know, a lot of hardship. The President really is the gift. Therein lies the gift for people who are around us and there is a process of healing that comes after lost. Often we’re too busy with our lives to realize that this is so, so important too.

Victoria Volk  20:02
and with all of your losses. And I know I share this frequently on the podcast, but if it’s your first time hearing this, I, you know, I have to share it again and again. But grief is cumulative, and it’s cumulatively negative. And so all of these losses that you just shared, they stack on each other. And it’s like with every loss, you’re adding another rock to a backpack that you, you know, that we that we that you carry. And so what has healing looked like for you? And how has it changed over the years? I know you’ve you said the psychiatrists, and that was your first experience. And then you mentioned therapy again. But how has that changed over the years? And what does it look like now?

Michelle St Jane  20:44
Thank you for asking. Well, my first two losses were I tried to go join a widow group that didn’t go down too well, because I was way too young. And then I went to a psychiatrist and she said, you’re in the wrong place key proofing. And that gave me the confidence to just get about doing what I needed to do. And then over the years, I’ve done counseling and group work, I’ve found them very helpful. With my grandfather, there was a lot of rage with my losing my husband, again, there was anger and despair. And there are many stages of grief that you need to go through and can go back and repeat. Finally aren’t my husband after he’d been dead about 2025 years I kind of beat up on myself and was like, why is it every October that the three the three days where he went into a coma and we buried him? I literally would go into the doldrums. I couldn’t function I didn’t I couldn’t perform I couldn’t think clearly I felt like I had the flu yet so for like 2025 years, maybe close to 30 years this kept happening and a friend of mine turned around and said Oh get over it get over it, you know announced Why? So I went again into the helping services and found a cat therapists catatonic app therapy, I’m probably not got the right name. But I what I did was I got through her guidance, I got a large canvas and on the front of the canvas, I took lots of photos that I had photocopied, I photocopied lots of all the photos that I could find for my, for the people I’d lost. And on the front of the canvas, I did this beautiful memorial of, you know, the fun things, we’d done the heavy pictures. On the back of it. I aligned it in black lace, and I put all my angry thoughts and everything else. So when it hung on the wall, you could see for my children and family, you could see the good things that I remembered. But on the back, I put all those other theat feelings and that actually, for me that art therapy was enough to move me out of revisiting, like a catatonic event that three days that my husband had died in back in the mid 80s. And that was 25 years later. So my friend gave me a gift of sort of harsh, harsh shove, where I went and found somebody else. Fortunately, I was able to say thank you for your thoughts. I can understand that you feel that way. But I am having a physical, mental, emotional spiritual reaction every year or regardless of journaling and doing all the other things. out of bed alphabet therapy. I was introduced to Martha Whitmore Hitman’s book, daily meditations for working through grief. And the reason that’s been so instrumental is because it means rather than me holding it all together until that October event, it means every day I did a short reading. started my day ended my day, some part of my day, I read one of her meditations, I got a chance to check in, feel some feelings and move on. And I think what my therapist had rightly identified was I just held it together very rigidly until I got to that October and then I just fell over for three days. So of course, I wasn’t too crazy about doing that every day. But I did I did it for probably about 10 years. And then I gifted my book forward. So you know, I know it’s there. I know it’s a way that I can come back to if I have to endure another event like that. I will again look for the gifts and find the right support.

Victoria Volk  24:40
So much in that that you just shared. Thank you for sharing. I want to circle back to mentioned two things, the women’s support group and you being too young for the listeners out there. That’s hogwash, first of all, and shame on the women who said that to you that you were too young. I think that is one of the hurtful and harmful things that we don’t understand or even, like, really, we don’t know, what do we say sometimes, but like you said, it turned out to be a gift for you because it sent you on your path to something better that you need.

Michelle St Jane  25:16
And I might have been revisiting, revisiting with people who were stuck. Also, just to add to that funny story on the end of that was after my husband died, I went and bought a rinky dink old piano from a secondhand store. I play really badly. And because I’ve even told my grandfather’s piano, and attitude piano sounds perfect to me. And I didn’t know better at the time. So Michelle’s secret thoughts embarrassed here. And I another thing that I learned was some when you when you, when you lose a partner like that you don’t sleep. So I started playing this piano, my kids would go to bed, I couldn’t sleep. So I would start playing this piano. It was October and my favorite thing to do was to play Christmas music. And I reiterate, I play really badly. And on an attitude piano. Well, it turned out a couple of doors down on either side of my cottage, were two widows. So although this grief group had sent me on my way, these two women came and introduced themselves and said, Are you okay? And I said, Why? They say you’re playing the piano all night? And I’m like, why are you up? And they’re like, oh, we’re widows. widows don’t sleep. And I went, ah, is that what the problem is? And they’re looking at me? And they’re like, What do you mean? I’m like, my husband just died. And they’re like, oh, keep playing? You’ll get better. We hope the could you tune the piano? Sometimes you find your grief group, or they find you.

Victoria Volk  26:50
That’s a beautiful illustration of that. And did you become close with these women?

Michelle St Jane  26:57
Only for I was only there for about three or four months. And then I because that was my family of origin city, I actually moved back to his family, in another country with my young children, because I knew I wasn’t going to make it with the family dynamics and support that I had New Zealand. So I moved back to where my husband was from with the children, which was actually a very good decision, because we got back in time for Christmas. And Christmas was not going to be celebrated by me. But with such a huge extended family, you know, the kids could be enjoying normality. And I could I have extra support to cope with, you know, loss. Yeah.

Victoria Volk  27:35
And that is the big thing I want people to hear too. And this is that you looked for support.

Michelle St Jane  27:41
Basically, sometimes the long view is not what you need. What you need in this moment without a hostage to the past, or the future, is to experience it for itself alone. So I could not do that with my family. There was too much drama, too many secrets too many. They weren’t coping, my stepfather died only a year before my mother needed room to grieve and her support system.

Victoria Volk  28:05
And sometimes our best support system is not from our family.

Michelle St Jane  28:09
Yes.

Victoria Volk  28:10
And because because we all bring our own experiences and our own perceptions and our own stuff, right. And so if they’re not, oftentimes, in grief recovery, we talk about that person for you being a person that’s a heart with yours. And often they’re not someone that has any skin in our game, which is often family, right? So I do want to ask, if you don’t mind, was that family dynamic with your family dynamic? Was that ever repaired?

Michelle St Jane  28:41
No. And I have to accept the things I cannot change which has my family of origin, they’re doing the best they can with what they have. And it’s not the right place for me to be so I have done my best to to be a part but I’m actually better staying out of it, which could be what their gift was to me, you go rather than being a part of this dysfunction. So for me, I’ve done the best that I could at this stage. I’m very focused on generations that are coming behind me and continuing to upgrade my best self. Yeah.

Victoria Volk  29:20
I like how you said that upgrade your best self. And there’s, you know, I don’t know who said it, but there’s this quote that, you know, the, the five people that you surround yourself with is a reflection of kind of where you’re at in your life. That’s not exactly how it goes. But in order to rise above and let the cream rise to the top of who we are and what our potential is. We do need to surround ourselves with people who will lift us up, and that will support us.

Michelle St Jane  29:50
Absolutely. In fact, it’s interesting you should say that quote, because at the turn of the decade, that was the one I was focusing on Who am I surrounding myself with also My buzzword is you can go through it, you can grow through it. But for me at the end of it, I want to be glowing. Let me move from surviving to thriving.

Victoria Volk  30:10
Oh, I can’t believe you just said that. Because I’ve been saying that on my last few podcasts I have been. It is it’s about going from surviving to thriving, like, you don’t have to be stuck in this prison of the past. And that’s what it is. That’s what happens. Our past is our present, and it is our future until we address it. And so what would you say to people who feel like, I don’t need to go there, I don’t need to dig it up. I don’t need to address it that’s in the past. It’s done. It’s over with, what do you say to that?

Michelle St Jane  30:42
Each person knows what is right for them. And for me, I always respect that thoughts and feelings of visitors, I welcome them, I listen to what they have to say. And I get them to move on, rather than to keep me trapped in the dialogue of repetitive storytelling. So if you do not feel that you need extra support, then maybe you don’t. But if you find yourself saying the same stories over and over again, and every time people see you, you go back to regurgitating the same stories, I suggest you interrupt the stories and get some help.

Victoria Volk  31:20
Well, and that just brings me to my point and that we heal and community. We can’t heal alone. It’s really difficult. Some people might argue that, maybe you can. But you might have another loss. So you might think you’re okay, here’s the caveat of that you think you’re okay, you think you’re holding it together, you think you’re doing all right, until you have another loss. And everything comes back up to the surface again, and you realize, hmm, I’m not okay. But the thing is, is often grief manifests in our bodies and in our lives. And so I want to circle back to to that experience you are having every October, it’s this, the body knows the bodies, I was speaking to us, you had this, this emotional incompleteness that was stuck within your body. And so every October, it was your body, it’s this muscle memory, it’s this body memory. And until we address that, we exhibit behaviors and symptoms in our, like our bodies are talking to us. So if we think of ourselves like a tea kettle, we either implode or we explode, right? So either we resort to, you know, we might have multiple relationships in a short period of time, or gambling or shopping or stuff our feelings with food, or not eating, to have the sense of control in our lives when we feel out of control in our hearts. Or we might be losing our hair, or having like overall body aches and unexplained migraines and all these physical symptoms that we don’t pinpoint to the root, and get to the root and understand that grief. That’s how grief is impacting us. We don’t connect those dots. I didn’t. I didn’t for many years. And so, what were like the physical, how was grief manifesting in your life.

Michelle St Jane  33:19
As I shared with my husband, every, every October, I had three days where I couldn’t function. And, you know, this was when I was at the height of my career, it really became apparent to me, I couldn’t distract myself, I booked the time off, I’d get a spar I’d stay home and hide under the covers. I’d go see accounts, which is how I got to the art therapy. With my grandfather, I just field forward, I needed to get out of this family and go live my life and be the best example of who I could be. With my boyfriend who was killed in the highway accident. That was a little harder because I was blessed that a couple of my girlfriends had come up and gone through the funeral with me. So I wasn’t on my own. Because he did have an ex wife who decided to play the widows. So I was caught in this soap opera of drama. And her two little boys were constantly gravitating to me and I’m like I don’t want to be causing any harm here. That was a little harder. What was more, what also complicated things was the fact that his his accident on the highway, made it on the news. So consequently, the day he died, I was because I was visiting him when the day he died. I was asked to come to a family dinner with and the news was on and I turned around immediately to see the accident, the aftermath of the smashed car hearing. You know and then the family also wanted to go and do a viewing which I didn’t want to do and I ended up being sort of caught in the slipstream of having to go to a viewing and seeing him after he had died. That those two things caused another whole big trigger for me that I couldn’t deal with at that time. It wasn’t the right place. So again, I got counseling to help me work through some of that. But for a while, every time I went on that stretch of highway, I would get chills, I would start to shake for a long time. And in fact, I was in New Zealand for the last five years, and every time I went down that highway, so again, you don’t always know how these things are going to play out, or how long this might take. That’s why I really liked one of Hitman’s quotes about being your own best friend. Because, you know, it’s best if we’re not held hostage to the past, right? for the future. Yeah, yeah. With my friend, he toil who died last year. I mean, that’s on top of trying to deal with a pandemic, or quarantine, geographical transfer. Then I decided to change careers into podcasting. But I could hear her on my shoulders, saying, Oh, you are having so much fun girlfriend, go figure out how to do this, this is where you need to be. So I had those blessings. But I also needed to deal with, I hadn’t managed to see her before she died, not that I expected her to die. Respecting the rules of you know, her residence and things like that. carrying those guilts with me, do not, do not contribute to our future that she would like to celebrate me having.

