Grieving Voices Guest, Grieving Voices Podcast, Healing, Parent Loss, Podcast, season 5 |
SHOW NOTES SUMMARY:
In this heartfelt episode of Grieving Voices, Chris Cochran shares the inspiring legacy of his late son Christian, who faced terminal cancer with remarkable positivity and resilience. Despite his illness, Christian lived life to its fullest up until his untimely death at the young age of 23—all while asking, “What’s good about today?”
Christian’s spirit continues to inspire through Chris’s nonprofit, What’s Good About Today?, and the book that bears the same name. Today’s episode highlights how Chris and his wife navigated the highs and lows of working diligently to get Christian the best possible care while supporting their other children. They then grappled with the profound loss of Christian, emphasizing patience, love, and being present as crucial elements in healing.
Key takeaways include acknowledging that each person’s experience of grief is unique; fostering an environment rich in understanding and compassion can aid healing amidst life’s unpredictability. Chris’s story also underscores a shift from material pursuits toward deeper spiritual connections post-loss—focusing on empathy over goals.
Chris recounts how he’s felt Christian’s presence following his death and how the ongoing relationship with his son has supported his healing.
This conversation is a powerful reminder that even amid tragedy, there is potential for enduring hope through community support, and living purposefully driven lives filled with kindness ensures loved ones’ legacies endure.
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CONNECT WITH VICTORIA:
Embracing Positivity and Resilience in the Face of Grief
In a poignant episode of Grieving Voices, Chris Cochran shares an inspiring narrative about his late son, Christian. Through this heartfelt discussion, we uncover invaluable lessons on resilience, positivity, and the enduring power of love amidst profound loss.
A Legacy Built on Positivity
Christian Cochran’s story is one that resonates deeply with anyone who has faced adversity. Diagnosed with terminal cancer at a young age, Christian chose to focus not on what was lost but rather on “What’s good about today?” This simple yet powerful question became a guiding mantra for him—and later inspired both his father’s nonprofit and book under the same title.
Despite battling cholangiocarcinoma—a rare form of liver cancer—Christian maintained an unwavering zest for life. He excelled academically, graduating magna cum laude while nurturing various artistic talents. His journey serves as a testament to living fully even when time feels limited.
Navigating Grief Together
Chris describes how he and his wife navigated their grief after losing Christian by seeking therapy and leaning into each other for support while caring for their two other children who were also profoundly affected by this loss. Their experience highlights the importance of acknowledging individual grieving processes within families—a reminder that patience, empathy, and presence are crucial during such challenging times.
Through candid conversations like those featured in Grieving Voices, listeners gain insight into coping mechanisms necessary when dealing with familial grief dynamics; understanding compassionately fosters stronger bonds amid life’s unpredictability.
Inspiring Change Beyond Loss
The ripple effect left behind by individuals like Christian extends far beyond immediate family circles—it inspires communities toward purposeful pursuits aligned more closely with personal values than societal expectations alone might dictate otherwise! Friends influenced positively have embarked upon careers centered around helping others due largely because they witnessed firsthand how someone facing immense challenges could still embody hopefulness every single day despite everything else happening simultaneously around them too!
For Chris himself? Sharing stories publicly through speaking engagements offers healing opportunities alongside connecting meaningfully amongst fellow grievers experiencing similar emotions firsthand themselves perhaps unexpectedly so initially until realizing newfound camaraderie exists naturally between all parties involved ultimately leading everyone collectively forward together unitedly towards brighter futures ahead regardless past tragedies endured previously now finally being processed constructively instead destructively anymore thankfully indeed…
Episode Transcription:
Victoria Volk: Hey, hey, hey, thank you for tuning in to grieving voices. Today, my guest is Chris Cochran. He is a father, husband, and founder of Blue Chip Solutions, inspired by his son, Christians, enduring positivity, Chris authored what’s good about today to share a message of resilience and gratitude. Professionally, he has over three decades of experience and leadership roles across various industries and serves on the Board of Coeptis Therapeutics. Through his nonprofit, also named what’s good about today, Chris is committed to spreading kindness and hope. I hope I said that right, coeptis Therapeutics. Is that correct?
Christopher Cochran: That’s right. Yeah. Great. Much bigger that.
Victoria Volk: I am on a roll, and it’s on Tuesday. So thank you so much for being here. And I before we hopped on, I was actually checking out it’s your son’s the website is christian cochran dot org. Correct?
Christopher Cochran: Correct. Yeah.
Victoria Volk: And I was reading a little bit about how that the backstory of why that got started, but I will actually leave that to you to share with our listeners why what’s good about today came to be?
Christopher Cochran: I lost my son to cancer, terminal cancer in two thousand and twenty one. Christian was diagnosed at the age of twenty to with something called cholangiocarcinoma. He just graduated college. He was everything was going swimmingly. Everything’s been going well. Obviously, he’s a family and, you know, sort of back story to this is, you know, I’m I’m married to my high school sweetheart. We’ve been together since I was fifteen years old. So our dream has always been to build a family together. And you know, we knew early on, we wanted to name our son Christian because the the name had so much importance. Right? Christian, it means what it is. We are Christians and we knew he was destined for something very important in this world and he didn’t he didn’t fail us on that because, you know, even as a young age, he showed this incredible form of empathy and just, you know, understood how life really worked even at a young age. He had great compassion and kindness whether it was at Christmas time, she wanted to give his his gifts away to his friends. I mean, whether it was just we used to refer to him as mister Comfort as a child because he had a way of comforting us when we were not feeling well or not doing doing well. So he he just had this incredible knack. And that kinda carried all the way through his life as a teenager. You know, I always think he kids as being teenagers. They’re horrible. And their Christian was fantastic. He was just a kind and gentle soul to everyone.
Giving of his time, his love, always said he loved you. And then, you know, Christian, very talented by the way, but his biggest talents, of course, were his kindness. Christian went to college, he graduated Magna Kamblad from from college, from the Honors College here in Pennsylvania. And, you know, when he got home, he started to experience some back pain, we took him to doctors, it seemed to be, you know, he was healthy. You know, everything about him was healthy. And he got physical therapy in his back, but this didn’t seem to change. But as it got, you know, in the summer months of two thousand twenty, his pain became overwhelming and so went and course, we had blood tests and ultimately he had a CT scan to be safe. And I remember them saying, hey, they found a lesion, a scar on his liver. And of course, you know as a parent, you’re like, okay, that’s not so bad. We can, you know, you know, that could have been from birth or whatever, and then they said you need to go to Hillman Cancer Institute.
And I remember thinking, oh, no. What does that mean? I kept reassuring Christians. Okay. Now Christian through this whole thing is, It’s okay. I’m not worried about it that. You know, it’s still going to be okay. Reassure this whole family. But we went to the hospital, and this is during COVID, so I can only go with Christian. And I’ll never forget, you know, just before they walked in and telling Christian, it’s gonna be fine. You know, they were gonna sort of talk to us. Five coats walked in the door lapcoats with the mask, and I could I could read their eyes in that instant what they were about to deliver to us that I knew was gonna be life changing for Christian, life changing for his family and his friends, and ultimately they told Christian that he had a great fruit sized tumor on his liver and that this was cancer. And that it was likely terminal. At the time, we weren’t fully positive, but I think Christian knew because he asked the doctors immediately. And I money started to shake. I I started to go black. Christian put his hand on my shoulder. He looked me in the eye. He said, dad, don’t worry. Everything’s gonna be okay. Once again, comforting me in the worst of moments for him. And he asked him how long did he have to live? And he he they when they answer that question rightly so, I assume. But I knew and I think Christian knew this is what was gonna happen. Of course, we left, had to go home, had to tell his mother, what had transpired. He had to be there with us. And I remember my wife and I telling Christian that says we’re we’re obviously in shock and sad and just saying Christian, we’re so sorry that you have to go through this. You know, what this has happened to you. And I remember Christian saying, dad, mom, don’t you know, it’s okay. I would rather this happen than me than anyone else. This is my burden to take. And, you know, again, he just showed us his his way of comforting us. I can tell you that Christian not a single time from the moment he got diagnosed. To the moment he took his last breath on September first of twenty twenty one about a year later, did he ever complain? He never said, why me? He said, dad, how could this happen to me? He did the opposite. He would say, what’s good about today? And so it was his way of showing us that even in the worst of moments, in the in the most tragic of circumstances that you can truly find goodness in moments. And so he used to remind us of that. He used to say what’s good about today when we would cry and we’d be upset. We’d try not to cry, of course. Remain very hopeful. But we knew the circumstances. You know, Christian had a less than one percent chance of life even to get the five years. And with cholangio carcinoma, which is by layman’s terms called Biodec Cancer. It’s mostly seen in old people, Southeast Asia. It’s not something you find for a kid in North Pittsburgh, you know. And he so he we knew the I knew ultimately what was going to happen here. And and in young people in particular who get this, when they get it, it’s very rare.
They don’t live past six months. So, you know, we knew we were up against the fight. And so the so to to answer your question, it’s a long story to get to it, but the point being is that Christian used what’s good about today to remind us of the beauty that you can find every day even in the the most difficult of moments. And that’s what I try to do is to, you know, remember that constantly so that I can put that out into the world, remind people that, hey, here’s a kid who had everything going for him. I tell you he had everything going for him in this life.
But he was handed the worst worst thing you could ever ask for. And he turned it completely around and he thrived. He he got a job. Who goes and gets a job? With a major company because we had to stay in turn. He he took a job for four months. They hired him. He was honest when he said, look, I’m not gonna be around in the year. Just so you know. And they were like, it’s okay. You know? God bless them for doing that. But he wanted to show us and guide us that his life hadn’t stopped. And he wasn’t going to stop showing his other his brother and his sister that and us, that he wasn’t gonna stop. He was gonna continue to move forward. He he made music. He did podcast. Which are still out there and they’re very good. And he just he just had that way about him and he laughed and he he he always was making you laugh and so he was just an extraordinary human being. And I just wanna help in you know, I’m inspired by Christian, so that my job is to continue to get that message out as much as I can.
Victoria Volk: Sounds like he was an old soul.
Christopher Cochran: Yeah. He was an old soul. He probably lived five other people’s lifetimes, you know, in in the short, you know, twenty two, twenty three years of age. He had traveled the world. He had been to India. He had been to to Prague. Study abroad, state of abroad in India. He’d done a lot. He lived big. And when I say big, he was, you know even as a character, he was the lead in every musical and every play. He’d been nominated for Gene Kelly, works here in Pittsburgh, which are a big deal. He was a kid who had already done it, been in a major motion picture. And he was moving everything forward. But I think instinctively he knew that I think he knew his life was gonna be short. That’s probably why he lived so big. And we just I think it makes sense. I guess now in a sense, how big he lived that that that it was so short, but but that’s that’s what we have to deal with today. That was three years ago. So, yeah, he passed away.
Victoria Volk: What was he studying in college?
Christopher Cochran: So Christian was an international studies major. He minored in Asian studies and he was a theater minor. So he was also in in college. He was at he would be in plays and things like that. He was in comedy troops. He was also on the he was also a d I say, I can keep going because there’s so much this kid did. He was a local limelight radio station in in Indiana, PA. He was also on there as well. So which we love to listen to and just his parents, we were so happy. We loved just hearing his voice. And so, you know, we listened to him. So, yeah, that’s what he studied. And, like, he he loved the travel. He was a minimalist too. You know?
He wasn’t he was an extreme minimalist because, you know, I do pretty well for myself. You know, I’m not I always have and do well, and my kids have always been have been lucky enough to live in a a nice home, nice neighborhood, and nice cars, and all those things. Christian was such a minimalist. He didn’t even like to drive our cars. You know? He was he he just didn’t he thought any of that stuff was too showy or, you know, the act of just packing a suitcase was enough for him to to go somewhere to to meet people. Whatever was on his back was fine with him. He was very authentic extremely funny, but at the same time, incredibly compassionate about a fellow man. Just incredibly compassionate. And there’s and I’m I knew that. But, you know, as when you’re some your your son passes, your child passes, and things start to pour on. You’ve been on the website Christian crocodortorek. You can see the messages, the stories that just pour in of the legacy that he has left. Upon so many and continues to this day to leave on so many. There there’s not enough earthly words to use other than they’re extraordinary. And I’m I feel so privileged that I got to be his dad.
Victoria Volk: We never really understand or know our impact, do we?
Christopher Cochran: I think Not till we’re not here, I guess.
Victoria Volk: Yeah. Yeah. What’s your favorite memory of him? Do you have a few or one that you would like to share?
Christopher Cochran: My favorite, ma’am. Well, I mean, of course, there’s so many. There’s no real favorites. I think anything where I got to be in the light of Christian was my favorite moments. I don’t you know, he he was funny. His jokes were sometimes his jokes were so they were so big. They they went over my head. They were like multilayered jokes. I and he had this because he was incredibly intelligent too. Right? He was just he had a photographic memory. He he could he had a quick wit, which can, you know, you you if you you heard his pockets, he’s just quick witted. He understood things quick. He was very knowledgeable. But, you know, my my best memories of of Christian and best stories of Christian their stories, of course, while he had cancer that are funny, But, and I can tell you that one, you know, I don’t I like to focus on the things when he didn’t have cancer, but I can tell you that I went on a long walk with Christian up to the point which, you know, he used to go on walks because I wanted him to continue to be, you know, walk and keep himself healthy and eat right and and we would go on these walks.
And it was one of the latter walks probably three months before he passed away. I don’t remember walking with him. And I said to Christian, Christian, what what regrets do you have in this life? You know? What what can you what can you put on to me? Because I always looked at Christians like a philosopher. He understood things so deeply. And and he said, dad, yeah, I have one regret. I do have one regret. I hung on every word of that regret. I said, what what’s the regret son? He was probably, like, something I did wrong or something. I yelled at the number. And he’s, like, no, dad. He’s, like, I did too much homework, and I I just started laughing. I said, what do you mean you did too much? There’s no, I I mean it that. That’s the biggest regret I have in this life that I’ve been on this earth is that I did way too much homework. I could have been doing other things, you know. And it was just and I used to just laugh because he hardly did any homework. You know? I mean, he really didn’t. This was the kid. I tell you this. His roommates would laugh because and and be so jealous a Christian. He would go to class. He never bought a book. I never had to pay for a book for college. Ever. Think about that.
He meant he he just would go to class. He memorized the information. He would take class. He was a straight age student. I remember his first year in college, he looked at me. He goes, because I was always on him. Like, you gotta get in. You know, you’d be good student. He goes, he looked at me. Is this a big scam?
Is this a scam? I go, what he means is this a scam? He goes, college seems like a scam. It’s too easy. I don’t understand. Now he’s in the Honors College too, so they’re pushing them. You know? But he he just he he yeah. He he didn’t like to do his homework. I buddy, clearly, he said he did too much homework. But he was just that made me laugh and and, you know, there’s he he just he had this incredible laugh too that I loved to just be in the aura sometimes the last year of his life, I moved all a lot of his he liked video games because he got to speak to his friends, you know. And this is during COVID. And I I always positioned my chair in the living room where we’re at that I could get a glance in to see him play his video games because I I just like watching him. You know? Because he was funny.
And he was making jokes, and he and so so I found that, you know, those moments were Christian. It’s it’s his laugh and his stories, his jokes, his his comedy, and just how he made you always feel made you feel good. He was the grown up. He was the only grown up.
Victoria Volk: You know, parents that have lost a child, especially, like, with a terminal illness. Well, I I would say anybody who has a family member that’s diagnosed with a terminal illness. There’s this phase of denial, I suppose, even towards the end, you know, it’s really difficult to let go and accept what’s happening. What did you how did you navigate that for your you and your your wife? And what advice would you impart on to people listening to this who find themselves in the same situation?
Christopher Cochran: That’s a tough question because, you know, everybody goes through it so differently and how they manage this. I mean, I’ve learned a lot, of course, after the fact, right, to so I can impart some knowledge whether someone is going through it you know, I think someone would tell me that, would I be able to take that information properly? I’m not sure I could. You know? I have learned that I’ve learned two things. One is to be humble before god. That’s my most important, you know, I’m always humbled, you know, then I I’m not I’m not worthy of his love. The the second thing is, you’re not in control. And when you realize you don’t have the control, you you kinda let go a lot of things. You can flow a little bit easier in this life, I think. But to answer your question during that time, I’ve been around and I’ve listened to your podcast, you know, and I’ve heard people talk and some people haven’t been around the end of life situations. They’ve either, you know, it’s new to them. And for me, you know, I was raised in a Luthrom family. I’m a catholic now, but who’s racing a Luther and a strong mother who was very religious. She took me a church all the time. I was an altar boy, you know, all those things. But I would my mom would take me to nursing homes, and she would So death was always sort of part of life. I understood that as a kid. I never I always accepted that as sort of the reality of how life was going to work. Certainly, it’s not I don’t like the reality that my child is taken from me. It’s in the natural order that your parents go and I’ve lost my parents and I know what that felt like and doesn’t feel anything like this. It’s different. This is like sticky glue. It’s so stuck on me. I can’t you’re never gonna get it off if you can’t. But I think The answer to your question is, I think from my perspective and how we navigated that, for me, I understood the ultimate outcome. I knew early on what was going to happen. Now, I never told my wife that. I never told my, you know, they were looking for hope. Right? And I always gave hope. I’m not a downer guy. I’m and I did. We worked very hard and we went to every doctor in the world. We went to the best facilities around this country. It had the means by which to do this. I was fortunate. Christian felt guilty. He’s his he’s dying. He feel guilty. He felt privileged. He said he felt so challenged by the guilt of that we gave him the special privileges to meet with the best doctors in the world on this, to try to solve this problem. He got on the best possible drugs, DNA’s and RNAs and sequencing. I mean, the amount of things we went through to save this kid’s life was not good enough. And but I knew ultimately time was it was always ticking in my head. Clock was always ticking. And I could hear the clock ticking constantly. And I think for my wife, I tried to shield my kids and my wife from those those the reality of that. It’s only towards the end when his body would break down in the last month when you could see what cancer does to the body and everything. But, you know, Christian remained humorous to the very end and continued to think about us to the very end. But I think the way you navigate the only way you can do is is to to push yourself forward to know that you just do the best you can. That’s all you can do and show immense love for one another. And know. You have to show love for one another when it ends too. Because that part that part of the year is extraordinarily difficult. I try not to think about it. I write about it, of course. But it’s even difficult to even think about it because there’s so much that went on that was difficult to go through, especially the last the last month and a half. But afterwards, it’s incredibly difficult for families. And for husbands and wives, statistically, they don’t stay together. And families fall apart because we don’t understand each other’s grief. And that’s true. I can tell you for the first year, I didn’t understand my wife’s grief because I might she’s grieving to me. Who else can she grieve to? And I’m and I’m grieving to her. And you cannot when two people do that, one has to, I suppose you have to listen, you have to be able to absorb it. As best you can and be there for that person to and recognize that each person is going through grief very differently. My kids are going through. Just lost their best friend, their brother. And how do I, you know, how do you navigate that and and be compassionate and patient? And so I think give yourself patience and love and give it as best you can to everyone around you. In the end, it it never gets I like to get better. It just gets it gets a little smoother, I suppose. He gets his arm is rough. And you can navigate a little bit better. You can navigate this life daily a little bit better. That’s really how we do as a family. We navigate it. I navigate life daily. It’s a daily thing. I don’t look in the past too much and I really don’t look to the future. Because the future is uncertain. I have no idea. Witten is something that I thought I understood. The future was so bright, but it got taken from me, and the family and from Christian. And so I can’t look too far in the future. I know what I have today. I know and I think that’s important. Be present. Be grateful for the moments that you have. And And if you know you’re you’re someone who’s gonna pass and and I knew with Christian, I memorized every crease on his body possible. I have it. It’s locked in my head. So I I think it’s just just making sure you do those things.
Victoria Volk: So what did that look like for you and your spouse and then holding the weight of your children’s grief as well? I mean, did you seek support each of you individually outside of each other?
Christopher Cochran: Yeah. Well, the first year, I think anybody goes through this and just doing my research, you may know better than I, but for us, it was like being a zombie. Is this if it didn’t even happen? I couldn’t even tell you that year what I remember. To me, it’s just a complete black hole because it wasn’t I wouldn’t even say it was bad. If this makes sense because the second year was the worst. And the third year is horrible too. You know, I’m in my third year. It’s still not good. I mean, it it I still it’s worse than the first year because the the first year you’re in such shock that life that turned on the dime so quickly And that happens to families all over this this world. Right? The life gets turned on the diamond an instant. And a second, life can be so beautiful and perfect. And then it gets turned and you’re upside down and you have no idea what’s Why would this happen? And you asked those questions of why God? Why God you do this? Why could you have done this to us? You know, we’re a good family. We go to church every week. We love each other. We’re always trying to do all the right things. That’s asked of us. And it still happens to us. So once you get past the whys and all those things and acceptance, I think for us it was, yeah, we did go to therapy. I’m not a therapy guy.
You know, not a a guy. I I’ve I’ve tried it, of course. And that’s a that’s something for individuals what they whatever they want to do, what’s good for them. Right? That’s why we say grieving is different for every single person. Part of my grieving or part of my therapy is talking to you. Part of my therapy is being able to talk about Christian’s story, writing the book, having interactions with others that gives me the chance to express whatever I feel and be authentic to that. Right? But I do therapy when my wife will ask me to do therapy. If she’s going and she says, hey, let’s go as a couple. I want you to come with me. Whatever she wants, I will do that. That’s no, I will do it in a heartbeat. It’s no problem for me. And I’m fully engaged with that. But you just don’t feel like I find when I come out of therapy, I feel worse. So in some ways. Because I’ve I’ve I’ve because I it is a safe space that I unload a lot in my head. And and some people can go, oh, that must feel good because you get everything out. But for me, it’s like I just unloaded and it’s too it’s it’s just I it resonates too much in my brain and I’m I’m you know, I think for for me as a person, it’s just it’s difficult. But for for most, my wife, it’s great and it works. Yes. That define the right person who’s compassionate and loving and English sentence and there’s no judgment. And if you do that, you it’s a wonderful thing. Very important to navigate it.
Victoria Volk: Your other children there close in age to Christian?
Christopher Cochran: His sister is fifteen months younger than Christian. Yeah. So they’re like, you can wait just beyond the Irish twins, as they call it? I think it’s what did the twelve months or something. Yeah, they’re like Irish twins, best friends.
She went to the same college she went to. All my kids go to the same college. It’s about an hour and a half away from here. And, yeah, they were they’re best friends and they were at college together, and he wrote all her papers. He poor kid.
He was she would rely at them. But
Victoria Volk: Maybe that was that homework he kept doing.
Christopher Cochran: Yeah. It was. It was. He was always doing things and he’s he didn’t just do it for my kids. I mean, he didn’t have his friends like friends at prestigious schools like Purdue and amazing schools and they go, Christian, I need help writing a paper. Can you help me write something and come up with ideas? And he was that smart. He just come up with great ideas and help, you know, he’s a beautiful writer. His matter of fact, during Christian’s cancer, I put this it’s actually, I think, on his website, Christian wrote his his entrance paper, just, I guess, I don’t know what they call that, but his entrance to get into grad school. So this is a kid again. In the summer, he passed away September first, he applied for graduate school in, I think, June or something, May or June. He got accepted. His paper was beautiful. And it was just all about, you know, how privileged his life was, how fortunate he has been, and he wanted to dedicate his new his life. I mean, if he survived, that he was gonna dedicate his life to helping those who were left alone with this awful disease. He wanted to be with I mean, he wanted to go over he felt that the world there were a lot of people dying overseas that had this disease. That were dying alone with someone not with them, and he wanted to be with them. So, you know, it’s a beautiful paper, well written. And so, yeah, his sister you know, was fifteen months par you know, below him. Totally different than Christian. She’s she’s in the wild one. She’s just full of energy and what was causing trouble. She’s sort of in between two boys. I I my youngest is a boy. And so she’s, you know, she’s got to fight with those two boys, you know. But the it’s a good girl, and she’s married lives in Norfolk, Virginia, married to a naval officer who serves overseas on the USS Coal. And So but she’s at work for a bank major bank. And then my younger son, he is a Nicholas. He is a junior now at the same college, studying the exact same thing as Christian at at college.
Victoria Volk: How did you support them through that whole ordeal that that year that he was when he was diagnosed and and after that? And
Christopher Cochran: Well, during the year,
Victoria Volk: I don’t Like, how do you hold all of that? Right? Like, how do you hold all of that?
Christopher Cochran: Well, my wife’s a nurturer. Okay? She’s she’s a it’s truly a beautiful human soul and she’s a yoga instructor, so she’s in tomb. She’s just just a beautiful person and beautiful. She’s nurturing. So she, you know, she’s there for those she’s there for the two kids and I think my mindset was very different then. You know, I was all about trying I’m I’m a doer, you know. Someone says, dig a ditch. And my head’s focused on digging the ditch. I’m not really thinking about everything else. I’m throwing dirt out. Right? I’m just to me, I was digging a ditch. I was I was trying to save my son’s life, you know. So it was a twenty four seven operation, you know. And I and I mean, it was twenty four seven, you know, I didn’t sleep a ton, catch catnaps when you could. But it was always my daily routine was just work, work, work, not my work. My work was doing what it needed to do, but was working on solving this challenge with Christian. And I wasn’t alone in it. My wife certainly helped. Her sister and her brother-in-law helped. We called the CC Advisory Group. We were just a client sort of this group that we get together to talk about solutions, figure things out. Where’s the best place? Don’t agree with in in I say this, don’t agree with what the doctors don’t know everything at all.
I figured out that I am the smart I was smarter than doctors shockingly. That should not be the case. But I am I was substantially smarter than doctors, that because of the hard work that the group us did, we were able when they originally didn’t find Christian’s DNA and RNA sequencing. I won’t name the facilities. I don’t want to get in trouble, but they didn’t find it through their sequencing. And it wasn’t good enough for us. You know, we’re like, I’ve got to keep searching. We’ve got to do more DNA. We’ve got to more find this out, sure enough somebody out in, I think Seattle a major DNA and RNA facility. And by the works of John and we went to John Hopkins as well, a doctor there helped us. We found the sequencing that Christian had very specific that allowed him to get onto a drug, pemigatinib, that is a full fledged FDA drug that’s out there for people with cholangiocarcinoma that can give you extra time. It’s not a it’s not a game changer, but it just gives you extra time. And we were able to find that sequencing after hard work and getting him on that drug. But unfortunately, it just it didn’t work. It just It didn’t Maybe it made I don’t it didn’t work, you know. We we we did everything. And Christian was one of the experimental kids for T cell therapy here in Pittsburgh, which the NIH in DC is one of the originators. Of this. And it’s where they basically harvest the t cells out of your body, grow it in a petri dish, grow billions and billions and billions of these things, and then ultimately shut your body down, you know, put it all back in you, and eat the cancer away from the inside. It’s the only way we were gonna win here. And I knew of one case of this happening. I knew I know her well. She’s a friend of mine. She’s very well known in the in the world of cancer. But the problem is to go on to that, he had to go off of chemotherapy for thirteen weeks.
And in that thirteen weeks, I’m sure his cancer. It it’s extremely aggressive and it attacks every part of the body. And so it was by that point, then we’re you know, it’s extremely. Once we realized the messaging, t cells were they weren’t working, you know. You get that coal. And you’re you just gotta scramble, like, fast. Get on the horn. Let’s get back on Kimo. What do we do? But, you know, towards the end, Christian just said, we had been doing experimental drugs. Guys, like, it’s okay. He never got involved. Christian never got involved his own. His own treatments. Meaning, he just said, whatever you guys wanna do, because I’m fine with it. You know? He was resigned to it all. He he was fine with it all. But I think towards the latter part where things were just not working. And he said, guys, this is I’m fine with no more. It’s okay. You know, I know I’m doing this for you basically. It’s what he was doing for us. Right? He was like, whatever you wanna do, but I’m okay.
You know? I’m at peace with what’s happening. You know? So So I’m not sure if I answered your question there, but, you know, I think we were talking about my other kids, but they, you know, they I think we’ve just for me, it was just I was so focused on solving Christian’s thing. I think my wife did a fantastic job just nurturing them. And then, you know, obviously, over time is when things were good and we’d have good days or Christian, you know, you you focus in on them and make sure they’re getting everything they need. But his his sister was at college, so she benefited from that. During that time in sense, they should have to be around it. Unfortunately, my younger son, I think, has felt the brunt of a lot of this because he was honed during COVID. And so he’s in the house all the time.
And he you know, he was there with Christian when he passed. He was in her house surrounded by his family. He was heavily involved as a as a sixteen, seventeen year old boy. That’s not exactly what you wanna have to go through. But, you know, he’s he’s he’s a good boy and he’s doing well.
Victoria Volk: Has that changed his trajectory of what he chose to endeavor in his life that experience?
Christopher Cochran: I don’t know yet. I mean, he’s obviously doing the same major. He’s had some, you know, get too much in the nick. Nick doesn’t like to Nick’s taken a different approach to everything. You know, his sister can talk about this. This is not something Nick can talk about. It’s not something that he is open about. You know? I had to make sure, you know, before I put the book out, I wanted Nick to read parts of the book that where I’d mention his name, some things I did take out, you know, things that are so personal to to Nick that he just wants to keep it for himself. Mhmm. But, you know, he he’s getting better at it, talking about it. But in terms of trajectory, don’t know yet. I know a lot of his friends, trajectories have all changed. You know, his his best friends have all changed their some are changed from being artists to now being their counselors for helping those with challenges because of Christian. There’s those who have followed their passions that they wouldn’t otherwise have followed. No one in particular is a CPA. A great job from left, graduate Penn State, CPA. Now he’s a comedian, you know, New York. He just told you He
Victoria Volk: just he just
Christopher Cochran: he just he just they just changed their directory because trajectory because of Christian that Christian because Christian of the group was going to be in many ways, you know, I say famous, but the most well known. He was from a young age, anybody in or in this whole community or neighborhood or Pittsburgh from a new Christian. I mean, he was incredibly talented and he was he was definitely destined and he was scheduled to go to LA before all this. I mean, he was destined just got he had everything he was ready and he was good looking boy had it all and he’s likable. It’s not like he had all the facets and he didn’t have this burning desire I don’t he he was okay. He, you know, you think like, oh, you better have all this desire to be the be famous. He didn’t have any of that. He just he took life as life came to him, and he got successful always doing it that way. Right? He always got everything he he whether it was grades or being in parts and things like that by not even trying. He just because he had that aura of just likeability and passion and fun to work with, and he just had that. And I always I just knew he was going to be incredibly successful. Even if he failed at something, he was just the one kind he’s not the one that let it bother him. He just was like, yeah, it’s fine. You know, like, we’ll do this, you know. And someone will be like, I like that about this this kid had something very different, you know.
Victoria Volk: He could pivot, you know.
Christopher Cochran: He pivot, yeah, he pivot on dime and never affected him. And he and I think that’s a major strength in anything, you know. And, yeah, he had that. So
Victoria Volk: Sounds like he taught everyone around him too how to be in the flow of life.
Christopher Cochran: And I talked about that in the book. Right? There’s Christian’s Dow. It’s a section in the book. And Christian believed in baptism, and and he understood the to your point, which is not flowing against the the current, flowing with the current. And he lived that very much that Christian was a strong Christian. We were Catholics. But the thing about Christian is he was very spiritual and he understood faith. He understood he respected them so much because there are a lot of similarities between all the faith. But the way Christian lived his life is does just being able to take things in and and and never afraid to be himself.
He would wear the goofiest clothes and he didn’t care. He could be bright colors. It could be googly sweaters, you know, from the eighties, you know. He’s an eighties guy. He loved his last tweet on Twitter. Is him in a wheelchair? This is the comedy of Christian. And he understood things. He’s got a a walkman on. And he goes, he goes jam into my eighties walkman or he may I I’m not gonna do this justice, but walkman, not lately. Meaning he’s not walking. I think he could just you you can’t walk anymore because of the Kansas market. Yeah. He he he just yeah. He he could make something that you would otherwise go and feel bad for him, but he would make you laugh about it. And that that’s such a unique trait to have under those circumstances.
Victoria Volk: What has your grief taught you?
