Ep 109 | Maha Bodhi

Maha Bodhi | A Quest for Inner-Peace & Freedom

 

SHOW NOTES SUMMARY:

Were you born and raised in the land of the free and home of the brave, the United States of America?

This week’s episode reminds me that oppression and enslavement are not only in Yemen, where this week’s guest was born but also in the free world. It just looks different from what Maha experienced.

Ironically, Maha fled Yemen, where she experienced oppression, enslavement, arranged marriage twice that included violence and rape, and two civil wars in search of a better (more free) life in America. A life where she could purchase a dress for the first time and make everyday decisions for herself without her father’s dictatorship and abuse from her mother.

This episode begs the question: Where is freedom truly found; is it a state of mind? Or is it simply where your feet touch the ground?

It depends on who you ask. Holocaust survivor Viktor Frankl said: “It is not freedom from conditions, but it is the freedom to take a stand toward the conditions.”

Maha took a stand against her conditions. And we all have that power to do so, particularly within the confines of our minds.

Follow Maha’s journey from oppression to freedom when she became a U.S. citizen in 2018. Today, she truly is an unleashed heart, sharing her gifts, wisdom, and experience with all who are open to receiving her message.

There’s a story behind her name. Listen to learn the depth of her name and, more importantly, what it has meant to her as she’s reinvented herself as a free Maha.

The degree of your surrender is the degree of your success. – Maha Bodhi

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Victoria Volk 0:00
Thank you for tuning in to grieving voices. Today my guest is Mahabodhi. And after surviving a brutal upbringing of being enslaved as a female in Yemen, forced into an arranged marriage twice, surviving multiple death threatening situations, and two civil wars before arriving in the US, Maha found her freedom and true self through the practice of ancient Yogic and modern neuroplasticity techniques. She is a living example of the hero’s journey and is dedicating her entire life to spread the transformational texts techniques that have saved her life. Thank you so much for being Yoona.

Maha Bodhi 0:41
Thank you for having me, Victoria, thank you so much. It’s an honor to be here.

Victoria Volk 0:45
And I initially met, I had gone to a Women’s Business Summit, and you were one of the presenters. And you had shared your story, and I was just captivated by your story. And I thought, Gosh, I need to have her on the podcast. And here we are.

Maha Bodhi 1:00
Yes, here we are. Yes, thank you for having me. I, it was so just so refreshing to see you in that summit, and to see all the incredible women and the incredible work that that organization is doing, you know, I was just really impressed.

Victoria Volk 1:17
And so you tour the country, and go all over speaking and things like that. But that wasn’t always your life. And I imagine what shaped your life in the work that you’re doing today has been your life experience? And can you take us back in time?

Maha Bodhi 1:34
Absolutely. Like you mentioned Victoria, in your intro, I did come from a very kind of traumatic background, my both of my parents are from Yemen. And it’s a very poor and undeveloped country, you know, 50% of the population and lives below the line of poverty. You know, they don’t even most people don’t even have access to clean water or basic human necessities, any sort of appropriate health care. And women are treated very, very poorly in terms of their goal, the purpose of a female really in that country is to serve her husband and, and a man is allowed to have up to four wives. They call them like Sister Wives and they all live in the same house. And arranged marriage is very common in that region. And not only nemenhah Multiple Muslim countries, and even till this day, it’s still practice that arranged marriage were really the kind of your parents, mostly the father, it’s the male dominant culture, the father owns the daughter, and then potential husband will come and propose and it’s kind of like a business deal. They shake hands. And there’s a dowry involved a lot of money that the potential husband pays the father and then the father hands off the female, his daughter or to the new husband. In most cases, they don’t even ask the woman permission, if you call her consent, if she wants to marry this man, you know, they show her a photo and this is who you’re gonna marry, and they meet for the first time in their wedding night. And so a similar, you know, scenario happened to me not once, but twice. And it was very traumatic, you know, one of the husbands was very violent and tried to kill me. And because I came from a very unstable family I also there was abuse in my home. So we the whole country of Yemen is a very, there’s a lot of turmoil, there’s a lot of civil wars, there’s Tribal Wars, there’s international wars, there’s like five different wars going on at the same time. And, and in addition to that, there was violence inside of our home, my mother was extremely violent physically, verbally, you name it. And so I was used to violence and it was kind of my normal. And so when I married the especially the second husband, and I was forced into that marriage, and he was violent, and he was trying to kill me in a machine gun in my head and a sword in my throat and these like dramatic scenarios that you only see in you know, Hollywood movies. And for me, I you know, it wasn’t that extreme, because I was like, Okay, do I go back home and, you know, somebody’s gonna kill me there. Do I stay here and die here. So those were kind of were my options. So it was a very extreme, extreme situation. But in that moment, when you’re in it, it’s now that I look back now that I’m here and I’m safe, and I’ve healed and I’ve matured, I look back and it literally feels like it happened to somebody else that feels like a movie. What I went through and I don’t like the human spirit is just so incredible and so resilient and and I look at myself and like wow, how did I survive that you know, and, and still move on and still come here. And you know, it’s a long story. My father was a diplomat. So we there that was kind of my key my window to freedom because because of his job as a diplomat official, his job required him to travel and to move Every four years to a different country, so we would kind of go back and forth. I was born in Russia, and we lived in Rome in Italy. That was my upbringing. And we lived here in Washington, DC, and my father worked for the embassy there for four years. And so kind of had a taste of what life outside of Yemen looks like. And that’s why I kind of, I knew inside of me that there’s another way, there’s another way of living.

Maha Bodhi 5:26
And, you know, eventually my father had to retire, I went to school in Romania, and I decided to, he was supposed to retire. And the last station that he was as a deployment was in Bucharest, Romania, and I knew that this was, if I go back to Yemen for good, you know, I will die, either somebody will kill me or I will kill myself. And so I decided to start applying for graduate school here in the United States, I saw some of my Romanian classmates do that. And it was like, A ha, that’s my key to freedom. And I just started applying, and I got accepted. And, you know, it was truly nothing short of a miracle. That, you know, I had convinced my dad to let me go to come here and get my master’s degree in organizational behavior, you know, really used school as an excuse, and, and he was able to let me go, and I came here, and I knew, you know, the moment I landed, the moment I stepped on American soil, was the first time in my life that I was free that, you know, I didn’t have to answer to anybody, I didn’t have a curfew, and I was in my 20s. And as like, no one’s calling me, no one is looking over my shoulder, I can go wherever I want, I can wear whatever I want. And that’s kind of where my healing journey began.

Victoria Volk 6:43
Hard to believe that, that still happens, or is still happening to people to women. And I can’t imagine the person that you’ve become right like, how, what did that look like for you? What did that healing look like? And also, I’m also curious, how old were you when you were first? Sold for marriage? Like, what is the typical age?

Maha Bodhi 7:06
Yeah. So you know, I was 19 my first arranged marriage, but Truly Victorian, mentally, I would say I was 10 years old, because of the lack of education, the lack of exposure, the lack of maturity, there’s there was zero sexual education, I did not know what sex was or how it works, or what a man and a husband doing the bedroom. And so I literally was a child in my head, even though I was 19, I was so scared and terrified, all they told us, it’s gonna hurt a little bit, but then it’s gonna be okay. And eventually, you’re gonna love him, and you know, just have kids right away, and especially have a boy because that will increase your value. And literally, that was all the sex education that I got. And so I was terrified. And also, I’m with a stranger all of a sudden, and there’s a complete, like, segregation between the sexes, in that culture, men and women do not socialize whatsoever. You know, they cover up the woman from head to toe, and then all of a sudden, on your wedding day, here you go, this is your husband, you know, go and be intimate with Him. And it was it was just like, insane. And so that was that was that was a lot. And then it was two years apart between my first thing so literally, the first arrangement, I only saved 30 days, and I was playing hide and go seek with this man. For those 30 days, I was sleeping most of the nights in the bathroom floor locking myself, you know, because I did not want to have sex with him. And I never did. I just hid in the bathroom for 30 days. And then eventually I ran back to my parents house. And then they locked me up because now I brought shame to the family because that’s so taboo in that culture and, and I attained like the whole family reputation. And, and that was this. I was locked up for one year, and there was a negotiations of the divorce, they were trying to bully me back into the marriage. And I really was fierce, you know, now looking back, I was standing up to the most powerful men and a corrupt country, you know, that man that I married, his father was the prime minister of our country, and, you know, in that kind of corrupt environment, and I was saying no to those men, I’m like, I’m not going back. I don’t know where I had that ferocity from, and I and so they locked me up in my parents house, literally solitary confinement, and for one year, I could not even see my own sisters that lived in the same house with me. At one point, I remember I opened the door to go to the bathroom and I see my little sister. And last time I saw her she was crawling. She couldn’t even walk yet. And now she was like, bouncing around and walking. She’s grown and I didn’t even recognize her and we live in the same house. And so I was losing my mind and I was literally starting to hear voices in my head and And then after the divorce was finalized, it took a year, they forced me into an a second arranged marriage, like right into it. And at that point, I was so desperate that I thought, okay, maybe it’s better, you know, to get out of this, you know, jail that I’m in, and maybe maybe this guy will love me and be kind to me, and I’ll have a better life than I’m having right now. And so I was kind of optimistic about this one. And he ended up being extremely violent, he was the one with the machine guns and the swords and locking me up. And, and that was where sexual abuse came in. And he because I just tried to do the same thing that I did with my first husband and avoid, you know, sexual relations with him, and he wouldn’t have it. So he was forcing himself on me and was pretty much right. You know, even though we, you know, we were married, if you will, but I wasn’t, you know, I didn’t consent to this marriage. And then same thing, I stayed there, I stayed with him for 40 days, because, you know, I gave him 10 days more, because I was just so terrified of, you know, doing it twice. And but it really was death or life in the situation because of the, how violent he was. And I was like, you know, what, if I’m gonna die anyway, you know, just, I’m just gonna go back to my parents house and see what happens and, and that’s when my father, it’s interesting, I call this divine intervention, because my father was supposed to retire. He was at the end of his career traveling was over and we were in Yemen and, and all of a sudden, my dad gets one last final diplomatic mission to go on it to go to Romania in Bucharest, and, you know, be the ambassador of for our country in that in Romania. And my dad, just because the situation was out of control, my dad just grabbed me and he said, Come on, just I’m gonna go to Romania to come with me.

Maha Bodhi 11:52
And so that’s how I went to Romania. And I started going to college because I wasn’t doing anything. I wasn’t going to school. You know, I was just being bought and sold left and right. And locked up. And so I started going to school, I went to business school and things kind of slowly began to lighten up for me, I went to school. And then the final year when my father was this time, for real, he was supposed to retire. I applied for graduate school and came to the United States. And you asked me, what was this healing journey and you see me now, you know, doing the work that I do when touring the country, like you said, and I’m writing my memoir, and I’m leading yoga retreats, and I, you know, work with Fortune 105 100 corporations. It’s not overnight, you know, and I know our culture has this, like, quick fix this before and after picture. It’s not like that. It was a process. It was years and years of intense healing therapy, yoga, meditation, inward reflection, and a lot of self study. I came here you know, I had to figure out who is MMA outside of all that chaos. I never had a moment to know who I am. I never made one decision in my life up to that point I was 25 years old when I came to the United States and I never you know bought a dress or never, you know, get got to decide the you know where to go or what to eat. Or, you know, my bedroom. I remember we would like because we were traveling a lot like I can I choose my room like now you don’t get to choose your room. You don’t get to choose and everything is thought for you. Everything is decided for you. Even my hair cut even like the littlest thing, every decision was made for me. So here I am a grown women. Now I’m in the land of the free. Everything is supposed to be amazing, right? But no, because internally, I don’t know how to make the simplest decision. I don’t know how to process information. I don’t know how to behave like a grown woman. I remember I had to buy a mattress because right I just moved here. That’s the first thing you do you buy a mattress to sleep on. And I did not know how I’ve never had a bank account in my life. I did not know how to pay for the mattress. The cashier had to show me how to write a check. And he would tell me like paying the order right here, sign here, put the date here. And I was so proud of myself. When I did that. I thought I achieved something incredible. And I didn’t know how to put gas in my car, all these things. So I had to learn step by step by step and yoga played a big, big role in my healing. And it really changed my life. And that’s why now I’m so passionate about helping other people and sharing the techniques that helped me because they work if it worked for me, literally coming from under a rock. English is not even my first language. And now I’m doing what I do. I think anybody can do it. If you have Well, if you have the determination, and you put in the work, it is possible.

Victoria Volk 15:07
Wow, it was like you were a 25 year old infant, I’m sure. It felt like ways Yes. And really vulnerable to being manipulated and taken advantage of again. And so did you. Like where? How did you even know where to find support? As when you first came here? Like, how, what did that look like?

Maha Bodhi 15:29
You know, I was so excited. And so I fell in love with America and American culture. And because of when we were traveling with my father, one of our stops was in the United States was in Washington, DC. And we lived there for four years. And I started kindergarten there, and I studied up to third grade. And me and my sister was me and my older sister, were kinda like two years apart, we got hooked. It was our favorite country of all the countries that we lived in. And we just fell in love with America. And then when we had to move away, because, you know, my dad continued to travel, we were heartbroken. And we never got over it. It was like falling in love, and you never get over it. And so we would move to other countries. And we would watch, you know, American sitcom Saved by the Bell, full house, all these things. We were so immersed in American culture, and so kind of resisting. You know, we were in Saudi Arabia, and we were resisting that culture. Were like, no, America is like so much better. And so we always were dreaming of like, America was the dream. And so when I came here, it was literally like, I remember I called my sister, I just landed. And I was in San Francisco, and I called her I’m like, I’m in San Francisco. And she’s like, whoa, you did it. And she’s like, just live the dream live the dream for both of us, because she got arranged marriage, you know, and into that, you know, path and she already had two kids and, and so she was like, you know, just do it, do it for the both of us. And so what motivated me when you said, like, how did you feel I was so excited. I was literally living my dream. And I was like, I’m here. And anything is possible here. You know, all those restrictions and chains that I had, were gone. And I realized, now it’s up to me. Now, it’s, you know, me and me. All the excuses that I had are gone. So it’s up to me what I do with this freedom, what I do with this opportunity, and so I just, you know, saw, you know, therapy. That was number one, I would say number one was therapy. I knew I needed healing, I would have terror nightmares. You know, I suffered dramatically from PTSD. I mean, I didn’t even know I had PTSD, I would just have these nightmares. And so I went to therapy. And and it went from there. You know, therapy really, really helped me break down how your past, you know, is still showing up in your future and kind of shapes the lens of how you view your world and your life. Right. Dr. Gabor Mate said it. He’s an incredible physician and therapist in his holistic his work is incredible. But he says,

Maha Bodhi 18:04
Your mind shapes your world. But before that your world shaped your mind. And so that’s why you know, I talk a lot about manifestation and manifesting your best life and my work, but unable to tap into your innate power of manifestation become the creator of your life experience, you have to undo you have to unlearn you have to heal. What was done to you, especially if it was a negative thing, the old tape, the old limiting belief, all my life, I was told that I was unworthy, my mom would literally step on me, I’m like, in a fetal position when I was young, and she would put her foot on my back and tell me like, you are worthless, you are nothing, you know, and I’m being like, I’m not I’m trying not to be BullGuard, they’re on your podcast, but she would say a lot of more aggressive things than just that. And so those things shape your mind. And I carry that with me all my life that I am worthless, like, who’s gonna want to look at me who’s gonna want to hear me who’s gonna want to be my friend who’s going to give me a job, all these things, I carry those with me. And then they impact all the other, you know, areas of development in your life, your career, your finances, your relationships. And so therapy helped me kind of see that. But I felt like I plateaued. I reached a point where I just felt like I wasn’t progressing at the rate that I wanted to. And that’s when yoga kicked in, because I love therapy so much, but you’re only dealing with the intellect part of us. And there’s a whole other part that is the body that is not tapped into therapy, unless it’s a Holistic Therapist. But that’s where yoga really came in. What does it feel like to feel safe in your body? How does it feel in your belly? How does it feel in your heart? How does it feel in your legs? eggs. And so those things to embody to be in body to feel the qualities that you want to cultivate. And the beautiful news is that, you know, it’s possible you can cultivate those qualities just through your intentions. And being mindful. The brain is malleable, the brain is plastic, it’s a muscle just like any other muscle. And we know now through research through neuroplasticity, a lot of studies have been done in Harvard, at the Lazar lab, the impact and benefits of yoga and meditation and what it does to the physical structure of the brain, they take the brain and they scan it before and they scan it after, you know, an intensive yoga and meditation program. And they saw that you increase gray matter through these modalities and through these practices. And what does that mean, what is gray matter mean? You know, I’m a little nerdy, and I don’t want to confuse people. All that means is that you activate parts of the brain that correspond to hope, optimism, joy, and you just start to make different decisions, and you start to have a different view of life.

Victoria Volk 21:10
So much came up for me as I was listening to you and I, my eyes started to well up when you were talking about what you said, your sister had shared with you. And I just thought, oh my gosh, like you’re not only in a foreign country, or you were familiar with America, but you left your family, your grind everything behind that you knew solar’s I have a two part question. If you don’t mind going there. But did you ever think about changing your name? is Maha Bodhi your birth name, first of all? And then secondly, are you still in relationship with your family?

Maha Bodhi 21:46
I’m glad you asked that question, because a lot of people asked me that question. So my first name Ma is my given name. It’s a very common name in Middle Eastern countries and Arabic speaking countries. And it was, it means in Arabic, it translates into big, beautiful eyes. And that’s why my parents named me Maha. And so when I came fast forward to the United States, and I’m actually in my yoga teacher training, and it’s my first day of teacher training. And the teacher asked me, Can you introduce yourself to the group and I said, Hi, my name is Maha. And he said, Do you want to tell them what Maha means? And I said, Oh, it means the beautiful eyes. He’s like, yes, but in Sanskrit, it means the great. And I had no idea Victoria, that it meant that in Sanskrit, or it had a meaning in Sanskrit. And everybody looked at me, and they were like, Whoa, you were destined to be a yogi. And you know, it’s like Mahatma Gandhi or Maha Yoga, it’s a means the great. And so that was kind of one of those, you know, universal signs that I like, I feel like the universe gives us clues clues, clues like this is to nudge us in the right direction. And so that was the first thing. My last name was my family name, which is I’ll call it D. And I did change it when I became a US citizen. And so I became a US citizen in 2018. And I didn’t have any intention to change my name. And I was getting naturalized. And my immigration lawyer, she told me, I was filling up the form. And she said, click here, do you want to change your name, and I said, Oh, and she said, This is the easiest way to do it. Like the fastest and easiest way, just check that box and write whatever name you want. And I was like, I actually do want to change my last name, because I felt like I was a completely different person. I had just completed my yoga teacher training. And I became this Yogi and I, and you know, when you when, when you are expecting a baby, you have like nine months to figure out what you want your baby’s name to be, or some people even know that beforehand. They really thought it through. They did research. And I didn’t have time and it was like that moment. And I just like came to me just Bodi came to me. And Bodie means the enlightened ones. It’s the Bodhi tree where the Buddha sat under the tree and he became awakened. And I felt like I was at that moment, I was going through these journeys, and I was having these awakening experiences that were so so powerful, and I would share them with with my colleagues during Teacher Training. I like did you feel that did you and they’re like, What are you talking about? We didn’t feel any of these things that you’re talking about. And so I felt like I was having a unique experience. And so I literally just wrote down. Bodie, not honest, I like I said, I didn’t have a lot of time to think about it. And now so then my friend told me, she’s like, Oh, so now you are the great enlightened one. I’m like, Oh, my God. No, like that’s That sounds very egotistical. I don’t see myself that way. You know, I’m just a human and progress like everybody else. But you know, I think it called me the name kind of called me.

Victoria Volk 24:58
I’d actually looked your name up before Are ya Business Summit? Yeah, cuz I was curious of the, I figured there was some sort of meaning behind. Yeah. The other part of my question too was, Are you still in communication with your family?

Maha Bodhi 25:12
You know, unfortunately, no, I had to sacrifice that relationship and able to move forward in my life. It was very difficult. I slowly be transformed. You know, I call, I call myself there was Yemen Maha. And then there was American Maha, and then there was yo Hema. And the transitions were very extreme. And it was difficult for me, I would talk to my parents initially when I first moved to the United States, and I would call them and I would talk to my sisters and talk. And what I realized is that every time I spoke to them, I have to pretend that I’m still that old MA for them. And I had to really hide who I am. And it was painful. It felt like self betrayal. And, you know, also, it was reminding me of, you know, the past traumas. And I was on this healing journey. And so I realized that if I really, really want to heal and become my fullest expression of my fullest potential, that there’s a sacrifice that needs to be made. And I did. And it wasn’t easy, but I believe that it was it had it was necessary.

Victoria Volk 26:23
And that’s a part of grief that a lot of people resist is creating those boundaries. And yes, really being able to have the, to feel empowered enough to say, No, I need to walk away from this relationship. It’s not serving me.

Maha Bodhi 26:42
Yeah, absolutely. Wow.

Victoria Volk 26:45
So tell us about the work that you’re doing now. And your mission?

Maha Bodhi 26:51
Yeah, you know, when I came here, I just wanted to be an American, just like everybody else. So I’m like, Okay, what do Americans do Americans get a job and, you know, work in corporate America. And so that’s exactly what I did. And I just got a, you know, I studied, I got my master’s degree in organizational behavior. And after I graduated, I found a job. I worked in the headquarters here in Los Angeles for DirecTV. And I worked as a leadership development trainer and coach and I was delivering, like classroom style trainings. And I liked it, you know, I didn’t mind it. So I just, I kept going, and I kept doing what I was doing. But yoga was always my happy place. So I realized, like, after work, you know, I was still copying whatever American culture was doing. So after work, everybody goes to happy hour, everybody. And I liked that for a little bit. But then I realized that you know what, I’d actually rather go to yoga. After work. Instead of that happy hour, I feel better, I sleep better, I wake up better. And so yoga was always my happy place. And then I just kept going for years and years, until one day, I decided just to take it to the next level. And I was like, You know what, I’m gonna go to a yoga teacher training. And I signed up, and I thought it was gonna be a hobby. I thought I was going to teach a yoga class at the park on a Sunday. That was really my intention. But then the first day, Victoria promised to the first I stepped into that room, I knew I knew that I was in the right place, that I belonged, and that my life was going to change. And for the first time in my life, I felt understood, I felt that this is a language that I speak. And I just knew that this was what I was meant to do and who I was meant to be. I was never good at school. And I struggled a lot with, you know, academia. And when I was in yoga teacher training, I was the smartest girl in the training. And I never and it was so refreshing and surprising at the same time. Like when a teacher asks a question, I’m the one raising my hand, you know, I always say like, Monica from my friends, like, I know, I know. I’m, like, I’m that annoying student. And I never was that student, I started to realize that the other trainees were coming to me for advice, and were telling me oh, you’re the best one only you can do this, can you please teach me and it felt like I have something to offer the world I have value, like for the first time in my life, and it was very rewarding that I have something I can be of service to others, and I can help make a difference. And and I never looked back. And you know, I would I will say that I probably wouldn’t have the courage to completely quit my job and just become a yoga teacher. But what happened was, that’s another clue from the universe that I got certified. mid December, it was December 17. And then January 1, like two weeks later, I got certified I got my yoga teacher certification. And then two weeks later, I got a notice from my company that I’m being laid off. And the whole team is being laid off, not just me. They lay off a lot of people it’s part of their downside was a process. And it was just our time, you know? And everybody was crying for my team, what am I going to do? Oh my God, my job, you know, they have mortgages, they have an I was relieved and I knew I was like, I see you universe, I see what’s happening here, I know that you’re telling me to go this way. And I never shed a tear. I never was upset, I felt so light.

Maha Bodhi 30:24
And you know, they give you a severance and they I’m like, I I’m like, All right, I just took that severance. And I ran and I never looked back. And I started building my yoga business and building my work and, and it just unfolded. You know, I just started just teaching yoga and yoga studio in a classroom. And then because I had a huge corporate network, you know, for my corporate life, my friends were uh, what is this yoga you speak of? Like, what are you teaching? Can you come into our company and maybe talk about it and, and share it. And as you know, my my background, being the leadership development, training, trainer and holding, you know, that classroom type of training. So I kind of bridge those two worlds together. And I created my own formula, which is, you know, just from different schools of thought. So I combined the ancient wisdom, healing yogic techniques, with the corporate, you know, cutting edge best practices and efficiency and agility. With the science of neuroplasticity, I created my own formula, I call it the high performance mind. And now I you know, I go to corporations, and I deliver trainings, I do one on one coaching, and I do inspirational, speaking engagements, where you saw me at the Women Business Summit, where I just talk about my background, and my experience. So that’s kind of how it’s shaped. And it’s, you know, from from trauma from a very intense, you know, difficult situation. So that’s why I always say, you know, these traumatic experiences, they can break you down, or they can break you open. And it’s really up to you. It’s your decision, what you make of it, the poet Rumi said, The wound is where the light enters you. And so are you going to open to the learning, instead of slipping into victim and being Why did this happen to me, you know, which one is better, like, think about it for a moment?

Victoria Volk 32:16
Well, and you might be there for a time, and it’s exactly what you’re, you’re gonna sit with all of that and the overwhelm of it all, but not to stay there. And, you know, just wake up and just choose better for yourself.

Maha Bodhi 32:29
It’s just what you touched upon what we call in yoga, a spiritual bypass, we don’t want to bypass that trauma or that difficult experience, you actually want to hold space for it and be a container. So you’re not dismissing that pain or dismissing that part of you, that’s when we create disconnect, you actually want to integrate all parts of you that it all belongs the wounded part of you, and the and the the inner child, part of you, you know, and even the parts of you that you don’t really like, you know, maybe it’s anger or jealousy, or you know, that part of you also belong, and the loving part of you and the light part of you all of it. And once you become whole, and that’s really when you tap into your full power and you’re able to live your whole life.

Victoria Volk 33:15
Do you seem to draw people to your work that have experienced trauma? And is that a big part of your yoga practice today? Like, do you work one on one with a lot of trauma?

Maha Bodhi 33:27
You know, it’s interesting, I’m not a therapist. So I don’t think it’s my place to do that. But I do notice that people gravitate towards me that not just people who went through trauma, anybody who wants to reach their fullest potential and highest expression, you know, the dreamers, you know, the rebels, the people who want to follow the path of least resistance, which I call like, go with the flow, you want to be in alignment with yourself, you want what you feel is in aligned with what you say, and what you do show up as your best self. And so those are the kinds of people you’d like I said, I’m not a therapist, even though I understand trauma very well. And I see I can see it very clearly in people but I don’t have the skill set to walk somebody through it in depth, they probably will be better served by seeking a professional.

Victoria Volk 34:14
I know that you you did a piece in an HBO documentary, do you want to speak to that a little bit?

Maha Bodhi 34:15
You know, that was kind of part of it’s still in production. It’s not out there yet. But what happened is that I did one of my inspirational speaking engagements in Beverly Hills and they there was a lot of media there and you know, production companies follow me and there are females on there called CTV and they reached out to me and they said, We want to film your story and they’re doing the HBO documentary, which is every episode is focused on one story, and they came to me and we filmed it and I don’t know where it is right now. It’s kind of still in production.

Victoria Volk 34:54
Well, if it comes out before you know the your episode actually airs. I’ll put that in the show. Let’s but yeah, please keep me up to date on that. Yeah, great. And what’s next for you.

Maha Bodhi 35:04
You know, I’m just, you know, I’m continuing to evolve and grow. In my work, I’m leading international yoga retreats, which are tremendously transformational, because you kind of step away from the noise of your day to day life. And you know, a retreat is to retreat within. And so we are away from all of that, and you’re in a new environment, and we do yoga twice a day. And I really have seen people transform in front of my eyes. And it’s truly magical, if you if you’re willing and open to allow healing to occur to allow transformation to occur. And I always say like, the more you’re willing to surrender, the degree of your surrender is equal to the degree of your success. And so the more you resist, you know, the more you get stuck, you know, emotions are energy in motion, right? They’re designed to come pass through and let go. And it’s when we hold on, it’s when we resist. And when we grip, and we become identified by that story in that pain, that’s when we get stuck. And really yoga is Mo moving your body, you’re literally expanding your body or stretching yourself. Because when you are in pain, you contract the body, right, you physically contract the body, you can see it, you make a fist with your head, you close your ribs, you’re fidgeting, you’re tensing the body, so the energy is not able to flow freely in the body. And yoga is kind of a counter for that. So you’re stretching your body, you’re breathing through the practice. And so you’re kind of releasing that energy. Now the breath is flowing in your body, now the blood is flowing in your body. When you’re doing that downward facing dog, your head is lower than your heart. So you’re kind of reversing the blood flow, the effects of gravity. And what happens is literally you’re optimizing all the systems in the body, you’re optimizing your nervous system, you’re optimizing the blood flow, the bread we talked about in the brain, the heart, all these things. And then when you’re in that state of expansion, you liberated that energy because it takes so much energy to kind of be caught up in your stress and in your pain and in your story. And when you freed up that energy, literally, I talked about embodying and now you’re embodying freedom in your in your body, you can do so much with that liberated energy and use it in a very useful way that benefits you and really benefits everyone around you in the greatest good.

Victoria Volk 37:35
Love. Do you offer online classes?

Maha Bodhi 37:39
I do Insight Timer on Sundays. That’s a year Neoga de stress and deep stretch. That’s the That’s my online class. And I do the high performance mind, you know that my my leadership trainings, I do that with corporations, but I also offer free master classes on a monthly basis. So every month we meet, and I give them kind of like a snippet of the highperformance mind masterclass. It’s all on yogimaha.com.

Victoria Volk 38:05
Okay, I will put that link in the show notes too. But I kind of want to dip back into the serious stuff a little bit again. I’m curious because of your experience with the traumatic experience that you had with marriage and being in that environment of arranged marriage. And so how has that shaped and I know that you’re a completely different person now than you were then. And so I think sometimes what happens is, well, what I’ve seen even for me personally, and people I’ve worked with and through grief, once you have dealt with all that emotional stuff and the trauma, you are changed by it right for the positive and you seem to then attract more of the same to you. Yeah. And so how has because I imagine if I would have experienced something like that, I would have been very cynical about love, right? Like, so how has that shaped you today? And how you know, and love and marriage.

Maha Bodhi 39:04
It does shape and I just want to say that when you heal, it’s not that that is completely gone. It’s not like that it’s disappeared. It’s just that you learn how to like we said hold space for it. So it’s not kind of blurring your vision. It’s not dominating your decision mechanism. So it’s not leading the way so you kind of see it you observe it, it’s there. I see you I know you’re still there. But but it’s okay. Kind of like a little child but it’s okay, we got this we can do this together. So I think that’s what’s healing. It’s that integration, that sense of wholeness. I did struggle a lot with relationships, you know, I’m not gonna lie to Victoria. I struggled a lot with intimacy, love and relationships, especially when it comes to dating. There is this kind of like fear but, you know, I think if you have to choose between love and fear, I think when in doubt, always choose love and always open up to love you can Can’t go wrong with love.