Victoria Volk  36:38
So how do you celebrate her?

Michelle St Jane  36:41
I talk about her. This is why I gave that first quote. Not only do we have a duty to share the stories, but also to share what people bought to our lives. And I have grandchildren and I speak of their grandfather. And it’s so surprising that my youngest son, who was nine months old, when he died, has two young sons for around three and five. And he is exactly like his dad, he treasures his family, he values his children, his work doesn’t subsume him to the expense of his family. As far as as feasible and the work that he does, so and he looks exactly like his father, he sounds like it’s five or so. You just never know where the gifts are gonna turn up. Right? And you know, I try to share the stories with my grandchildren about their grandfather and things like that, too.

Victoria Volk  37:35
So when your kids were young, when this happened, I just want to ask this because I it just kind of came to my mind right now, when your children would bring up their father as they were growing up, you know, because I and I asked this because I actually heard this one time where a young child had lost her grandfather. And it was the mother’s father and she asked the child to not bring up the grandfather, because it made her sad when she did and I thought my heart just broke when I heard that because here’s this child that just wants to express her loss and share you know, just when’s grandpa coming back or you know, the the under she wants to understand and the mother is just shooting her down and again don’t take this as parents are doing bad and you’re badly or whatever it we do with what we do what we know. Right? And we don’t know what we don’t know. And so it is we’re doing the best that we can in any given situation. And that’s why I’m so passionate about the education piece of of grief so that people can break that cycle because she’s learning in that process. Don’t talk about talk about my your grief, don’t talk about your sadness because it makes mommy sad. So how did you navigate that aspect?

Michelle St Jane  39:06
My husband was such a huge force in our lives. He was huge. He only worked the hours that the children were in school. He was a very big piece. So, sharing the stories keeping it alive, having a having a chapel with their grandmother, his mother and his brothers was very important. And if the children border that well we talked about it I always every Christmas and every birthday I pulled out a birthday book that we had started when our oldest son was born so that came out and he was present and all of those were I did fail was I just couldn’t do Christmas I bought pulled out the Christmas book. But because he died very close to my birthday and Christmas. Those two celebrations got very damp down for me. I didn’t do well with those. Yeah, families with the don’t toy Don’t tell the secrets. As I said, my mother had been fighting with my grandfather. We were not to discuss that. It just built up and a lot of anger inside of me. Yeah, what I didn’t do well was birthdays and Christmases for me. What I did do well was we had birthday and Christmas box of photos. When my kids got much, much older, I did do a decopatch of lots of photos across the years that that involved him as well. So, once they all went 21, I just did a big canvass of photos that included their father. Yeah, my youngest son, he has said, I didn’t know my dad, so I don’t want to talk about him. So, I talked to my grandson, so I can respect that. But I’m not if my grandsons do something that reminds me of their grandfather. I’d be like, oh, let me tell you this story about when, and then I tell some funny stuff, because he was huge. But what I will tell you, which I don’t always navigate particularly well, but actually no, I dodge is even though my husband’s been heads past, well, over 30 years ago, there are still people who will come up to me and ask, how’s Bobby? You know, what’s he up to? And I actually dodged by saying, He’s resting very comfortably. Thank you. Because after 30 years of that, I’m just so over trying to explain that he died decades ago. That’s really tough. Yeah, yeah.

Victoria Volk  41:30
Wow, well, thank you for sharing all of that. What gives you the most joy nowadays?

Michelle St Jane  41:36
Well, I, I certainly took to heart when my husband died, that today is the present. And therein lies the gift. I work. I consciously Try not to take people for granted. And I also consciously address when I start isolating, because isolation for me is evidence of my disease. So, I have to be very aware of that. And of course, with the pandemic and the quarantines and things like that, I can go into cave mode and just you know, be a little philosopher in my own, okay. So, I have to work on things like that,

Victoria Volk  42:11
I can relate to that. Yeah, kind of get in your own head, then. And that’s when we kind of have the committee in her head, and we’re having conversations with the committee in our head instead of giving it out, you know, and whether that’s, you know, for some people, I’m a writer, so that’s how I channel a lot of that. But, you know, sometimes you just need a heart with yours. You know, someone that you can just unleash your heart to, I mean, and that encapsulates a lot like, that’s what grief has taught you. It’s probably also a piece of advice that you would give to right, like, just take a moment to reflect on today.

Michelle St Jane  42:54
Absolutely. I mean, with my grandfather, and my boyfriend suddenly gone with my husband, and my very, very wise, older friend. They’re not prompt tomorrows not promised.

Victoria Volk  43:10
So what is one tip that you would give a hurting heart today?

Michelle St Jane  43:15
I am a mother, she has a book called healing after loss, daily meditations for working through grief. That book has been worth its weight in gold, I did not realize that I was, you know, putting everything in a box for you know, 11 and a half plus months. So having that with other daily reading books was a huge help. That would be my number one tip. What I didn’t get right was there were very long periods where I just shut down and did everything that I had to do and didn’t address the grief. I like to sit it’s cumulative.

Victoria Volk  43:58
Is there anything else you would like to share?

Michelle St Jane  44:01
I would like to celebrate your presence in the world, this is such an important conversation. And it’s not easy to find people to have this with their books, but just having the chance to have community to speak into your listeners ears and share from the heart around this. This some extremely important topic, and I really appreciate you, thank you for your contribution in the world, Victoria.

Victoria Volk  44:29
Thank you for saying that. Yeah, it’s definitely been become really meaningful. Side passion for me for sure. Because we often don’t feel like we have an opportunity to share from a space that we where we won’t be judged criticized or analyzed, where our story won’t be judged, criticized, or analyzed. And so, it is my hope that through Stories like yours, and all the people that bless my podcast and our guests that people take away a sense of hope that you can go from surviving to thriving. I almost think that that needs to be one of my taglines because I’m passionate about that. It doesn’t have to take 30 years for you to wake up to what’s possible, really. It’s never too soon, and it’s never too late.

Michelle St Jane  45:31
Absolutely. And the gifts are in the learning. They’re not promised in the first 30 days, the first year or the first 30 years, they may come. And I think you’re around same music should be the song I played on the piano for many long nights called whispering hope.

Victoria Volk  45:47
I’m going to have to check out that song. Thank you. Yeah, thank you for your presence. Thank you for sharing your stories. Grief goes on, it’s like, and here’s another thing I want to, I would just want to have a little bit of back and forth about is that the sadness doesn’t go away, right? Like, you’re not never going to be sad, that that person isn’t in your life, that your husband isn’t in your life that the lover you had after him isn’t in your life that your friend, your grandfather, like that sadness that we experience and feel that never goes away. I don’t care how enlightened or woke, I mean, that’s kind of a buzzword now, or how much healing you’ve done. I feel like I’ve, I’ve come leaps and bounds from where I was in my 20s. But the seat is always empty. And that sadness is always there. But it’s recovery. From my aspect of it as a grief recovery specialist. Recovery isn’t about forgetting or condoning or letting go. Really, it’s actually got the tattoo on my wrist, let go and let God like, I just wanted to let it go and give it to God. And that wasn’t working, I got a tattoo and it’s like, that didn’t work. I didn’t take action, like there’s action, it’s pray and move your feet. It’s not just pray, it’s pray and move your feet. You know, I don’t care. You know, whatever your religious beliefs are, it doesn’t matter. It’s action. And that’s what helps us get out of that sorrow. That deep sorrow that’s preventing you from moving forward.

Michelle St Jane  47:45
Absolutely. You’ve got to make the path by walking. Nobody can tell you how it can be done. It’s an experience. And your words remind me that the desert doesn’t flow without the rain. So, you can go through it, grow through it. And quite frankly, study mean to glow. You know, get back into the joy of life, a life well lived is the perfect reward for you know, acknowledging those who’ve gone before and you’ve grown on their shoulders, but also, you don’t give up on life yourself.

Victoria Volk  48:14
Yeah, and like another guest had said she felt like she was living a half life. And that’s no, that’s not a life, right? So, thank you so much for sharing. I’ll give you the final word. Anything else you want to share?

Michelle St Jane  48:30
Change the things you can. And that’s yourself, not anyone else. Change things you can, make the path by walking.

Victoria Volk  48:39
I love that. And where can people find you if they’d like to connect with you?

Michelle St Jane  48:43
LinkedIn, Facebook, Instagram. Do you do show notes? Perhaps they can just be added into the show notes.

Victoria Volk  48:50
I do show notes. But where’s your favorite place to be? Where can people find you the most?

Michelle St Jane  48:55
The most would be LinkedIn. And that is under my name, Michelle St. Jean. And yep, this website wtih the podcasts on it. So, I’m looking forward to gifting you next.

Victoria Volk  49:06
Sounds awesome. And I will put all of the links in the show notes, including the reference to that book and anything else that she has shared for contacting her in the podcast as well. And I look forward to being on your podcast again. That podcast is Life and Leadership, a conscious journey. And so yeah, thank you for listening. And remember, when you unleash your heart, you unleash your life. Much love.

Ep 55 | Larry Indiviglia

Larry Indiviglia | Choice and Chance

 

SHOW NOTES SUMMARY:

Grief makes grievers feel like they don’t have choices. And, it can also be difficult to bring yourself to take a chance on something or someone. In this episode, I explore choice and chance with Larry.

Larry shares his stories of loss, focusing on a short-term love that touched his heart and life deeply, leaving a lasting impact. He shares the wisdom that came from that love experience with Gayle in his book, 126 Days, 11 Minutes: Our Love Story .

“I wrote this story as a tribute to Gayle’s extraordinary courage and embrace of life.  I encourage all of the Gayles and Larrys out there who may be afraid to love to reconsider.  Life is meant to be lived and loved in the now, not in the yesterdays or tomorrows.”
 
Also through this episode, he shares other lessons he’s taken from his other losses, which include a tragic car accident that killed his aunt and older sister, leaving him as the sole survivor when he was 21.

We all can feel hope for the future, knowing that every one of us has been given the gift of the ability to choose. After listening to today’s episode, reflect on the choices you’ve made that made the most impact. Perhaps there are even defining moments that changed the trajectory of your life, too?

RESOURCES/CONNECT:

Victoria Volk  00:00
Thank you for tuning in to grieving voices. Today my guest is Larry Indiviglia. He is a retired Naval Reserve Officer. He holds a master’s in corporate fitness administration and an MBA from the University of San Diego. Currently Larry is president of and sites for life Incorporated, a fitness professional presenter and author as well as a business and life coach for the Todd Durkin mastermind program. He also is the author of the book, 126 days, 11 minutes, our love story, to honor the life of Gail in their love they had for each other. And that’s what he is on to speak about today. Welcome, Larry.

Larry Indiviglia  00:44
Victoria, a pleasure to be here. And thanks for all the great things you’re doing with your programming. And I’m really excited to have a great conversation today and provide some value to your many listeners. So really looking forward to connecting you.