Christopher Cochran: Well, my grief taught me that there’s much bigger grief than mine, I guess. There’s having a platform, you know, the book is is simply a a tool, you know. And my voice meaning people and connecting with people is the best form to understand grief. I recommend that to anybody who’s listening to to connect as best you can. I’ve connected so I I I go and I speak. Sometimes these speeches are about inspiration how to find the the light in the darkness or And sometimes it’s the students, young adults, university level, but sometimes it’s adults. And that will draw different crowds. So sometimes the crowds I will get will be those who are going through immense grief. Those who have either read the book, wanna get the book, you know something about the book, you know something about my story, and they wanna come and I make a very distinct point to try to talk to every single person who comes to see me. They’re going out of their way to see me. There’s something going on with them. And they’re using me. And I’m there to be a person to listen and to help. And so I listen to stories. And so what it’s taught me to answer your question is, The grief that I hear from others is far greater than my grief. If if that makes sense because some people are hurting so badly. I I mean, the stories I hear whether it’s they’ve lost their husband and two children. Or, you know, two children. I I can’t even fathom that, you know. So I I’m I think it’s taught me to understand my fellow, man, it’s also, breathing has helped me. To look at people as true souls. And what I mean by that is I don’t think I looked at people before cancer as souls. Meaning, when I look at someone I just saw them as a person and they’re on their way, whatever, I spend a lot of time when I sit or if I’m out in public and I watch people and I look at them and I realize they have a soul, they have a life, they something’s going on in their life, could be good, could be bad, much like all of us. And and I I think I’m just connected that way a little better now? Maybe I wish I wasn’t. Sometimes it can drag me down. But I guess it’s my purpose. You know, that’s I’m still trying to figure that purpose out, but I think that’s how I’ve learned the grief has helped me. That’s what I’ve learned from it. Yeah.
Victoria Volk: How would you describe and that kind of leads to my next question. How would you describe the Chris before Christian passed and the Chris now? You mentioned more connected, you know, maybe to even more spiritual in that way.
Christopher Cochran: Mhmm.
Victoria Volk: How else would you have described yourself before Christian passed?
Christopher Cochran: I was like a lot of people. I just I had goals, money, better car, bigger house, more stuff maybe. Give I love my kids, give them whatever they need, be there for my wife. I mean, I don’t know. I was just in a different mindset.
It’s a different it’s because life is perfect, you know. I mean, yeah, there’s there’s the normal things of life. Right? I mean, we all go through whether it’s maybe not enough or bills or someone passes away or it just I mean, it’s just normal stuff. But you navigate that pretty quickly and and you’re just on to to and and I used to hear of other people who would get sick. And I would do the be part of the cookie driver or whatever food drive and, you know, but I just did it, you know. And I had compassion for it. I just don’t think I really truly get it till I’m the guy getting the food drive or my son. I’m the guy who signs out in front of my house. I’m the one who’s, you know, where they give you the pity face or whatever that is, you know.
And It’s not about me. It’s just Christian. You know, I I I think I just I yeah. I I mean, I’m not I’m just not that guy. I don’t even know who that guy is. I I I I tried to look back on that guy and I just kinda think of him as kind of a not a I don’t know. I don’t like that guy. And I I mean, I mean, I wasn’t a bad guy. I’m just saying, I’m not sure I recognize that person because now I look at life very differently. I look at other people differently. I try to give everybody kindness at the fullest extent. You know, even when someone’s mean to me. It’s okay. I’m okay with it. The old one be like, you know, say anything. Be mean right back to you. You know? That’d be brutal. But I I don’t I mean, I don’t want any of that. I don’t I want nothing to do with that.
Because I think in the end, you know, for me, it’s I think for my family too is the ultimate goal is I wanna go see Christian again. I’m not gonna get there from a do good things. It’s not gonna happen. So I I I think my focus is how do I get to see this kid again? Because I miss them.
So
Victoria Volk: How do you think it’s changed your wife in your marriage?
Christopher Cochran: Yeah. It’s changed it. Definitely changed her. I mean, you know, she’s it’s her first born. You know? He’s Yeah. It’s changed her. Totally. You know, she’s still sweet, loving, but it’s a daily routine. Right? It’s a daily it’s a daily struggle. I’ll put it that way. It’s a daily struggle. You know, in terms of marriage, we love each other and what is different? You know, how can it not be different?
Mhmm. It’s just different. It’s just different. It’s not bad. You know, I mean, we but it’s different because, you know, it’s you you you struggle you’re I think it’s a struggle for her too. Right? The witness if I go through difficult things too. Right? Doing doing talks or speaking. Even this discussion today it takes a lot out of me.
Right? It will end. When you go about our lives, it still takes a bit of chunk of my body out of me. And I think that’s the same way for us. It’s like when you talk about her, you go through it. It’s a reminder. Right? Nothing’s changed in my house. Right? And since Christian’s room is the same as when he left it, his shoes are here, his, you know, nothing from that perspective, but he’s just not here anymore.
So for her, it’s yeah, it’s it’s she’s a mother. Right? And I’m sure mothers who listen to this will get it. I mean, it’s it’s bad for a dad too. Don’t get me wrong. It is. It’s horrible. But I just think a mother has a a different connection with their children. They bore that child. They brought that child into this world. And she’s a nurturing parent. She she in a ways his kindness is driven off of his off of how she’s Raised him? We both raised him. I’m more of the tough. Get it done. Let’s go. You know, she’s soft and gentle and caring. And so, you know, I think it’s yeah. It’s tough for her. It’s tough for her.
Victoria Volk: How have you taken care of intended to yourself as a grieving man and spouse? You know, it’s easy for women to talk about self care and all of that, but when it comes to men, which, oh, no, of course. You know, you kind of alluded to that, but a lot when parents are grieving a child or a lot of the focus does go on the mother. Right? And the husband in the spouse, the father is not disregarded or not, but they don’t get as much attention.
Right?
Christopher Cochran: No. I I get it.
Victoria Volk: And so I wanna, you know, what helped you personally, like, in self care in the year’s sense, particularly.
Christopher Cochran: Yeah. I mean, it’s just staying busy. I mean, I’m a simple guy. I’m on a you know, there’s no complexity. I have I have certainly have my moments I talked to Christian a lot, so I have a relationship with Christian, you know, much like I have a relationship with God. It’s sometimes good, sometimes not so good, but it’s a relationship. I talk I just talk to Christian. That’s and I hear him. So, you know, that gives me a lot of comfort. I I can absolutely hear. So, for me, it’s it’s stay busy, stay active, stay constantly engaged, with guy things, I guess, whether it’s working on a car or just working on my business, you know, writing, you know, those are the things that occupy me. As a man. And of course, being engaged with my other children, you know, and my wife doing things. Right? It’s very important. Going on vacations together, you know. We’re gonna go to Europe, I think, this December. For a couple weeks to get away. So we do things together. You know, we’re we’re tightening it and we love being around each other.
And so I think, you know, I I try to put a lot of effort in as best I can. To those things. And most importantly, my family, my kids, talk to them every day, always communicate constantly. Sometimes my daughter does one hear from me, but, you know, like, have you just called me, leave me alone. But I just like hearing my kids, so make sure they’re okay. I mean, I’m so I’m part of, you know, it’s so funny back in my day. My parents probably didn’t care where the heck I want. You know? I don’t know if you were the same way. I was like, I I got on my bike and as a kid and when it started to get darks when I came home. And my parents, you know, they were great parents. It’s just the way life was. Right? And today, we’re like, helicopter parents. We don’t know where they’re always at. I mean, my daughter’s married, and I still have my find my iPhone. I know where she’s at all the time, you know.
Victoria Volk: She knows I turned that off on you.
Christopher Cochran: No. No. She knows they do it, you know. And she’s okay with it. She she knows that. And she’s fine with it. Plus, I think I pay her bills though. I don’t know why I still do that, but before I go to sleep at night and lame, I’m go to sleep. I wanna see where they’re at. Are they okay? Are they safe? You know, my wife too does the same thing. So I mean, so we’re probably a little obsessive on that, but you know, I think you know, it’s natural for us too. Right? We were always that way when Christian was here, interestingly enough, probably more for Christian, even before the cancer. I always you know, my wife and I would always you know, so one thing we prayed about is our whole life having kids is just to keep them safe. I don’t care about anything else. Money is irrelevant. Everything’s irrelevant. Right? Being safe, healthy, alive is all that matters because you can fix everything else. Everything’s fixable. Money’s fixable. Relationships can be fixed. You know? But I can’t fix death. I can’t fix it when they’re hurt. And I think with Christian in particular, I always was nervous about Christian. Always. I’ve never not been nervous about Christian in particular, not because he got into bad things or something like that. It’s just he was such a good kid He was always doing good things. He was just so good and a nice boy and loved us deeply. Loved his family deeply that it always was a concern of mine that something was gonna be happen. Just because he’s just too good. Can’t be this good.
I can’t be allowed to have it this good. You know?
Victoria Volk: Sounds like he had an adventurous spirit too.
Christopher Cochran: Oh, yeah. I will tell you that, like, we would go. We would go on trips as a group, and he was always the most daring of all of us. So if there was a road like like gooey like here and he Christian would be the one to take us down a beaten path. Like, he was always the one that got like, we need to go down that road because there’s gonna be something really awesome down that road.
I’m telling you, and be like, Christian, please stop this shenanigans. You know? Like, we’re we have a destination. We have time schedule. He said, no. No. No. No. No. Yeah. We trust me on this. It’s gonna be great. And we trust him because he’s smart and he Sure enough. It’d be something extraordinary, you know. It’d be like a giant mountain west and you’d be like go here and it’d be a giant crater in the middle of the desert. And and it is goofy as that is and baseline as that is. It’s like the beauty of it all, just to gather, see this. It it creates a incredible feeling and he but he knew that. He knew that he was gonna create something special for us. And so he had a way of doing that all the time, which is constant. So, yeah, he’s adventurous and always sort of creatively thinking of ways to to think differently.
Victoria Volk: What do you look forward to most in co creating in your life that has been inspired by Christian?
Christopher Cochran: Well, to continue for me, it’s the legacy of Christian is what’s good about today. Right? I think the truth is I don’t really know. I don’t again, I don’t look too far. You know, that’s my point. I really do focus on today. I focus on the moment my present moment with you. I’m all in with you. Right? I haven’t thought really other than the questions you asked me. It’s it’s just about you and me today right now. Some often students, something else and present there. But I think I have found that things kinda come my way. Right? It’s the dows them of things, I let things flow the way they’re going to flow. And in Christian’s legacy things tend to flow, come up out of nowhere. Whether it means someone wanting me to speak somewhere, whether it means someone else taking the initiative to to build something around Christian. Right? There are a lot of things that are going on around Christian that I’m not always I get, you know, if you wanna call it approval, but people call and say, hey, we’re doing this whole thing around Christian. What’s good about today, and they’re implementing it in school districts now. Right? It’s they’re working with teachers now to implement what’s good about today in K-twelve. Especially younger kids where they have a board says what’s good about today and kids come in in the morning. Right? What’s good about their day? And the first thing in the morning, and then the day they erase it the next day, come and do it again. And it’s a teaching tool prepared for teachers to be able to see how their students How their day is? Right? They can identify kids who are not having good days
Victoria Volk: of that.
Christopher Cochran: And they can see where things are not going well in certain areas. But it’s just a way to help children too young because I do believe you know, sometimes when we’re old and we don’t get this messaging when we’re young about understanding the beauty of every single day. We forget about it and we got old. And we forget about gratefulness. We forget about presentness. We forget about all those things. Because we get caught up in the minutiae of keeping up with the Joneses and doing all these things, things, you know, to dos. But I do think, you know and Christian used to have something used to call him to love list. He didn’t have to do list. He had to love list. And so I try to do the same thing. It’s just how much love can I give out today? And so I to to I don’t know where it takes me. I only know, you know, what tomorrow will come and and and new things will pop up. And and and I’m usually a yes, you know, the yes guy is like, yeah, let’s do it. Whatever it takes, whatever it is to educate, whatever it is to to get this word out about what’s good about today. Help them ask themselves that question in the morning, the afternoon, in the evening, so they can reflect and see that life was so beautiful and and and it is. So that’s my help.
Victoria Volk: I love that idea too. My sister-in-law is super intended. I’m gonna mention it to her.
Christopher Cochran: Please love to get it out there in North Dakota. Right?
Victoria Volk: Yeah. Yeah.
Christopher Cochran: That would be amazing. Yeah. That would be wonderful.
Victoria Volk: He kinda touched on it that your relationship with Christian has continued when you talk to him. How do you how would you describe how that has helped you in your healing, your spiritual beliefs around that, that there is something after?
Christopher Cochran: Great question. Well, I I firmly and absolutely believe there is somewhere we all go. I do I know this because I I actually talk about it in the book that Christian came and visited me about two weeks after his passing. So this happened prior to Christian passing, I remember being close to him and asking him with crying. I remember this. And this buried in his neck and say, Christian, I need you to do me a favor, and he said, sure dad, whatever you want. And I said, look, I I need you. You have to. You have to. Come see me after you’re gone. It’s it’s so important because we’re gonna be a wreck. It’s you know, I said, we need I need some understanding of this stuff, you know. He said, dad, I promise. I promise you. I will be back. I promise you. This is absolutely and this is a kid when he meant he said it, he meant it, and I knew it. So about a week after Christian passed, hope you don’t mind me going into the story.
Victoria Volk: No. I don’t.
Christopher Cochran: Okay. So a week after Christian passed, I was muddling down to the mailbox, down my hill. And as I’m walking down the hill to my mailbox, I can see the male carrier coming down the street. And she had a green bell in her car for rep, Christian left green. And she subsequently had written this before again and said, listen, I wanted you to know something about your son that we didn’t know. Your son, every time I’ll be on my mail routes and he saw me, he’d pull over and come and talk to me. And tell me, and he’s I don’t have anybody who does that. Everybody runs from the male person. She goes, I don’t know why. But your son was the one who would come to me and wanna know about my life and ask if I was doing good and how my life was and you know, and so she’s like, he’s so important, you know. And I was like, yeah. I hear that from a lot of people. So as I’m walking down, instead of reaching about where she’s coming out, she hands me the mail. As I’m reaching out for the mail, this beautiful blue butterfly flying. I don’t get butterflies around here. Beautiful blue butterfly huge lands on my hand. And I’m, you know, I’m in a bit of weird state anyway, and I looked at her and I said, am I am I seeing things? Because I thought maybe I was hallucinating. I didn’t know probably was on medication at the time, but she said, nope. That I’m seeing exactly what you’re seeing. And I was like, okay. And that butterfly sat there for ten, fifteen seconds, just hanging out on my hand. And I’m home in the mail, not moving. And fluttered and disappeared. And I was like, okay. And I I I always had the sense of butterflies and people talk about butterflies and what they mean. And I’m okay. It’s what it is and told my wife and showed up to another week later, a lane in bed. And I remember this as if I’m here talking to you, I was put in a position in a basement. I got I’m in a basement. I’m there’s cinderblocks I mean, it’s a cinderblock old home as if it’s just been built. And there’s a a patio walkout door, and it’s green. It’s green. Bright lights, really pretty. Oh, and oh my gosh.
I’m in somebody’s house. Why am I what are we doing here? As soon as I said that, I got moved into a foyer. And the foyer’s an old it was tile, you know, a little square tiles Mhmm. You know, kinda like bied by fives, tiles, gray. And the door is like a nineteen seventies door, eighties door had a had a step ladder windows, if you you remember? Mhmm. Couldn’t see out of them. And it wouldn’t do her. And I remember thinking, oh, great. I mean, what the heck am I? And I remember turning to my left and about ten, fifteen, feet away is Christian at a mantle fireplace. By the way, lots very bright, very beautiful. There’s two chairs sitting to the left in front. They swiveled, and there were two people on them. They were shadow a figure, but they were moving. They were shadows. I couldn’t make who they were or what they were. And Christian’s in his beautiful, beautiful hair in his one of his sweaters, smiling. He had that he had this smile that it was like, see, told you I’d be back. You know, he didn’t have to say it. And I, of course, immediately wanted to rush to Christian, you know, run. But as soon as I had started to move, he immediately was in my face. He was right there in my face. And I, of course, put my arms around him I I could smell Christian. I could and he started to talk to me. He said, hey, dad. He said, listen. I love you. I need you to tell mom everything is okay. Everything is fine. I’m very happy. Everything’s gonna be fine. And you guys need to move on. And I said, Christian, I love you. I love you. I’m just I’m talking. I’m feeling that every bit of him and you know, I didn’t see any ellipse movie and I, you know, kind of wrap me talking to me and is and and I remember by the way I should say that not only did I see these two people, I could design the whole room to you because there was like a step kitchen up there and people are mulling about in shadows. Like, it was almost like I was invited to a dinner party or something, like I was somebody’s house. I don’t know whose house. I just assumed it was Christian’s house maybe or his apartment makes sense because of the door. I don’t know, but I I know for a fact what I experienced was not a dream because I didn’t wake up. I was in this weird state. I can’t remember any dream I’ve had, honestly. The only thing I remember and was that moment and how deep it was and how real it was. And so he just faded away and I faded back into who I was. And I sat there for about an hour. Just I didn’t wanna wake up my wife. She was next to me and tell her, But I for about an hour just sat there, so I can’t believe what just happened to me. You know, I I’m just I’m in this unbelievable you know, I can’t believe it. You know? He said he do it. He did it. I went somewhere, I wasn’t supposed to go. This was not a dream. I was like, then I tried convincing, yeah, it was a dream. Oh, wait. Well, I couldn’t have been a dream. I smelled him he was real. I was there. And so my wife woke up about an hour later and I told her what had happened. It’s verbatim. She says, Chris, last night, I went out on the porch. I prayed to Christian so deeply. Just ask him to come see us come see us please.
Because I never told her, you know, this discussion I have with Christian. And then I told her this, and this is what happened. And he’s never come to visit Danielle. It’s never happened. And I have subsequently not seen Christian since then in any form of state like that. You know, I’ve had dreams that are weird and but nothing to this that was as crystal clear as this. Christian does talk to me. I do hear him. I’ll ask him questions. Sometimes about life and just the other side, what’s going on?
Sometimes I’ve tried to reach out to him, he doesn’t get back to me. It’s not instantaneous. Sometimes he’ll come back to me and with frustration. Like, what do you need now? Like, I’m I get a sense he’s very busy. So, you know, he compassionately, sweet, nice to me. Just my like, hey, what do you what can I do to add? I’m busy with stuff, you know? Any What can I get you? You know?
What do you need? And Sometimes it’s just reassurance, you know. So that that’s what I hear. It’s gotten a little less now, but I still do it. Just just not not constantly.
Victoria Volk: There’s a I I had a conversation. Thank you for sharing all of that. Mhmm. First of all, I had a conversation with an intuitive Helen Gretchen Jones. It’ll be coming out around the time of your episode too, but I’ve had other mediums that say that those who have crossed over describe it like school, and it’s almost like community. It’s like they’re in community. So when you said that, it reminded me of those conversations of how they’re never really they’re not alone. Right? They’re they’re in community with others mingling. Yeah. Yeah.
Christopher Cochran: Yeah. I’ve asked Christian that question too, actually interestingly enough, like, you know, when you die, I’ve I’ve said, oh, do you have famous? Because there’s so many people who die, you were famous. Right? I mean, this lifetime. And like are you friends with famous people? Do you hang around with famous people? And his answer is no. I don’t. You know, that’s not my and that makes sense. I do hang around with people who are famous, but they’re not people you would ever know. Like, they’re obscure famous people. Like, the most obscure people that no one’s ever gonna know, but they were in their moment, had some form of they were they were important or, you know, yeah, I find that interesting. But I much of his friends are just regular people. You know, just normal people for the most part from everything he tells me that it’s just a it is communal. It’s it’s not much different as it’s explained to me in the way that it has been explained in the short conversations, Krishna, is that it’s not dissimilar to this. In many ways, you know, there’s much to do. You’re never bored. You know, there’s lots of choices and you can be with your friends. You can you know, you can check-in on people, loved ones, you can do all those things, which so sometimes he’ll tell me things that are so above me in my brain, and sometimes I can’t even explain them. I don’t know how that even makes sense. Like, he’ll explain a a multi level thing that’s something happening that I don’t even know how to explain it. Like, I I wouldn’t even know how to I’m not smart enough to be able to regurgitate it back out to another human without it sounding like I’m completely insane. Like I it’s not like he said something so it’s just like it it has so many layers to it that it that I don’t know how to explain it properly. And just leave it with inside my brain of sort of rolling around and figuring it out as best I can.
Victoria Volk: Is there anything else that you would like to share that you don’t feel you got to?
Christopher Cochran: No. I think you’ve gotten a lot about me. Like I said, it sounds like I was in therapy here. No, I just think those who are listening who are going through grief and I think what you offer here is very important. It’s very important because Grief is something not everybody’s gonna go through.
It’s it’s a universal trait that we all are gonna have it. You don’t think you’re gonna have it. You’re gonna get it. Mhmm. But I think it offers an opportunity to explore how each of us navigate it, how best to navigate it. And ultimately, for me, it’s I I want people to remind themselves is that and I I say it, what’s good about today is because I want them to focus on today. Focus on the beauty and what you have around you right now, your family, kids, anything that can bring you a little bit of pieces of joy into your heart. Right? Because if you’ve lost someone there’s a chunk that just gets ripped out of you. And your job is just to continue to fill it with little pieces. Happiness is that elusive thing. Right? I don’t know that I’ll ever be happy. Maybe I’ll be happy when my daughter, and as you’re first born, and that will bring me some happiness. And I’m sure it will. And I’m sure I I find those things when I can. But joy, pieces of joy are what I I try to pick up along the way. So I tell people pick up pieces of joy every which way you can. Something that makes you brings you some joy in your life and I think if you continue to build upon that, you build something in a good solid puzzle in your heart and you can can learn to continue to move forward in this life, you know. It’s all very short anyway.
I mean, that that’s not the downer part of me. I’m not trying to be a downer. It’s just that when you really think about it, it’s extremely short. And you just wanna leave a good legacy. You wanna do the right thing. You wanna help as many people as you can. Help put your energy into helping others. And I think that’s that can help you in grief. Right? Helping others who are hurting. Right? It’s a it’s it’s a good way to navigate your own grief is to see other people’s hurt and help them because now you’re just suffering is it is part of the human condition. It is what we do to get closer to God. It’s what gets us closer to all things. The more we suffer. Unfortunately, I think that is by many means and at least I’ve convinced myself that I’ve been asked to suffer. My family’s been asked to suffer because it gets us closer to god. It allows us to get to where we need to be forever. This is short. That’s what I would leave.
Victoria Volk: That’s beautiful. And it makes us more compassionate is what we’ve described as it brings out the compassion. Our suffering comes out our compassion. It can bring we have a choice. Right? It brings out our compassion or or if we project out our pain onto others.
Christopher Cochran: That’s true. And I I think suffering isn’t in the form of your own suffering, of course. But the more you take on of other people suffering know that sounds a lot of people run from suffering. Most people run from suffering. Right?
Because they don’t wanna deal with it. Right? I don’t wanna deal with that problem. But I would tell you to run to it.
Victoria Volk: You know the bunch
Christopher Cochran: of suffering.
Victoria Volk: Is the Buffalo?
Christopher Cochran: Yeah. Oh, what’s the Buffalo?
Victoria Volk: Well, Buffalo. I’m in North Dakota. Remember Right. I guess you buy some.
Christopher Cochran: Right?
Victoria Volk: But Buffalo actually run through a storm because they know it’s a shorter path to where they need to go instead of taking the long way and going around it. Buffalo actually go through the storm.
Christopher Cochran: I didn’t know that.
Victoria Volk: You
Christopher Cochran: see, I’m in Pittsburgh. We don’t get buffalo. Oh, there used to be buffalo around here, you know. It used to be a lot of buffalo, but But, yeah, you you have it, so you would know.
Victoria Volk: Bison is it’s very good too.
Christopher Cochran: I know they I see it on the menu a lot. I see it a lot. But, yeah, no, that’s I I think run the suffering. Can be a big reward.
Victoria Volk: One final question.
Christopher Cochran: Mhmm.
Victoria Volk: What’s good about today?
Christopher Cochran: Good about today? Well, it’s easy. I’m here with you. I get to talk about this. I get to speak to your audience. I get to share Christian’s story. I get to remind people the goodness in the day. So today, what’s good about today is that I am here with you talking about this. So that was an easy one because and with you. So anything I’m doing in the moment is what’s good about today.
So it’s it’s definitely what’s good about today. And I I’m very appreciative of the opportunity to speak with you.
Victoria Volk: It was wonderful having you.
Christopher Cochran: Thank you. Where can
Victoria Volk: people find you if they would like to reach out? Learn more about the foundation, organization, the book, all of that?
Christopher Cochran: Yeah. So first and foremost, if you go to you could Google Christian Cocker and you’d probably pull up all kinds of stuff. If you went to christian corker dot com or dot org, you’ll find all kinds of information on Christian, which is really the most important thing to me is just that you know my son. And everything else after that is good too, but that’s most important to learn about his legacy and how he lived his life. Because I do believe that, you know, the more you learn about Christian and the things that he did, he can help you learn little pieces how to lead a purposefully driven life. You can certainly pick up my book on that website, but you can also find me at chris cochronspeaks dot com, which is where I do speaking engagements, sell the book. And the book is available on Amazon. It’s available at Barnes and Noble. It’s available for global distribution, and I hope people hope people read it. It’s a love story. So I wanna make sure people understand that this is not a, you know, certainly you can get a lot from it and learning about how grief, the navigate grief. But I try to explain this is really a love story. It’s a love story about a family. Love story about family has gone through the worst thing and how we navigated it, but telling a story about how Christian led his life And that’s the point. To me, it’s a it is a book about a purposely driven life, not my purposely driven life. That’s why it says Chris Cochrane inspired by Christian Cochrane because it’s really him. And it’s me trying to explain how he lived a life that we could all take pieces from. And do do better in this life.
Victoria Volk: Thank you so much for sharing. And I will put those links in the show notes. And remember, when you unleash your heart, you unleash your life. Much love.
Grief, Grieving Voices Guest, Grieving Voices Podcast, Parent Loss, Podcast, season 5 |
SHOW NOTES SUMMARY:
Today, I’m sharing my conversation with my former Do Grief Differently client, Delyla Ovalle-Bowyer, a dedicated research associate at UT Austin’s Texas Center For Disability Studies.
Delyla shares her transformative journey into special education and advocacy after initially struggling to find direction in life. The conversation is especially poignant as it marks the second anniversary of her father, Fred Boyer’s passing—a pivotal moment that led Delyla to seek help with me through my one-on-one, 12-week program, Do Grief Differently. This dialogue illuminates how grief was once an unspoken topic in her family but has since become a source of personal growth and healing for Delyla.
Key Takeaways:
Embracing Change: After living with her mother in Houston, Delyla transitioned to a new career and community in Austin, strengthening familial relationships.
Understanding Self: A significant revelation came when she discovered she was on the autism spectrum—a realization supported by her sister—after years of being misdiagnosed with bipolar disorder.
Building Resilience: Through vulnerability and resilience, Delyla faced grief head-on with therapeutic tools like Do Grief Differently, tapping, and supportive friendships at work.
Honoring Legacy: She finds unique ways to commemorate her father’s memory, such as bike rides where she spreads his ashes, highlighting how accepting emotions can lead to clarity.
Delyla’s story is one of courage and transformation. In sharing her experience working with me, she highlights the positive impact of structured support systems in navigating loss while fostering personal growth. By embracing adaptability and compassion identified through tools like YouMap and learning from cherished memories with her father, Delyla continues to advocate for others facing similar challenges. Her message encourages engaging with community resources for healing while maintaining hope for future endeavors within special education advocacy.
RESOURCES:
CONNECT:
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If you are struggling with grief due to any of the 40+ losses, free resources are available HERE.
CONNECT WITH VICTORIA:
Embracing Grief as a Catalyst for Personal Growth
Grieving is an inevitable part of life, yet it often remains shrouded in silence and misunderstanding. In the latest episode of “Grieving Voices,” host Victoria delves into this complex topic with Delyla Ovalle-Bowyer, a social science and humanities research associate at the Texas Center For Disability Studies at UT Austin. Delilah’s journey through grief offers profound insights into how embracing emotional pain can lead to personal transformation.
A Journey Into Special Education
Delyla’s path was not straightforward; she initially struggled to find direction in her life and education. However, once she discovered her passion for special education, everything changed. Her dedication led her to prestigious fellowships and advocacy roles, including participating in the Council for Exceptional Children’s Inaugural Diversity Leadership Academy.
The Impact of Loss on Life Choices
The podcast recording date holds particular significance—October 21st marks two years since the passing of Delyla’s father, Fred Boyer. His death became a pivotal moment that propelled Delyla towards seeking help with grief management through Victoria’s program “Do Grief Differently.” She reflects on how growing up in an environment where grief wasn’t openly discussed shaped her initial struggles but also highlights how therapeutic tools like tapping have aided her healing process.
Navigating Relationships Through Grief
Moving from Houston to Austin marked another significant transition for Delyla—both professionally and personally. This move allowed her relationship with her mother to flourish despite physical distance while working on mending ties with her sister using skills acquired from the grieving program.
Episode Transcription:
Victoria Volk: Hello, and welcome to this week’s episode of grieving Voices. Today, my guest is Delyla Ovalle-Bowyer. She is a social science and humanities research associate three with the Texas Center for Disability Studies. At UT Austin. After nine years of not taking life or college seriously, Delilah graduated with her bachelor’s degree and went into special education. This was a path that was challenging and rewarding. And it also opened doors to education policy fellowships and a love for advocacy. She continues to advocate and look for opportunities to serve, and she is also a part of the council for exceptional children’s inaugural diversity leadership academy. And she was also a participant in my program to grief differently in April of twenty twenty three, which is like a year and a half ago already. And that where does the time go right?
Delyla Ovalle-Bowyer: I know.
Victoria Volk: And so thank you so much for coming I know we talked about you being a guest on my podcast a few times even back in twenty twenty three. And so I’m finally glad to have you as a guest. And today is also a very special day, and maybe we can start there.
Delyla Ovalle-Bowyer: Yes. Thank you so much, Victoria. Yes. Today is a special day, October twenty first. This marks my dad’s second year of his death anniversary. His name was Fred Bowyer, and he was a an educator at heart and a leader as well in the public education setting.
Victoria Volk: And it’s also the loss that brought you to do grief differently as well. And it was obviously, it’s only two years today, and so it was quite raw for you at the time when you first came to work with me.
Delyla Ovalle-Bowyer: Yes. I found you actually just doing a search because I knew that I needed some help with grief and that’s where my journey started. With I never knew what grief was until I met you, Victoria. And when I went through with my dad just seeing him in the hospital and being there for him. So I thank you for helping me on this journey.
Victoria Volk: It was my pleasure. And I want to rewind the clock a little bit though into your childhood and just share with people what you were taught about grief and learned about grief before and growing up. And then how that changed for you in what you learned through through do group differently?
Delyla Ovalle-Bowyer: As a child, I remember my first time, I was in fifth grade, and I heard that my grand my grandmother passed and my parents ended up going to the valley and told me to stay at school. And I did. So I I really wasn’t sure what was going on. I just knew somebody did pass and that I was supposed to continue to do my school work, be there, get good grades. So as a child, I don’t think I was really talked to grief really did was talked about it. And it was kinda I feel like it was maybe swept under the rug. And even when my grandmother did stay with us, it was like the doors were closed when she was when she had leukemia. But it it was something that was there. That I just didn’t know how to I didn’t know how to cope.
Victoria Volk: Yeah. We’re not taught the language either of how to express that sadness that we’re feeling or the uncertainty and and the unknowns. Yeah. And and because grief affects all areas of our life even as children. Right? Like, even as children, like, it can affect your friendships and excuse me. You know, you’re not showing up as your true self when you’re feeling burdened. You know? Yes. So how how did that change for you then in in what you have learned about grief through the through the process of do grief differently? And and how you kind of process those feelings even today, like, on this anniversary?
Delyla Ovalle-Bowyer: It’s taken a lot of therapy, and I’m grateful for therapy I mean, even finding you, Victoria. But how I process it more is, like, for instance, today, I took the day off work, and I decided to just do things for myself. Go for vicryde. I’m gonna go for vicryde, and I’m gonna spread some of these ashes. And I guess, how I process it throughout, you know, the job? Because, you know, it does sneak up. It has snuck up a lot throughout the job. I I’ve learned tapping mechanisms. So I’ll do some tapping. But when I do feel that overwhelming feeling coming on, And I have great coworkers that understand my body language, which is so amazing. So they ask if I need a break or if I need the lights off or you know, so I really think that they’re a safe place for me. And it’s talking to people. I think that’s the major thing. Talking to people and telling them, No. I’m not okay right now because I believe that grief can be swept under the rug and I believe that’s what happened during my childhood and even when my dad did pass. It was like that. But I had to learn to use my voice and the tools like you, Victoria, and my therapist, Stephanie, and that’s where it’s changed. I’m like, I am greedy. I need to show these feelings. I will show them.
Victoria Volk: What was the biggest takeaway do you think that you got from the program? And Yeah, just what was the biggest takeaway for you?
Delyla Ovalle-Bowyer: Oh, gosh. I told everybody that I didn’t realize that grief wasn’t just losing somebody. I think that was my biggest takeaway. Grief is loss of a job. I mean, Grief is starting a new job. I mean, I feel like I grieved so much during since August. Since I did start a new job and everything.