Victoria Volk 40:01
There’s the show, I’ve been kind of watching just like my secret indulgence, if you will, you know, it’s like this not trashy TV, but reality TV. But it’s called Love is blind, and I just find the, the, it’s an experiment in love, but you, you don’t meet the people, you just talk. And you build this emotional connection before you ever see them. And it really highlights how superficial of a society we really are, when we’re looking at appearances. And you can’t you don’t make a decision on love based on on, you know, race or background or any of those things. It’s just purely an emotional connection. And so can you speak to that for someone who may be struggling to build that emotional connection with someone? That’s a good lead to, by the way?

Maha Bodhi 40:59
That’s a very interesting question. You know, it’s kind of what you mentioned, this show that they kind of connect on an emotional level before they see each other before on a physical level, which is kind of like the opposite of what’s happening with dating apps these days, dating apps is purely based on looks purely based on that snippet like swipe, swipe, swipe super fast make that decision, I do think that I personally am that kind of person. With the advice that I can, I’m the kind of person that I would like to connect more like, I’d like to know someone more, it’s easier to open up. Because if you have these trust issues, like that’s what I struggled with, it’s when you have that background, like similar to me, what happens is that you don’t trust people, because the people that were supposed to love you unconditionally violated that trust. And then as you grow as an adult, it’s really difficult for you to, to find that trust again. Especially, you know, with a complete stranger, you know, if my parents didn’t love me and take care of me, how is a stranger gonna love me and take care of me. So I better watch out, right? That’s the mindset for me, if that’s something you’re struggling with, probably the dating apps are not going to be beneficial to you, I would say friendships, you probably want to lean into it through a friendship through somebody, you know, doing what you love. So when you do what you love, and you follow your bliss, like Joseph Campbell said, you’re gonna put yourself in situations to be surrounded with like minded people, and you’re going to attract like minded people. And so you’re going to meet those people. And it could start off as no colleagues or you know, friendship, like I said, and you start to have conversation, I feel that creates a safe environment, to open up to somebody and be more trustful. And I know that’s a slower pace than, you know what our society teaches us the swipe, swipe, swipe, but I think it’s a very healthy way. And it’s also more authentic, and it’s probably going to be a more lasting relationship. You know, when I started I, I was working right in the corporate world, and I wanted and I just decided to be a yogi and I just made this huge transformation that literally my friends were worried about me, they were, you know, they were doing interventions like what are you, okay, like, who leaves their corporate job with all the benefits and the big salaries in the fancy offices, and you know, and health insurance and all that stuff, and then you just go live on a yoga teacher salary, and they thought I was crazy, right? They were worried about me, are you okay? Literally, I would get text message, are you okay? And that was a little bit isolating for me, you know, I felt like no one understood me. But when you chew, and it takes a lot of willpower, because the calling was so big for me, like my North Star was so big that the obstacles were small in comparison to the North Star. And so I followed through my passion. And, you know, I started to share it with the world and I start to use my voice and speak up, even though it was a big risks. You know, everybody’s telling me, I’m crazy. And I’m going out there and sharing it with the world. What happened is that people that are like me, started to see themselves in me and started to rally around me. And so that’s called community. So I started to build community. And I started to be surrounded by like minded people, just because I decided to do what I love. And I followed my calling. So the goal was not to meet people. The goal was not to create community. I just felt this calling and I followed my bliss. And then that cascade leads to other things, that leads so that’s kind of my advice to people is just do what you love and the right people will find you

Victoria Volk 44:41
Follow what lights you up. Right? Exactly. Well, that’s a great tip that takes care of that one question I was going through all of this, what is your grief taught you?

Maha Bodhi 44:51
You know, I like I said, my parents are still alive. But what I had to learn is I had to learn on how to support myself, I had to learn how to self regulate. And what you know, that’s me. And then literally, I had when you have nowhere to go, you go inside, that’s what happened to me like my when your face is like in the wall, there was nowhere to go but inside. And so I went inside, and I did the self work. And I did the self study, which allowed me to learn how to be my own best friend, and be my parent that I never had, and be my greatest coach and be my best friend, and be my greatest lover. So I was able to be all these things. And it’s not an easy journey. But it is such a powerful journey, the results are truly incredible. And so that’s when you become whole. And that wholeness allowed me to be a better friend for other people, a better lover for another person. And so now I have because my cup is so full, I’m able to give from my overflow, when your cup is empty, you’re no good for anybody around you. And so now I’m able to be compassionate, really, and see people when they’re suffering and just hold space for them, and not try to fix it really, I try not to slip into preacher or teacher mode or try to, you know, I’ll show you how to fix this, you know, just by holding space for somebody, people want to be seen people want to be heard. People want to be valued. And so I would say that’s what it taught me. And I think that’s a very powerful capability to have.

Victoria Volk 46:41
Absolutely agree. What gives you the most joy and hope for the future for your future.

Maha Bodhi 46:46
I feel I’m on the right path, I feel I’m on the right place and at the right time. And I feel the more I do this work, the stronger my relationship with my gut feeling is. And so sometimes it doesn’t make sense the decisions that I make, like from an external perspective, from an intellectual perspective, which our culture is very intellectual, and I know that my gut will never lie to me. And so I feel very optimistic because I see that relationship continues to grow and grow. And I trust it more. So I’m really looking forward to the future.

Victoria Volk 47:20
And I think that happens as we start to dig away and just clear away all of that stuff. We win

Maha Bodhi 47:28
The noise and the stories. Yeah,

Victoria Volk 47:31
A lot easier to tap into our intuition when we are able to do that. I think

Maha Bodhi 47:36
I’m writing my memoir, like I mentioned, and that’s been such a cathartic experience for me. And I’m really excited to share that with the world. Do you have a launch date? Yeah, no, I think by end of this year, okay. Yes.

Victoria Volk 47:50
I’m really excited about that for that. Yeah. Is there anything else that you would like to share?

Maha Bodhi 47:55
I don’t, I want to say to people, don’t give away your power, you are so much more powerful than you think you are. And if you don’t believe me, just sit quietly and listen, listen to the voice that is inside of you. And, you know, I’m a meditation teacher, and a yoga teacher and all these tools and techniques. They’re all just designed to quiet down the noise in your head. So you’re able to see things clearly to hear things clearly. And that alone is such a powerful technique. You know, Victoria, I just saw this documentary. It’s an old documentary, there’s this experiment in a prison in Atlanta or Alabama, I’m sorry, one of those. It’s a prison. It’s a maximum security prison. And it’s like the most the worst prison in the United States. And they started to deliver Vipassana meditation, which is a silent 10 day meditation. It’s it’s the most intense program that anyone can go through to be silent for 10 days. And they did it in Alabama. And you know, it’s a it was a very Christian place, and there was a lot of resistance. But, you know, somehow, you know, they rolled out the program. And these prisoners are murderers are the worst kind of people you can imagine did horrific things. And they did this 10 day meditation of being silent and completely transformed. Like you can see their faces light up, you see them talk before how angry they were. And then there’s just like this pure peace in their face, just because they were able to quiet their head and drop into the body and identify the sensations of the body that are invoking this kind of reaction, this reactive place. And so they just learned how to be in their body and how to manage their body and manage their reaction and realize that it’s just a chemical reaction and I have the power. You know, I own my body. My body doesn’t own me. I own my brain. My brain does An own mean, I own my emotions. My emotions don’t own me. So that’s a very empowering tool. And your listeners are no, they’re not murderers, they’re not you know, so their journey can be so much easier and they don’t even need to do a 10 day silent meditation. Just sit quietly five minutes a day, 10 minutes a day journal, reflect, go inside self study, the more you get to know yourself, the better you’re able to serve yourself and serve other people.

Victoria Volk 50:28
Yeah. Kristin Sherry has said she’s one of my mentors. She said, the more you know yourself, the more the less you look to others to tell you who you are.

Maha Bodhi 50:37
Exactly. The less validation you need from others.

Victoria Volk 50:41
Yeah, I’m going to try and find that documentary you’re talking about and

Maha Bodhi 50:45
it’s on YouTube yet. Okay, too. Yeah.

Victoria Volk 50:49
I’ll have to look that up. Thank you so much for sharing your story, which is incredible. We truly live in a very blessed country. And it we are so lucky that I take it so for granted. Yeah, sure. Yes. Thank you so much again, and you’re welcome idea. And remember, when you unleash your heart you unleash your life. Much love.

 

Ep 108 | Rachael Burns

Rachael Burns | The Space Inbetween

 

SHOW NOTES SUMMARY:

How would you live your life if a ticking time bomb was woven into the very fabric of your everyday life?

Would you carry on business as usual? Would you live like tomorrow is not guaranteed and chip away at your bucket list?

Rachael’s story isn’t about a ticking time bomb that is in her body. Rather, it is about the ticking time bomb of grief that lies in wait due to the one her beloved has in his body. However, that is only part of Rachael’s story.

What if, newly married, you found out you were pregnant, but not only with one baby, but two! What are the odds?!

But what if, a day later, your spouse has a seizure; soon after you find out he has brain cancer? And, not just any cancer – this kind is aggressive, it can never be completely surgically removed, and most people die within 18 months of diagnosis?

The ripples of grief are felt deep and wide. And, when the love of your life, and the father of your children, are living with these odds, how do you truly live?

Rachael’s story doesn’t stop there. She would find herself in her own health crisis after having the twins. Her kidneys were failing, her husband had to forego his chemo because she was in the hospital, and they were both faced with the question of what if something happened to them both? Who would take care of the babies?

After the dust settled, processing all that had transpired has been a process all on its own as well. Grief isn’t only about death. As Rachael’s story illustrates, it’s near-death experiences or living while death hangs around waiting to take you out that cause grief, too.

RESOURCES:

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If you or anyone you know is struggling with grief, free resources are available HERE.

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Victoria Volk 0:00
Thank you for tuning in to grieving voices. I am your host Victoria Volk, and today I have with me Rachel burns. She is the founder of true worth financial planning, which helps newly single women get their finances back on track after divorce or the death of a spouse. Her passion for helping women in transition was inspired by her own experiences with grief after her husband was diagnosed with brain cancer. She is a certified financial planner and a certified divorce financial analyst. But most importantly, she’s the mom of three-year-old twin boys. Busy, busy time. Thank you so much for giving your time to my audience today.

Rachael Burns 0:41
Thank you, Victoria. Thanks for having me on.

Victoria Volk 0:43
We have chatted briefly before and I’m excited to chat with you again and for you to share your story with my audience, because I’ve heard it a little bit, but we didn’t get into the deep of it. And so I’m looking forward to that today. But what has been your experience with grief, up until what you’re about to share today?

Rachael Burns 1:10
Before my husband’s diagnosis, my experience with grief was very limited. Fortunately, I had not experienced experienced much in the way of loss except for, you know, grandparents passing away and things like that, but nothing that really shook me to my core, like what I was about to experience. So I had been very fortunate to have a very boring life in that way up until then.

Victoria Volk 1:42
How long were you married? When you and your husband got the news?

Rachael Burns 1:45
We been married probably about two years when we found out when he was diagnosed. So it was still, you know, early, early in marriage. But we had been together for several years before that.

Victoria Volk 2:01
Having children. Was that a conscious decision? Or I mean, I don’t want to say where they oopsie you know what I mean? But because I think that would be a challenging thing, right? Do you? Do you take that path? Don’t you take that path? Like what did that look like that decision making? And

Rachael Burns 2:18
So we had them on purpose, we knew we were going to have one we I guess the second one was an Oopsie. Because they’re twins. We didn’t know we’d have to. But we had planned on having kids. But we found out we were pregnant. I think the day before he had his first seizure. So we didn’t know he had brain cancer when we when we got pregnant. So basically, he comes home from work, I’m like I’m pregnant. And then the next day he had a seizure, and didn’t tell me because he didn’t want to overshadow the good news. And it was a relatively minor seizure. And so he wasn’t super concerned about it, he went to the ER by himself and didn’t tell me this is totally like my husband. And because he had had a relatively benign brain tumor when he was young. And so it wasn’t like that alarming to him that he had a little seizure. So basically, we found out about these two things that are almost exactly the same time he was diagnosed. So we found out we were pregnant, found out he had a brain tumor, found out they were twins, and then found out it was not a low grade recurrence of his old tumor. It was super aggressive grade for glioblastoma. So all of this news we got at almost the exact same time.

Victoria Volk 3:37
Wow. What are the chances you must have asked yourself that a million times like what are the chances like why?

Rachael Burns 3:44
Yes, I thought about that. And I and then I kind of came to the conclusion that we are the one percenters we are the ones that all these really rare events happen to? It’s like, what are the chances of having twins? What are the chances of having this brain cancer if literally, I mean, it was like, it was really bizarre. The odds of all of these things happening were so small that it was like, Well, of course it’s going to happen to us because we’re one percenters or point one percenters?

Victoria Volk 4:15
So the tumor that he had as a child had that been removed?

Rachael Burns 4:19
Yes. So we he was 16. He had a grand mal seizure, and they immediately did surgery and removed the whole tumor. It was a low grade tumor, you know, they took it out because they don’t want it in there. But it wasn’t even really growing. Like they don’t even know how long it had been there. So when it came back, it was in the exact same spot. And, again, they were like, oh, it’s probably not a big deal. It’s probably been growing very, very slowly all this time. But when they took it out, and they biopsied it, they realized it that wasn’t the case. It was a it was a high grade tumor. and that type of tumor you don’t, you don’t ever get it all out. It’s, it’s like, has little tentacles that kind of grow through your brain and you can’t see it on an MRI all the time. And it’s not something you could ever completely remove. So very, very different situation than when he was young.

Victoria Volk 5:16
So what was that like? Like your pregnancy? Like, I mean, that’s it’s stressful alone. I imagine hearing news like that, yeah. And planning for, because what the prognosis was what

Rachael Burns 5:28
The prognosis was really bad when they told us that that’s what what came back with the pathology. They said, Don’t go online and don’t google it. Because the odds are really, really bad. Like, you’re going to be really depressed if you go online and look at the life expectancy, because statistically, life expectancy is an average of 18 months after diagnosis. And that’s really like best case scenario, that’s assuming that you’re able to have a successful surgery and treatment with radiation and chemo best case scenario, you you maybe have 18 months to live after that, but a lot of people and people that I’ve met at the hospital or in waiting rooms for radiation, or whatever, a lot of people die after a couple of months after being diagnosed. So it’s like a really, the prognosis was really bad. They, they said, you have some things in your favor, you’re young, you have these certain genetic traits like that they were able to see when they did the pathology that they could tell that his case was, you know, it’s still an aggressive cancer, but it’s not as horrible as it could be. So there were like, you’re probably going to be on the higher end of the range. But still, they gave us I mean, it was, it was like a couple of years, was the timeframe that they that they gave us. And so that was a difficult thing to process. And as they’re telling us that I’m sitting there with my bagel belly, you know, I’ve got twins that are on the way there was so much. I mean, what we thought our life was in an instant change so much having the kids on the way just made it extra complicated. I mean, obviously, but and extra tragic. And it was just so much to process at one time,

Victoria Volk 7:24
And even just having twins is risky to write. So yes, like, what is the risk to you, as a mother and I can’t even imagine, give us a day in the life of what that was like.

Rachael Burns 7:37
So at that time, Rob had taken some time off work after because he they got him into surgery pretty quickly. And he started doing radiation right away. And I was still working, and just getting more and more pregnant by the day. So, you know, we’re still trying to do normal, quote, unquote, normal stuff, I was still going to work and Rob wasn’t allowed to drive because of his seizures. So I was taking him to radiation every morning before work, and dropping them off. And then you know, leaving for work worrying about him having a seizure when he’s home, alone. And, you know, I’d go to work, I try to get everything done, I tried to be as normal as I could, but it was, it was just, it was just insane to like manage the treatment, you know, the the logistics of the treatment, but then also just managing the emotions and the fear and, and trying to support him. And it was so overwhelming that you just kind of go into shock. And you kind of don’t even realize, you just you just kind of go into survival mode, and you’re not really feeling anything because you’re just like so overwhelmed that I just kind of went into autopilot and did what I had to do to get through each day. Until Until the kids were born basically. And then that definitely shifted a lot of the focus off of his situation, which was kind of kind of a good thing for a little bit. But once the kids were born, then I had some major health issues. I had some pretty bad complications after they were born and was hospitalized for a couple of weeks. So Rob was home, he had to take a break from chemo, because he was home alone with the kids when I was in the hospital. Luckily, our moms were dropping in to help and stuff but like, we had to disrupt his treatment because I was in the hospital with like kidney failure and a pulmonary embolism and all of this like majorly life threatening postpartum stuff. And so he was freaking out thinking I was gonna die and then he was going to die. And then we would have these little babies that had no parents. You know, it’s one thing to plan to try to grasp. Something happening to one of us but like Yeah. And that, that that fear was relatively short lived because I got stabilized fairly quickly. And after that, after I got home from the hospital, I was not in any imminent danger. But there was a time there were, like, we were worried about the kids being orphans, and, you know, needing our parents did raise them, or it was just like, wild, wild time.

Victoria Volk 10:24
And you’re sitting here and you’re telling me about it, almost like it, it’s a recipe. And, you know, I’m, I’m very curious, like, what was the day like, we’re just all kind of hit you, and you allowed yourself to feel and get off autopilot.

Rachael Burns 10:45
It took a, it took a couple of months after the kids were born, where I looked back and thought that was really bad. That was really, really dangerous. It was a really dangerous situation. might let me I mean, health wise, like that, that was as close to dying as I’ve ever come. And once I actually had some time to think about that, it scared me even more like how critical it was. And then, but then, like, thinking about my own health would make me feel like, this is small potatoes compared to what we’re dealing with, with prob like, I’m, I’m gonna be fine. I will survive, but his situation is the same. And so is like, realizing what happened, like finally kind of feeling some feelings about it. And then quickly, remembering Oh, yeah, there’s bigger stuff to worry about. And going back to like dealing with that. So there’s just been, it’s been like one thing after the other, and there’s been so much going on that it really is hard to feel anything, because you have to deal with the next thing. Right away, and you don’t even have like the bandwidth to like, acknowledge your feelings, which is kind of weird.

Victoria Volk 12:14
Do you feel like that’s true for you today?

Rachael Burns 12:17
Yeah, it’s, it’s easy to it’s easy to get wrapped up in the day to day stuff and stay distracted and kind of detached, that’s easy, because just because of the amount of activity in our lives, but then it’s hard. You know, when when I do when I do think about things, and I do remember things, and I do feel those feelings. It’s like, well, what am I going to do with that? I can’t, I mean, I can’t fall apart, I can’t flip out, I can’t, I don’t really have any option other than to just keep chugging along. And so it just becomes this like new reality where there’s this, like, underlying stuff that we all know is there. But there’s not a ton that can be done about it. So we just kind of pretend like it’s not there, which may or may not be healthy.

Victoria Volk 13:13
Do you feel like it’s been impacting you or has impacted you, like physically your body or like emotionally psychologically?

Rachael Burns 13:23
Yeah, it impacts everything. That kind of stress absolutely impacts your, your body and your physical health. And it’s kind of hard to know what issues are stress related and what are, you know, leftover issues from having twins or, you know, COVID related stress and inactivity and all this stuff there. It’s hard to know, it’s hard to know, like how to attribute it, but But it’s certainly impacted every single aspect of my life, physical, emotional, everything. It’s just it’s not always super obvious. But I mean, someone has to kind of beat it out of me a little bit.

Victoria Volk 14:11
I don’t know if you get the impression I’m trying to beat it out of you. I know. I am, I am needling a little bit. Because what I can relate to tiny, just tiny tiny is, you know, we had a family emergency health scare with our son recently and I recognize that autopilot where you you’re shift your focus to what needs to be done and your energy to that other person and, and then when you get in the quiet of your own head, and in your own space, it’s like roof like it just hits you and so have you had moments like that? And have you allowed that to wash over you and

Rachael Burns 14:57
I haven’t felt over overwhelmed with the grief and quite a while just because things feel pretty normal right now, he’s my husband is not in any treatment, his tumor is not growing, it hasn’t been growing for a while. He’s going to work, he’s acting normal. And it’s easy to forget that that ever happened to kind of feels like, that was about dream, or that was a past life, or it’s, it doesn’t even feel like that was real. And I know that he and I deal with things very differently in how we express grief. And I’m someone who kind of verbalizes stuff. And he is someone who, who goes inward and needs to be quiet and not talk to people and doesn’t want to acknowledge his emotions or talk about them. And so it’s even if I wanted to talk about it, or express myself, that’s not really someone that I can do that with, because that’s not his style. And that would actually upset him. Because I, it might be more painful to him that I’m raising things to the surface, and he doesn’t want to do that. And so, you know, you can only express that with certain people or in certain situations, but it’s, I mean, for the most part that’s not happening at home. So yeah, partially, it’s like easy to kind of ignore and pretend like it’s not happening. And then and then. And then even when I do remember, it’s like, well, I don’t know, I don’t really have a ton of options and how and how I can deal with that. I have to keep going, I have to make things normal for my kids, I have to build my business and keep working and be in as good of a spot as I can in case something changes. And falling apart emotionally doesn’t allow me to do that. So I just I kind of feel like well, I don’t have the option of like, really flipping out. Even though I’d kind of like to sometimes.

Victoria Volk 17:22
Do you channel that energy in a different way? Like, have you found a way that you can channel the energy that that emotion when it comes up or or even just to when it’s not coming up. But just because I imagine there’s some anger there, like, you know, just anger of this. It’s this ongoing thing that you can never outrun? Right, you get out run it? And it’s always just like you said, the undercurrent of it is there. Yeah, Have you have you found a way to channel your emotion.

Rachael Burns 17:22
I don’t know that I’ve channeled it but what what I have noticed myself doing is just getting more and more focused on work, like just it’s all I’ve been thinking about and, you know, on the nights, weekends, whatever, I’m always just, like, really obsessing about work. And part of that is because I enjoy my work and part of it is that work needs to possibly support my family at some point. And part of it is I need to keep myself busy so I don’t dwell too much on things. So that’s not the only reason why but I do think that some of that energy gets channeled into the work just because it’s something that I can control it’s something that I can make positive changes in our life does make me feel like I am not powerless. I guess you’re doing something. Yeah, like I’m being productive. I’m taking the right steps because you can’t really be you know, with grief, it’s not productive. You’re not a comp, you’re not like, Oh, I’m I’ve gotten this much grief out of the way so then I only have this much more. It’s like it’s it’s it’s always going to be there. It’s not going away. But part of me feels like okay, I have to be doing something to make the situation better all the time.

Victoria Volk 19:21
In Grief Recovery. One of the myths of grief is keeping busy. So I just want to you know, for anyone listening if they find themselves in your story, have it’s one thing to because my husband he just last night, I’m nights weekends. I’m a hustler, I hustle maybe it’s part of our personalities to like how we’re wired right? To almost detach from what is happening and then pour energy into something that we feel like you said you can control it you have some say in What happens here? I don’t have say a nap. But I have say in this right, yeah. And I find it interesting, the work that you’re doing is with widowers. And so a part of their story, you obviously can relate to in a way that isn’t exactly the same. But you understand this idea. I don’t want to put words in your mouth. But I actually, you’ve expressed this before, briefly. But could you just articulate how your work is being influenced by your experience.

Rachael Burns 20:36
While we were in the midst of everything, and while it was fresh, one thing that I remember is, obviously being overwhelmed with all sorts of parts of this problem that we had to deal with. And some of those were very practical things that we had to worry about. Some of those were, you know, just worries, but because of my background, in my career, you know, I’m a financial person, and have been for a long time. And so one thing that I didn’t worry about at that time was anything financial related, because we had all the things in place that we were supposed to have in place, we were like the poster children of having an estate plan done and having the right insurance and all these things. And so when this happened, I didn’t need to worry, oh, my god, like, if he can’t work, what’s gonna happen? Will you have disability income, if something happens to him can I like, there was a lot of practical parts of that, that I didn’t have to worry about. And the the idea of needing to manage the finances on my own, if I needed to, did not bother me, because I have that background. But then I was thinking, you know, not everyone has that kind of background. And that, for a lot of people is a very, very big component of their stress and their fears. And that was something I didn’t have to worry about. But I wanted to help other women, particularly who are in that situation, because that was something that I could at least offload for them, or help offload? You know, I can’t make things go away, but I can, I can help them understand it and make a plan for the future, at least for their finances. So my goal was just to alleviate some stress from someone who’s going through a difficult transition, whether that’s someone died, they get divorced, they, you know, something unexpected happens when there’s all sorts of transitions that can happen where we have grief associated with that someone doesn’t have to die. But that’s where I felt like I could relate to women that were in that situation, and I could offer them my financial knowledge, but also I my own experiences with that, that I think that helps give me a different perspective and helps give me helps me gives them better quality, support.

Victoria Volk 23:09
And to me, it sounds like it’s meaningful work to to as you’re kind of journeying through this process with your husband.

Rachael Burns 23:19
It is it absolutely is. And I had a feeling that would be meaningful, but I never knew just how much I would get out of it until I actually got into it. Because I’ve been a financial advisor for quite a while but didn’t work with women in transition until everything had happened with our family. And I enjoyed my job before. But once I was working with women in that niche, I got a whole new level of satisfaction from helping women who really, really needed help, and I really identify with them and I have met just hearing their stories and learning about them as has just been such a amazing experience. Even though I’ve been working harder than I ever have before. It doesn’t feel like work because it’s so enjoyable, which is so weird, because a lot of the situations or difficult situations that I’m trying to help with, but it doesn’t feel like work. It feels like I’m trying to help a friend. And that doesn’t feel that doesn’t feel like work. So it gives me a lot of energy to be doing the work that I really get a lot of joy from

Victoria Volk 24:34
That’s when you know you’re aligned in what you’re doing because yeah, like my husband said last night like Don’t you get tired of looking at that computer? You know, like he has to literally almost like pull it away from me and I’m like, but it doesn’t feel like work. Yeah, you know, I’m like creating posts, you know, for my Instagram about grief and, you know, sharing something that I think might be helpful or working on my newsletter or doing this podcast or doesn’t matter what it is, if if I feel like it’s serving someone, I get a lot of gratifying gratification from that. But I want to ask you to, because when I was a new mom, motherhood brings out like all of your insecurities known as entrepreneurship, you’re like, you’re you are where I was, feels like forever ago. And I remember what that time was like, and I personally was, felt like a basket case, right? Because I had grief that I had dealt with. I was, like I said, all my insecurities were coming up in my parenting and all that all these things, right. And so what I just can’t imagine, like also trying to parent twins, first of all, but just trying to parent twins, parent in general, the parent twins, and, and having this undercurrent of concern, fear, all of those things, while trying to navigate all the feelings that are coming up being a mom, like, what does that look like for you.

Rachael Burns 26:15
I feel like we had so many things going on that we’re competing for attention, that it prevented us from obsessing too much about any one thing. So because of what was going on with my husband, it made me a little bit more relaxed. When it came to the kids. I think that if the brain tumor stuff had never happened, I honestly think I’d be a much more neurotic mom. Like, I think I would be panicking about the house being dirty, or about the kids eating something that’s not organic, or like, I know how I was before all of this has happened. And it’s one good thing that has come out of this experience is my priorities have changed. The things that I actually worry about, that list has gotten a lot shorter. Like it’s just made me reassess what’s actually worth worrying about. And so, because of that with the kids, I’m like, whatever, like, I’m doing the best that I can, I genuinely believe that like, this is a tough situation. In a lot of different ways. I’m doing the best I can, I just don’t have the bandwidth to like, freak out about them. spilling stuff all over the carpet and permanently staining it. Like I’m just like, whatever, we have bigger fish to fry. But then at the same time, it goes the other way too. Like with Rob stuff, it’s really easy to get lost in that kind of despair. But then I’ve got these like little kids running around, like hitting each other with fake swords. And it’s like, Okay, I can’t even focus on one thing long enough to like, really get upset about it. So we’ll see what happens when the kids get a little older and aren’t like when it’s not as chaotic in my house.

Victoria Volk 28:10
There you’re keeping busy right now.

Rachael Burns 28:13
Gosh, yeah, yeah. And then also, they just are so hilarious and sweet and wonderful that like there’s so many joyful moments throughout the day that it really counterbalances the stress, or the or the worry, because you just can’t not be in a good mood when you’re around them. For the most part, they do like, scream and you know, they’re like me press. But for the most part, there are really lovely little distraction.

Victoria Volk 28:48
I just was thinking my son, we’re talking about my son, he’s going to be a senior in high school next year. And my husband’s like, I just don’t want to believe like, you know, it’s, I just so remember, I just last night I was just last night I was going off to sleep and I was just like, just for a day I would love to go back in time. And just revel in their curiosity and their I could cry just thinking about it. How Yeah, just just how fast the time goes. And like you said, it’s shifting your priorities. And so it’s not even that they’re this beautiful distraction. It’s like they bring out something when they bring out your insecurities. They also bring out like the kid in you to write the things that you know, you want to get out your sword and pretend and chase and you know all of those things. And fortunately, my husband is like a big kid and that is still a thing in our house. Yeah, there’s no such thing as boredom when there Yeah, that’s such a fun age. And I think Got to allow yourself to embrace that time, regardless of what’s going on. It is probably a beautiful gift that these little people have given you.

Rachael Burns 30:10
Oh, my God, I, this situation would be. So it would be so much different. I think it’d be so much worse if we didn’t have them. I think about that. And I think, oh my god, I can’t even imagine like going through this, just with the two of us and not having something. There’s always something to look forward to with kids. Always. It’s like, like, I’ve been telling my husband in the last couple of weeks. I’m just so excited for Easter, because the kids get so excited about Easter egg hunting, he’s like, it’s February, like calm down. And I’m like, No, but there’s always something to be so excited about. And oh, I can’t wait until they can do this. Like there’s always some milestone, it’s just around the corner. That’s so exciting. And it’s sad when they’re changing so fast, and they’re growing so fast, and you miss how it was when they were smaller, but at the same time, all of the new fun things that they do makes you forget about what you were sad about.

Victoria Volk 31:11
So I’m curious amongst the craziness and the quiet when you have it and everything going on with your husband. That is pretty steady, right? It’s steady. Yeah. How have you been tending to yourself? What does self care looking like for you?

Rachael Burns 31:30
Self-care has been practically non existent. I have been the lowest priority thing in the house for quite a few years, which is understandable. But I haven’t been focused on like, doing something nice for myself, because it’s just not the highest priority. So friend, one of my friends asked me, like, what are you doing for self care? And I laughed, and I was like, take a shower once a week. Like, that’s really exciting. That’s like a, that’s like, my me time is like, five minutes in the shower every few days.

Victoria Volk 32:10
Oh, my God was like, I mean, it’s just me.

Rachael Burns 32:15
Like, I was so I mean, back then it really was that wild. Like, I genuinely could not get it. If you had to be around me, within, you know, a couple of feet of me at that point. I I’m sorry, to anyone who had to be around me. But you know, being a brand new mom. There’s no such thing as self care. You’re not showering, you’re not brushing your teeth and not brushing your hair. You’re not eating anything except for stuff that like fell on the floor. Like, your needs just go out the window. And they kind of stay out the window for a while. So yeah, I don’t know. I don’t even know. Like the concept of self care is like really foreign to me. Right now. I understand how it will work for some people. It’s like, if I can get away for like, a quick weekend with like, my girlfriends that self care. And that’s, that’s like a really big luxury for me. Like if I can get a day or two to like, get out of town. That’s like a big, big deal. Go like drink some wine with my friends and just like sit there. That’s like, Oh, that’s such a recharge. That’s the only self care I can think of right now.