Victoria Volk  01:01
Thank you. So, let’s dive in. So yeah, what brings you to grieving voices.

Larry Indiviglia  01:10
Over a year ago, I met a woman, her name was Gail. She basically changed my life. And I had a relationship with her. And she transitioned four months after I met her, I know I’m throwing a lot of things out, but because of her, that’s why we’re here today. Because of her life, the powerful choices she she made and the relationship I had with her. It provided an inspiration to write about the four-month relationship I had with Gail to talk about the transition process. And it also to get me through the grieving process. The writing was kind of a catharsis, but mostly to be here today to honor a live that certainly richly deserved honoring and that really has helped me continue to move forward. And I’m still probably in a grieving period in a sense because it hasn’t even been a year yet. And that’s really what is the story behind the reason that I’m on here talking with you today.

Victoria Volk  02:17
So, tell us about Gale.

Larry Indiviglia  02:21
Gale, you know the the backstory to 126 days 11 minutes our love story is to actively aging seniors who meet online in their 60s. Yes, and their 60s. Okay, I was 64, Gail was 68, Gail had been married three times before Gail had been single. for over five and a half years I had been divorced and single for almost nine years. And maybe against all odds Victoria and for everyone listening, we were captivated by each other. And I say against a loss because she had stage four breast cancer and had been fighting it for four plus years. However, you know, we both Gail and I made the choice to live in the today. Not in the yesterday’s or the tomorrow’s and that’s how our relationship was was built. And in so doing, we discovered a lot about each other. Gail was a professional photographer for 33 years. She did nature she did animals she did. She did models, she did dance, she was an Argentine Tango dancer, she was a ballet dancer, she lived a very rich life, colorful life. She was very artistic. She’s also very mystic. she happened to be a Virgo Earth maiden. And she had a great connection with nature. Sometimes you will say art imitates life or life imitates art, she would always say nature is life. And she had a very strong connection to nature. But like many, you know, like Al Victoria is she was to it that she was diagnosed in October of 2015 with stage four breast cancer, you know whether it’s out of nowhere or whatever it is, but she got the diagnosis. And then that changed her life. She had to survive, she had to find out how to battle cancer. And she chose a lot of different ways to do that. She’s it’s traditional chemotherapy, she had a single message to me. She had radiation, a lot of treatments and then she also went into alternative methods to to keep her immune system very high. So perhaps the cancer wouldn’t spread. And so she was very active. She was a very soft, artistic, very intuitive woman. She was also steely, strong, she was determined, determined to beat her cancer, and continue to live she felt her earthly existence. was something she was not over with yet. Hale had a higher, not a nontraditional sense of who God was higher level of consciousness view. So, she felt life in the womb, life on Earth, and then a higher level of consciousness once you transition, but she wasn’t quite ready to leave Earth yet. And there was so many great things about Gail, the biggest thing, she made a very powerful choice to continue to love and live live, even with cancer, and that’s really the reason I met her. Sometimes you think about choice and chance in life, Victoria, is something by chance, was it a chance meeting online? Well, Gail and I both made the choice to go online to find love again. And and fortunately for me, I was able to connect with her. And even with some of her challenges, it didn’t matter. I was so captivated by her courage, her truth or honesty, that there was something more I had to discover about this woman and, and I did in the 126 days and 11 minutes that I knew her.

Victoria Volk  06:11
Sounds like a very fascinating woman. So, I gather that she taught you to live in the present and to love unconditionally no matter what. Is that a correct?

Larry Indiviglia  06:24
Unconditional love was was a is a word that comes up when you think about it. And Gail gave it a bigger context for me. So, we think of unconditional love, no judgments, no expectations, no conditions by which you love somebody. And Gail said to me, it was early on in the relationship, Victoria, that when I talked about it in the book, is, you know, Larry, you can’t unconditionally love somebody. If you don’t unconditionally love yourself. First powerful statement, and I do believe it. You know, through my life’s journey, I had done personal work, after my divorce, there’s a lot of things I spent time doing personal work, so that I could accept and respect myself as I was, you know, because sometimes a failed marriage, things don’t work out in life, you can really kind of beat yourself up about it. So I did some personal work, and I did accept myself and I did unconditionally love myself. And I do feel that was a big part of the reason I was really able to unconditionally love Gail as well. And one other thing too, in the unconditional love is I was diagnosed with stage one colorectal cancer. Ironically, the same month Gail was diagnosed in 2015. I did not fortunately have to go through what she went through. Not at all, I had one surgery. But the point is, I understood what a diagnosis means when you get that diagnosis, whatever stage and somebody tells you, you have cancer, okay, and then you so I had empathy enabled to relate to her on that level. But Gail was also truth. She always stood in her truth and her convictions, she never compromised those even all the way to the end to her transition. She felt if you compromised your truth of what you were about, you’re compromising your life. And that was always a bright light that she shed. You know, during her lifetime here on Earth, everything she touched everything she said, and everything she did, was about being truthful to herself and to other people. So that that was something truth, honesty, unconditional love was part of what she was about, and what our relationship was about.

Victoria Volk  08:51
One thing that sticks out to my mind and what you just share it as and thank you for sharing. First of all, the one thing that came to my mind was that first of all, we can’t give to others what we can’t give to ourselves, right? And also, it’s so important that we live in integrity with ourselves. And when we don’t live in integrity with ourselves, our beliefs, or our convictions or what we need or, you know, our desires in life. I think that I mean, that’s grief, we experienced grief as a result. And that trickles into every area of our life, or employment or relationships with our children or our spouse, other people, how we relate to others. How we show up in the world, really. So, it seems to me that I mean because I totally get and understand why you two would have been drawn to each other you to her because if you had done that personal development work, I think we kind of draw them to us, what we need in the right time.

Larry Indiviglia  10:00
Yeah, you do. You know, its interesting being being a life coach and business coach for fitness professionals for about 13 years now, Victoria, you hit on something very important. Maybe it gets back to choice. I had mentioned Gail made a powerful choice to seek love again, even though she had the cancer and a single mastectomy and things in her particular physical arena weren’t like they used to be she was an absolutely beautiful woman. Cancer had taken some of that off. I mean, she had been through a lot. But I think when it comes down to integrity is, you know, when you look at each year, and my coaching work, we’d like to theme a year, what’s your theme for the new year? Is it happiness? Or is it discipline, whatever it happens to be. And my theme, and my, maybe it’s in my subconscious. When I met Gail, it wasn’t conscious, I will say this, looking back on it. My theme for 2020 and I met Gail on January 2020. So, a little over a year ago, was do something significant. Okay, that can mean a lot of things that was giving me a wide berth, okay, do something significant in 2020. If somebody said, Larry, your significant do or action would be to meet somebody who’s battling stage four cancer, in this case, a woman to love her have a relationship with her, she would transition four months later, and then you would write a book about the experience, I would have said, I don’t think so. However, now I have time, I’ve had some time Victorian, and it didn’t dawn on me till about november of December, at the end of 2020. When I look back on my notes for what the year was about, and for all of us with COVID, it was a crazy year, I look back at my theme. And you know what? This was significant. Okay, and I didn’t do it consciously. You’re to your point, when you put something in, and it gets into your subconscious, you attract someone or some thing that that will, perhaps make that intention come true. The universe brings you together. And I believe that, and I believe gal on her side, said, I am a woman, I am not waiting, I have been battling this cancer. I am who I am, I can find somebody I can love again, I am not going to stop trying. I’m doing it. And she attracted somebody, it turned out to be her last stage of life, we did not know that. I don’t think she knew that. I think she felt she was still going to beat it. However, the universe brings you together. And it comes down to choice and intentional. And again, standing in your integrity to I think is all part of that.

Victoria Volk  13:13
Can you speak a little bit to because when you you talk about transitioning, and I think especially in our society that’s kind of has this death aversion? You don’t think about or talk about death as a transition, especially, well and more so with terminal illness, but can you speak to that a little bit more? Like what she wanted that to be? And what, you know, the tension that she put into that?

Larry Indiviglia  13:43
yes, I will. And there’s a couple of things. And it’s a very insightful question, Victoria, because I do think it is important to your listeners to all of us. It doesn’t have to be cancer, it could be another type of disease, or it could be you’re, you’re forced into a transition stage of your life for something that’s uncontrollable, but the fact is, you’re facing it. So, what does one do? Gail had more time to think about it. Once her cancer came back it metastasized to her brain. And advanced breast cancer can do that it goes to the bones, the lung, and a lot of times the brain in any case, um, she did not want to die in excruciating pain. I don’t think any of us do. Okay. And she was looking for a place once we had to take her back into the hospital, there was no more she could they could do for her. There was no more operations. There was no more chemo, there was no more radiation. Okay. So, then you have to decide where are you going to transition some people will use the word die. I mean, look, Gail use transition. So, she had to find a place that was going to work for her so she had a chemo port, where you would put in the chemo drugs in her chest, they open vein. And she wanted to be able to get palliative really pain medication. Okay, in the port. That’s not done everywhere. That’s not done in a home setting, by the way, it can be. But a lot of hospices situations at home, they don’t inject into that port, they’ll give you through the mouth or whatever. And with COVID, there was a lot of potential maybe limitations as to what the care would be in a residential home. Gail felt she would be better if possible to be in an inpatient hospice. I talked about it in the book, how that all came about, okay, and she was adamant that that’s what she needed. And fortunately, we were able to get her into a four bed hospice home, here in San Diego, run by sharp hospice homes Foundation, Parkview hospice outstanding place. And so she didn’t die and transition in physical pain. However, during the time, they gave her two weeks to live after the final diagnosis, Gail lived an additional 44 days in hospice. And she had to find peace before she felt she could transition to a higher level of consciousness and finding peace, mental peace, emotional peace, you could be physically cared for. And she was. And I remember I asked her one day, maybe it was day 12 or 13 of her stay. And I did visit her every day through through the COVID. Fortunately, I didn’t get sick. Um, and she and I said, Gail, you know, how can I help you find peace or provide you peace? And she says, Larry, Larry, you can’t, I have to do that on my own. And because the COVID spiritual counselors couldn’t come in, and she didn’t want to talk to him on the phone. So, she was trying to find her peace through those 44 days before she transitioned finally. And, and I believe that the care she was given, I did what I could do, and I share that in the book I share every day in the book during that transition period, Victoria 126 days, 11 minutes, 126 days, there was nine weeks of joy, and fun and frolic before her cancer came back then there’s 63 days where it wasn’t good, it was deeper. But during those days, I do share things I did bringing in music into her room, she had a garden view, things that she was still able to touch real life until she couldn’t see any more talk anymore because of the brain cancer. But it was a process for her. She had tears she did not want to transition yet she did. But at some point, she went through, and she found peace. Day 114 I shared in the book, very, very close friend of mine told me Larry, find your own peace about the situation first. So then when you go and visit gal, you will be peaceful, that will help her find her peace more readily. And that was an interesting comment. And it was a comment by a guy Colonel Hank Donegan, who had been a 30-year Marine, he saw a lot of a lot of depth over his career. And he said you have to find your own peace in the midst of adversity and chaos, or in this case, Gale dying. So those are some of the things I could speak to about transitioning and, and I do believe, if you’re not in gruesome, horrible physical pain, you might be able to process that on deeper levels.

Victoria Volk  18:59
Have you seen the Netflix docu series, surviving death?

Larry Indiviglia  19:05
No, I have not.