Victoria Volk: And you moved? Yes. I moved neighbors, new community, new city.
Delyla Ovalle-Bowyer: Yes. So I that’s all grief and one. And So, yeah, you’ve taught me that, Victoria, that it’s just not losing my dad. It’s it’s losing a whole eighteen years of being a special education teacher and, you know, that was my decision. That was my decision for my mental health to say, I need a change.
And yet even with that, I grieve my students. I I wonder where they are and I know in August, I saw these bus all the buses coming out, and I was just like, I just felt sad. I was like, you know, by this time, last year, I was a teacher. I was getting my room set up. So, yeah, grief is not just losing somebody, and that’s the biggest thing that you’ve taught me.
Victoria Volk: How has the transition been for you into this new career, into the new community, and and the tools that you’ve leaned on to work through those transitions?
Delyla Ovalle-Bowyer: It’s been difficult. I I it’s been difficult with the transitions. I really don’t like change
Victoria Volk: Oh, does.
Delyla Ovalle-Bowyer: Exactly. Who does?
Victoria Volk: People don’t.
Delyla Ovalle-Bowyer: Yeah. But I just talked to my therapist, like, maybe a couple of minutes ago, and I was just, like, you know, I’m gonna embrace it. And what I’m doing is embracing the changes and maybe the yuckiness that I don’t like. And with my tools, with my tapping, with making sure I’m grounding myself, even taking a break at work, like going outside and walking, it’s really helped me to come back. To what I need to do. Like, even if it’s getting back on the computer and, you know, doing my data my data abstraction or, you know, getting on a meeting, It’s a challenge that I work through it.
Victoria Volk: Now, when you live you you lived with your mom in Houston. Are you living by yourself now in Austin?
Delyla Ovalle-Bowyer: Yes, I am.
Victoria Volk: That’s another big change. Right? So it has not been going. Like, it’s almost like you’re like, yeah, you you were with somebody. You know, you were with your mom and now that how has that changed? As it bedded your relationship, sometimes sometimes we aren’t meant to live with our parents, you know, and that clash especially, you know, when you’re as an adult, you know?
Delyla Ovalle-Bowyer: Yeah. Well, she was the one that said, I need my space. So I wanted to Okay. That yeah. If she I wanted to honor her and acknowledge her and get her space, the space that she needed. And so, you know, I was ready. I was I was ready to make the move and everything I missed home this weekend, so I did go home and I got some long time. So I I really wanna say that our relationship has grown stronger since we’ve really been apart. Yeah. Mhmm.
Victoria Volk: Distance makes the heart grow fun or they say. Right?
Delyla Ovalle-Bowyer: Yeah. It does.
Victoria Volk: Maybe it was something you didn’t I mean, do you look do you look back now, like, the time that you were with your mom, and then now the time that you’re are more on that you’re on your own? And have your own space, like, have you found that that you did too need it?
Delyla Ovalle-Bowyer: Yes, I have found that I’ve needed my space, you know. That’s all I ever knew. I mean, since we did take care of dad and and then afterwards, I mean, she was all I ever She’s all I ever knew. And I was just like, okay, time to cut the cord. And it’s been wonderful for us.
Victoria Volk: You know? Do you almost feel like because you both were caring for your dad? That you maybe there was a part of you that was finding it difficult to let go of caring for her, like, when your dad passed and then this tendency to wanna care for somebody else. You know, we can kinda replace that loss Right? You know this from the group differently. You know, if someone passes away, maybe we or moves or whatever, like my child started kindergarten, my last one, I got a dog. I replaced that loss. To put that love somewhere else. Right? That love and care somewhere else into something else? Do you feel like that’s kind of what you were trying to do after your dad passed and and caring for your mom and maybe too much? And she was like, wait. Wait a minute. You don’t need to do this.
Delyla Ovalle-Bowyer: Yeah. I do feel like I was doing that. And I wanted to protect her, you know, I wanted to care for her, I wanted to protect her I didn’t wanna leave the house that, you know, I grew up in. I thought, you know, maybe Dad would come back and it was just, you know, being there for her. Like, I felt like I needed to be there for her, but she was the one saying, Okay. I gotta beep by myself. I gotta learn how to live by myself because this was my husband for, like, thirty five plus years.
Victoria Volk: Very true. And again, like, that’s a perspective. Maybe as you the grieber, aren’t really thinking, you know, it’s like I need to be there for her, but yet at the same time, you know, we often don’t think about the other person’s perspective or what it’s like their experience and their shoes. Like, no, I I need to learn what it’s like to be on my own because it was her first now it’s her first time too, really.
Delyla Ovalle-Bowyer: Yeah. That is yeah. I mean, at our risk, I love her so much for saying that when she needed to. Like first, it was like You wanna get rid of me? But I think I’d go back to, you know, it kinda makes me think of when my dad did pass and everybody was telling me to, you know, go back to work right away and she gave me the space that I needed. I was like, mom, I can’t go back to work. Like, I need to grieve and she she was the one that just said, go to your aunt’s house. She has an empty room. Go. And And I don’t know why I connect those two, but I do.
It’s just like, you know, she gave me the space that I needed, and so I guess that’s why it connects. I’m giving her the space that she wants and needs. So, yeah.
Victoria Volk: I’m glad it’s been a beautiful experience for you both and that it’s ultimately brought you closer together. And I think that’s a beautiful thing because you very well could have been like heartbroken and sad that, you know, and maybe even resentful that she’s now kicking you out of the house in a way. You know, like, you could have taken it that way. Like, she’s kicking you out, but really, it was from a place of love and and her communicating her needs and that that’s I’m so glad that you were both honoring that for each other. That’s a beautiful thing.
Delyla Ovalle-Bowyer: Yes. She’s amazing.
Victoria Volk: Through the program though, you also work on another relationship. Mhmm. You know, it’s a twelve week program. So what was the other relationship that you worked on? And what would you like to share about that?
Delyla Ovalle-Bowyer: The relationship that I worked on was with my sister, Caitlyn. And I chose that relationship because my sister and I have never had a really great bond, not sisterly, you know. It’s like we call each other or we text each other, but that’s about it. So I worked on it because I wanna grow closer to her. And right now, she has a baby. I’m a I’m an aunt. And so it was important for me to work on it to grow closer to her.
Victoria Volk: And how has that changed your relationship? Do you feel?
Delyla Ovalle-Bowyer: It’s I mean, we talk more. I call her more. She calls me. She sends pictures of the baby. You know, she’s helped me with work a lot. I have a meeting coming up, so she’s helped me tweak some of my thought point my thinking points up. So I would say that the bond’s growing in a direction that I want you know, I saw her in September, her and the baby, and she just let me take charge of the baby. She was just like, you’re in charge of cleaning the diaper, go ahead, and he’s feeding. I was like, okay. And, I mean, I even saw her in mother mode. Like, I it was just amazing. Like, what she was doing. She she’s so detailed and so, you know, just loving with the baby. That detailed in, like, she knows what he eats. She wants to know how much he eats. And, you know, I just I love seeing in her in action and she’s she even called me and said that she knows I’ve been having some difficult times and she’s, you know, she’s here for me. So it’s grown stronger since I’ve worked on that relationship.
Victoria Volk: I love that for you. Because I know she was a huge advocate for you too even before you met me.
Delyla Ovalle-Bowyer: Yes. Yes. She was a huge advocate. And she was a huge advocate in in stating that I needed to get diagnosed with autism. You know, this is probably the first time that I’m actually saying something like this. But in the past, I was I was misdiagnosed with bipolar. And over medicated. And I felt like a robot in my entire life until until in my thirties, you know, I saw a different psychiatrist, and he went through everything with me. All the questionnaires, everything. And he was just like, yeah, I’m not seeing. What the other person is in.
Victoria Volk: How many years were you medicated for? Kermit’s diagnosis of bipolar, which is crazy to me.
Delyla Ovalle-Bowyer: Yeah. Probably fifteen years.
Victoria Volk: Wow.
Delyla Ovalle-Bowyer: Until my thirties, like, when I was fifteen, you know, fifteen years.
Victoria Volk: When you started to question and your sister was kind of encouraging you. Is that kind of
Delyla Ovalle-Bowyer: Yeah. I started questioning probably in my late twenties because I kept on saying I’m a robot. I feel like I’m not in my body. Mhmm. And then I did see that. It was It was just an amazing person. You know, he heard me. I forgot his name right now, but thank you. And he just listened to me and he unchecked all the boxes of thigh fuller, and he said something else is going on. And then that’s when my sister in my thirties, I remember. She sent me a video of women being misdiagnosed and being misdiagnosed as bipolar, schizophrenia, a lot of different things. And then finally in their forties, late thirties being diagnosed with autism. And it just really hit me. It it hit me in a good and bad way. I was just like, what? I was like, no. This can’t be it. But then I was just like, maybe this these are the answers to why I had such a difficult time in school and why it was difficult for me to communicate with my parents. So Yeah, Adi, how are you – how are you
Victoria Volk: – I know you mentioned you had to have a therapist now, but how have you – does this therapist believe that you are on the spectrum? And then also how are you managing now your mental health and that in that way?
Delyla Ovalle-Bowyer: Yes. She does believe that around I am on the spectrum, and and she has given me she really doesn’t have that expertise. So what something new, Victoria? So on Friday, I believe that was October eighteenth. I actually got officially tested. Oh. So I don’t know the results, but We’ll see in, like, three weeks what the results are that I think I don’t need that validation. I know who I am, what my past was, how my childhood was, and even talking to my parents, the difficulties that I did have. It just validates what my sister has been advocating for me.
Victoria Volk: I’ve had other guests who have, you know, had questioned mental health diagnosis for many years and then received that diagnosis. And for some, it can it surprised them of how impactful it was. Then at the same time, it’s like, well, it doesn’t change anything. Right? Like, it doesn’t change my heart, it doesn’t change who I am, and you know, you’re still gonna be Delyla. Right? You’re still gonna be highly functioning. Right? I mean, you can you got your bachelor’s degree. You’re working in research and you’re living on your own, like, you can still have an amazing quality of life regardless of whatever diagnosis you have.
And I think that’s an inspiring thing for people to hear.
Delyla Ovalle-Bowyer: Yes. Thank you.
Victoria Volk: So I’m glad you shared about it here.
Delyla Ovalle-Bowyer: Thank you. Yes. I am too. Some of my coworkers do know, but not everybody. And I’m just, you know, My sister said it best. Embrace it. Don’t hide yourself because it is very tiring, you know, trying to just grow go with the crowd and everything, but I that I’m gonna change that perspective, you know. I’m Delilah. And like you said, nothing’s gonna change that.
Victoria Volk: How have you seen that as being a challenging thing for you though in in terms of in terms of relationships and connecting with people, how has it been challenging for you? What have you learned that can might be helpful to others?
Delyla Ovalle-Bowyer: Yeah. Gosh. I guess, with friendship relationships. It’s been very challenging. I will trust the wrong people. Yeah. And I’ll give them a second or chance. And than that their chances enough. You know? And I trust a lot. And it’s really hard when that trust is broken. It it hurts. And so I’ve lost a lot of friendships. And, yeah, like, I lost a friendship over a misleading conversation that one of their friends said something differently that I was, like, hitting on them. And I was, like, I’m not hitting on you. Like but it was, like, my friend didn’t trust me. And I was like, can you give me the proof? Like, that I’m doing this? And they couldn’t. And I was just like, well, I I’m not doing what you’d think I’m doing. And after that, it was just a realization that, okay, we’ve been friends for two plus years. And this is gonna be the end of it because you can you don’t believe me and they went on their own way and I’ve gone on their own way. I It was hard, but I guess it was better that’s for the both of us. So within that, that friendships are really hard. Like I said, I
Victoria Volk: can’t for anybody. Yeah. And let’s be real.
Delyla Ovalle-Bowyer: Right.
Victoria Volk: Even as in your forties, which happy belated birthday, by the way, which was in September
Delyla Ovalle-Bowyer: though. Yeah.
Victoria Volk: It’s it’s no different. It’s like you still feel like the kid on the playground you know, that was traumatized because somebody said something and, you know, assassinated your character or made up rumors or lies and, you know, you know, you feel like this defensive little child on the inside, you know. Right. Yeah. It’s no different in your forties. I think that’s the, you know, mean girls, elementary school, become mean girls as adults. I mean, let’s be real.
Delyla Ovalle-Bowyer: Yes. I mean, they really do. And I guess now in my forties, I guess that’s when they say, you kinda know what you want and, you know, And I and I feel that. You know? I I do know what I want. I I think I’ve always known what I want, but it’s just like, you know, enough playing around. Like, if you’re gonna be my friend, like, This is how it’s gonna be, and I’m gonna have boundaries. And I do have those boundaries. So I have I have my coworkers, Ida and Adriah. They’re amazing girls, and we weren’t as co workers, but we’re friends as well. And like I said, they they’re just amazing. You know? And I believe that they’re a friendship that will last, and I would like it to last. It is very difficult to make friends.
Victoria Volk: But Especially in the new place. Right? New place, like, job, like, know, you like that kid on the playground again. Like, yes. And the the new kid at this, you know, that moved to town and
Delyla Ovalle-Bowyer: yes. Or the one I remember soccer. Like, I was a big soccer player on the field. And I was just like, I was one enough who’s gonna pick me. So, like, yeah, it’s just that whole thing over again. But I think that’s what just makes me, you know, grow grow. Yeah.
Victoria Volk: It’s like you you grow through your insecurities and putting yourself in uncomfortable positions, which is what you’ve done. And and I just wanna commend you because do you feel like before you went through the program. And I’m not saying doing the program was the only thing and the one thing that changed everything. I mean, it did for me, but that might not be true for you. What do you think is true for you though? The Delyla before do grief differently in the Delyla now?
Delyla Ovalle-Bowyer: It is true that with doing grief differently. I had to go head on with the messiness. I literally had to be the lotus that grew in the mud. And before then, I wanted to escape. There’s still an inkling nummy that sometimes wants to escape, but like even today, I told my therapist I said I wanted October to be over, but then I embraced it. I was like October. I’m here. The Delyla before would shut the door on her parent and cry underneath her blanket and or maybe scream. Today, I’m doing grief differently. I’m embracing it.
Victoria Volk: I love how you threw that in. Because that’s what it’s called. Right? Let’s do this differently. Let’s do this differently. That’s the whole point. I’m just so happy for you that you’ve had this lowest moment in your life. This it’s a chapter that is going to unequivocally impact the rest of the chapters in your life.
Delyla Ovalle-Bowyer: Mhmm. What do
Victoria Volk: you look forward to most? Oh, gosh. What gives you hope for the future?
Delyla Ovalle-Bowyer: What gives me hope is the work that I do. You know, I started out as a special education teacher, and I’ve always worked with students on the spectrum and various abilities. And now I’m embracing my own uniqueness. So I guess that just that was in itself knowing that it’s never too late to do something. That gives me hope for the future and just knowing that I have a lot of love to give and I know I can do hard things. That gives me hope for the future. I used to not like the word resilient, but I’m always hearing that from my mom. She’s just like you’re resilient to dilate. And you know, I am, but I can also be vulnerable. And vulnerability might get me in trouble a little, but or it just may scare me, but I think that’s what the world needs. Vulnerability. Love caring me. Yeah. Just life in general. I don’t know. I’m ready to have I’m just ready to enjoy life.
Victoria Volk: I wish I had a clip from our first session together in early twenty twenty three
Delyla Ovalle-Bowyer: Mhmm.
Victoria Volk: And do a side by side. It’s like night and day.
Delyla Ovalle-Bowyer: I know. It is
Victoria Volk: because I don’t record the sessions. And there’s a reason for that, but, you know, because it’s like, you know, for your privacy and all of that, I don’t record sessions. But I think one of the I don’t know if it was with you that I started it, were you write yourself a letter? Mhmm. Beginning.
Delyla Ovalle-Bowyer: Yep.
Victoria Volk: Did we circle back to that at the end? I don’t think we called now. We didn’t.
Delyla Ovalle-Bowyer: I know I wrote a letter to myself, but I’m not. We circled back to it.
Victoria Volk: I don’t think we did. And it’s it was just for you. Right? It was just for you, but I’m curious, do you remember anything from that? And and like Oh, no.
I I hate to put you on the spot.
Delyla Ovalle-Bowyer: No. It’s fine. No. I I think
Victoria Volk: it’s like, do you feel like that letter you wrote? Resonates with the you now. I really do.
Delyla Ovalle-Bowyer: You know, I I feel it does resonate, you know, with because I was so lost back then. And I wanted better for myself. So, you know, I’m going out of my comfort zone. And, you know, I I I told a guy that I liked them. And it didn’t like and didn’t go the way I was planning on doing it or how I wanted the outcome, but I did it. And that was my first time that I ever did that. So yeah. And I’m doing acrobatic stuff. So I wanna say that that letter was to enjoy life and do something different, which I did. You know, I I said goodbye to teaching and got a research job. So, yeah, all in all, I think that letter I’m living that letter. I’m living that letter to myself, and now I really wanna find that letter.
Victoria Volk: Yes. You should. It’s it’s like a time capsule. Right? Yes.
And it was with you that I started that. So every client now I have them do that because I think it sets the intention for who you who you want to be and where you want to be to twelve weeks following, you know? Yeah. And an aspect of the program too was you map where we look at your strengths and skills and values? And how has that what role did that play in you transitioning and finding this other role? And what you learned about yourself? That you didn’t, like, really it’s so easy for us to point out the great things in other people. Right? But to own what we bring to the table. And so how did that help you?
And that how did that part of the program help you?
Delyla Ovalle-Bowyer: That program really helped me see that I am truly worthy of you know, something different, something challenging, you know. I’m a data abstractor, so I’m behind the computer, analyzing various things. And it was just like, I have to say when I went into the interview, I didn’t think I had any of the qualities, but I Victoria, doing that work with you, the values and made me realize that I had a lot of skills transferrable to from education to a research associate. So it just gave me the to, like, ace that interview and just be, like, Okay. I may have some weaknesses, but I can learn. Mhmm. And it has it has been a learning curve. I I wanna say that I may not be given a lot of tasks, but it’s because I’m still new at the job, so everybody’s trying to figure out figure me out and I get that. So I’m just I’m being there and I’m being a helper. I’m being I’m being honest. I’m being open. And I’m saying, you know, these are the skills that I have. This is what I need to work on. And, yeah,
Victoria Volk: I just pulled up your u map because I wanted to to just share with listeners. And you and just a reminder to you, your top five strengths are adaptability. Like, whoa. You’ve totally been doing that. Right? Deliberative. Which isn’t executing strength. So adaptability is a relating strength. Deliberative isn’t executing strength. And so you take serious care in making decisions or choices.
You anticipate obstacles. So that’s a great quality to have. Mhmm. A great strength to have. And then you have two thinking things, intellect and input, which are wonderful for what the job that you’re doing. Right?
Delyla Ovalle-Bowyer: Yeah.
Victoria Volk: And then developer is your final one, and that’s a relating strength. And you recognize and cultivate the potential in others, which is great for team building and working as a unit with other people. And also the adaptability piece in relating to other people. Recognizing that, you know, your strengths may not be the same aren’t not gonna be the same as other peoples. And so adapting to the strengths that other people bring as well. Right. And I love I’m just looking at your top values too. Authenticity and adventure. Mhmm. Community, boldness, compassion, trust, respect, leadership, determination, balance. And you have a lot of the your most preferred skills. I see in what you’re doing assess, observe, research study.
Delyla Ovalle-Bowyer: Yeah. What?
Victoria Volk: Yeah. Speed others, initiate change. Yeah. Collaborate. It just seems like a lot of what and and you’re the doer and the helper. It’s getting the job done, but in community with other people. Right. And I’m so happy for you that you found a nurturing environment in order for you to grow in as well. Thank you. I’m so happy for you.
Delyla Ovalle-Bowyer: That’s good. Thank you.
Victoria Volk: I just wanted to share with people listening that this is how your grief differently. The impact it can have on someone’s life is we don’t just look at the grief itself. It’s not all sad and gloom, doom and gloom. Right? Like, it is because it has to be. We have to look at the past because it’s influencing and impacting your future in your present day. You would agree with that. Correct? I will It was impacting your life tremendously.
Delyla Ovalle-Bowyer: Yes.
Victoria Volk: So you have to look at it. And work through it. And now, like, today, you took today off, you’re honoring your energy, you’re honoring any sadness that comes up for you because even going through the program, you’re still gonna feel sad. Right?
Delyla Ovalle-Bowyer: That’s yep. It never stops.
Victoria Volk: But the difference now is, can you articulate now for listeners how that how that is different today than it was before you did this program? That exactly, like that pain that you felt Yeah. What that would do to you? And now what happens? Like, today instead?
Delyla Ovalle-Bowyer: Oh, today or before the sadness would overcome me. I wouldn’t wanna get out of bed. I would I basically wanna just shut the world out.
Victoria Volk: How’d you feel physically?
Delyla Ovalle-Bowyer: Tired, exhausted, mad at the world.
Victoria Volk: Probably not ready to go on a bike ride.
Delyla Ovalle-Bowyer: Oh, yeah. Never. Yes. I I definitely put on you know, physically, I was putting on weight, and then it was not only affecting me, but it was affecting my mom. Again, we were living together. So me being mopee around the house or not coming out of the room affected her, and then she was worried about me. So she couldn’t do her own grieving. So that’s back then. Now, I’m living on my own. I am I honor him in different ways. Like, I’ll take his ashes and we’ll go on a bike ride and I’ll spread him somewhere that I really enjoy. Now, I can talk about it. I don’t. I’m not so depressed. You know? It doesn’t it doesn’t feel so heavy on my heart anymore. Like I felt I’ve really felt Victoria that I felt so heavy. Like, I was I consumed all this stuff that I couldn’t communicate, but I can communicate about it now, whether it be journaling or to my mom, I’ll call my mom, and I’ll just be like, this is how it is, or I’ll call my sister, or I’ll talk to my coworkers, my very close coworkers. So now it’s I can talk about it and it doesn’t weigh so heavy on me. And I have this, I guess, more light in my in my face.
I mean, I guess if you were to see me back then versus now, like, I definitely can tell that there’s, like, a different energy going on.
Victoria Volk: You’re permeating. You know what I mean? It’s grief is energy, joy is energy too. Right? And so if we’re feeling that heaviness within ourselves.
That’s what we are projecting. That’s why you said your that’s why your mom was feeling that too and and she couldn’t grieve because of course she’s your mom and she I mean, that was a perspective that I don’t you didn’t draw that connection. When you were going through the program with me, like, that wasn’t even something you were considering.
Delyla Ovalle-Bowyer: Right?
Victoria Volk: And so it’s like now she can breathe maybe. A little bit, you know you know, because now she can focus on herself and her grief.
Delyla Ovalle-Bowyer: Right?
Victoria Volk: And you can work on thriving. Yes.
Delyla Ovalle-Bowyer: Yes.
Victoria Volk: Which it seems like you’re doing. So I’m so happy for you. That’s exciting. I love the Delilah that has now been expressed that was always there. Right? Like, this Delilah was always
Delyla Ovalle-Bowyer: there. It
Victoria Volk: was just you know, like I said, it’s like a veil that you wear. Right?
Delyla Ovalle-Bowyer: You
Victoria Volk: know, you can’t see yourself clearly, so you don’t see others clearly.
Delyla Ovalle-Bowyer: Mhmm.
Victoria Volk: And now that you’ve worked through all that stuff, you can look at your mom and you can see the impact that that was having on her. You see things more clearly?
Delyla Ovalle-Bowyer: Yes.
Victoria Volk: And you see what you bring to the table in relationships, and what you need in response to others in connection with you.
Delyla Ovalle-Bowyer: Mhmm. Yes.
Victoria Volk: And you have the language?
Delyla Ovalle-Bowyer: Yes. I do. I do have the language. I it’s it’s amazing, you know. And I You know, I still do the work every single day.
It never stops.
Victoria Volk: And as soon as that was my next step, I was gonna segue into that.
Delyla Ovalle-Bowyer: No. I mean, Victoria, I think you said it as like it never stops. He continued to do the work. And so I do do the work. I see a therapist every other week, sometimes weekly, and I’m the one that voices it. I’m like, I need to see you next week. Can we can we open this face up? And she’s always been grateful to do that. So, yes, it’s always doing the work. I may have a hiccup, you know, go back to, well, what about this? Or what if this? You know, maybe with my dad. While he was in the hospital, but then I’m just like, okay, do I want this has happened, you know, do some journaling, or maybe write a poem about it, and I do. And then I think about how he’s not in suffering anymore, how he’s not in pain, and how I’m not in pain anymore. I mean, I know pain will always come back in some aspect that it doesn’t weigh so heavy, so much on me where I just shut the world out.
Victoria Volk: Sadness and pain are very different. Right? And that’s what I said. You’re still gonna feel sad today. Of course, it’s not gonna be pain, settings from the pain. Yeah. Yeah.
Delyla Ovalle-Bowyer: Yeah. That isn’t. So yeah.
Victoria Volk: What would you tell people who are not sure what to do. I mean, because I you were that was you at at one point. Right? Like, you didn’t know what to do. Like, what what was the thing that told you? I I just gotta do this. Like, that kept that because people can come up with all kinds of excuses. Right? I don’t have the time. I don’t have the money. I don’t have the mental bandwidth. I got so much going on. I’ve got kids. I gotta do this. I gotta do that. We don’t make the time for yourselves. What was the thing that helped you to just make that decision to invest in yourself and do this?
Delyla Ovalle-Bowyer: I think it was me and my mom how much of an impact I was, like, my depression and everything was impacting her and just being so closed off and wanting to sleep. So, like, I think it was just everything. Like, the the sleeping, the crying. I was just tired of it because it was even making me more tired. I was like, when is this gonna stop? And just the thoughts of, like, it should have been me instead of him. Because I remember saying if I could have given my heart to him, I would, you know. But it was, like, I want to say it was that moment that I was like, I need to find somebody. I need to find some help. I I need a wrap my head around this. I need somebody to guide me because I don’t know what I’m doing. And if I went if an eye and if I kept on going down that hole, it would have been bad. But, I mean, I’m so grateful that I found do grief differently. And I was given the tools to help me, myself, and my family. Because again, Victoria, I think you said it best. Like, I didn’t realize how much it was impacting my family until now I think about it, I reflect, and it was.
Victoria Volk: What would you say to somebody who’s sitting across from you a friend and they’re considering this? What would you say to them?
Delyla Ovalle-Bowyer: Do it. Do it. It’s worth it. You’ll learn a lot about yourself. You’ll break down some barriers.
Don’t cry. You’ll get angry. But all of those emotions and feelings are validated. And I, you know, if it was a close friend sitting right next to me, I would be there. I would tell them I’m holding your hand throughout the entire way. I’m gonna be here for you. So if it’s for anybody, like, Zoom people, I’ll be here for you. You know? Yeah. Just do it.
You’ll see
Victoria Volk: if there was? Yes. If there was anything you could have changed about the program or anything that was missing, what would you say?
Delyla Ovalle-Bowyer: Oh gosh. I I really feel like the program was just great. Everything was great. I do I do love the addition to the letter to yourself. So keep on doing that. No. I I wouldn’t change anything. I I loved it. It helped me. So
Victoria Volk: Yeah. And these questions were not rehearsed by the way. Yeah. I did not send you these questions. So No. He did it. I wanted the true honest, you know, response in the moment. So thank you so much for sharing. And, again, I know what it did for me. I know what it’s done for you. I know what it’s done with the countless people who have gone through it. And so I I appreciate you so much for sharing your story of the Delilah before and the Delilah now. And I’m I love this is what I love. It’s transformative. And this is You are a perfect example of of how it transformed your life. What you put in the work? I give you the credit. The credit doesn’t go to me. Sure. I resuscitated it. I held your hand, but you did the work. And everyone who goes through the program, they do the work. And it’s it might seem cookie cutter. Right? Like, your friend, if you have a friend that would go through it, they’d go through this exact same process you did. But It’s different because it’s your unique story. It’s your unique grief. It’s your unique process that you’re taking yourself through. And that’s why it’s not cookie cutter.
Delyla Ovalle-Bowyer: Yes. It doesn’t. Every thought story is different. Definitely.
Victoria Volk: Is there anything else that you would like to share that you didn’t feel you got to?
Delyla Ovalle-Bowyer: I just I wanna say, Vivek, thanks to my mom, my mom, Olga Boyer, just for you know, be in there. She’s always been there. And I know she will. Just and I I think everyone on this journey It’s been a journey. There’s been ups and downs, but I am holding to the ups. And I know there will be some downs sometimes, but like my mom said, I’m resilient and I will continue to do my work, my advocacy work, my research, I’m a big researcher. And, you know, in the future, I hope to continue my political advocacy work was special special education children because those children are very deeply connected to me even though teachers out there. So even though I’m not a teacher anymore, I always think about my teachers. So, yeah. Thank you.
Victoria Volk: And thank you for the work that you do in your advocacy work and for to be in the voice for those children. The future children that I have no doubt that you are going to advocate for. So thank you so much for being the light in this world that is so needed too.
Delyla Ovalle-Bowyer: Thank you, Victoria.
Victoria Volk: And I have one final question. Yes. What has your grief taught you?
Delyla Ovalle-Bowyer: My grief has taught me. That it’s my grief. It’s nobody else’s. I can sweep you off your feet whenever whenever you at least expect it to,
Victoria Volk: and not in a romantic way.
Delyla Ovalle-Bowyer: Exactly. Not in a romantic way. It is I can sweep you off your feet where you’ll get stuck in the mud again. But I can’t wanna say that I just sit there with it. And I’m just like, okay. Let’s do this. Let’s okay. I’m feeling some crying. Let’s do this grief. Let’s do this together. And why are we doing this? Oh, because something, you know, because that memory of dad came up, you know? Or, you know, you were vulnerable. So Okay. And it didn’t turn out the way you wanted it too. Let’s just sit with it. So it’s it’s taught me not to bury it because if you bury it, it just gets worse.
Victoria Volk: What is the lesson your dad taught you that comes to your mind, you know, daughters and their dads, you know,
Delyla Ovalle-Bowyer: Oh gosh. I wanna say when he decided to take the morphine, he did it himself. He made that decision. And he asked us each one. Or he told me he was like, don’t be mad if I do this. I was just like, why would I be mad? You know? You’re in so much pain. I don’t want that from you. Do I want to be selfish and happy forever? Yes. But he taught me me, bravery, he taught me how to be courageous. The many times that I was with him in the hospital. He taught me even on his less thigh and breath. You know, I my whole family just stood there around him. That death is a part of life and that he did it when he needed to go. So he taught me love and compassion even those last seconds when we were just there. Those last minutes, hours. You know? He he taught me breath free even though I was crying my eyes out and everything. And he taught me that he’ll never leave me even though he’s not physically here, that he’s guiding me along the way. So, yeah, he he taught me a lot.
Victoria Volk: What’s your favorite memory of him if you have one?
Delyla Ovalle-Bowyer: There’s so many. But I guess one that really pops out right now is he was a stickler for just getting me to school. Like, he wanted me to have perfect attendance throughout the entire elementary school year. So it was raining and the rainwater was up to his knees. So his car stalled. And what he ended up doing is he was determined again to get me to school. So he put me on his shoulders. And he walked me, like, maybe, two blocks just to school, just to get me to school. And he did, you know, he was all wet. He was trrenched. And I don’t know why that memory popped up, but it was just like him being determined. Like, you’re getting to school.
Victoria Volk: This summer hell or high water.
Delyla Ovalle-Bowyer: Yes. Exactly that. Come home or high water he has. And so, yeah, that memory just pops up, I guess, as well because it’s he was determined and he he always knew I was determined. So and somebody can say no, but you keep on going or, you know, you just keep on paddling, whatever it takes.
Victoria Volk: And never miss school. There’s no excuse. Like, you get your degree, you get it done, you do it. Yes.
Delyla Ovalle-Bowyer: Yes. So much. Yes. Mhmm.
Victoria Volk: There’s a lot of lessons in that. One one event. Right? Yes. Oh, that’s a great memory.
Thank you for sharing.
Delyla Ovalle-Bowyer: Thank you. I wish you
Victoria Volk: a beautiful rest of your day of honoring your dad and honoring your your grief and the sadness. However, it comes up and I hope this expression of your love for him has helped you feel connected to him today and feel a little lighter Yeah. And to be an advocate for other grovers that there is hope There is hope.
Delyla Ovalle-Bowyer: There is. So thank
Victoria Volk: you so much for your time today.
Delyla Ovalle-Bowyer: Thank you, Victoria.
Victoria Volk: And if anyone wants to connect with you, how can they find you? Are you on social?
Delyla Ovalle-Bowyer: Yes. Social. I have a LinkedIn at Deliloh Avaya Boyer. You can find me there. I do have an Instagram delightful Deliloh.
Yeah. And I have a Facebook Deliloh Avaya Boyer. So yeah.