Victoria Volk 33:36
Other than what you’re doing, but you I mean

Rachael Burns 33:39
Other than taking fantastic care of my skin. I mean, that takes up a lot of time too. But

Victoria Volk 33:44
Well, that’s self care. Self Care. I’m just, you’re just kidding. So it’s just natural. No, it’s

Rachael Burns 33:50
It’s like I put this filter on the Zoom where it’s, you know, you can do that on Zoom. It’s not like a crazy filter. It’s not like it doesn’t look fake. It just kind of blurs everything. So now we’re getting into the grief of aging here. It’s not real. Yeah, that’s, that’s some grief in itself.

Victoria Volk 34:09
It is. Oh, yeah. I’m gonna have to check off these filters.

Rachael Burns 34:13
Well, and also you said, you know, you don’t look like someone that’s really stressed out. It’s called Botox, then your your face just can’t make sad faces anymore. That helps that will make you seem like you have it together because your face can’t physically even move like that. Like I can’t look sad. Not for another three months or so until it wears off. So you’ve got to keep it going.

Victoria Volk 34:37
Okay, well, this is the direction of the podcast I didn’t expect. This is real talk. It is real talk. thing. It’s like you’re in the you’re in the thick of it really all you’re in the thick of it. And I say the trenches of motherhood. Now I’m sure you have friends that have kids that are older. Oh yeah. And you have plenty of friends that have told you, you can’t get from an empty cup. Do you feel? Do you feel like you’re like your cup? Do you feel drained?

Rachael Burns 35:10
Yes. Okay, I do. But I feel like that is a temporary state. I know that things will not always be as difficult as they are now. Like, I know that and the kids keep getting older, the kids keep getting easier to deal with. And like, there will be a day when I don’t have to worry about Rob’s brain tumor coming back, because someday he won’t be here. And then like, then there’s other stuff to be worried about, obviously, at that point, but like, the way things are right now is not the way that things will always be. And anytime that things are really difficult, I always remember, they will not always be this difficult. This is like a this is just a point in time. And it’s always changing. So I don’t remember where I was going with that. But sort of that’s like, it’s Oh, my cup, my cup being full. I know that my cup will refill at some point, but it’s just not. It’s just not like, a top priority right now, I guess. Do you try to keep just trying to keep everyone alive and keep keep working? And that’s like, all my, it’s all I have energy for?

Victoria Volk 36:27
I had that thought to like, you just keep on going and keep on going and keep on going. But I look back in hindsight. And it’s like, gosh, if And granted, it was grief, like Grant grief was a huge factor for me and, and your situation is entirely different than anyone listening to this, their situation is going to be entirely different to about I think it’s finding what, like you said just a weekend, or even just two hours in an afternoon to your favorite little shop, or going to a coffee shop and just sitting and watching people which is you know, is that fun? Just watching people. Yeah, making up stories in your head about people like their lives, wondering, you know, that’s, yeah, I like doing stuff like that. But anyway, it’s finding stuff that bring you back to who you were right? Like, kind of, it’s almost like the children, you know, the children remind you of when you were a kid, and it’s doing the things that remind you of the essence of who you are. And I’m I lost sight of that for so many years. And I think if if what what are just share with me, if you don’t mind, what are a couple of things that remind you of the essence of who you are.

Rachael Burns 37:48
That’s interesting, you brought that up, because that’s something that I’ve realized, you don’t realize that you’re forgetting who you are until you remember something. And it can be something so simple as a song that you hear a shirt that you find in the back of your closet, there are these little reminders that I have that take me back to this time when life was simple. And I think I’m a happy person now. But back then I was happy in a very uncomplicated way. And all like hear some song that I didn’t even like that much. But just like a song that I remember from when I was 20 or something. And I’ll just be like, Why do I feel things right now? Like what is what is it about the song like, the Super Bowl was last weekend, and I watched the halftime show. And I remembered like, driving around in my 1996 on a prelude listening to 2001 from Dr. Dre. And I was just like, Oh my god. Life was so fun. All day, every day back then, like, my only job was to just have fun and like barely show up at school. And that was the only requirements of me like today. Yeah. And then in then I’m like, Oh my gosh, I remember I used to be this person who used to have these interests. And I used to do stuff and travel. And I enjoy I enjoyed listening to music and I enjoyed going to find bars and I enjoy doing all these things. And then I’m like, I haven’t done any of those things and so long that I forgot about those parts of myself. Like I forgot that I used to be really silly and I used to I mean, I still laugh a lot but I have forgotten who I am. And I don’t know if that’s more of a grief or if that’s more just having kids and not having any time to do anything for yourself but that that’s like a super weird thing that I’ve experienced.

Victoria Volk 39:45
I did do I experienced that too. And it just I have I use the Passion Planner. And did you know the Passion Planner? Makes stickers I love stickers. And I collected stickers as a kid, like I had tons and tons of stickers, like brings out the kid in me. Every Sunday, I get out my highlighters and my stickers and I, you know, I plan my week for fun with stickers like, yeah, how ridiculous. But I think it’s this little thing that I found that connects me to myself. And I just encourage you, and anyone listening, that when you’re in the thick of stuff, grief, transition, parenthood, whatever it is, to do something that reminds you of the essence of who you are. So you don’t lose touch of that. Because when it feels like a part of you is died. There’s grief in that too.

Rachael Burns 40:39
Yeah. And that’s a very, very real thing is the death of who you once were. Because once once Rob was diagnosed, obviously, there’s the grief associated with the very obvious part of that. But what really disturbed me the most in that time period was, I will never go back to who I was, before I knew that this was coming. I will never ever be that person anymore. I will always have some form of this grief. And even when I would see pictures of myself from like, a few years before, but I didn’t know what was coming. And I was like, I’m like smiling like no idea what’s going on. It’s weird to think that that person is dead, that person will never exist again. That’s a really weird realization. That’s like a really weird part of grief that I wasn’t prepared for I guess.

Victoria Volk 41:45
Yeah. And I talked to someone else, just before we hopped on and one of the themes of our conversation was that she allowed herself to change. And I think we kind of bucked that, or we try to resist that through grief, like grief changing us, but it’s going to whether we like it or not, but it’s allowing that unfolding of the new Rachael 2.0. But when I speak about connecting to the essence of who you are, it’s not even there’s parts of you that regardless of what happens, never change, right? Like, I still love stickers like that is that brings out the kid in me that brings out the essence of who I am. And so that’s really what I’m talking about here is I am not the same person that I was before. Whatever happened to me, you’re not going to be in anyone listening. That’s the case as well. But it’s really, I think, before the world got a hold of you right before brief got a hold of you. What were the things that brought you to life like sparked joy, if we got to.

Rachael Burns 42:52
Marie Kondo

Victoria Volk 42:53
Yes. Marie Kondo our lives, you know, but it really it’s, it’s coming back to the simple things like that, like collecting stickers and, or like playing with playdough with your kids, and making different creations or, you know, and that’s, I think what the gift of those ages are and parenthood is that it’s like you have permission to play. Because if, let’s say you’re just, it was just you and you’re playing with playdough. And someone calls you Hey, what are you doing? I’m playing with playdough. What? You know, you kind of get some side eyes, like, you know, what, when you have little ones it’s, it’s a permission slip to just play? Yeah, yeah. It’s, yeah, I think you can rediscover, there’s an opportunity there for you to rediscover who you were before all of this and who the essence of who you are. Just in everyday parenting with your kids. Yeah. Putting on the music putting on Dr. Dre. Maybe some clean edited. Yeah,

Rachael Burns 43:57
I know, the kids are old enough to where they repeat cuss words. Now, once

Victoria Volk 44:03
You bring some of your play into their world. Yeah, they get to know you that way, too. You know, yeah, that’s good advice. And also to maybe bring that to your relationship, you know, the things that brought you together and you know, before Yeah, then it really it is so important to make your unit a priority. And you but I think if if you have to choose, it’s a lot easier for you to choose time with your spouse than you alone. But that is self care, too. Right. If you’re doing something you enjoy, and you’re sharing it with him, that’s self care, too. Yeah, yeah. When I did for this to turn into like a coaching session. It just so many reminders for me of of where I once was,

Rachael Burns 44:54
yeah. Yeah. It’s funny. We’ve been one thing we’ve been doing is because he works, or his office is close to the house, I work from home, and we’ll like, Go, he’ll be like, Oh, I’m gonna come home for lunch. And we’ll go get lunch. And it turns into just like having cocktails and not working and taking the rest of the day off. But it’s like this really nice thing that we’ll do every once in a while, where we’ll just kind of forget about all of all of our responsibilities. And it’s just time that we haven’t really spent together in a long time where we’re just like, hanging out not dealing with real life stuff.

Victoria Volk 45:43
Play hooky from life. Yeah. playing hooky is fun. So what has your grief taught you?

Rachael Burns 45:50
It has taught me all sorts of things, it’s taught me, I much stronger than I ever thought, which is like, I feel like that’s kind of cliche, but I can endure a lot. And still keep doing what I need to do. Like that has become very clear out of this. situation, um, like, I can handle, I can handle a lot. And if I can handle whatever already been through, there’s really not a lot out there that scares me. Which is like a kind of weird, empowering feeling to have, even like thinking back to when I was in my late 20s. Before I had kids and everything. And like, if I had to go get blood drawn, I would seriously cry. Like they would, they’d be like, Oh, my God, this girl is such a loony. And like I was I was just like, so dramatic, like, Oh, my God, I can’t like, I don’t know, I just, I felt like I had all these kind of fears that were really silly, and really kind of irrational. And then now, after having the kids after having the complications, I remember thinking, There’s not one medical procedure that I can think of, that scares me after what I’ve gone through with the poking and the prodding and the IVs. And the tests, and the, there was a lot of like, really, extraordinarily uncomfortable or painful moments through all of that. And I’m like, There’s nothing that I can think of that would really scare me at this point. And the same goes for things that can happen in life, like losing a job, or losing a family member, or, you know, whatever things that used to scare me, I’ve already proven that I can handle it. So there’s like not a lot to really be scared of anymore. Other than being scared of something happening with my kids, like, there’s so many fears that I didn’t have that I have now, like, oh my god, if they got hurt, I would just like lose my mind. Aside from that, I feel pretty fearless. I can accomplish more than I ever thought was possible. That’s been empowering. And and when I went out on my own and started my own business that that had a lot to do with it. I’m like, Well, clearly I can handle it, because I just survived all of this. So running a business is not. That’s not a big deal at all. I mean, it is a big deal. But it’s not something that scares me. So that’s something that I’ve learned about myself in the process.

Victoria Volk 48:40
I’m finding it a curious aspect of grief that I’m just kind of came to light for me today. And I was talking to someone before I spoke with you, and she’s an entrepreneur, and we’re just kind of thinking about how, as entrepreneurs, you even if you never felt like a leader brings out your leadership skills, right, you have to be able to lead yourself you self self determined you have to have it brings out all it’s brought out aspects of me that I never like, I’m sure people looking like when people see me now. And like think of me when I was young, like, you know, fifth, sixth, fourth grade, whatever, like, oh, never thought you would do that. Right? You know, like I was one of those kids like, Yeah, and so I’ve proven to myself, right? It’s like this, you have to prove it to yourself. And so I think there’s this element of self leadership that comes out of being an entrepreneur and I think that really serves us as Grievers to be able to lead ourselves through the process of grieving in a way that well hopefully is positive and healthy, but it can go the opposite where you just pour yourself even more into work and become a workaholic, and that’s not healthy. I’m talking in a healthy way but I just want Want to highlight though that that’s probably really serving you in that way and will continue to serve you as you navigate this, the unknowns of all of this?

Rachael Burns 50:09
Yeah, one thing that it’s taught me is I really trust myself more than I ever have. I really trust my judgment. And I trust my decision making. And I’m very confident in the decisions that I make now, which has been, I wasn’t expecting that. But it does make me feel like I know what I’m doing. I’m not, you know, this isn’t my first rodeo. So that’s been, it’s been very empowering in that way.

Victoria Volk 50:45
What has been the biggest support for you? Like, especially then, like, when you first found out all of this stuff was happening? Like, what was the most helpful thing that? Where did you find the most support?

Rachael Burns 50:59
Yeah, I, there were two phases in that. And the first phase was maybe the first year after he was diagnosed. And I was not wanting to see people, I was not wanting to be around people, I was not wanting to talk to people about what was going on, I was just, I just wanted to like crawl in a cave and just hide until it was over. And at that point, because I wasn’t really ready to talk about it too much with people. It was more me getting whatever information I could to help process that or to help understand my feelings with that. And and one thing that was so helpful was I found a podcast, it was started as being about grief, it was put on by someone who is around my age, and her husband died of the same type of brain cancer that my husband has. And that sounds like a really depressing podcast. But in reality, when she talked about grief, I could totally identify with things that she was saying. And I was like, Oh, my gosh, I’ve been feeling that. But I couldn’t even articulate that. But now that she said this, I’m like, Oh, my gosh, that’s exactly what I’m going through, which was so helpful. But also, it wasn’t just about grief, it was about overcoming difficult things, which we all do. I mean, everyone has to do difficult things, and we all can relate to that. But the fact that she had gone through this very similar situation, and she had turned it into something that helped others in a very meaningful way. I mean, she, she made a meaningful difference in my life, just from listening to a podcast. This is someone I don’t know, it’s called terrible. Thanks for asking, by the way, I think I we talked about that before. Yep, I’ll put it in the show notes, too. That was such a huge support for me, which is kind of funny, because it’s just like a podcast. But that that was really important. And then once I got through that initial phase, where I was like, Alright, I’m ready to emerge from my cave, and like, talk to people about what’s going on, then, you know, having the support of my friends and family was, and having their support was extremely meaningful during that first phase, but I just was I like, couldn’t, I couldn’t bear to like, be around people. But once I kind of reemerged, I have this new sense of gratitude for the support of my friends and family, just because you don’t know how truly committed they are to you until you go through something really bad. And they show up for you in ways that like you would have never expected and it makes you really appreciative of the support that you didn’t even realize. I mean, I knew that I had the support, but I didn’t know that I had

Rachael Burns 53.58
That, that was that was like a life savings thing. The stuff that my family did for me like when I when Rob was first diagnosed, the first call

Rachael Burns 54:22
That I made, one of the first calls was to my brother and I told him what happened. And I just asked if he could take that if he could be in charge of letting people note because I didn’t want to like keep repeating that story. And I didn’t want to be the one that was responsible for like delivering this horrible news to people. I didn’t want to be responsible for that for like changing their life with this. Like because I knew how much it hurt to be on the receiving end of that news that I didn’t want to give it to anyone else. And like my brother took that off of my plate for me and like Did this really horrible task of being in charge of like delivering horrible news to everyone, but he did that for me and, and my mom, like, would just magically drop food off at my house. And she just like, kind of show up and like, leave food and just kind of run away and give me space and like, your people show up for you. It’s like, they know what to do. In times of need, people know what, what to do. So that was pretty amazing. It’s beautiful. I just got goosebumps. I had a feeling you’d make me cry. I debated whether to put on mascara. But luckily, the filter will blurred out. So back to the filter.

Victoria Volk 55:44
It’s so easy to think about how people don’t show up. But I think it’s reminding ourselves of how people do is far more empowering and self loving, really.

Rachael Burns 55:58
And some of the people who don’t show up. Sometimes it’s just because they can’t they don’t have they don’t have the tools or it’s not, I think it’s easy to get your feelings hurt when you don’t get the type of support you’re expecting from someone or whatever. But like, one thing that I realized is people just don’t know what to do. People don’t know what to do in that situation. There’s no manual on like, how to help your friend whose husband was just diagnosed with brain cancer like, no, no one expects you to be an expert in that. But some people can feel like, I don’t know what to do. I don’t I don’t know if I should talk about it. I don’t want to say the wrong thing. I don’t want to do this like, and then they just kind of freak out and just kind of disappear. I think that’s a really common reaction people have and like, I don’t blame anyone for having that reaction. I think it helps to have some realistic expectations of people knowing that they’re not going to know what to do. I don’t I mean, I don’t know what to do. I don’t expect anyone else to know what to do in that type of situation. So, but it does make you extra appreciative of the people who do like, despite the difficulty of the situation, they still show up.

Victoria Volk 57:08
That’s why I love to ask that question like, What are some of the ways that people supported you? Because I think through this podcast, people can learn different ideas, even if they want to be the one to support someone who’s going through a difficult time. You can learn through podcasts to easily support for others. What is one tip that you would share with somebody who’s in the thick of it, maybe like you or maybe not as far as long as you because we’re all at different points, right?

Rachael Burns 57:39
I don’t know how to answer that. I don’t know, I just feel like everyone’s situation is so different. And I am not an expert. I’m barely an expert in my own life. Like I don’t know how to give advice to someone else who’s like going through something a little bit different. But I think just knowing that no matter what you’re going through, it will not always be that hard. Like nothing stays that hard. I can’t I mean, it’s I guess certain things could get worse, but you will survive difficult things. And you will adapt, and you will learn to accept certain things, and you will learn to move forward and it like when you’re in the thick of it. It’s so hard to see, like what it could look like on the other side, but it will get better. It might have to get worse. It may very well could get worse before it gets better, but it will get better. And like, I don’t know, knowing that made me feel like less despair, I guess. Because I was like, Yeah, this is horrible. But this will not always be this way. That’s the only thing I can really like offer in terms of advice.

Victoria Volk 58:12
Well, let’s shift gears to the work that you do then, yes. And talk about give a piece of advice or suggestion that you would give to somebody putting your financial advisor hat on planner with that hat on what would you say.

Rachael Burns 59:14
So if someone is going through a really difficult situation, and there’s some financial decisions that need to be made, or some sort of actions that need to be taken, and that’s something that’s really causing you a lot of stress. I think it helps to understand that you are not expected to be an expert in your finances. There are other things that are more important at that time. And yeah, there are some decisions that have to be made and some things you can’t put off but no one’s expecting you to be superwoman. Like you can get help on anything that you need. And if that’s financial stuff, there is someone who can break that down and tell you Okay, these are the things that you actually we need to worry about the rest of it, don’t worry about it, you’ve got other stuff to deal with. There’s just there’s a lot of support out there. No matter what your issue is, and particularly with the financial stuff, there are so many advisors or other experts out there that specialize in very specific situations. Where, if you are going through divorce, there is a whole industry out there of people who are able to support people going through divorce, or if you have lost your spouse, there are people who specialize in that type of situation. So there’s really specialized support available, whatever you need help with, and I really encourage people to like, be open to help. And it might take a little bit of digging to find the right person to help you. But there’s just so much support available for you. So don’t feel like you have to do everything alone. Don’t feel like oh, I don’t know what I’m doing. Like, you don’t have to do it alone, you can get help. And someone can help make your life a little bit easier. And you should you should take the opportunity to make your life a little bit easier when you can because life is hard. And you don’t need to take on more than you absolutely need to.

Victoria Volk 1:01:19
What do you think is? I mean, I have an idea. But what do you think is one thing that maybe stops people from seeking help? Can then I’ll share my thought on that around finances?

Rachael Burns 1:01:32
Well, with finances specifically, I think people get scared to face face the facts. I think finances are just a very uncomfortable subject for a lot of people. And that’s for a lot of reasons. You know, a lot of people don’t have the knowledge and they feel bad about their lack of financial knowledge. Or they feel bad about decisions that they’ve made in the past with their finances, or they have all this like guilt and shame wrapped around it. And I think with finances, that’s something that you feel like, oh, I can deal with this later and that you put on the backburner, even though it’s really not something that you should put on the backburner because you need to address it as early as you can. But I think just not wanting to deal with it is like the number one block that keeps people from getting it in order.

Victoria Volk 1:02:30
So once your yes shame, the shame, yeah, you feel around their money. Yeah.

Rachael Burns 1:02:37
Yeah, it’s totally understandable. And it’s very, very common, but like, money is just a thing. I mean, it’s, it’s a more complicated thing than that you need it to get a lot of things. But no one is born bad with money. No one is born good with money. If you make a mistake, that doesn’t need to define the rest of your life, you’re not Oh, the person that screwed up and did this, like, you learn as you go along. And it may be it takes you a while to learn it. But it’s not. It’s doable. It’s something that you kind of have to try to remove the emotions from. And just, you know, what, what you’ve done in the past, that stays in the past, you just kind of have to be willing to, to learn, be open to learning and be open to making some changes when necessary. And if that’s how you get over the shame, part of it.

Victoria Volk 1:03:36
Isn’t the root word of currency current. Because I think of if you think of money as like, currency, right? It’s flows, right? Money flows. It’s, it’s an energetic exchange. And that’s really how I’ve had to reshape my thoughts around money is that it’s an energetic exchange. And just like we have shame in our money, we have shame in our grief and how we handle our grief or how we’re not handling our grief. stop us from seeking help, too. Absolutely. There’s a lot of similarities there. But if someone wants to, if I’m in a situation where I had a death of a spouse, or I’m getting divorced, or recently divorced, where can I? Where’s the Where do you recommend I look for resources.

Rachael Burns 1:04:29
I don’t think there’s one place to go get all information on on that type of thing I think it’s going to take it’s going to depend on what’s your preferred way of receiving that information. If you’re someone who likes if you’re someone like me, who likes to listen to podcasts, any information that I absorb, needs to come in the form of a podcast or else I’m not open to it. So if you’re someone like that, there are so many amazing financial podcasts out there that have different focuses, if you’re interested in budgeting, if you’re interested in planning for retirement, if you’re interested in getting out of debt, that’s like my favorite way. But that’s, that’s me. That’s not That’s not everyone’s cup of tea. If you like reading, there’s some, there’s some great websites, there’s, I mean, advisors like me often put out content, they put out blogs, they put out all sorts of stuff. That’s, I think, a good source of information. I think if you go on social media, there’s a lot of helpful information, but there’s a lot of garbage. And there’s a lot of people who claim to be financial experts, but they’re just like social media personalities, you have to be careful where the information is coming from, but there’s no one place to get the information, it really depends on you just have to kind of poke around in your preferred type of media, I suppose.

Victoria Volk 1:05:56
So if I’m listening, and I really resonate with you, and I like your story, and I want to connect with you, where can I find you.

Rachael Burns 1:06:03
So you can visit my website, it’s trueworthfp.com. And I have my blog on there, I have my story on there. And then I also have a link to schedule a free strategy session, which I really encourage people to take me up on. Because even if it’s not a good fit, you will absolutely walk away with some actionable ideas that you can put into place right now. And even if I mean, if it’s not a good fit, I can give people referrals, I can point them in the right direction. I think that’s a good place to start. And then I’m also active on social media. I’m not one of the people who pretends to have the expertise, I actually have some credentials. But I’m on. I’m on Instagram. It’s true worth FP. I’m on LinkedIn, it’s under my name, Rachel V. Burns. Those are some good places to connect with me and chat with me there. And you can read the stuff that I’m pretty active about posting stuff on there. So that’s, that’s where you can find me. And I’ll put all the links in the show notes, too.

Victoria Volk 1:07:10
But is there anything else that you would like to share?

Rachael Burns 1:07:14
I don’t think so. I have thought about a lot of things in the past hour and 20 minutes that I haven’t thought about in a while. And I don’t think there’s any stones that were left on turned. You know what the one thing I will say is going through really difficult times is part of being human. It is like what when I said it in the beginning of the of the episode about feeling like I’m a one percenter like, of course, of course, it’s going to happen to me everything. Like you’re not being singled out by the universe like, this is this stuff happens to everyone, no one is safe from having bad things happen to them. This is just this is just part of the deal of being human. And I think when you look at it that way, you won’t get as angry when you’re going through something because you know, it’s not just you this is just something that happens to people for no good reason. And it also makes you feel kind of united with other people who are going through difficult things. It made me feel like this is something that we all have in common is going through hard times. Like I just I don’t know why, but it made me feel so much more connected with other people in general, just knowing that we all have something that we’re dealing with, and that makes me feel better for some weird reason.

Victoria Volk 1:08:45
Me too, honestly, like when I think about my podcast, it’s grief is the one thing that unites us all it doesn’t discriminate, it doesn’t care. We are who you are where you’re from your background, your age, doesn’t care. Yeah. Well, thank you so much for being here. I will put all of your information in the show notes if anyone wants a financial advisor, planner, and thank you so much for being here.

Rachael Burns 1:09:13
Thank you, Victoria. I really appreciate it.

Victoria Volk 1:09:15
And remember, when you unleash your heart you unleash your life. Much love.

Ep 107 | Michele Neff Hernandez

Michele Neff Hernandez | The Soaring Spirit of a Widow and Fatherless Daughter

 

SHOW NOTES SUMMARY:

In this week’s episode, Michele of @soaringspiritsintl and a 2021 Top 10 CNN Hero, shares her story about the challenges of blending a family, but then enduring a devastating loss and grieving as a blended family.

But because grief is cumulative and cumulatively negative, a previous divorce, followed by the sudden death of her spouse, then the death of her father, taught her so much more about what it means to grieve well.

It’s hard enough to be a widow and raise your own children, but few talk about the challenges of grieving with the children you raised as your own with a spouse who is no longer living.

By the time her father’s health was declining and he was put into hospice care, Michele had been around the grief block and was able to support her mother in a way she had never anticipated. And, the loss of her father, starkly different than the recent loss of her spouse before his passing, opened her up to have meaningful conversations at the end of his life that she still treasures today.

Grief has been the catalyst for what was initially going to be a book but later morphed into a movement in what is called Soaring Spirits Camp Widow which takes place in several locations around the United States and now in Australia, too.

What is your grief trying to open you up to receiving? Michele allowed her heart to soar in the wake of her devastating losses. Let this episode inspire hope and instill the understanding that grief is what we make of it.

We can allow grief to destroy our spirit, or we can allow it to aid us to transform our suffering and soar. 

RESOURCES:

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If you or anyone you know is struggling with grief due to any of the 40+ losses, free resources are available HERE.

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Victoria Volk 0:00
Hi this is Victoria of theunleashedheart.com and you’re listening to grieving voices, a podcast for hurting hearts who desire to be heard. Or anyone who wants to learn how to better support loved ones experiencing loss as a 30 plus year graver in advanced Grief Recovery methods specialist. I know how badly the conversation around grief needs to change. Through this podcast, I aim to educate gravers and non gravers like spread hope and inspire compassion towards those hurting. Lastly, by providing my heart with yours and this platform, Grievers had the opportunity to share their wisdom and stories of loss and resiliency. How about we talk about grief, like we talked about the weather? Let’s get started. Thank you for tuning in to grieving voices. I’m your host Victoria Volk. And today my guest with me here is Michelle Neff Hernandez. She is the founder and chief executive officer of soaring spirits International, a nonprofit organization providing peer support programming for widowed people worldwide. Michelle is the author of different after you rediscovering yourself after grief or trauma, and is set for publication by New World library in February of 2020. To her passion for supporting widowed people in the power of integration feels her presentations in her community activism. She is also one of the top 10 cnn 2021 Heroes of the year for the work that you’ve been doing, and also for the impact. So thank you so much for being here and for the work that you do. So needed.

Michele Neff Hernandez 1:50
It’s a pleasure. And I am Thank you, thank you for those kind words.

Victoria Volk 1:53
What was your life like before all of this?

Michele Neff Hernandez 1:59
So different. Which is is a part of the reason why the title of the book is different. After you I was a personal trainer, I owned my own personal training company. And I was parenting a blended family of six, my late husband Philip, and was just actually in the process of building his own air conditioning and heating business. And so we were both self employed. And we had a combination of six kids together, he had three from his previous relationship that were teenagers, and I had three from my previous marriage where my oldest was when we got together. My oldest was eight. So we had three littles we call them and three older ones. And you can imagine blending a family of six, I am actually the oldest of southern children. So it wasn’t as foreign to me as it might have been to other people. But we lived a very active lifestyle. He was really he was a truck Coach and an athlete. And so we shared kind of this passion for all things like and then we were sharing this big, crazy wild family as well.

Victoria Volk 3:09
Wow can you speak to a little bit about, like, I don’t know what that’s maybe the possible grief that even just a blended family and trying to navigate the relationships among the children. You don’t have to go into detail or anything. But just with those first few years, or maybe like,

Michele Neff Hernandez 3:26
I’m so glad you asked that because one of the one of the key messages in the book is about integration. And it’s about taking all of the difficult things that have happened in our lives and technology, what we grieve about, what about what that experience has brought to us. And then also taking those things that we’ve learned from moving through that experience to help us with other experiences. So when I got divorced, I was crushed. I had I got married at 20 years old, I was only 20. And I thought it was forever. And I was really just I went through a really difficult period of disillusionment when my marriage ended. But it wasn’t a choice that I would have made but ultimately participated in. And so here I was, with three little kids and feeling like I had to recreate my life and I didn’t want to, I went through an angry divorce kind of attitude for a little while and then finally sort of settled into knowing that I needed to do something different and right about that time, Phillip Hernandez walked into my life on a track actually. And again, he had had his own experience of not having the relationship that he started very early in his life, work out the way he had hoped. And so when we came together, we came with two very different parenting styles. We came with different loss experiences around how our relationships ended. And it was hard work. And I think I never really thought that the work that I did around I divorce or the blending of the family that Phil and I then sort of came into was going to be useful in any way. But I will tell you that after he died, though I didn’t want to single parent, I knew that I was capable of single parenting because I already had. And I kind of leaned into the lessons that I learned while we were bonding or what it’s like to really honor and recognize the different needs, because you can imagine, right, there’s eight of us. And everybody had needed something different. They needed something different from each other, they needed something different from each of us as parents, they needed a different thing from each of us as a as a perinatal unit. And so when I’ve told people wanting that family is one of the hardest things I’ve ever done. Because the unique pole and push of what people need from this family experience less so tough. And we wrestled, I will say for sure it was difficult. What we kept coming back to was that we really loved our time together. And we wanted to make that work. And so I tell people, make sure you have dates. Because if you can’t remember why you chose your partner. I mean, I think that’s true for every relationship, but particularly if you’re blending a family because you have to remember what brought you together during the times when it’s really difficult to find a path forward. And I had heard every member who told me that at some point, somebody said something like takes really about five years, and I was thinking to myself, No way. No way is it going to take five years to make this family feel like a family. And really, he died after five years and three months. And I can tell you that we had really kind of hit our stride. Like we felt like a family. And it wasn’t that it was easy. But I don’t think any family is really easy. But it did feel like we were a family for him to die. Right at that time. It felt like we were robbed of what might have been, I think,

Victoria Volk 7:03
And the kids too, because I’m sure that they settled into this new life and new family unit. And

Michele Neff Hernandez 7:13
Yeah, and without him, we sort of ended up in two different camps of trying to figure out how to grieve Him. And so that definitely was another was we talk a lot about in the grief world about secondary losses. And in the early stages, I was a primary loss, but going forward in my life has remained a secondary loss, which is they really needed to find their own way. And, and in a lot of ways that didn’t include me. And I needed to be okay with that, even though I wasn’t. And so that’s been another piece for all of us, I’m sure. But for certainly for my three kids and myself, that was another piece of what we had to make our way through. After he died. He was the linchpin, right?