Victoria Volk  19:06
There is an episode, it’s a six-part series, but there is an episode on end-of-life experiences. And it’s based on the research of Dr. Chris Kerr from Buffalo hospice and I recently interviewed him on my podcast and he talked about these end of life experiences and he has a book called Death is but a dream which is coming out with another he’s coming out with that’s actually going to be out another docu series but by that name in April, but I’m I’m just curious if she ever spoke to you about any end of life experiences any visions or dreams that she was having of, you know, loved ones that maybe were coming to her?

Larry Indiviglia  19:57
A great question. She did not, her elderly mother was able to visit her. Although she couldn’t visit her too often because of COVID. Her younger brother was able to visit her. Not too often because of COVID. You know, there was some restrictions, but they did get a chance to, to visit her. She did have a younger brother who died tragically at age 15. And her dad had already passed away So, but she didn’t answer your question directly. She didn’t. She didn’t share with me any end of life and like, hey, I could picture this in my life. Now she did. She did talk to me, before hospice, about dreams she had, who were in the dreams, sometimes former lovers, she was dancing she had, she had contributed gave me poems which I share a few of them in the book. So, they was just processed when she was living. She was experiencing a lot of things. She also had a medical intuitive Victoria, who she would consult with about her care programs, and her overall well being and things. And she was also very, into astrology. And she had a mystical side to her. So, but in hospice to answer the question directly here, in context, she didn’t share that she was seeing something, although she talked to me, Hey, this is my get married again. for the fourth time to you, this is what I think it’ll look like and where it’ll be. She would ask me questions, but she hadn’t gone to the other side yet. And she wasn’t giving me any coming attractions. sounds horrible there. But you know what I’m saying about what she was saying. She She would being an Argentine Tango dancer, she often talked about a dream where she would be dancing with somebody but couldn’t see his face. It was a faceless dancer. And would that face with that? After her transition? Would that person, man become a face? I don’t know. But she would say that a lot of times.

Victoria Volk  22:23
I just, I was, it’s my own curiosity. Since I yeah,

Larry Indiviglia  22:27
Valid question. You know, and she could have been having those dreams? In fairness. What let’s just back up one, because I think it’s a great question. You know, Gail, I think it was about 12 days, she couldn’t talk because the cancer of the brain after a while you lose your ability to speak. And then her sight went. So, if she did, if she was dreaming, let’s say those last 10 days, she couldn’t tell me. She couldn’t tell me. So perhaps and I don’t know that I’ll have to read this book here and also educate myself a little bit, if that’s what happens sometimes with people is if she had that she couldn’t share it been taught.

Victoria Volk  23:10
Yeah, but actually, to your point, when you said about dreams prior. People can have dreams up to six months before and visions and things, so you know, everybody’s different. But it’s like, the way you described during you said the word metaphysical. And that’s really what came to my mind when you were first describing her as someone like that, who would probably be very open to the messages that would be coming to her. As she’s, as her body is slowly starting to depart, you know, so

Larry Indiviglia  23:43
yeah, she had her looked at in the process at some point, maybe after about a week, she was crying a lot because I think the reality was, she knew where she was, you know, this was her last stop here on earth. And that’s an overwhelm, you know, you have overwhelming feelings at times. And, and, you know, so she did shed tears in that process. Some days, more than others. I speak about him in the book and context. I felt what I shared in the book each day has a theme, the highlight, or the meaning of that day, which was most meaningful, that was most appropriate in context of what Gail was going through. So yeah.

Victoria Volk  24:41
Can you share a little bit too about the experience because it was during 2020 and was during COVID. What impact did that have on? I mean, you kind of spoke to it a little bit about her care and things but I mean, were you able to have a celebration of life?

Larry Indiviglia  25:01
Yeah, you know, it’s interesting January, I remember the weekend specifically I shared in the book, we went to a resort here in San Diego. And when we were having breakfast, this was, I think, like March 1, the very end of February. I’d met Gail in January. So, this was the end of February, I had known her for about eight weeks. And we noticed a couple, two different couples walking on the street with masks on. And Gail looked at me, she goes, what is this? What is this about? I said, oh, that virus having you heard this COVID virus, and supposedly, it spread, you know, through through coughing and sneezing and things. And I said, a mask could help prevent that. Because boy, we’re vibing I just, I haven’t really dialed into that, Larry. But I remember that there was March 1, of course, two and a half weeks later. So, two weeks later, we shut down, that’s when the whole country shut down. So, January and February, we lived as normal as we possibly could, you know, going out doing things and, and etc. And then when Gail got sick again, and the cancer started coming back, it took about 10 days before we realize the whole process and got her back into the hospital, then COVID was very restrictive, because of visitation, what you had to do to get in there. And that was in the regular hospital. And then also in hospice. I was I was actually lucky because if she was in a nursing home or something, whatever a larger facility, they were shut down, they weren’t letting anybody. So, I had to go through, take my temperature, disinfectant, the whole thing. And you know, and the interesting thing about it, the spiritual counselors were not able to be on site, it was only a four-bed hospice. When Gail was there, her joining roommates if I can say roommates, or fellow people who had transitioning per six weeks day, or 44 days day, there’s probably about 30 people who transitioned because, you know, everybody’s in different stage of at the end. And, but COVID, I had to just go to her room, I couldn’t go to the common area, I couldn’t talk any other family members. Um, so it was like you had to be present in the room. So COVID I’m not saying if COVID wasn’t there, I would have been out in the living room, not in Gail’s room trying to connect with her. But when I was there, Victoria, I was there, I had to be in her room other than using the restroom. That was it, that’s the only place you can be. So COVID um, there was limits on on visitation, there was limits on calling people coming down. And, you know, Gail started, she couldn’t hear. So, there was a lot of things in that room, where was just myself and Gail, and COVID. Her family members I mentioned earlier, couldn’t visit her as much because of some of the restrictions. And her mother was very older and, and you know, so it got to the point where COVID actually helped me be present with gal, and maybe to notice things and do things. And I submit perhaps I wouldn’t have done because I had to be there. I had to be present with her. And then Okay, she’s transitioning. So, what are the important things to do? So anyway, in the COVID picture, I think that also was the reason Gail chose to try to get into that inpatient hospice because she didn’t want to die at my place. And she didn’t want to die at her mother’s home. And that was the reason that I don’t want to say we ended up but that we chose and were able to get accepted to that hospice home. So COVID really had, you know, those types of impacts pro and con, I should say.

Victoria Volk  29:13
So, you have yet to have the celebration of life like you haven’t gotten to do that?

Larry Indiviglia  29:17
Celebration of life happened in November. So, she wanted a very small one. She gave me a list of only about a dozen people. And I honored that and her. She was cremated and her ashes were spread on a nature trail here in San Diego, and one of her professional colleagues who she knew through her photography business for many years. She wanted part of her ashes spread on a beach in Malibu Malibu where she did so many photo shoots. So, he did that. I gave him some of the assets, so he did that. And then we had celebration of life. And everybody got a pile of ashes. And here in San Diego, one of her favorite spots. So that was her wishes. We did it in november november 1. Actually, we did it on do de los Muertos, as it turns out, is that spiritual day of that the Mexican culture celebrates the people who’ve passed and already died, the souls who have risen, so to speak. So, we did do that. And it I waited a little bit longer because the COVID risen, and to get that, to get that that kind of completed, that was something that had to be done. So, I honored her wishes.

Victoria Volk  30:44
Well, and what a blessing that you became in her life. Because, you know, had you not taken and made that choice right to go online dating and had you not met her, you know, her mother wouldn’t have been able to help her and be there for her in a way that she probably would have wanted to. And way Gail would have wanted her to be because of her older age and COVID. And, you know.

Larry Indiviglia  31:12
Yeah, Victoria, you make a nice point here. There’s nothing heroic I did, what I did was, I had some empathy. And I learned more from Gail about life and love that I think she learned from me. But her life made a difference. And all of us want to be able to transition. I don’t know if I want to say on my own terms, but with some dignity and with some control. And I felt I was able to help her do that. Okay. And she was able to go on, at least to terms that she had control over. And, you know, she had told me stories. When I sat down with her, I had a great conversation on the phone with her, she was very honest. She said, Larry, here’s the deal, I have stage four cancer, I have a single mastectomy. If any of this stuff is gonna freak you out. I’m just telling you now. And I was so kept, I was so captivated by her honesty, I definitely wanted to meet her. So, we met the next night. You know, when I met her, she had told me, she said, you know, Larry, a couple dates I’ve been on, you know, some guys have gotten up and said, you know, this isn’t for me, and, you know, with $50 on the table, and I’ll see you. And that’s probably the extreme. But I, society now easier to get up and leave? Well, there’s not anything in this for me. I wasn’t looking for this, in this dating relationship. However, it’s riskier not to risk. Because the life experiences that you miss out on can be profound. And I did not miss this one, Victoria, because it’s like, what’s life about experiences that we have and want to have, some are controllable, some are not. Those experiences encourage us and sometimes make us grow. And because of that growth, we can then contribute more to others. So, I look at my relationship with Gail. It was a loving, profound experience, mentally, physically, emotionally and spiritually. It forced me to grow as a man in a lot of ways. And then now and it’s not just because of a book, but because of the experience and the growth I had, I was able to write something and realize that there were profound lessons here from this beautiful woman. And I believe so profound that I would like to share those with others, so that the gales and Larry’s out there, Victoria afraid to love because of somebody struggling. It doesn’t have to be cancer. It doesn’t have to be life and death. You may want to take that chance. Because you can experience Mutt a profound love experience that you would never have before I had somebody reach out to me. She was dating for three months. She came down with stage four lymphoma. Her boyfriend at the time visited her in the hospital. And she said you’re off the hook. You don’t have to go through me with this. Don’t you know we’ve only known each other three months? Well, he doubled down he asked her to merrier while she was enough, and they’re still married today. So, some of these things in life. If you go against the conventional societal norms, you may find something real special that you never would have experienced before.

Victoria Volk  35:04
I just got chill bumps because I absolutely agree. One single yes can change the trajectory of our entire lives. Right?

Larry Indiviglia  35:12
Yeah, you know, Victoria I, I don’t normally get too emotional on these things. But, you know, Gail’s life made a difference. And I saw the courage when I sat down with her that dinner. And you know, she had kind of like puffy eyes from some chemo. And it but she didn’t try to hide anything. You know, it was who she was. And, and, you know, I, you know, of course, you know, sometimes the male ego takes over, I sat down there at that dinner, and I shared in the book, I remember she looked at me, she goes, Oh, God, you’re so much more handsome than the pictures online. You know, it’s funny, but it was sincere. You know, I think it was, but but it was I was very, very, there was just, I was captivated. That’s the best word and really wanted to discover more about her. And, and, you know, the reason we’re sitting here today talking about her is is because the courage she showed and, and like I said, I think there’s a lot of gals out there that have to have second thoughts about putting themselves out there again, as difficult as it can be. It’s never too late to fall in love. And, you know, I believe that there’s somebody out there for all of us, right? That’s right.

Victoria Volk  36:35
I have the belief to that really challenging times, brings out the compassion within ourselves, but also helps us kind of disarm that as false. Basically, we don’t have to lie. Like you don’t have to. No one likes to be lied to first of all, but to just be honest, and tell the truth about how you’re feeling. I think that that becomes easier when you’re faced with something like Gail did, or, you know, like the terminal because she had had it and then it came back, correct? Like she thought it was gone.