Victoria Volk: I will link to those in the show notes if anyone wants to connect with you. Maybe there’s some collaboration as far as children with special needs.
Delyla Ovalle-Bowyer: Yes.
Victoria Volk: See work? Things like that, maybe opportunities that can flood your way to, like, padalila?
Delyla Ovalle-Bowyer: Yes. I I am working on some cohorts right now, so political advocacy cohorts. So, yes, anything. Oh, thank you.
Victoria Volk: I’m happy to share that in the show notes. So thank you so much for your time again today, Delyla.
Delyla Ovalle-Bowyer: Thank you, Victoria.
Victoria Volk: And remember, when you unleash your heart, you unleash your life. Much love.
Childhood Grief, Grieving Voices Guest, Grieving Voices Podcast, Mental Health, Murder, Parent Loss, Podcast |
SHOW NOTES SUMMARY:
In this week’s episode, I am honored to host Susan Snow, a beacon of hope for anyone navigating the treacherous waters of trauma and loss.
Susan is an inspiring figure as an author, international speaker, and resiliency coach. Susan bravely opened up about her experience following the tragic death of her father, an LA police detective. Her candid discussion on coping with PTSD before it was widely recognized sheds light on the silent battles many face.
In this raw conversation:
- Susan shares her firsthand experience dealing with PTSD following the violent loss of her father at age 17.
- She discusses how the lack of mental health awareness in the ’80s left her struggling alone with grief.
- We delve into how witnessing gun violence impacted Susan, leading to sleep deprivation and suicidal ideation.
- The podcast touches upon how trauma can affect familial relationships, highlighting Susan’s strained dynamic with her mother post-tragedy.
- We learn about Susan’s path to resilience: from wearing an “emotional mask” to eventually finding a therapist who understood severe trauma.
- A pivotal moment occurs during our discussion when she recounts watching coverage of the Columbine High School shootings in 1999, which triggered flashbacks — illustrating how PTSD symptoms can persist over time without proper help.
Susan’s tale teaches us something vital: In sharing our stories openly without fear or shame, we permit others to do the same. We foster conversations that might be someone else’s lifeline or inspire them towards help they’ve been reluctant to seek out themselves.
RESOURCES:
CONNECT:
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NEED HELP?
- National Suicide Prevention Lifeline: 1-800-273-8255
- Crisis Text Line provides free, 24/7 support via text message. Text HOME to 741741 to connect with a trained Crisis Counselor
If you are struggling with grief due to any of the 40+ losses, free resources are available HERE.
CONNECT WITH VICTORIA:
Healing Through Trauma: The Journey of Resilience
In the labyrinth of life’s challenges, few experiences cut as deeply as trauma and loss. For Susan Snow, this journey began on a fateful Halloween night in 1985 when her world was shattered by the loss of her father, an event that would shape her understanding of grief and resilience for years to come.
Susan’s story is not just one of heartache; it’s a beacon for those navigating the murky waters of post-traumatic stress disorder (PTSD), mental health struggles, and personal growth. As we unpack Susan’s narrative, we find invaluable lessons embedded within—lessons about vulnerability, self-care, and the transformative power of therapy.
The Silent Battle Within
Imagine carrying a weight so heavy that even your closest loved ones can’t see it. This was Susan’s reality following the traumatic death of her father. In an era where conversations around mental health were scarce at best, she found herself isolated with emotions like guilt and shame while dealing with PTSD—a term barely recognized at the time.
For many like Susan who have faced similar battles silently amidst family dynamics fraught with complexities such as narcissism or addiction issues—the path to healing can seem dauntingly out-of-reach.
A Trigger Point Towards Recovery
It wasn’t until another tragedy struck—the Columbine High School shooting—that Susan’s suppressed traumas resurfaced intensely enough to push her towards seeking help. It highlights how external events can trigger deep-seated emotional responses from past traumas—an important reminder that our journeys are ongoing rather than neatly concluded chapters.
Her husband played a pivotal role in advocating for therapy—a step which led Susan to eventually connect with a therapist specializing in severe trauma. This partnership became foundational in validating her experience and providing hope during what seemed like insurmountable times.
Breathing Life into Healing
One practical tool that emerged from therapy was box breathing—a technique that helped regulate Susan’s nervous system during anxiety spikes. She emphasizes allowing oneself to feel anxious moments instead of resisting them; employing controlled breathing as both an anchor and compass through tumultuous emotions serves as practical advice for anyone grappling with anxiety or stress-related disorders.
Box breathing represents more than just breath control—it signifies taking command over one’s internal state amidst external chaos.
Episode Transcription:
Victoria Volk: Welcome to another episode of Greeting Voices. If this is your first time listening, thank you for being here. And if you’ve listened before, thank you for coming back. Today, my guest is Susan Snow, she is an author, international speaker, and resiliency coach. Her message of hope and healing through trauma and loss comes from her vulnerability, which allows others a safe space to tell their own story of trauma and loss. And thank you so much for your time and being here today and sharing your story.
Susan Snow: Thanks for having me.
Victoria Volk: And your book title is very to the point Can you share that story, please? But also, I have a quest a follow-up question to the book title.
Susan Snow: So Sure. Absolutely. Well, the book came out and that title was specific because I am the daughter of a Los Angeles police detective who was ambushed while picking up my then six year old brother on Halloween of nineteen eighty five. And my mom and I were called to the school and witnessed his body in the aftermath. So the other side of the gun It was my side. It was my side of what gun violence, you know, takes away from you. Without getting political, you know, it was more on the mental health side.
Victoria Volk: And when you when this happened, you were seventeen on the gas of adulthood. And you’re old enough to recognize that what happened. Right? And process what happened to some to some degree?
Susan Snow: I really struggled. You know, this was the eighties. It was mid eighties. There was no talk of mental health back then. And there definitely was very little known about PTSD. What I witnessed was horrific. And I didn’t know how to process. And unfortunately, that night was so chaotic. There was just so much going on. And when we showed up, there was so much going on, but we still didn’t know until we actually saw this scene. All I saw were officers coming towards me with tears in their eyes. And I didn’t know what that meant. I mean, even when I’m the one that received the call at home, I was getting ready to go a Halloween party or hoping to go to a Halloween party, and it was a week night. So my dad had already said, nope. Not doing it. But I was bound to determine being seventeen, and I got that call from a woman from my brother’s school. And all she said was there was a drive by shooting, and my dad was involved. So even at that point, I didn’t know what to expect when we arrived at the school. And even that night, after I witnessed what I witnessed to the officers, you know, my mom was screaming and Iwas focused on an ambulance that was did still in the street, and I couldn’t understand why they weren’t helping my dad. I just it was not processing at all. That what I was seeing was that he was gone. It was it was a a very surreal kind of feeling like an auto body experience kind of And then when we got into the school, we went into a office. And I sat down and my mom was kind of ushered out of the room. I believe was some detectives. I didn’t know where my brother was.
I didn’t know if he was hurt. If he was at the hospital, like, I knew nothing. And as I was sitting there, there were two ladies that were talking. And the one said to the other, yes, unfortunately, mister Williams is deceased, and that’s when it hit me and my world cracked. And I just wanted to run out of there. You know? I talked to a lot of people who have had loss. And this seems to be kind of a feeling of I just wanna run away from this nightmare, especially when it’s something that happens. And occurs quickly, but you just wanna run. And I wanted to run and run and run and run and not stop. But my legs were like cement. I couldn’t move. Physically, could not move. And my mom came back into the room and she said, I’m sending you with a neighbor. And even though I wanted To leave, I wanted to run, the seventeen year old girl needed my family. I needed to be in a space where I felt like I wasn’t alone. And instead, I got sent to the neighbor, and I don’t blame her. I mean, there was a lot of chaos, like I said, going on. And people handle things differently in chaos. But that night really impacted me because I felt like I was not important in this family unit situation and all the focus and so be it was on my brother because my dad’s last thing that he did on earth was to save his life and tell him to duck down in the truck because he knew what was coming. So, you know, for me, I was having to go to this neighbor and this poor neighbor had known my parents forever. So she was trying to wrap her head around what was happening. And my environment changed because my quiet street now was covered in media vans and police cars, and we had helicopters we could hear over the house. And it was crazy, you know. So I didn’t get to grief. By my like, I had no privacy on the grieving process at all. Like, There was always people around. People I didn’t know. And you know, I had my boyfriend at the time who I’m now married to. And he was nineteen. So we were both children, you know, and we’re trying to figure these things out. Like, how do you navigate this? So Yeah. It was it was a huge pivotal pivotal time in my life. And Yeah.
I
Victoria Volk: did I wanna backpedal to my statement about that you can process it to some degree. And what I meant was when I said that because I’m a child of loss. My father died when I was a kid and
Susan Snow: You get that. Do that.
Victoria Volk: Yeah. So I get that. And when people say, oh, children are resilient, they’ll bounce back. Like, that drives me crazy.
Susan Snow: Me too.
Victoria Volk: Yeah. So what I meant when I said that and I should have said it differently was as opposed to like a younger child. Right?
Susan Snow: Oh, yeah.
Victoria Volk: You have a greater understanding
Susan Snow: Yeah.
Victoria Volk: Of the weight
Susan Snow: Yeah.
Victoria Volk: Of what’s happening. Yeah. Right? I still really under like, a child mean, like, I understood when my dad was dying of cancer. Like, Iand when he died, I knew he died.
Like, Iunderstood that. Like, he was gone forever. Right? But to understand, like, the impact that that was gonna have, the rest of my life, that I couldn’t even run my head around. Right?
Susan Snow: Right.
Victoria Volk: But as a seventeen year old and you know you’re going into adulthood and you you have an understanding of this is changing everything for me. Right? And that’s that’s the weight of the trauma and what you witnessed and all of that. Did your brother survive?
Susan Snow: He did. He survived. I didn’t see him until the next day. What I was told was that he was in he was questioned by police immediately. So he was still at the school when I got sent away. But I didn’t get to see him. I could hear him crying. In his room, but there was nothing left of me. To be able to go and console him. And I just assumed my mom would be there and do it. And he would be surrounded with people because he was so little. So I really didn’t see my brother until the next day and I was able to hug him. And, you know, just let him know that I was there for him and I love him and you know, dad loved him and, you know, so but it was it was a hard time. It was, you know, I My relationship with my mom was not a hundred percent when this happened. We had a strained relationship for many years.
And I didn’t realize that until I started to write my book. You know? So when all this happened, my dad was always like the go between the mediator. The voice of reason, and now he’s gone. And so not only was I processing the fact that my dad was gone, but then I was processing the fact that how was I going to manage that relationship with my mom?
So it was just a lot. It was a lot for me and, you know, I was living, as you well know, with grief, you live in a fog. I was living in a fog. I couldn’t sleep. I was total sleep deprivation.
And I ambeknownst to me, I had suicidal ideation. I wanted to be with my dad and I didn’t know how that would happen. But I longed to be with my dad. And I had days where I just couldn’t get out of bed, so the depression hit me. My sense of security was gone because they didn’t catch the men. So the men who were involved in this in my dad’s murder. My dad was a detective. So he had testified that day in one of his criminal court cases, and the guy who was the defendant was out on bail. And it gave him an opportunity. But it didn’t it took them six days to find them. So for six days, we had police presence all over our house, front yard, backyard, everything. I had bodyguards. So anywhere I went, I had bodyguards. And it was just crazy, like a whole different world. I had a pretty normal teenage life before all of this. And that was gone. And I had to grow up very, very quickly. So it was just it was a lot to process a lot. And I didn’t have the tools, you know. Ijust I didn’t have the tools at the time to manage my anxiety.
So I always felt like I was I even though I wanted to be with my dad, I was always, like, I felt like, you know, I’m having a heart attack because the panic attacks and and the feelings of it. And I would have to just try to squash him most of the time Iwould just talk myself out of it. But now I know not to do that because it just extends the attack. But it went on for a while. And I you know, and my mom now that I realized my mom has a narcissistic personality, And so her focus was totally her. And you know, we all process trauma and grief differently. And she chose to drink. And so that felt alienating to me as well. But that was her coping skill, and I’m not, you know, like I said, everybody deals with trauma and loss differently.
Victoria Volk: That’s another level of grief. Right? And then your younger brother is growing up in that environment too.
Susan Snow: Mhmm. Oh, yeah. Absolutely. So, you know, it’s a it did take them about a month. I was at the point where if you pointed me in a direction, that’s the direction I would go. You know, Ihad no advocacy for myself. Ididn’t know how to verbalize. Ididn’t even tell anybody what was going on in my head, and I didn’t know how. I had guilt and shame and felt like if I put more on someone else, it was too much, so I just kinda just dealt with it. You know? And My mom came to me about a month after my dad was killed, and he she said that the Los Angeles police department the advocate said that they wanted to put us in therapy. And I didn’t know anything about therapy. In fact, in the 80s, I thought if you went to a therapist, You were crazy. But being, you know, subservient, I was like, Okay. Because that’s that’s the direction that you’re gonna push me. That’s the direction I’ll go. And I met with this therapist. I had this feeling like, oh my gosh, this is gonna be the adult. This is gonna be the one that’s gonna help me, that’s gonna make me feel better. Right? But unfortunately, I think that the trauma that I experienced was too much for him, he wasn’t, what I call, trauma competent. And he didn’t wanna ask the questions, and he didn’t. For an entire year, Ali talked about every single session was my relationship with my mother, my relationship with my brother, my boyfriend in school. And that was it.
Victoria Volk: And in the room.
Susan Snow: Nothing. And people like when I tell people that they go, What? And I said, yeah, because I think, honestly, he was afraid to ask the questions. Right? Because, you know, maybe he didn’t have the answers or he didn’t know what to do.
So
Victoria Volk: So have you ever even asked you, are you having thoughts of harming yourself or others? Not at once.
Susan Snow: Not once. And every session I’d be like before the session, I was like, today’s the day. Today’s the day. He’s gonna figure it out because Iwas a mess. Like, I was a mess, but I just didn’t know how to verbalize. Most seventeen year olds back then didn’t know how to verbalize our feelings. And most of the time, you know, at Gen X, we were we were told to, you know,
Victoria Volk: suck it up buttercup.
Susan Snow: Buck it up buttercup. Yeah. Exactly. It wasn’t it wasn’t an open conversation. So an entire year went by, and the last day that I saw him, he looked at me and said, Susan, you’re a well rounded young lady, and you’re gonna be fine for the rest of your life, and I don’t need to see you anymore. So that was that. And I walked out of that last session thinking, okay, I am so I’ve cracked I’ve cracked. I’m I’m crazy. I I’m just gonna have to live with this pain for the rest of my life. Even a professional can’t help me, and that was my mindset.
You know, I lived in fight or flight from then on? It was just that’s how it was. And, you know, and and and my my boyfriend, he didn’t He didn’t know what to do either. So I just I struggled a lot. And then on top of that, you know, as the years went on, you know, the the time with my mom and living with my mom became very unbearable. I couldn’t do it anymore because I watched her spiraling and couldn’t do anything about it. And I had this feeling of, like, I’m the oldest, and this is my responsibility. And I just had to, like I think even back then, I knew a little bit about boundaries without knowing about boundaries. And I just drew a line in the sand and said, that’s it. At eighteen, I’m moving out. I can’t do this. And I did it. I moved out.
Victoria Volk: What did your early twenties your life look like after that into your early twenties?
Susan Snow: I you know, I had some peace being out on my own even though my mom told the local police department, so they were constantly driving by my apartment. Which, you know, you just can’t get away from it. But I married my boyfriend when I was twenty one. And in hindsight, you know, both of us agree that we were too young to get married. But because we had been together for so many years and we’d lived with each other for a little bit, that that was the next step. But even you know, all these years, like, I was living in fight or flight. So is he? He may not have witnessed what I saw that night, but from the moment I told him that night when he came because the the neighbor called him and told him to come to her house. The minute I told him, that was trauma. He’d only known my dad for three months. We’d only been dating three months. Three months and this nineteen year old guy, most guys would have been like, bye bye. This is too much. Too much. But he stuck it out. And I think he stuck it out because he knew my mom was going to do what she did, which is kind of turtle within herself. And I needed a friend. I needed some sort of support. And I’m grateful for that. You know, but it was, you know, it was it’s our journey too, you know, and it’s I don’t think I would be here if my husband wasn’t. In my life, especially at that point. You know? So but, you know, we’ve we’ve been together almost thirty nine years now, and it’s just nuts to me. I mean, we’ve had our we we it’s it’s if you read it in the book. If you read it in the book, there was a divorce in the middle, but we are together. And married in for the second time. But yeah. I mean, it it’s just you know, grief is is a crazy thing because it you know, it it comes and it goes. And the nice thing about having my husband is that he now knows my triggers. I hate that word, but he knows he knows and he knows when that’s gonna send me into the grief. You know, so it’s helpful. I have the tools now, but he he does too. Through watching me through the years. And that’s really important.
Victoria Volk: When I think you raise a good point in that the ripples of grief, it’s the impact it has on you, but also I mean, the people around you, when you don’t have the tools, right, and you can combust at any moment or, you know, explode into a fit of rage or anger. The people around you feel like they’re living and walking on egg shells.
Susan Snow: Yep.
Victoria Volk: That’s the ripples of getting And so when people think, oh, it’s not affecting me. I’m dealing with it. I’m just sweeping it under the rug. I’m not gonna talk about it. If you are getting angry about someone not replacing the toilet paper roll or, you know, refilling the salt shaker, whatever it is. Right? Like these silly things that can make us angry when we are just like you said, walking in a fog. Well, and yet it’s like these a thousand paper cuts. Right?
Susan Snow: Exactly. Well, I will tell you I got really good, and I talk about this all the time. Igot really good with wearing my emotional mask. And what that is is, you know, when I was young, after it happened, people would say things like you’re strong. You’re brave.
You’re gonna be fine. And that’s what I wore. So anytime anything came up, I was like, put on the mask, I’m fine. I’m strong. I’m this. Right? But underneath, I was a mess. But what I put out outwardly was something that was different. And so that’s why I call it the mass. Because nobody can see what all the turmoil is inside. My husband had a way of knowing when that mask was coming on, and that was the difference. But it took me many, many years to get rid of that mask. Many, many years. And you know, fourteen to be exact. We we were married. We got we had two children. We had two children. We decided we were gonna leave Southern California. I always lived with this safety issue. Because it was my dad’s death was a planning of his death for months. Before he died, before they killed him. I always looked behind my shoulder all the time. Nighttime was extremely stressful for me because my dad was killed at night at the night at the, you know, like, five forty And when we got an opportunity to move to Denver, Colorado, that’s we jumped on it. And we moved in ninety seven and then I was working as a hairdresser at the time. And I was working at a salon that was close to Littleton, Colorado. And I on April twentieth of nineteen ninety nine, I was working and I took a break, I went into the backroom and turned on the TV, and all the coverage of the Columbine high school shootings. Were happening. And as I sat and I watched it, obviously, my colleagues were having a reaction to it. Shock you know, sadness, all that. But for me, I saw the school. I saw the kids that were my own age. I saw the ambulances. The police cars and I started to have flashbacks. I turned pale white. What is a ghost? Started getting clammy. I could feel my fingers tingling. I knew it was happening. I was having a panic attack. And I did not tell my colleagues my story so they had no idea why I was having this visceral reaction, and I didn’t either. Because I was told I was gonna be fine for the rest of my life, and that stuck with me. So as this was all going on, I tried to calm myself down and then I did what I always did and I put that emotional mask gone. And I went out and I did my clients and everybody was obviously very upset. But I went about my day like it didn’t affect me. The minute I walked through those doors, though, to drive home.
All of those emotions came flooding back. And I was I spiraled. I was terrified now because now I’m a mom of two small kids. And I wanted to leave this planet. Part of me did. The other part of me was terrified to leave my children. And this happened for two days. And when I got home one day, my husband met me at door and he said, you have two choices because he knew it was a slippery slope. He knew it. He said either you get help today or I’m putting you in a hospital. And I threw up the white flag and I said, okay, I’ll I’ll go to the doctor. And I went to the doctor, and a regular physician, and he immediately put me on antidepressants because that’s what they do.
Victoria Volk: Of course, they do. They’re not trained psychologists or therapists.
Susan Snow: No. And then he handed me a card. And he said, I want you to make an appointment for this therapist. And I literally laughed at him in his face. And I said, I did this fourteen years ago. And it didn’t help me then? What makes you think this is gonna help me now? And he looked me and he said, you have no choice. You have no choice. So I said, okay, fine. And I made the appointment, and I’m so grateful I did because this therapist specialized in severe trauma, and she knew all about PTSD. So in five minutes, of having a conversation with her. She looked at me and she said and I described everything I went through at seventeen and everything that I was currently dealing with. And she said, Susan, she said everything you’ve gone through since you were seventeen years old. Is a hundred percent normal because you have PTSD. And I kind of like sat back in my chair because I was confused. I went, wait a minute. I’m not in the military. I didn’t go to war. And she said, well, She said anyone who has gone through trauma can experience PTSD. But what you what you need to know is that PTSD isn’t something that goes away. It’s something you learn to manage. And those words were like, Oh my goodness. I always describe it as the sky opening up and rainbow shot shooting out of him because I felt like I wasn’t crazy, and I had hope, and I had it. An adult that was gonna guide me in this journey and help me heal. And I just I felt so grateful in that moment. But she had her work cut out for her. Definitely.
Victoria Volk: Thank you for sharing that. And I think one thing that came to my mind as I was hearing you talk about your experience with the PTSD and stuff is and let me ask you this from what you’ve learned about PTSD. Is it kind of like the pendulum can swing where you’re maybe it’s like all the cells in your body are just like all at once, like like you’re it’s almost like you’re how do I wanna explain this? Like, your energy is really amped up or the pendulum can swing the other way where you’re completely detached. Yes.
So Pete, I just want to
Susan Snow: Answer is yes.
Victoria Volk: I just want to clarify for people listening who are unfamiliar with the symptoms of PTSD. It doesn’t just look like your experience.
Susan Snow: Oh, yeah. And everybody like PTSD is not a one size fits all. Right? So everybody has different reactions for different things. So for me, for example, anytime there was like a shooting of some sort, It would take me right back to that day and all the feelings I had. So the anxiety, I would be extremely anxious and then extremely sad. Right? Some people just get very anxious or on edge. Some people just go into a deep depression. Some people become suicidal. There’s just a a very variance of things that happen to you. And so for myself, when I say she had her work cut out for me, is she decided that it was going to be beneficial to start out small. And not overwhelm me. So the one thing that I was struggling with at that very moment is sleep. And if you don’t have sleep and you have PTSD, It just exacerbates everything. So she really wanted me to get rest. But I told her nighttime was the worst because and I’m sure there’s people out there that are, like, Yep. When you start to rest, your brain just turns on. My brain would turn on, it would go straight to the darkness. So I would be terrified to shut my eyes. Because I thought I was going to be enveloped in the darkness and would not be able to come out of it. So she said, okay, here’s what we’re going to do. You’re going to journal at night. And I kinda looked at her funny because I’m like, that sounds a little dumb. Like, Really simple too. Right? Right. Yeah. Like, really, this is gonna make a big difference for me. And she’s like, you know what?
Just give it a week. I’m gonna give you a couple of prompts to write. If you wanna write, you can do it through music. You can do it through art. I don’t care how you do it, but just get all that stuff out of your head before you go to sleep. And I said, okay. So for a week, I had a little a little tablet next to my bed. And I would write down all the stuff that was swirling around in there on the paper. And at first, I was like, oh, but my spelling was wrong, and my You were judging it. Yeah. And, you know, when I called her, she’s like, Susan. This isn’t a lesson of like English. You just have to write. Right? Just like write it. It doesn’t matter. If it’s spelled right, it doesn’t even it doesn’t matter. Just get it on a paper. I said, okay. Fine.
So for an entire week, I did that. And And the crazy thing that happened is I fell asleep. I started to sleep. Because I was no longer anxious, I was no longer in that, you know, darkness when I slept. And I thought, oh, this stuff works.
Victoria Volk: And typing it I’ll say this too. I’ll just add this for people listening. Handwriting is the key.
Susan Snow: Yep.
Victoria Volk: Not typing on a laptop or anything like that. Yeah. Right? That’s what connects the brain to your heart.
Susan Snow: Absolutely. Yep. And yeah. So I physically wrote it. I physically wrote it.
But like I said, you know, some people people can do art. They can draw pictures. They can pick up a guitar and start writing a you know, like, just singing it out, like, whatever you have to do to get it out. And like I said, there’s no one’s size fits all. And so that was the first thing that she started me on.
And as we started attacking every single symptom, My next symptom that I dealt with was anxiety, and I had dealt with this forever And, you know, and I told her, I said, it’s exhausting, physically exhausting to my body. To continue to have a panic attack after panic attack after panic attack. So she started to teach me breath work. And breathing techniques. And the first the very first breathing technique that I learned was called box breathing. And I still do it to today. You know, I actually teach it. So, you know, it was changing my nervous system and it was changing my state, you know, state the state of my my being. And so I started to learn as I felt the triggers of anxiety, I would know. Okay.First, I gotta let it happen. I can’t fight it. Because when you fight it, it doesn’t go away or it’ll stop and then it’ll start and then it’ll stop and it’ll start. So I’ve got to just tell myself, I’m okay. You know, this is gonna be alright. I’m gonna live through this. And then so that I don’t go into another one then start the box breathing and really change the state of mind. And so she just each thing, she just kept attacking each thing that I was dealing with. And it was unbelievable. But here’s the really important thing that is over and above all it is the most important thing in the lesson that I learned. Was I had to be able to one trust her because I had to be the most vulnerable that I could be in order to do this work. And if I didn’t feel that, I wouldn’t have healed in the way that I did. And that’s really important for people to understand is that if you go to a therapist, when They need to be trauma competent. They need to understand your type of trauma and know how to help you heal through it. But you have to have that feeling of safety, of you can be a hundred percent vulnerable and go there with those people. And know that they are going to respect you, that they are going to guide you in a way that you need to be guided. So because I hear a lot, people say, oh, therapy didn’t work for me. Well, it’s because you didn’t find the right therapist. Because when you do and the work is done, that’s that’s when you see the real healing.
Victoria Volk: Well, in the distinction too, and look at the contrast of the first therapist versus the second therapist. The second therapist was giving you like homework. Right? Yep. You had action to take. Yep. That’s the difference. That’s why support groups, if you’re not taking action, they don’t work. Yeah, it make you feel better for a short period of time, but it’s not long lasting. It’s not moving you forward in a positive way in your life. Like therapy, like talk therapy, continually talking about the same things as you shared, it makes you feel better for the short period of time. Right? But then the next time you’re talking about the same things again. Right? But I think the difference is this action. Taking action.
Susan Snow: Yeah. Actually, yeah. Because she would give me something to do And then ask me, like, how did that affect you? What it you know, how did you feel after that? You know?
Did you feel relief? Did you not? Like, do we need to tweak something? You know? And it was and that’s why I tell people it’s not a one size fits all. What happened for me and what I used worked for me. It may not work for you. There’s so many modalities out there right now. You know, and you just have to find what works for you. And don’t be a soul
Victoria Volk: resonates with you. Absolutely. Yeah. Yeah.
Susan Snow: Yep. Absolutely. So and I tell people, like, you will know in the first five minutes of meeting someone. Especially a therapist if you feel comfortable. If you don’t, find another one.
You know? This your healing, and your journey is your journey. It’s not theirs. And so it’s important for you to be your own advocate. And if you feel like you’re not getting the right help or you’re frustrated because you’re not going in the right direction, then find another therapist. It’s okay. Everybody has to find their right fit.
Victoria Volk: I’m a certified grief specialist and what I learned in my training is that and me personally my story is that and maybe you resonate with this. Is that trauma Trauma happens, but grief is what’s left.
Susan Snow: Yep.
Victoria Volk: The grief that’s left.
Susan Snow: Yep. And you’re grieving a lot of different things. Like a lot of different things. I mean, for me, I was not just grieving my dad. I was grieving my life. I was grieving my relationship. I was grieving my childhood. I was grieving not having a mom in the way that I need it, you know, the support system. I was grieving watching my both of my, you know, my mom and my brother took a different road than I did. Now my brother is doing amazing now. But when he was younger, he took, you know, a rough road, and I was grieving that. You know, I was grieving not being able to be the sister that he needed because I had to put boundaries down. You know, and so there was just the grief evolves actually, you know, as time goes on, you’re grieving for different things. And so things will come up, you know. And I, at this point, I have no contact with my mother. And it’s okay. Because what I realized was that that relationship was very toxic. And I spent a lot of time in shame and guilt because I was healing and she was not. And I felt like as the oldest and as the daughter that it was my responsibility, to help her heal. But what I had to realize and my book actually helped me realize is that It’s not my responsibility. Everybody is their own individual person. And so even though she’s my mother, it’s still her own responsibility for her own life. And the choices that she makes. So when I wrote the book, I figured, you know, I was doing this to heal myself, but also in the process of it because I had so much fear. It was terrifying to be this raw and this vulnerable with strangers. I’m putting it out there, but I had fear of safety, repercussions, you know, because I’m putting myself out there. Are these men gonna find me kind of thing? I had fear about, you know, is this going to somehow blow up my marriage again because I talk about some very serious things that we went through. In the book because it was traumatic. And the relationship with my mom Is it going to open a conversation, or is it going to completely destroy whatever is left of the relationship? And it did the latter. But in all of that fear, I had to find a purpose Why was I writing this book? Who was it going to benefit? And that’s who I put in front of me. The faces of the people that need to hear my message to know that they’re not alone and that other people go through things and they find resiliency through it. Brief doesn’t go away. It comes back in weird ways. But when you have the tools to move through it, and you know the people to look forward to help you support you, it makes a huge difference. And so that was what I did is I just focused on the people that were out there in the world. That needed to hear, hope. And I, you know and so with it having this effect on my relationship with my mom, I actually feel at peace and I feel okay. And sometimes that is the best thing. And I tell people, you know, if you’re in my situation, if you’re in that situation, sometimes best thing for you is to find your peace and protect it.
Victoria Volk: Well, and make peace with the choice that you made. Right? It’s making peace with the choice that you made.
Susan Snow: Yep. Chaz two. Yeah.
Victoria Volk: This relationship and I’m going to make peace with that.
Susan Snow: Yeah. And actually, she’s the one that severed it.
Victoria Volk: Oh. Is that Is the last with your mother, is that the other loss that you were describing on your website?
Susan Snow: Oh, yeah, absolutely. I mean, it’s, you know, it’s It’s hard because that night, I felt, and even my brother says the same thing, that we lost both parents. Because we lost our dad, but my mom lost her identity. And she She just turdled. She just she to this day, if you meet her, she’ll tell you in the first five minutes who she is. That she’s the widow of my father because that’s her end all be all. Right? That’s that’s her identity. And that’s fine, and that’s the choice that she makes. But I feel like watching that both of us watching that all these years has been hard because it’s like we always wanted my mom to be happy. We always wanted my mom to have this beautiful life, finding love again, finding happiness again, and and we watched her. Exactly. And, I mean, she has no relationship with my kids.
Victoria Volk: And that’s another layer of grief.
Susan Snow: Mhmm. So that’s, you know and what let’s and I say, like grief comes up in different ways throughout your life. And so now I literally, last year, realized that my mom was a narcissist and that, you know, narcissistic abuse is very difficult. To heal from, but it’s something that I’m doing right now. And I’m the helping my brother as well just have he still has a relationship with her, but I’m trying to help my brother to be because he always wants to fight her over me. And I’m like, no. You protect your peace. I’m protecting my peace. So, you know, it it it took me I’m fifty five. It took me fifty four years to figure this out and writing my own book and reading my own book and seeing the patterns throughout my life where my mom had opportunities to step up and be a mom and give me the support that I needed. And it didn’t happen. And so instead of living my life like having this fantasy, that one day my mom is gonna wake up and be some hallmark holiday mom, I had to let go of that and that is another grief. Of letting go of that fantasy. So yeah. I mean, brief is not something that you you heal from it at one point and then it goes away. Because there’s always gonna be things throughout your life. That you’re gonna grieve over always. It’s just a matter of how you wanna do it. So I choose to learn from my experiences. And in learning, I find the resiliency.
Victoria Volk: And even if that takes thirty plus years, Absolutely. Did you and me?
Susan Snow: Absolutely. It’s not too late. There is no timeline. There literally is no timeline. I think the the craziest thing that drives me bananas and it probably does you too being grief counselors. When people say, oh, it’s been x amount of time, get over it, or you should just move on Right? Why is it still bothering you? Mhmm. Well, because you didn’t have the relationship with that person that I did, That’s just like when someone loses some when someone dies, I never say I know how you feel. Ever because I don’t. I didn’t have the same relationship with that person. As the one that’s grieving. So Same. Even your brother. Even my brother relationship. I tell my brother that all the time. I don’t know what it felt like for you. You had a whole different experience than I did. And I would not pretend to know what that feels like. I just know how it felt fermi. You know, and and the experiences I went through, which is what I wrote in the book. These were my experiences. And, you know, and and, you know, everybody just everybody goes the other The other thing is is, oh, your trauma is worse than mine. Really? No, it’s not. I mean, the the story, the, you know, the actual situation, yeah, not everybody goes through that. I get that. But everybody’s trauma is different. Does it mean that it’s not important?