Victoria Volk 7:55
Well, and even the relationships that kids had with his kids. Yeah, for sure. Layers and layers and layers of loss and

Michele Neff Hernandez 8:02
So many layers. Yeah. And I feel like that’s, that’s a part of what has brought the deepest lesson. So it’s that these differing layers of loss, I think, I never went feel died, I had never grieved anyone very close to me, my grandfather died. But I, it was at a time in my life where, you know, that’s sort of not exactly expected, but it was it didn’t affect me personally in the same way. And so I never really had an adult brief experience. And I think my initial thought was be the hardest part is going to be the early parts. What I learned was that the harder part was learning to live without him physically present, and figuring out how I maintain a connection with him and how we as a family navigate what each of us needed. Because once again, we’re in a place right where there are seven of us and the seven of us all need something different in order to move through our grief experience. And I think as a parent, that was the hardest part was I was living my own experience. And then in addition, each of the kids was gonna be theirs. And as we know, for children, no, they process at the age they are and have to keep reprocessing at every new age. And so I just felt like it was an eternal grief wave that kept coming from every different direction, each different kidney and a different thing. And as they understood it differently, being pulled back into that it really was an evolution for us of walking through each new step. And for me as a parent, that was I think the hardest part was just knowing that each one of them were never done grieving. In my opinion, I think it’s just a way of life and it becomes a part of who you are. But for kids in particular with the new understandings that comment different ages, there’s a deep processing that can happen at each different age. And I think I had a sense of that initially, just because as an adult like I thought he’s not going to be present for any of this kid’s weddings, he’s not going to be present for any of our children’s weddings. And so, when my daughter got married a couple of years ago, we found ways to honor him. It had been, he had probably been dead 13 years, I think, yeah, it’ll be 30, it would have been 13, I’ll be 60. Now they’ve been married for three. So he’d been dead for 13 years. And, and all of us felt the absence of him, let’s suspend sort of our ongoing understanding of what it’s like, when you live with grief.

Victoria Volk 10:29
I understand that deeply, too. I was a child Griever, my dad passed away when I was eight. And so I can speak to that, that we grow with our grief, like our grief changes with us every phase of our life and manifests differently to at different phases as well, if it’s unprocessed and on undealt with or not looked at. Yeah,

Michele Neff Hernandez 10:53
Well, and we talked to you and a tiny bit before we began about my name, and my dad just died will be a year coming up in April. And she was a key part of my life and a key part of my process. And I’m recovering from my grief. And I really wanted his name to be on any book that I would publish. And so right about the time that I decided that I wanted to write a book, I returned my maiden name to my name in order to be able to make sure that, that any book that I would eventually publish would have my dad’s name on it. And so it has been just wonderfully bittersweet for him to have been, he was able to be a process of the writing. He knew that I that I had gotten a publisher, he knew the book was coming before he died, he got to hear the title. And there were just a lot of pieces of it that he was able to participate in, but having his name on the book made a big difference to me. And that’s something acknowledging that that desire to continue to have a connection with the people we love goes on and on, no matter how old we are, or what our grief experience, where it may take us. I feel like that ongoing connection is such an important piece.

Victoria Volk 12:12
Even in unloving relationships, the relationship still continues after the person passes away living or dead. I mean, those relate, or you have relationship with people, and D, have you looked back then I’m sure you have. But when you father passed away, which I’m sorry, during COVID, were you able to be with him?

Michele Neff Hernandez 12:32
We were so fortunate, I mean, and and to speak to how my past grief experience has influenced my current grief experience. That’s what I was getting on? Yeah, yeah, for sure. Well, I mean, and again, all this while that he’s dying, and I’m writing about this. And so we’re writing about the power of integration, and how allowing myself to be changed by what I experienced my grief experience with film led me to understand better the tools that I that I used to survive that and those exact tools were such a gift to my family. So as I said, I’m one of seven, and my dad decided that he wanted to access hospice care. And we were able for six months, during COVID, to take care of him all of a sudden of us. And so we ended up with an incredibly beautiful death experience, especially with the work I do. We’ve participated in providing care and support and resources for COVID, widowed people since the beginning of the pandemic. And so I’ve heard the stories that are heartbreaking, and understand very deeply how fortunate we are to have been able to care for him at home, right to the end of his life. It was some of the hardest work I’ve ever done, for sure. But because of my grief experience, I was able to kind of lean into it in a different way. And my husband was killed in a cycling accident. So there was no opportunity to care for him, there was no opportunity to say everything you might want to say. And because of that I understood how valuable that was with my dad. And we didn’t leave anything unsaid. And I again, I recognize that that’s a gift of both the relationship we have the family dynamic that we are fortunate to have built and and maintained. So there’s a lot of pieces there right now. But you know, ultimately, our ability to be present was impacted by my grief experience for sure.

Victoria Volk 14:36
Well, you bring up a good point, just in sharing them. Thank you for sharing because it isn’t that way for so many people. And so we can’t assume that people have it, the same way we do or the same type of even relationship that we do with our loved ones. And so assumptions really can create some hurtful comments.

Michele Neff Hernandez 14:59
And I I think that because I’ve worked with so many widowed people over my career, I just have a breadth of stories and and what I always feel is what I love about community for grieving people is that it gives you the scope of experience, right. So you may not have had a great relationship with your father, and you may not have a great relationship with your siblings. And maybe you weren’t even able to be present for your, your father’s death. And so that’s one that’s one side. And then there’s the story I just told, and then there’s so many in between. And it helps us to know that there are so many different ways that we live in relationship, and that the way we live in relationship is going to impact how we grieve, as well as every situation related to how our person died. And so I value that about our community, because it gives you this sense of, there isn’t one way to do this, there can’t be because there’s no one situation. And so every situation is going to be influenced by relationships, by what we know about breed by what we’ve experienced in the past. And that’s the key work of integration is being able to allow ourselves that I feel like there’s such power in that. And that became because of that belief, the focus of my vote.

Victoria Volk 16:11
So do you feel the first step for many people who find themselves in a situation of loss with not knowing where to go or where to turn to? The first thing to do is to look for support?

Michele Neff Hernandez 16:24
I do, and a recognize in saying that, but some people will say, I don’t have any, there just isn’t it because again, some of us are walking this route alone. But what I know for sure, is that people who have access can find that access to a community will be able to understand that there are other it’s lonely and isolated, and grief is isolating all on its own. Even if you have the best possible support. We’ve all heard stories of people saying I was in a room with 100 people. And I felt because my grief isolated me in such a way that I didn’t feel connected to anybody else around. And so that is true already in the best of circumstances. And when people are struggling on their own. And using my Dad’s experience, just as one example, I kept saying to my siblings, I don’t know how we when we when one of us would be on vacation or need a break for whatever reason, or have something that had to do. We were like, who’s going to cover and there were seven of us, including my mum eight. And so knowing widowed people who have done that, caregiving for years on their own, with literally no one else made me just so hyper aware of how hard that would speak for them. Because it was hard for us. And there were many, many hands to do to work. And so when you think the not single person is thinking, how am I supposed to find support, when I’m just overcome with five years worth of caregiving, I’m exhausted, and I don’t know where to turn. And there wasn’t anybody to help me when my person is dying. And now my person has done the work of soaring spirits provides that kind of for widowed people virtually and in person so that they can connect in whatever ways feel right for them. And my first sense whenever anyone’s grieving is to look for a community of support. Look for other people who are grieving the way you are. Social media, while it has all of its challenges has really allowed us to be able to find groups. And I’ll say, it’s also really important to make sure you find a group that fills you up and doesn’t drain you because certainly the tenor of your group makes a difference. But finding a group and a group could be one. It could be two, I’m not, it doesn’t need to be a community of 1000s. It could be just a community of one or two. But connecting with one or two people who are also agreed, just helps normalize the experience all that stuff you yourself and you are talking about in your brain. It’s helpful to get that out and have someone else say that makes sense to me. It helps remove that sense of am I losing my mind, this makes me feel out of control. There’s so many things there that can be normalized, just by knowing someone else had the same feeling.

Victoria Volk 19:12
You said a key phrase earlier and you said, you’re allowing yourself to be changed. And I think for so many of us, Grievers for me personally knowing it intimately and acutely well and how it changed throughout my life. It’s why my art for my podcast is me sitting on an island with a megaphone, because you feel like you’re just you want to scream to the world and nobody’s listening and you’re screaming on the ends. That’s why my art is what it is because that’s that’s how you feel as a griever so often sure, yeah.

Michele Neff Hernandez 19:50
And that’s especially when there isn’t anyone to validate. And for me, that’s the that’s the beauty of the community piece. But coming back to the chain Just I think one of the most harmful things that Grievers can do to themselves is set going back to normal as the bowl, I need to get back to normal, I can just get back to normal, then that means that grief hasn’t won, I’ve made my way through. But the reality is that we are absolutely changed. And every time we pretend that we aren’t, we’re fighting ourselves, and we’re setting ourselves up for failure, because we keep telling ourselves when Trump’s gonna get back to normal. But life isn’t, what was normal can’t ever be, especially for someone who’s grieving, but really, for anyone who’s lived through a traumatic experience. And I like to bring it down to this just one simple thing, which is you can’t unknow what the things that that you’ve learned, whatever day your tragic experience happened, you will never forget those. And so just by virtue of that one single thing, things can never be the same as they were before. And then here we are fighting to make it the same, feel the same be the same person that I was before whatever happened for us, it’s a grief before my person died, I want to go back to that version of me, that version of you cannot be returned to. And so then then what does that mean? I’ve heard so many greeting people say all the while I’m not as good as I used to be. I’m less than because of my grief experience. And there was a time in my life where I was parenting six kids, I was working two jobs. I was building a community for widowed people. I was trying to write a book, I was maintaining a relationship with my family and friends. And all I wanted was feedback to the other girl who could manage all the things better. And so because it didn’t matter that I was doing all those things, if I couldn’t wreck that this person that was surviving, this horrible thing was valuable, it wouldn’t have mattered who else told me it’s valuable, didn’t matter what number of things that I did, nothing mattered until I decided that this new person that was born from the experience I lived through was not. And so I needed to allow that change, I needed to allow myself to be changed. And that’s been such a critical part of my personal growth. But also the ways in which I’ve been able to support other widowed people have been the crux of that, which is being able to find the value itself you are now.

Victoria Volk 22:27
So what did that look like for you? early on? When you mean you were starting to build that community and you were doing all these things? But what was what was helping you I know you were reaching out to other widows to better understand and in build community. But what did healing look like for you? What was that process?

Michele Neff Hernandez 22:47
I think that the key for me, was coming to a place where I realized that I it couldn’t be the same as it was before. And I think the key is being able to allow yourself to be broken. And that was the thing I wanted to do would be broken at all costs. If I could just not be broken. That’d be good. And so my constant need, I’ll give you one quick example from the book. I was going to run a marathon when I turned 40. And Phil and I were going to do it together. So we had set this goal, he ran a marathon. And he wanted and he was like, Okay, it’s going to be your turn. I was like not right now. How about when I turned 40, we’ll go white, and we’ll run a marathon and you can be my support person. Great. That was the goal. Then he died when I was 35. So I’d five years. And I thought, okay, that’s still going to be something I must do. In order to prove that I’m not broken, I have to meet every goal that we set prior to his death. So I start training for this marathon, I’m in trouble. I am struggle, I have all of those things that I just listed going on. And now I’m also trying to run a marathon. And by myself, I don’t have the support that I did, then I don’t have anybody else in my life who lives close enough to me to be able to support this marathon thing that I’m doing. And so just keep doing it. Keep doing it. One day I went 80 miles, I run nine miles through three cities, I get to the third city, I’m turning around because it’s turnaround route. And I start crying. I’m like, I have to run all the way back. And I thought, why am I and the reason was because I didn’t want to be. And I thought that if I did not meet every single one of those goals. I’m literally nine miles from home. I can’t there’s no one to call. I can’t call someone and say come and get me. I have to run back. So I run back those nine miles because walking was just going to take longer. And I got home and I thought I mean I’m just not doing and freeing myself from the judgment. I ended up I had the nerve and I was training for the LA Marathon because I had decided I’m not going to also travel so I’ll just run the same one he ran. I watched it on TV from the couch. And I thought this was the right choice. Assuming, and that was just the beginning of understanding, okay, you don’t have to do all that you can be different. That doesn’t mean you’re out valuable, it doesn’t mean. And ultimately, to end that story, it even didn’t mean that I wasn’t going to run a marathon. Three years later, my daughter decided that she loves running and through a crazy situation of one thing after another, she and I ran a marathon together. And so it was that it was, I don’t know that that would have been possible, I hadn’t been able to release myself from that first spirit on, because I’m telling you, it would have been miserable, I would have been miserable. And I probably would have been like, I’m never doing that again. Instead, I said to myself, I don’t have to do this, I’m only doing it to prove it to myself, no one else cares. And allowing, and even if they do, I can’t, I don’t want to, it’s been in a position where you’re able to say, I can free myself from having to be who I used to be in the exact same fashion course, there’s going to be a lot of things that are gonna be similar about the person you were before your person, your grieving died, and the person you are today. But there also might be some differences. And allowing for those differences was the beginning of me understanding the value of accepting that when we’re broken, when we can be broken, that means there’s space for healing, for as long as we pretend like we’re not broken. What are we healing from?

Victoria Volk 26:25
So much there? I’m curious, was it just this thought process that you had within yourself this dialogue that you had within yourself? Or did you look to external things to help you process your grief? What I’m getting at is, are some people just built differently as Grievers? Like do you just have this thing in you?

Michele Neff Hernandez 26:47
Well, I mean, I think that’s true, right? Just because we’re different as people. So yes, I think that’s a part partly true about every person. But at the same time I was, you know, this, I was also building that community and hearing story after story. And the thing that people would say to me most often was, When am I going to be back to myself? When am I going to recognize myself again? And so we think the, for me personally, the pairing, the desperation, I heard from other people, when I could clearly see their vote. And so then that was the beginning of understanding, okay, well, if I can clearly see their value, and they’re telling me that they want to be back to the valuable person to use it, then how does that apply to me? And so I think that there was this pairing of coming back to what we talked about, in the early part of the episode, this stand of what you understand, when you’re in community, you get the access to all these different experiences that may or may not be like your own. And I think some of the most valuable ones are the ones that are totally different from yours, because now it’s okay, I have this scope of experience to reference when I’m thinking about and processing my own grief. And so I think for me, personally, the combination of, yes, I am a person who is able to self reflect, I am a person who has had that experience in my lifetime, right. So when we think about how we come to greet and come with experience in our life, and for some of us, that will include self reflection, and for some of us, it will not. And so that will be harder for people who haven’t had that experience before. It also will be one of the gifts of their grief experience if they allow themselves to self reflect. And so each one of our experiences in our lives, whatever they are, the difficult ones seem to have the most impact, right, that we aren’t as impacted. We think by the big beautiful things that happen to us, as we are sometimes by the things that break us. And I think being able to have access to so many people who had been broken in a similar way to me, helped me to sort of see a path forward. It was kind of like if you saw markers all along the road, and it was like, Well, wait a minute, this path seems to be delay. When I look at all of these markers that have been provided by the number of widowed people that I was fortunate to have access to. And I come from a family of community, our family always believed in community. And so again, when we talk about integration, I was integrating the lesson I learned as a child, which was community can be built, and it’s valuable. And because I knew that, I was able to say, Okay, I need a community. That’s what I need. And then building one was both by accident and design, because in the early stages of widowhood in the early stages of grief for anyone, right? We’re all struggling with whatever that early stage looks like my early stage included, please tell me where my people are, because I need them. And that’s something that I learned from my life. And so for people who haven’t had that experience, I think they don’t have that same natural desire to find it. And that’s why I like to talk about it. Because if you don’t have a natural desire to seek community Need, it might not seem valuable to you. But I have met person after person after person who has said, I’m typically not a joiner. I’m an extreme introvert wants nothing to do with people, I don’t really like people. And all of them have said I can’t believe community is because suddenly, there are those markers along the road. And that’s going to be different for each one of us. And the path forward will be slightly different for each one of us. Being able to have some markers makes a difference.

Victoria Volk 30:30
I want to just highlight one thing too, in that you are actually an entrepreneur when you experience this loss. And so I think, when I always tell people like they’re nothing will teach you more about more life lessons than entrepreneurship, motherhood, breeds.

Michele Neff Hernandez 30:49
All of them bringing my age, yes,

Victoria Volk 30:51
your age. And yes, I think just being an entrepreneur, it’s you have this sense of sense of self that maybe a non entrepreneur doesn’t and it on entrepreneurship brings out all of your insecurities, as does motherhood. And so we bring these lessons. And then when grief hits, if we already have some sort of sense of leadership of our lives, or in our lives, I think we naturally will, like you said, like you created that community, you were a leader to create this community.

Michele Neff Hernandez 31:21
I think that is definitely true. And also, we should say, I’m the oldest of seven children. So I’ve been bossing people around since I was born. But I do want to mention, like so many times. And when people hear my end, even if we talked about seeing the years, it’s the same, it’s look, this is what you build, which is true. What I always want Grievers to know is that we each individually have our own path forward. And we’ve lean on, like you said, all of the lessons that we have already learned in our lives. And so because it’s different for each one of us, I’ve had people say things to me like, well, I didn’t do what you did, it doesn’t matter what you do. It matters, how will you give yourself spacing, that’s the key message is being able to allow yourself your unique path. And so those markers on the road for you, when other people community, they’re going to be different. And that’s all going to be influenced by everything you already know, everything you’ve already experienced. And absolutely for me, it’s natural for me to lead. And it’s natural for me to gather people. And so this community came together, because it’s what I needed. And in order, I thought I needed it clearly someone else needs it, too. And so that desire really was to provide that space for other people that it’d be easier for them to find it. And yet, I didn’t really ever think about the fact that people might say, well, you have to do something big with your grief experience. I think what you have to do with your grief experiences, integrate it, and then your life will take you in the direction and sometimes a very new direction. But surprising because when we allow ourselves to be changed, then we can ask new questions. What does this need this need, did not need to run a marathon when I was 40, it didn’t work for this knee, it would definitely have worked. If I feel confident it would have worked for my 35 year old self had my husband stayed alive. And we had planted that together, we would have been very excited about that. But because that was no longer the situation, if I didn’t respond to that change by allowing myself to have what this version of myself needed at the time, then I’ve robbed myself of that growth and that ability to be different. And I needed that I needed to and even still, even those first five years. So think like I feel died when I was 35. That experience was when I was 40. And so I’d already been widowed for five years when I needed to make that choice. And I was still telling myself the story that if I didn’t meet all of the goals that he and I set together, I was failing. And so even five years in with an organization, it was a baby then but it was an organization that was started with events that were being held with standing on front of the stage in front of widowed people talking about my experience still holding myself to a standard that was not good for me.

Victoria Volk 34:01
Did that make you sick?

Michele Neff Hernandez 34:03
It’s funny is that I did some I did some interviews in the early the first year of my grief. My first the the actual idea initially was I was gonna write a book, having interviewed 30 Other widowed people. And so I went on this crazy journey starting when I was four months widowed, to interview people across the country on weekends, because I still had to work and mother and do all the things. But anyways, I got sick after every interview. And it didn’t really realize it until I had finished all the interviews and I was going back to my calendar to write them all in. And every time I looked, I had a paper calendar at that time, every time I looked, I would see that I had rescheduled my appointments after I got back. And not only did that when I’m sick, and I got sick after every single one. And so definitely that physical connection and the thing was that that’s very natural for me, because as a personal trainer, I would train people about how their physical selves were responding to their emotional selves. And so now I’m here I found myself in the reverse of that really being firmly rooted in my emotion, and sometimes forgetting how that was going to play out in my body. And so it was a really interesting lip of story for me as a athlete, and for me as a person who was breathing to really recognize that to see that in action was was, at some point really cool and other points super annoying.

Victoria Volk 35:25
So we just had Valentine’s Day, how did you spend it?

Michele Neff Hernandez 35:29
I am remarried. And I have a lovely husband, who has been so supportive of all of this. And so today is book launch day for me. So yesterday, we celebrated with sushi and an eating in so that we weren’t out with all the people who were lined up hoping to get a table, but it was lovely. And you know, what I tell people, my post actually on social media was about remembering that, while Valentine say seems to always be focused on on the romantic love, it’s really about like, it’s about love. And it’s about all the left. So I posted pictures of everybody I love because, for me, you know what, one of the things I think that’s been so valuable about my grief experience, in terms of my relationships is Phil and I were pretty insular, we were very, we were busy with each other pretty much all the time. And I still continued to name team, my family connections and my friends, but we were pretty much each other’s one person. And after he died, of course, that was really, really painful and difficult. And I developed a lot of relationships in the aftermath of that, that become very important to me. And so in this new version of my life, my husband is a key person in my life and one of my best friends, but he is also a part of a collection of people who matter to me. And I’m really hyper aware of that, of maintaining all of the connections that fully up and recognizing everybody has a part to play. And so Valentine’s Day yesterday, I posted my nieces and nephews, my siblings, my mom, my dad, my friends, my work team, like I was posting all the pictures of all the people just to remind everyone that love is something that never dies. And because of that, the more love we have, the more opportunity we have to continue this loving connection with the world. Because we are loving more and more people. I love that

Victoria Volk 37:25
I actually posted about self love if you felt like Valentine’s Day was not bringing all the warm

Michele Neff Hernandez 37:31
fuzzies you if it’s chocolate and the bunnies.

Victoria Volk 37:34
Yeah, take all that love that has nowhere to go and and give it to yourself and for widows especially right.

Michele Neff Hernandez 37:41
And I think for Grievers in general, because like I’ve said, so often, we’re so hard on ourselves. And people have often asked me, What’s your best advice to give someone who’s newly bereaved. And I would say, Talk to yourself in the same way you’d talk to your best friend. Because we, we so often will hold ourselves to ridiculous standards and forget how difficult what we’re doing is and we wouldn’t ever say that to our best friend. If our best friend was living our exact circumstance, how would we care for that person, or for yourself that way. And so I love that idea of making sure that we’re and self was on my list of self love people for that reason, because if we can’t, and that all circles back to what I said in the beginning about this list of things that I was doing, and I still saw myself as less than because I hadn’t been able to look at myself and say, you’re valuable, just as you are. And this experience has not changed how valuable you are. It has changed your life circumstances, and you need to adapt something new. That doesn’t make you less than you used to be. And I can’t I mean, I honestly can’t count the number of times I’ve said that to people who are grieving because we want to somehow honor our person or honor the experience or stay connected by making sure that nothing has changed. And it’s just, it’s just a an impossible standard.

Victoria Volk 39:06
I often say that grief puts a veil over our faces, and we just we can’t see ourselves clearly. And you don’t see others clearly and creates this disconnect really within ourselves. And when we’re disconnected from ourselves, we truly can’t connect with others. And so I think part of seeking out community or why it might be difficult for so many to seek out community is because they feel so disconnected to themselves. And so I would suggest to that people start there, start with yourself really asking yourself, what is it that I need today? Or what is it that I’m trying to forget? Or what is it that I want for my life moving forward? What do I see for myself in the future?

Michele Neff Hernandez 39:49
I think that the other part of that that’s so difficult or creepers is that as you said because we can’t see ourselves and oftentimes that clouds the way we see our relationships with others. If it feels like there’s just nothing in the future, and we don’t know the answers to any of them splashes. And I think that’s the one of the key reasons for seeking community, even when we can’t see ourselves, even when we can’t see clearly other people because that helps with one of the things we lose when I personally love guys is that witness the witness to who we are the cheerleader, and recognizing that some relationships are not good. And maybe they wouldn’t have been those things. But there certainly is this witness that happens, we’re sharing life with people. And there are expectations around how we will interact with each other. And when that person dies, that whole dynamic shifts, and there’s no replacement. And so you find yourself swimming in the unknown, trying to figure out how to find your footing when, even when and maybe even especially when the relationship you’re in wasn’t good. There’s this flooding loss where you’re like, but now what? And so being able to be in community sort of helps you to if you look at someone else, that’s what happened for me, right? Like when someone else would come to me and say, I’m not as good as I used to be. And I’m telling them that yes, of course you absolutely are, then I’m hearing myself, say it someone else and thinking that can apply to you too. And so it’s helpful to see other people, sometimes we’re able to see what we’re feeling reflected in, and being able to see that helps us to kind of see through that veil. And I always tell people, it doesn’t matter if you don’t have answers, if you’re willing to keep asking questions, and even make those questions teeny tiny as possible. So what do I want more of in my life today? Well, I want more sleep. Okay, then that’s one thing you want more, that’s one need that you can see. Okay, so now your energy can be focused on that. And and then as you as you continue asking yourself that question, new thing will come up, I want more sunshine, I want more time to write, I want more love, I want more joy, I want more. But you know, we have to be willing to accept I want less pain, I want sleep. I want a break from this going swirling around in my head. Like sometimes the things that we want are, are not going to be the fluffy fun things, or even really forward looking exactly like we are taught to think of forward looking, what do you want your 510 15 year plan? If you can give yourself the smallest opportunity to answer the question would want a lot more of in this moment. What do I want more of in the next hour? Where do I want more of for this day? Sometimes that can be a good place to start and practice being able to answer questions that sometimes just feel unanswerable.

Victoria Volk 42:49
And overwhelming.

Michele Neff Hernandez 42:52
And annoying and and sometimes hurtful. Right? When my fence fell down in my back five months after Phil died, the fence blew down. And I’m looking outside my window into my neighbor’s window. And I’m like, Oh, my gosh. And so I’m thinking to myself, I need to get three estimates. So I started doing that one guy says to me, Do you want a five year 10 year or 15 year events? And all I wanted to do was take a little fence post and smack him with an arm with it because I did not want to eat I couldn’t. I couldn’t I don’t want to know why I’ve 1015 I mean, I can’t think about next week. Why asking me that question poor man. But you know, it’s that sense, right? Of? And then what do I feel like at the point of failure? I feel like I can’t even answer a simple question. Do you want to add 10 or 15? Your friends? That’s because be capable of thinking that far ahead. And so being able to just give ourselves grace around what? So what I wanted the answer to the question is I want the fence to go up today, which one of us could go up to date so that my dog doesn’t get in my neighbor’s yard and allowing ourselves that small thinking? Because we’re trained to think bigger. And when we are trained to think bigger, and we are unable to the story we often tell ourselves is that we can’t and that that’s terrible, but it’s natural. Of course. It’s so painful to be at this moment sometimes that I cannot even imagine the next five. And so what do I want more of? I want more relief. That’s okay. That’s a that’s a perfectly great answer.

Victoria Volk 44:23
What had Phil’s life taught you?

Michele Neff Hernandez 44:26
She was a person who did not live with regrets. And sometimes I found that very annoying. But I have learned what a gift is not to second guess all of the things that he he would make a choice and he would run with it. And if it didn’t work out the way he wanted it to. He didn’t regret making the choice. He just pivoted and it’s really been good for me, I think because I’m a perfectionist by nature. And so I don’t it’s been hard for me to make mistakes and allow myself the pen It’s a bit of a mistake. I always thought when I don’t know about that, I don’t know about the benefit of mistakes. But I’ve learned that there’s just so much that’s a gift in mistakes. If we allow it and he was just fine with it, he would go right on to the next without regret without beating himself up about it, for the most part, and I’ve really appreciated being able to, to allow mistakes and to and try to avoid that longing for perfection that is part of my nature.

Victoria Volk 45:30
And actually, it’s very fitting because this week in my newsletter, it’s I’m digging into the word regrets. Oh, great. And then I flipped it on its head because so often when we hear the word regret, we think of it in a negative connotation. We think the things that we didn’t do specifically Well, I do anyway. But that’s that’s usually the thing that comes to mind is what I don’t do. What if we thought about regret in terms of what do I regret starting? I’m sure you don’t regret study only starting to write a great starting your group of widowed women Bay. So if we flip regret on its head and think about it, what do I regret starting? Or what will I regret if I don’t start it?

Michele Neff Hernandez 46:12
Yeah, there you go.

Victoria Volk 46:13
You know that too?

Michele Neff Hernandez 46:16
For sure. Yeah. And you know what, you’re right. It is interesting how regret? Definitely. I mean, for me, anyway, such a negative connotation right away. And I think the other thing is, What won’t you regret? What things won’t you regret? And when we look back, especially for relationships, right, I don’t regret that even knowing that we would only have five years together. I don’t regret the choice to spend my life with. And so that’s another road for regret is the things that we value and would do again, even when their heart

Victoria Volk 46:49
What was your dad’s name? What is your dad’s name?

Michele Neff Hernandez 46:52
Not why dad’s name is Dan net. I am endlessly fortunate to be his daughter. He was the proudest Papa, you can imagine. And so in fact, he would often come to our events are called Camp widow, and therefore any person who’s widowed, so any gender any relationship type, married, not married, if out speaking, he would sit at the front, and he would tell the people on either side of him that curl up there, that’s my daughter. So he was not a good person himself. But he would be one of people in the bed friends also been a really Hello, in some ways, amazing, other ways challenging, emotionally challenging to watch my organization serve my mom. And for her to step into this space that I created as a widowed person, I guess intellectually, I always knew that that was the likelihood my dad has struggled with his health for more than a decade. It was always in my mind, of course, that that if you were to ask me who was going to die for us, the likelihood was always going to be him. And so it’s been incredible to witness my mom’s stepping into this space. And again, my parents are the people who told me about community. So she’s a natural community builder, and she is at home and community and she fits right in and is creating her own communities within the community. So it’s been a really heartwarming and also heartbreaking experience to witness her stepping into the widowed world. And partially a one that, you know, that I built for this purpose. And partially just understanding on a personal level, what it’s like to be changed by widowhood. And knowing that, on the one hand, there’s nothing I can do to, to change anything about pain that she’s living in. And I and I realized the value of it, I know that she will be changed in ways that are, are necessary for her, because my dad is dead. But it’s been really, I keep saying, I feel like I have a little bit of widowed PTSD, because every step that she’s taking into these things that I had to do myself is like stepping back into my young, widowed self and looking at this experience from her perspective, while also of course, seeing it from my own as a daughter. So it’s been a it’s been an intense couple of years, for sure. I imagine it’s brought you and your mother closer. Yeah, for sure, including the care experience, because we were all together. I mean, it was also interesting, because of COVID. We were only the siblings. So we all have partners who would have loved to be able to help but because of COVID We were trying, it was pretty early in COVID. So we were being testing and doing all of these things to make sure that we could be there. So we had to limit the number of people and so ended up being literally like our seven siblings. And then towards the end, a couple of grandkids would come and my daughter was able to be there for a good portion of the end of its life. So that was beautiful too. But when what worlds would you be back together in your adult as adults, sort of reliving your your childhood it was it was an interesting gift.

Victoria Volk 50:00
And I never really thought about that either. And that’s really kind of often what happens right at the end of life when you’re given if you can look at it like an opportunity and but again, not all relationships will allow that. And that’s the unfortunate thing. But it is possible to have a good death. It is possible that I will my end of life doula training really opened my eyes to that with a bat.