Larry Indiviglia  37:10
Yeah, it was, they had it at big. They had her cancer at bay, you know, she had been through the real rough part of it, where she had to get the discectomy and it moved to her lungs. chemo, was able to get most of it out. But then it moved to her neck, and then she had to have neck surgery. And then after neck surgery, she had a good time without it, but then it moved her her brain initially. So, she had radiation for the brain. And that went into remission. So, she, you know, she was always trying to keep ahead of the game as it moved within her body. But at some point, they were able to arrest it. And also, to her credit, she was on a very strict nutrition plan, a totally clean, a very strong supplementation plan, exercise, plenty of sleep, Ph water. I mean, she did everything and research so many things. And she felt if she can get a holistic healer to work in conjunction a little bit closer with a traditional met what messed up Western medical physician that she thought she could beat it, but it was so hard to find there’s a lot of dead ends because of insurance and things. But yeah, yeah, absolutely.

Victoria Volk  38:29
So, you spoke a lot about shared different ways that you know what Gail taught you and what that experience taught you. But also, to that wasn’t your first grief experience. You mentioned divorce and had you had any grieving experiences prior to that?

Larry Indiviglia  38:48
I did. And you know, maybe one loss or the previous losses prepare you in life for the next now. I don’t want to be maudlin here or pessimistic or fatalistic where, hey, something traumatic happens. And that means it’s going to be a series of them throughout your life. If any of us haven’t experienced any loss through trauma, accident, death, cancer, whatever it is awesome. Okay. Many of us have though, okay. And I think most of us have on some level, specifically with cancer, too. You know, at a very young age, very young. I was driving a car I was 21 years old. In fact, it was the day after I graduated the Naval Academy. I was taking my older sister who was 28 at the time, I was 21. And my aunt, my father’s sister to the airport. We didn’t make it. They died. I didn’t. Okay, so at 21 years old, that’s that’s a big loss. Okay. And that one, you know, I had to do some personal work. ralphing there’s some things I had to process through the years about that. And, and get through that, so that you can move forward in your life, especially at 21. I was so young, but I did get through it. And that was 44 years ago, okay. And my faith, I happen to be Christian, I have faith that Okay, that was part of life’s plan. And that’s it, and you just have to be able to move forward. So, I found that that loss was a big one. And sadly, years later, not to put a list of losses here, my brother took his own life when he was 53 years old. And that was a big loss that was that was, that was a heavy burden, when when Joe took his own life, and each law I find, will give you the opportunity to respond and perhaps do something you would not have done. And you might not even think about it. It might give you the courage to move forward, do things in a different way, go to graduate school, get married, do some travel, do some philanthropy, whatever the case may be it it and my journey, it has provided me the array and because of the loss of the circumstances around it, to do something I would not have done would I have written 126 is 11 minutes as a fictional story. Probably not Victoria, probably not. Although somebody may read it. And it’s got elements of a novel in it, but everything in it is true. So, to your point, losses in life, do make you stronger, do give you an experience with the grief experience, and all of them are different. And I find that on my journey, responding and doing something that you perhaps would not have done can be a result. And I will say a positive result is it to honor a death situation can be or it could be giving back to a community that maybe you became aware of, because you came down with a disease or whatever it happens to be that you now want to get back to, but that’s some of my thoughts on that.

Victoria Volk  42:45
Did the loss of Gail bring up any unresolved feelings of grief that you may have needed to address?

Larry Indiviglia  42:55
It was different. I don’t know if it brought up any past wounds, so to speak. But I will say this, the losses you have and then I hadn’t lost a soul mate or a lover, etc before. So, it was a different kind of loss. Then maybe the human the human nature and us, at least for me, it’s like oh boy, you know, it’s not like death follows me. That’s not it. But if you do go to the to the place, and you say, well, she was such a marvelous woman, I would have really liked to spend more time with her. And now, I don’t have that opportunity anymore. So that sadness is there. It almost becomes and in talking about it now, it almost becomes a little surreal sometimes. Victoria, when I look back on it and say, did this really happen? You know, but it hasn’t really brought back to a great extent at all. Any, any past losses to any type of that’s causing any, any pain or anything like that.

Victoria Volk  44:12
I want to, I’m curious, because did anyone say anything to you that was hurtful? Regarding, you know, it was a four-months relationship?

Larry Indiviglia  44:26
yeah.

Victoria Volk  44:27
You know, because people can be insensitive and say things that was only four-months, imagine 40 years or you know, things like that, because that does happen.

Larry Indiviglia  44:37
Yeah.

Victoria Volk  44:38
Did anyone say anything to you? Just and I asked this because I think it’s important that people understand how these things impact people and like how words in cut like a knife.

Larry Indiviglia  44:50
Oh, yeah.

Victoria Volk  44:51
So, I’m curious if anyone said anything like that was hurtful or harmful in that way?

Larry Indiviglia  44:56
No, I did have a question. Would you have done it over again. Um, if you knew how it ended, I said, well, that’s really an unfair question because, you know, we lived into today I, I didn’t know how it was going to end. You know, did did I think I was going to outlive Gail? Probably, okay? But every case is different. We don’t know. You know, I mean, odds odds would say Gail was not going to live to 80 or 85. But, you know, one never knows. And I didn’t look at it that way. Nobody has ever said, you know, what, why did you write this book? Or, you know, you only knew her for four months. And, you know, because sometimes there’s so many beautiful stories out there Victorian, I know, you see them of people’s life journeys. And now that they’re grieving, loss of a child, loss of a husband, whatever it happens to be, you know, certainly I am not the only one. And, you know, the the people typically, who have left and transitioned, those are the people that are the inspiration, not necessarily me, there’s nothing heroic about this. Was this significant? Yeah, as I shared earlier, I think it was significant. But But I haven’t, I’ve been lucky, I’ve had the people who reached out to me, during the time, I was going through this were supportive. And people afterwards that, especially after I was working on the book, and released the book, were very supportive for them, for the most part, and I hadn’t experienced any. I had one comment, I think it might have been in in once the book came out, you know, I’ve lost three immediate family members, and why should I read your book or, you know, words to that effect, but that person’s grieving? You know, it’s like, I get it, you know, and, and it’s not, it’s certainly not a comparison game here. And boy, hopefully, but I could see some people who were in depth, you would probably know better than I know could react why. Yeah.

Victoria Volk  47:13
Yeah. And that’s one of the things we talked about in grief recovery is that there’s no hierarchy hierarchy of loss. I want to kind of circle back to that question, would you do it over again, because it’s really kind of a sad, sad thing to ask, if you really think about it, like, what is this? You know, you got to think about what that person’s feeling like inside to ask that because it’s like, you can ask that about anything. Like, you don’t know how long you’re going to be married to somebody. It’s like, I don’t even know the statistic currently. But you know, for a long time, it was 50% of marriage ends in divorce. Well, would you do it over again? I mean, how many people? Yeah, you know, it’s like, would you have children? If you knew one of them was going to die? Well, of course, you would still have that. You know what I mean? So, I think yeah, I think it’s a very sad question. Ask somebody. I’m sad for that person who asked you that, put it that way. Just to circle back to what you shared about the opportunities that we miss out on. That’s what I think back to I that person asking that questions.

Larry Indiviglia  48:24
I think connections in life, they’re not, none are random, I don’t believe in they’re just random. They’re all for a purpose, some last longer. Some lasts a very long time. Others don’t last as long. And but they’re all for a reason. They’re all for a purpose. And I think certainly, we all want to live to live a vibrant, long life, you know, with a high quality of life. That doesn’t always happen as we know; we don’t live in a perfect world. And certainly, all of us are imperfect. And sometimes we’re Dell tans that we never expected we would be down. But the period of time that I spent with Gail was the time that I was supposed to be and I firmly you know, believe that. What like I said it what I had hoped it would be longer than that. Certainly, yeah. But it was there for a reason and and I think we came into each other’s lives for a very powerful reason at the stage. I was in in the state shoot. Yeah.

Victoria Volk  49:40
So, throughout your experience and even the grief that came before it, what has given you the most joy What gives you the most joy and hope for the future?

Larry Indiviglia  49:54
Well, life is beautiful. And each day that we have is is certainly a gift and you hear that many circles, but it is. And to be able to have a continued choice on how we decide to live our life. That’s what’s really great. Because we could make that choice to meet to meet somebody, again online, we can make that choice to do philanthropic work, we can make a choice to shift careers, we can make a choice to, to retire, and not do anything if we chose to do that. The ability to choose is what I think, really, is really awesome in life. And the other thing is, is a very powerful lyric, it’s in the dedication page to the book, Gale used to sing to me from the song natureboy, which was sung by Nat King Cole, I think it was in the 50s, maybe early 60s. He didn’t write it, but Nat King Cole sung it, and the one lyric from natureboy was the greatest thing you’ll ever learn, is just to love and be loved, in return. And when you think about that, very simple lyric, but really powerful. And all of us have the ability to love. But we also have the ability to receive. And you know, you have to have both Victoria, right, and we have the ability to do both, we have the ability to give, and we have the ability to receive, and to those of us, I would say a lot of your listeners, I don’t know them are giving people, you’re a giving person. It’s easy to give gifts all the time, that’s super important. But we must pause and receive back because people want to give to us. So the ability in moving forward. And in the future. What I’m hopeful and joyful about is that very lyric right there. That’s the essence of life. Because I do lead, I do believe it leads to fulfillment. And it does make life a lot more joyful. When you experience both giving and receiving love. And I did that with Gail.

Victoria Volk  52:33
I love that. We do have two hands, right? One to give and one to receive.

Larry Indiviglia  52:38
We absolutely do.

Victoria Volk  52:40
I have to read this to you because I just I wrote this down prior to us recording. Oh, sure. It was just coincidental. So, I’m going to share it. Speak, think, and act from a place of love. This is a rule of life. There’s nothing you need to fear. I actually, I wrote, it will speak, think and act from a place of love. And then I added a rule that’s a rule for life. There’s nothing you need to fear.

Larry Indiviglia  53:08
Love could come in different forms, different at different junctures of your life when you expect it, or at least expect that. However, I’ll go back to choice. One of the lines I share on the very last last page of the book, actually, you know, each book I mentioned is titled all 126 days, and the last day is titled 11 minutes. There’s a reason for that. But in the lines to that last page, Gail says is life is life by choice or by chance. You think about it, the choices we do make, maybe they’re related, the choices you do make. give you a chance to experience something you would never have. I think Gail and I both did that we both made choices to love again. We both made choices to stay together. And that gave us a chance to experience something neither was would have had alone. Yeah, that that choice. And that chance when you think about life is an interesting relationship.

Victoria Volk  54:21
And I think that’s a perfect place to tie this up. Anything else you would like to share?

Larry Indiviglia  54:28
Um, if I could, you know, just tell people where to get the book, 126 days and 11 minutes, Our love story is available on amazon books in Kindle or paperback form. It’s a fast read. It’s gotten a lot of very nice five-star reviews. I’m very humbled by them all. So, the audio book will be available on Amazon’s audible channel.

Victoria Volk  54:53
And if people want to connect with you, where can they find you?