Victoria Volk: There’s no hierarchy?
Susan Snow: Or there’s no hierarchy exactly. There’s no you know, well, my dad was murdered and you’re, you know, you’re just dealing with whatever, you know. No. Well, and
Victoria Volk: what people are doing when they do that is they’re minimizing their own gap briefing trauma.
Susan Snow: Absolutely. And it’s crazy because I’ve had conversations with people that here’s the other side of that is that I’ve had conversations with people who have gone through trauma, but because it was an everyday event or an environment that they lived in constantly, they felt like everybody, you know, everybody’s family was like that. And so it wasn’t it wasn’t traumatic what they went through. It wasn’t abuse that they went through. And when I bring it to light, I had a woman who I was driving for Lyft for a little while last year because I’m a real estate agent now and real estate was a little funky last year, so first time in fourteen years, I had to have a side gig. So I went out and was driving, and I had my book in my car her one of my riders who was, like, why isn’t your book in your car? So I had a yeah. Yeah. Yeah. So I had my book in my car and I picked up this woman and she pulled out my book and started to kind of read it. And she says, oh my gosh, you went through so much trauma and this and that. And I’ve never had trauma in my life, but she was going into rehab the next day. And I said, really? And so we started talking about her sobriety. And I said, well, what? You know, first of all, we talked about the fact that this was her third time in rehab. And that she had three kids, and that this time she wanted to do it for herself, the other time she did it for her kids, but failed. And in talking more with her, she said, well, I haven’t had trauma like you have had trauma. And then you said, well, you know, everybody’s life is different and maybe you did and you don’t recognize it. She said, well, you know, when I was I lived with my mom, my mom raised me and my brother, and my mom was abusive you know, she yelled and screamed at me and whatever, but she said she had these boy this one boyfriend and, you know, he he would touch me from the age of three to seven. And I was like, touch you, and then she started to elaborate. And this woman was sexually assaulted and molested. From the age of three to the age of seven, she was made to have relations with her brother, and this was ongoing. And so for her, it was normal Like, this this was how you showed love. This is, you know, but then the mom would be jealous when the boyfriend would give more attention. To the child. Right? And I almost crashed my car at this point because I was like, you don’t think this is trauma? I said, here’s what I’m gonna tell you. What happened to you wasn’t your fault? That was his fault. That was her mother’s fault. You had adults that did not protect you. As a child, did not protect your brother as a child, you one hundred percent went through trauma. And I said, and I don’t know how or why, but stuff flies out of my mouth and I go, where did that come from?
But what I said, was this. I said, if you really want to get sober, that is what you need to attack. Because what you went through was severe trauma. And I said, you have been To rehab, three times. Have you ever in those three times told any of your counselors? This story. And she said no. And I said, this is why it’s your fourth. So here’s what I’m gonna tell you. When you go to rehab tomorrow, and by this time she’s, like, in tears, like, in tears.
She’s sobbing. And I said, listen to me carefully. When you go to therapy or when you go to rehab tomorrow, Please tell your story. Tell your story. Because when you do they’re gonna get you the right people. They’re gonna align you with the right people. Because if you don’t attack this, now S sobriety is gonna be so much harder. And she was just like, oh my god. I can’t believe I’m this lift and this is what I was yeah. But it just it it opened my eyes. It really gave me an aha that there are people that are walking around on this earth. Who have had experiences that it was so common that they don’t even realize that it was traumatic. And
Victoria Volk: Or no one ever even asks, what are you trying to cope from? Right? Like, what happened to you? Right?
Susan Snow: That’s a very simple question. Even physicians and doctors offices don’t ask that. What happened to you? Right? And, you know, and and it again, it shocked me that she said she wants to rehab three dives and she said all they did was talk about the sobriety.
Staying sober not feeling guilty for, you know, whatever. I get all that, but unless you really attack the true whether it’s abuse or whatever it was, it’s harder to get sobriety because Down deep, that is what you’re hiding from. Mhmm. I watched my mother do it. For years.
That’s what she was she was hiding from was the reality, you know? And hurt people, hurt people, whether it’s themselves or the people around them. So I told her, I said, look, with me healing for myself, the ripple effect is it’s helped my kids. It’s helped my husband. It’s helped my brother. Right? The people that are open, but you have to work on you first. You know, you have to be the priority.
Victoria Volk: And Remember your follow-up?
Susan Snow: I didn’t. And it kills me because I would really love. I center with my book. I said, read my book while you’re in rehab. Maybe it’ll give you some hope and maybe some some kind of healing. She didn’t wanna get out of my car, but you know, I’ve met many people like that, and I feel like I’m living in my purpose. You probably feel the same way, being a grief counselor. Iknow I’ve made a difference in people’s lives. I’ve seen it from other riders that I have gotten a follow-up with. But with her, you know, she is always on my mind. Maybe one day, you know, we’ll run into each other again. But I really hope that she’s able to heal all the terrible things that happened to her. And how it’s affected her mindset all these years, not believing in herself and not, you know, feeling like that’s the only way that you can show love with a man in making the making wrong choices with men. That kind of thing. But, yeah, I mean, it’s it’s important to make yourself the priority.
Victoria Volk: So what has your grief taught you?
Susan Snow: Oh my goodness. My grief taught me to learn from what I’m grieving about. There are lessons in grief if you pay attention. So when I feel like I’m grieving something, Ilook at it a little bit differently and say, why am I feeling this way? What is it that triggered me to feel this way? And what can I learn from it? Because the other side of grief too is that It’s the universe trying to teach you something. You you gained something out of it.
Victoria Volk: That’s a really hard thing to hear. You know, at first. I know
Susan Snow: it is. It
Victoria Volk: is. Listening to that or, like, oh, I didn’t ask for this lesson. Right?
Susan Snow: Right. But again So
Victoria Volk: it’s a
Susan Snow: It’s all timing. Yeah.
Victoria Volk: Well, and and it it’s all part of our own evolution.
Susan Snow: Absolutely. And it’s it it is. It’s all in timing. It’s it’s, you know, what is that that saying, you know, when the when the student is ready, the teacher will appear.
Victoria Volk: Mhmm.
Susan Snow: Yeah. I mean, that is a hundred percent real. And, yeah, in the beginning, it is it is hard. It it is. And I think in the beginning of grief, like, the best thing you can do is take care of yourself, just the littlest things. Just making sure that you’re that you’re remembering to to give yourself love in your in your self support. And that’s, you know, that’s something I had to learn to do really early on, is I had to figure out, okay, how do I love myself? Since I didn’t have adults around me that were giving me the support I needed at the time. So I had to learn to do the things. And as a kid, you know, what is that? Oh, well, that’s getting my nails done. You know, feeling pretty, getting my hair done, you know, spending time with my friends just like sometimes it was forcing myself to spend time with my friends because all I wanted to do is sit in my room. As a kid, you don’t know what you’re you don’t know what you’re doing anyway. So I was just like, I’m just going to envelope myself with friends and my boyfriend and, you know, the things that I know that even though they walked on egg shells around me, they still I could find a little bit of joy in spending time. With them. But, you know, as an adult, when I tell people and they’re going through grief is, I know it’s hard sometimes, but find something that makes you feel better even if it’s for five minutes. Whether that’s just a good cup of coffee, or a tea or just sitting outside and feeling the breeze on your face and the sunshine. You know, taking a bath, listening to your favorite music, just something. That gives you a little bit of comfort.
Victoria Volk: Very good. Very
Susan Snow: good. Yeah. Scream into your pillow. Cry your eyes out. And I think people get really scared. Like, oh my god. If I cry, I’m gonna cry for days. Like, I’m never gonna stop crying. I’m I’m just it’s just not gonna happen. You know? And so I know women who are like, I allow myself to have ten minute cry and then that’s it. I’m like, really? I think you should just go for it. Just just let it all out. And it’s okay. Actually, it’s a positive. It’s not a negative. But, you know, I still think that there’s that little, like, that little myth in the back where people think if I cry. I’m weak I’m showing weakness, and it’s the total opposite. It is so the opposite.
Victoria Volk: Well, you can get outward attention from your anger, or you can get outward attention from your tears. And which would you for it to be.
Susan Snow: Exactly. Would you like to go to jail or because I’ve had those days too where I was like, Oh, man. I, you know, I have to rain it in a little bit, find other ways.
Victoria Volk: And speaking of that, as a mother, dealing with all of this. Like, your children, how old were well, I have two questions. What’s sparked the idea for the book? Was it the therapy? That kind of helped you get to that point? And then also, like, just, you know, the mother you were before you started to do this work in the mother that they have now?
Susan Snow: Well, the book, when I turned fifty, I was mentally at a place where I knew that telling my story when things came up I would have the tools to help me get through it. So that’s why the book came around because I was like, oh god, I’m fifty. I gotta get this done. And I honestly feel like it was my dad kicking me in the rear end. Because he knows what my work is. You know? And my purpose isn’t is through him. And I had this like I drew a line in the sand that was like, that’s it. I’m fifty years old. I’m getting this book done. It took me four and a half years to write it. And it’s because I did. I had to dive and relive and, you know, I had repressed memories come up. All kinds of things happened. It was a journey in itself.
As I was writing the book, I feel like as my kids have gotten bigger, and now they’re adults. I won’t tell you how old they are because it makes me feel old. But they’re all adults, and I have three now. And you know, I think they see the resiliency. They see that I’ve had these days where I’ve been so sad. They’ve seen my sadness. I never hid it from them. I never, you know, think the only time I hit any of my emotions is when my husband and I were divorcing. And there was a you know, there was just a lot. And I was really trying to be the supportive parent through that. And I felt like they needed they needed to see a strong mom. They needed to see a supportive mom. And so my closet saw all my tears and heard all the bad words. You name it. Right? And but, you know, my husband as as well was very No. Very loving or, you know, tried to be as loving as possible through everything with them. He was going through his own stuff, his own mental stuff. But as they’ve seen me progress and they’ve seen me heal, My kids struggle with their own mental health things, and they have a mom that can help them through their own struggle. They have a mom that was a big proponent of them getting therapy. And finding the right therapist. So I was able to utilize my own experiences even with my own kids. And making sure that they were going to be okay, no matter what. So you know, I think that was the biggest thing. I wanted to leave a legacy for my kids of you can go through horrific things in your life. And you can choose to be a victim or you can choose to rise up and be a survivor. And my hope is that I’m teaching my kids to be survivors.
Victoria Volk: You had mentioned that you gave your clause at all your tears and you wanted to be the strong mom. And I imagine that comes from your own personal experience of with your own mom. Right?
Susan Snow: Yep.
Victoria Volk: One thing I wanna highlight for listeners is that I think there’s a distinction that needs to be made. There’s a difference between being strong, but also allowing yourself to grieve with your children and showing them how to grieve. Mhmm. Because again, that goes back to what you shared, like you learned to, like, put your mask on. And what happens is, as children learn that, writing, we learn that.
Susan Snow: Yeah.
Victoria Volk: Either and it can go the pendulum can swing both ways. Right? I had a similar experience. There wasn’t room for my emotion because there was so much from my mom. Same for you. Like, there was like, Iagree that My mom died the day my dad died. Right? Like Mhmm. So there wasn’t room for my emotion. So I had to be strong. To I didn’t wanna rock the boat. I didn’t wanna upset her. Right? And so I think you can learn. You can be in a situation like that where you either learn to put the mask on or you learn how to grieve in a healthy way. And a part of that involves showing vulnerability, showing tears. Yep. Talking about what you’re experiencing. Yeah. Having space and room for everyone’s feelings and emotions.
Susan Snow: Yep. Well, I tell you
Victoria Volk: What would you do differently now? Right?
Susan Snow: Yeah. I mean, I think the funniest story for me was I was speaking. My kids had never they’ve never really heard my story from my perspective before. And I invited them in twenty nineteen. I spoke. I was a keynote speaker. And I wanted to have my kids there. So they came to watch me speak. And I had asked my middle son to video me. And so I did my I did my talk and I came off the stage and my kids were just like blown away. And they were like, I’ve never heard yours I’ve never heard it like that before. I I’ve never, like, Oh my gosh. Like, they didn’t know what to say, but my middle son said I said, did you get did you get anything on, you know, an ego’s mom? I got so caught up in your story that Iforgot to record you. I’m so so sorry. I was like, it’s fine. Because for me, it was like, okay. That sucks. But you know what? It was so much more important for my kids to be a part of that experience.
And to hear my story from their own mother, from my own lips, and to see where I was and where how far I’ve come because I felt like that was a really important lesson for them to learn. As young adults. And they have been on this journey with me, and Ithink I have such a close relationship with my children and even my I have a I have a stepson. I have a really great relationship with him. He is my kid. A woman another woman just had her had him. I’ve been blessed to be able to have this experience with my children and teach them exactly how to grieve, and that it’s okay to grieve, and it’s okay to to show your emotions. And you know, it’s not a weakness, and I’m here for you, and your dad is here for you. And we have always been very very much about showing support for our kids, not only our kids, but my friends make fun of me because they say I collect children, not in a weird way. But generally, kids who have challenging home lives themselves, who don’t find the support system themselves. Have found my husband and I as secondary parents. And I feel like that’s all coming and stemming from my own experiences. And making sure that other kids have the support that they need. And so now those kids are getting married and they’re having children, which is giving me grandchildren, non biological grandchildren, but You know, they see me as a positive person in my in their lives, and I am so grateful for that. So grateful for that, that they too have read my book and said, Wow. Like, when you say to me that you’re gonna get through this, or when you say to me those times where you say just let it go or if you’re feeling, you know, depressed, here’s Here’s some things that maybe might help or whatever. You get it. You literally get it. I said, yeah, I’m not just pulling this out of the sky folks. Like, I’m taking my own, you know, my own experiences and my own lessons learned and and just helping you, like, almost like giving you you know, they don’t even know what this is, but cliff notes. But most kids are like cliff notes. What are cliff notes? I don’t wanna talk to you anymore. If if you were around in the eighties, you know what a cliff note is. So yeah. I mean, that’s and I think that you know, as adults, and adults who have gone through things or have felt things sort of, you know, I feel like it’s important for us to impart our wisdom, our positive wisdom on to the younger generations because I feel like they have personally, I feel like they have a lot more. On their plate than even we did. The differences is that there is talk of mental health. And there is a lot known about PTSD, and there is a lot of conversation around trauma. And create
Victoria Volk: new free tools
Susan Snow: and loss. Yes. Absolutely.
Victoria Volk: It’s so much more accessible.
Susan Snow: It is accessible. It’s just you know, people still need that little nudge. You know?
Victoria Volk: Yeah. You don’t wanna DIY your trauma and
Susan Snow: No. No. You still need the nudge.
Victoria Volk: Yeah. It’s you know, you’re only like you said earlier, you know, we I think and I did it too. Like, you you’re only extending the suffering by not bringing in the support that you need to move forward. And you know, we don’t know we don’t know. And Exactly.
People that know a little bit more and are a little bit further along. And those are the people you want to seek out. So
Susan Snow: Yep.
Victoria Volk: Thank you so much for sharing all that you’ve shared. Is there anything that you didn’t feel like you got to share?
Susan Snow: Oh my goodness. No. I think this was great. I mean, I hope I hope I’m putting it out there. I’m I’m throwing that energy out there that there’s someone listening who I just want you to know that you’re not alone. You’re not, and that there are people out there that care about you. And that, you know, there are resources available to you. And, you know, I’m I’m out there. You know, I’m accessible. I am open to talking to anyone heck, you know?
Who knows? If you’re sitting in my left ride what you’re gonna get. But, you know, Ijust hope that someone out there is able to resonate or connect with with this conversation, and it just shows them that there is hope and there is healing. That can happen.
Victoria Volk: Yes. Mhmm. Iwould love to dove into the divorce and the reconnection. Oh. When I say it’s hard. A self and everyone else would just have to read the book because I’m assuming that’s in the book?
Susan Snow: Yep. Okay.
Victoria Volk: Pick up the book if you wanna know more on that. We’re so about all our other podcasts. Interviews maybe?
Susan Snow: Yeah. Yeah. No. Italked about it more in the book than anything else, you know. Because the divorce is the divorce. The lessons out of it is is what’s important.
Victoria Volk: Right? Mhmm. Well, thank you so much again. And I will put links to the book, the your website, Instagram, and the show notes. I’ll also find a really good box breathing YouTube that I can add in there.
Susan Snow: Yeah. Absolutely.
Victoria Volk: Yep. And
Susan Snow: Yeah. Thank you. Wonderful. And did you say the name of the book? I don’t know remember if you did or not.
Victoria Volk: I believe you did. The other side of the gun.
Susan Snow: Yeah. The other side of the gun, my journey from trauma to resiliency. Yep.
Victoria Volk: Yep. I’ll put the link in the show notes for that.
Susan Snow: Perfect. Yeah. Awesome.
Victoria Volk: And remember, when you unleash your heart, you unleash your life. Much love.
Cancer Thriver, Childhood Grief, Grief Stories, Grieving Voices Guest, Mind/Body Wellness, Parent Loss, Pespective, Pet Loss |
SHOW NOTES SUMMARY:
In this heartfelt episode of Grieving Voices, I’m joined by the remarkable Kris Carr, a multiple New York Times bestselling author, wellness activist, and cancer thriver. Known as a force of nature and recognized as one of Oprah’s Super Soul 100 influential thought leaders, Kris shares insights from her latest book “I’m Not a Morning Person,” which delves into the raw emotions that surface when life falls apart unexpectedly.
Kris discusses navigating through loss and grief with humor and hope while providing readers with strategies to move forward. She opens up about her personal journey living with stage 4 cancer for over two decades and how it has shaped her approach to health advocacy.
The conversation touches on profound topics such as:
- The unexpected grief journey sparked by the death of her father.
- How old wounds resurfaced during this period.
- The importance of emotional literacy in healing.
- Tools she developed to manage anxiety related to ongoing cancer scans.
- Her transition from trying to cure herself to focusing on healing.
Listeners will learn how Kris transformed fear into proactive self-care measures that millions now embrace. She also emphasizes the power of naming our emotions as a step toward understanding them better.
Kris’s story isn’t just about survival; it’s an inspiring testament to thriving amid adversity by harnessing love, acceptance, and resilience. Join us for an episode that promises deep reflection and practical wisdom for anyone grappling with their own grieving process or supporting others through theirs.
RESOURCES:
CONNECT:
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If you are struggling with grief due to any of the 40+ losses, free resources are available HERE.
CONNECT WITH VICTORIA:
Navigating the Tumultuous Seas of Grief: Insights from Kris Carr
Grief is like an unpredictable storm; it can hit us with ferocity when we least expect it, leaving us to navigate through its tumultuous waves. In today’s blog post, we dive deep into the insights shared by Kris Carr – a beacon of hope and resilience in the face of life’s most challenging moments.
Kris Carr isn’t just another voice in the wellness community; she is a testament to living vibrantly even amid adversity. Her journey began with a stage 4 cancer diagnosis that would forever change her trajectory. But rather than allowing this diagnosis to dictate her life’s story, Kris turned it into an opportunity for profound self-discovery and healing.
Her latest literary offering, *I’m Not a Mourning Person: Braving Loss, Grief, and the Big Messy Emotions That Happen When Life Falls Apart*, isn’t just about coping mechanisms but also about embracing our vulnerabilities as sources of strength. It’s about finding humor amidst pain and discovering hope when all seems lost.
One crucial takeaway from Kris’ philosophy is understanding that **self-care is non-negotiable**. Whether facing illness or loss, prioritizing oneself isn’t selfish—it’s essential for survival and growth. This means acknowledging our emotions fully without judgment or suppression.
In particular, emotions like anxiety and fear often get a bad rap as being purely negative forces within us. However, as Kris illustrates through her own experiences dealing with these powerful feelings constructively can lead to personal empowerment instead of paralysis.
Moreover, anger—a frequently misunderstood emotion—can be constructive if we view it correctly. Anger signals something deeper at play beneath our surface reactions; injustice felt or pain endured demands attention so healing can occur.
Another poignant aspect discussed by Kris is how society has historically viewed grief—and especially women expressing grief—as unbecoming or taboo. Yet openly discussing such emotions paves the way toward wholeness and recovery—a message particularly resonant in times where mental health awareness is gaining much-needed recognition.
For those who find themselves in caregiver roles—often overlooked heroes—the reminder comes loud and clear: care must flow both ways for sustainability’s sake.
The act of writing itself serves dual purposes for someone like Kris —it becomes both cathartic release and personal reflection tool while simultaneously offering solace guidance others traversing similar paths.
Perhaps one most compelling points made during her interview was regarding language used around illnesses such cancer – traditionally framed battles waged against enemy within ourselves body seen battlefield casualties inevitable consequence warlike mindset approach disease aggression compassion holistic perspective needed here one treats their body ally need tender loving care opposed adversary conquered defeated at all costs
This shift viewpoint not only changes how individuals experience their illness but also affects societal perceptions surrounding diseases overall thus promoting more empathetic inclusive dialogue
Lastly let’s touch upon interesting tidbit revealed by herself – past involvement Budweiser Super Bowl commercials showcases versatility breadth career spanned beyond realms health activism authorship Indeed professional background advertising gives unique lens which view cultural phenomena such annual spectacle Super Bowl ads yet choice refrain watching year underscores commitment staying true authentic self regardless external expectations trends
As wrap up thoughts on enlightening conversation had between Grieving Voices host inspirational figurehead wellness movement encourage readers seek out additional resources provided kriscarr.com follow along Instagram @crazysexykris delve further into book available wherever books sold. Remember whether you’re bracing yourself against storms grief learning sail smoothly calmer waters wisdom gleaned voices experienced navigators invaluable compass guiding towards brighter horizons ahead.
Episode Transcription:
Victoria Volk
00:00:00 – 00:00:15
Hello. Hello. Thank you for tuning into Grieving Voices. Today, I’m excited to share my guests, Kris Carr, with you, my listeners. She is a multiple New York times bestselling author, wellness activist, and cancer thriver.
Victoria Volk
00:00:15 – 00:00:44
She’s been called a force of nature by o magazine and was named a new role model by the New York Times. Kris is also a member of Oprah’s Super Soul 100, a group of the most influential thought leaders today. Her latest book, I’m not a mourning person, braving loss, grief, and the big messy emotions that happen when life falls apart, shares what to expect when you’re not expecting your world to fall apart. It’s raw and inspiring, but has joy, humor, and hope too. This book gives readers tips and strategies to move forward and start living again.
Victoria Volk
00:00:44 – 00:01:04
Kris has helped millions of people take charge of their health and live like they mean it through her award winning books, blog, online courses, and membership communities. Thank you so much for being here and taking your time to share with my listeners. And I just gotta say, I loved the book. The movie we recommend.
Kris Carr
00:01:04 – 00:01:05
Sorry. You can’t really see it.
Victoria Volk
00:01:05 – 00:01:20
I loved it. I do have one question because I wanna make sure I ask this because I just I don’t remember reading the acknowledgments the first time., And so I just kind of peeked through now. What book on grief were you given by your friend, Jeanette?
Kris Carr
00:01:21 – 00:01:24
Oh, well, that’s Julia Samuel’s book.
Victoria Volk
00:01:25 – 00:01:26
Julia Samuel’s book. Okay.
Kris Carr
00:01:27 – 00:02:13
Yeah. And, one of her books, and that was my introduction to a world that I was resistant to enter. And then once I entered it, I realized, actually, this is the conversation that not only do I need for myself, but I wanna have with other people because it’s the most meaningful conversation that I could have. And I didn’t realize up until my most recent life kick just how grief was woven into, the nooks and crannies of my heart, my history, and how it was really something I was so afraid to touch, and yet it was holding me back.
Victoria Volk
00:02:13 – 00:03:00
In reading the book, I resonated with so many aspects of your story of re I, like, reconnected with parts of myself where, like, I was like, I could imagine myself back in time and feeling those similar emotions. And I have, like, a 1000000 and 1 questions, it feels like on my paper. But what you’re here to talk about though is the death of your father, which seems to have been the catalyst for you to explore grief in a way a deeper and more meaningful way than you ever had despite all of like, despite a stage 4 cancer diagnosis that you’ve been living with and all of that, like because there’s a lot of grief in that. And so to not really touch it until until recently. Yeah.
Victoria Volk
00:03:00 – 00:03:04
It’s a very timely book, I’m thinking, for you.
Kris Carr
00:03:05 – 00:03:16
Oh, definitely for me. And I you know, it wasn’t the book that I set out to write. It I’ve written 7 books. This is my 7th book. And you know, there comes a time when your publishers are like, Sue, we need to write another book.
Kris Carr
00:03:17 – 00:03:47
And it had been a minute, and there was this idea that I should write something that’s more mass market, more appealing. I’ve written books for cancer patients. I’ve written books about plant based living. Apparently, I like to tackle difficult topics, vegetables and disease. And so anyway, there was these conversations about me writing something for a wider audience, and I initially went to that.
Kris Carr
00:03:47 – 00:04:09
You know, what’s that self help, aspirational, inspirational book that I could write? Which at some point, I will probably write. But everything in my body and in my being and in my heart was like, I can’t write that book now. I don’t feel that way. I’m not inspired by that conversation.
Kris Carr
00:04:09 – 00:04:49
I am hurting. And so this was my father was diagnosed with cancer in 2016, and he lived for about four and a half years with stage 4 pancreatic cancer. And during that time, you know, obviously, it’s a big life change for the whole family. But I was approaching my milestone of living with my own stage 4 cancer for 20 years. My we were in the middle of a global pandemic, so each and every one of us was hurting in a whole new way and losing people left and right, losing our jobs, losing our former sense of selves, losing our sense of safety and security.
Kris Carr
00:04:49 – 00:05:37
And my business was struggling because I had taken the steps to pull back so that I could be more present with my family. And what I realized is I hadn’t life proofed my business to allow me to do that. And so I was going through a very difficult time. And my initial response, even though I’ve been doing been in the wellness world for 20 years, and so I’ve done a lot of my own personal work and I’ve coached a lot of people in 20 years. Even though I thought I had done this kind of deep healing work when it comes to our mental health and heart tending, it was a big blind spot for me because my go to is to hustle, is to solve, is to fix, is to get the job done.
Kris Carr
00:05:38 – 00:06:09
And I was in a time and place where there wasn’t a way to get the job done. Right? It was a much deeper, more spiritual, more impactful journey that I would have to go on. I couldn’t check a box or get something behind me, much like living with cancer. And so instead of trying to push the river or hold back the ocean because I was afraid it would devour me, I decided to go through it.
Kris Carr
00:06:09 – 00:06:37
You know? And I remember the moment I write about in the introduction when the dam broke when I was sitting in a parking lot at CVS and my mother had asked me to go get more insured because it was the only thing my dad could tolerate. And I am at the aisle not knowing how many to get because I don’t know how much time he has to live and I’m not consciously choosing those thoughts. But here they come. And it was that moment of pushing it down and working harder and all the things that I do to avoid pain where I couldn’t hold it back anymore.
Kris Carr
00:06:37 – 00:06:53
And I was running through the CVS to get back to my car so that nobody would see me cry. And I get in, I break down all of the emotions coming out. And afterwards, I feel this quiet in the storm. I start to feel a little bit better. I feel a break from the fever.
Kris Carr
00:06:54 – 00:07:13
And I think to myself, where are other areas of where are the other areas of my life that I am holding back the opportunity to feel better by just allowing myself to be with the emotion. And that truly was the turning point for me to say, oh, I have to look at this.
Victoria Volk
00:07:14 – 00:07:19
One of my mottos is allowing myself to feel is allowing myself to heal.
Kris Carr
00:07:19 – 00:07:20
Mhmm.
Victoria Volk
00:07:20 – 00:07:30
Pretty much embodies what you just shared. I think the importance of just allowing ourselves to feel what we have to feel, even if it’s to go into our car and have an ugly cry.
Kris Carr
00:07:31 – 00:07:44
You’re so right. And for many of us, we’ve never allowed ourselves to do that. Maybe we don’t even know what we’re feeling. We just know that there’s some sort of disturbance in the force. We’re feeling off.
Kris Carr
00:07:44 – 00:08:19
We’re feeling unsettled. And perhaps that’s old stuff. Like, when we were kids and we didn’t have the words to describe what pain we were experiencing, what discomfort we were experiencing, we may not also have those words as adults. And so it’s an incredible exploration process to even say, what if I just start by trying to identify and articulate what feeling is up for me right now? I don’t have to fix it.
Kris Carr
00:08:19 – 00:08:23
Maybe I could just give it a name and start it there.
Victoria Volk
00:08:23 – 00:08:34
On your Instagram, I saw you had a picture of yourself as a little girl, which prompted me to read the caption. Can you share a little bit about that for our listeners?
Kris Carr
00:08:36 – 00:08:38
About being a little girl?
Victoria Volk
00:08:38 – 00:08:38
Mhmm.
Victoria Volk
00:08:39 – 00:08:41
Having what you the exercise of taking your a picture of yourself
Kris Carr
00:08:42 – 00:08:42
Yeah
Victoria Volk
00:08:43 – 00:08:44
as a little as a child?
Kris Carr
00:08:44 – 00:09:17
You know, sometimes when we don’t know how to self-soothe, we weren’t given those tools. Many of us and our parents weren’t given those tools either. And certainly, we find ourselves in a time of mourning. Then if we don’t know what to give to ourself, I like to have that picture, and then it is the picture that I use up on my desk, or it’s, like, in my bathroom or it’s in my closet where I’m getting dressed. And to just check-in with her and ask her what she needs.
Kris Carr
00:09:17 – 00:09:40
And to allow her to say, what I really need is a little break. I actually need to play a little bit. I need to give myself more unstructured time, you know, because she’s still there. But all of the way that I put on masks or you know, I remember when my mantra was suck it up buttercup. Like, what a terrible mantra.
Kris Carr
00:09:41 – 00:09:51
Right? But it was one I followed. And if I’m willing to tend to her and say, I love you. I’m here for you. What do you need?
Kris Carr
00:09:51 – 00:10:04
I’ve got you. I can re-parent you. Then inevitably, I, adult Kris, start to experience the healing that comes from that.
Victoria Volk
00:10:04 – 00:10:31
Because in your book, you share how being a child of anxious parents. And because you mentioned it just briefly there a little bit, how that shaped you into adult life being a child of anxious parents. Because I have this theory that and reading your book, I’m like, okay. Well, that makes sense. Because I have the theory that a lot of children are carrying anxiety and fears that aren’t even theirs.
Kris Carr
00:10:34 – 00:10:34
Yeah.
Victoria Volk
00:10:34 – 00:10:37
That of their parents. And then I read that in your book and I’m like, okay. That’s kind of affirming.
Kris Carr
00:10:39 – 00:10:52
Yeah. I mean, we are these blank slates, and we pick up vibes. We pick up energy. We pick up behaviors. I think we come here, and we are then domesticated.
Kris Carr
00:10:53 – 00:11:28
And so much of what our job is in this lifetime is to unlearn and to come back to the original source, which is that self-love, love for self, love for others, love for life. And so naturally, if we’re raised by parents who are anxious, then anxiety is gonna maybe even go be one of our go to responses to things. So we’re kind of moving through life fearful. And anxiety really is a rumination about what may or may not happen. Right?
Kris Carr
00:11:28 – 00:11:42
It’s kind of taking fear and saying, I’m thinking ahead. I gotta cover my bases. I gotta have my own back. The world is unsafe. How can I get ahead of this situation so I can make sure I stay safe?
Kris Carr
00:11:43 – 00:12:14
And fear and anxiety serve a purpose. Right? I would say in the book and often try to remind myself that we can’t amputate any of our emotions and expect to be whole. So oftentimes, I think in our very black-and-white society, certain emotions we deem positive and emotions that we should strive to have and show, and other emotions we deem negative as if therefore, there’s something deficient about us for having them. And it’s sort of like saying, here are all the crayons in the crayon box.
Kris Carr
00:12:15 – 00:12:45
But, Victoria, you can only use blue, green, and red because all the other colors are bad. And if you use those colors, you’re bad. And you may be like, but secretly, I love yellow. You know? And so I think when we get a little curious about these emotions and what they’re here to teach us and show us, which we can talk about, then we can follow the breadcrumbs and understand how they work and why our brain uses them.
Kris Carr
00:12:45 – 00:13:00
Why did why are we designed to experience anxiety from time to time? How is it a benefit to us? How does it truly keep us safe? And how does it go awry? Right?