Michele Neff Hernandez 50:23
So my mom is a birthing doula. So yeah, and so it’s also just all those lessons of birth and time because birthing doula is also deal with that, when births are don’t go the way people hoped they would. And so, so much of what she leaned on while taking we would, we would call it mom’s do Lane dad, because we could do so much. But there were times when it was only her that he wanted. And so we’d be like, mom, dad need to do it. And it would, it wouldn’t need to be her in that moment. But there was a beautiful, like she said, I think the thing is that for our culture, that we are because of our fear of death, and because of our desire rate for perfection, and for us not to be changed, like all of these roadblocks that we put up for ourselves, we make it difficult for us to embrace the reality that can happen. Because death itself, you know, in our culture is often the enemy. And so we don’t want death. And because we don’t want death, then nothing about it can be good. But the reality is he couldn’t have. I mean, it was hard, really hard, but beautiful. And, and we gave we weren’t able and fortunate as we were to be able to give him what he wanted. And to juxtapose that with what I knew about other people who had had a loved one die from COVID. It just really just like I said, drove home how fortunate we were and how grateful I was for his death experience. And one of my brothers, they said something about looking back, because we’re now approaching a year anniversary. So all of us are kind of remembering where were we this time last year, and I said something to my brother about it’d been a hard day or something. And he said, I look back on that time. And I think it’s one of the best times in my life, that we could be together that we could be in service to dad, that mom had the support that she needed to be a caregiver, but not have to do it all on her own. He was like I I just look back at that time. And Bill. Yep, so grateful. And we’ve said many times, that’s not I don’t put that out to pretend that that’s what everyone is fortunate enough to build. But I do think that we more often than we than we can see have the chance to make death, a beautiful experience, when we allow ourselves to see it not as the enemy will true.

Victoria Volk 52:56
Again, it comes back to the different layers, so many layers of grief, when you can have seven siblings growing up in the same household and every single sibling is going to have a different recollection and perception and experience of growing up in that home. And that’s that adds a real different dynamic at end of life for sure.

Michele Neff Hernandez 53:18
I think it’s also worth saying out loud that it’s not because it was beautiful, doesn’t make the grief easy. Exactly. So I mean, that’s the other piece right is we can welcome a beautiful bath. And we can live and I can feel endlessly grateful for this particular part. And that does not make what comes after it easier. And I think that was another piece of my personal understanding of what we were doing was that I knew that we could make choices that would make his death easier, and that we could come together in this way. And also that it wasn’t going to change anything about how party was great. And that we were all gonna have to do that work. And we are definitely eight different people doing it in eight different ways. And each of us living that each of us watching my mom witnessing and as you said, I am witnessing it from my load perspective. My siblings are witnessing it from their perspective of their mother. And while I also have that, of course, that I have this other layer and so a lot of times I’ll say we can’t we can’t do that for can’t take this from her. It’s impossible. I know. It’s hard to watch her BMP. I know it’s hard to watch. Knowing Valentine’s Day is a perfect example knowing that last year Valentine’s Day, we created this whole league Valentine’s Day scene and left them and everybody went home for the night came back and so of course she’s Of course she’s missing him and there’s nothing you can do about it except for tell her we love her and be available if she wants to talk. And so it’s been an interesting role for me to play because I uniquely know that I know that there’s nothing they could have done on the first Valentine’s Day to make it easier. I’m except keep loving me If I had to make my way through, so no we not for people, we don’t imply that a good death makes the grief easier, a good death just that that passage between life and death can be smoothed by a willingness to allow the love and the conversations and and also to let people just be who they are. No one’s going to change in their last five minutes before they die. And so being able to recognize that relationships may be what they are, it doesn’t necessarily negate the opportunity for a good death.

Victoria Volk 55:36
Yeah, I agree about 100%. There’s no half grievers.

Michele Neff Hernandez 55:40
that’s true situation is true. Try as you might agree with 50%, it will not work.

Victoria Volk 55:45
So what is I mean, you’ve given so many tips and things throughout our conversation, but what gives you the most joy and hope for your future?

Michele Neff Hernandez 56:01
Well, I would answer that in two ways. One of the things that brings me so much joy is the privilege of witnessing the evolution of my widowed population, like when I meet a widowed person who has just been widowed, and then get the opportunity to be a part of their lives for five or six or eight years, and be able to witness where they are eight years later. It’s an incredible gift. There’s nothing like it. And the fact that they can look back on their experience and say, that being a part of this widowed community continues to be a blessing to them is, is the whole purpose of my work. And so I feel very fulfilled in that way. And then on a personal level, one of the things that Phil’s death taught me just in such an a deep way was that the time we spend matters, and being able to make space for things that might not seem that important to the moments if one of them for example, if one of my kids calls, I turned my phone off today, because if one of my kids calls I’m always going to answer like, I’m always tend to dance, like look at the phone. But you know, of course, that seems like something that people would always do. But you know, my nieces and nephews, I don’t really special relationship with them. And I look to Phil’s death, as the beginning of that, because it was like, okay, you know what, my 11 year old niece does not care if I have a big organization for whatever people, if that means that I can’t come to the recital, or the I can’t make time to talk about her latest book, or that I can’t spend time I have 10 nieces and nephews who are between the ages right now. But will this one just turn 1414 and eight years old. And they’re my little buddies. And, and I honestly believe that that’s because Phil’s death taught me like, you only get to do this one time for real. And if you want to leave a legacy, that legacy can be build one phone call to someone you love at a time. It doesn’t have to be bigger than that. And so I’m always filled up by taking those times, even last night, Valentine’s Day dinner, you don’t take that for granted anymore. And those those moments are ones that build a legacy of making time for the people I love. And I’m super grateful for that lesson, because it’s changed the way I’d spend my time.

Victoria Volk 58:35
Has it changed your camps that you nurture and bring together for widows? How have they changed over the years?

Michele Neff Hernandez 58:44
Where they are always in? Yeah, I think the thing, the most thing, particular about my own grief, I’m in a different different space now. Right from I started this journey, having nothing to do with nonprofit knowing nothing about what I was doing. And now we’re going to nonprofit professional for 14 years. And that experience alone rate has shifted some of how we do what we do. But I think the key thing about my own experience is that we make sure that people don’t feel like they have to outgrow our programs. And by that I mean if we go back to that example of someone who’s newly widowed, let’s say five years into their experience, they have a new person in their life. And if they’ve disconnected from their widowed community, that learning how to love somebody, again, and finding a balance between the lobby pad for your person who died and the love you have for the person who’s alive and how you especially because if you marry them, then husband or wife is the same word, right? Like I have another husband and so how do you how do you balance that? If you’ve lost connection with your community, who else is going to answer those questions for you? The people that you need are the people living that experience and that isn’t ongoing. We talked about my daughter’s wedding like now Knowing that there are other widowed people who’ve made their way through weddings, what did they do to honor that person? I mean, I had this deep reservoir of experiences and people and connections that will serve me for the rest of my life. And I know that that’s true for them, too. And so what I have learned is that I’m going to need my widow community forever, because they are a part of my witness, they are part of my evolution, they are part of each other’s evolution. And so we build programs that people don’t have to outgrow. And that doesn’t mean that you stay stuck in your brain. That doesn’t mean that you’re not moving through the natural ebb and flow of life. In fact, it supports the natural ebb and flow of life by having an ongoing community who has witnessed the depth of your grief has walked with you through the healing process, and has come to be the people you rely on when secondary losses come up. When a new experience comes into your life that requires you to kind of dig into that grief again and figure out how does the grief play into what I’m living right now. So the biggest message for me has been building a community. That’s a lifelong community of friends. And I’m super, super grateful for that.

Victoria Volk 1:01:15
So what happens if someone comes to experience camp widowhood? Like what what happens,

Michele Neff Hernandez 1:01:22
but I always tell people about the blend of the conference and retreat and or high school reunion. Because our programs 40 40% of every program is returned campers. And so those return campers are coming. Why? Because they’re coming to this event to experience new information for where they are in their grief process right now, one, and oftentimes to come back to visit their friends and reconnect with the people who, like I said, have witnessed the depth of their grief, they just become such good touch points for each other. So when you would come to camp widow, there are a selection of workshops that are all designed to address where you are in your way of life. So we call newly widowed to be a year or less recently widowed to be one year to three years middle widowed, which is kind of like the growing years of three to five years where this life is you’re starting to put it together. You’re you’ve lived it for a little while, but then often the question comes, but what do I want? What do I want more of, and that can be more of a long term conversation or a long term thought process, and then seasoned whatever we call five years and more. Those are people who have been living or widowed life who have oftentimes, re partnered have changed childhoods have done a lot of different things to to adapt to the death of the person that they grieve. And so all we we plan workshops to address every one of those areas. And so when you come to camp, you have the opportunity to interact and workshop you have entered the opportunity to interact in this group of people. So we divide people into workshops, where all of our newly wounded people are together, all of each of those other groups are together so that they can address the things that are unique to that experience. And then their social activities, people. Prior to COVID, we had a huge dance floor. So we’re sort of adapting to what this next this next version of Camp looks like. But people would often say to me, one year we had a ballroom and they said, Well, I mean, we could add larger dancer, but I can’t imagine that that would be what you would need. I was like, Oh yeah, double the dance floor. Because you can be with people who understand that dancing, and smiling and laughing doesn’t mean you’re over it. It just means that for this moment, you’re allowing the lightness of being with people who have made you feel free for a minute to be the primary experience you’re having at the time. And so our dance floor typically is a rocking dance floor of people who are so grateful for the relief of movement and music and camaraderie that speaks to a life affirming board. So that’s that’s the template experience in a nutshell. And it lasts from Friday to Sunday. So we start first thing in the morning on Friday, and we go all the way through midday on Sunday. And then those connections that people make, they tend to make lifelong friends. We have many people who have with one particular group of whatever people who met at their first Kimbo they all were together, I think it’s probably been seven years, they’ve had that same tech stream for seven years. So they continue to be the people who something great happens. I tell my seven my text stream something horrible is happening. I tell my extreme I need a little bit of support. I’m missing my person for some unique reason or I’m missing my person just because I miss my person that all of that can go into that space and imagine the power of that. If you have that for a year upon year upon year and each one of them has gone through their own evolution of the variety of things and they celebrate it together. Where is this located? We have four different location one is in Tampa. That one’s coming up in March, March is Tampa, Florida. July is Cindy in California, August will be Brisbane, Australia and November will be Ontario, Canada. And then we’ll have one, and we call them pop up camps. So pop up camp is just a one day camp where we kind of coalesce as much of the three days into one as we can. And this allows us to kind of move around the country a little bit, we’ll had one of those in Denver, Colorado.

Victoria Volk 1:05:25
It’s amazing. Do you see it’s new this this coming year for it?

Michele Neff Hernandez 1:05:32
The popups are relatively new, we started them before pandemic, having the opportunity to move around a little bit is going to be in for us. At our Australia camp is also a new camp. We’ve only done it once before we partner with another organization in Australia. And it’s been an incredible thing to watch what I imagined in and did the first time with my whole family as volunteers because they didn’t have any volunteers, they’ll also be working in a different country is really incredible. We’ve got a great partnership in Toronto, we just incorporated actually. So sorting spirits, Canada, is the organization that runs the Toronto event, it’s just been kind of amazing to watch it grow. And we’re very focused on making sure that we continue to provide quality programming we’ve had, as you can imagine an increase in demand, in part because of pandemic in part because of the CNN Heroes exposure. And so there’s been kind of a lot of people coming in. So we’re we’re really focused on making sure we take care of you.

Victoria Volk 1:06:30
And your book, are you on a book tour this year?

Michele Neff Hernandez 1:06:32
And my book, I am on a book tour this year, I actually have it doesn’t the first time I button, hold it up so that people can can see and see it in my hand. So yeah, I’m really excited about the book, the book tour will be from March to November, I’ll be touring all over the US, Australia and Canada as well. And, of course, including books at Campo. And it’s it’s such a full circle place I started initially, I thought I would write a book. And what I used to tell people was the book that I thought I would write in my first year of would have became a community. And it was really clear that I was really supposed to just focus on the community. And I, I really thought that meant just the book would come or it wouldn’t, and I didn’t worry about it too much. But then over the years, learning more and more about how I could bring to grieving people and anyone who has experienced a traumatic events, to help with some just practical steps towards rediscovering yourself and allowing yourself to be broken so that their space for healing. And so that’s really what the book is focused on. Of course, it’s not a book I could possibly have written a year into my widowhood. So I feel like the timing is is as it was always supposed to be. And I’m eager to get the message of the book into people who are struggling to accept this new version of themselves, because I see such potential there. And I really wish for people to be able to give themselves the kind of grace they would give to someone they love. So that’s, that’s the hope of the book to get that message out stance.

Victoria Volk 1:08:10
That’s my hope with this podcast to the people

Michele Neff Hernandez 1:08:13
That weren’t a perfect pairing,

Victoria Volk 1:08:16
Can see that there is another side? Yeah, allow yourself to get there.

Michele Neff Hernandez 1:08:21
Yeah, and be kind in the process.

Victoria Volk 1:08:24
And I feel like those really sad associations for yourself?

Michele Neff Hernandez 1:08:27
Yeah, and the thing is that we are, it’s so easy to fall into the trap of negative self talk. And you’ll hear a lot about that. And when people are struggling with self esteem, what we sometimes don’t translate is that reef consistently has an impact on self esteem. And so with that negative self talk takes a totally different tone. When you’re just saying too tired, I’m lazy, I can’t get off the couch, and it doesn’t acknowledge how much of your body, heart, mind, spirit are all involved in trying to figure out how to reconstruct your life without this criminal, this person living, to be able to address that negative self talk and to be able to say, be kind to yourself, like that’s the biggest that’s the biggest message for every griever be kind to yourself be kind as kind to yourself as possible.

Victoria Volk 1:09:24
I just had a thought too. And in especially in I think well again, depending on your background and in how you were raised and things like that. But when we put so much of our if we look so much at someone else right? To fill, what it is within us that we never filled ourselves and then that person is gone. That’s it deconstructs everything we thought everything and about ourselves and about my worthiness and everything. And so I think that’s would you agree that that’s why partly it’s so difficult because you really, it’s almost a reconstruction of yourself, knowing who you were before you put so much of of yourself into this other person? Well,

Michele Neff Hernandez 1:10:11
I think I absolutely agree, first of all, but I think it’s even, it’s even more complicated in that one of the things that I wrote about was, how surprised I was that my sense of self was shattered by my husband’s death, because remembering I had been divorced. And so in my first marriage, I was very young. And we were growing up together and having three babies. And so we were at when we divorced, I was like, I need to be independent, and on my own. And one of the things that was struggled for Phil and I was my, like, Uber independence, like I was super independent, I was not no interdependence, none. And so we struggled to find a balance there. And so the last thing I thought, what happened when he died, like I was so independent, how in the world did my entire self image shatter when he died? And I think it’s because we see ourselves in the world that I think this is true for every creeper in and as you said, particularly true when the person who died is your partner, is that we live in a world where they’re alive. And we are a person in that world when they’re alive. And when they die, we have to ask ourselves, who am I in his world now that they’re dead? And that is a question every guru has to answer. Right? And so I think often about the experience of the death of a child, who am I as a mother, when my child died? Right, so that we have we have to answer, we have to be willing to ask those questions in order and not assume that because we need to ask the question, there’s something wrong with us, right? Because that’s a natural part of living in relationship is we impact each other. And whether or not we want to recognize our interdependence, there is an interdependence, that is a natural part of having someone be a part of your life. And the more the larger the part of the life that they have, the more difficult it is to redefine yourself after they die. And so again, those those that redefinition, it may seem similar. It’s just that you have to be willing to ask question, I was shocked that I could not believe that my sense itself was impacted. I would have never believed you. If you had told me that before he died, I would be like, well, I know that I’ll grieve. I would tell I’d be terribly sad. But I know who I am. After he died, I was like, Oh, am I like this? It’s a disaster. I felt like it was a disaster. But what I didn’t know is that it’s totally normal. Of course, of course you do. And so normalizing that experience, I think it’s so important, because then we get to just ask the question. So is it the right time for me to run a marathon? Or isn’t it? That’s not a judgment call? That’s not a my a good person. That’s just, I am now living in a different situation. Does this new version of me need this? And the answer might have been Yes. Maybe I didn’t need it. In this case, it was no. And there’s so many other things that we do that we asked our jobs. So many people when they’ve had a deep grief experience, look around them and think I don’t care about this anymore. Hobbies, where we go to eat, what our room looks like, if we had the same house, all of these can be up for question, which for some people that will be uncomfortable. For other people, it will be freeing partly depends on our life experience. But whether or not it’s freeing or terrifying, still, asking questions allows us to consider if something different might serve this person we are today better. It’s all normal and natural. Totally normal. And and it’s just so sad that it’s unexpected. Because it feels it felt to me like a punishment. I felt like I was being punished. If I did all that work to learn who I was, Are you telling me I have to do that.

I was just so surprised by it. And also just depressed by it. I didn’t want to do it again. And so, but what I discovered through the process of it was that it allowed me to create a life that better fit who I am. Until you can recognize that there are differences. You don’t know how to build something for the person you are in order to build something valuable for who you are now have to be able to look at the things that have changed, grieve what you’ve lost, acknowledge that you’re different grieve what you’ve lost. And then you can start kind of asking questions. What do I like? What do I not like and and then begin building from there. So it’s insightful. Your comment is so insightful in that it is the Forget when it’s a partner. But I think it’s also so much a part of any grief experience. And it’s unexpected in many ways, because we think we know who we are. And we do well, to the extent that we do, right. But you could say we do in the situation that we are in, but when the situation changes, it’s worth asking, what about me has changed as the situation has shifted?

Victoria Volk 1:15:27
So good, so good. Is there anything else that you would like to share?

Michele Neff Hernandez 1:15:31
I do really want to just point out that the book, while it is the foundation of it, of course, this grief is really intended for anyone who’s lived through something traumatic, because the the traumatic experiences we live, you mentioned a toxic relationship that had had been traumatic those changes, too. And if we can allow ourselves to kind of consider how we’ve been changed and integrate what we know about ourselves now, it’s so valuable for us as we shape our future, and utilize those tools in our present to create something that matters. And so the book, it does have a foundation of grief. But it was intended always for anybody who’s lived through a traumatic experience and then feel like we all had through pandemic then impacted in in unique ways for everything from a person died during a pandemic. And of course, the biggest possible shift all the way down to I decided I really actually love working from home, I never want to go back. So we’ve been shifting all of us and they’re in the array of, of conversation in between. They think it’s, it’s something if we can acknowledge that we’ve been changed, and we don’t make getting back to normal the goal, then we’re better able to craft us what’s happened to craft something valuable. So my hope is that people will be able to see not only, even if what they come to the book for is a grief experience, they see not only that great experience, but the other experiences in their lives and be able to begin to integrate some of what they’ve learned through that to be able to craft a really mean like today.

Victoria Volk 1:17:08
Is an invitation to pivot

Michele Neff Hernandez 1:17:10
Definitely is an invitation to connect that’s perfectly said.

Victoria Volk 1:17:14
Where can people reach you if you’d like to connect, learn more.

Michele Neff Hernandez 1:17:18
Love for them to join me on my website. It’s Michelle, I spell that with one L thanks to my mother. So Michelle Neff, Hernandez with a z.com. And you can find information for sworn spirits there. It’s for saying soaring spirits dot o RG. So it’s soaring and spirits as a plural dot o RG, you’ll find all the soaring spirits programming there. And then like I said, You can reach me on my website, the book is there. So you’ll have links to purchase a book if you’d like to do that, and can also contact me there.

Victoria Volk 1:17:47
And I will put all the links in the show notes. Awesome. Appreciate it. And thank you so much for your time. I know you’re in the midst of an exciting time and you’re feeling great. Yeah, it was this has been a treat. So thank you so much.

Michele Neff Hernandez 1:18:03
I appreciate being invited. And I love what you’re doing. And so these ongoing conversations, I feel like this is the way that people have the opportunity to understand that they can be changed is by hearing exactly this. And I should also say listening to a podcast Community Councils community to that doesn’t have to necessarily be a one on one interaction. So in whatever ways you can expand your circle. Those are the ways that you get to access those kinds of cones that we talked about on the road.

Victoria Volk 1:18:32
So thank you. And remember, when you unleash your heart, you unleash your life. Much love. From my heart to yours. Thank you for listening. If you liked this episode, please share it because sharing is caring. And until next time, give and share compassion by being hurt with yours. And if you’re hurting know that what you’re feeling is normal and natural. Much love my friend.

Ep 106 | Elizabeth Catignani

Elizabeth Catignani | My Shattered Heart: Experiencing Stillbirth & Being a Widow at 27

 

SHOW NOTES SUMMARY:

As a mother, carrying and growing another human in the womb for nine months, it is expected that a healthy child will be born. However, for Elizabeth, that is not what happened. Her world was shattered when she realized that she wouldn’t be a new mom overflowing with joy. Rather, she would become a mother with grieving empty arms.

After her firstborn died, Elizabeth and her husband were fortunate to have a healthy daughter. Yet again, her joy was cut short when their daughter was only about 5 months old when her husband was deployed in the Special Forces in the Army.

Her husband owed the military one last deployment and within six weeks of that deployment to Afghanistan,  Elizabeth received a call that no military spouse ever wants to receive.  Her husband was in Germany with injuries sustained while on deployment. She flew to Germany to be with him, which would turn out to be for his final breaths.

All of that loss within an 18-month period would be the catalyst for her to look for and ultimately create a space for herself and other grieving young widows.

Through a lot of ongoing healing and inner work, Elizabeth did find love again and has a family with so much love to give to. But, it wasn’t a quick, bounce-right-back process either, and being a young widow, who was also still grieving a son, would pose its own challenges, too.

There’s truly no way to skirt around grief. You have to feel it.

RESOURCES:

CONNECT:

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If you or anyone you know is struggling with grief, free resources are available HERE.

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Victoria Volk 0:08
This is Victoria of Theunleashedheart.com and you’re listening to grieving voices, a podcast for hurting hearts who desire to be heard. Or anyone who wants to learn how to better support loved ones experiencing loss. As a 30-plus year graver and advanced Grief Recovery methods specialist. I know how badly the conversation around grief needs to change. Through this podcast, I aim to educate gravers and non grievers alike, spread hope and inspire compassion toward those hurting. Lastly, by providing my heart with ears and this platform, Grievers had the opportunity to share their wisdom and stories of loss and resiliency. How about we talk about grief like we talk about the weather? Let’s get started.

Victoria Volk 0:56
Thank you for tuning in to grieving voices today is another fantastic conversation with my guest, Elizabeth Catan, Yanni, and she is a certified creative grief coach, health coach and author of creative grieving a hip chicks path from lost hope. After several unexpected losses at the age of 27. She has passionately dedicated her life to helping others experience healing, joy and purpose after loss. She established her creative wellness, a blog and online platform as a supportive space for women to become empowered on their journey and healing and wellness from grief to hope. She believes in the transformative power of the human journey. In her sacred stories. They’re sharing her own story, she hopes to light the way for others seeking a healthy, heart centered and fulfilling life. Thank you for being here. And I’m on that train with you. Thank you so much for having me today. It’s great to be here. Absolutely. First of all, people often find themselves doing work that they didn’t project themselves doing, like ever, like you never, you can plan your life, five years, 10 years ahead, or you have goals in mind. But life always throws wrenches and surprises and sometimes even gives you things and gifts and experiences that are beyond your expectation or wildest dreams. But sometimes we have experiences that really shape and change us and bring us to a new path. And that’s where you have found yourself. And so let’s start with what your goals in life were before these losses that you bring you to grieving voices. What was your life like before

Elizabeth Catignani 2:40
I had been a teacher prior to my losses. And I was actually, in the process of getting my Master’s in Counseling I had known I’d always wanted to work particularly with women just around mental health issues. And so it’s interesting how I was already a little bit torn on this path of wanting to help others and work with women through life transitions and healing. And so I find it interesting that it’s happened shortly, I was just finishing up my first year of my masters with this program. And all of a sudden, shortly after that is when my losses happen and which completely turned my life upside down. Prior to that, I’d had a pretty typical, go through school, meet my husband get married. And so up until I was about 25. I hadn’t really understood or known real trauma in my life.

Victoria Volk 3:45
What changed for?

Elizabeth Catignani 3:46
When I was having my firstborn, I had gone through a very normal, healthy nine-month pregnancy. And I was 2526. And on my son’s due date, after about a 14-hour labor. He died from a court accident and that was absolutely life-shattering. And it was just the biggest shock upheaval in my life. And my husband and I really had to find a way together to grieve that loss. And we were working through that process a little bit. I had started going to support groups and counseling. And he had his own way of breathing, which he was in the military. He had a little different take on feelings and talking about them a lot. And so I found my own outlets to cope with my grief. And thankfully we were fortunate to have a healthy daughter after we lost her son. However, when she was only about five months old, he was deployed. He was in the Special Forces in the army and he owed the military one last deployment andonly about six weeks in, he was serving in Afghanistan, I got a call that he had been injured. And shortly after that I was flown over to Germany. It was something he couldn’t recover from. He had been killed on a mission. And I was there with him for his last moments, but I had to leave our baby girl back in the States with my family. And I couldn’t believe yet again. I was just like, What are the odds? What is wrong with me? Why me within an 18 month period, losing both a son and then my husband who had been my rock, through grieving our son, we had that shared grief, and then to lose that person who could understand that loss better than anyone. I was like how to like read both of these together, it was impossible. That was about I was 27. So that’s almost about 13 years ago now. And it’s so sensitive, I’ve just been on this crazy, difficult, beautiful, intense, amazing journey that only grief can show you really. And shortly after his death, I moved to Charlotte, North Carolina, and I decided that I wanted to really work with other women who were grieving, and meet other women who are grieving because I felt so alone, different than everyone else around me. And I didn’t know how to move forward, I did, the first thing I could was to think I need to connect with other people who can understand I sought out some support groups had a hard time finding one that I really connected with. So I actually started my own on meetup.com, when I think it was starting to become popular around then. And I was called Soul widows, particularly for young widows, because a lot of groups out there were not really geared towards younger people. So I began meeting amazing women, I just was like, wow, there are other young women out there like me that have actually lost their spouse or their partner. And I formed new friendships and relationships that way. And it was really a stepping stone to starting to live again a little bit and pick myself up off the ground, just trying to get through that first year, while also trying to raise our daughter on my own. Thankfully, I had family to help. But it was just very daunting, very overwhelming. And it’s been teaching me a lot throughout my life. Those experiences.

Victoria Volk 7:36
Have you fell in love again?

Elizabeth Catignani 7:38
I have incredible love. Yes, I’ve been happily married for about six and a half years now we’re married, we have a beautiful five year old daughter as well, my oldest is now 13. I never would have imagined over a decade ago having the life I do now having been able to find love and create the family that I always dreamed about. So at one point, it seemed literally like it would never be possible. Or I could never risk getting hurt again, or opening my heart again. So I’m definitely in a place that I am extremely grateful for. But it was a lot of hard work to get here. It was a lot of facing the pain and the heartache and the realities and just digging deep because there’s truly no way to

Elizabeth Catignani 8:27
Skirt around grief, you have to feel it, you have to live it. And it’s something that I know like with our society, particularly, it’s not a comfortable thing. And it’s not easy for people to know what to say or how to support your how to talk about it with other people. And so I think it’s so important in those early years to really find those that you can trust, find a community find someone that you can really just pour your heart out to. And knowing that they’ll trust it, even treat it with honor, respect, and because life is certainly not all fun and joy. And as much as we love that. So I think it’s good to have these conversations, because I feel like so many people deserve them and deserve to know that they’re not alone. And that there is support and that there are other people that have suffered and found their way out. We need those stories, because otherwise, it feels very hopeless. So I’ve tried to through the work that I’ve done share like this is this was my experience. This was my hardship. And there is another side that you keep going and at one point shortly after I started my support group I had co founded it was called the respite. It was a Center for Grief and hope, a local nonprofit with a couple of other women. And that was also just such a profound experience for me. And we ran that for about four years. And we helped tons of women that came through our doors. We provided counseling services and support groups and it was just such an uplifting experience to feel like I could do

Elizabeth Catignani 10:00
Take my story and turn it into something beautiful by giving to others like being of service was such a huge piece to just finding purpose again, and feeling value and feeling like worthy just even if it was helping one or two people, here and there, it just filled up my heart and I felt, okay, I can still create some beauty and some life and reconnect with myself. Because it takes a while to recover parts of yourself after a loss, you might feel like you’ve lost yourself completely sometimes. And so being able to just reach out and connect with other people and help helped me with my kind of get some identity back as well.

Victoria Volk 10:43
What do you think you discovered about yourself? Through those years of healing that you didn’t maybe believe about yourself before.

Elizabeth Catignani 10:54
I think I certainly realize that how capable I was of just allowing vulnerability, and letting that be my strength. And I would always kind of before my losses really looked to others to help me through certain things. And I was the youngest child in my family. So I always felt had other people to let that die in the way and show me the way. And as I went through this process and learned more about myself, I realized I have a lot more strength and wisdom than I think I gave myself credit for just listening to my heart and trusting that I would get the support I need. If I reached out for it, I became a little more assertive a little more less afraid in certain ways, realizing how short life is and how precious every moment that we have it goes so quickly, it just flies by so fast. And I think I wouldn’t have had the guts before to go after certain things. I don’t think I would have had the guts to go after a nonprofit or to meet to start a group for women. I hadn’t really seen myself in a leadership role before. And so suddenly, I just had this fire in me of I think it was just all the built up feelings and emotions. What’s the grief, you have all of it, it’s no particular order, you have the anger and the sadness. And it’s just such a roller coaster. And I think I just had so much bottled up, I just needed to do something creative with it. And so I really just follow that creative energy. And I was like I need to build, I need to do something with this. Otherwise, I’m just gonna implode, being able to channel that and just something that could hopefully empower other people on their path. That just became such a light for me. And it just filled me with a lot of hope. And it brought me a lot of peace and joy, especially through those earlier years. And it brings me a lot of deep peace today to still be able to help in any way I can.

Victoria Volk 12:55
What do you think is different from you or in other Grievers that you’ve met along the way? Because I think to myself, like how can there be some people, some Grievers who experience really incredible, deeply painful losses, and they end up in this really dark hole for decades. And then you have this other person who seems to from the outside, like bounce back and not bounce back? Because I hate that and he referring it to that way. But like you said, there’s like a shift. There’s like the light switch goes on in your brain, and you just choose differently for yourself. And so what do you think was it for you, that shifted in your mindset? Because really, it is a mindset to go from probably not being able to get out of bed most days to getting out of bed?

Elizabeth Catignani 13:54
Yeah, I did. I will say I did spend at least the first six weeks after my husband died in that it was painful to wake up. I just wanted to be sleeping all the time to escape the feelings. And it was a very gradual process. So it’s not like I just bounced up in a few months. It was like, Oh, I’m gonna go do all this stuff. And I’ve got all this energy. It was absolutely nothing like that. It started out slow. I remember I found a meeting group online for young widows. It was like a safe within my own little space. And I was able to still connect with others online and see what their experiences were their feelings. And that was my way of inching back into the world a little bit. And I took my daughter I wouldn’t be like seven months old. I would take her out on a walk at least a few times a week. That was my getting out into the world and I would be relieved if I didn’t run into a single person. As I went on these walks, and I just wanted to be in nature. I wanted to be around just the trees and the animals. Doesn’t feel like I could just exist and not have to worry about any sort of judgment, or what anyone else might think of me, I didn’t want to even see other families being happy, I felt like I really needed to protect myself. And so it was a very gradual process. I’ve slowly started after that doing one on one therapy. And I probably went through another six months of that before I felt any sort of energy toward even creating something myself with the support group. But I really think it’s such an individual process. And I think that for me, at least, the personal the one on one therapy, I think, was really what helped me the most initially, to not just want to close off from the world and shut myself away, and retreat into the darkness, because I did have someone challenging me to stay living to stay in the life helping me feel and remind me that I have purpose, and that I’m still a whole person, despite my losses. And I needed to have that being a constant reminder. Because if you don’t have someone rooting for you, or allowing you to process, I think it’s a lot harder to get out of that state of just complete defeat. And just feeling like allowing the last almost does fully encompass you and to not see the other side to get into that darkness. I think finding that support early. I remember my sister found me and my therapist because I wasn’t looking, I was in bed. And she found her for me, she said, I think you should go try to see this woman and see what happens. And I was like, Okay, you can drive me because I was so overwhelmed. I couldn’t even drive myself, like says at the beginning. So I literally had my sister take me to my counseling appointments to start with. So having that push was very helpful, necessary early on. And eventually, that evolved into the support groups and meeting other people that I’ve met women in the support groups I ran, there were some widows that would come in, and they would say my husband died five years ago. And I’m just now ready to talk about it. I’m just now ready to share my story. And they hadn’t felt that they had a safe space to do that before that. So it’s really a such an individual process. I know they all say the first year is foggy. And then second year is this, but it’s very personal. It depends on a lot of circumstances and what kind of support you have around you. And I was so grateful that the women had showed up that had waited a long time because they found a lot of healing. After just having all this stuff bottled up for so long. There’s no right or wrong way to grieve. There’s no handbook, that can say this is where you should be on this date, or this is how you should feel at this point. And I think it’s just so important to give ourselves grace, for that, at some point, reach out for help, especially if you do feel like you’re getting into too much into the darkness. There are amazing resources out there.