Larry Indiviglia  54:57
Yeah, email me directly. I’ll answer all of them. At [email protected] so that’s l i n d i v i g l I [email protected]. You could find me on LinkedIn at Larry Indiviglia. And you could find me on Facebook at Larry Indiviglia as well.

Victoria Volk  55:19
And I’ll put that information in the show notes.

Larry Indiviglia  55:22
Thank you, Victoria.

Victoria Volk  55:26
Thank you so much for being here. And for sharing your story and wisdom from your beloved Gail, and everything that you had to share.

Larry Indiviglia  55:36
Thank you, Victoria. Really enjoyed it. And I hope your listeners received something of value this morning. I think they did.

Victoria Volk  55:47
And remember, when you unleash your heart, you unleash your life. Much love

 

Ep 53 | Tina Ginn

Tina Ginn | Preparing for the Worst

 

SHOW NOTES SUMMARY:

Tina, like many grievers, has found her passion in her pain. What started out as a career as a financial advisor, where she was well-versed in risk management, morphed into helping others prepare for the worst in their lives.

Having lived through a forest fire evacuation order, the quick decline of a dear friend’s health and death due to cancer, a traumatic car accident which later led to losing her job, to a subsequent divorce and estrangement with her children, Tina has learned the importance of connection and preparedness.

She brings her passion for helping people become prepared for the worst. She recognizes that the last thing people want to worry about, when tragedy strikes or when there are moments to make decisions, are the logistics of their lives.

Through her app, Your Backup Plan, she helps individuals get their lives in order so that, when tragedy or nature does strike, your life is in the palm of your hand. This not only makes your family’s lives easier if something happens to you but also your own if it’s you at the center of the unfortunate experience.

Tina says we shouldn’t wait until someone is dying, or we are dying, to prepare; by then, it’s too late. Additionally, the conversations you want to be having in these moments do not include the bills that need to be paid and how they’re paid. Also for example, where social media passwords are, what to do with a beloved collection, or a last will and testament. These issues and logistics can be documented in advance so that anyone close can pick up the pieces with less stress. Also, in turn, this allows for more time for deep connection when it counts.

RESOURCES/CONNECT:

Victoria Volk  00:00
Thank you for tuning in to grieving voices. Today, my guest is Tina Ginn of your backup plan. She helps put your life in one place in preparation of any unpredictable, unpredictable circumstance while taking the painful aftermath out of the tragedy. Thank you so much for being here, Tina.

Tina Ginn  00:22
Well, thank you so much for having me. We’re a little bit apart from each other today.

Victoria Volk  00:29
Yes.

Tina Ginn  00:30
I’m on the west coast in here in the central.

Victoria Volk  00:33
Yeah. And, you know, zoom knows no time or space, right?

Tina Ginn  00:39
It’s good.

Victoria Volk  00:40
Yeah

Tina Ginn  00:41
We can reach all our listeners.

Victoria Volk  00:43
We live in an amazing time. It’s COVID really put a damper on so many aspects of our lives. But I have found some silver linings in COVID. And that I was able to pursue a lot of different learning opportunities and things and I’m sure it’s connected you with many people, and my podcast has connected me with you know, many people, too. And that’s been the beautiful thing out of it. But yeah, so we are going to talk about grief today. Obviously, that’s the podcast grieving voices. And we’ll get to Tina’s passion work later in the episode. So, what brings you to grieving voices today?

Tina Ginn  01:23
Well, you know, Victoria, that it’s been very, I’ve had many different types of grief. And it started off with a very close friend of mine, who went into the hospital for tests, because she had a cough. And she didn’t really have any other symptoms. And her husband had called me, and they had $1 store in a small city, and said, I’m really busy at the store, can you pick her up after her tests? I said, absolutely. So, I waited to hear from him. And he said, she won’t be coming home. She’s staying in for more tests. So, the next day, I get a phone call that she has stage four cancer, lung cancer, and that she’s not coming home. And, and where she would be so I could go visit her. In the days when we could visit people. Never thought we’d ever hear that, ever, that you couldn’t visit someone in the hospital. But yeah, so I would go up in the elevator twice a week, and you know, my stomach would fall to the My, my stomach, I think would end up in my throat, and the doors of the elevator would open. And I would always be so worried and scared of what it was going to look like, how it was going to evolve, how it was going to change, because every day, it just perpetually changed so quickly that in front of me that it was scary. It’s scary to see someone disintegrate in front of you. And so, I, on one of my visits, I always wear some real t instead of hospital T and we sat outside on the patio, and she said you know, Tina, I just want to feel the breeze. I just want to hear the birds; I just want to see the blue sky. And that’s all and I want to be present with the person that I’m with. I don’t want to talk about did the accounting get finished. Did we pay the inventory? Did the bills get paid, I don’t want to talk about where the keys are for the shed, or who’s who bought the pet food, or what kind of pet food or I don’t want to talk about anything I just want to enjoy the moment. And that made a huge impact on me. Because it made me realize that nobody and that time wants to either for the person with the person in recovery or in. In a short-term death sentence sort of speak. We don’t want to be burdened by all the stuff. We don’t want to worry about who has a key and who does. We don’t want to worry about if the electricity bill is paid. We don’t we don’t care. We don’t care. We just want if the person’s in recovery, we want to be able to get that person better. And the only way to get the person better isn’t like stress and frustration and anxiety and where the stuff is and where’s their will and where’s their dog documents and who’s paid the bills. And we don’t want to worry about all that, we want to know that you are there present in the moment and sharing the love, because it’s only love that’s going to make us better. It’s only love that will innately create that recovery process, if at all possible. We had research done in the states of twin girls, who one was very weak, and the other one was stronger. And they had to be they were premature. And they put them in different little different bed caskets, you know, the little hospital beds, and the one was thriving really, really well. And the little one wasn’t. And every day that went on, it wasn’t getting any better. So, the nurse put the two of them together, and they clenched with each other, and they held each other, and the one helped the other one get better. And so that one then flourished. So it shows you that by being there, by holding the person’s hand, by listening to them by holding them by seeing them by and not regretting after the fact, when they’re gone, I should have cut I would have, I should have spoke to them more, I should have called them more, I should have went and brought food to the more I I should have sat with them longer, I should have spent the whole day with them. No, don’t, don’t do that to yourself. Enjoy the moment and be prepared for the unexpected before it happens not after. So that’s kind of where I came from when I created the app, so that people could be better prepared, and it would be easy. You just pick up your phone and put in your doctor’s appointment. And when you come out of the doctor’s office, you put what he said and take a picture of the prescription. So now you’re putting your life all in one place. You were the CEO of your life, you know where the documents are, you know where your medical history is, you know where your insurance documents are, you’ve taken photos of your home in case of a wildfire, which How many times do we have to deal with those every year? wildfires and floods it seems popular these days. So yeah, so that’s kind of brings me up till the last few years of me taking the time after I had a few episodes of grief myself, that it took me into another place as well, because I had to find myself again, and move forward and help other people to whether it’s healing, because this to me, helps you heal, it helps you heal because it doesn’t bring in the angry, you know, family fights, or the depression or the angry ness between family members. When you’re in that tragedy moment. You You don’t have time to think, you know, people react in so many different ways. Some people get mad, some people get sad. And when you get a family together, let’s let’s try and keep that family together and try to experience something that’s already looked after. When it’s all looked after already, then you don’t have those same worries and stress.

Victoria Volk  08:50
Yeah, we often find our passions in life through her personal experiences. Thank you for sharing about your friend. One thing I do want to highlight that you said and one thing I picked up on maybe you didn’t was that when you saw your friend when you were getting out of the elevator and you were talking about that experience, and you were afraid of what it would look like. And you refer to it as it in terms of the cancer, right? And did you feel like you’re trying to distance yourself from that, you know what I mean? Like trying to distance yourself from that, from that diagnosis of? Yeah, I don’t want to put words in your mouth, but I picked up on that. And so, can you share a little bit more about that what you were feeling?

Tina Ginn  09:46
I think the IT part for me was you know, it changed so quickly from someone sitting on the edge of the bed, to somebody lying in the bed with oxygen and then not hardly being able to speak it, it developed so quickly, that it scared me to think of what the it was going to look like not necessarily the cancer, but the experience. I think it was what I was meaning, you know, the experience that I’m sharing with her, the room, the smells, the whole experience, and I don’t think we we do that we don’t take time; you know from for me, I wasn’t concerned about any of the paperwork or of her life. I was there as a friend and a support and for some sort of healing. And that was my sole purpose. But when she said those things to me, it made me realize you can always expect the unexpected, because life is very, very fragile. We don’t know when we’re going to be here tomorrow. And I think once you’ve gone through something as similar to this, you realize that life is precious. And we don’t have all the time we think we have, you know, we we need to get as much preparation as we can for ourselves as well as those we love. As part of my backup plan app, I’ve created the emerging blueprint, and it’s a membership program to better educate you and your family. those you love around you, too. What things do you need to put together? You know, this is where I kind of started off with, because everybody knows they need a will. That’s about it. Um, some sometimes they say, oh, yeah, Tina, we need a power of attorney. Yes, you do. But what are the other things that you need? What, what is going to make those people you know, if you ended up in the hospital in a coma from COVID, for two months? How would someone get into your home? How would they pay your bills? Where do they where do you have your accounts? Where are your investments? Where’s your key to get in? And do you have pets? Does someone know how to feed them to someone know where the VAT is? All of these things of being prepared for whatever might happen. And I think COVID really woke us all up around the world, that life is precious, and we are not prepared. We truly aren’t.

Victoria Volk  12:44
Yeah, I’ve often found in my own family, you know, or when someone close to my family has passed away. When anyone really passes away that we mutually know, or, you know, then the conversations start happening. Well, you know, what, what would you like, where would you like to be buried? Or what are your wishes. And in that, I mean, oftentimes when we’re faced with a death, that’s we reflect on our own mortality. And so those questions come up during those times. And but what’s funny or not funny is that we don’t act on that. Right? How many people actually have those thoughts? And then they don’t act on it. I’m guilty. I’m totally guilty of this. And I’ve thought about that, too. Like, oh, my gosh, if something happened to me, it would be a nightmare for my family. Like, my husband is not tech savvy at all. He would struggle, he’d be on the struggle bus, in a lot of ways. Like, how would he let my client like, it’s important for me to, I want I would want my clients to know, you know, just all these different little nuances of having a business or just all the stuff I’m involved in, like, what would he do? And I’m not prepared, I’ll be the first to say it. I’m not prepared. He knows what my wishes are. And actually, this just came up the other day, because I’m currently going through an end-of-life doula training program. And one of the topics that came up was how, if if you had the opportunity to know you were dying, right? In the case of lung cancer, terminal illness, a really progressing disease that’s, you know, what do you want your end of days to look like? Do you want your body washed? You want your family to wash your body? How do you want your body honored after you pass? What do you want the end of days to look like? Who do you want there? You know, all these different questions that I really hadn’t given much thought to other other than don’t put a feeding tube in me. Don’t hook me up to you know, have Then a later, that’s not living to me. Right? So beyond that, though, I don’t have that in writing either. You know, and I think I actually I just read up on recently I was I remembered it vaguely, but I looked it up the Terry shearable. Like, it’s how you say her name. She was in a vegetative state for 17 years because her husband wanted the feeding tube removed, and her parents disagreed, and there was nothing in writing. And all he had was a statement she made. And yeah, that’s the case. Yeah. So what is the first thing that you recommend to somebody who, let’s say, has been diagnosed with a terminal illness? Where do you start?