Kris Carr
00:13:00 – 00:13:18
What do I need to do when I’m finding myself spinning out, let’s say, before a CAT scan? I get checked every 5 years. There’s always gonna be some anxiety before I go in for my scan. This is the moment, 21 years later, when my doctor says, oh, it turned on. It’s finally aggressive.
Kris Carr
00:13:18 – 00:13:43
This is what we’ve been waiting for. And I’m I’m gonna have some anxiety, but I can develop some tools to soothe that anxiety. I can develop some tools to make sure that that anxiety doesn’t become a rumination that’s out of control that can even become almost like an addiction, like a hot spot that I’ll just go to. It’s almost like we’re going to the mental gym when we’re dealing with some of this stuff.
Victoria Volk
00:13:44 – 00:14:19
Those that may not be familiar with you and never heard of you, can you just briefly share? Because I know we’ve mentioned it, but we haven’t really said about your diagnosis. And then I’d like to move into how that anxiety and that fear played a role through your diagnosis and how that transitioned to when you became then a caregiver for your father. And then the moment that you realized, you know, the P there’s like 3, I have a note here. There’s 3 spiritual or 3 pivotal moments that led you to writing the book.
Victoria Volk
00:14:19 – 00:14:23
And so can we rewind and then fast forward a little bit?
Kris Carr
00:14:24 – 00:14:47
Yes. So, I was in a very different career and had very different hopes and thoughts and dreams for my life. And then on Valentine’s Day in 2003, I was diagnosed with a rare and incurable stage 4 cancer. And so the first doctor that I met with suggested a triple organ transplant. The next doctor gave me 10 years to live.
Kris Carr
00:14:47 – 00:15:30
The doctor after that suggested radical treatments that wouldn’t do anything. And it was that moment where I realized I had to become my own advocate, and I had to become, as I like to call, the CEO of my health. So as a CEO, the leader of our lives, it’s like, okay. I’m responsible for putting together the team, for hiring, for firing, for finding my second in command because the doctors work for me. And I was lucky, or actually just hardworking to find a great oncologist who knew the most about my very rare disease, who had his finger on the pulse of research, and who also had a wonderful bedside manner.
Kris Carr
00:15:30 – 00:15:46
So I was very surprised when he said, sometimes your disease can be slow growing. It can become aggressive. We just don’t know. We have to watch and wait. And while we’re doing that, we want you to watch and live.
Kris Carr
00:15:46 – 00:16:34
And I didn’t really know how to do that. So the first place I went afterwards was the grocery store because I figured vegetables were good, even though I hated them. And what I was truly looking for was some sort of control, some place to put my energy so that I could feel like I was participating in my well-being as opposed to participating in my disease. And that’s what started the work that I do first and foremost for cancer patients when I began and then later for people who are interested in not becoming patients, because I truly believe that self-care is health care and that we have more power than we think. And, again, it was this career is not something that I went into saying this is what I wanna do.
Kris Carr
00:16:34 – 00:17:05
But I think for many of us, our lives change in sometimes miraculous ways because of these warning signs or wake up calls that we have. And this is what I chose to do with my wake up call because, again, I live with stage 4 cancer. This is a marathon for me. And I’m very, very inspired to live every moment like it is my first, and I can’t wait to have another. And so where are we going after this?
Kris Carr
00:17:06 – 00:17:10
Where would you like me to take you after this? You had a 3 part question.
Victoria Volk
00:17:10 – 00:17:12
I did. I know. I’m I tend to do that.
Kris Carr
00:17:12 – 00:17:14
It’s okay.
Victoria Volk
00:17:15 – 00:17:26
Try to squeeze it all in. Just the anxiety of that.
Kris Carr
00:17:19 – 00:17:19
Yeah.
Victoria Volk
00:17:19 – 00:17:26
Diagnosis and the experience of going through that and then being hit with another rupture, as you call it in your book, of your father?
Kris Carr
00:17:27 – 00:17:53
So for me, like I said earlier, I am the person that’s going to pretty much try to put a plan in place. And I think it’s very helpful to do that. It’s one of the reasons why my work has helped a lot of people is because I help people and people who don’t wanna be patients just put that wellness plan together. But a lot of that came from my fear, and a lot of that came from my anxiety. So isn’t that wonderful, though?
Kris Carr
00:17:53 – 00:18:39
So fear and anxiety helped me out in a big way. The problem is when they take over and they shut you down, they paralyze you. They make it so that the only thing that you feel like you can do to cope is to numb because they’re just too big. And so that’s when all of our self-care principles and practices, the toolkits that many of us go through life trying to build, we wanna open the box and lean on a few of them, whether it’s through breath work, whether it’s with a therapist or a counselor, like, hey, these emotions are too big for me to hold on my own. Oftentimes there may be other things tied into them, past traumas, past grieves.
Kris Carr
00:18:40 – 00:18:59
One of the things that my therapist talked about and I wrote about in the book is she says, when the grief train pulls into the station, it brings all the carbs.
Victoria Volk
00:18:49 – 00:18:49
Mmm
Kris Carr
00:18:49 – 00:18:59
The stuff you thought you were over is behind you, and you’re just totally sideswiped. Brings up trauma. It brings up anxiety. It brings up shame.
Kris Carr
00:18:59 – 00:19:10
It brings up rage. For me, I went through a period where, you know, my number one emotion I was experiencing was not grief. It was rage. I’m like, where is all this hot energy coming from? Well, it’s old stuff.
Kris Carr
00:19:12 – 00:19:37
And so learning to live with stage 4 cancer for me is more of a mental game than physical game. It’s about learning how to work with my fear and anxiety as opposed to be overwhelmed by it because that those moments are going to come. I was talking to a patient the other day, and you know, I’ll go to, okay. I’m having this anxious moment. Let me get in my body.
Kris Carr
00:19:37 – 00:19:51
Because sometimes when I’m in a anxious spiraling out place, I’m having kind of an out of body experience. Right? So I could jump on my bike or jump in the water. You know what I mean? Like, right now, I’m in Florida.
Kris Carr
00:19:51 – 00:20:03
The ocean’s nearby. Like, why don’t you just go for a quick swim? And it’s gonna change the channel. It’s almost like we’re dogs with in brain rot, licking, licking, licking a hot spot. You know?
Kris Carr
00:20:03 – 00:20:13
What if the scan’s worse? And what if this and what if that? Well, in this moment, none of that is true. I like to say it’s not something until it’s something. So why don’t you get back to living?
Kris Carr
00:20:13 – 00:20:28
Or it’s been 21 years since I’ve been dealing with this. I know I’m gonna feel anxious. I’m gonna allow myself that day or the day before to go there. But before then, why am I wasting time? Now is it as easy as that?
Kris Carr
00:20:28 – 00:20:33
No. But for me, I’ve been able to work with my brain.
Victoria Volk
00:20:35 – 00:20:36
You’ve had a lot of time to practice.
Kris Carr
00:20:37 – 00:20:43
I’ve had a lot of time to practice. I’m like, come on. Let’s go for a bike ride. In this moment, how are you feeling? Pretty good.
Kris Carr
00:20:43 – 00:20:44
Let’s focus there.
Victoria Volk
00:20:45 – 00:21:07
So when there was kind of training ground for you, when this happened with your father, I imagine that you had to lean on a lot of those tools that have supported you in getting through your own diagnosis and the spiraling thoughts and all of that. And what did you learn about yourself through the process. And how did that change you?
Kris Carr
00:21:07 – 00:21:08
Thought
Victoria Volk
00:21:08 – 00:21:09
Your perspective, maybe of a lot of things.
Kris Carr
00:21:09 – 00:21:38
Very beautiful question. I mean, I think I’m still learning it. And, I think that it was all well and good for me to work with my own palate, which is me. But then when it come came to working with, you know, the potential of losing someone that I love very dearly, he’s my chosen father, so he adopted me. And that was really hard for me because what was coming up, what I didn’t realize was a lot of the old abandonment wounds.
Kris Carr
00:21:38 – 00:22:06
The core, you know, father wound was highly activated, the idea of losing him. Because whether I was conscious of it or not, what I was feeling was that he was leaving me. And that’s what happened the first time with my biological father. And that’s when you go, oh, I have an opportunity here to work with some really old stuff because he’s not leaving me. He’s dying.
Kris Carr
00:22:07 – 00:22:28
And I want to spend as much good time with him as I can. So because of that, it was inspiring to do the work and to go back into therapy. And and to initially, I was like, oh, no. Cancer’s not on my watch. You know, there’s one thing I know.
Kris Carr
00:22:28 – 00:22:55
It’s navigating cancer, and it’s not taking you. I got pissed and angry and called everybody I knew, and I got some wonderful people in my address book. The problem was is that he didn’t wanna do any of it. So the treatments that he was undergoing were really hard. So we could do enough to, you know, keep him as well as possible, but he wasn’t gonna do a full on lifestyle, save my ass technologies Kris Carr plan.
Kris Carr
00:22:55 – 00:23:38
And so I had to make peace with that and say, the best medicine that I can deploy right now is love and making sure that when I enter the room, love is leading the way and that the time that I have with him is filled with it. And so there’s a lot of gin rummy. There’s a lot of really wonderful times that we had. And I learned how to let go of more control, which was very anxiety provoking for me. And just to continue to show up with love even though my heart was breaking and breaking wide open too.
Victoria Volk
00:23:39 – 00:23:48
In this book, you really do speak the language of the work that I do in grief recovery, the grief recovery method. And you talk about how grief manifests in our lives and in our bodies and talk about keeping busy.
Victoria Volk
00:23:48 – 00:24:37
You essentially addressed the sense of grief and you essentially addressed them all like including stirbs or short-term energy relieving behaviors and these things that we do to occupy ourselves and distract ourselves from our feelings. And, and you’ve had so many years of sitting with and working through your grief before writing this book. Who were the people or the resources that have supported you and provided the information that gave you that new perspective. And I know you mentioned that book, on grief, but kind of even before that earlier in your, like, when you were diagnosed and as you were going through that journey, what were the things that helped you shift your perspective from, you know, woe is me to the self-driven mission?
Victoria Volk
00:24:37 – 00:24:43
Or was it just did perfectionism take over? Because I know you talk a lot about perfectionism in your book too a little bit.
Kris Carr
00:24:43 – 00:25:01
I don’t know. Maybe sometimes. Oh, maybe sometimes. But I think so I practice what I call the 5 pillars of wellness. So they are basically being mindful of optimizing what you’re eating, drinking, thinking, and how you’re resting and renewing.
Kris Carr
00:25:02 – 00:25:32
And all of that sits on a foundation of stress management because we know that stress is really the number one killer. And stress comes in all sorts of ways, including heartache. And so that’s the basis of the lifestyle practice that I teach in my books and in my community. And that all came from all of my research as a first and foremost, as a cancer patient, what can I do to extend my life? Is there any way I can participate and help my longevity, help my odds?
Kris Carr
00:25:33 – 00:25:59
And it’s really the basis of lifestyle medicine, which has been around for a very long time. You know? And so all of that work for 20 years now has certainly taught me a lot about myself and my body. The big turning point for me, I think, emotionally was on my 10 year cancer versary when, you know, one of the doctors had originally given me 10 years to live. And here I am making it to the 10 year mark.
Kris Carr
00:26:01 – 00:26:21
And everybody was so thrilled except for me because I didn’t think that unless it was behind me, I could really live my life. So I was very frustrated, very angry. And so I was trying to cure myself since the doctors couldn’t cure me. You know? And it wasn’t happening.
Kris Carr
00:26:22 – 00:26:54
But I also wasn’t my disease wasn’t progressing either. And so it was just something that I was having to learn to live with. And there are many things for everybody that we might not want, but we have to learn to live with. And for me, it’s cancer. And so I remember thinking in that moment when everybody’s celebrating but me that I have to come up with a better way because I could live my whole life with this disease and I could waste it all.
Kris Carr
00:26:55 – 00:27:10
Because I wasn’t truly living unless it was behind me on paper. I got that stamp of approval. You’re in remission. And what if I lived? A whole lot of years healthy and happy, you know, if I allowed myself to be.
Kris Carr
00:27:11 – 00:27:25
But I didn’t get that stamp of approval. And that’s when I started to think about the difference between healing and curing. And that curing may or may not happen. You know, it happens in the physical body. It happens for some of us.
Kris Carr
00:27:25 – 00:27:49
Doesn’t happen for all of us. There are a lot of people out there who are living really big, abundant, wonderful lives with chronic illnesses, chronic shit pickles, just chronic stuff. And that’s okay. But healing can happen for each and every one of us. There is no timeline, and it can happen even beyond our physical form.
Kris Carr
00:27:49 – 00:28:09
And so I started to move more in the direction of aspiring to be on a healing path and to be loving and patient and caring with myself. And that, to me, when you say, okay. Where’d you learn this? What are the most inspirational resources or what not? It was actually that mental shift that changed everything.
Kris Carr
00:28:10 – 00:28:30
There are incredible grief resources out there. Right? You’re one of those incredible resources. And it was a world I wasn’t very familiar with. And then when we get interested, when we get curious, when we start to, you know, do the research, buy the books, follow the breadcrumbs, we start to find the voices that resonate for us.
Kris Carr
00:28:31 – 00:28:54
But the principles are still universal. You know, and that is that or at least I believe they’re universal, that our emotions are energy, we can’t amputate them, we need to allow them to flow. When energy is stagnant, it’s not good for your physical body. It’s not good for your mental health. And emotions are also filled with information.
Kris Carr
00:28:54 – 00:29:10
So if we can become a little bit more emotionally literate and curious, then we can start to learn how to tend to these crayons, these parts of ourselves that make up the whole beautiful picture that is us.
Victoria Volk
00:29:12 – 00:29:30
I’d love to talk about anger a little bit. You talked about a lot about emotions, but and you mentioned anger, and you mentioned anger quite a bit in your book too. And I didn’t address my grief until 2019. And that was at that point over 30 years. So I had a lot of time to build up a lot of anger and resentment.
Victoria Volk
00:29:31 – 00:30:12
And so to allow those floodgates to open, it was like, you know, if we imagine ourselves like a tea kettle and this pressure just keeps building and building and building, and if we don’t release that pressure, it like, we literally are dying from the inside very, you know, slowly and just deteriorates our bodies. And like you said, it’s stress. It’s physical stress, emotional stress, mental stress. Imagine that as is your body like a tea kettle. So allowing that rupture in that way, a good rupture, that’s a good rupture, you know, but you have, there’s a part I wrote here and we act out instead of crying out because anger feels powerful while grief feels powerless.
Victoria Volk
00:30:14 – 00:30:25
And you talk about caring for your anger and your grandmother had a motto, don’t cure the darkness, light a candle.
Kris Carr
00:30:25 – 00:30:25
Mmm
Victoria Volk
00:30:26 – 00:30:34
And I absolutely love that. But in talking about anger and the wisdom that anger has for us, what has anger taught you?
Kris Carr
00:30:36 – 00:31:13
My anger is very powerful, and my anger helps me to be a fighter when I need to fight. And it has protected me. It has inspired me. There have been so many moments, even as a female entrepreneur, when somebody has told me, you know, pipe down, ambition is not appropriate for women, Be satisfied with what you’re getting, even though I know other people are being paid more for the same work, where I relied on the wisdom of anger to say no. Right?
Kris Carr
00:31:13 – 00:31:41
And so I don’t want to vilify it. And yet, I definitely need to learn more about it because it’ll be a go to emotion for me if I’m not careful, thoughtful, inquisitive. My grandmother also used to say that emotions like anger and grief specifically were unbecoming for women. And she came from a very different time. Right?
Kris Carr
00:31:41 – 00:32:14
And so the chapter on anger is called Becoming, Unbecoming. And when I started to explore it more, and I have in my own therapy for many years, but actually starting to explore the mechanics of anger, almost like, you know, you’re approaching a research project, is that many people say that it’s a signaling emotion. Right? And it’s signaling to something else. It’s like the tip of the iceberg is what you see, but underneath of the iceberg is so much bigger.
Kris Carr
00:32:15 – 00:32:30
And so what is it signaling? What is it trying to point out to us? Sometimes it can be injustice. Sometimes it can be extreme pain. Like anger is saying, oh, this is not okay.
Kris Carr
00:32:31 – 00:33:10
And anger is also very protective. And so for me, if grief was something that felt so scary and so destabilizing. You know, there’s a reason why we go into fights, light, or freeze because it’s like a physical manifestation of us protecting ourselves. If an emotion like grief feels so unstabilizing to many of us because, again, we don’t necessarily have the tools for this, especially because we live in a grief-phobic society. Right.
Kris Carr
00:33:10 – 00:33:29
So few of us know how to talk about these things or want to talk about these things because we’re afraid of how people will react. Then an emotion like anger is going can easily step in and help you out. You know, like, oh, I’m starting to feel these emotions. I’m starting to feel out of control. I start to feel so uncomfortable.
Kris Carr
00:33:30 – 00:33:42
And then all of the stuff that can bubble up as a result of that, people will judge me. People won’t like me. People won’t wanna hang out with me because I’m a big downer. Boom. I got you, buttercup.
Victoria Volk
00:33:44 – 00:34:05
There was one part too where you where you talk about making yourself small. I can’t remember exactly how, how it went, but just to the, what you were just saying, how we make ourselves small, especially when we’re trying to express anger and then we’re told you’re too much or you’re too loud or, you know, be seen and not heard and all of these messages that we receive more commonly as little girls. Right?
Kris Carr
00:34:06 – 00:34:06
Yeah.
Victoria Volk
00:34:07 – 00:34:25
Do you see yourself as I mean, would you describe yourself as a child and like a free spirit, kind of wild, kind of like a poking the bear questioner, initiator of things, maybe initiator of other people? Do you just would you describe yourself like that?
Kris Carr
00:34:26 – 00:34:58
I think as a child, there was definitely a free spirit and a very creative little soul, and very imaginative, very caring. Somebody who’s I hopefully still have those traits. Very connected to animals in nature. And I don’t think I was a bear poker because I think I was very shy and very kind of like, I gotta figure out feel my way because the world isn’t safe. It wasn’t until much later in life that I became a bear poker.
Victoria Volk
00:34:59 – 00:35:17
Yes. Okay. That’s what I was gonna get to because when you start coming into your own. Right? Because you had a lot of grief in your childhood. So I just I saw myself in your story, and that’s why I asked that because, yeah, I just I felt like we’re kindred spirits in a way.
Kris Carr
00:35:17 – 00:35:41
Yeah. Oh, well, that’s wonderful. I mean, I think the more we don’t know if you feel this way, but the more work that I’ve done to heal my heart and befriend myself and really, like who I am. And I think one of the greatest things that you can ever experience in this life is the joy of your own company.
Victoria Volk
00:35:39 – 00:35:39
Mhmm.
Kris Carr
00:35:39 – 00:35:41
And I really wanna park on that for a minute because people don’t talk about it enough.
Kris Carr
00:35:42 – 00:35:53
I mean, getting to a point where you enjoy your own company is so big. We come here alone. We leave her alone. And we live in an epidemic of loneliness. We do need each other.
Kris Carr
00:35:53 – 00:36:00
We need community. We need support. We need our people and our true blues. But, damn, we need ourselves.
Victoria Volk
00:36:00 – 00:36:04
I think it goes back to what you said about self-soothing,
Kris Carr
00:36:03 – 00:36:03
Yeah
Victoria Volk
00:36:03 – 00:36:04
our ability to do that.
Kris Carr
00:36:05 – 00:36:30
I don’t think any of that matters unless we can do that, because all of it was temporary. You’re always gonna reach outside of yourself.
Victoria Volk
00:36:11 – 00:36:11
Mhmm.
Kris Carr
00:36:11 – 00:36:30
And then when a relationship ends, it’s gonna be so destabilizing. Because you never had that relationship connection with yourself first and foremost. And so to go back to your question, when did it when did I start to come into my own?
Kris Carr
00:36:30 – 00:36:49
It was more so when I said, I don’t really care what other people think about me. I don’t wanna be a jerk. And but I’m less interested in what other people think about me and more interested in that relationship and what I think about me and my ability to enjoy my own company.
Victoria Volk
00:36:49 – 00:36:56
I actually I’m glad you said that because I actually had, are you someone who enjoys alone time?
Kris Carr
00:36:56 – 00:36:57
Why?
Victoria Volk
00:36:57 – 00:37:18
Maybe you even need it, because that was actually one thing I wrote on there because I love my alone time. I need it. I love my own company. But this is a great segue into having more 4 legged friends than 2 legged friends.
Kris Carr
00:37:19 -00:37:19
Mmm..
Victoria Volk
00:37:19 – 00:37:22
And the fact that you, don’t have children, but you had you know, buddy or dog, you talk about losing buddy your dog.
Victoria Volk
00:37:22 – 00:37:33
And I just kinda wanna talk about if you are open to sharing about the importance of the importance that animals played a role in your healing and as you were grieving.
Kris Carr
00:37:34 – 00:37:54
Yeah, they always will. They’re so a big a big part of my life. And I’ve had a lot of fur children. And you’ve you know this because you are in this world. And so I remember the first time that I got the concept that the other side of grief is love.
Victoria Volk
00:37:54 – 00:37:54
Mmm
Kris Carr
00:37:55 – 00:38:23
And the more that we love, the more we’re gonna grieve. But who wants to go through life saying, oh, no love for me because I don’t wanna feel that pain? So taking on all these incredible companion animals, you know that at some point, you’re gonna have to say goodbye to them. And several of my fur children were very instrumental at certain points in my healing. My first my cat.
Kris Carr
00:38:23 – 00:38:33
My dedicated my second book to my cat. My cat was the first person I told I had cancer, Kristal, I’ve got cancer. What are we gonna do? Right?
Kris Carr
00:38:33 – 00:39:00
And so she was a big part of that early journey. And then Buddy was a big part of making peace with not having children. And then here comes this big old hound dog who is, you know, near death, emaciated, we found on the side of a mountain while we were hiking and nursing him back to health. And thinking, wow, there’s love all around if I just choose to open to it. It might not be in the form that I think.
Kris Carr
00:39:01 – 00:39:21
And it’s in this case, it’s a big old hound dog. But boy, do I love him. And life is still good. And, then most recently, my dog, Lola, who is probably my number one soulmate. And so she was there throughout my dad’s journey and she passed after.
Kris Carr
00:39:21 – 00:39:45
And I think she stuck around because she knew that it would be so big for me. And I couldn’t lose them both at the same time. So we have all these opportunities. And the reason why I write about pet loss in the book is because I was actually shocked by a lot of the grief books and grief literature that didn’t either include it or dealt it dealt with pet loss in a way that felt very diminishing?
Victoria Volk
00:39:46 – 00:39:58
I actually just developed a pet loss program.
Kris Carr
00:39:50 – 00:39:50
Oh.
Victoria Volk
00:39:51 – 00:39:58
But it hasn’t launched yet. And, because I’ve had clients that I’ve worked with where they were seeing, it was a single woman. She didn’t have children.
Victoria Volk
00:39:58 – 00:40:17
She didn’t have a spouse. Her family were in another country. Like she came here with knowing nobody and that her dog was her everything. And so people don’t understand or even think about grief when it comes to pets. But it’s like, we can just go out and get another pet and the things people say.
Victoria Volk
00:40:17 – 00:40:29
Right? And it just yeah. It’s so this is why I started this podcast so people can learn. Right? So people can learn through people’s stories of the import of all the different ways we grieve.
Victoria Volk
00:40:29 – 00:40:39
But even if you’re listening to this and you, for whatever reason, can’t have a pet, get a plant.
Kris Carr
00:40:40 – 00:40:40
Mhmm.
Victoria Volk
00:40:41 – 00:40:44
I see a plant in your background. I have one right on my shelf here. I started actually, that was one of the things I think naturally came up for me.
Victoria Volk
00:40:44 – 00:40:52
And as I was starting my healing was I just started accumulating plants left and right. Like, you know, it’s nurturing something.
Kris Carr
00:40:52 – 00:40:53
Uh-huh.
Victoria Volk
00:40:53 – 00:40:55
You know, I think get a plant.
Kris Carr
00:40:55 – 00:40:55
Yeah.
Victoria Volk
00:40:56 – 00:41:00
Think of yourself as a plant. Like, what does a plant need? It needs water.
Victoria Volk
00:41:00 – 00:41:13
It needs sunlight. It needs I think it goes back to what is that, doctor Emoto with the water and the rice, the rice experiment where you talk to it. And, I mean, you could talk to your plants. You talk to your pets. Right?
Kris Carr
00:41:13 – 00:41:14
Oh, yeah.
Victoria Volk
00:41:14 – 00:41:41
But none of those things, like, judge, analyze, or criticize you. So you can say whatever you want. And I think that’s the different dynamic of that relationship is that and why the bond is so deep for so many people with their pets is that they feel like you said in your book, it’s like it’s like Christmas morning. Every morning, every day that you your dog sees you, it’s like you could be gone 3 minutes. Like, I can leave and be gone for 3 minutes.
Victoria Volk
00:41:41 – 00:41:51
And my dog, it’s like Christmas morning. I was perfectly how you said that. So, yeah, it’s I think it’s one of the most minimized losses, and so it is something that I’m looking to address. And
Kris Carr
00:41:51 – 00:41:53
I’m so happy to hear that.
Speaker 1
00:41:53 – 00:42:00
So I’m glad we talked about that. Let me look on time. Okay. So I’m just gonna can I just do, like, a quick run through of questions?
Kris Carr
00:42:00 – 00:42:02
Oh, yeah. Of course.
Victoria Volk
00:42:03 – 00:42:11
Okay. Maybe these aren’t gonna be quick answers. I don’t know. Let’s see. I loved how you said life is a terminal condition. We’re all going to die.
Victoria Volk
00:42:12 – 00:42:24
But how many of us truly live? And acceptance helps get you there. And I think you’ve really touched on that quite a bit, not as much of the acceptance piece, but I guess I’ll ask you this. What does acceptance mean to you?
Kris Carr
00:42:25 – 00:42:48
Acceptance for me means that I accept who I am and what my needs are, and then I have my back. I’m not trying to be somebody I’m not. I’m not putting myself into a box that was not made for me. And, that’s a piece of it, but also accepting when I’m going through a difficult time that this is what’s happening. I’m not sugarcoating it.
Kris Carr
00:42:48 – 00:43:08
I’m not trying to slap on an affirmation, even though I think affirmations are very helpful. I’m accepting that this is where I am so that I can do the healing work. That perhaps some of that healing work will help me get to another place. But if not, I’m giving myself which exactly what I need, which is some heart tending.
Victoria Volk
00:43:09 – 00:43:14
And even if just for that moment, you feel better, I mean,
Kris Carr
00:43:12 – 00:43:12
Yeah
Victoria Volk
00:43:12 – 00:43:14
that’s a win.
Kris Carr
00:43:14 – 00:43:15
It’s huge win.
Victoria Volk
00:43:16 – 00:43:49
As your dad was going through his cancer treatment, I’m just curious on this because I just I spoke with another end of I’m trained in the end of life doula. And I spoke to another gentleman just recently. And the big conversation was having your affairs in order and just preparing and all of that. And so I imagine, like, when you got your diagnosis and when your father received his, was that something that had you already is that something that you’d, like, made a mission to take care of, like, get your affairs in order? Is that something that your dad made a priority when you first diagnosed?
Kris Carr
00:43:50 – 00:44:14
When I was first diagnosed, I didn’t wanna get my affairs in order. And I had there was a lot of frustration around my unwillingness to get my affairs in order. And it’s one of the reasons why my biological father left my life again.
Victoria Volk
00:44:09 – 00:44:09
Mmm
Kris Carr
00:44:10 – 00:44:14
So I met him when I was 18, and he split again when I was not long after I was diagnosed. And so and I was partly around that.
Kris Carr
00:44:15 – 00:44:33
And so for me, it was like I will do this on my own timeline when I’m ready. I’m not ready to talk about this. And I’m not going to have it forced upon me. So, but, you know, obviously it’s helpful to have these things in place. It’s something that I’m working on now.
Kris Carr
00:44:34 – 00:44:55
I’m 52, and I really wasn’t ready to do it. And for me, it was a psychological block. And now it feels like, you know, my husband and I get on a turbulent plane, and we own our business together, and we run everything together. And it’s sort of like, jeez. Still a little stressed out that we don’t have.
Kris Carr
00:44:56 – 00:45:29
I mean so it’s like, let’s Just take care of some of these things, especially because it makes whether you realize it or not, it brings you more peace and clarity and what not. It’s also really important as our life does become shorter, because dying is a big job. It’s a big job. And we, as a culture, we are the first to throw the big parties and get all the gear and the showers and what not, for when a baby comes into this planet. And it’s a wonderful celebratory event.
Kris Carr
00:45:30 – 00:46:07
But dying is very complicated it takes a lot of energy and it leaves a lot of tentacles and yet it’s so scary for many of us that we don’t have somebody to walk through it with. And that’s when a lot of stuff can happen, I think, in families too. A lot of undue stress and tension and discord and even, you know, estrangements and whatnot. So my dad and I talked about it a lot. At first, it was hard to talk about though, and I wasn’t sure if he wanted to talk about it.
Kris Carr
00:46:07 – 00:46:24
And so I approached it very delicately. Is this something you’d like to talk about? And the answer was yes. And I worked on it with my therapist because I was afraid that I would fall apart and make things worse. And I said, I am willing to talk about these things.
Kris Carr
00:46:25 – 00:46:34
I might not always keep it together. There will be tissues. I might say the wrong thing, but I’m willing to show up. And he was grateful for it. And so we did talk about that.
Kris Carr
00:46:34 – 00:46:55
We did talk about his fears. We did talk about his wishes. And we talked about what he wanted at his celebration of life. There were absolute tears. When hospice came, they told us with him in the room, you know that this is not curative.
Kris Carr
00:46:56 – 00:47:11
We are making you comfortable. Here are the stages of what will happen. This is what will happen as your body starts to shut down. This family is what we’re teaching you and how to support. I’d never had candid conversations like that before.
Kris Carr
00:47:11 – 00:47:34
It was terrifying. I was grateful that we were in the middle of the pandemic because I had a mask on, and I would just pull it up really high. So that nobody could see that I was like, my lips were quivering and I was crying under the mask and whatnot. Because I was so scared to have that conversation. And I know people who, you know, whose loved ones have said, I’d really like to talk about what I want you to have.
Kris Carr
00:47:34 – 00:47:43
And they shut the loved one down and say, I don’t wanna talk about this. This isn’t positive. Oh, don’t worry about it. You’ve got plenty of time. La la la.
Kris Carr
00:47:43 – 00:48:07
That’s all coming from that person’s own discomfort, which I honor. But for the person who’s dying or struggling with mortality that you know, may have less time than you, it can be very isolating, create a lot more loneliness and a lot more discomfort. So it’s these opportunities that we have to really, like, grow up and show up.
Victoria Volk
00:48:08 – 00:48:11
Grow up and show up. Suck it up, buttercup.
Kris Carr
00:48:14 – 00:48:22
You know, you don’t want to. Like, I didn’t I really didn’t wanna put on my, like, big grown up panties, but I was like, I can do it now. When are you gonna do it?
Victoria Volk
00:48:23 – 00:48:32
But it is. It’s it’s the ability to okay. These are my emotions. I’m just gonna park them to the side before I walk in the store so that I can be fully present and give my loved one what they need.
Kris Carr
00:48:33 – 00:48:33
Yeah
Victoria Volk
00:48:34 – 00:48:36
And so that they feel heard.
Victoria Volk
00:48:36 – 00:49:09
And that is very difficult to do. And I think when you save those conversations for the death bed, that time could be spent having rich, meaningful conversations. And so I think it’s the importance of us planning for ourselves ahead of time so that we can have those deeper conversations and we’re not worried about the logistics after we’re gone. I think that’s the biggest service we can give our loved ones that we have power to do, I think.
Kris Carr
00:49:09 – 00:49:25
Yeah. The second intention so I wanna just I’ll remind that you’ve when everyone listening, the first intention that was helpful for me, I throw it out if it’s gonna be helpful for anyone else, is to lead with love. You know, like, I don’t know what to do. I don’t know what to say. I don’t know how to show up.
Kris Carr
00:49:25 – 00:49:50
What would love do? What would love say? What does leading with love look like? And then just do that. And then the second thing is an intention that I set for myself, and this really helped me in the difficult conversations that I thought I would literally implode or come undone or just like, evaporate in my chair because they were so scary and big and hard in my mind was, how do I minimize my regrets?
Victoria Volk
00:49:51 – 00:49:51
Mmm
Kris Carr
00:49:53 – 00:50:11
What’s it gonna take for me to minimize my regrets? Am I gonna regret that I didn’t have the courage to have this conversation when my loved one wanted to have it? Yes. I am gonna regret that. Is that fear of that regret bigger than my lack of courage right now?
Kris Carr
00:50:11 – 00:50:14
Yes. There’s your answer.
Victoria Volk
00:50:16 – 00:50:19
The answers are in the deeper questions, really.