Victoria Volk 18:04
To piggyback on what you said, because I took me over 30 years. So that’s my personal experience, but anybody that I’ve ever worked with, man, I wish I would have done this sooner. Because if you really think about it’s never too late, and it’s never too soon to like work through your grief. And now although I completely 100% agree there is no timeline, and time just passes. It’s what you do in that time. What I think about is, the opportunities, the life that you miss, when you spend your days in fear of what going to that place will be like, and I think that’s what keeps people stuck is the fear of what that’s going to feel like, what’s gonna happen after that. Okay, I work through all this stuff. And then what do I think that’s really what keeps people stuck in their grief?

Elizabeth Catignani 18:42
I totally agree with that. I absolutely agree with that. And I still certainly struggle with anxiety to this day, I always have fears that something will happen to my loved ones to my children, it’s very easy to go to those places in my mind. And so it’s really been a lot of personal work with a lot of almost when I find myself going, they’re going to tools that I’ve learned whether it’s an affirmation or breathing, or maybe I have to make a phone call, I still have a life coach to this day that I absolutely adore. And I speak to her once a week. And just getting back to a place that feels safe and grounded. My affirmation for this year was I am safe, and especially with this pandemic we’ve had going on that, of course adds another layer to it and there’s been so much loss over the past few years there are so much suffering right now. And it’s easy to get caught up in that energy and to feel overwhelmed. And on top of that, so many of us have been isolated. I’ve been basically a stay at home mom, the last couple years during this whole thing with my kids and not seeing many people, there was a time, I wasn’t seeing much family. And that can really just heighten that anxiety and that fear. And so being a space around me that I feel comfortable in having books that I can turn to, that are soothing, having podcasts that I can listen to, to support me getting out and taking a long walk, or getting some form of movement and moving the body. There’s just so many incredible ways we can channel that fear and channel that anxiety so that it doesn’t overwhelm and take over. So that’s something that I have certainly spent years working through after my losses, and it still pops up very frequently. And I’m always looking at new ways to manage it. And there’s nothing wrong with that you all have to find stay creative with our resources, and maybe something will work for a little while. And then you’ll find Okay, doesn’t work for me anymore. So I need to try something else. And so just being open to trying different ways, because yeah, especially after having the worst happen, it’s very easy to just assume like, that’s always going to be the situation to go there. So it’s a lot of self care, a lot of checking in pretty much daily with yourself and saying, What do I need right now? What can I do right now for myself?

Victoria Volk 21:34
I think with grief, it’s really about getting back to the basics. Just get that in people. When I mentioned meditation, sometimes it’s some guy. There’s another one that says meditation.

Victoria Volk 21:46
But just the basic back when, before the internet before, all the stuff that we have in our lives, people would garden, and they would garden for hours, or they would be out in the fields or they would be laboring, and then they would come they worked hard. And then they rested. And we just have lost the basics of balance in our lives. And I’ve really had to learn that myself. But yeah, just what does balance look like for me today? Looking at your calendar and looking at those special days coming up? Or the anniversaries? And how can I balance what I know is coming emotionally? How can I balance that with self care,

Elizabeth Catignani 21:52
I think doesn’t have to be a big complicated situation. I think especially people that are grieving, I feel like we put so much pressure on ourselves to do things perfectly and like to honor an anniversary perfectly, or it can be very simple. It can be so simple. Like every year for me anyway, when you mentioned anniversaries, I was thinking about how every year is so very different in the way that I experience it and the feelings that come up. And there are some years where I don’t feel like I need to make a big announcement about it. I don’t need to go on social media and say, this big monologue about my memories or my feelings. And there’s some times when I just really want to, to honor it personally and not feel like I have to go blasting it out there. And I feel like some of the women I’ve met, they feel like they have to honor them a certain way. Or some people love that some people want to do the balloon release, or they go to the memorial site, or they write poetry and their honor, it’s whatever serves you, it’s whatever you need to help you through that day. And you can honor your loved one in a way that feels right for you. And I used to feel so much pressure and the anticipation would just overwhelm me. And I realized, why am I doing this, I don’t need to prove anything to anyone, I don’t need to put on the show for anybody. And so this past year, some of the anniversaries I passed through, they were just very private for me. And that just felt energetically the best for me, I would go on a walk or I’d just talk to them and say a few words and feel their energy. And that was what felt right at that time. So I do think that we can easily overcomplicate grief and what we think we need to do, or oh, this meditation is supposed to that so I have to go do that meditation or it just doesn’t feel right or you’re feeling like you’re forcing it, then it’s probably not what you need, then maybe you just need a relaxing bath or you need a nap. Because you’re exhausted grieving is exhausting. So I think we all need to give ourselves a little grace with, like you said, just going back to some basics. You have a green thumb spending some time in your yard and it doesn’t have to be this fancy thing

Victoria Volk 24:47
For some people gardening like flowers, or having a flower garden nurturing something to full bloom. That can be very meditative. It can be a meditative experience for someone to So meditation is now don’t just sit up. It doesn’t have to be so structured. Like, there’s so many different ways to do it. And there’s no right or wrong way either. And yeah, if you have trouble turning off the monkey brain, it’s a practice. It’s not going to happen the first time and then you think you’re doing it wrong. And then you’re judging yourself Self shaming yourself, and then you don’t do it. Again. It’s a practice, just like everything is a practice, self care is a practice committing to it as a practice.

Elizabeth Catignani 25:27
Yes, I love what you’re saying, though, one of my favorite sayings. It’s a grief course that I took, one of the instructors said, it’s a practice, not a perfect. And always repeat that to myself, when I feel like I’m not doing something correctly, or I’m not treating this, I’m just like, okay, just chill. It’s a practice, not, nothing’s perfect.

Victoria Volk 25:48
I think, here’s a thought that came to me it was listening to you is that it sounds like to me that you had some really clear boundaries for yourself. And what came to my mind as well as being a young widow, I would imagine that pressure that you felt, whether externally or internally, that you felt being a young widow, I can imagine that you would have to feel like you have to have this extravagant show being young, it was a young loss and honoring that, and he’s was the father of your child. And if somehow, like just that self judgment that we feel whether it’s true or not, you still might feel that and I just wanted to highlight the fact that you had very clear boundaries. And so what would you suggest to those who may be really struggling with that? And how to maybe implement those boundaries with others? Because that can be really tricky.

Elizabeth Catignani 26:43
Yeah. In the beginning, it definitely took me a while to learn how to establish those boundaries, because especially with being that he had been in the military, and the military is just one big community. And there was an online Facebook page set up in his honor. And just a lot of people wanted to grieve together, honor him together. And while that was beautiful, it could also be very overwhelming for me, because I felt like I had a lot of eyes on me, how is she handling this? What is she doing next? Like? How do we continue to honor and it was just very much on some levels too much for me, because I was just like, I really need time to process this on my own. Instead of handling and hearing about everyone else’s grief. On top of just trying to deal with my own Did you feel like you were expected to show up for that stuff? Yeah, there were ceremonies to attend. And every year, there’s ceremonies that are offered for us to attend. And in the very early stages, I showed up to these and I was just going to complete days, I was just out of body experience, going to some memorial services. And it was just almost like attending funeral after funeral in my mind. And I was just like, I can’t keep reliving this over and over again, it was just almost debilitating to a degree that at some point decided I needed to take a little bit of a step back and not push myself that I have to show up at all these events. And while I’m grateful that they are happening, and that he continues to be remembered and honored, I also have to remember to respect where I’m at too. And know that because I can tell at this point, like in my grief, how I’m going to handle something. And so sometimes needing to put up boundaries where you’re like, Okay, I appreciate the invite, I need time for my own reflection right now and my own self care. So not always feeling like you have to be present at everything, which of course that comes with a dose of guilt easily. But it also just comes down to your own sanity, and just having to give yourself grace to grieve in the way you need to because no one else can fully understand your position and what you’re going through. And what’s your feeling when my late husband died, we had a private funeral service here locally for him. And it was another separate service in his home state. And I was so weak because I had traveled to Germany to be with him. And I had just gotten back. And I still had my six month old daughter waiting for me to take care of her and I was sick and weak. And I remember having to make that decision that I cannot travel to the other state to do both services. So I asked them to have one for me here so that I could have a proper memorial for him here. And because I just was in no state to keep going and just having to make those decisions was very hard. I worried about what people would think very much and down the road. There were times when I had to speak up and tell people be more vocal about what my boundaries were, which was not comfortable. I like to be a mediator. I like to keep people and I have a history of people pleasing. And so having to step out of that people pleasing role and and say I’m not comfortable with this or that or they’re would

Elizabeth Catignani 30:00
Even some friends that I lost along the way, because they didn’t really know how to be there, and they felt awkward and uncomfortable. And somehow those relationships just fizzled out. And normally, I wouldn’t have probably let that happen. But I just knew I’m like, I just need the right people around me right now. And so that might mean losing some people. So that was an interesting experience to just having to accept that not everyone’s going to be able to stand by you. But those that can. They’re incredible. And I have amazing friendships that I made. After those losses. There’s the people that can stand with you and that are gold.

Victoria Volk 30:37
Yeah, they say you’re a son of the five people, you surround yourself with happening with grief, it’s especially important to really refine your circle around, you don’t feel better. After you leave the presence of those people. Maybe they’re not right for you at this time. Maybe they will be later and people fade in and fade out. And that’s okay. One aspect too, I hadn’t really given much thought to until our conversation. I’m a veteran too. But I wouldn’t have imagined I never gave much thought to the fact that if you lose a spouse in the military, you have your family, your spouse’s family, but yeah, then you do have this extended military family and it is a Brotherhood or sisterhood. And yeah, I just never really thought much about that. And how that could influence maybe be more added stress of what you just described. Thank you for your sacrifices as a spouse, to someone in the military. I know the family sacrifices, too. But there’s so much goodness in what you just shared. You’ve shared the challenges, you’ve shared a lot of the things that helped you in the boundaries and things that helped you shift your perspective gave a lot of tips, was there any advice that you personally received from someone that I think you even said that to there was that quote, you mentioned practice, not a perfect.

Elizabeth Catignani 31:26
Yeah. And then also early on, I was really fortunate to meet this. She was my first friend that was also widow, she had lost her husband, probably, I think it was just a few months before mine had died. So we were, we were around the same time period as far as that, but she just really gave me permission to be where I was, with what I was feeling, she reminded me to, if I just needed someone there with me, and they didn’t have to say anything, if I just needed a presence that she would do that for me, I can remember her showing up to my door one day with a big chocolate milkshake. And no plans, I am just here, just letting you know. And she would sit with me and just if I needed to talk, she would just let me talk. And it was just such a nice companionship to have because it was just reminding me that where I was okay. And to have just that feeling of support, even if that person didn’t have to say anything being there. Because you know, after that first influx of people calling or cards or just that initial reaction to the loss, it can feel like all of a sudden people just have moved on with their lives and forgotten. And so just having someone there for after that period of time was just incredibly therapeutic to know that even though maybe the rest of everyone else is moving forward, I’m still dealing with this. And it’s okay. And I’m allowed to be in that space still. And so just giving ourselves permission to do our journey, it’s going to be messy. It’s going to be interesting, it’s going to be up and down. But it’s each our own journey, and it should be honored.

Victoria Volk 33:42
And we all agree that 100% There’s no half. And I’m curious, what was the difference or similarities too between the grief that you felt after the loss of your son versus the loss of your husband?

Elizabeth Catignani 33:56
I don’t think there was a huge difference other than it just felt like an additional emptiness. Because when that person leaves that just the whole world feels empty.

Elizabeth Catignani 34:05
And I can just recall that sense of just complete loneliness and emptiness because having had that shared grief with my spouse, and then suddenly not even having him to talk to about the death of our son anymore to have that one person that could really connect with you on that intimate level of shared grief. That was just like another just complete stab to the heart. I don’t think there was a lot different other than just feeling that additional, all those extra losses because the main loss, you just lose so much else. There’s just so many layers of loss that goes along with it that you wouldn’t have even considered that yeah, just that emptiness. Like because I remember my arms just feeling empty, empty after my son died empty after Brian died and I just felt very lost and in both situations, and one is not worse than the other. They’re both awful in their own way.

Elizabeth Catignani 35:00
And so it was just okay, starting over again. Like how many chapters? How many books am I going to have, I never would have imagined that I would have had so many by the sage, but it’s just, we can’t control. We can only control how we react and how we heal and how we respond. And just that was one of the huge wake up calls for me it was how little control I had over life in general, just wow, things just happen. It doesn’t matter. If you’re good or a bad person, they just happen and you just can’t drive the ship. But you can choose how you manage the aftermath.

Victoria Volk 35:31
Comes back to how we first started this podcast and how we can plan our lives and rarely do our lives turn out how we plan on grief is cumulative. And it’s cumulatively negative. It’s what we say in Grief Recovery. And that’s why your losses stack up like luggage in your body or box, if you have a backpack or rocks, we carry that stuff forward with us those losses, all the losses, you need to like move that out somehow. And you said implode, that’s what we say in Grief Recovery, too. It’s either you implode or you explode. Let’s say I gave you a mic and you just have the floor of the world. What would you like to scream to the world and wish people knew?

Elizabeth Catignani 36:20
Oh, there’s so much I could say, I guess one of the things that first comes to mind is just life is just so short. And if we spend more time in just the space of love and gratitude, and you never know what tomorrow is gonna bring. You never know what’s around the corner. And just really holding on to the small moments, that’s really where I find a lot of my joy these days is just those little moments, whether it’s my daughter giving me a hug, or saying I love you, or it’s not about what you do, or who your title or whatever projects you’re working on life is now. And and it’s just who you are that really matters and what energy you give to the world that truly matters. Because we’re all in this I feel like we get so caught up and do with have to do things a certain way.

Elizabeth Catignani 37:14
Or we’re always comparing, or we get so wrapped up in social media and comparisons and other people’s lives, how they compare it, it’s just such a waste of time, it’s just being in the now such a challenge these days. But I think it’s just so important to find those moments throughout the day, to ground yourself to remember where you are and who you are, and creating those connections with the people you love the most. And that mean the most to you just getting into the heart of life, I feel just being aware of those moments, because it’s just when I look back, I think the most random, small moments are what I hold the good hold on to like just memories, I never would have thought would be a big deal. But nothing grandiose is just sort of just remembering to have some gratitude for just getting to wake up each day. And even if things don’t go great, having gratitude for the small moments of things that are going well and your health, just those things just are something that I really tried to focus on so much in my life now are just those small moments. And like, oh, the sun coming in through the window right now is beautiful. And I can feel the warmth and just having a moment with that. Because that’s like happening right there.

Victoria Volk 38:28
I think to what you ended up doing for yourself, was you connected to yourself first, which then enabled you to fully connect with others, and maybe even to receive love again, because I recognize that there was a timeframe in there after your husband passed and before you have remarried. Did you make that conscious choice, an intention to give yourself the time and space before you decided to be open to receiving love in that way again,

Elizabeth Catignani 39:06
I did definitely focus on trying to figure that out. He did date a bit afterwards, of course, I went through several relationships that were not the healthiest feeling situations. And I realized afterwards that I had needed more time for myself to heal and reconnect because I had been reaching for something outside of myself to fill that void. And I always have told other widows there’s no timeline of like when you can start dating again or looking for searching and you need human connection you want to feel in partnership. There’s nothing wrong with that. But it’s also harder to find a healthy version of that if you are not healthy within yourself. And so I did experience a lot of let downs and find myself in situations where I was just because I was just trying to rush I think and so it took some some lessons they’re for me to realize, okay, I need to step back and reflect on where I’m at in my grief and my healing, and give myself this a little more space before, I’m able to invite that in. Because I wasn’t giving out the right energy, I wasn’t receiving the energy I needed and deserved, that’s when the right guy came along, for me, the right partner. And that’s also another area where I think we don’t need to not be too hard on ourselves, because you’re trying to grieve and trying to find a new relationship and trying to navigate relationships are complicated in general. So add on the loss of your spouse before that, and it’s just like, very overwhelmed parenting and finding the right person that’s going to be a good co parent with you match that style. There’s so many layers and levels. So it can be very complicated. And it is about really having to connect with yourself first, and remember who find yourself and who you are. Because that’s what’s going to attract the right person to you. And so that’s something it took me a while to figure out. So that was like a whole other several chapters of my life, figuring that out with a man Oh, my gosh, I have to go back into this dating world. Again, nobody wants to have to do I just remember dreading it. But yeah, after I gave myself a little more space and paid attention to what I needed, I was able to find a healthy relationship again.

Victoria Volk 41:21
So you intuitively knew because you were dreading it, right? And we don’t listen to those calls in our bodies, like your voice in your head was saying, no, not No, not yet. You’re dreading it, you’re not ready. And so we just try to push that voice down that intuition? And how do you get in touch with your intuition? Is you connect to yourself? Yeah. And so definitely the word that comes up for me when I heard you say, where I heard you talking about that as patients. It’s just Yeah, patience with yourself. Yeah, the process.

Elizabeth Catignani 41:54
Yes. And patience, I’ve always had a struggle with patience.

Victoria Volk 41:58
But just do many of us do, and especially in grief, and especially with losses so close to each other. And really, the loss of a child. I just had a conversation yesterday with a woman I was crying the whole time, I can’t even imagine I have three kids I cannot imagine, and nobody else to and that’s why it can be so uncomfortable for so many people to put themselves in those shoes.

Elizabeth Catignani 42:24
Yeah,

Victoria Volk 42:25
And I think that’s why so many relationships, or friendships do fall away, because it’s like a mirror to them.

Elizabeth Catignani 42:30
Yeah, nobody wants to have those thoughts or to know that can be a reality, and I can’t really blame them. So yeah, being able to find a partner that could be strong within himself to know my story and to accept because I because afterwards, I was like posh, who’s gonna want me with all my baggage and this story that I have, and all this heartache. And that’s a lot. I was like, as a single mom, it’s a lot for somebody to take on and was like, who’s gonna want this. And I had to learn that those things were not my faults. And it’s just my story. There were things that happened to me, it didn’t mean that was who I was, or that I was a terrible mess or anything, it was just honoring that this had been my journey, and that I was doing the best that I could, and should just be an honor of that. And it’s possible. There’s people out there, the man I’m married to, he’s got a huge heart, and just fully comfortable within himself and can completely honor this was my story, I can talk about my husband and not feel awkward about it. If it comes up, I think it’s important to be in a situation where you feel like your story can live freely and be honored. And to not have to feel like you have to hide it or to tuck it away or feel ashamed. If it’s something that just happened to you. It’s life, we all do the best we can create the best out of our situations that we can. And so I think that’s important to realize, too, is that you’re still worthy, you’re worthy of love, you’re worthy of joy and happiness. No matter what kind of loss you’ve gone through. You still deserve that.

Victoria Volk 44:11
I want to touch on something because I think it’s very important. Your daughter had a loss to despite not knowing him only through what you share with her and through pictures and words and videos and stories and things. What would you like to share about that experience, like parenting a child through that? It’s one thing for a child to know who they’re missing, but then to not know, really different type of grief experience.

Elizabeth Catignani 44:30
It definitely is. And I’ve just had to figure that out as we’ve gone along the way. I’ve always like when she was very little I had a picture of him and her in her room and always open to talking about it or if something comes up that reminded me of something he might have said or done and I’ll say it to her I’ll say oh, your daddy Brian would have thought this or done that, or I would tell her stories of when she was a baby and just little moments of him with her that I can recall. And so it just comes up naturally in conversation on different days. And so I do what I can to keep him alive for her his presence there. And I have a beautiful scrapbook like a memory book that I made to have, like I have from his childhood, all the way up till when he died. And there’s like newspaper clippings and photos. And so it’s something that as she grows older, I think she’ll process the loss in different ways as she ages and reaches different stages of her life. Because I know it’s not as maybe real to her right now, as she’s like this mysterious dream. I feel like in a way, so I’ve just as best I can just made it comfortable for her to bring up whatever, there were some beautiful like pictures and objects made in his honor, like this beautiful carved wooden flag that she could put in her room, or she can grow up and take with her to her own home one day, or like a painting that he bought that I have. And then she’s also read my book that I wrote. So she really does know a lot of the story. And so that’s just always been important to me is that it’s a safe thing to talk about that it doesn’t have to be ever uncomfortable. And that’s just been my approach. And then she does have an older half sister that she’s five years older, she does remember him very well. And so they’ve had a good relationship. And I think she gets a lot of nice stories through her older sister too, which is great. But yeah, I think it’s really about just keeping the subject open, keeping his memory alive. And she asks about him now. And then if she has questions, or it’s evolved throughout the years, but I’ll mentioned today’s anniversary, do you want to talk about anything or you want to honor in some way? But yeah, it’s not the same as if she had known her. We don’t really we can’t have those conversations about oh, remember when this was done, seeing how she grows with it, and evolves with it over the years, and I just tried to keep the conversation open.

Victoria Volk 47:09
She also lost a brother too.

Elizabeth Catignani 47:12
She did yeah. And I do mention him a lot as well. And that’s another thing that I think over time, it’ll become a part of her in a certain way. And she might honor it in her own way as she gets older as well. So yeah, I think it’s important to just to be real about it just as painful and uncomfortable. And sad as it is, this is what happened. This is part of your story, too. And I think it’ll help her figure out understand herself maybe as she gets older.

Victoria Volk 47:41
The experience of a child griever versus first experiencing grief in adulthood, it is very different. I’m a child Griever. So you grow up with that knowledge like it. And it helps you I can look back now, but it helps you to mature really, in ways that you didn’t ask for. But it’s a very different type of feeling of grief. I think it’s an intimate part of who you are. Essentially, what is your son’s name?

Elizabeth Catignani 48:13
His name was Turkey Brian is a nickname for an Australian teammate that Brian had overseas.

Victoria Volk 48:21
We like you name so I actually think that’s really cute. Well, yeah.

Victoria Volk 48:27
I didn’t know how to ask that. I’m gonna bring this up on the podcast, because maybe other people are wondering that too. But I wanted to ask, what was his name? But he’s still in your heart. Right? What is his name? And so that’s why I asked it in that way. So for anyone listening.

Elizabeth Catignani 48:40
I love that. Yes, he’s always they’re always skills president, he’ll always be your Tookie will always be my son. And it’s something that he made me a mom, you as my firstborn. And wherever he is, because it is something that whenever you get asked, Oh, how many kids do you have? Or it depends on the situation. But most of the time, I’ll just acknowledge, oh, I’ve got two daughters. But there’s that party that’s just actually have three kids. I’ve got a son too. And it’s not always the most I’m like, Oh, do I really want to go there and the depending on who I’m talking to do I want to bring this up? Because it’s instantly Oh, you know, like a little bit shocking to whoever you’re saying it to. And so that is a sadness that I carry people see me with my two children, but I really have three. And that will always stick in my heart because yeah, I want him to be acknowledged. And yeah, it’s like if you’re in conversation with somebody out of nowhere, you don’t really know them. It’s something that I’m not always just gonna drop it. Oh, I have a son in heaven or an afterlife and got these two, but I know that’s a pain I’m sure a lot of parents carry that have lost a child.

Victoria Volk 49:57
could say I have two living daughters, and I have one angel son. And don’t feel the need to say anything.

Elizabeth Catignani 50:09
I like that.

Victoria Volk 50:10
Yeah, then you let them off the hook, but yet you’re honoring.

Elizabeth Catignani 50:13
Yes. That’s a good I like that. I like. That sounds very nice. I’ve said that.

Victoria Volk 50:23
Yeah. Good. Is there anything else that you would like to share?

Elizabeth Catignani 50:26
I think so like this has been a really lovely conversation. And I hope that it’s been helpful to those ever listening. But yeah, it’s been an honor to be here with you.

Victoria Volk 50:39
Thank you, it’s been my honor to hear your story. So thank you for being my guest. Where can people find you if they would like to connect.

Elizabeth Catignani 50:47
I have a website. It’s called hercreativewellness.com. And you can also find me on Instagram, at the same handle, and also my book, Freedom breathing, you can find that on my website. And also, it’s available on Amazon. And the audiobook version is going to be available, I believe, near the end of the month. So I’m excited about that.

Victoria Volk 51:15
We didn’t talk about this. But if you can briefly describe what is the difference between a certified creative grief coach and say, someone like me, I wouldn’t say I’m a coach, either. I don’t know what I am grief guy, I don’t know. But what is the distinction you could share.

Elizabeth Catignani 51:32
So what we really focus on is with the creative side of expressing your grief different. And it’s interesting, because I know some people may feel like they’re not creative at all, I have a creative bone in their body. But I truly believe that anybody has creativity within them. And it doesn’t mean you’re an artist, or you have to be focused in any medium or anything, but just finding different ways to process your grief. And it can be through different techniques like whether it’s through a diagram or a drawing or colors, or doing something outside processing through movement, it’s really about trying different tools and seeing what fits for you. There’s just so many ways we can channel our grief. And I’m always looking for new, unique ways that resonate with me. And that might help someone else because it really is a mind body, spiritual experience on so many levels. And so really addressing all those different areas of our being as a whole through this integrative process, I think it’s very important because we really do hold, we can carry it a lot in our bodies, we can feel it or aches and pains, one of the women that used to work at the respite center, she was a grief massage therapist, so she specialized in helping people that had gone through loss. And she had a very specific technique for giving them a massage that was very in tune with certain anxieties they might have, or fear of touch that they might have, or setting the mood a certain way with music or lighting and things like that just approaching it differently. It’s things like that, that I find amazing, and that they’re even available. Cuz there are so many different ways to express yourself through your healing. And like for me, like this past year, I really got into photography. And I took a photography course online, and I just found this amazing piece and capturing flowers and different seasons and just working with color. And it just being able to capture memories in that way. So there’s just so many unique outlets that we might not typically think about when we can process what we’ve been through and also to find joy in the moment. And so yes, I really to emphasize that we’re all creative in some way. And that using our creativity, I think it’s a really important way that we can help ourselves on our healing path.

Victoria Volk 53:58
And it’s a muscle that you have to flex have to lose it in order to like let it come out.

Elizabeth Catignani 54:05
Definitely, yeah,

Victoria Volk 54:07
Actually, there was a traveling project that was going to the different military outpatient clinics. And I had seen it when I had a doctor’s appointment at the VA one time. And what it was veterans would have, like do like a paper mache of their face, like an imprint, and they would paint the face in or as a reflection of what they were feeling. Oh, that’s the face that they presented to others. What does that look like? What am I? How am I showing up with this pain on my face? I just got goosebumps again thinking about it because especially with military service, it’s loss and there’s so much loss. I just thought it was brilliant idea for a project.

Elizabeth Catignani 54:53
Wow, that’s really that’s incredible.

Victoria Volk 54:55
Yeah, I could see that with like trauma victims even just any grief, right? Just any kind of grief I’ll try and find the link. I don’t know what it was a couple of years ago, but it might inspire the work that you’re doing with people. So find the link for you. And if I do find it, I will put it in the show notes too. Because if it Yeah, out there, I think it’d be really see how other people are channeling their creativity in their grief.

Elizabeth Catignani 55:24
Really, I love that.

Victoria Volk 55:26
Anything else you’d like to share?

Elizabeth Catignani 55:27
I don’t think so. I think I tried to share a lot what was on my heart and yeah, it’s been an amazing conversation.

Victoria Volk 55:35
I agree. Thank you so much. And remember, when you unleash your heart, you unleash your life. Much love. From my heart to yours. Thank you for listening. If you liked this episode, please share it because sharing is caring. And until next time, give and share compassion by being a hurt with yours. And if you’re hurting know that what you’re feeling is normal and natural. Much love my friend.

Ep 104 | Michelle Marsh

Michelle Marsh | Flipping the Script on Loss During Covid

 

SHOW NOTES SUMMARY:

In the grief recovery programs, one way we describe grief is that it is the loss of hopes, dreams, and expectations. This description of grief, in this way, has not been better understood by society as a whole more than it has since 2020 with the onset of the Covid-19 pandemic.

As society begins to emerge from the darkness Covid brought to so many lives, we start to see ourselves and others in a new light. We have started to see the impact of the past two years on the psyche of millions, its global economic impact, and deeply feel the ripples in our individual lives.

In this week’s episode, my guest, Michelle Marsh of Western Australia and @aromanosis, shares the ripples Covid-19 created in her life. Burying a loved one is never easy. Burying a loved one during a pandemic, well, it can be downright traumatic, elevating the emotions of everyone involved and leaving a lasting imprint.

Additionally, and not often talked about, are the secondary losses during Covid-19 due to government mandates, which Michelle also experienced in regard to hopes and dreams she had before the pandemic.

Michelle shares a few lessons she’s learned from her Covid-19 experience. And, how she’s managed to get to the other side of the darkness that was Covid-19 (and still is creating ripples in some ways).

For a long time, I have shared the expression “Covid Ruins Everything.” Well, one thing I believe it hasn’t ruined and perhaps has maybe strengthened, is the human spirit in the lives of millions.

May we all carry the lessons we’ve individually learned from Covid-19 into our future selves and be better for it.

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Victoria Volk 0:00
Hi this is Victoria of theunleashedheart.com and you’re listening to grieving voices, a podcast for hurting hearts who desire to be heard. Or anyone who wants to learn how to better support loved ones experiencing loss. As a 30 plus year griever in advanced Grief Recovery methods specialist, I know how badly the conversation around grief needs to change. Through this podcast, I aim to educate grievers and non grievers like spread hope and inspire compassion towards those hurting. Lastly, by providing my heart with yours in this platform, grievers had the opportunity to share their wisdom and stories of loss and resiliency. How about we talk about grief, like we talked about the weather? Let’s get started. Thank you for tuning in to grieving voices. I am your host Victoria Volk of The Unleashed Heart and today my guest is Michelle Marsh. She studied Reiki one and two as a teenager which began her journey into wellness. And after leaving school, she went into Registered Nursing where she learned the pros and cons of western medicine. After getting frustrated with the system, she left and began down a path of learning and natural health and hypnotherapy soon moving into coaching. Recently, Michelle has studied creative therapies and this year is delving deeper into alcohol herbalism and your Aveda. Now a mom of three and wife to a wonderful tolerant husband, Michelle describes herself as a highly sensitive person who loves to experience life to the fullest. In a nutshell, Michelle works with nature and creativity to help others grow and create change. Thank you so much for being my guest today. Michelle.