Tina Ginn  15:54
Well, that’s why I created the emerging blueprint, because it starts with what documents that you need to find how to make a folder, how to put them in a safe place, so that if you had a wildfire, you can just grab them. But they’re also in the app. So we go through the process, there’s 12 modules. And then the first one, I mean, literally, you could just do the first one and of knowing what documents to put together and putting them together and getting them put into the app. After that, all of the extras are great to put you one step level better. Any module that you do, you’re going to be better prepared than the last one that you didn’t do. So, I always say to people, you know, one of the modules is just what bills need to get paid. A lot of times and 90% of relationships, partnerships, one pays the bills and the other one doesn’t. So if something happened to one or the other, or both, who pays the bills and how you pay the bills, the person needs to know how to do that in case of an emergency. So that’s like one of the one of the modules the other, there’s a library of videos of recordings from lawyers, notaries, around the world, even, it will get to the point in the program, where I’ll have a UK section, the United States section, a Canada section, so that you can go right to those sections to find out your exact details. But in the meantime, there’s a lot of preparation to get done. And it’s very, very easy to do when you have the papers in front of you. You know, the family conversation module is a worksheet that you can sit down with your family and say, go down and tick off the boxes and write down what that person wants. And you don’t even have to think well Do I have to know that? Do you know what you need until the time comes? Usually not. So, this makes it all nice and clear. You can print them off, you can write on them, you can do them on the computer, whatever is easier for you. So, in the last module is like the most exciting, the most creative part. I’m a Pisces. So, I always invent and create things. But I always have to throw that little bit of extra fun firmness in there. And it’s called the treasure box. And so, it allows you to either do it on a weekly basis, or a monthly basis or an annual basis. Or even just as events unfold. You could add them into your treasure box, whatever suits you. Everyone’s different, but that could be of your five senses. So, smell sight, feel, touch, and see and seeing it hearing it. So, it could be anything that you want to leave as a legacy because not all legacies are money. It could be you know, a special shirt. There’s nothing more special when someone passes away than finding a piece of clothing with their aftershave on it or their perfume on it or their smell. You just want to hold it like a teddy bear and never let it go. So, it’s all of these things that you can add to your treasure box that might be jewelry or artwork collection. I have a client who’s he his hobby is fire trucks Believe it or not, he has a collection of fire trucks. I’m not sure why. But so when you think About how does someone prepare, you know, you don’t just have a collection of fire trucks and then leave your spouse not knowing what it’s worth, what the parts are worth who to contact, if something happened to you, because believe it or not, if you put it out in the newspaper, and you tried to sell it after, there’s lots of takers from from the wife, who’s selling all the collection of collectible items, so you don’t want to go down that road. So yeah, so it’s these kinds of preparations of items where you want to maybe throw in all your grandma’s recipes and pass them down and, or, you know, so every time they make those cookies, it’s gonna smell like grandma’s house, or mom’s house or aunt Sue’s house. So, it’s all of those feelings that I wanted to add in there so that people can make grieving easier. If that’s a thing, because I’m not really sure if it can ever be easy. But I feel like when you have things that you can attach yourself to, maybe it’s music, maybe they sing, maybe they write poetry, maybe they write stories. Maybe it’s a blog or podcast that they’ve been writing, and they would like it passed down to the daughter or the son to continue it. You know what, whatever that looks like. Those are all kinds of things that you want to pass down to your family or friends. So yeah, that’s, that’s the fun part. I think that’s the exciting, like, what can I think of to put in there?

Victoria Volk  21:50
I love that I’m a Pisces too. When’s your birthday?

Tina Ginn  21:55
25th of February.

Victoria Volk  21:56
Okay, March 5th, I just had mine.

Tina Ginn  22:00
Happy birthday!

Victoria Volk  22:01
Thank you happy belated to you. So, you speak a lot of experience in the realm of grief. And I imagine because grief is cumulative, and it’s cumulatively negative. And there’s more than 40 plus different types of losses. What have been your other grieving experiences that have kind of solidified what you’re already doing?

Tina Ginn  22:31
It’s really solidified what I’m doing now. Because when I created the app, it took me a long time, because I’m just one person. So, if I was the inventor, I was the creator, I was the diagram, I was the architect. You know, I was everything. It’s like running a motel, and literally going and rushing the washrooms and signing the people into the room. Like you are everywhere. So, after that, I had a horrific car accident in 2017. And I was hit head on. And I was happy that I was, you know, when I touched myself that I’m like, Okay, I’m still here, I’m, I’m in one piece, and my face is still my face. That was my main concern. But I had a lot of recovery after and I didn’t realize even from broken bones, and physiotherapy on your body parts, that no one is helping your brain. No one’s there for your brain injury, nobody’s there for your concussion. And so, I had to really work on all of those things. And when I realized that after 30 years of marriage, and horrific car accident, I then went on disability after realizing that I just couldn’t seem to even though I was walking around with crutches, and getting driven everywhere, because I had a cast on my foot, I couldn’t drive. I realized that I just couldn’t do my job, which was insurance at the time at a bank. And after four months, I realized after fixing, getting out of my crutches and out of my cast and being able to drive again, that I couldn’t do my job, I couldn’t multitask. I couldn’t, I could do my job with my eyes closed, but I couldn’t do all the multi tasks that there were to do. So, I decided to take go on disability and take some time and get recovered. And so I went back after seven months, and they let me go. And so, then I had a battle with that. And then I realized that I wasn’t getting the support at home. My girls had already been through university, they’ve already left the home. Both are doing their own thing. And it was just myself and my ex-husband. And I just said, you know, this isn’t working for me, I’m not getting the support. And I need something else. And so, I said, It’s time that, you know, I think we aren’t in love with each other. We love each other, but we’re not in love with each other. And I think there’s a difference there. So, we continued on with, we went for counseling, and that didn’t work. It might work for some couples. And we went through with a separation and then a divorce. And then, so after that, I lost contact with my girls. So, they’re in their late 20s. And they decided to go on their merry way. So, I guess I’ve had many different types of losses, many types of grieving. One hurts more than the other, to be honest. But I think they each hurt in a different way. And so, I can feel everybody’s I want to say torture, because it feels like torture. No, I can feel everybody’s feelings of what, how they’re supposed to feel what? I don’t know why with grief; we always think of what we’re supposed to feel. There is no supposed to anything. It’s it’s I think everybody feels different. Because we’ve all had different experiences.

Victoria Volk  26:48
I think at some point, we all feel crazy, though. Like you’re going crazy.

Tina Ginn  26:53
Yeah.

Victoria Volk  26:54
Like, why can I just like, get my crap together? You know that? I mean, that’s how I feel like Why can’t I just get my crap together? I’m sorry, what?

Tina Ginn  27:02
Why can’t I understand this? Why can’t I get my head wrapped around this?

Victoria Volk  27:06
Right? And in your experience of, I mean, there’s ripples, so many ripples in your story of like one loss just leads to another loss and another loss and it compounds it keeps adding rocks to your backpack? And so how, how have you? What has coping look like for you?

Tina Ginn  27:33
Well, I mean, it was definitely tough at first. But I think, by me, telling people stories, and really focusing on healing, helping people heal, with getting better prepared for the inevitable, because we all know, something is gonna happen to each one of us. You know, sometimes, like myself, I had multiple things happen, because obviously, the universe was telling me, hey, Tina, you’re not getting it yet. We’re gonna hit you with another one. And you’re still not getting it yet. So, we’re gonna hit you again. So, I think it brought me to where I’m supposed to be and what I’m supposed to be doing. And it’s created an outlet for me to if it helps me heal by me helping other people heal. By Me, helping people hear multiple stories of different things of what happens in your life, right can turn your life around, that can turn it upside down. You know, there’s such a little thing of losing your wallet, to losing your husband there on very different ends of emergency. And very different ends of the spectrum in the ways of how someone would actually grieve. But the losing the wallet is also an emergency to a lot of people. Because we we know what will happen, right? It’s but it’s there are different emergencies. And I wanted to cover all of them. Because by me going through these experiences, it must have given me that, that compassion and that empathy for people that also have to go through it. And by me creating something to make it even easier for individuals. You know, what I would like to eventually do with your backup plan is have a TV show where I’m traveling to the Ukraine. I’m traveling to Germany, I’m traveling to China, I’m traveling to United States. I’m traveling to these different places to show people how they get prepared for the unexpected in that place, you know that country, because I think that would be really interesting to see all the different cultures of how they, how they look at not necessarily life, but how they look at looking after their family member, you know, what does that look like for them? What does the cemeteries look like, in that country? What are the funerals look like in that place? You know, all of those types of things, I think it would be really interesting. And it would take people to a different level, to understand that it’s everywhere, it’s, it’s just like COVID, it’s everywhere, it’s touched everybody. And it’s not, we’re not going to die, depending on our age, has nothing to do with age has nothing to do the color of our skin. It has nothing to do with anything. And so, when people say, well, who is your target market, or who should be buying your app, I say anybody and everybody who has stuff. And some people say, well, I don’t need a will, because I don’t have anything. Well, that’s not true, either. So, we need to be better prepared, because there’s even the smallest, the littlest things that are very complicated, like social media, you know, if if you have an Instagram account, it’s very difficult to get your son’s Instagram account, and cancel it. Without him allowing you to do that, after he’s passed, who wants the social media accounts left open like that. They’re a prime target for theft, for identity theft, and because they’re not being used. So, it’s all of these social media things, it’s all of these types of things that makes your life easier, even when you think you don’t have very much, you have lots of things, digital accounts, now, we don’t get mail anymore, we don’t get any bills, hydro bills, all comes digitally now. So we need to have a place where those digital accounts can be found by someone just by looking at the right place, in one place for it to be they’re not trying to look in that drawer in that closet and that cupboard. And you know, who knows where that’s usually the way? It’s like, where would she keep it? Where would it be?

Victoria Volk  32:49
Well, folks, if you are not convinced that you’re not prepared. I’m sure you are now. Because I mean, what better sales pitch and I know it’s not a sales pitch, because I can feel it in your heart and you’re speaking and in the conviction in your voice of how much this means to you and how important it is. And I to understand how important it is it’s it’s the taking the action, it’s, you know, taking that step. And so, it is the app itself is available in App Store, correct?

Tina Ginn  33:27
And the launch will be available in a few weeks. And it will be on the website as well.

Victoria Volk  33:34
Okay, and I’ll be sure to link to that because this episode won’t actually air for a while. And so, you’ll probably find the link in the show notes for that.

Tina Ginn  33:44
It’s a lot to comprehend, isn’t it?

Victoria Volk  33:47
I know there’s more to this. I know we can talk a lot more about just I mean the on the unpreparedness aspect of loss and and the ripples of that because like you said, it creates stress and frustration of those left behind when well what are we doing in the repercussion of that, like let’s say you don’t get that bill paid like you have no idea where to pay that bill. You get overage charges, you get interest charged, you get late fees, and then all of a sudden, a $300 bill becomes an $800 bill because because you simply don’t know it exists or where to pay it right? And I mean, I flooded I when I was in my early 20s, I flooded out of my apartment. My mail was not for whatever reason I had a credit card bill that was not forwarded, or I didn’t receive it. That’s what happened to me all of a sudden, I’m you know 21 years old, and you know making I don’t even know what minimum wage is back then. Maybe five, six bucks an hour. I mean really. Um, but I lived in grout, you know, like I had a walkout patio or a walkout, you know, it was the ground level and flooded and had to move. And yeah, all of a sudden, I think it was like a $400 bill became like over $800. And I, I $800 to me when I was 21, that was a lot of money. Yeah, that was a lot of money. But that was just a consequence of me just not being prepared and, you know, lack of preparedness, I suppose. But, you know, something would have happened to me, then who would have been? What, you know, what would have happened with that build. So, you’re driven the message home to me. And I’m, I definitely will be giving this much more thought after, after today, for sure.