Kris Carr
00:50:19 – 00:50:20
Not easy.
Victoria Volk
00:50:21 – 00:51:03
You talk about caregiving and giving versus receiving, and being I loved how you said this, but being a giver you felt like nothing could ever be taken away from me. And you said, listen to the whispers before they become roars. And so just the act of like caregiving versus giving. And, you know, I think just in reading your story, reading the book, which I highly recommend everybody does because there’s so many layers to yours to your book that I would love to cover all of those in this podcast. But can you just speak to a little bit for those who are in the caregiving role and people who have always been the giver, giver, giver, giver, giver, giver, and then they find themselves in the giving role.
Victoria Volk
00:51:03 – 00:51:24
And then like yourself where you’re diagnosed and then you’re having to receive and the challenge of that. And then you’re having you’re you’re needing like, not needing support, but being faced with this grief of a different kind of grief right, with your chosen father. Again, here, I’m asking like, 3 questions in 1. Can you just speak to that giving versus receiving a little bit?
Kris Carr
00:51:25 – 00:51:42
Yeah. I think it’s helpful for each of us if we struggle with receiving, to really get to the nugget of the why. Because the nugget of the why has freedom for us. And for me, it was actually really as a result of writing this book. Because when you write, you have to figure shit out.
Victoria Volk
00:51:43 – 00:51:43
uh-huh mmm.
Kris Carr
00:51:43 – 00:51:57
You have to be able to articulate it. You have to be able to understand it. It’s not just an esoteric feeling or vibe that you have. And for me, I was like, wow. It wasn’t until I wrote that sentence that pieces of me came together.
Kris Carr
00:51:58 – 00:52:15
Yeah. And I knew that somewhere, but I didn’t really understand it. And it goes back to that core trauma of loss, of abandonment. So if I’m the giver, nothing can be taken from me. If I receive, something can be taken from me.
Kris Carr
00:52:16 – 00:52:32
So what does that hit? Big core wound for me. So if we if not everybody struggles with this, but if you do, you know, like, get to the heart of the tootsie roll pop. And you’d be surprised what’s there. And the oh, I can spend some time with this.
Kris Carr
00:52:32 – 00:53:00
And then it becomes easier to receive because we need to receive when we’re going through these difficult times. We need self-care practices. We need to keep our well not full because that’s not possible. But not running on empty that you’re going into burnout and then, you know, adrenal issues and physical illness and all the stuff that comes with it. So we’re not looking for perfection here.
Kris Carr
00:53:00 – 00:53:41
I have the full tank, and I’m all spiffy, and I’ve just had a lifestyle makeover, and I’m living my best life. It’s, like, not gonna happen when we’re going through a difficult time. But, boy, do those difficult times make us grow and evolve and become people we really wanna be. I think just to button up self-care, understanding why we might have resistance around receiving, and then as caregivers, making sure that we’re putting our masks on and we’re taking care of ourselves so that we can be as resilient as possible, as stress hardy as possible, because it’s a roller coaster. And I always encourage people to come to the day with as much as they possibly can.
Kris Carr
00:53:42 – 00:53:44
And we can’t do that when we’re on empty.
Victoria Volk
00:53:45 – 00:54:10
You talk about having 2 intentions for the book, like, for the audience, those reading it and for you to normalize conversations around the different emotions so that people feel less alone and crazy and that to heal the deeper parts of yourself as a result of this writing. And you kind of touched on one of those. But what did you learn about and heal for yourself while you’re writing it and since the book has been out?
Kris Carr
00:54:12 – 00:55:20
You know, you write the book and then you think it’s one thing, and then you talk about the book and it becomes something else.
Victoria Volk
00:54:20 – 00:54:20
Mmm..
Kris Carr
00:54:21 – 00:55:04
And, so the whole process is very illuminating. And I’d say my biggest growth edge has been my willingness to talk about really difficult things, even more difficult things than my own diagnosis. And you read that vulnerability is a strength, and it can be a meme and a TED Talk and all the things. But then I think for me, until I really allow myself to go to a more vulnerable place, And I did push myself in the book to tell the stories the way they were and not a polished version that would be more appropriate for Instagram, that I did find a real strength in that.
Kris Carr
00:55:04 – 00:55:17
And the strength in that vulnerability isn’t a hard strength. It’s a soft strength. That strength and that softness of vulnerability, something I’m still exploring and experiencing but really enjoying.
Victoria Volk
00:55:19 – 00:55:21
Do you have any regrets?
Kris Carr
00:55:24 – 00:55:51
My dad wanted to have a celebration of life on Zoom while he was still alive, in addition to the celebration of life that he had and we had when he was gone, and I couldn’t do it. And I said, I can’t do that. I can’t do that. No. And it didn’t happen, and I regret that.
Victoria Volk
00:55:55 – 00:56:01
Is there anything else you would like to share, or do you have a little bit of time where I can ask a few more questions?
Kris Carr
00:56:02 – 00:56:06
Yeah. I can definitely do a little more time? Yeah.
Victoria Volk
00:56:07 – 00:56:07
Okay.
Kris Carr
00:56:08 – 00:56:09
Maybe 5 minutes or so.
Victoria Volk
00:56:09 – 00:56:18
Okay. Let me just look here. I wanna make sure I’m picking the one I wanted to pick. Oh, yeah. This is one thing you hear a lot.
Victoria Volk
00:56:18 – 00:56:34
Like, especially after people pass away. They lost their battle to cancer or they’re losing the battle. Did you have moments that you felt this or was this outside messaging? And what do you think about this messaging?
Kris Carr
00:56:36 – 00:56:58
I think every patient is different. It is not my preferred messaging for myself because I live with cancer, so I don’t see that I’m warring with my body. I think that I have cancer in my liver and both of my lungs. Those organs need more support. Those organs are struggling.
Kris Carr
00:56:58 – 00:57:16
Why am I gonna beat them up? Why you know what I mean? I wanna learn more about them so I can care for them and see what they like and what they don’t like. And, again, going back to that part of, like, amputating parts of ourselves. I was worrying with my body way before cancer
Victoria Volk
00:57:16 – 00:57:16
Mmm..
Kris Carr
00:57:17 – 00:57:20
of you know, other things I didn’t like about myself or my weight or whatever it was at the time.
Kris Carr
00:57:21 – 00:57:36
Just always in a fight with my body. And it’s like, gosh, this body does so much on a daily basis to keep me alive. Things I could never even wrap my mind around. It’s a miracle. It’s like I wanna be on the side of my body, not fighting against it.
Kris Carr
00:57:36 – 00:58:07
So that, again, does not work for me. I think my biggest pet peeve is when people who don’t have cancer use cancer metaphors. Like, I don’t get triggered by a lot of things. I’m not a you know, I’m not a I don’t really walk on eggshells or things like this, but it does bother me when people use cancer metaphors of like, that behavior is a cancer or that person is a metastasis or you know, a lot of folks use that. And so I would say, don’t do that.
Victoria Volk
00:58:08 – 00:58:08
Mhmm.
Kris Carr
00:58:09 – 00:58:13
Doesn’t feel good for people who actually have cancer.
Victoria Volk
00:58:13 – 00:58:23
Right. Thank you for sharing that. What is something about you that many people don’t know? It’s not in the books. You haven’t said it before.
Victoria Volk
00:58:23 – 00:58:28
I guess you answered maybe the one regret. Maybe I have I don’t know if you’ve said that before, but
Kris Carr
00:58:28 – 00:58:43
No. I’ve never said that before. People don’t know about me. Well, I have said a lot of things about me because I do use my stories. My teaching method, I like to teach through stories.
Kris Carr
00:58:44 – 00:59:02
Well, I have been into Budweiser Super Bowl commercials.
Victoria Volk
00:58:47 – 00:58:47
What?
Kris Carr
00:58:47 – 00:59:02
In my previous career as an actor, and as somebody who did a lot of TV commercials and a lot of advertising, I was into Budweiser Super Bowl, bowl commercials.
Victoria Volk
00:59:03 – 00:59:04
That’s pretty cool.
Kris Carr
00:59:06 – 00:59:07
That’s cool.
Victoria Volk
00:59:09 – 00:59:17
Too bad it couldn’t have been, well, the Budweiser well, it was I thought the best one this past Super Bowl was the Dunkings. Dunkings.
Kris Carr
00:59:18 – 00:59:27
That’s amazing. Yeah. Yeah. I usually watch the commercials because it was just, like, a very big part of my career but I didn’t watch them this year. But this really is kinda like the Oscars of advertising.
Victoria Volk
00:59:27 – 00:59:27
Yeah.
Kris Carr
00:59:28 – 00:59:28
So
Victoria Volk
00:59:29 – 00:59:39
that’s that’s very cool. Okay. Well, I will leave it there. I think that’s a fun. We’ll leave it on a fun note.
Kris Carr
00:59:39 – 00:59:39
Yeah
Victoria Volk
00:59:39 – 00:59:53
And, because if I ask another question, it’s gonna be a deep run, probably. So you just have to read the book, my friends, because all the questions I’d probably ask her in the book. Anything else you would like to share, though?
Kris Carr
00:59:54 – 01:00:08
No. Thank you so much. This is a beautiful interview, and I’m so appreciative of the places that you took it. I really love having these transparent, honest conversations. Again, going back to how have you grown?
Kris Carr
01:00:08 – 01:00:16
What have you learned? And these are the conversations I wanna have. So thank you for allowing me to have one with you and with your community.
Victoria Volk
01:00:17 – 01:00:26
Thank you. I purposefully did not watch any of your other podcast interviews or listened to anything else because I just wanted to stay in my own lane
Kris Carr
01:00:26 – 01:00:26
Yeey!
Victoria Volk
01:00:27 – 01:00:29
because I can’t let’s see. Like, I have so much did you see the highlight?
Kris Carr
01:00:29 – 01:00:31
Oh my gosh.
Victoria Volk
01:00:31 – 01:00:59
I don’t know why I do that screen like that, but there’s so many. I’ve highlights and doggy ears, and it just really I really enjoyed the book. If people are uncomfortable with grief, I think it’s a wonderful story. You again, like you said, you I think teaching through story is the best way to share information. It’s something I think I personally need to do more of.
Victoria Volk
01:00:59 – 01:01:20
And so thank you for writing this book. I think it’s wonderful for people who are going through something that can maybe see a different perspective through a lens of someone who’s been living it for so long in so many different ways.
Kris Carr
01:01:17 – 01:01:17
Mmm
Victoria Volk
01:00:17 – 01:01:20
It’s a great example of grief and the many faces of it. So thank you.
Kris Carr
01:01:20 – 01:01:21
Thanks, Victoria.
Victoria Volk
01:01:22 – 01:01:24
And where can people find you?
Kris Carr
01:01:24 – 01:01:34
You can find me at kriscarr.com. You can find me on Instagram at @crazysexykris, and the book is available anywhere books are sold.
Victoria Volk
01:01:34 – 01:01:42
And I will put links in the show notes. Remember, when you unleash your heart, you unleash your life. Much love.
Childhood Grief, Grieving Voices Podcast, Parent Loss, Personal, Podcast, solo episode |
SHOW NOTES SUMMARY:
In the quiet moments of reflection, we often find ourselves face-to-face with our deepest losses. Join me today as I embark on a unique episode of “Grieving Voices,” where I read an excerpt from my self-published book, “The Guided Heart: Moving Through Grief and Finding Spiritual Solace.” Let’s discover how my own experiences with loss from a young age have unknowingly mirrored the language of grief recovery even before I formally encountered it.
In this heartfelt session, I explore:
- The personal impact of losing my father at eight years old.
- How grief manifested in different aspects of my life.
- The therapeutic power of journaling during my high school years.
- Insights into emotional unavailability and its effects on family dynamics.
In this episode, I also draw connections between the content in my book written before learning about grief recovery methods and the concepts found within them. I share thoughts on letting go, acknowledging pain points, and coping mechanisms that can span decades.
Grief isn’t selective; it touches all corners of life, including relationships, careers, finances, and more. The way we cope can either mend or strain our emotional health. My story is not unique – it echoes many others’ struggles with life after loss.
Reflect on your path by following along in an exercise I propose—writing down your feelings to confront the emotional weight you carry. It’s not just cathartic; it’s a step toward understanding and clarity.
As we continue exploring various dimensions of grief throughout future episodes of “Grieving Voices,” remember that each person’s path toward healing is unique. Whether through reconnecting with faith or finding solace within oneself after experiencing profound losses—as I did—the goal remains constant: acknowledging our pain so that we may embrace life more fully and presently.
RESOURCES:
Episode Sponsor: Magic Mind | Use the code “GRIEVINGVOICES” to receive 20% off
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NEED HELP?
- National Suicide Prevention Lifeline: 1-800-273-8255
- Crisis Text Line provides free, 24/7 support via text message. Text HOME to 741741 to connect with a trained Crisis Counselor
If you are struggling with grief due to any of the 40+ losses, free resources are available HERE.
CONNECT WITH VICTORIA:
Embracing Grief: Finding Solace in Your Journey of Loss
Grief is a universal experience, yet it’s one that each individual navigates differently. In today’s post, inspired by the personal reflections and insights from my book “The Guided Heart,” we will delve deeper into the complex tapestry of grief and explore how embracing our grief stories can lead to spiritual solace and growth.
Understanding Grief Through Personal Narratives
At the heart of every grief journey lies a story – often untold, deeply personal, and uniquely impactful. As I share my own narrative about losing my father at a tender age, I sheds light on an essential truth: our earliest encounters with loss shape our future selves. The absence of emotional support during such formative years can carve out coping mechanisms that endure throughout life.
Journaling or writing poetry as I did are more than outlets for expression; they’re lifelines for those adrift in the sea of sorrow. They help us anchor ourselves amidst turbulent emotions and offer glimpses into our subconscious minds where healing begins.
The Multifaceted Nature of Grief
Loss does not discriminate nor confine itself to physical death alone. It seeps through life’s crevices – be it through divorce, financial hardship, career upheaval or struggles like infertility. Each variant brings its unique brand of pain and requires its distinct mode of healing.
My book prompts readers to recognize these variations as part of their broader grief story. By acknowledging them rather than suppressing them, we pave the way for genuine well-being instead of temporary fixes.
Writing Out Our Feelings: A Therapeutic Exercise
One practical takeaway from “The Guided Heart” is the exercise to write down what you feel when faced with loss or change – much like journaling but with directed intent towards understanding your emotional landscape better. This simple act serves two purposes: catharsis and clarity — releasing pent-up emotions while also helping map out your internal world during times when everything seems chaotic externally.
Spiritual Solace Amidst Sorrow
Spirituality often intertwines with grieving processes because both deal with questions beyond mere existence — purpose, connection, transcendence. For some people like myself who reconnected profoundly with faith after another significant loss at 21 years old – spirituality offers not just comfort but guidance too; it becomes both compass and companion along their path toward recovery.
Every person’s spiritual journey varies greatly based on beliefs systems cultivated over time combined together experiences encountered along life paths chosen (or sometimes thrust upon us).
Support Systems Like Do Grief Differently Program
For those seeking structured assistance navigating their mourning period may find solace programs such “Do Grief Differently” which provide frameworks within which individuals work methodically through emotional challenges associated significant losses experienced personally thereby enabling participants emerge stronger ready face whatever comes next chapter lives waiting be written anew hope resilience newfound wisdom gained hard-won battles fought within hearts minds souls searching meaning midst despair found instead profound realization:
By confronting embracing grieving process head-on unflinchingly courageously wholeheartedly —we unlock potential live fuller present existences enriched by memories loved ones lost never forgotten always cherished revered honored lived up legacies left behind inspire current future generations alike continue quest understand intricate complexities human condition called Life filled equal parts joy sadness triumph tragedy love longing laughter tears silence screams whispers roars echoes reverberating across time space forevermore…
Remember take care of yourself during this difficult time listen to body mind spirit needs most importantly give permission to grieve own pace own way safe knowledge community others walking similar paths alongside offering support encouragement empathy compassion whenever needed most.
In conclusion, embrace the journey and allow a guide heart true north star guiding the night sky darkest hours dawn new day horizon promising fresh beginnings possibilities limitless imagination dare dream once again…
Episode Transcription:
Victoria Volk
00:00:00 – 00:00:41
Good morning, good afternoon, or good evening, whatever time it is that you are listening to this. Thank you for being here. I’m your host, Victoria V, and this is episode 180 of grieving voices. And I decided to do something different for an episode and read an excerpt from my book, The Guided Heart, Moving Through Grief and Finding Spiritual Solace, which I self-published in 2017., And I just picked up the book off of my shelf and flipped it open to its Part 2, chapter 1.
Victoria Volk
00:00:42 – 00:01:22
And, I started reading, and to be truth be told, I have not read my book since I’ve self-published it. So it’s been quite a few years. But in reading this chapter, I realized that there were a lot of things I share in it that actually is the language of grief recovery. And so before I even discovered grief recovery, this book was written, and it’s like I had this knowing about grief, I mean, I grew up with it. Right?
Victoria Volk
00:01:22 – 00:02:43
Like, I grew up with grief from a very young age, and just in reading about my experience of my different grief experiences, I just could pinpoint this language that we use in grief recovery, and I just find that interesting because for someone who felt like they were doing okay or that they felt like they didn’t need help, which was me very much so for many years. I still had this understanding of it, and yet so I think back now in hindsight, it’s like why couldn’t I figure why couldn’t I figure out that it wasn’t me that was messed up? Like, it wasn’t my fault that I felt messed up or that something was wrong with me. It was it was grief. And, yeah, and the grace that I sent to myself back then just reading this.
Victoria Volk
00:02:46 – 00:03:24
Anyway, you’ll get what I’m saying when I read this, but, I would also encourage you to read the grief recovery handbook, and I’ll put a link to that in the show notes. And then you’ll really understand what it is I’m talking about here in drawing the connection between what I will have learned 2 years after publishing this book. And yet, that language is still in this book. And so I knew grief and understood grief better than I thought I did. I guess that’s the point I’m trying to make.
Victoria Volk
00:03:26 – 00:03:50
Anyway, I digress. Let me get on with this week’s episode and reading an excerpt from my book, which is not on Audible, but perhaps maybe I should just sit down and record reading my book, and so that it is. Anyway, let’s get started. And I’m mistaken. It’s actually part 1.
Victoria Volk
00:03:51 – 00:04:08
We all have a story. Chapter 1. What is your grief story? Life is not a matter of holding good cards, but of playing a poor hand well. It’s a quote by Robert Louis Stevenson.
Victoria Volk
00:04:10 – 00:04:39
She doesn’t understand anyway, I heard someone say, talking about me as if I wasn’t even there. March 31, 1987 is the anniversary of my father’s death. On July 30th that year, he would have turned 45 years old. He spent the last 2 years of his life, after having been given only 6 months to live, fighting a battle he knew he wouldn’t win. The doctors said there was nothing they could do.
Victoria Volk
00:04:39 – 00:05:16
The cancer had spread to surrounding tissues and organs. Colon cancer took my father away, and my mother became a widow at 43 years old. Being left to raise 2 children still living at home, myself, age 8, and my brother, 14 at the time. I’m not sure any woman in her position or any woman who has been in her position would know what to do, how to do it, or how to navigate raising grieving children while grieving themselves. It was impossible for me to understand then the profound effect my father’s death would have on me.
Victoria Volk
00:05:16 – 00:05:39
By the time I was 10 years old, I would begin to grasp exactly that. 2 years after the death of my father, my mother remarried. The new man in her life was a long-haul trucker and was home typically every other weekend. Theirs was a tumultuous relationship. There are many disputes during their 9-year marriage, and it ultimately ended in divorce.
Victoria Volk
00:05:40 – 00:06:14
I learned during that time and from the time of my father’s death that my mother was emotionally incapable of being there for both my brother and myself. I grew up quickly, as did my brother. I wasn’t wasn’t a child who lashed out or got into mischief. Rather, I was the wallflower, the introvert, the shy girl in the corner who spoke up when spoken to. And honestly, to this day, I’m not quite sure how I managed my grief as a young girl, particularly in elementary school, other than stuffing it all down.
Victoria Volk
00:06:16 – 00:06:41
My mother did not know what to do for my brother or myself. There was no grief counseling. And for reasons still unclear to this day, my father’s family ceased to exist in my life following the funeral. So from a young age, my family was my immediate family, as well as some family on my mother’s side, quite small in comparison to what I would later marry into in adulthood. Learning to cope.
Victoria Volk
00:06:42 – 00:07:12
It wasn’t until journaling was a requirement for English class in high school that I started to express my feelings. I wrote poetry, started journaling for myself in addition to journaling for class. And for the first time, I began to feel some of what I stuffed down for so many years. During this period in my life, there were several occasions where I lashed out at my mother, often out of frustration that had built up within me over the years. I don’t know if my mother knew how to be there for me.
Victoria Volk
00:07:12 – 00:07:38
She couldn’t emotionally care for herself. I detached myself as much as I could. Being a teenager is hard enough, but being a female teenager of an emotionally trapped mother is even harder. Therefore, we never developed a mother daughter bond that I would have loved to have shared with her. I think she realized the daughter who had taken emotional care of her all those years was eventually leaving too.
Victoria Volk
00:07:39 – 00:08:01
My childhood is where my grief story began. However, it’s certainly not where it ended. There would be several more lessons to follow in my life. I believe there are different faces grief presents during our lives, and often, it presents itself in ways you least expect. The faces of grief.
Victoria Volk
00:08:03 – 00:08:41
On some level, I still grieve for the normal childhood I could have had had my father’s untimely death not happened, but in reality, I’ll never know what that other life would have been. So it’s not the not knowing, not getting the chance that I would come to deal with years later as well. I grieve for all the moments in my life my dad was never a part of, protecting me as fathers do, walking me down the aisle, seeing and knowing his grandchildren, and, likewise, my children knowing their grandfather. These are the things I still grieve for grief, in my opinion, never leaves.
Victoria Volk
00:08:41 – 00:09:16
It is not something to get over. It is something to sit with, work through, and live with, just in a different way as the years go on. At some point in life, all of us experience grief, whether it be losing someone we love, a divorce, a devastating financial loss, loss of career, even infertility, all cause some form of emotional pain. How we cope with it can mean months or even years, maybe even decades of loss of well-being. That to me is tragic.
Victoria Volk
00:09:17 – 00:09:44
When we remain emotionally paralyzed, we do ourselves, those still in our lives, our communities, in our world, a disservice. Through my life, I can pinpoint at least 9 pain points where I experienced a feeling of loss. Many have to do with the death due to illness. However, not all. I have grieved lost opportunity, not knowing my father’s family or having a relationship with them.
Victoria Volk
00:09:45 – 00:10:15
Lost time with my kids because in my previous business, I was driven to prove something as well as a loss of friendships and relationships. No matter how grief appears in your life, it’s sure to make you feel as though you’re no longer in control. You may become aware of your own mortality, which can cause self-reflection. When we self-reflect, we often realize our shortcomings or focus on the negative. It is being faced with uncomfortable feelings that arise from grief that shake us.
Victoria Volk
00:10:16 – 00:10:32
Often, we just don’t know what to do with those feelings. At least I know my mother didn’t. As a result, neither did I. And so this dynamic played out for decades. Your grief story.
Victoria Volk
00:10:34 – 00:11:08
What is your grief story? If you haven’t experience the loss of a loved one, which I presume is why you picked up this book and decided to turn its pages, but rather experience the loss of love, career, or even health, these are still losses that cause some level of grief. Have you considered all that has been handed your way in life that has caused you emotional pain in some way? What are those moments that have stuck with you, which have given you a lingering feeling of loss. Maybe it wasn’t what was, but what could have been?
Victoria Volk
00:11:10 – 00:12:17
I don’t think there is a person out there who hasn’t experienced any form of grief. As a parent myself, I cannot even fathom the helplessness and hopelessness my dad must have felt and the thoughts that ran through his mind when he received his diagnosis. To know that you won’t be around to watch your children grow, that you will never see your grandchildren or witness your kids get married, all of the hopes and dreams of living a life, a full life with your spouse are shattered in one sentence spoken by a doctor sitting across from you in a sterile and personal office. It’s easy to think of my grief, but it deepens my sadness when I acknowledge what my father must have experienced, sometimes just trying to place ourselves in the shoes of another changes our perspective. In my case, I am humbled when I think of the strength my father showed out showed all of us, the fight within him to hang on for just one more day, month and ultimately, 2 more years.
Victoria Volk
00:12:18 – 00:13:09
My grief consumed me for many years. I will touch on certain aspects of what I mean as the chapters progress. For now, the first three chapters will focus on grief itself from a spiritual perspective, the ways it can present itself in our lives and a preface of getting it resolved., Before we move forward talking about a spiritual journey with grief in the excerpt of my book, I just want to share, The sponsor of this week’s episode, which is Magic Mind. And one of the ingredients in Magic Mind is cordyceps mushrooms, which is an adaptogen that reduces inflammation, strengthens your immune system, and supports higher energy levels and physical endurance by ramping up the production of ATP in your mitochondria.
Victoria Volk
00:13:10 – 00:13:51
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Victoria Volk
00:13:52 – 00:14:22
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Victoria Volk
00:14:22 – 00:15:06
And, again, I’ve been using this for several months now, and it really does help me get stuff done because I feel a sense of calm even if I feel overwhelmed by everything that I need to get accomplished in a day. This stuff helps me just I don’t know. It’s these ingredients just help me calm my nervous system and get me into a state of focus. And I think as grievers and, you know, life throws challenges our way and, you know, curve balls and things, like anything that can help support us, not only to get stuff done, but also our immune system. Right?
Victoria Volk
00:15:06 – 00:15:24
So that we can feel good too and maintain our health and wellness. And so check it out. Grieving voices is the coupon code. Magicmind.com slash grieving voices is the website and I will put a link to that in the show notes. Alright.
Victoria Volk
00:15:24 – 00:15:47
Let’s get back to the excerpt from my book. A spiritual journey with grief. I think it is important I make it abundantly clear that I’m coming from a spiritual place in my heart. I do not wish to stuff my beliefs down your throat as much as I don’t want judgment past for feeling the way I do. All of us have a unique spiritual path we follow.
Victoria Volk
00:15:48 – 00:16:08
Mine has certainly been full of twists and turns before my father’s passing, we were a typical Lutheran family, attending church every Sunday as well as Sunday school. After my dad’s death, however, all of that changed. We stopped going to church altogether. I did attend confirmation classes and was confirmed Lutheran.
Victoria Volk
00:16:08 – 00:16:31
However, it would either have to be a funeral or a wedding for me to set foot in a church of any kind until I was 23 when my husband and I began a relationship. I was bitter for many years. Granted, I had a lot of years to be bitter. Fortunately, life worked out for me the way it did as I prayed, received. And, really, it’s as simple as that.
Victoria Volk
00:16:32 – 00:16:56
After many years of not having the ability to pray from the heart, life had finally handed me more grief than I could bear. Feeling tapped out emotionally and overwhelmed, I prayed because I simply did not know what else to do. The rest is history, so to speak., Everything changed moving forward. Before my husband came into my life as more than a friend, I was on a self-destructive path.
Victoria Volk
00:16:57 – 00:17:21
I was becoming an expert at goodbyes, and I led a very narcissistic lifestyle. I don’t know what my husband saw in me, honestly. At that point, we had known each other for 7 years since we met in high school, but he was a far better human being than I was, bar none. It was one more experience with grief when I was 21. That was, in simple terms, the straw that broke the camel’s back.
Victoria Volk
00:17:22 – 00:17:54
A 5 year relationship was over, as was the life I thought we were going to have. Later, this loss would prove to be a blessing in disguise, which, as my life illustrates, can be the case at times., Surely, when it comes to relationship, you may relate as well. Sometimes we just don’t understand what it is that is best for us. Our minds tell us one thing, while our hearts and intuition tell us another, and we tend to choose the path of least resistance and pain.
Victoria Volk
00:17:54 – 00:18:19
It’s also difficult to discern the best decision when you are caught up in emotion. We tend to check rationality at the door when we have a grandiose view of ourselves, the world, and those we perch up on pedestals. My self-worth was nonexistent. Thankfully, God showed me a better way. More on my spiritual journey with grief in detail in chapter 3.
Victoria Volk
00:18:19 – 00:18:45
In the meantime, know that for me, a higher power seemed like a very out of reach concept for me. Acknowledgment of all that had gone wrong and all that had gone right. This was the first baby step on my journey to resolving my grief. Steps towards resolving grief. As I’ve previously mentioned, grief has many faces.
Victoria Volk
00:18:46 – 00:19:16
I touched on a few ways. I’ve experienced different forms of grief different forms of it myself. For instance, losing my photography business after 6 Sears was one of the most difficult decisions I had I have made. I know how much of myself I poured into creating and maintaining my business all those years. The time, money, sweat equity, not to mention the sleep deprivation while raising 3 young children ages 4 and under at the time, it certainly was a labor of love.
Victoria Volk
00:19:17 – 00:19:45
I grieved for months leading up to my decision as I knew it was what needed to be done at that stage in my life. I continued to wallow in my sadness until I finally decided to make it official with the selling of most of my gear over a year later. I found the act of officially letting go the hardest part. Isn’t that what grief ultimately causes us to do? Let go of what was and what will never be again.
Victoria Volk
00:19:47 – 00:20:11
Isn’t that too what grief itself is? The emotional reaction to loss or a change of any kind. We fight to hold on, and we fight to let go. That is the dilemma of grief, isn’t it? What I would like you to do is think of a moment in your life that caused you to have an emotional reaction to loss or a change of any kind.
Victoria Volk
00:20:12 – 00:20:47
Close this book and reflect on the feelings that arise when your mind takes you back to a time such as this in your life. Go ahead and open these pages again when ready. Now, if you want to feel more strongly the impact that loss or change had on you, grab a notebook, a writing utensil, and head to a quiet space, or do this exercise as soon as it is convenient. Set a timer for 30 minutes and just write. If you’re stumped on where to begin, finish this sentence.
Victoria Volk
00:20:49 – 00:21:42
The loss of blank made me feel as though blank. One thing to consider before doing this is to understand my intention, which is having you write out, possibly for the first time, your feelings surrounding the event that has shaken you to your core. When we release our feelings on paper, and I speak from personal experience, they tend to have less power over us, especially if we’re in a place of not knowing who we can truly talk to. The act of writing our fears, worries, and emotional pain forces us to sit with those feelings and can be very therapeutic. I wholeheartedly believe that writing for our personal well-being is the cheapest therapy one can find, but I know few, even in my own life, who practice this.
Victoria Volk
00:21:45 – 00:21:56
How did that feel? Pretty raw, I imagine. It’s painful to reflect in our pains. I get that. Truly, this is an exercise in acknowledgment.
Victoria Volk
00:21:57 – 00:22:41
Taking inventory of the emotional baggage weighing us down day in and day out gives us a clearer picture of where we are emotionally right now. This inevitably aids you in figuring out where you would rather be. And that my friends concludes the excerpt from my book, and if you would like to read more or learn more, you can head to my website, the unleashedheart.com., There is a link to it in the show notes, and I’ll also link to the book on Amazon there as well. And if you find as you go through that little exercise towards the end of this episode that you’re not okay, which is okay, by the way.
Victoria Volk
00:22:42 – 00:23:22
But if you’re not okay, and you know you want to be for the long term, there is support, and I hope that if this is your first time listening to my podcast, that maybe you’re learning about what I can offer for the first time and so there is a service that I offer. There’s a program. It’s called Do Grief Differently. We walk through 2 emotionally difficult challenging relationships of your life, and it’s a 12-week program. And I tell you what, you will learn more about yourself and about grief because it is as very much an educational program as it is a therapeutic one.
Victoria Volk
00:23:22 – 00:24:02
Even though it’s not therapy, it’s very therapeutic. But I’m there with you, guiding you and facilitating the deep work that so many people talk about, like, you just have to do the work. This is the work. And just it’s my job to create a safe space for you to release and to let go and to move forward with a different perspective, with new knowledge, new tools that you carry with you for the rest of your life. And so if that resonates with you, I encourage you to check out my website.
Victoria Volk
00:24:02 – 00:24:36
Again, the link will be in the show notes, and I’ll also link to Do Grief Differently in the show notes as well. So thank you so much for your time and listening today. I hope this, resonated with something in your heart and that little exercise helped bring to light, something that’s lingering within you. That’s just really wanting to come out, and know that there is support. You’re not alone, and there is hope.
Victoria Volk
00:24:37 – 00:24:43
And remember, when you unleash your heart, you unleash your life. Much love.
Childhood Grief, Grieving Voices Guest, Grieving Voices Podcast, Parent Loss, Podcast |
Jill Batiansila | Together, We Heal
SHOW NOTES SUMMARY:
Jill’s father walked out of their home when she was sixteen months old and didn’t return. He died in a plane crash, and her life was forever changed.
Fortunately, her mental health was of the utmost importance, having received counseling and therapy throughout her childhood and adulthood. During that time, the groundwork was being laid to prepare her, or as Jill would say, God was preparing her hands for His work. And that she did.