Michelle Marsh 1:52
Hello, thank you for having me.

Victoria Volk 1:55
We know each other to your friends for like two years. And this is the first time we’re actually recording. And I’ve been trying to pin you down for quite some time. But I think it’s perfect timing just given all of the change and transformation that I know you’ve gone through in the past two years. But more importantly, how that change has transpired probably in light in a lot of ways because of COVID. And so excited to see where this conversation goes today. But can you share a little bit about the Michelle before COVID and the impact that has had on your life in the Michelle after COVID? And just to clarify, she lives in Western Australia?

Michelle Marsh 2:42
Yes, it is. Although I think you’re the one with a funny accent. Okay, so Michelle. Oh, so that’s a doozy. Deezy Deezy question. Michelle, post COVID is much more accepting of the grayness of the future. So I think that’s probably the biggest change than the uncertainty of everything that’s kind of gone on here, has given me in the sense that before COVID, I really like to plan before COVID, I would always have a future vision of how everything is going to be. And with so many changes, and so much potential for change occurring. And there were you know, there’s been quite a few things in my life that I would I was doing that has been well felt like it was ripped beneath my feet. And all of a sudden, the trajectory I was on and my husband was on, career wise, family wise, all sorts of things disappeared. And in the past, when I’ve come across those kind of uncertain moments or you know, when big changes come into life as it does one of my biggest strategies for dealing with that would be to sit down and and replan and re visualize something into the future because knowing where you are going gives you a sense of purpose and hope. And so the last two years, particularly this this past year, it’s like, we don’t know what’s going to happen next and how well there’s a lot of freedom has been changed here, where I live and and so it’s like it was about six months ago, I had had a moment of going been so frustrated because I kept planning and it kept kind of falling apart. Just one little announcement and it would just crumble down again and this frustration and then wanting to plan but being afraid to Take the next step in a plan as well because of that, and I was sitting there and I was in a meditation and it was like, there was just this gray fog. And it’s like, well, I can’t just keep standing here where I’m at. Because you can’t do that for life. Like that’s, that’s the path we’re staying still to, to misery, right, we have to move forward. That’s where the growth is. But the fear of stepping into sight is the great unknown. So it’s, it’s not that I don’t dream and plan now. I do. But it’s with the knowledge that it can be. It can disappear at any moment. And I think now in hindsight, I look back. And I think how funny because it’s not like that was ever different. Life could always change on a dime, yet, your plans could always change. But I had a false sense of security, pre 2020. Whereas now, it’s like my eyes have been opened as to the true changeable nature of life. And, you know, it was terrifying at first. And in some days, it still is, and some days, I really feel the loss of that that certainty. On the other hand, what a gift because it’s kind of exciting, as well like to go the potential, you know, instead of knowing where you’re going, knowing the end of the story, it’s like a great book, where anything can happen. Like, yeah, hope that answers.

Victoria Volk 6:34
And I want to, I want to touch on that a little bit and go a little deeper on what you said, when you talked about the possibility because there I think there’s so many people that could think, like the negative, right, like, this isn’t going to work out. It’s like the worst possibility rates, so many people have that knee jerk reaction to think of the worst case scenario. Yeah. So what have you learned through the grief that this has brought you to? Because it is grief changing pattern patterns of behavior and your life and plans that gets swept from under you? What have you learned in how have you been able to reframe your positive goal of possibility instead of fear? Really?

Michelle Marsh 7:19
Yeah, that’s definitely been been grave. So saying that I’ve had in my head since I was a kid, I don’t know where it came from, is there’s always a way you just have to find it. And I’ve, I’ve always believed that, except for when I haven’t. Sometimes you forget, right. But it’s always kind of been there in the back of my mind. So one of the things that happened towards the end of last year in, in studying creative therapies at uni, is that I had a trajectory from going from this postgraduate diploma that I’m doing into the Masters, which would then take me into the system have been registered and been able to mingle with, you know, in the, in the medical world and things kind of in the system, I suppose. Because I, I fell in love with it. And I’m good at it. You know, they try to say that in the most non egotistical way, but you know, when you just go, oh, yeah, like, it all makes so much sense to me. And I find that quiet, it’s a lot of work but quite easy at the same time to understand. And so it was like, having this baby kind of gifted to me, and I was, I was just in love, and I was committed to it. And, and it was just such a beautiful gift. Because I had originally said, I’m going to do this, and I’m going to integrate it into like, my coaching and consulting that I do, what I learn, and, and then I had this whole new vision and pathway that I was going to go on. And then there was announcements at the end of last year that said that you have to be vaccinated to practice as as that kind of registered practitioner and we had chosen as a family not to go down that road health wise. And it was just dream shattered in a moment. And that really, it and I know I spoke to a lot about this at the time, you know, talk about a loss of hopes, dreams and expectations. I had such a strong vision of once I had that masters what I was going to do with it and it it felt so real. It felt so aligned and even talking about it now I can feel that emotion kind of coming up. And it was like, oh, what now and I did just throw my hands up and kind of say if you world and I don’t understand. And this felt so right, I felt so aligned, like, you know, my, the spiritual side of me was really well, the side of me trying to understand the spiritual side of me was very confused. Because I live my life like that I follow my intuition. That loss made me feel very lost in myself. And it made me question everything in the sense of, you know, I follow these, this path of of, like, following the whispers I call it the, you know, that intuitive following what feels good following what feels aligned, and here are here it was, I felt like the universe was just slapping me across the face and going, haha, just jokes, you know, give me the Give me Give me that beautiful baby back, take it away from night just took it straight back. And all the work that I’ve done and the sacrifices that I’ve made, you know, financially timewise to do that study, because, you know, it’s been a couple of years that I’ve been in, it really hurt, really, really hurt.

Michelle Marsh 11:14
And then at the same time been so aware of so many people in the world suffering so much more, you know, that there are there are bigger losses out there. And it could be so much worse, but then it felt like my heart was being tested that it’s such a funny thing, when you have a have a loss like that, because it’s what I was grieving was was never actually a reality in the first place. So going back to that, that same, there’s always a way, you just have to find that, you know, that was still in the back of my head. And gradually, I realized that what I have learned so far is still mine, I have not lost the last two years of study, it’s still in my mind that still integrated into how I work with people in the capacity that I work with people now. And then I found another way, then I said, I don’t need the approval of that organization over there, to to still study and learn what I love and to integrate it into what I offer into the world, nobody can stop me from offering my skills, I’m just not allowed to use certain words, you know, and it’s, there’s, there’s always a way, there’s always a way. And and it can be really hard and frustrating when you don’t have the support that you thought you were going to have on that journey. But then there’s, you know, six months on from that, so many gifts in that as well that have kind of come from that big shake up of that expectation. Now what I’m doing is so much more expansive, that it would never fit in that tiny little box of where I thought I was going. So I guess moving through it one foot in front of the other. With that mantra going through my mind, there’s always a way, I just need to keep moving forward, until I find that way, knowing that I’ll probably go this way and then that way and up and down and around in circles quite a few times before I feel like I’m sort of tracking forward maybe and that’s okay. That’s the other mantra in my mind. It’s okay. It’s all okay. Every emotion every, every wrong turn every, every every right. It’s all okay, it’s all perfect. So I suppose I have a much deeper trust and faith these days than I used to. Because I can’t plan.

Victoria Volk 13:59
Well, and again, like we’ve like so many of us get reminded it’s you can plan until you’re blue in the face, but not at all there’s an expression God will laugh at your plans anyway or something like yeah, as the last laugh. I just filled out a survey not that long ago or not a survey a questionnaire to be on a podcast and the question was something to the effect of when was a time in your life that you had failed? And you know, what, what did you learn from it? And like the old me, before I really started my journey of personal development, especially the last probably, like pre grade recovery me would have would have looked at that and and answered probably in the way of really looking down on myself. Right and really, I could have probably thought of things left and right to put in there. But my perspective of failure now. I don’t know if you I know from what I know of you I’m thinking you share the same thinking is that there is no failure. It’s all learning the perspective of how I look at failure like there, there is no failure. And I used to, you know, we are our worst critics, our own worst critics. And that used to be a really one of the things that brought me down the most, and my self confidence and, and my worth, and all of that. So I think it’s really important that we look at failure, and really dig deep into it. Of what how we want to reframe that. So how do you? What is your stick on failure these days?

Michelle Marsh 15:45
It’s a really good question, because it’s not something I really think about anymore. Because it’s kind of like you, I used to think about how many failures I’ve had. And just as you’re talking there, I’m like, Well, I guess what’s happened is I don’t see them as failures anymore. They seem as launchpads I see them as my biggest moments of, of growth. Because I’ve, I’ve had plenty of things which people could label us as failures if they wanted to. But if those things hadn’t occurred, I would not be the person I am right now. I would not feel the expansiveness and love and everything that I have hearing my heart so solidly these days, I wouldn’t have any of that. Because I wouldn’t have learned how to come come through. And so I suppose in the in the sense of how I saw things as failures in the past. Whereas now I don’t, I see them as growth opportunities now, which means I move through things a lot quicker. I think if like that example that I gave with my study, if that had happened, say three years ago, it probably would have taken me maybe a year, two years to get over it, you know, not over it, too. We don’t get over things, we integrate them. And we grow from them with without any kind of trauma or grief, or occurrence. And so I think it’s a reframe into a growth opportunity, instead of it being a failure. And the best thing we can do is to fail again, and again, and again and again. And I used to read books saying that, and I would think, yeah, because then you learn how to do it right, and you don’t fail anymore. You know, those Harar kind of books, like, you know, learn how to do it wrong. So then you know how to do it, right? It’s such a load of crap, get comfortable with it, and know that it’s an opportunity. And yes, it’s an opportunity that hurts like hell, and I can’t ever see myself seeking that out and saying, Oh, I hope this is one of those moments of

Victoria Volk 17:55
Great, right, we don’t ask for it.

Michelle Marsh 17:58
Every endeavor every step of the way, I’m hoping that things go smoothly and well, and that it feels so flow when you know all the rest of it, that when ultimately the pain does come along, it’s that knowledge in the back of your mind that that you can get through it. And it’s the previous failures or growth opportunities. And having come through those and then being able to see those in hindsight. That gives you the courage to know that no matter what happens into the future, and I suppose this is where getting comfortable with that greatness in front of in front of me has come from no matter what’s thrown at me, I will find a way through it, I’ll find a way to integrate that I’ll find a way to find meaning in it, which I think is is a big part of, you know, coming through trauma coming through grief is, is having some sort of meaning attached to it, not to dispel the pain. Because it’s so important, I think to to honor that and integrate it, but that the meaning gives us a sense of purpose and understanding of why we experience it in the first place, which to me is then that Launchpad into the growth in our future and into better experience.

Victoria Volk 19:22
I know because we’re friends that you experienced a loss during that transition of trying to understand that what you wanted to the stream that you were hoping to build and launch wasn’t going to happen, at least for the time being, but you did have a loss of someone you loved during that time as well. And

Michelle Marsh 19:42
Yeah, so that was my my grandfather and it happened quite quickly and suddenly, I mean, he was gosh, I should know this. I think he was 96 but he was still living alone and looking after himself. And you know, I’ve completed sound mind and he had a fall and within weeks he he had died. And in that time, we thought he was going home as well, because he, he was healing and then all of a sudden he crashed the night before of the funeral. There was there was an announcement we had really strict borders in, in Western Australia. And we hadn’t had COVID in in our state. And so they, there was one case that that came through. And so they locked everything down based on one case who was in isolation, and they’d identified everybody that had been in contact, which was nothing to do with me or my family or anything near near us. But they locked down everything and said that, so like lots of rules changed. One of them been at funerals, that you can only have 10 people attend, and mums, one to five children. So with partners, you know, she could attend with her her brothers, but none of us cousins and you know, there’s a there’s a big bunch of us cousins, and we’re a very, very close family. It was a grieving of not just the loss of my grandfather, but but from the head of the family. We lost my Nan, you know, 20 odd years ago. So it was this this fear then of is our family still going to come together? Or is it like all of it changed every dynamic of what had been a really solid foundation for all of us in, in that family. I remember, I was already grieving all of that. And then to have here this announcement that I can’t go to the funeral, yet the football was still going ahead was so discombobulated like the grief then that came up from that, and so that night, like and they said, Oh, you know, we’ll live stream and like, okay, okay. But it was kind of like a bit. But it was so hard to really comprehend the feelings that that were going on inside. And I don’t think I’ve ever really thought about how important funerals were. And so in the end, we made a decision, I think I was lying in bed awake at it, I couldn’t sleep, and just so much fire so much anger towards this politician made this decision that made no sense to me, no sense, you know, the rest of the world by then was kind of getting on with things and, and will freaking out a by one case, you know, and yeah, I just hit me, I’m like, No, I’m getting up and getting dressed. Because all of that process of getting dressed to go to the funeral, there’s like ritual in it. And and, and the kids are having the day of school, and they are getting dressed too. And so is my husband, and I’m taking my laptop. And we’re going to drive wasn’t strictly allowed, but we did it. We’re going to drive, we’re going to sit outside on the road in our car, of where I know, they are. So I can see the hearse drive in. So I can I can watch it on on the computer and as close as I can to that.

MIchelle Marsh 23:35
And it ended up being this beautiful on one hand, and then still so much anger and grief on the other side to have not been in the chapel because we turned up there. And I’ve spoken to my three siblings, and they decided they would do the same. So we were turning up but none of us has spoken to our cousins, because we’re a little like, you know, bit worried about what each other would think about breaking the rules to that extent, but we’re like, we’re safe. We’re in our cars where you know, because we weren’t supposed to say anyways, we get there. And the majority of my cousins had decided to do the same thing. And it was so incredible. Watching all of these cars line up on the side of the road with the same idea. They’d all had the same inspiration when I spoke to them later, you know, they’d had the same kind of thing where they’d stayed up all night I couldn’t sleep and angry and then you know, they got this idea to come and I so feel like my granddad went to each of us and gave us that inspiration. And so that was really beautiful. And it was a real kind of connecting moment. But then on the other hand, yeah, it was that there was so much anger because I felt like I’d been told I can’t grieve how I want to grieve and and I realized how important it is. is, you know, after a funeral, when a family comes together for the weight and the telling of those stories and the hugs and the the weird feeling of it all that you don’t have, you know, the grandfather there who’s who’s always been, like, the reason why we get it not the reason but you know that it’s, we get around. And so we didn’t have that. And, and there was a, we were kind of like, Oh yeah, well, once the lockdowns over we’ll, we’ll have awake and all the rest of it. But there was just this fizzling off. And then no one could kind of rally themselves to kind of come together and do that. And I still feel the desire for it. But when I spoke to the rest of my family, they’ve moved past it. So it was so yeah. Yeah, no, I still kind of can’t put a lot of words to it all and explain it because it was, as I was saying to you, before, we jumped on to record this anger on one side, which really made me want to jump into action and be vocal on what was going on over here and all the rest of it. And then the grief, which just felt like, cold, still depression. I can’t move. I give up. What’s the point? You know, and then then what’s the point was tied in with with the grief of what was going on with my grandfather, and then with the grief of everything that I was seeing kind of occurring around me and how much people were getting suppressed? And yeah, it just really made me flake. But then the anger. Good. I’m out in rage every now and then. Such an interesting, interesting process yeah.

Victoria Volk 27:04
Very much a roller coaster. And feeling the weight to have what you see. Right happening with people, you know, and love. It’s not just what’s happening with you. But, you know, friends who maybe lost their jobs because of their points of view, or yeah, you know, situations like that of losing loved ones. Due to but maybe not even getting to see them. Yeah, for they passed away.

Michelle Marsh 27:35
Yeah. Yeah. Dad’s not been able to be with their wives while they’re giving birth. Again, because of a Health Choice. Oh, yeah. Yeah, that’s a carry on at the moment, which is just ludicrous. Yeah, so there’s a lot of pain and grief that you hold for other people with that with. And I think when there’s a when you feel because again, this comes down to personal point of view. But when you feel like people are experiencing grief or additional grief, for no reason, or it seems pointless, because there’s a rule. It’s, it’s really hard to kind of integrate that. You know, it’s different when someone gets hit by a car, and you go through that grieving process and everything, but it’s, it’s almost like the cars been driven purposely or that person has been told to stand on the road or something. And it’s just like, it’s so frustrating. There’s this desire to scream, but you’ve got to let go of it all. Because you have no choice but to yourself, or the world, or your, your own family. And I think after holding that frustration, and for other people, for myself, for the world as a whole, I was crunching in on myself and I am a hermit anyways, but not in a good way. I lost all motivation to to share any any of the messages that I have. And I was I was really struggling with that. And, and I was snapping at my children and my husband and I even though we’re on the same page, we’re starting to get narky at each other. And it’s because it’s the frustration of what’s happening out here that is out of your control, and you’re seeing all these people in pain and you know, I’m that person that my friends call to tell me when they know Yeah, my husband’s just lost their job or and I’ve got a friend and they’ve got an amazing electrical business that and I know how hard her husband’s worked to build that up and employees and things like that. And then these are these crazy rules come in that don’t make sense. And and and then like, how do we navigate this and you know, that feeling that terror of your heart. And it’s, what ends up happening is that your suffering, and your children are suffering because of it, because you’re taking it all in. And it’s because the lack of feeling of control. So at some point, it was like, How do I not dissociate from this? Because that’s not healthy? How do I keep my eyes open and aware to the truth and be okay.

Victoria Volk 30:32
And as a highly sensitive person, and that’s kind of what I’m getting at to conversation, being a highly sensitive person. So what would you suggest to people who may be feeling that way, whether they’re identify as a highly sensitive person or not

Unknown Speaker 30:49
Think this is where your self care behaviors are so important. So as you know, I have been practicing Kundalini, religiously, every every day Kundalini yoga, for over a year now. So those kinds of practices and journaling and meditation, reading a book, all of those things, well, I suppose let me categorize it. So there’s some self care behaviors, like yoga, meditation, that are like muscle strengthening, emotional resilience strengthening, so they do help you to release and let go and integrate different things. But one of the really big things about them is that they are, they are building a strength a core like inside like this. And, and it’s so that when everything is swirling around in a storm around you, you can you can feel your center, still, instead of just been swept around in the storm. So those things, I think it’s really important to have a practice. And that’s hard to do, especially when you’re not feeling great. But that’s where self discipline comes in. And that’s having self integrity, and thinking you’re worth that time and that effort. And children and your family. Yeah. Sorry.

Michelle Marsh 31:07
Can I ask you a follow up question to that? Before I forget, because I think it’s really important, I actually want your thoughts on this. So just it’s come up recently in conversation. So like you can be you can have a yoga practice, let’s say you have a daily yoga practice, and Kundalini, whatever it is, and it’s a practice of being with your body, like being present with your body in your body, feeling safe and supported in your body, right? But what if it’s not, you’re not really with your feelings? Because there’s a difference in with your body. But if you’re not in or with your feelings, is it in a way, a form of spiritual, spiritual bypassing? Or could you be thinking that you’re addressing your grief or your emotions with this practice, but yet, it almost becomes a STERB. Like in grief, we call it a Short-term Energy Relieving Rehaviors.

Unknown Speaker 33:20
It can be a step. Yeah. Yes, this language through so you know what? Yeah. But that Yeah. Yeah.

Victoria Volk 33:28
What do you say to that? Like, yeah, you can have a yoga practice, but it’d be within your body, but how do you sit, be in with your feelings at the same time?

Michelle Marsh 33:39
So I would say that if you’re truly with your body, you can’t not be with your feelings. At the same time, I would say, when it say a sturb. So, you know, people often use that a physical movement as in that way to bypass things and to use it as a healthier band aid than alcohol, but it’s still a band aid, right? And yes, it’s it’s spiritual bypassing, but you’re not when you’re fully embodied. The mind and body are one, your feelings and emotions. It’s all it’s all one thing. So if you’re truly, actually been embodied, and if you’re truly doing the practice of yoga, you will feel it. And I mean, this is this is why, you know, so often, like if I’m consulting with somebody, and they’re having difficulty getting in touch with their emotions and feelings, just just from talk, because it really works well that way. It’s okay, let’s move your body because there’s usually somewhere I can see in them that they’re holding on I’m like, Okay, let’s see what’s there. And once they start to move it, the emotion starts to come up. And so this is what’s supposed to be occurring within within yoga or any of these movement. practices. But there are ways like you say, where you can move your body, and even use the breath and use the mind to completely compartmentalize. And and you know, that’s it’s an incredibly clever thing to do. But humans are clever and and I’d say most people have the skill to actually do this. It’s almost like it gets boxed up and put somewhere, right. But if you’re actually doing the practice properly, and I think this is where intention comes into it, and you are to the best of your ability, because, you know, when we meditate, we all go off and think about dinner and all the rest of it, but you just keep bringing yourself back, you keep bringing yourself back, you keep saying, If I feel something, I will feel it. I give myself permission I although these things are really important, there is no use going through some yoga said, or, or even meditation, you know, in kundalini, we do a lot of chanting and things like that, you can get lost in them. And there is a certain sense of peace and goodness to that as well. But the attention should always be in the present moment. It’s not about escaping, it’s about coming in and feeling and saying, I will feel I will feel this pain, I will feel the light, you know that that means a physical pain and an emotional pain. So I think it comes down to intention as to the difference between both because yeah, know what you mean. And I know, we’ve had conversations about it before in the spiritual bypassing, and I’ve been extremely frustrated in the past, because some of the most what I would have in the past called the most spiritual people I know, like highly psychic people, and mediums and things like that, that I I have known personally, have screwed up what I would personally call personal life and relationships. And I’m like, How does this occur? And it’s because they’re actually not embodied. It’s because they are trying to live in this spiritual world, as an escape, just like drinking can be just like, exercise can be just like, six can be eating anything. It’s an escape from actually feeling and dealing with what’s occurring. So yeah, I think it really does come down to that the mindset and the intention.

Victoria Volk 37:42
What sparked that was I had a podcast guest who had grown up with Yogi parents, but he had never learned how to grieve. He had never had that emulated for him, or, you know, to really be with your emotions, and how to let them move through you and work through them. It was all just, it’s almost as if well, yoga was just this, you’re just going through the motions, right?

Michelle Marsh 38:08
Well, I think a lot of yoga is these days. Isn’t that let’s say it’s a stretching practice. I think the spiritual teachings, which is the spiritual side of of yoga, as a practice is about connection. Actually, I was just reading last night in because as you know, I’ve just started the the teacher training for Kundalini. And and it says in there, I wish I had my manual here, so I could read it out exactly. But it says Yoga is not all of these things that we’re kind of saying right now. It is a relationship. It’s about relationship, relationship to spirit relationship to self relationship to others, which means if you’re in true relationship, you cannot not experience great right, amongst every other emotion as well. So like, without knowing this, this person and his upbringing and what is your your parents are like, I mean, it’s quite possible that they actually never never spoke about that type of thing. Kundalini is quite different from other yoga practices, from what I can see it is all about being embodied, which embodied means experiencing the physical, emotional, and the etheric together as one. But yeah, it happens. And I do it too. I think we all do it.

Victoria Volk 39:33
Especially when life feels like a shitshow. Right? You’ve touched on this now, so let’s go there. Okay, because obviously, you must have some hopes, dreams and expectations or for the future with now Kundalini, but like you said, it’s whatever you go through in life, it’s education. It’s not failure, and no one can take it away from you whether it is a training program or it is a perceived failure perceived by others. So what gives you hope for the future.

Michelle Marsh 40:09
Is failing inside of me. It sounds so whoo and so I exam low, ugly, shy I have honestly come to a point in my own growth and development where I feel like I said, it’s, it’s that so I’ve done so much work on strengthening this inner core and being of myself that there is such a pleasant feeling there. It doesn’t mean I don’t get angry or scared, you know, just this morning, you know, I was, I was saying to my husband, you know, I had had a lot of anxiety coming up around, you know, finances and things because everything’s quite changeable still. But it all seems to work out in the end. And, and I think what gives me hope is that no one can take away this feeling I have inside, the only way it disappears is when I let it disappear, like I did for a moment this morning. So say, Everything’s gonna be okay. It’s all okay. And, and there’s always another opportunity. There’s always another. I’m constantly surprised and delighted life can can offer and deliver. So even if what I’m not envisaging in my mind doesn’t come to fruition. While I was still grief that because like you say, you know, I’ve got another vision in my mind now. Wow, I know, I would grieve that. I also know that whatever comes here has got opportunity for for delight and joy that I can’t even envision right now. And so whichever way it goes, it’s okay. And I think that’s where the hope lies. Now. It’s, which is a funny way to put it, but it’s, it’s, I guess, in the past hope has been in relation to wanting something so that I could be happy. That will make me happier once I have that. Whereas now it’s like there’s there’s a sense of, of joy and connect and contentedness. That’s a word in the now and but a hope for the sparks and joy that I kind of know are going to come anyways, I just don’t know what form along with the, the grief and the pain that I know will be in there as well. And it’s like, okay, let’s do it. Welcome to Life, welcome to Life, which then brings me back to like that Kundalini morning practice. That’s what that feels like, right? And it doesn’t have to be Kundalini Yoga, there’s so many different practices out there that you can get this from. It’s a mixture of this, it’s like your life, because it’s a mixture of intense pain when you have your arms out here for seven minutes. And it really hurts. But then it’s like, why would you do that to yourself. But then at the same time, there’s, like, this box of just moments where everything syncs together, or you get this higher state of awareness after a bit of breath work or meditation or, or, or at achievement, when the first time that you actually managed to keep your arms up there without flaking out. And, and that that willpower, I feel like I need to let my arm down, and then your mind is going, No, I’m gonna stay on that path. No, you’re not putting your arm down, and you just stay there and you stay there and you stay there. That’s the training, but it’s also the experience of so then when it happens in your like day to day life. It’s like, oh, no, I’ve come through that. How many times have I failed? Was my arms falling down? And then I got it. Right. You know, so it’s like, it’s giving you life experience. And I think that’s, again, like I said, those types of practices, training. And, man, I always think Imagine if we all grew up with that kind of training, like understanding not just the physical side of it, like, my teachers speaks wholly in a lot about what’s actually even occurring internally, you know, it’s like, sometimes I’ll be like, there and I’ll be sobbing and so angry. She won’t let me put my hands down Yeah, yeah.

Victoria Volk 44:45
Life training,

Michelle Marsh 44:47
Live training. Yeah, yeah. And there’s lots of ways to do it.

Victoria Volk 44:50
So if people want to learn your way, or want to connect with you, where can they find you?

Michelle Marsh 44:56
Aromalysis which is my business And that is a Romanisis.com.au. And, yeah, there’s a there’s a couple of different offerings in there. One which can be offered to anybody around the world is my wellbeing readings where I use my intuition as well as my knowledge in herbalism, and Western medicine and psychology and everything else that I’ve studied. And basically given an overview of, of your wellness is along with some different suggestions in your lifestyle diet. And really, when it comes down to it, a lot of the time it’s what people are experiencing physically comes down to the grief they are holding within the unprocessed unintegrated emotions. I give some some tips and kind of next steps around that. And then yeah, I also consult with people face to face as well when the opportunity arises.

Victoria Volk 45:57
And do you have two years you make teas as well? Right?

Michelle Marsh 45:59
I do. I do. Oh, thank you for saying, see there’s so many wonderful things in the world. I do I love I love my my teas and my herbs. My shop is not up yet. But it will be discoverable with through aroma Gnosis, so you can follow me on Instagram, I’m at aroma Gnosis as well. And I will have that shot up soon with all my medicinal goodies which I love to when I put them together, I only ever put my my herbals and medicinals together when I am in alignment in myself. And I also like to do it in alignment with the moon and the energies of the planets. And so all of that that’s where the alchemical herbalism comes in. It all comes in into play. And it’s such a beautiful expansive thing to do is to sit there chanting away as you’re as you’re preparing something or have steam, or whatever state of that.

Victoria Volk 46:59
Lots of love infused I do not doubt so much. And I will put the link in to all of your information in the show notes. And is there anything else you would like to share?

Michelle Marsh 47:11
Just deep gratitude for you, my friend, I have learned so much from you about grief. And the true nature of grief. I think it’s it’s we often label it so many other things. And when it comes down to it, it’s it’s it’s grief. And, and not being afraid of that. And yeah, understanding the nuances around it, and this podcast that you’ve been doing and have the most incredible guests on that I’m just like, so amazed that, that I am on here in in the presence of some pretty incredible people, you’re a true gift to the world. An absolute true gift. So thank you so much.

Victoria Volk 47:58
Thank you, thank you for being my friend. Oh, sister from another mother tidally. This has been so much fun. Thank you so much for sharing. I think the loss of hopes dreams and expectations is a loss that many people can relate to and experiencing loss during COVID as well. And so I appreciate you sharing your story. We didn’t even get into you map which oh, I want to try and weave that in there some way but didn’t didn’t quite fit. So maybe that’s another conversation for another time.

Michelle Marsh 48:28
Next time. Yeah. So much I could say about that that.

Victoria Volk 48:33
Anything like in a nutshell, like what it what it did for you.

Michelle Marsh 48:36
Yeah. So when you did that, now I’m trying to remember the timeline. But that’s when I was feeling kind of squeezed. And it was towards the end of last year. So it was kind of like when all the things were going on. And at the same time, I was like no, I’m gonna find my path. I will find that way, you know, determined and you you offered the umat to me surprised me most about it was really bringing to my attention, what my priorities were, what my values were. And so I made a decision. Actually, I do remember exactly. It was mid last year because it was when my grandfather died. It was at right at that point. And I remember I was trying to make decisions am I gonna do this, I’m never gonna do that. And when I saw my values written in kind of hierarchy, and and I made a decision to I’m going to live by those because it because you kind of realized that Oh, hang on. I’m putting all my attention into my fifth or sixth Valley. But about that top one that changed my behavior and my actions and still does that was a catalyst into this. This this alien of solid joy and knowledge and knowing that I’ve got that that rock hard feeling that chord that I was talking about. That was a catalyst doing that YouMap I couldn’t recommend it higher. Lay enough to people, it’s such a good way to get to know yourself. Especially if you have no idea, I think, yeah, it is true. If you’re feeling lost, actually, it doesn’t even matter how much you know yourself. I mean, I’ve been doing self development for years, I thought I knew I was like, Yeah, I already know where I’m at, there’s always more to discover it, put it in black and white in front of you, and then try and weasel your way into putting your head back in the sand, it’s really hard to do. So it’s a gift to have in front of you.

Victoria Volk 50:31
Yeah, and for people not familiar with it, I’ll link to it in the show notes. But just it’s a holistic picture of who you really are, that combines your strengths and your values and your skills and, and, and how you’re wired to create this, this map of of you, and it can really shape your path forward. And so thank you for sharing that little snippet of your experience with my listeners. So I’ll put the link to that in the show notes. And thank you again, so much, my friend. Thank you. Thank you. And remember, when you unleash your heart, you unleash your life much love. From my heart to yours. Thank you for listening. If you liked this episode, please share it because sharing is caring. And until next time, give and share compassion by being hurt with yours. And if you’re hurting know that what you’re feeling is normal and natural. Much love my friend.