Tina Ginn  35:45
It’s about being educated. Really, you know, because at first, I thought, Oh, you know, everyone can use the app. Well, the app is there. But it really helps. And I suspect it’s a lot for women, mainly, because we like to build our Nast. And we like to be educated. We like to know why we’re doing things. It seems like that anyways, whether it’s true or not, I’m not sure but and so that’s when I made the emerging blueprint, because that way people can go watch a 20 minute video, you know, they can go watch another module to find out about life insurance, or find out more about car insurance or find out more about house insurance or tips on a little video on talking to a house insurance person agent talking about that, or, you know, all of these different little educational parts that we truly don’t really know if we know that makes sense. Is that a thing?

Victoria Volk  36:48
Well, can you speak to that a little bit, just the fact that I want to circle back to the fact that you were married for 30 years, and then found yourself on your own. And so, you know, you don’t have that backup, you don’t have that support, you don’t have that. If he takes care of that I take care of this, all of a sudden, I’m taking care of everything, you’re taking care of everything. And so, can you speak to what that was like, because I don’t know what that’s like?

Tina Ginn  37:19
Well, I’ve never been on my own. So, it was very, very strange. And my girls would go everywhere with me, like we went shopping, grocery shopping, clothes shopping at like literally anything. They played avid softball, they got softball scholarships, they, I wanted to ensure that they were in a great place to get really good education and experience life experience. But for whatever happened to us, I’m not really sure. But maybe one day, they might hear this or see this or realize that, you know, don’t talk to somebody and wait too long. Because you don’t know what tomorrow will bring. You don’t know if that person is going to be there tomorrow. You know, you don’t, as a mom, you worry about your kids, even if you don’t see them every single day. But from a kid’s perspective to a mom, they’re on their own, they’re doing their thing. I’m sure they’re not thinking every day about their parents. You know, remember those days, but it’s like when you’re in your 20s. I don’t know, I think by me sharing my experiences now. It’s given me motivation and inspiration to help others. I’ve had too many clients call me at the edge of a deathbed of their parents usually saying how do I get where their bank accounts are? Tina? Where do I find out where their documents are? Where’s this? Where’s that? And my answer every single time is it’s too late. You don’t wait until they’re dying to find out anything. Because when the person is actually dying, they think that they’re not. There are not going to die. And why are you asking me those questions? So, it’s too late. You have to do these things. When everybody is fine. Everyone’s healthy or somewhat healthy. So even if like you said with your question, if you found out you have cancer, these are all things that you can get better prepared for either for yourself, as well as those that you love and care about around you. Because if something happened to them, you’re in the same boat looking after them. So, you might as well have them prepared to so yeah, it’s it’s So like a little family circle, like I like to call it, what will happen with my kids? Um, I’m not really sure, I hope that it’s not going to be a tragedy that brings them back to their mother. I wouldn’t want to wish that on anybody. I would hope that it would just be something they’ve seen or heard or a movie, that they go, like oh goes on and says, what are we doing? You know, life’s too short. This is ridiculous. So, we’ll see. We’ll see where it goes.

Victoria Volk  40:37
I’m sorry that that’s your experience. Right now. I can’t imagine as a mom; I have two girls and a boy. And I just what I think about now is Gosh, I hope they really love each other and get along when they’re older, that they know they have each other that they really look to each other for support. But it never has crossed my mind. Gee, I hope they want to come home. I hope they want to see me.

Tina Ginn  41:05
Yeah, it puts it right there.

Victoria Volk  41:08
Yeah, so I’m so sorry.

Tina Ginn  41:10
Well, it’s a lesson somewhere in there for all of us involved. Not sure what we’re supposed to learn. But there is a lesson in it somewhere.

Victoria Volk  41:19
I want to mention to something you mentioned about when they’re sitting at their parents’ deathbed, and they are in denial of their loved one dying, that was actually just brought up in my end of life, doula training, and how often that is the case where people deny the inevitable, they deny what’s actually happening. And I can speak from an advanced grief recovery methods specialist point of view, and also someone who watched their parent die, in that it separates you from the experience, when you are unable to acknowledge what is happening and what is inevitable. It keeps you from really embracing what’s possible in that moment. And what I’ve come to learn in the very short start of my training for the end-of-life doula is that it can be a very beautiful experience. And it’s very empowering, to really engage and put yourself in that experience with your whole heart. And you can’t do that if you’re denying what’s happening. So, I just wanted to bring that up.

Tina Ginn  42:34
That’s a good point. Because you also can’t be there like we talked about, if you’re worried about all the other stuff.

Victoria Volk  42:42
Yep. Exactly, exactly.

Tina Ginn  42:46
Fear, and you’re worried and you’re stressed and all of these things and, and it’s like being hit by a car. You know it, I wrote a book, it’s called in the blink of an eye. And it truly is, it’s in the blink of an eye. Even if you’ve been someone’s been suffering with cancer for six months, and then they pass away. At six-month mark, it’s still really in the blink of an eye.

Victoria Volk  43:14
It’s still sudden.

Tina Ginn  43:17
It just happens, even though you think you’re prepared. But are you?

Victoria Volk  43:23
Yeah, I just actually that came up not that long ago, how, even if you have the time, and you’re given that blessing of time to know that that’s what’s going to happen that you know, and doctors don’t get it all right all the time, oh, you have three months to live and then you live two years, you know, they don’t know at all, but I digress. Knowing that there’s an end cap right, to your life that’s coming changes the perspective and how you behave and act and the conversations you want to have and how you engage with life and and it’s just unfortunate, I find that it takes something tragic like that for us to really wake up.

Tina Ginn  44:03
And it does. Not sure why.

Victoria Volk  44:08
Yeah. Part of the life lesson that we each have to walk I suppose. What brings you the most joy nowadays?

Tina Ginn  44:16
ah, talking to the wonderful people like yourself all over the world every single week, hearing their stories and hearing their inspirations and helping people hearing their stories about you know, what’s happened with them and how it’s changed their lives and it’s so breathtaking. It’s it’s just so the experiences I can’t even have words for really, it’s it’s just, it makes you tingle really does. Because, you know, I’ve just taken something that you say well, why People say, well, there’s lots of stuff if you die, there’s lots of things. There’s grief counselors, and there’s all sorts of executor type of things. And there’s booklets, and all of that kind of stuff, but there’s nothing for the whole picture. There’s nothing for a car accident, there’s nothing for just going in for surgery and not really coming out in two or three days. You know, there’s nothing for losing your wallet. There’s nothing for a five-minute evacuation notice for wildfire. There’s all of these hurricanes, tornadoes, you know, there’s all of these types of tragedies, the cancer word, stroke, heart attack, there’s all of these experiences that we’re all going to have in some shape, or form. And I just want to help people make it easier. You know, if it can be easier, let’s do it because COVID has changed you lives.

Victoria Volk  46:01
Just think about the time to I’m just, when I think about, okay, if I had this app, or my loved ones had this app, the time that you spend in conversation, like you mentioned before, wasted, breath on things that really don’t matter, but still do need to be addressed. You could be talking about things that really are matters of the heart, that really do matter in that moment, right?

Tina Ginn  46:31
Or special toy that they played with, or their teddy bear or when did they learn how to ride a bike and all these little stories that you can help that person that is passing? Be there in the moment not say, hey, Mom, you know, did you tell me where those bank accounts are?

Victoria Volk  46:51
Right? Yeah, I mean, that’s yeah, if if only for one reason to be prepared, right? Is to have a quality of conversation when it matters.

Tina Ginn  47:05
Well, I’m make your life easier, even for yourself. If you had a five-minute evacuation, and you’re running around the house. Are you running around taking photos or you write videos? Are you running around not knowing what to grab? Like, what do you grab? photos? Do you grab documents like clothing? What do you grab, and if you don’t have that go to bag, then you know it’s just craziness and I’ve even had the five minute evacuation notice in the Okanagan and BC. And it’s not fun because you can smell it, you know, it’s it’s, it’s like the, the experience that we’ve all had with our cities of being closed down. It’s that eeriness, it’s that smoke where you can’t see the sun, it’s so smoky. And the bits of the fire are floating in the air, like from the trees, which, in fact, go and float somewhere else and start a fire somewhere else. But there’s all of this, you know, you can’t breathe, you can’t see you can’t smell you can smell it. It’s It’s so eerie. And here you are in that moment, trying to figure out what to grab out of your house.

Victoria Volk  48:22
That’s traumatic. It’s traumatic, I’m sure. Well, thank you for the work that you’re doing. I’m passionate about education around grief, obviously, soon around, end of life. I’m going to be speaking a lot more about that, I’m sure. And so, thank you for the work that you do. I would love to include your app as a resource on my website. Yeah, there was another gentleman, he was a guest on my podcast, too. He created an app for memories. Actually, after cloud, it’s called think there’s just beautiful things that can come out of the experience of grief and wonderful creators like yourself. So, thank you for creating this to make lives easier.

Tina Ginn  49:16
It truly is my passion. I feel it from every part of my soul. I think it’s definitely it’s just so exciting every day to think who you’re going to touch today and who you’re going to help.

Victoria Volk  49:35
Is there anything else you would like to share?

Tina Ginn  49:38
just you know, during COVID, it’s given us a very different experience than what we’re used to. This is our new normal and if anybody’s listening any listeners out there and I usually say this in most of my podcasts as well, but there’s someone special in your mind right now. someone that you love it care about on your mind. Reach Out and text them, call them message them today and tell them how much you love them. Because you never know what tomorrow will bring.

Victoria Volk  50:12
We don’t, we don’t. Where can people reach out to you if they would like to get in touch

Tina Ginn  50:19
Well, we have your backupplan.ca is the website and I’m on Instagram, your backup plan. Facebook, I have a Facebook group as well as a page, your backup plan, LinkedIn, Twitter, G, jeez, I’m on everything. I am everywhere.

Victoria Volk  50:42
Well, I will put some links in the show notes where people can find you to the app and also to your website. I will link all of that in the show notes in your book as well. In the blink of an eye, I was even going to ask you kind of I hear a book rumbling in here you came out with you have a book and I thought when you mentioned the TV show, I thought Hmm, maybe you could start with a YouTube channel. Are you on YouTube? You are on YouTube. Okay. And that’s on your pod on your website as well linked on your website as well.

Tina Ginn  51:14
Yeah, YouTube, it’s your backup plan.

Victoria Volk  51:21
Okay. Awesome. Thank you again for being here. Tina, thank you. Thank you for sharing your story and for the work that you’re putting out in the world.

Tina Ginn  51:29
Thank you for the opportunity. I love speaking about it and I love telling people that it can be easier. And this is how.

Victoria Volk  51:39
And remember when you unleash your heart you unleash your life. Much love.