After finding her way from making jewelry for people celebrating special occasions to creating keepsakes in memory of loved ones, she inadvertently used her story, skills, and strengths in unexpected ways – supporting people through their grief in the co-creation of jewelry.
God told her it was time to turn her pain into purpose, and her non-profit, Together We Heal Community, was born in 2018.
One never knows where an idea will take us. Through Jill’s story, explore how she turned an idea and, more importantly, her pain into purpose.
RESOURCES:
CONNECT:
_______
NEED HELP?
- National Suicide Prevention Lifeline: 1-800-273-8255
- Crisis Text Line provides free, 24/7 support via text message. Text HOME to 741741 to connect with a trained Crisis Counselor
If you are struggling with grief due to any of the 40+ losses, free resources are available HERE.
Are you enjoying the podcast? Check out my bi-weekly newsletter, The Unleashed Letters.
CONNECT WITH VICTORIA:
Victoria Volk 0:01
Thank you for tuning in to grieving voices. Today my guest is Jill Batiansila. She is the founder of Together We Heal community in Elk Grove, California. She is a wife and mother of two teenage children after her biological father died in a plane crash when she was just 16 months old. She spent her childhood and early adulthood, avoiding any topic on death. In her early 40s, God flipped the switch on her heart and mission for her life and wove all her life experiences into her nonprofit, She now runs with the help of dedicated volunteers to serve those struggling with loss. And its many forums. Thank you so much, Jill, for being here and for being my first guest, as far as my new format for 2023 goes for highlighting nonprofit, not for profit organizations, foundations, things that people have created from the pain of their lives into purpose. And welcome to grieving voices.
Jill Batiansila 1:03
Thank you for having me.
Victoria Volk 1:04
I’m very interested in your story of what led to the work you’re doing today. And how that has transformed and changed over time. Did you find yourself on this path? I mean, as you described in your bio, a little bit, you’re kind of on this path for many years. But what did it look like early on? After so much loss in your life?
Jill Batiansila 1:30
First of all, my mother remarried, when I was three to my stepfather, who might Don’t call my stepfather, He is God’s gift to me. When my dad, when my biological father passed away, I was 16 months old. My mom was living out on a ranch she was she did have support, she had a lot of family support. And I think she had such a hard time grieving as a young widow, that, you know, I really became her, her source of comfort, and I received counseling. All of my childhood, I have a half brother, who’s four years younger than I am. My mom was very invested in my well being and making sure that I got the help that I needed. So I had therapy all through my childhood into my adulthood, I had a lot of trauma, I wrote my mom a letter every single night, I remember when I was in grade school, and I was so afraid that she was going to go next, I was so afraid of losing the people that I love. So I had a lot of just, I think trauma and grief growing up that A was always going to a close be, even as my family I had my own family and they grew up, I still had this thought that, oh my goodness, they’re going to go, they’re going to go next. My father died in a plane accident. One morning, he just went out and didn’t come back. And so that was that was a continued thought that that was going to happen over and over. And so I didn’t want to talk about death. I didn’t want to think about death. I had a hard time even imagining anyone else that I loved leaving. And unfortunately, because you live and when you live long enough, you you experience grief. So I lost all my grandparents, I had three sets of grandparents. And they all passed away very quickly, in a very close period of time. And I just didn’t want to think about it. I didn’t want to talk about it. Every time I talked about it, I would break down. And then I realized after many, many years of therapy, that I was still grieving. I mean, I was in my 40s driving somewhere thinking what am I doing? And that’s my purpose in life. Am I doing it yet? And the clear answer was no, I was not. But God was really weaving all of my life experiences together to make this my purpose and it it wasn’t until my 40s that I realized, oh, I need to do something with this and I need to use my pain for a purpose. That was his specific words to me. Use your pain for purpose. Now it’s time.
Victoria Volk 4:18
So what were you doing before this took root in your heart and started to evolve?
Jill Batiansila 4:23
So I actually have a degree in psychology, which I didn’t use, then went on to get a teaching credential and a master’s in education, but then and taught for a while but had children and stopped and then when my children were small, I started a jewelry business and that jewelry business was hand stamped jewelry. I taught myself how to stamp this jewelry. And it became this custom local business and people would come into my studio at home and they wanted to put something in A lot of people were coming to me because they wanted to create something as a memorial. So many of my pieces were just mother’s necklaces, important anniversaries, Valentine’s Day, Christmas gifts, initials and things like that. But I did have a growing number of people who are coming into my studio because they’ve lost someone. And I did not understand this connection at first. But over and over and over again, people will be standing in my studio with me, we are creating this piece together and writing stuff down. And within five minutes, they’re crying. And I’m hugging them, and I’m offering comfort to them. And I’m thinking, what is happening? This is this is not my platform. This was not what I was supposed to do. But God knew better. He was weaving all of my life experiences, my psychology degree, my teaching degree, being a mother being a Griever. Together, I remember talking to my life coach at the time, and I was saying, I I don’t know if I should continue with this jewelry business, you know, my children are growing up, and am I missing things? And I just feel like maybe this is not what I’m supposed to do. And we talked a little bit about my history, my grief. And she said, Why don’t you use what you have? And just start something, start somewhere. And so that’s what I did. I mean, it, it really was the jewelry business was the vessel to the nonprofit. And I still do the jewelry business, but but it is not my heart anymore. And my I really have become comfortable with the idea that maybe the jewelry business paved the way because it got me here. And this is this is my heart. This is what I am meant to do.
Victoria Volk 6:53
I love that story. And I’m curious if you personally felt like a failure when you decided to in that business or if other people made the assumption that you had failed in some way?
Jill Batiansila 7:08
That is such a good question. Because I’ve struggled with that for the last year. Starting the nonprofit is I’m obviously it’s a grassroots organization. And I am a lot of I wear a lot of the hats. And I had this conversation with one of my best friends just a couple of weeks ago that I do. I don’t like to quit anything. And I haven’t officially quit the jewelry business website is still up, I still get orders, I still actually use a lot of my pieces. I’ve made Memorial bracelets that people that kits that people can put together and there’s paperwork to fill out about their favorite memories of their loved ones. So I I definitely praying about when if and when this completely goes away, the jewelry business goes away. But I do know that the nonprofit has gotten to a point where I can’t do it all myself and I do have an amazing executive board. And I have wonderful volunteers that helped me in different areas, the nonprofit, but I know that I can’t have asked this. So if I’m doing these two things one is going to give and it’s just been the jewelry business has been fading. I definitely went through a period of time where I felt like, Oh, this isn’t this isn’t what I first envisioned the jewelry business to be. But through talking with friends talking with my therapist, it is it wasn’t a failure at all. It was a success because it it led me to Together We Heal community. And I didn’t know that was the end result. But God did.
Victoria Volk 8:47
I bring that up because there was I’m a child grievers. Well, my dad passed away when I was eight. But there was a period of time I had a photography business very much like your creative outlet business. And I found myself writing, I would write blog posts about my clients and people would comment more about my writing than they did the pictures, although there are beautiful pictures and they love the pictures. But I always got comments about the writing people loved what I had to share how I saw them, right like young 1718 year old girls, I would write about what I saw in them or families or a wedding couple. And it was storytelling is what I was doing. And they loved reading how I perceived them. And I had decided to start a blog, a personal blog and decided I needed to close that business. I felt a calling for something more kind of like you right and I do have a point and bring this up this podcast isn’t about me. It’s about you. But I want people listening to understand that when we find our purpose The path there doesn’t always make sense, right? And so when closing that business, I felt like a failure. And I felt, and people thought I failed to. But I knew that I had to let that go in order for something else, to make room for this other thing that was really burning inside of me. And that was writing. And I wrote a book. And that led to some losses in between, which made me realize, oh, my gosh, I’m not okay, I was fine. For a lot of years, I thought I was fine. Which led to me becoming a grief counselor, and, you know, so it’s like, Everything leads to the next thing, nothing is wasted.
Jill Batiansila 10:43
No, that is, I think that’s been a very big component of together to heal community is letting certain things go so that other things can come up and be brought to the light brought to the surface. We do, I think we have a lot of expectations about ourselves. Growing up, whether it’s, you know, just things the expectations that were put on us, or if you’re like me, I have my own expectations that I obviously need to let go in order for other things to come to fruition.
Victoria Volk 11:12
And life has a way of putting those things confronting us with those things, right, that we need to work through so that we can get to that point of seeing the opportunity and recognizing the potential within ourselves.
Jill Batiansila 11:26
And I will add that throughout my journey with my jewelry business, I did blog a little bit. And that also helped me realize my true purpose. And I was never the only time I was ever truly passionate like I am with Together We Heal community was when I was writing stories, the stories behind the pieces that I was making. And I love doing that don’t get me wrong. I love helping people through their stories in creating jewelry. It’s just just blazed a trail for me to start together, we heal community. And when I talk about people, and I talk to people about the nonprofit, I feel like that passion really comes out. It’s so easy to tell my story now, because my story is not unlike a lot of people’s story. They just don’t know it yet. They think I’m alone, I’m, I’m the only one experiencing this. I don’t want to burden anybody else with this because they’re happy. And I’m the one that stuck here. But the more you tell your story, the more people open up about their own.
Victoria Volk 12:40
Or find an outlet to release the story. Yes, to tap into the feelings of what actually you’ve experienced. And I think that’s the thing is, so often we get caught up in the story. We recite it like a recipe card while and then this happened. And then and then and then. And we don’t really get to the nitty gritty of of how it’s making us feel and the impact it’s had on us. I want to ask you a question, because I think it’s important for those listening, because you mentioned unlike me, you had therapy, much of your life, most of your life all through childhood. I mean, again, nothing is wasted. But I’m just more curious, because of what I do is deal with grief specifically. Do you feel like it wasn’t helpful for your grief? Specifically? I don’t know. Do you still see a therapist? Do you mind me asking?
Jill Batiansila 13:28
Yes, I do. She’s amazing. And I would not be where I am today. If I if I didn’t have her. In fact, I think I see her tomorrow.
Victoria Volk 13:37
And that’s not a failure, either. Right? Because you’re seeing a therapist, that doesn’t mean you’re like, broken or messed up or.
Jill Batiansila 13:43
Well, number one, we’re all broken. We’re all broken. And I don’t sugarcoat that there are parts in our life that break us. And I don’t think that we’re truly healed until we’re that brokenness is is wide open for us to see. And I am a big proponent of therapy. You don’t have to be depressed. You don’t have to be at rock bottom to seek counseling. Now, I think counseling is is complicated because number one, I think people think I don’t need to tell someone my problem. I know what they’re going to say. And it’s expensive to be expensive right now. And in our world. There is a shortage of them. Finally seek one you’re often just met with walls. You know, oh, it’s a three month waiting period. Oh, I’m not taking new clients. Oh, you know, or, or you get to a therapist. And it’s been, it’s been a difficult journey to get there and then you don’t like them. So people often think I had one therapy. It was one therapy session. It was terrible. Okay. I always say try therapy. If you don’t like the person. You can give them up. You can try someone new. My therapist knows me you She is by the books. You know, she does not commingle personnel, even though I have her cell phone. And she’s connected me with a bunch of other therapists, she draws the line with, you know, professional and personal. I’ve seen her for, I don’t know, 15 years off and on, sometimes I would go every, every other week. Sometimes I go every, every once a year just as maintenance about maintenance, and it’s healthy. Sometimes I’m driving there, and I’m thinking, I don’t know what I’m going to talk to her about today. And then I just spew my guts for an hour, and I feel so much lighter. And she has this perspective that I don’t have. So it’s important, I think, but I don’t think therapy is necessarily for everyone. And that’s okay. You need to find an outlet. And that’s one of the reasons why we offer and I know we can get into that later, but we offer outside of the box opportunities to heal because not everybody wants to go to therapy, they look at therapy, and they go no, no, no. Okay. There’s there’s a myriad of other ways that we can help you.
Victoria Volk 16:04
Absolutely. And I don’t know if you’ve ever heard of Grief Recovery. Have you?
Jill Batiansila 16:08
Not specifically Grief Recovery? Is that a method? is a method The Grief Recovery method? Yes, yes, yes, yes, yes.
Victoria Volk 16:18
That is the one thing that helped me, I did have a, I did attend therapy sessions in my early 20s, hypnotherapy, things like that. And much like what you mentioned, like my experience was not beneficial for me. But I think we come into our own time, when we might be ready for something like that. I think too, sometimes we aren’t ready to hear it. We aren’t ready to really dig deep. And I can tell you then in my early 20s, I certainly was not ready. And so I think we all have our own time and that when that happens, but
Jill Batiansila 16:54
I agree. And I think that as a griever. Our society doesn’t know how to deal with grief, we don’t know how to talk about it. We don’t know how to come alongside someone. In their grief, we don’t know, we’re uncomfortable with hard conversations. So often people are afraid to express to the Griever that I don’t know how to help you. And sometimes that is just sit with me. Or there’s a timeline to grief, you know, it’s it’s been a year right? You’re good, right? You you got through the first anniversary, you’re good. I don’t know how to help you, I expect you to be okay. And then they they start, you know, they’re back to their regular life. And so it’s important for people to not compare where they are in their grief with anybody else’s. And the other point that I make to people who are grieving is you don’t owe anybody any explanation as to where you are in your grief, I have come across people who are very stuck. And I don’t see them pulling themselves out of that. And there is frustration with the people around them that are trying to help them out and are invested in helping them with their grief. But grief can’t be fixed. But we can go through it. We can go through it on the other side. I myself have experienced that grief and joy at the same time. But we cannot compare even if it’s five years down the road, where we’re somebody else’s and five years later. Grief is so individual.
Victoria Volk 18:29
That’s exactly why I started this podcast grieving voices to educate people on how one they can move through it themselves, and to how they can learn through people’s stories, how to support other people and like this year, highlighting how people have moved through it themselves and now are supporting humanity on a greater scale. And it doesn’t have to be this grand thing, right? I’ve never heard of Together We Heal with community. And so this is part of my own curiosity to like, what, what is out there? What resources and what, what wonderful things are people doing? And so it’s out of my own pure curiosity to have that I’ve decided to make that a focus of my podcast this year. So let’s talk about how this started. Because you had no experience right? Yeah.
Jill Batiansila 19:22
I had to do it again. No, I my only experience was grief. I’m a people person. I’m a connector. And I just knew I needed to start with a platform where it was everything that’s out there about grief in one in one place. So I brought together some people who are willing to start a website with me and we divided it into different areas of grief you know, loss of a spouse, loss of parent loss of a child loss of divorce loss through suicide, and we tried to make it this complex. hence a website that encompassed everything that’s out there in the Sacramento area and into one place. So my goal is to really make Together We Heal community, a starting point. And you know, I’m the first to say, I am not a licensed clinician, but I am an experienced Griever. And I think that counts for a lot. And so we started with this website. And it took us about two years to build. And everyone who wrote the pages on the website, were an experienced graver in that area, my dear friend wrote who wrote the miscarriage page, she has experienced two miscarriages. And what she found actually, as a closed off person was after she wrote that page, and then started meeting people in her arena that that avidex had experienced miscarriage, she could easily talk about it, it was healing for her, and she realized that so many women experienced miscarriage. So we started the website. And then my next step was okay, let’s start getting some things going in Elk Grove, because I, our community is close knit. But there isn’t, there isn’t a lot out there to help Grievers. And I just really wanted to touch on different experiences, you know, somatic mindfulness, you know, when we experience grief, where do we feel it in our bodies? And how can we, how can we tackle grief from the side, you know, you don’t have to talk about grief, but just come here and be with us. Come and be with other gravers. So we then started a grief support group, we started different workshops that are that are healing and easy to come to you. There’s no pressure when you come to any of these, we call them workshops. It’s just come as you are and get this gift of this amazing people. But amazing people have come into this. And a lot of my facilitators don’t even charge Together We Heal community for their time, they’re also of service I have attracted people who want to give back and I’m so blessed to have those people come alongside me and, and create these services for our community. So we have a writing as a healing art. And you can come come to that class and write about anything, it doesn’t have to be about your grief, you’re given a writing prompt. The facilitator is a Griever herself. But she’s also a retired writing professor and super fun and she buries bring snacks, and she gives us some prompts. And we can write about anything we want. And we can share if we want and we don’t. But we most of us end up sharing, we have yoga nidra, which is mindfulness, you’re literally laying on a blanket with a pillow, and you’re being led through scanning your body, and where you hold your grief. It’s Joe Weston of breathing space has been a dear friend and confidant in this organization. And she leaves that once a month. She doesn’t charge me I have restorative yoga, we’re having a decluttering through grief class this this month are always finding new opportunities for people to come and just experience with no expectations.
Victoria Volk 23:29
And for those listening, this is in only in person like in the Sacramento area correct?
Jill Batiansila 23:34
Most of our offerings are in person. We do have some that are on Zoom. For instance, next month, Joe Weston is going to do her yoga nidra session on zoom so that other people in other areas can experience that are decluttering through grief, which is actually this Wednesday is on Zoom. I have people attending it who are in Colorado and other parts of California. So in though in the winter, we hold them at our space in Elk Grove in the summer, we hold a lot of workshops out at our farm where we grow flowers, which is another another part of the conversation.
Victoria Volk 24:10
No, I’m actually bringing up right now because I saw that in your information. And I think that’s a beautiful idea. So please share.
Jill Batiansila 24:17
It’s one of my favorite parts of this in the summer. We grow flowers out on a local farm, a dear friend of mine, Cliff Wilcox, who’s going to be at this year. Lets me grow flowers, and we give them away all summer long. It’s our outreach portion of Together We Heal community. It gets people involved in being outside we have lots of volunteer opportunities for people to go out there and plant and weed and arrange and deliver flowers. We have different businesses in Elk Grove that are willing to take those jars during the summer on a weekly basis. We bring 10 to 20 jars to a couple places around Elk Grove and people can pick them up for Free. And it’s just a way of encouraging people to start a conversation. So you can walk in, grab a jar, if you want to leave a donation, you can, but we don’t. We don’t ask for that. And it’s, it’s an opportunity for them to bring flowers to someone who they know are experiencing stress or anxiety loss doesn’t have to be through grief through death. But we’re all grieving something right now. We live in this broken world. And with everything that’s happened in the last couple of years, all the uncertainty, there’s so much grief, there’s loss of normalcy. So the flowers are a way to say, I’m not sure what to say to you. But here’s some flowers. And Aren’t they pretty, and they were grown for you. Everybody that put these together had you in mind for them. And I’m thinking of you. And I’m here, the flowers are started by seed about now right now we’re underwater because it’s, it’s been a tumultuous January. And we will have to start from scratch scratch. It’s looking pretty muddy out there right now. But we grow them by seed. And then it during the summer, we have you pick days, so people can go out there and pick them themselves. And I will tell you, it’s magic. That place out there. The farm Cliff Wilcox lets me do whatever I want. He doesn’t charge me because he’s so sweet. And I love him. And we have our wellness retreats out there, we had a wonderful wellness retreat in the fall. And we’re having another one in April. And that wellness retreat was just come and be here with us. We had massage and yoga, we had nutritional components, we had the writing, and it was catered music, and it was beautiful. And and people just got to be outside and and be open to new experiences that they wouldn’t have normally found. And so that is a lot of what we do. Also it is if you trust us, we trust the people. And it’s a it’s a safe space, and just come and experience it for 45 minutes. And if you don’t like it, you never have to do it again. But maybe it will be your saving grace.
Victoria Volk 27:10
For those listening who are might be thinking, oh my gosh, this speaks to me, I would love to do something like this. But I feel so overwhelmed. Where do I even start and you kind of spoke to how it started for you. But for those who are thinking that this could be something for them right for making purpose out of their pain, a nonprofit, not for profit, things like that. How do you make money, right? Because it’s not for profit, but how do you how does it fund itself? I mean, that might be a big question for that it might have.
Jill Batiansila 27:42
It is and I will tell you I am I am the first to say I do not fundraise well, but we are funded all by donors, all by donors. So and my my executive board and I are working on how do we do that better. But our story entices people to be a part of this. So we’ve got local organizations that want to be a part of this. It’s something that is needed. And it’s something that I think our not just our community, but all communities lack is that support. And so we have recurring donors that we we would love to have more recurring donors, because it’s a small portion, you know, it’s $10 a month, it’s $20 a month, it’s whatever you want. And then we do have some big one time donors who are part of big day of giving, which we’re excited, this is the second year that we get to be a part of big day of giving, which isn’t a day for people to just remember, they’re nonprofits that they have a heart string to, and be a part of that I want people to want to be a part of together, we heal community. Most of our our costs are very low. Our classes that we offer, sometimes they’re free, sometimes they’re $5, our new pick days, generate a little bit of money or wellness retreat, generate a tiny bit, but we really rely on donors who want to be a part of this who who want to put their name on together, we heal community. And I think that’s the neat part about it is you can be the reason why people get help. There are people that that have money to give and they don’t know where to give it or that or they’re not invested because emotionally invested. I think part of that tied together with heal community is I want to be a part of that. That’s something that is not done. And in grief work in general. I’ve had people ask me, Why do you want to do this all the time? Because I’m here in my grief for a short period of time. I don’t want to stay here. So why why are you doing this? Because this is hard work emotionally, too. When people contact Together We Heal community. It’s me. I’m the first person that ever reach. And it’s hard sometimes. And my answer is, that’s because God put this on my heart. So he has enabled me to have this first touch with people. And, and I’m not the endpoint, I’m just the connector. I’m let’s start here together, I won’t leave you, I’m not going to abandon you. Because I think a lot of people have been abandoned in their grief, they’re alone, their family doesn’t want to talk about it. They can’t find that help. Through the mental health world, you know, therapists are booked. So I’m here as yours land, their first landing point, but I’m not your endpoint.
Victoria Volk 30:42
I love that. And I love how you, I just want to highlight something you said and that if someone who’s listening, if this isn’t something that’s maybe meant for you to create an organization such as you did, you can still volunteer for an organization like this and find some purpose and meaning through your own story, but in giving to others, right?
Jill Batiansila 31:06
Yes, I think it is an overwhelming process to think about starting your own nonprofit. But I think where you can start is in your community, find nonprofits that are already doing it, and just just say, I’m here. Let’s start. Let’s start at Ground Zero. But I’m here and I want to give back and and start from there.
Victoria Volk 31:26
Well, here’s the thing I want to highlight too, is that we all have our own unique strengths. And so even if you aren’t sure, like, Well, I’m not really sure what my gift is, or what my what my thing is about me that is, is awesome. I think you’d find that as you start, you know, it’s like follow the cure your curiosity, follow the nudges, if you feel nudged to, you know, check into something, follow that nudge, follow the curiosity that has been placed within you, right?
Jill Batiansila 31:59
Yes. And I think acknowledge that it might be bigger than you if you feel, you know, I am a very strong Christian, and I pray about every single step I’ve made. Am I Is this what you want me to do God? Is this it? And then asking him again? And again, every single step? Am I doing this? Am I doing this? Selfishly, or am I doing it for someone else, and I asked myself that, because in the end, it’s not sustainable, if I’m doing it for, for myself, has to be for, for others. If God has given me a heart of service, I need to serve it. It fills my cup to serve others to if it’s just one person. And and I’m finding that on I know, it’s weird that social media has been a catalyst to get more people to what we’re offering, what good is it if you’re offering something and nobody’s taken advantage of it? But but our like, Instagram has been a way of finding people all over the world. You know, I look at my, my insights. And I think, wow, I reached somebody in South Africa today. That’s amazing.
Victoria Volk 33:11
I feel the same way. Even this podcast alone, it’s on every continent. And it’s humbling, because it’s something like just an idea. It starts with an idea. And you never know where it’s gonna take you. Yeah. So through your work, and through your own personal experience, what are some unhelpful and hurtful things that hurt you? deeply as you were working through your grief? And I know you had a therapist throughout your life and tech could help you through those things.
Jill Batiansila 33:40
I would say I’m unapologetic about how I feel I’m an open book. If people don’t like how I feel like, I kind of it doesn’t bother me as much. I have. I have had a lot of family members, say, after a death that we had experienced that they should just get over it. Just get over it. It’s been it’s been long enough. It’s been long enough. Why don’t you Why don’t you just move on? And I think that’s been that’s a trigger for a lot of people. Why are you at this point yet? Why aren’t you at that point yet? You know, I’m fine. I’ve gotten over it. The whole you should get over it. Thinking is is very hurtful. So I would say that’s the biggest trigger is that you’re not where someone thinks that you should be. And again, you don’t owe anybody any explanations as to where you are in your in your journey. And I know Germany is a cliche word but it really is a journey. Its ups and downs. It is you’re fine and then you smell somebody’s perfume and it catapults you back. So I think just being strong in in your your process is important to remember because you will have people that do not understand It is not it is not for you.
Victoria Volk 35:02
I think sometimes to people who because I experienced that as well, you know, especially I think with child Grievers especially, I mean, you’ve we’ve been as children, we’ve carried this our entire lives practically. And so people can easily say, oh, you should be over it by now. I mean, that happened when you were a child, you know. And I think what’s interesting is that, and I, I know this specifically, for myself, I had someone say that to me. And what’s interesting is that person has, that persons who passed away the mutual person has their cologne, in the cupboard, in their bathroom. And I thought, that’s interesting. So you never really know the people that are saying those things really could be judging themselves, I should be over it. So you should be over it too. But I’m not. But I’m going to tell you you should be projecting your pain.
Jill Batiansila 36:02
Exactly. And not everybody knows how to really process that. So just like, like any child with a wound, often that wound becomes a way that you that you hurt others.
Victoria Volk 36:16
And so what has your grief taught you?
Jill Batiansila 36:19
That God has made us resilient beings, I’ve spent a lot of time whoring myself over my grave reading, reading the Bible names, my grief has taught me lean on the Lord, the human beings in our world, whether we’re extremely close to them, or their enemies, because they’ve said things that hurt us, human beings are going to disappoint us. So my grief has taught me trust the Lord, read over his word, lean into Him, and He will guide you. So he has guided me in one of my prayers when God set this on my heart. And I literally know the moment that God set this on my heart. And he said, use your pain for purpose. It’s time. He said, You stay in your lane, I’ll bring the right people at the right time. And that that is very important, I will bring the people to you, at the right time, not in my time. So I think that there is a reason why I it’s taken me this long to start this organization, I have had to and I use this word often with people, sometimes you just have to sit and marinate with it. Marinate in your grief, it’s an awful place to be. But without, without that acknowledgement you’re not going to heal. So he has brought because I’ve leaned on the Lord and, and waited for him. He has brought me it’s a gift. I meet someone new through someone else, the power of networking, the power of networking, but God’s the boss of networking. And I’ll meet someone and after I just kind of sit and think, Well, I could have never done that on my own. Never, I could have never met that person. I cannot believe I just met that person. And look at all the good we’re gonna do together. He this person is going to make my organization better.
Victoria Volk 38:30
I love that. I love how you said that. God is the boss of networking. That might be your quotable for this episode. I love it. So let me ask you this, what has what have you learned about yourself? In starting Together We Heal community.
Jill Batiansila 38:49
I will say this. I have been dreaming about this wellness retreat out the farm for probably three and a half years. And last summer. I told my people, all of my volunteers, all of the people that are involved in Together We Heal community. I said we’re gonna make this happen this year. And we threw together together in about three months. And afterwards, one of one of the facilitators came up to me and she said, you know, I’ll be honest, I penciled this in because I thought there’s no way but what I learned is, oh, Jill’s doing it. This is gonna happen. And so I have a lot more confidence in myself that if I follow God’s lead, and do the things that he’s telling me to do, I will not fail. It is I just know God God and I prayed about this. And God said do this, though. I know he’s gonna make it happen. And and so I have learned that I can get a lot accomplished. I am squirrel, I am self proclaimed ADHD child, but I can get a lot done. And a lot of that is because has got an idea that together, God brought in the people, God, God, God brought in the donors. And so God’s leading this. So I, this is this is happening. So not doubt myself, do not I don’t doubt myself.
Victoria Volk 40:15
And that’s great advice for others as well.
Jill Batiansila 40:19
I hope so,
Victoria Volk 40:20
Is there anything else about Together We Heal community or your story, anything we didn’t get a chance to share that you would like to add?
Jill Batiansila 40:32
Well, since we’re on the topic of starting nonprofits, you know, one of my pieces of advice is you can have big goals, but you need to start small. Don’t overwhelm yourself with the end result, start with what you have. First, you can have your five year goals seven year goal and know that that goal will change. When I first started this, I thought it was going to be all for children, because I was a childhood Griever. And so that’s my soft spot is how do we help children that that are needing help, but maybe their parents or guardians don’t know how to get them that help? So I first thought everything I was going to do was just for kids. And, and that now that’s something that I look back at and think oh, well, we didn’t do that at all. Are we going to do that next? Are we so start small, God will bring the right people into place when it’s time. But you start start with what you what you can do at the moment. The flowers started with, I asked the farmer, Hey, can I grow some flowers, I’m not even really sure why. But I just want to, and he said sure. And I threw a hose down a 300 foot row and I grew flowers and weeds. And I picked them myself. And I arranged them and I gave them to my neighbors and my friends and just thought I don’t know what I’m doing. But let’s do this. And now last year, we had over 1600 feet of flowers. We gave away 650 jars ish more, and no idea was going to be doing that. So it’ll be open. But start small.
Victoria Volk 42:17
I want to share something you said just kind of piggyback it because even though you haven’t, your services and what you’ve done haven’t like tailored to children, I think the biggest impact that we can have on children and their grief is as adults, we learn how to process our own. And we we actually do work on our own stuff. Because in doing so we become better parents, we become better individuals in the community. We know how to better support children in their grief, we learn through our own processing, how to better support children, I think really, truly I mean, it starts in the home. And so as if you’re, I can just attest to myself, and maybe you can too is I was a raging mom, because I had a lot of unprocessed grief and a lot of unprocessed anger. And as you become a parent, it brings up all of your insecurities. So to starting a business, right? And I’m sure that starting this nonprofit, it brings up everything, it’s so confronting. And you have no choice but to deal with it or become this. It brings out aspects of you that you are proud of.
Jill Batiansila 43:35
Yes. And, again, I’m a parent of two, oh my goodness, let your children see you cry. Let your children see you be broken. I think that’s important. Now you don’t need to be a hot mess. 24/7 But I think it’s important for them to see you be Human Being human means you’re going to hurt. That expectation that everything’s going to always be okay is not realistic. So how do I show my kids how I’ve coped with with the pains of life. So be open. Don’t be afraid to have those conversations with your kids. Let them see you cry. Oh my goodness. Let them see you cry and let them see you. Work through your struggles and have an open dialogue with them. You know, by him. I’m always telling my kids, if you need, you know, it can be messy. Tell me what’s on your mind. I sit with them. My husband and I pray with them. We have devotions. You know life is raw. And I think it’s important for our kids to see us in that raw mode. You cannot protect your children from pain. You can’t protect yourself from pain, but we need to talk about it. We need to have an open dialogue and it’s ugly.
Victoria Volk 44:54
And we can become better equipped. Absolutely. There are there is knowledge out there. or pick up the book, The Grief Recovery handbook? For starters. I need that book. Yeah, understand grief itself, because as we’ve talked about at the beginning of this episode, which is this is a great way to tie it up is that we simply do not know what to do with it. And so as an adult, if you are angry, and you have a child who is expressing anger on a consistent basis, there are only a mirror. Yes, there are only being a mirror. Don’t be surprised, then when your child is angry if you are an angry parent, and there is the grief that is unprocessed there.
Jill Batiansila 45:37
I think it’s also important to tell them tell children that just because I am dealing with it this way, maybe what sounds what sounds good to you to start, what are you comfortable with starting, you know, I always talk about possibly starting a journal or doing art therapy, let’s get color crayons, depending on their ages. Let’s just get out. But everybody does process grief differently. And that’s important for them to know, hey, I, this is how I deal with grief. And, and but it might not be how you’re most comfortable with dealing with it. So what what do you feel like doing? You know, and and, you know, there, there are lots of ways to word it, because everybody has a different personality and you knew your children best but, but it’s important to know to, for them to find their own unique way that they can process their grief, or their stress or the anxiety. You know, that’s that’s all big, big words right now is anxiety. We’re all having a little bit of that.
Victoria Volk 46:36
And it’s grief.
Jill Batiansila 46:38
And the loss of the loss of that you can you know, walk out the door and expect certain things that’s no longer there.
Victoria Volk 46:46
Yeah, loss of hopes, dreams and expectations and anything we wish would be different, better or more is grave. Yes. So thank you so much for being here and for the work that you’re doing and in your community and the information that you’re sharing and your gift of creating purpose from your pain. Thank you so much.
Jill Batiansila 47:07
Thank you for letting me share.
Victoria Volk 47:09
And remember when you unleash your heart, you unleash your life. Much love.