Ep 103 | Kasey Carmona

Kasey Carmona | 6 Days of Dying and a Masterpiece of Life

 

SHOW NOTES SUMMARY: 

Warning: This episode contains a mother’s account of her son, CJ’s, final days of life. This may be difficult for some listeners to hear, particularly those who have lost a child.

99 Days. How much life can you squeeze out of 99 precious newborn days? Especially when 84 of those are spent in the hospital?

Kabuki, a major theatrical form in Japan for four centuries, became less of a theatrical experience and more of a grieving one.

Kabuki Syndrome (a rare genetic syndrome), named in part after facial art depicted in Kabuki theatre, expresses itself with distinct facial features including large eyes and long lashes.

CJ would not only fight to stay alive with Kabuki, but due to Kabuki, he was also born with half a heart (hypoplastic left heart syndrome), 3 kidneys, and a cleft palate. The odds were stacked against CJ and his family.

Kasey and her husband did whatever they could for their son. However, when it became clear that they were going to have to have procedures done to CJ, that was their sign that they weren’t honoring CJ’s spirit or his life. They came to accept the truth of their son’s young life and decided to take him home with oxygen support only.

Kasey could have never anticipated that the day they took CJ home on hospice care would be the first day he would truly be living. For six days, they loved as they had never loved. And, they found peace in their sorrow; believing that the gift of CJ’s life was to highlight the abundance in the present moment.

We often torture ourselves with questions we will never know the answer to. And, with odds of .032% of this diagnosis, “Why?” is a question with no answer. Scientifically, it comes down to one tiny missing gene. In the contrast, we can recognize the fragility of life and its magnificence, too.

“Part of living the abundance of life is experiencing loss.”
– Kasey Carmona in a Valentine’s letter to CJ

RESOURCES:

NOT MENTIONED BUT HELPFUL:

CONNECT WITH KASEY:

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NEED HELP?

If you or anyone you know is struggling with grief, substance use disorders, or a mental health challenge, free resources are available HERE and HERE.

Are you enjoying the podcast? Check out my bi-weekly newsletter, The Unleashed Letters.

CONNECT WITH VICTORIA: 

 

Victoria Volk 0:00
Hi this is Victoria of theunleashedheart.com and you’re listening to grieving voices, a podcast for hurting hearts who desire to be heard or anyone who wants to learn how to better support loved ones experiencing loss. As a 30 plus year griever and advanced Grief Recovery Methods Specialist, I know how badly the conversation around grief needs to change. Through this podcast, I aim to educate grievers and non grievers alike spread hope and inspire compassion towards those hurting. Lastly, by providing my heart with yours. In thid platform, grievers had the opportunity to share their wisdom and stories of loss and resiliency. How about we talk about grief, like we talked about the weather. Let’s get started. Thank you for tuning in to grieving voices. Today, my guest is Kasey Carmona. She is a former performing arts teacher turned full time mom to two boys. When her second son was born with a life threatening critical illness. Kasey was forced to surrender herself and her son into the great big hands of love. Kasey, and her adorable family live in Atlanta, Georgia. Thank you so much for being here.

Kasey Carmona 1:24
Hi, thank you, Victoria, I appreciate it.

Victoria Volk 1:28
And I just off the bat before we started recording, this is a relatively new loss for you. And so so thank you for having the courage because it does take courage to share your story on a platform like this, whether it be mine or anyone else’s. So I honor that courage in you. And I thank you for sharing your story with me and the listeners.

Kasey Carmona 1:51
Oh, thank you. There’s something about this podcast to have grieving voices. The grief journey is long, but necessary, is what I what I share often. And I know I’m new on it. And I’m sure that I know I have a long way to go. But where I am now that I do, I do want to share where I am in this moment, and it will change and then months and years to come. But where I am, feels important too.

Victoria Volk 2:23
So what brings you to grieving voices?

Kasey Carmona 2:25
It’s, It’s love. It’s love my son, CJ. As you shared, he actually his first birthday would be next month. And he was born with a congenital heart disease called hypoplastic left heart syndrome. Essentially, it means that he was growing in me with only half a heart. We thought that that was the worst of it. But the night that he was born, we learned that it was much more. And pretty much every major body system was affected by something months later, we would learn that it was because of a single gene deletion. It was a rare genetic syndrome called Kabuki syndrome that caused a multiple abnormalities in his body. And and I just say like the poor baby had a lot going on. That’s what I always say. And he had a lot going on. And we loved him through it. And we loved we loved every bit of him. And that that’s what brings me here is is I think grief is figuring out what to do with all the love and CJ story is worth being shared. I just told somebody it’s it’s both both CJs life and death were beautiful. But there was so much life in His death. That really is the part that I want to talk about. We did something pretty wild I would say I quickly learned that the best way to love my son in the hospital was to advocate and I I advocated on every little thing if he was crying too much we didn’t need to do a temperature check. Just look at look at him. Oh but but the reason why is because they told me if he cried for longer than five minutes it was bad because because he only had half a heart right and so so we couldn’t have him even cry. He’s a baby though babies cry like but the the the amount of suffering that we saw In the hospital, CJ, at three days of life had a 10 hour open heart reconstructive surgery three day old. He was on ECMO, the heart were the machine that pumps your heart for you for longer than most babies. But he just never quite recovered from that surgery. And it’s because of so many things. He had three kidneys, he had a cleft palate, so he wasn’t able to take feeds. But even still, because of Kabuki, he created so much mucus that he wasn’t able to even swallow anything into his stomach, everything went into his intestines. What we had to put a tube into his intestines. Later, it wasn’t until we made a pretty critical choice that I’ll tell you about. We learned that his his brain nor his body grew, I knew he was having trouble gaining weight, but I didn’t realize his brain never grew. And just think about what that the implications of that especially we know that children’s brains have to grow and unfussy. Essentially, as I started advocating of my child needs this, my son needs this, we’re going to do every test every scan with him in my arms, because he cries, if you if you are trying to poke and prod and get what you need, and you’re gonna get a better reading with me holding him, you’ve never done it before. Well, first time for everything, you know, like, we just I did everything that I could. And in early May, we got the diagnosis of Kabuki syndrome, and that that syndrome on top of his severity of hypoplastic, left heart syndrome. It just, it just didn’t. It didn’t sit well with my husband and myself. At that point, we had seen so much in the hospital, and so much suffering, that it was hard for us to, to imagine this to keep going. And at some point, and this is a wild thing for a parent to say and I hope no parent makes this choice. But I believe that there are parents out there that question it at some point, death is better than suffering.

Kasey Carmona 2:27
And that’s a good that’s a really challenging thing to say out loud as a parent to decide that the hope heaven offers will be so much better for my son than what we’re doing to him here. And essentially, we had already been working with the palliative care team at the hospital and the Children’s Hospital. We were at Children’s Healthcare of Atlanta, Eggleston and the team is fantastic. They they are wonderful people. There was a doctor that CJ had a really bad episode I learned later it was his first death contraction. And the cardiologist that was on staff just didn’t know what to do. cardiologists switched out every week, the new cardiologist came in and she said, Listen, I don’t know what to tell you. I don’t know what to do, I guess. But we need to do something. So I guess we’ll intubate him and put him under for a Cath. And we’ll do that procedure. And the language that the PACT team gave us was, we will do things for our son CJ, but we will not do things to our son. And when that doctor said, I don’t know what else to do. So let’s do this. That that was the red flag of we’re doing something to him, not necessarily for him. And and so we worked with the Pac’s team, and we brought in hospice care. And we said we’re done. i We advocated so strongly, we said we’re bringing this baby home on pediatric hospice care. And let me just tell you, for our family, obviously, the hardest, most tragic decision a family could ever make. But it was so beautiful, because our son came home. And I also have Teddy, who at the time was only 1415 months old. And so CJ got to be with Teddy. And they they were pretty much together while CJ was in utero. I mean, it was so sweet the boys. Teddy would climb on my tummy and CJ would kick and like the the boys had this connection, but then to come home and to watch it play out was was just so beautiful. And for us Even though my son was at home to die, court and I believe that CJ is life started when he came home, he spent 84 days in the hospital. But those were the days of suffering. There was a freedom that happened when he came home. And it was so beautiful. I mean, the things that as mothers, we might take for granted with healthy children, just, just even, just even being able to take a walk outside. He at this point, he was still hooked up to his life supports. But I wasn’t able to do that in the hospital, he was connected to a wall. Or because of COVID Our family wasn’t able to see him. And so within two days of him bringing, bringing brought home, we had people come from Florida to California, to Atlanta, Georgia, to say hello to our son. And we had this beautiful welcome home party and we had food and we had ice cream cake and and all the cousins were there. And

Kaseu Carmona 11:18
Everybody got to say hello. And one of the most incredible gifts that somebody gave us was a photographer and she just sat in a corner and took these beautiful candids of CJ. And his it was really the family that came to support us. Not not all of our aunts and uncles were able to make it but but those that came to support us while CJ was in the hospital, we invited back and and most of those weren’t able to meet him. So so they were able to meet him for the first time. And it was it was raining that day. But but I just remember it being so bright like i We live in a 1920s school house. And we have these beautiful 10 foot windows and we just sat we put we put the baby recliner and rocker right by the window and I don’t remember raining I just remember it feeling so beautiful and so lovely and so warm in the house that day. And it just felt so good for us all to be together. I think that this is a familiar feeling. For those that are have loved ones at hospice or loved ones that are going to die or have died. There definitely was a sense of denial. Probably the first time that experienced denial. I mean, because my baby was home like for the for the first time he was home, like how great and I just thought things. How could things go wrong? You know, I mean, this is everything that you could have hoped for granted. He was he was a sick, he was a sick baby. He was a sick baby and it just didn’t feel like that cash. My hospice nurse her name is Lenny’s short talent she she’s also a grief educator and she she is one of those angels on earth. I mean just just a walking saint who just who just tears a woman so close and dear to my heart. And she kept saying where are the giraffe where the giraffes that are looking ahead and there was one day where she she had to look ahead and say all right, I think CJ took a took a bit of a turn. At this point we were only a weekend to our time on hospice and CT was at work I told CT to come home and at that point we we made plans we did a family photo shoot and and we got all dressed up and all my boys are in white shirts and I borrowed a dress from a girlfriend that was gorgeous and I had a friend come and she did my hair and makeup for me so I felt really good and that was such a weird day because I was like I can’t I I’m spending time getting ready and feeling pretty well. I only have minutes left with my son I only have moments left I only have hours left I only have days left like this This feels so weird and and the photographer that took the candid photos Her name is Joy she came back she she was so kindly came back to take these photos and both joy and my dear friend Emily were there and they just were like know what this is you’ll want these for the rest of your life take take the 30 minutes you’re okay you’re still a good mom to put some makeup on and you know put a comb through your hair. But I but I do remember that of like, this feels very vain to me and I actually today my son Teddy went to go point at one of the photos that we took from that day and and I did just think to myself today and this is a vain thought but but but goes along with what I’m saying here of like, gosh, I looked so pretty that day and And I’m just so grateful for other people to speak in and say, take a moment for yourself here and it’s okay. Anyways, we took these photos and they are they, they represent they represent so much of the life that CJ had and their smiling faces and my son he looks so beautiful, he’s his cheeks are full and he’s got his little curly hair because we I wet it before we took the photo so those hair had those perfect black ringlets and, and we, we took photos throughout our beautiful property that we live on and and it was a good morning. It took a nap after because it was a it was tiring. And then after CJs nap, something changed. And it’s it’s a little too painful to even go into it all and I won’t because of the trauma that is still there. But I will say that the hospice team came in and essentially said today’s the day Today’s the day it’s time to take your son off life support.

Kasey Carmona 16:13
It’s time to take them off for CJ it was oxygen and he had that NG tube so I was was exclusively pumping which is amazing. So my breast milk was going straight to his intestines. And and this is This to me is where life and death are on this wonderful continuum. And sometimes it’s hard to see it as a black and white thing. Because this this is really where we started to see all that we can do and CJ is life when you know you have at this point minutes hours left. So what you do what you do when you have one potentially one last night with the person that you love and for us we we made a family masterpiece we got out the paint we got out a big a big canvas board we went outside it was May and it was gorgeous. And we we put different colored paints on on a piece of paper or I think it was a paper plate my son Teddy had blue paint I had the green paint court had gray and little CJ had read and we just stamped with our feet on this canvas and together we made we made our family masterpiece it’s the most beautiful thing hanging up in our home because it’s the thing that we can point to and say we were all together this is the time of our life where we all shared we were all present This Is us This Is us This is where love combined it was

Kasey Carmona 18:27
A beautiful moment we have a meal together and and and then that’s when we that’s when we

Kasey Carmona 18:50
We put Teddy to sleep we brought we had Teddy kisses brother Good night and and then we we took CJ off of his life supports

Kasey Carmona 19:04
That night was was the dark night. You You don’t want to go to sleep because you don’t know what’s gonna happen.

Kasey Carmona 19:17
My husband laid on one side of the bed I laid in the other and CJ was it a one of those? swaddle me it’s like a little a little baby nest. He’s sleeping right next to us. And you know, you just put your head right next to his and and you keep your eyes open even though they’re they’re fluttering shut. You just gotta stay awake, but at some point you can’t. And so so we fell asleep. That next morning, Miracle miracles that baby was still alive. He was still alive. We couldn’t believe it. Um, but At this point he he wasn’t looking good, right? Like, I mean, sweet boy. It was It was wild and, and His breathing was so shallow and and it was hard that that morning we courts aren’t Auntie Helen, Teddy and CJ called her OMA OMO was living with us. And we had OMA take Teddy, we just were like Teddy needs to. You guys can’t see this. This is too, too sad to dark. We stayed actually, in this bedroom right here and too much. Hospice finally came, I mean, talk about an intimate moment. For your hospice doctor and Lenny’s the hospice nurse. That’s the angel to sit on your bed with you and your dying son. That is intimate. And, and they said, Yeah, it’s it’s tonight. It’s tonight. And I just at that point was like, I if you don’t realize that death is going to be so difficult. And so I’m like, you just want him to die as fast as possible at that point. And it was just so hard to watch. A breath, no breath. I mean, it was wild. It was wild. And, and Looney said, I know you want to protect Teddy on this. But I just think Teddy needs his brother, CJ. And CJ needs his brother Teddy. And I think Teddy needs to say another goodbye. And I think they need to be together. I was like how do you let a little baby see this? How do you let a baby see this? This is gonna be wild. But But I believe it. I believe it. I hear you. I believe it. And so. So we call back Oman said come back. We all need to be together. We need to be together. And but we kept CJ in the back room. At that point, CT and I had said our goodbyes. We had made our peace. We had sang songs. CT is an incredibly musician. So brought out the guitar play the piano. I mean, we were doing I had read oversee Jay, I mean, just we set our prayers. I mean just had done everything. So we made our peace. And oh my God came and made her peace to we go to bed that night. Same thing of like, you don’t want to go to bed. But at some point you do. And the next morning this baby was still alive.

Kasey Carmona 22:52
And so I told court I said Thursday that Thursday was CJ is what I call his dying day where he’s we had him in the back room. But we’re not going to do that anymore. Like it’s too sad. It’s not our son, our son is a child of life and love. And so we brought him out into the living room. And this, this is where life and death swirled in my living room. And I am here to tell you this is where CJ is life was absolutely beautiful because at this point, we really didn’t know if every breath was going to be his last and so we really cherished every minute and because he was off his oxygen support. This is where we got to have fun. So we we put both boys and strollers and we went outside and did stroller races. And we we had Teddy push his brother around in a stroller because that’s what you do with a normal baby. And we got out the kiddie pool and we see Jay wasn’t going to be able to be in a pool but but he was able to watch his brother be in a pool and splash around and and we were able to have dance parties where wires didn’t get in the way. And court was able to hold CJ without the wires and play piano with one hand. And we were able to bring CJ in to the bathroom for for bath time and just all the really wonderful normal stuff that once again moms and young moms and dads take for granted or get frustrated because they have multiple children in here. We were so grateful. For every moment that we were we would hold CJ and Teddy would coming climb into our laps to give CJ kisses on the forehead and and this is this is heaven on earth. This is heaven on earth. I’ve experienced it I’ve lived it. My son is live that my son loved it so much that he was he we were told he was going to go Friday, but he didn’t go on Friday. He didn’t go on Saturday. He didn’t die on Sunday. He didn’t die on Monday. We had these and total six days of glorious life. And but it was wild. My son’s organs started shutting down. And and he would he was smelling he was decaying. He rigor mortis, set it on his tongue. I mean, like it was, you’re holding, you’re holding a mostly dead baby, I joked around. I’m a big fan of The Princess Bride. And there’s the scene where where the man and Black is dead. And Billy Crystal says you thought he was dead, but he’s only mostly dead. And my son was only mostly dead. Because there was a part of him that just kept living. He was only taking two breaths every five minutes. And he did that for six days. Because we had set our peace, because we were in this fullness and richness of life and death. That anxiety that I think we feel, I think it’s natural to feel when a loved one is going to die is dying. I didn’t experience it because I was so focused on the present. And that is what the present can do for us is that when we’re so focused on the present moment, and the life that we have in that present moment, it’s just like, everything goes away, everything goes away. And that is a gift that we we do not have to have somebody who is dying to tap into. But but it does take practice to be present. And it is one of the gifts that my son has given me. Tuesday morning came along, and then the energy changed. The energy changed it, it. It felt like that was the day. It felt like we were kind of living on this bonus time. And and it was it was finally time and I did something that I hadn’t done before. And when CJ was growing on me, I felt this compelling sense to journal. And that morning, I read through essentially these love letters to my son.

Kasey Carmona 28:00
It took an hour. But I read every single one to him chronicling out the love that I’ve had from him since really, the beginning but But I started the journal, I got his diagnosis at 22 weeks, and I just wanted him to know like, I have loved you. I do love you and I will always love you. And if there’s one thing that I’m for sure of, I have to have faith that there’s a heaven I have to have faith that I’ll see my son but I do know without without a doubt that love never ends. And wherever my sin is now he is in love. He’s in the hands of love. And that I know that I know cuz I was his hands of love. And then I let it go. And my son finally did take his last breath. It was Tuesday May 25. It had all worked out. We had just just put Teddy down for his nap. He got to say goodnight to his brother. And just 1020 minutes after that. CJ did take his last breath you know I said this earlier in the podcast Your love has to go somewhere. And a love for my son was was so selfless. so vast, so deep. It kept it kept going and going. And it’s something that I I’m not sure I can take credit for i i believe If that the source of love for me, that’s God was the great well, that sprung up on a moment by moment basis for me to get out of myself. And to truly, but everything I have into the life and the death of my son. And so now I’m, I’m coming to terms with with what I did. And that’s a process in itself. And it’s a good one. It’s a good one. But it is long. And at times difficult. It’s one that I, I don’t regret, and I would do over and over again to

Victoria Volk 30:53
Y’all can’t see me. But I have been crying this whole time. So sorry,

Kasey Carmona 31:03
Thank you. It’s tragic. But every death is tragic. It’s all tragic. Every loss is tragic.

Victoria Volk 31:10
So tragic. Highlight something you said. But I gotta grab more tissues.

Victoria Volk 31:27
It takes, It takes courage to share your story. But it takes courage to face death, but embracing it not shutting it in the back room. And if there’s anyone listening to this right now, there is such a gift in facing and embracing death in an opportunity that could be missed when you shut it out. And if there’s anything that my death doula training taught me, and in watching my own father die, is that giving yourself and your loved ones, like little boy, the opportunity to grieve with you, that was such a gift you gave him? So I’m so glad that you had that mentor there in that guide to share that with you because that is a moment. And people might say he won’t remember that. He will. And I will say that he will.

Kasey Carmona 32:30
Okay, well, I will I it’s gonna live in his body. And I’ve sweet Teddy struggled a lot this summer. So did I Right. And, and there’s there’s organizations here in Atlanta, Georgia, that we’ve already tapped into, and his pediatrician knows the story and will watch Teddy for his whole life. And because I it was a beautiful death, he still saw death at a young age, but, but to your point, my hope is that it’s not a scary thing, that that’s so many of us believe it to be. And rightfully so. I mean, there are aspects of it that are scary, but but by embracing CJs death, we recreated this beautiful death. And I, I there was so much life and his death. But but that was CJ like CJ just kept saying, like, he brought the life and so

Victoria Volk 33:39
You answered his call. It was like, coming to look at these legacy projects and end of life doula training, when we’d work with a family, on hospice, it’s the idea of involving the whole family to create a legacy project. That’s what you’ve done. That’s what you did. And you have this beautiful Memento and kudos to that for that friend who got the photographer. I used to be a photographer, Julie now what a gift what a thoughtful gift. So if you are listening to this, and you’re like, I don’t know what to do, I don’t know how to help you. You’re listening to ideas today, like hear this? You know? This wasn’t the first loss for you. Was it? No. It wasn’t the last. So what has that experience? What has CJ taught you about grief? And about life and you know that

Kasey Carmona 34:44
It is I’ve allowed myself to feel every single thing I need to feel if something bubbles up. I don’t push it down. I don’t say I’ll get to it later. I just let it come Lenny’s the grief Decatur shared emotion is you gotta move it through. And so I, I am choosing to move it all through. And so I, I am grateful for those that are willing to sit in the side with me. But also, we can have some good moments together. And I think learning about learning about my own grief, I am somebody who’s pretty external. And so writing has been helpful, talk therapy has been helpful. Sharing CJ story has been helpful. These things have have really given me insight, more insight into to who I am, and, and also but, but how how see Jay’s life has affected more people than what I realize. And yeah, I think before CJ was born, it was Valentine’s Day, and I wrote a letter to him. And there’s a line in that letter that I’ve been thinking about a lot recently. And I wrote, part of living, the abundance of life is experiencing loss. We choose to tap into that abundant life. And that’s it. That’s just the thing. It’s abundant. And when it’s growing, and it’s so much and it’s so full, of course, of course there’s going to be loss for me was how quickly did I accept that loss is for me, I’ve learned the sooner that I can accept a loss, the faster I can get on with the grieving process. That’s that’s how it has worked for me. And because when you wrestle with the why, when you wrestle with some of these existential questions that you might not ever get answers, I found you’re just delaying the inevitable of the accepting. And then this healing process can begin. When we realize when we choosing to tap into this abundant life, there’s going to be loss, but loss, a loss is always going to be hard. But because something is hard, doesn’t mean that it has to be bad, there can be good, doesn’t mean that it is good, but there can be good in it. And that’s a perspective, that’s a choice to make. It is not good that I lost my son, that is tragic. And it is so sad. But we found good in the loss. And I think it’s because we accepted what was happening. And it allowed us the freedom to just be present and to feel all the fields. And at that moment when my those six days while my son was mostly dead. I will I will say I buried everything pretty deep. But I but I purposely did that because I I wanted my son to have the absolute best. And and I think that’s also something that we do as mothers we, we regulate, we choose when when to be vulnerable, and when to show what we need to show and that wasn’t the right time. And I’m proud of that choice. I’m proud that I made that choice. But now as Teddy is watching me grieve, he watches me cry. And he watches me struggle. And I just say mommy sad I missed your brother, because I want him to know I want him to know that. This is part of living the abundant life that we’re in court and i weakly say, we have such a good life. I think that there’s probably people out there that would say Woe is me. And I hate to say to you, but there’s still so much good out there that you just have eyes to see it. A heart to believe it. I think that’s what grief has taught me more than anything else is that there’s still so much good despite the hard

Victoria Volk 39:28
What kind of question says Teddy asked are things that he well,

Kasey Carmona 39:35
Yeah, not too many. He’s he’s going to be too. Oh, gosh, this month. So so he’s, he hasn’t really asked questions, but he’ll point he’ll point to CJ a lot. We have pictures of him up and we have our masterpiece painting hanging up and so he’ll point to that every night before we go. As we talk to Teddy n, as we say, nightie night and we love you, we go like this, we put our hand over our hearts and we say CJ is in our hearts. So if you if you asked Teddy where CJ he would go like this, he’d put his hand over his heart. And I’m sure the time will come will he’ll start asking Lenny’s suggested the book, the invisible string. And so we read that regularly. And there’s a part where it says, There talks about the uncle in heaven, and we, we say, CJ and heaven. And so we are an open family about it, and I am. I’m really thankful for that. And I use the D word I use die. Because I also think that’s important too, especially for, for sweet Teddy, who, you know, children take things so literally, and so if we, if we use certain language, I want Teddy to, to not be afraid of sleeping or loss, but but knowing like this is this is death.

Victoria Volk 41:09
Well, and not only that, but if you don’t share the truth, they make up their own stories. And as they will make up their own stories, wow. So it’s very important that you be honest and truthful, to the, to the extent that in language they can understand at the time.

Kasey Carmona 41:35
Okay, that’s good to know,

Victoria Volk 41:37
What gives you the most hope for the future?

Kasey Carmona 41:41
I’ve been feeling that the spirit of CJ is the spirit of generosity. And his life gave so much to so many. And I hope that we can be generous with the help of our friends and family and do some kind deeds, especially for the Children’s Hospital here in Atlanta, and memory and an honor CJ, that that gives me hope.

Victoria Volk 42:09
Do you want to share a little bit about because for those that may not be familiar with Kabuki because I’m not right, is that what?

Kasey Carmona 42:16
Yeah, commemorate, yes.

Victoria Volk 42:19
How rare is it? Is it genetic?

Kasey Carmona 42:22
It’s a genetic syndrome. Yes. And it, it’s genetic syndrome. It was de novo. And CJ, which means new to him. However, if somebody does have Kabuki syndrome, and maybe it’s a mild case, they don’t realize it, that it can of course be passed along. It is very rare. It’s, I think, point zero 32% chance of a child getting it and it was a fluke accident. I was it was unlucky as what doctors say. And it caused this one genetic gene deletion caused a slew of issues in my son, and it’s just wild to think about one tiny gene was missing. And it just, it just makes you pause and reflect on the miracle of humans, childbirth, babies. I mean, there’s just so much like, gosh, so anyways, the the syndrome itself, it’s called Kabuki because the children typically have these big eyes that kind of are slanted a little bit. And these big, beautiful eyelashes, and it was named from Japanese doctors who thought these children looked like an art form a theater form in Japan called Kabuki and so it’s named after this, this theater tradition that the traditional makeup is big eyes and big eyelashes. And so, so CJ had the big eyelashes. But actually, it’s a it’s a Carmilla future too. So that’s so funny. There was so much we were like, is that Carmona or, or is it just Kabuki you know? It’s hard to hard to know. Anyways. So it is very rare. And one of the things that helped us make our decision is in literature and medical literature. The cardiologist that also dealt with genetics could only find 12 cases and all of medical literature history of children that had both hypoplastic left heart syndrome and kabuki 12. I’m sure there’s more out there. But but only 12 had been written up, the odds were not good for us it was. It was essentially, five, did what we’ve ultimately chose to do. And said, We’re done with palliative care surgeries. Seven, did not live. And then three tried to do the next round of surgery, but but also the end, I guess, had lived but maybe didn’t live up until, like eight. And so that that helped inform our decision. And because it was just so rare for the to Kabuki syndrome can cause heart defects. But hypoplastic left heart syndrome is the most I know most is it is one of the top in severity of, of heart defects. And so that that is kind of the mack daddy of the mall. For this case of a genetic abnormality of the heart. And anyways, so. So there are several families out there, I’m in a kabuki parent support group, there are several families out there that that have children that are, are

Kasey Carmona 46:38
That are doing as well as they can with Kabuki I, I personally look at those families. And I see how hard it is. And that there is a part of me that, that is grateful that we did not keep our son alive, just to keep him alive. That is a very difficult statement. And I know that is incredibly controversial. And it’s just for our family, we chose quality over quantity. And I think the hospital would have kept CJ Alive for a long time. And I look at some of these children. And you know, CJ wasn’t having seizures just quite yet. But the seizures, we’re going to start and there’s just so hard, I just and you know, he would never be able to eat. I mean, just like, and with his brain not growing. He, he would obviously have some severe challenges to do any normal, quote unquote, normal, functioning. thing. So yeah, i My heart goes out to those families. Because it is it is a it’s so hard, and it’s worthwhile. But it’s worthwhile. Like it’s so it’s beautiful. And it’s I know that they’re doing the best that they can. And there’s this like, there’s just I think, I think for me, it’s just hard to watch children suffer. It’s just hard to watch children suffer.

Victoria Volk 48:16
Dr. Chris Kerr was on my podcast a while back and he’s a hospice doctor, physician and has researched and have life experience when those in hospice care and he was talked very openly about how medical community medicalize dying, and how society overall medicalized is dying. So that made me think of you sharing that. And I had that question in my thought in my mind, and you went right to it in and in your story, and ultimately ended up bringing them home, to have a good death, really. And that’s what he talked about in that episode in how, again, there are opportunities to really embrace that process rather than medicalizing it and having an experience of separation. And, like you said, denial, trying to throw everything but the kitchen sink at something that is inevitable. In the medical field, too. It’s like you’re not supposed to do harm. And I think as human beings, the spirit within us, it’s really hard to ask ourselves in those moments, like what would I want? And then do that for your loved one. Right? Yeah. So what would you like to scream to the world? You got a microphone and had

Kasey Carmona 49:45
Oh, man, I think you just said it. For me. It’s, it’s if you are in a place where just things are not going right. And you can see the writing on the wall, no one told us to bring that baby home No one, no one in the hospital told us to do that. It’s what we felt CJ needed to have that beautiful death. And because we were tired of throwing everything but the kitchen sink at at my son’s life and not getting anywhere, and then just seeing him more, more hurt, more poked and prodded and tested and, and our 15 days at home, were so beautiful. And I, I wish, if there are families that, that are wanting that or thinking that they can do that, too, but But it requires acceptance of really what’s coming, it requires a good team around you that you can trust and talk through. I mean, for us that palliative care team at the hospital was really important. And and it requires this very selfless love, to put all your feelings on hold, and to give trusting that deep well is going to supply what you need. And it will, that’s what love does. So I I really, I really hope that there are there are people out there that that might be afraid of death or afraid of the inevitable or, or afraid of what’s to come. But I’m practicing the present and being joyful in the moment because that is what we have right now. There is beauty. And there is good. And the now is all we have really to embrace it fully. Is that abundance of life.

Victoria Volk 51:45
Beautiful message. Is there anything else that you would like to share about any other losses that you’ve had been shaped by this experience? Maybe that were different or anything about CJ, you’d like to share? Anything?

Kasey Carmona 52:07
You know, I think for today, I think this is what I needed to share for today. Yeah. Thank you. Thank you.

Victoria Volk 52:17
Thank you for sharing, beautiful story of life and loss of CJ. But as you shared, he lives on in your hearts, and no one can ever take that. Again. Thank you so much for sharing your story today. I think it might need to take a walk and be in the present moment for a little while. You beautiful shares. Thank you so much. And where can people reach you if they would like to find me? Yeah, well, you connect.

Kasey Carmona 52:54
I I’m on Instagram right now. It’s just my first and last name and are on Facebook to its Kasey Carmona. Both of those would be great.

Victoria Volk 53:06
Okay, I will put the link in the show notes. Okay. Thanks. And remember, when you unleash your heart, you unleash your life. Much love. From my heart to yours. Thank you for listening. If you liked this episode, please share it because sharing is caring. And until next time, give and share compassion by being hurt with yours. And if you’re hurting know that what you’re feeling is normal and natural. Much love my friend.